news@QEHB August 2014

Visit our website: www.uhb.nhs.uk

For patients, staff, visitors and volunteers

Page 3 Key advance in lung cancer treatment

AUGUST 2014

Centre pages Dignity in Care ‘Welcome to my world’ - conference report

Actor’s call for all to sign donor register As a Brummie, a British Pakistani and a Muslim I cannot think of anything better to do than join the register.

Adil Ray

Adil Ray

Birmingham-born actor Adil Ray, famous for his starring role in hit comedy TV series Citizen Khan, has teamed up with the Queen Elizabeth Hospital Birmingham to front our campaign to boost the number of people on the organ donor register.

A passionate supporter of organ donation, Adil sent this message for National Transplant Week which runs each July: “As a Brummie, a British Pakistani and a Muslim I cannot think of anything better to do than join the register.

“Did you know that there are more British Pakistani Muslims on waiting lists for organ or stem cell transplants than there are registered donors? Imagine being one of them?

“Just stop and think about that. Knowing that someone out there could save your life.

This happens across the United Kingdom but in cities like Birmingham, with a large British Pakistani Muslim community, the problem of this mismatch is clear and leads to longer waiting times for life-saving treatment.

“We all must embrace organ, stem cell and blood donation and encourage such virtuous behaviour – there cannot be any transplants or transfusions without willing donors.

“As British Pakistanis we are brought up to treat everyone as one of our own. But what about where it really matters? Imagine saving a life. What could be more dutiful than that?

Come on, join me. The feeling’s great!”

Adil’s support comes at a time where there are over 5,000 people nationally waiting for a kidney alone and over a fifth of that figure is from an Asian background – whilst those from an Asian background make up less than ten per cent of the donor register. At the same time hundreds of potential donor organs are not used every year due to the families of the dying or deceased not knowing of their loved ones’ wishes.

For more details about becoming a donor see page 5.

Page 10 Physio’ team launch their new website NEWS

Team’s nomination for prestigious award A team from University Hospitals Birmingham NHS FT has been short-listed for this year’s prestigious Nursing Times Awards.

The entry, titled ‘24/7 Research for 24/7 Trauma: Recruitment of more patients to research trials to improve trauma and critical care patient outcomes’ is a finalist in the Clinical Research Nursing category.

The purpose of the initiative was to create 24/7, 365 day access to trauma patients with the aim of increasing the number of patients recruited to research trials.

It is led by the Trust’s trauma research nurse team which is the first and only UK team to work 24/7, 365 days a year. It is also the only UK team to enrol injured military and civilian personnel into clinical trials on one site, under the leadership of the Surgical Reconstruction and Microbiology Research Centre (SRMRC).

It is hoped that larger numbers of patients taking part in trials will help improve trauma and critical patient outcomes at a local, national and international level.

NIHR SRMRC Research Programme Manager Dr Karen Piper explained: “The 24/7 service was launched in 2012 and within the two years we have seen a marked improvement in accruals to clinical research studies, with over 500 to date.

“This can be explained by 60 per cent of our trauma patients being recruited to clinical trials out of hours.

“By promoting the success of our 24/7 research infrastructure we hope to encourage other hospitals to adopt a similar approach thereby maximising the outcome for patients recruited and for all traumatically injured and critically ill patients in the future.”

The 2014 Nursing Times Awards has had a record-breaking year for entries and the judges say they have been extremely impressed with the high standard.

The winners will be announced at a ceremony on 29 October at the Grosvenor House Hotel, Park Lane, London.

Nominations are now closed Thank you for your nominations. Look for the shortlist which will be published in the October issue

Puzzle page: brainteasers, mind benders and more P15 Find your way around: hospital maps P16 news@QEHB 2014_8_Aug.indd 1

28/07/2014 16:46

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University Hospitals Birmingham NHS Foundation Trust | AUGUST 2014

Health talks for Foundation Trust Members 2014 Morning Sessions: 10.00-10.30 – Registration 10.30-noon – Health Talk VENUE: Lecture Theatre 3, Education Centre, Level 1, Queen Elizabeth Hospital Birmingham Wednesday 6 August Queen Elizabeth Hospital Birmingham Charity/Conditions affecting the kidneys/ transplantation Wednesday 10 September Conditions of the prostate/impotence Wednesday 1 October Multiple sclerosis Wednesday 5 November Blood disorders Wednesday 3 December Conditions of the stomach and bowel

Evening sessions: 18.00-18.30 – Registration 18.30-20.00 – Health Talk VENUE: Lecture Theatre 3, Education Centre, Level 1, Queen Elizabeth Hospital Birmingham Tuesday 16 September Queen Elizabeth Hospital Birmingham Charity/Ageing Book a place by contacting Lorraine Bateman via email to lorraine.bateman@ uhb.nhs.uk, or telephone 0121 371 4957

Appointment of new governors to Council The results of recent elections have now been confirmed with the following appointed to the Council of Governors of University Hospitals Birmingham NHS Foundation Trust: • Mr Ian Fairbairn as Governor for the Patient Governor Constituency • Mrs Aprella Fitch as Governor for the Patient Governor Constituency • Mrs Bridget Mitchell as Public Governor for Edgbaston (unopposed) • Mrs Edith Davies as Public Governor for Northfield (unopposed) • Dr Elizabeth Hensel as Public Governor for Hall Green • Dr John Delamere as Public Governor for Selly Oak • Dr Sunil Handa as Public Governor for Erdington, Hodge Hill, Ladywood, Yardley, Perry Barr and Sutton Coldfield.

The Returning Officer for these elections is OPT2VOTE Ltd, 25D Bishop Street, Derry, BT48 6PR.

Trauma centre is an NHS ‘success’ story The Queen Elizabeth Hospital Birmingham (QEHB) is part of ‘a major NHS success story’ as new figures show around 600 more patients are surviving major trauma since changes to services in April 2012.

The 16,000 life-threatening major traumas are the biggest cause of death in children and adults under the age of 40. In all, some 37,000 are seriously injured in England annually.

An independent audit, commissioned by NHS England and produced by the Trauma Audit and Research Network (TARN), shows that patients in England have a 30 percent improved chance of surviving severe injuries after the introduction of Regional Trauma Networks across England in April 2012. Full details of the independent audit produced by TARN can be found on the NHS England website.

More than 1,200 of the West Midland’s most severely injured casualties have passed through the front doors of the QEHB since April 2013 in its capacity as a Major Trauma Centre (MTC).

The hospital’s specialist teams treat the most complex injuries, including massive internal bleeding, brain injury, multiple fractures and cardiac failure.

Without the MTC system it is possible that many of these patients would not have survived

You said, we did...

You Said: A visitor to the hospital commented that the Queen Mother’s Bust in the main atrium of QEHB needed an informative plaque as future generations might not recognise who the sculpture depicted.

We Did: The Trust arranged for a plaque to be installed behind the sculpture which reads: “On 1 March 1939, Her Majesty the Queen Mother with her husband King George VI officially opened the Queen Elizabeth Hospital.

This sculpture was created by Franta Belsky (1921–2000) and was donated to the hospital almost a quarter of a century later to honour the occasion.

The Queen Mother is depicted in ceremonial dress and holding a spray of lupins.

The sculpture was transferred to the new Queen Elizabeth Hospital Birmingham for the official opening by Her Majesty the Queen on Thursday 12 July 2012 during her Diamond Jubilee Tour, accompanied by His Royal Highness The Duke of Edinburgh.

Visiting times Visiting times on wards are 2.30pm to 7.30pm daily, including weekends. The general rule is a maximum of three visitors per patient. Children under 16 years are welcome but must be accompanied by a responsible adult.

If there are any difficulties with the timings please speak to the nurse in charge. Families and friends are asked to stagger their visiting times to avoid overcrowding.

Delivering the best in care

while others may not have realised their full potential for rehabilitation and recovery without the early interventions they received.

The hospital’s status as an MTC complements the fact that it also treats all injured British servicemen and women injured overseas.

Any military patients wounded in combat are evacuated from war zones via the aero medical service and brought to QEHB for treatment before being discharged, in the majority of cases, to Headley Court, the Defence Medical Rehabilitation Centre in Surrey.

Professor Sir Keith Porter, the UK’s only Professor of Traumatology and MTC Clinical Lead said: “A key part of the MTC role is that we often have several specialities involved in polytrauma.

“That has required a service redesign both internally and externally and a new way of working across all divisions.

“Our MTC consultants include members of the military, ensuring their learning is shared across the civilian patient pathway, making our centre quite unique.”

QEHB is at the heart of the Birmingham, Black Country, Hereford and Worcestershire Trauma Network, which went live in 2012.

In the whole of the 2012/13 financial year, a

total of 1,073 major trauma patients arrived at the hospital. Between April 2013 and January this year, 1,254 people were brought to QEHB due to its Major Trauma Centre status.

These were patients who triggered the West Midlands Ambulance Service MTC criteria.

The majority – 27.5 per cent – of these patients arrived in the Emergency Department following road traffic accidents. Falls accounted for 15.7 per cent and stabbing/sharp instrument injuries 8.7 per cent. Of the major trauma cases, 79.3 per cent were admitted to the hospital while 13.4 per cent were discharged home.

Mondays and Tuesdays see the largest number of patients arriving, between 08.00 and 17.00. At the same time there has been an increase in overnight activity over the weekends, particularly on Friday and Saturday nights.

An extremely positive improvement in the treatment of trauma patients is that therapists provide an initial rehabilitation prescription within the first 24/48 hours of an MTC patient arriving. This guides not only their initial treatment but their ongoing care, including information necessary for subsequent receiving hospitals and external agencies.

Centenary celebration

A former hospital matron found a wonderful surprise reminder of her nursing career in Birmingham when she celebrated her 100th birthday.

When Margaret Ann Jones (pictured above) was invited to cut the cake at her birthday party in Aberystwyth, Wales, she discovered an old photograph from her time at Queen Elizabeth Hospital.

The black and white picture, believed to be taken in the 1960s, had been transposed onto her birthday cake by her nephew Alun Evans.

It shows Margaret Ann, who is known to her family as Megan, looking on as a patient is examined by a doctor.

Alun, 56, who combines work as a farmer with a job as a research technician in biochemistry at the University of Aberystwyth,

had planned his aunt’s surprise.

He said: “I knew that Aunt Megan spent most of her nursing career in Birmingham so I went online to see if I could find any old photos. But I was very pleasantly surprised when I came across a picture of her at Queen Elizabeth Hospital.

“She was deputy Matron there for most of her time and she then took over as Matron for the last few months before she retired, which was about 40 years ago.”

After getting approval to reproduce the archive photo, Alun was able to transpose it onto her birthday cake for the special centenary party.

He added: “She didn’t know anything at all about it so it was a really lovely surprise for her, as well as for her friends and family at the party.

I’m sure it brought back a lot of memories for her.”

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AUGUST 2014 | University Hospitals Birmingham NHS Foundation Trust

Insulin: Be aware of risks The team of specialists working with patients being treated for diabetes are aiming to highlight the risks of insulin through a new publication, ‘A QEHB guide to Insulin’.

Guidelines, which are a useful reminder of the key diabetes messages and safety standards, have been launched as part of a NHS-wide strategy to support professionals who administer or prescribe insulin.

Angela Murphy, Diabetes Renal Specialist Nurse, explained how the diabetes team felt the guidelines, which are outlined on a poster, would be useful for health professionals.

She said: “Insulin is a potent drug with the potential to cause harm if prescribed or administered incorrectly. The number and range of insulin is complex and at times confusing for staff so, as part of the NHS safe use of insulin strategy, the diabetes team felt an aid for health professionals to cross reference insulin formation for prescribing and administering insulin could improve standards and ensure high levels of insulin safety.”

The guide is an easy-to-use resource to identify insulin products, devices, guidance on insulin profiles and time of insulin administration.

It can also be used as a reference guide when variable rate insulin should be stopped and regular insulin restarted.

The ‘A QEHB guide to Insulin’ is available on the intranet under ‘departments’ then ‘Diabetes’ http://uhbhome/Downloads/ pdf/DiabetesInsulinQuickGuide.pdf It is also available via PICS under help and ‘QEHB guide to insulin’

Shelly Hammond and Dr Christopher Jones

Hi-tech treatment targets lung cancer

Patients with early stage lung cancer can now benefit from a new state-of-the-art radiotherapy treatment at Queen Elizabeth Hospital Birmingham (QEHB).

The technique, called stereotactic ablative body radiotherapy (SABR), uses the latest developments in radiation technology to deliver much higher doses of radiation to the tumour with pin-point precision.

This reduces the risk of surrounding healthy tissue being damaged and also increases the cure rates for patients undergoing the new treatment.

University Hospitals Birmingham NHS Foundation Trust (UHB) has become the first trust in the Midlands to provide the new radiotherapy treatment.

And the Trust is now hoping to double the number of patients it treats at QEHB using SABR from around 25 in the first year to 50 to 60 in future years by utilising its new CyberKnife machine.

Clinical Oncology Consultant Dr Qamar Ghafoor said the SABR treatment was available for patients with early lung cancer who are either medically unsuitable for surgery, or decline surgery altogether.

“We would prefer patients to have operations to remove their tumour but this is the best alternative we can provide. It has been a standard of treatment across parts of Europe for the last four to five years and the UK has since been catching up.”

Treatment times for patients have been reduced by up to a fifth, with the higher doses delivered in three to five treatments

Dr Qamar Ghafoor Dr Ghafoor said: “The majority of early stage lung cancer patients we have treated have been deemed medically incapable of managing major surgery. This could be due to heart problems, poor lung reserves, or other medical issues.”

He added that the treatment, which is more effective than conventional radiotherapy in shrinking tumours, was also less invasive for those patients anxious about surgery.

“To be suitable for SABR the tumour needs to be isolated and not already invading into central structures,” Dr Ghafoor explained.

“The reason for this is that the dose we are giving is so high that it may damage surrounding areas if it wasn’t isolated.

“With conventional radiotherapy you would give the patient a lower dose spread over a longer period, but by giving them a concentrated dose it is more radiobiologically effective. You are applying a higher dose to the tumour.”

The result is that treatment times for patients have also been reduced by up to a fifth, with the higher doses typically delivered in three to five treatments compared to the 20 for conventional radiotherapy.

Dr Ghafoor said the SABR treatment, which is available in 15 other centres across the country, followed advances in radiation technology.

“It is the knowledge of what we can do, and it is the equipment we can use. We also have 4D radiotherapy capacity and online imaging which means we can take pictures as the patients are having treatment.”

UHB, which is now getting referrals from across the wider region including Cheltenham, presented its initial data at a recent international conference in Ireland.

It revealed that of the first 11 patients treated at the hospital, the tumour shrunk in eight and stopped growing in the other three. And, of the eight patients where it shrunk, the tumour disappeared completely in two patients.

Dr Ghafoor said: “Based on worldwide figures for this SABR treatment, 85 per cent of tumours have not re-grown locally after five years.

“This is significantly better than standard radiotherapy where in the region of 20-25 per cent of tumours have not grown after the same five year period.”

At the same time, the overall five year survival rates for surgery on early lung cancer patients stands at between 60 and 70 per cent.

Hospital radio will reach wider audience BHBN Hospital Radio has expanded its reach by launching into online streaming – making it permanently accessible to the general public for the first time in its 62 years of broadcasting.

Until now, the volunteer-run hospital radio station – based in the old Queen Elizabeth Hospital building in Edgbaston – could only broadcast to patients in the six NHS hospitals across Birmingham via tuned-in media units at patients’ bedsides.

Now the online stream means that accessibility for patients will be much easier, with many coming into hospitals with their own mobile and tablet devices.

It also means that people receiving homecare, as well as friends and relatives of those in hospital for any length of time, will be able to tune in and call in to request a song dedication for themselves or someone else.

Colin Monnaf, Programme Controller for BHBN, said: “This is a really exciting time for BHBN. “The expansion to online broadcasting will really boost the potential for us to reach more patients than ever.

“Accessibility of the station for our patients is key to enabling us to deliver our services easily and, with more and more people tuning into radio and music stations via a variety of online devices these days, our expansion into online broadcasting was the direction we all agreed we needed to go in.”

BHBN broadcasts 24 hours a day, seven days a week, delivering a range of entertainment, music and sport-based programmes designed to appeal to the range of patients in hospital.

“Patients will still be able to tune in via their bedside media units if they wish, with the online broadcasts also now being available via the Tune-In Radio app on tablet and compatible mobile devices and via the online stream on the website – www.BHBN. net.

For the full schedule see page 12

Long Service Awards If you have completed 25 years’ service or longer in the NHS you will be entitled to a Long Service Award.

For further information contact HR First Contact Team on ext. 51577 for an application form.

Market opportunity The Farmers’ Market, held on the last Wednesday of the month, has stalls showcasing the best produce the region has to offer, including seasonal vegetables; fresh meat, game, fish and eggs; breads, chutneys and preserves, cheese and honey.

The market also supports local people such as social enterprise Change Kitchen, who work with the city’s homeless.

They offer a selection of vegetarian and vegan products made in the heart of Birmingham.

To find out more visit www.uhb.nhs. uk/FarmersMarket

See www.uhb.nhs.uk for the latest news

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UHB NHS Foundation Trust has not vetted the advertisers in this publication and accepts no liability for work done or goods supplied by any advertiser. Nor does UHB NHS Foundation Trust endorse any of the products or services.

University Hospitals Birmingham NHS Foundation Trust | AUGUST 2014

Every possible care has been taken to ensure that the information given in this publication is accurate. Whilst the publisher would be grateful to learn of any errors, they cannot accept any liability over and above the cost of the advertisement for loss there by caused. No reproduction by any method whatsoever of any part of this publication is permitted without written consent of the copyright owners. Octagon Marketing Company Ltd. Š2014 Britannic Chambers, 8A Carlton Road, Worksop, Nottinghamshire S80 1PH. Tel: 01909 478822

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AUGUST 2014 | University Hospitals Birmingham NHS Foundation Trust

Mum’s precious gift of life to strangers A dad has spoken of his comfort after four people’s lives were transformed following the devastating loss of his ‘angel’ partner.

Zoe Quinton died following a sudden heart attack at home in Bushbury, Wolverhampton, at the age of just 32, leaving behind her four young children.

But having decided to join the organ donation register when she updated her driving licence, Zoe was able to help four other people after her death by donating her heart, lung, kidneys and liver.

Her partner Adam Quinton, 28, said: “It was incredibly difficult because it was pretty much after she died that the staff at New Cross Hospital asked me about Zoe being a donor.

“But she wouldn’t have put herself on the donor register if it wasn’t her wishes, so as far as I was concerned there wasn’t any alternative.

“It was a hard experience because it was as soon as she had gone, although I totally understand why they have to do that because the organ has to be as healthy as possible.

“It was still difficult for me to get my head

around, but it has provided some comfort knowing that she has helped four other people who may be alive or have much healthier lives because of Zoe. “She was an angel to help these other people.”

Adam, a former supermarket manager who is currently unemployed, said there had been no warning of Zoe’s heart attack.

Zoe just decided to go on the organ donation list after going online to change the information on our driving licences

Adam Quinton The couple have three sons, Shayne, aged six, Oscar, two, and Archie, one, while Zoe also has an eight-year-old daughter, Courtney, from

a previous relationship.

He added: “She was only 32 and hadn’t had any illness, so it was totally unexpected.

“Zoe just decided to go on the organ donation list after going online to change the information on our driving licence when we moved house, but we didn’t think it would be an issue.

“But in the early hours one Tuesday she had a heart attack which meant she didn’t have any oxygen going into her brain because her heart had stopped.

“She was in New Cross for two days but then they did a brain scan and found there was no activity.”

Adam now says he would be open to the idea of one day speaking to the people whose lives have been transformed as a result of Zoe’s organs.

“It would be nice to tell them something about Zoe, what she was like, if it helps them, but the ball is in their court. I can also understand them not wanting to know where their organ had come from.”

Throughout the transplantation process, Adam was supported by Specialist Nurses for Organ Donation (SNOD) from the Midlands Team, including Elaine Holyday who is based at the Queen Elizabeth Hospital Birmingham.

Zoe was able to help four people by the collaborative approach of the SNODs, the QEHB retrieval teams and especially the new Donor Management Practitioners who work to improve the likelihood of heart and lung donation.

Vital organ transplants carried out at UHB, including heart, lung, heart and lung, kidney, liver and spleen, between 01/04/2013 and 31/03/2014

Transplant Type

Backing for organ donor register Specialist transplant co-ordinators from QEHB hosted awareness stands at the hospital on Monday 7 and Tuesday 8 July to launch National Transplant Week by urging people to sign up to the register and to ‘spell it out’ to their families. Over 300 people signed up to the register during the week. Photo: Kelly Davies was one of the team talking to people.

It is straight forward to join the NHS Organ Donor Register visit www.organdonation. nhs.uk or call 0300 123 2323 or text SAVE to 62323.

Number of Transplants

Heart

19

Heart and lung

2

Kidney

177

Liver

173

Lung

18

Grand Total

389

Minister’s support Doctors from QEHB attended a very successful event in Birmingham to formally launch the Pakistani Muslim Peer Educator programme for organ donation.

It was well attended with good engagement from religious leaders and the community.

The Public Health Minister, Jane Ellison, sent a very supportive video message inviting the Peer educators to Westminster for a reception to discuss how we can encourage more people from the Muslim community to sign up to the organ donation register.

Vulnerable young people given support

Becky Elliott and Melissa Tomlinson

Vulnerable young people admitted as emergency patients to Queen Elizabeth Hospital Birmingham are being offered vital support as part of a pilot project.

The Youth Connector project aims to help 16 to 25-year-olds arriving at QEHB’s Emergency Department (ED) or Clinical Decision Unit (CDU) with any additional medical or social needs they may have that could have an impact on their health.

Areas of support are likely to range from welfare benefits, housing-related issues, and debt advice, to accessing specialist counselling services and sexual health guidance.

The Trust has formed a partnership with Bromford, a social enterprise that provides housing and support services, as well as Birmingham City Council.

The aim of the six-month pilot project is to support any patients aged 16 to 25 that may have additional needs which are resulting in frequent admissions to the Emergency Department or CDU. Bromford support workers Becky Elliott and Melissa Tomlinson have been placed within the ED and CDU areas of the hospital to offer their services to any vulnerable young people who have been admitted.

They will use their expertise in areas such as housing, sexual health, bereavement and mental health to work with any young patients who require support, including anyone affected by violence or crime.

They have a directory of services where young people can be signposted to get the support they need. They also work closely with colleagues in mental health services (RAID: Rapid Access, Interface and Discharge).

Becky and Melissa will be able to discuss any non-medical issues and concerns which the young patients may have, as well as provide accessible information and advice about any housing-related and welfare issues.

They will also be able to connect the young patients to care organisations and practitioners that may be able to support them, such as counsellors and drug and alcohol services.

Becky, who has worked at Bromford for more than three years, said: “We are here to ease the pressure of the medical staff and hopefully reduce the number of young people coming in through the Emergency Department.

“I was placed here with the support of the hospital because you have young people coming in with medical problems which could be due to social issues that we can hopefully sort, such as asthma caused by mould in their home.

“I have already seen a couple of young patients who had overdosed due to an issue with their family, so we are now working with them on sorting accommodation.”

Elizabeth Rankin, Consultant Rheumatologist, with a special interest in young adult care, said: “If we can help young people with complex needs in the wider aspects of their lives, we may reduce the risk of further episodes of self harm and further admissions to hospital.”

See www.uhb.nhs.uk for the latest news

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University Hospitals Birmingham NHS Foundation Trust | AUGUST 2014

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AUGUST 2014 | University Hospitals Birmingham NHS Foundation Trust

On your marks for BUPA half marathon Two members of the Upper Gastrointestinal team are running the BUPA half marathon to raise funds for their department, after encouragement from members of the Upper GI support group who have already raised an impressive £3,000 for QEHB Charity Laura Nicholson, 27, from Edgbaston, and Bernadette Fairley, 55, from Dudley, will tackle the 13.1 mile run alongside family members of patients on the ward, in order to raise money for QEHB Charity’s Upper GI Fund.

Bernie explained: “We treat a lot of conditions, including cancers, which cause complex pathways for patients. It’s important that we are as knowledgeable and supportive as possible, so that we are able to provide excellent levels of care at this difficult time.”

Laura added: “Our patients are inspiring and we’ve had a lot of encouragement from members of the Upper GI support group who have been busy fundraising already.

“By running the marathon we want to raise money that will fund extra research and facilities that are over and above that which is provided by the NHS, allowing us to give our patients the best possible care.”

Fundraising Assistant at QEHB Charity, Michael Tivey, said: “It’s wonderful that Laura and Bernie have chosen to run the half marathon for QEHB Charity.

“The event is always a huge success and is enjoyed by everyone who takes part, so we hope lots of staff at the QE will feel inspired by Laura and Bernie’s efforts, and will take on the challenge themselves!”

Psst... did you know we still have places left to run the BUPA half marathon? Why not follow in the footsteps of the Upper GI team and join the QEHB Charity team in the 13.1 mile challenge, taking place on Sunday 19 October?

Justine Davy, QEHB Charity Head of

Queen Elizabeth Hospital Birmingham Charity

Dates for your diary

Bupa runners Laura Nicholson (left) and Bernadette Fairley

The half marathon takes place on Sunday 19 October 2014, starting and finishing in Birmingham City Centre. If you or someone you know wishes to get involved, please contact Michael Tivey on 0121 371 4852.

Fundraising, said: “Why not set yourselves a team goal of taking part and supporting each other around the course? Or, if you’re feeling competitive, challenge each other to finish first or raise the most in sponsorship.

“And remember – by running with QEHB

To donate to Laura and Bernie’s Just Giving Page and help them support patients, please go to www.justgiving.co.uk/QEHBuppergi.

To support patients please visit www.qehb. org or contact 0121 371 4852.

Helpers wanted for stand

To sign up, please contact Justine Davy on 0121 371 4852.

Queen Elizabeth Hospital Birmingham Charity needs volunteers to run its weekly atrium stand in support of patients.

Birmingham to Bastion Join QEHB Charity as we run, row and cycle 7,160 miles in 48 hours to support military patients.

On Thursday 21st and Friday 22nd August, a team of elite military personnel will be using static treadmills, rowing machines and exercise bikes to run, row and cycle the distance between Camp Bastion in Afghanistan and the Queen Elizabeth Hospital Birmingham, and then they’ll be travelling the same distance back again!

The team is taking on this endurance challenge to raise funds for injured troops,

Remember to get your ticket to the glitzy Pride of Birmingham awards and help support our £1m Rare Disease Centre Appeal!

The prestigious event, celebrating the city’s most courageous and inspiring people, will take place at Town Hall Birmingham on Friday 26 September.

Television presenter Gaby Roslin will be joined by a host of Birmingham celebrities to present awards, including singer Laura Mvula, Black Sabbath’s Tony Iommi and chef Glynn Purnell.

For more information, contact Abi Cligg on 0121 371 4852.

Sign up here: www. qehb.org/shop/ticketsand-events/bupa-greatbirmingham-run-2014 or call Justine on 0121 371 4852.

Charity you can choose where your hardearned sponsorship money goes.”

Pride of Birmingham Awards

and this year, QEHB Charity is also organising a series of sponsored runs to raise more money for the troops.

People taking part in the ‘5 for 5’ campaign will donate £5 to run five miles, with five miles from every sponsored run going toward the 7,160 mile total. The runs will take place at the QEHB throughout the two-day challenge.

Dress down Friday – 19 September Celebrate Jeans for Genes Day and donate £1 to wear your jeans to work.

QEHB Charity, in partnership with Genetic Disorders UK, is offering the chance for patients and staff to get involved in raising money for our £1m Rare Disease Centre Appeal.

To rock your favourite skinnies or pull on your best bootlegs, simply donate £1 on Friday 19th September 2014.

All monies raised will be split equally between QEHB Charity’s Rare Disease Centre Appeal and Genetics Disorder UK. Big Fun Run – 20th September, Cannon Hill Park, Birmingham Why not take part in the Big Fun Run and join QEHB Charity for a fantastic family event that will help raise funds for patients.

The short 3 mile run takes place in Cannon Hill Park on Saturday 20th September from 11am, but we will be holding a special warmup session at Edgbaston Cricket Ground at 10am, so feel free to join us there first!

To sign up, please contact Michael Tivey on 0121 371 4852 or visit www.bigfunrun.com/ birmingham.

To book your ticket for the starstudded event, visit: https://tickets. thsh.co.uk/event/pride-of-birminghamawards-2014/book/6210 (please note online bookings incur a £3 transaction fee). You can also call the box office (Performances Birmingham) on 0121 345 0600, or visit the Birmingham Town Hall and collect your tickets in person.

Please note that purchases will be limited to 4 per booking and will be on a first come first served basis.

The stand sells charity merchandise and runs on a weekly basis, with morning and afternoon shifts available.

For a list of dates contact QEHB Charity’s Laura by emailing Laura.Power@uhb. nhs.uk or call 0121 371 4852.

Eye2Eye appeal Huge thanks to everyone who took part in our Eye2Eye challenge and helped us get miles closer to our total, enabling us to purchase a £75,000 PASCAL laser machine.

The extremely focused laser can treat eye disease over 25 times faster than current lasers, reducing the pain for patients and allowing doctors to treat eye disease in one session lasting less than five minutes.

Mike Hammond, QEHB Charity Chief Executive, said: “We’d like to say a huge thanks to all those who have donated to our Eye Appeal and to manufacturers TopCon for their support. Together we are preventing more people from losing their sight.

“However, we haven’t finished our appeal yet so please do dig deep and help us reach our target of £250,000 to help more patients with eye disease.”

To support the Eye Appeal or to find out more visit www.qehb.org/eye or contact 0121 371 4852.

To make a donation to any of the appeals mentioned please visit www.qehb.org or contact the charity’s team on 0121 371 4852

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University Hospitals Birmingham NHS Foundation Trust | AUGUST 2014

This year’s Conference speakers Ken Howard, media ambassador for people living with dementia “Hi, my name is Ken Howard and I was diagnosed with dementia around eight years ago but have been living with its effects considerably longer. I am only an expert on me. Nothing changes but everything’s different (true).

You cannot believe the stereotype you really are the same person but with more knowledge. You can fight it.”

Ken’s presentation as a tweet: “You can live well with dementia. You are the same person but with more information. It’s not a mental death sentence so challenge yourself.”

Supporting patients with hearing loss – Emma Holmes and Jemma Patel, Action on Hearing Loss

Workshop

“Be aware of the practical solutions for supporting older people with hearing loss in hospital”

Ken - “I’m the same person, but now I hav more information about myself.

Dementia is not a mental death sentence.”

Rachel Thompson, Dementia Project Lead at the Royal College of Nursing Rachel is currently working as Dementia Project Lead with the Royal College of Nursing and has facilitated a UK-wide project on improving dementia care in hospital settings. She continues to collaborate closely with other organisations to improve the experience of care for people with dementia and their families/ friends.

Rachel’s presentation as a tweet: “How person-centred care can be achieved for patients with dementia, highlighting the role of leaders in making change possible.”

June Sargeant, Sister in the Emergency Department at UHB June has worked in the Emergency Department at UHB for the past 12 years.

She has a keen interest in issues surrounding equality and diversity and she is currently the lead within ED. June has forged a close partnership with the deafblind charity SENSE and has developed a fast track pathway for deafblind patients, produced an educational programme and has arranged communication and tactile object boxes.

June’s presentation as a tweet: “The Emergency Department is a very daunting place for anyone who is ill but imagine if you can’t see or hear.”

Kate - “After diagnosis there are no promis just possibilities.”

Anne - “It’s so important to maintain a positive attitude.”

Headway West Midlands – Gill Davis, Carer Support and Trainer at Headway

Workshop

Margaret Harries, Lead Nurse for Dignity and the Dignity in Care team Margaret trained as a nurse at the Queen Elizabeth School of Nursing. She spent many years working with frail older people and multidisciplinary and multiagency teams in elderly and general medicine, orthopaedics and trauma.

She is now Lead Nurse for Older Adults at UHB and leads the Dignity and Older People’s Champions Project which won the Nursing Times Awards for Care of Older People.

Dignity in Care team presentation as a tweet: “High tech medicine needs high touch care. Patients should be engaged and active, not ‘dying of boredom’” Nicky Pettitt,Teenage Cancer Trust Lead at UHB Nicky has worked in the field Teenagers and Young Adult s (TYA) Cancer Care since 2001, in a variety of nursing roles. As the Teenage Cancer Trust Lead Nurse based at QEHB, Nicky is responsible for working with stakeholders to provide age-appropriate care to all 16-24 year olds diagnosed with cancer in the West Midlands. Nicky is also a lecturer at Coventry University teaching and providing online facilitation to students undertaking TYA cancer care programmes.

Nicky’s presentation as a tweet: “Exploring the way in which the TYA has evolved to meet patients’ needs and strives to provide age-appropriate compassionate care.”

Antony Cobley, Senior HR Manager - Governance at UHB Antony is the Senior HR Manager, Governance at UHB and a nurse by profession. He is also an Advanced Independent Assessor for the Human Tissue Authority. He is the Trust lead on equality and diversity and is currently working on a project called ‘UHB Community Orchards and Gardens Project’.

Antony’s presentation as a tweet: “Changing the hospital environment and surroundings can help improve the health and wellbeing of both patients and staff.”

“Use support services available to help patients with acquired brain injury”

The importance of emotional support

Anne Tomes, Post polio syndrome and multiple schwannomatosis patient Anne Tomes grew up as any normal active child brought up in a hamlet amidst farms, cottages and open fields, enabling her to appreciate all aspects of nature.

Polio struck at the age of seven, changing her life forever, but in spite of this she married and gave birth to a daughter.

Following two nervous breakdowns she took up painting which re-introduced her to her love of nature. Latterly she has been forced to slow down due to post polio syndrome and multiple schwannomatosis, but far from giving in finds fulfilment in doing her garden which she opened to the public four years ago.

Anne’s presentation as a tweet: “Live life with a positive attitude despite what it throws at you.”

Kate Allatt, CEO and founder of Fighting Strokes and internationally published author and inspirational speaker Kate Allatt is ‘Extraordinary Woman of Year 2011’ who survived a devastating brainstem stroke with locked in syndrome at the age of 39. Imagine being buried alive, where you feel and think normally, but you can move nothing.

She founded Fighting Strokes (www.fightingstrokes.org) and has written three books in three years.

Kate’ presentation as a tweet: “Non-verbal communication is vitally important. Look into my eyes – see the real me and understand my needs.”

Diagnosis is not the end

Kate -“Body language is so important – I could see when nurses were thinking, ‘I want to be out of here’.”

“I felt like a piece of meat – I was in a fearful position and felt my emotional needs were ignored.”

“Doctors talked over me as if I wasn’t there.”

“The hallucinations in ITU were intense – I thought someone was trying to kill me with a drip.”

Nicky -“It’s so important to care for yourself before you can offer care to others and give a bit of yourself.”

“The patients on the young persons unit have to navigate a new world – we have to maintain their normality and offer compassionate care.”

Anne - “As a child, I was terrified of gasping machines in the children’s ward I was in. I was too afraid to sleep. I thought they were scary machines and all the patients were having their heads cut off. They were actually iron lungs and keeping the patients ventilated. It just shows how important it is to explain things to patients – what they are and what they are for.”

Ken - “Nurses can say throw-away little things which can have a big emotional impact on you.

“It’s terrifying to lose yesterdays and forget todays.”

Rach foll “You d “Support fo Look in

What matters most – personhood and spirituality – Richard Wharton, Chaplaincy Team Leader

Workshop

“Think about what matters most to patients and how we respond when their need is greatest”

June - “Try to l “Making little c

The role of music in dementia care – Jane Rothery MBE – Dementia Specialist and Volunteer Coordinator

Workshop

“You don’t have to have a great voice – just a warm smile and a song in your heart”

Margaret “U “Alway “It’s

“L The M-technique – Jane Buckle, R J Buckle Associates

Thank you to Liz Galloway, UHB volunteer, for the photography.

Workshop

“Therapeutic touch has an important role in healthcare – soothe patients in five minutes’

9

AUGUST 2014 | University Hospitals Birmingham NHS Foundation Trust

Workshop

“You don’t have to have a great voice – just a warm smile and a song in your heart”

ses,

Dignity in Care

Antony -“We are developing the fish pond area outside the old hospital so patients and staff can relax and enjoy the green space. “ We are also redesigning the woodland area outside the hospital atrium so that patients with photosensitivity can walk through the area whilst being sheltered from the sun.

“Elderly people in America ‘walk the malls’ – we will be opening up QEHB for local elderly residents and patients to ‘walk the corridors’ in the winter months when ice and snow might prevent them exercising outside.

“The views from Level 7 of the hospital are fantastic and an oral historian will be able to give walkers a history of the area.”

Dignity in Care Conference 2014 This year’s Dignity in Care Conference had the theme ‘Welcome to my World’.

Here are some of the themes from the day and inspirational quotes we’ll remember.

Ken -“Activity is vital for getting blood to the brain.”

“Exercising your mind is really important – keep your mind active.

Don’t mentally switch off when you’re diagnosed.”

Anne - Runs adult education workshops, redesigned her garden, appeared on Songs of Praise, leads watercolour classes, homemaker and exercises for 1.5 hours every day.

ve

”

The importance of activity for wellbeing

The role of music in dementia care – Jane Rothery MBE – Dementia Specialist and Volunteer Coordinator

Margaret - “There shouldn’t be a triangle of bed, chair, and commode for older patients.

“Play and enjoyment are an integral part of caring for a young person in hospital – why not an older person?”

Darren Pratley - Organises activities for patients and for external groups to visit the hospital including theatre groups and music ensembles.

Seeing the individual - look into my eyes

s

Talking Mental 3 – Welcome to my World – Phil Walshe, Senior Clinical Educator for Mental Health, and Darren Pratley, Activities Coordinator

Workshop

“Telling our stories is important.

Encourage people with dementia to talk about their life stories and celebrate who they are.”

Ken - “Nearly everyone has a disability of some kind.”

Kate - “Empathy in nursing is about understanding a patient’s situation, feelings and perspectives.”

Rachel -“Person-centred care is about the following - see me, hear me, involve me.”

Anne - “I’m not a tick box. Years ago I was asked to complete a stairs assessment by occupational therapists. I said I lived in a bungalow but it was a box they had to tick.”

Leading change

June - “To understand deafblind patients’ experience of the Emergency Department, we put ourselves in the patients’ shoes. We found we were petrified when we couldn’t see or hear.”

hel - “You should aim to be a courageous lower and show others how to follow.“ don’t have to be a manager to be a leader.“ or change needs to come from the highest level. nto your areas and learn from people locally.

“Become a ‘champion’.”

Margaret - “Use the UHB Care Bundle – the ‘All About Me’ document, talk and listen to me.

Help me to be safe and mobile, enable me to eat and drink.”

link with external groups and work collaboratively.“ changes can have a huge impact on patients’ lives.”

“Take a common sense approach to risk taking.“ Use the ‘Have you tried?’ document.“ ys assess the risk of not doing something.“ s about managing the real risks and not being risk adverse.”

Look at the HSE ‘myth busters’ section www.hse.gov.uk/myth“

Kate -“Listening and understanding are key – I felt the staff didn’t know enough about me as a person.”

“Staff helped me feel like ‘me’.”

“Non-verbal communications was crucial – look into my eyes.”

Rachel - VIPS framework V = Values people – values and promotes the rights of the person I = Individual’s needs – provides individualised care according to needs P = Perspective of service user – understands care from the perspective of the person with dementia S = Supportive social psychology Understanding the dementia perspective – social environment enables Dignity for Young People – Mary Bruce, Senior Lecturer, the person to remain – Dr Elizabeth Rankin, Rheumatology Association of Dementia Studies, Consultant at UHB in relationship University of Worcester

Workshop

“You can learn to communicate better with young people! Never give up. Practising helps.”

Workshop

“Have a clear understanding of what ‘good’ looks like – use the VIPS framework”

10

University Hospitals Birmingham NHS Foundation Trust | AUGUST 2014

Website gives insight into physiotherapy The launch of a new website is enabling patients to get a better understanding of the services available from the Trust’s physiotherapy team.

The website at www.uhb.nhs.uk/physiotherapy. htm was coordinated by a team lead by Mark Liptrot, one of the Trust’s Senior Physiotherapist team leaders.

The aim was to promote the wide range of services on offer to the public which are available from the physiotherapy department. The website also improves links between the team and other groups including GPs, medical students and physiotherapists working at other trusts and has dedicated email links to speed up paperwork.

Mark said: “The development work has taken nearly two years and has been a real opportunity for us to assess what services we can currently offer and what we might want to offer in the future.

“Not only is the website packed with information but it will also enable us to improve our service to patients.”

Information about the different services is expected to bring benefits to outpatients considering options.

Individuals, through the ‘Any Qualified Provider service’, are now able to select where they receive treatment so it is important to raise awareness about all services.

Mark said: “We offer such a wide range of services we wanted to ensure patients are clear about what is available.

“This currently includes bespoke upper limb rehabilitation, burns and scar management and the sport and exercise medicine service.

“In the future we hope to provide specific health and fitness and injury prevention information for the community in a similar vein to that seen on me@ QEHB which provides QEHB staff with advice on health and fitness, diet and injury prevention as well as advice on when to seek a health professional.”

The team working with Mark on the website included fellow senior physiotherapist leaders Nicola Birch, Martin Holmes, Mark Raven and Sarah Taylor along with senior physiotherapists Lucy Tilling and Sarah Taylor.

Current patients have been helping to review the website since it went live in mid-June to ensure it meets all the needs of different users.

The link is www.uhb.nhs.uk/ physiotherapy.htm and the QR code is to give access via a smart phone.

Physiotherapy teamwork, (L-R) Clare Pearson, Sarah Taylor, Martin Holmes, Mark Liptrot, Hannah Cumming and Nicola Birch

Groups offer help: Patients, families and staff can turn to support from a range of groups at the Trust ALOPECIA Impartial information and mutual support to cope with hair loss Contact Jenny: 07760 95885, 0121 440 5794, or email jen@araucaria.demon.co.uk, www.alopeciaonline.org.uk ANN CONROY TRUST Support and education for patients living with Syringomyelia and Chiari malformation. www.annconroytrust.org Tel: 0300 111 0004 BECHET’S SYNDROME SOCIETY Helpline: 0845 130 7329. Email: Info@bechetsdisease.org.uk.

Website: www.bechets.org.uk. Birmingham group contact: 07886 304018 or email: anishaz@hotmail.co.uk BIRMINGHAM ARTHRITIS RESOURCE CENTRE The resource centre is located at Birmingham Central Library, Chamberlain Square, Central Birmingham. Tel: 0121 464 2708 Email: barccentre@bham.ac.uk or Website: www.barc.org.uk BREATHE EASY - THE SUPPORT NETWORK OF THE BRITISH LUNG FOUNDATION For everyone living with lung disease. Birmingham South Group meets monthly at Moseley Hall Hospital 2-4 pm.

Contact BLF Direct on 03000 030 555 or go to www.blf.org.uk BRITISH ACOUSTIC NEUROMA ASSOCIATION (BANA) BANA’s friendly West Midlands group meets 3 or 4 times a year for mutual support, information exchange and talks by specialist guests.

Group contact: Janet Mercer janet@bana-uk.com Tel: 0121 6042454 National website & headquarters: www.bana-uk.com Tel: 01623 632143 BRITISH SJOGREN’S SYNDROME ASSOCIATION Support group for sufferers of the auto-immune rheumatic disease. Tel: 0121 455 6532.

BUSY B’S Support group for people with stomas and bowel disease.

Tel: 0121 627 8343.

GROWN-UP CONGENTIAL HEART PATIENTS’ ASSOCIATION Supports young people and adults born with a heart condition.

Tel: 0800 854 759.

HEADSTART BIRMINGHAM Aneurysm and Arteriovenous Malformation Support Group Meetings are held on the first Friday of the month between 7pm and 9pm. Seminar room in outpatients dept at QEHB. Contact: Patricia Hewlett – 0121 459 7147.

HEADWAY Acquired brain injury drop in service. Wednesdays 1.30pm4.30pm wards 407, 409 & 411. 4.30pm-5.30pm Second floor restaurant, Queen Elizabeth Hospital. Tel: 0121 457 7541.

HAEMATOLOGY SUPPORT GROUP Meeting at the Centre for Clinical Haematology on a monthly basis for information, social events, friendship and mutual support. Tel 07766 875111 or email: Haematologys@yahoo.co.uk.

HAEMOCHROMATOSIS WEST MIDLANDS SUPPORT GROUP Offering support and raising awareness. We hold regular local meetings. Tel: 0121 457 8986, Email: info@Haemochromatosis WM.org.uk, Website: www.HaemochromatosisWM.org.uk HOME FROM HOSPITAL CARE Free support to Birmingham patients on discharge from hospital Including information, shopping, befriending and respite care.

Tel: 0121 472 4499.

INSULIN DEPENDENT DIABETES TRUST Listening to people with diabetes and their carers. Tel: 01604 622 837. Email: enquiries@Iddtinternational.org or website www.iddtinternational.org KIDNEY PATIENTS’ ASSOCIATION Runs local groups across the West Midlands.

01922 644982, flintnf@aol.com, www.kidneymatters.co.uk LARYNGECTOMY SUPPORT GROUP Meets monthly at British Legion social club, Quarry Lane, Northfield. A patient led group. Organised speakers at each session. Tel: 0121 627 2360 or 0121 627 2248.

CYSTITIS & OVERACTIVE BLADDER FOUNDATION Advice line: 0121 702 0820. Email: info@cobfoundation.org and website at www.cobfoundation.org DIABETES UK Has regularly support group meetings in King’s Heath for people with diabetes, family members and friends. For further info see www.diabetes.org.uk/In_Your_Area/Midlands and follow link to Birmingham or email racheltier@btinternet.com

LET’S FACE IT Support group for people with any form of facial disfigurement Tel: 01843 833 724.

DIGNITY IN CARE SUPPORT GROUP The group run the Memory Lane Cafe for patients with cognitive impairment and their carers. Cafe is open Wednesday afternoons. Email: memorylanecafe@uhb.nhs.uk, www.dignityincare.org.uk

NATIONAL RHEUMATOID ARTHRITIS ASSOCIATION Birmingham group at www.brasg.org.uk, Heart of England group contact 01628 823 524, national website: www.nras.org.uk

D.I.S.C (DEMENTIA INFORMATION AND SUPPORT FOR CARERS) A service offered specifically for CARERS of people with confusion and memory (DEMENTIA) problems. Tel: 0121 452 1152. Email: carers@discbirmingham.co.uk www.discbirmingham.co.uk GET-A-HEAD Fundraising and support group for patients who have had head and neck cancer. 0121 371 5046 www.getahead.org.uk

MILITARY PATIENTS Military patients will be visited by a representative from the Royal Centre for Defence Medicine (RCDM) who will attend to their administrative, welfare, pastoral and spiritual needs.

OESOPHAGEAL PATIENTS ASSOCIATION (OPA) National charity offering support and information to patients and carers affected by oesophageal and stomach cancers.

Birmingham group hosts two meetings per year. For information contact 0121 704 9860, email: enquiries@opa.org.uk Website: www.opa.org.uk PAIN FATIGUE SUPPORT Meets first Thursday of the month. Noon to 2pm, Erdington Methodist Church. Tel: 0300 330 0640.

Email: painfatiguesupport@hotmail.co.uk.

PATIENTS’ READING GROUP Meets Tuesdays, Weoley Castle Library. 2pm-3.30pm. To book call 0121 464 1664.

PITUITARY FOUNDATION This group for patients, carers and friends meets at the Morris Centre Club, QEH, on Saturday mornings 3 or 4 times a year.

Contact: 0845 450 0375 www.pituitary.org.uk QE LIVER TRANSPLANT SUPPORT GROUP The group meets at 7.30pm on the 3rd Monday of every month (except July and August) in the Faith Centre, Meeting Room level 1 QEHB. Tel: 0121 627 2089 or 01902 679333 (after 7.30pm).

ROY CASTLE LUNG CANCER SUPPORT GROUP Held 1st Tuesday of every month, Birmingham Heartlands Hospital. Tel: 0121 424 1433 Contact: Lynne Reaper.

THE NATIONAL OSTEOPOROSIS SOCIETY The National Osteoporosis Society runs a local support group based in Birmingham. Tel: 0121 429 7366 www.nos.org.uk THE STROKE ASSOCIATION Supporting people affected by stroke. Tel: 0303 303 3100 (Mon-Fri, 9am-5pm) Email: info@stroke.org.uk www.stroke.org.uk TINNITUS Practical support and advice for sufferers including group sessions and newsletters. C/o Birmingham Institute for the Deaf, Ladywood Road, Edgbaston, Birmingham, B16 8SZ. Eileen: 01384 831032. Email info@tinnitusbham.org.uk TRACHEOTOMY SUPPORT New group for patients following tracheotomy. 0121 627 2248.

VASCULITIS SUPPORT GROUP WEST MIDLANDS (VSGWM) Support group for sufferers of Systemic Vasculitis (e.g.

Wegener’s granulomatosis) as well as support for carers. The VSGWM circulates useful information and ideas, with friendly meetings held at least once a year. 0121 243 5621.

WEST MIDLANDS BRAIN TUMOUR SUPPORT GROUP Boardroom, Main Building, Old Queen Elizabeth Hospital, Edgbaston. Meets third Monday of the month, noon to 2pm.

Contact Sue Wreglesworth on: 0771 7175 236.

Email: sue.wreglesworth@braintumouruk.org.uk WILSON’S DISEASE SUPPORT GROUP - UK National charitable group offering support and information to patients with Wilson’s disease and their families across the UK. For information and local support contact jerry@wilsonsdisease. org.uk or visit our website www.wilsonsdisease.org.uk YOUNG ADULTS CANCER SUPPORT GROUP Is run by a group of young adult cancer patients to offer support for people who have similar needs. No strict age limit but current members in their 20s, 30s and 40s. Meetings usually held last Wednesday of month at The Plough, Harborne. Contact Vicky Stock on: 0784 589 7760. Email: stock.vicky@yahoo.co.uk Steps have been taken to ensure this information is up to date but please contact the group directly before undertaking a journey.

Support group coordinators can email revisions to their entry to: communications@uhb.nhs.uk. Please mark the email – support group revision.

AUGUST 2014 | University Hospitals Birmingham NHS Foundation Trust

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12

University Hospitals Birmingham NHS Foundation Trust | AUGUST 2014

BHBN Radio schedule Monday 12noon-1pm The Light Lunch 3pm-4pm 6pm-7pm 7pm-8pm 8pm-10pm

Elevator Zone – Bubba the Loungehound The Tea Time Show – David Moore Hospital Requests – Claudia Wilde The Evening Show – Dale Hobson

Tuesday 12noon-1pm The Light Lunch 3pm-4pm 6pm-7pm

Elevator Zone – Bubba the Loungehound Hospital Requests – Ciaran Fitzpatrick

7pm-8pm

Easy Listening – Kelly Howell

8pm-10pm

The Evening Show – Paul Millington

Wednesday

Making our patients’ experience positive Cust mer Care Awards Michael Tomlinson, Liver Outpatients Coordinator

12noon-1pm The Light Lunch Elevator Zone 3pm-4pm – Bubba the Loungehound Words and Music 6pm-7pm – Brian Henderson Hospital Requests 7pm-8pm – Donna Joseph The Evening Show 8pm-10pm – David Elliott

Thursday 12noon-1pm The Light Lunch Elevator Zone 3pm-4pm – Bubba the Loungehound The Tea Time Show 5pm-7pm – Ben Selvan Hospital Requests 7pm-8pm The Evening Show 8pm-10pm – Chris Friday

Friday 12noon-1pm The Light Lunch Elevator Zone 3pm-4pm – Bubba the Loungehound Pick and Mix 6pm-8pm – Brendan Delaney The Evening Show 8pm-10pm – Bill Waldron 10pmThe Rock Show midnight – Brian Swann *CBSO Concerts when broadcast are on Friday at 7:30pm*

Michael was registered blind and told he was unemployable – but after finding a position with the Trust over 10 years ago, Mike said it was “brilliant to be nominated, I’m just doing my job!” The patient who nominated Mike said: “Michael…fulfilled his promises and made a stressful situation much easier for us.”

The time patients and visitors spend at QEHB, be it for hours or weeks, can be hard for many.

For this reason, the Trust places a priority on making that experience as comfortable as possible by encouraging all of our staff to play a role in welcoming the people who pass through our doors.

Every day the overwhelming majority of the workforce make a real and positive difference to the lives of those who are treated here.

And in recognition of their efforts, the Customer Care Awards have returned this quarter to reward those who have gone beyond expectations.

Derek Ball, Head of Patient Relations, said: “Every day many people who work at this Trust go above and beyond their day-to-day duties but the Customer Care Awards is a fantastic opportunity to recognise those that go further.

“The winners have made a lasting impression, so much so, patients or their relatives have gone out of their way to nominate them and we

should all be very proud of that.

“We all carry the reputation of UHB in our hands at all times, whether we are treating the patient on a ward or if we only spend 30 seconds on the phone to a patient or at a desk with a relative then we have to make sure the experience is a positive one.”

Executive Chief Nurse Philip Norman, awarding the winners with their certificate and voucher provided by QEHB Charity, said: “The winners and everyone who has been nominated should be justly proud. It is incredible that our patients, their relatives, visitors and staff take time to nominate individuals who have stood out and have had such a positive impact on their overall experience.

“My personal congratulations and thanks go to each of the winners for their efforts in providing the best in care.”

The Trust received over 40,000 pieces of feedback per year from patients, visitors and staff alike, the large majority being positive.

Ward 726 The team was represented by Laura Weston, Jay Ittoo, Tanasha Thompson, Hynek Mergental, Sarah Kearney

Jodie Bool, Sister from Ward 727

Saturday 7am-9am 9am-11am 11am-1pm 1pm-2pm

2pm-6pm

Weekend Breakfast – Dave Horton/Olly Brown (Alternate Weeks) BHBN Gold – Colin Monnaf The Frock Show – Sarah Morris Queen Elizabeth Hospital Military Ward Requests – Michelle Woodhouse BHBN Birmingham Sport – Live kick by kick commentaries of the local teams Sponsored By

Chiltern Railway Mainline

6pm-8pm

Saturday Disco – Marky B

8pm-9pm

Saturday Alternative – Olya Jeneson

9pm-10pm

BHBN Reggae Selection

The person nominating Jodie said: “I found her very efficient, dedicated, attentive, proficient, compassionate and hardworking.”

A patient said: “The level of care at all levels is so impressive, it is difficult to know where to start.

The staff on the ward work non-stop with no let up at all. I have spent many days and weeks on 726 and whenever I return, I genuinely feel that I am back among friends.”

Julia Kilby, Physiotherapy

Audrey Kelly, Outpatients Reception Area 1

The patient nominating Julia said: “By understanding the whole person Julia was able to deliver a holistic level of care for my back pain. Educating me and reassuring me were just as important as the treatment itself.

First class!”

After spending over six hours at the hospital going from appointment to appointment, the patient nominating Audrey said: “I have a lot of experience of waiting rooms and reception desks and how Audrey helped me was way above and beyond ‘just doing her job’.”

Endoscopy team Merceline Dera, Mary Duffy, Barbara Bisseker

Sunday 9am-11am 11am-1pm

Laid Back Sunday – Bill Waldron Kitch & Kool – Brendan Delaney

1pm-3pm

Martyn Williams

3pm-5pm

Hospital Requests

5pm-8pm

Olly Brown’s Sunday Get Together

8pm-9pm

BHBN County Show

9pm-10pm

Music From Stage & Screen

10pm

Classical Collection

Delivering the best in care

Nominating the team, a patient said: “The professionalism shown to me was excellent. They deserve their award for their compassion, interaction with patients and excellent people skills. When I come back next time I will be asking for the same team.”

13

AUGUST 2014 | University Hospitals Birmingham NHS Foundation Trust

Support for those with learning disabiities

Exercise Learning Disability Week is a week of national campaigning and awareness-raising run by Mencap every year.

The Dignity in Care Team at QEHB supported the week by holding a stand in the hospital atrium.

The week celebrates people overcoming adversity and the team were raising awareness to reduce people’s prejudice and ignorance.

The team had the opportunity to talk to staff, patients and relatives about reasonable adjustments that can be made for people with learning disabilities at QEHB, either as inpatients or outpatients.

Juliet Miller, Dignity in Care Nurse

For further information, please visit www. mencap.org.uk

Insight into brain tumour treatments A charity which supports patients with a rare form of brain tumour has highlighted the latest treatments at its national conference.

The British Acoustic Neuroma Association (BANA) held its annual general meeting and National Conference at QEHB. ANs are rare, usually benign, brain tumours which arise from the hearing nerve. The medical profession also calls them ‘vestibular schwannomas’.

BANA is a patient-led, registered charity with over 1100 members, supporting those who have been diagnosed with acoustic neuroma (AN) and other related conditions. It is the largest organisation for the condition in the UK. The event was organised by BANA West Midlands. Janet Mercer, former BANA Chairman and current local branch leader, has had surgery twice for AN and still attends regular clinics for facial and hearing aftercare needs.

‘The Patient’s Journey’ was chosen as the ambitious theme, showcasing the total care pathway undertaken at QEHB. This hospital unit is one of the largest in the country treating ANs, seeing about 120 new cases a year.

Richard Irving, Consultant ENT and Skull Delegates at the AGM and conference which shows possibly the largest gathering in the UK Base Surgeon, hosted the conference, which of people with acoustic neuroma attracted over 85 delegates.

Together, with other key members of the multi disciplinary team (MDT), Mr Irving kept a patient-friendly approach and, in spite of the seriousness of the subject, had delegates chuckling at some of the observations.

In the spacious lecture theatre, the MDT took delegates through each stage of the patient’s treatment journey. Presenting symptoms might include sudden or gradual unilateral hearing loss, single sided tinnitus and balance problems. Treatment options include monitoring, known as ‘Wait & Watch’. Aftercare at QEHB includes hearing and facial therapies for patients with residual problems.

Over lunch, the delegates were invited to add to a large display (the outcome of a brain storming session by local members) charting the patient journey and were treated to exclusive, tailored tours of the CyberKnife® Treatment Centre.

AN is one of the main conditions treated with CyberKnife® (frameless, robotic stereotactic radiosurgery or radiotherapy). QEHB is the only centre outside London to offer this treatment at present.

The charity’s thanks go to all those at QEHB who made the day possible; it was both enlightening and entertaining.

For information: Group contact Janet Mercer janet@bana-uk.com Tel: 0121 6042454 National website & headquarters: www.bana-uk. com Tel: 01623 632143

(l/r) Dr Geoff Heyes, Principal Clinical Scientist, Janet Mercer, Leader, BANA West Midlands, Dr Paul Sanghera, Consultant Oncologist and conference host, Mr Richard Irving, Consultant ENT and Skull Base Surgeon

of the month

Summer’s here – it’s time for racquet sports Emma Batchelor, Consultant Physiotherapist – Sport and Exercise Medicine, talks through this month’s recommended exercise: Inspired by Wimbledon? Why not pick up a racquet sport. The alternate bursts of high-intensity exercise while you score points coupled with brief rest periods while you pick up the ball and serve means racquet sport’s stop-and-start activity resembles interval training.

Here are a few different sports and the health benefits of each.

Tennis Tennis is a fast-paced sport that requires a combination of many different aspects of fitness, making it a great all-round workout.

Regular play will help you to increase: aerobic fitness anaerobic fitness speed strength power flexibility balance coordination muscle tone The average player will cover between three and five miles during a match and burn up to 600 calories per hour. Tennis players perform the same few movements over and over again, which helps tone the thighs, bum, stomach and arms.

Badminton Badminton can be an energetic or light workout, depending on how you play it.

Either way, the entire body is used due to the large range of movement the sport demands, including leaps, lunges, twists, turns and stretches.

Regardless of the level they play at, players experience improved balance and coordination. Injecting a little extra effort into the game can boost upper body strength, core stability and stamina.

With more than 2,000 clubs around Britain, there are plenty of opportunities to get involved. For the less committed, payand-play sessions are popular.

Squash Regularly playing squash gives excellent all-round health benefits, particularly for the heart and lungs. Squash can help build strong muscles in the legs and buttocks. The sport requires quick movements and lunges, which improve muscle tone. Moving to and hitting a moving ball also helps strengthen the back and shape the tummy.

Any cardiovascular exercise will help improve how quick you are on court.

Walking, running or jogging, cycling and rowing are all good for building up your leg muscles.

If you’re out of shape, consider starting with racketball, which is slower than squash. For further information and to find clubs near you, go to NHS Choices: http://www.nhs.uk/livewell/fitness/ Pages/Fitnesshome.aspx

See www.uhb.nhs.uk for the latest news

14

University Hospitals Birmingham NHS Foundation Trust | AUGUST 2014

15

AUGUST 2014 | University Hospitals Birmingham NHS Foundation Trust

No. 2484

Your monthly puzzle challenge Quiz Challenge

CROSS CODE 25

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1. In July 2010, TV presenter Konnie Huq married which writer and broadcaster?

2. What is the American term for a motorway?

3. Fremantle is a port in which country?

4. Which British actor and author wrote the autobiography entitled A Postillion Struck By Lightning?

5. Which Italian composer wrote the suite The Pines of Rome?

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NONAGRAM

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ABCDEFGHIJKLMNOPQRSTUVWXYZ 1

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EACH number in our Cross Code grid represents a different letter of the alphabet. You have three letters in the control grid to start you off. Enter them in the appropriate squares in the main grid, then use your knowledge of words to work out which letters should go in the missing squares.

As you get the letters, fill in other squares with the same number in the main grid and control grid. Check off the alphabetical list of letters as you identify them.

MAGIC SQUARE

BIG MARRIAGE ENDED

HOW many words of four letters or more can you make from this Nonagram? Each word must use the central letter, and each letter may be used only once. At least one word using all nine letters can be found.

Guidelines: 26 Good; 31 Very Good; 36 Excellent.

Any word found in the Concise Oxford Dictionary (Tenth Edition) is eligible with the following exceptions: proper nouns; plural nouns, pronouns and possessives; third person singular verbs; hyphenated words; contractions and abbreviations; vulgar slang words; variant spellings of the same word (where another variant is also eligible).

USING all 16 letters of the phrase above, form four words each of four letters which will fit in the grid to form a magic square in which the words can be read both horizontally and vertically.

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10. Which actress played Dick Van Dyke’s wife in the long-running TV series The Dick Van Dyke Show?

IH EG

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SUDOKU Easy

EACH row and each column must contain the numbers 1 to 9, and so must each 3 x 3 box.

1 9 5 6 3 8 2 4 5 7 9 6 8 2 1 5 9 7

5 9 5 4 6 1 3

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EASY SUDOKU 5 9 8 3 1 7 6 4 2

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MAGIC SQUARE: omen; mice; echo; neon.

WORD PYRAMID: Sleeping partner.

EQUALISER: Clockwise from top left – add; divide; subtract; multiply.

Total: 6.

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3. Ship’s officer takes money and runs (6)

9. .... but less perfect sort of personal pride (4-7)

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HERE are two miniature fivesquare crosswords using the same grid – but the letters have been mixed up.

You have to work out which letters belong to which crossword.

EQUALISER 7 9 10 1 1 1 1 8 1 1 3 1 PLACE the four signs (add, subtract, multiply, divide) one in each circle so that the total of each across and down line is the same.

Perform the first calculation in each line first and ignore the mathematical law which says you should always perform division and multiplication before addition and subtraction.

All puzzles on this page are supplied by Sirius Media Services.

To try more of our puzzles interactively online go to www.puzzledrome.com

FIVE ALIVE:

(1) Across – Eaten; Sends; Excel.

2. Ghostly type of lamp? (6)

7. More perfect land .... (6)

Down – Ensue; Tunic; Nasal.

CRYPTIC CROSSWORD: Across – 1 Unaided; 8 Racquet; 9 Deep-sea; 10 Polecat; 11 Restyle; (2) Across – Thumb; Alien; Sighs.

Down – Tears; Using; Bonus.

12 Risotto; 14 Relaxed; 18 Rebirth; 20 Ideally; 21 Inertia; 22 Generic; 23 Extinct.

NONAGRAM: Down – 1 Undercarriage; 2 Averse; 3 Dusky; 4 Draper; 5 Oculist; 6 erst; esse; ester; queer; queerest; Dulcet; 7 State-of-the-art; 13 Explore; 15 Lie-ins; 16 Dry ice; 17 quest; quester; request; reset; Proton; 19 Bleat. rest; rete; reuse; ruse; russet; seer; QUICK CROSSWORD: SEQUESTER; sere; steer; stere; suer; Across – 1 Deplore; 8 Aquaria; 9 X-raying; 10 Lebanon; 11 Leakage; suet; sure; surest; teres; terse; tree; 14 Ass; 16 Fuel; 18 Peri; 19 Arum; 20 Yale; 21 Tit; 23 Severed; 26 tress; true; user.

Picador; 28 Atlanta; 29 Carouse; 30 Lottery.

Down – 1 Doxology; 2 Plaza; 3 Ouija; 4 Eagles; 5 Bulb; 6 Cranium; 7 Warn; 12 Knee; 13 Gait; 15 Sate; 16 Fume; 17 Landlady; 18 Placard; 22 Israel; 24 Valet; 25 Ranee; 26 Pack; 27 Drum.

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5. Damaged his map during unlucky accident (6)

PREVIOUS SOLUTIONS CROSS CODE

7

6

ACROSS DOWN 2. Old Bob will work for bribe (3) 1. Avoid one’s wife (6)

PZ1P2484 © Sirius Media Services Ltd

QUIZ CHALLENGE: 1 Chicago; 2 Kicking King; 3 Blue; 4 St George; 5 Catalonia; 6 Confederation of British Industry; 7 A plague; 8 Kingdom of Heaven; 9 Robin Cook; 10 Frederick Forsyth.

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FIVE ALIVE MN

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9. Who wrote the Hornblower series of novels?

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8. Who was boxing’s heavyweight world champion for a record 12 years from 1937 until 1949?

SPELL out a 15-letter word or phrase by moving from one chamber to another within the pyramid. You may only enter each of the chambers once and may only C proceed through openings in the S walls. The first letter may appear in any B U chamber.

WS

1

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7. Which computer company launched the Pentium Pro processor in 1995?

WORD PYRAMID

D E K

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6. Which comedian’s TV shows concluded with a speeded-up chase to the Yakety Sax theme?

CRYPTIC CROSSWORD

4. Man who comes first (6)

10. A point of view goes obliquely across (6)

6. Two beers perhaps become one (4-3-4)

11. Still found in the laboratory (6)

8. Nothing to write inside present for sale to highest bidder (4,2,5)

13. Said to be the path of weddings (6)

10. A pound a vestment (3)

16. Remind thespian without delay (6)

12. Teetotaller takes nothing in, not even this (3)

18. Cheer up, it’s what a photographer hopes to get from an event (4,3,2,2)

14. Clara’s mischievous scoundrel (6) 15. O’Neill upset the boy (6)

19. Plate for diverting flow is a mystery (6) 20. Songster’s complaint? (6)

16. Small and dainty animal, it had energy (6)

21. Believe middle bit? It is not true (3)

17. Sort of plant that has mixed alkaline substance (6)

QUICK CROSSWORD 1

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ACROSS 1. Pulsate (5) 4. Old Testament giant (7) 8. Attached, appropriated forcibly (7) 9. First World War land battle (5) 10. Recluse (5) 13. Soft and smooth (7) 17. Rotten (3) 18. Tropical shrub (6) 19. Vacillate (6) 20. Health resort (3)

Contact the editor: Annie Roberts, news@QEHB, Communications Office, University Hospitals Birmingham, Mindelsohn Way, Birmingham B15 2TH Email: annierhealth@gmail.com Designed by graphics@uhb.nhs.uk

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listening to you

7

22. Shameless woman (7) 25. Fabric (5) 28. German composer (5) 29. Speculator (7) 30. Foliage (7) 31. Shabby (5) DOWN 1. Fishing net (5) 2. Arrest (3,2) 3. Prizefighter (5) 4. Lady who rode bare in Coventry (6) 5. Faithful (5) 6. Concur (5)

7. Rash (5) 11. Oily fruit (5) 12. Flee to marry (5) 14. Norse books (4) 15. Essential (5) 16. Act of taking illegally (5) 17. Headquarters (4) 21. Epidemic (6) 22. Gem (5) 23. Striped animal (5) 24. Hebridean island (5) 25. Heavenly body (5) 26. Towel (anag.) (5) 27. Resolute, robust (5)

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Metchl

Site map

B15 2WB

ey Park

ue Aven

Road

sham Hintle

ing Old QE Park D rk a P r – Ca e nt Trust HQ

Busy Bees Nursery

99, 647

Birmingham Women’s Hospital

Shuttle

n Way Mindelsoh

3

Harb

Shuttle

TAXI

48, 98, 99

orne

48, 76, 84, 98, 99, 647

ive

New QEHB Parking – Car Park A

r tD

ed

s clo

to

When visiting our hospitals we recommend the following car parks.

For the new Queen Elizabeth Hospital Birmingham use Car Park A

hn Way Mindelso

for

y

s onl

Shuttle

The Barberry (BSMHFT)

(sat nav postcode B15 2WB – please note this takes you to Mindelsohn Way and will only work if you have updated your sat nav. When on the hospital site, please follow signs for Car Park A)

76, 84, 98

The Oleaster (BSMHFT)

76, 84, 98

Shuttle

Selly O ak

Harbor

For the Emergency Department (A&E) or CDU use Car Park D (sat nav postcode B15 2TH)

ne

Hospital entrances

ha ing

m

Bir

61, 63

ry’s

sbu

n Sai

61, 63

news@QEHB 2014_8_Aug.indd 16

For the Old Queen Elizabeth Hospital use Car Park D (sat nav postcode B15 2TH)

m

Correct at 21/11/13

Shuttle

Parking on the Queen Elizabeth Hospitals site

48, 99, 647

ent resid

es

icl

h ve

en

c Vin

Visitor and Patient (non - A&E & CDU)

11 48

11 48

University Station

/ Patient / Visitor (non - A&E & CDU)

Shuttle

ss Acce

48, 98, 99

Main Entrance

48 647

hn W ay

Medical School

Staff Car Park B1

Learning Hub

lso

Old Queen Elizabeth Hospital

A&E

Ambulances & Buses only

Shuttle

4

Queen Elizabeth Hospital Birmingham 1

48, 99 647

in de

Staff Post Car Park E Graduate Centre

A&E entrance

CDU

M

Shuttle

Shuttle

Cancer Centre

Clinical and drop-off Decision Unit (15 mins waiting only) (CDU) entrance Shuttle

Nuffield House

ti Visitor / Pa U / A & E / CD

2

Staff Car Park F

Access to Busy Bees and Staff Car Park F only

Fisher Centre House Club

Selly Oak

Info desk

Pedestrian Route

Disabled Parking

Drop-off only

Parking Bus Stop Centro / WM Cycle Storage

TAXI Shuttle

Taxi rank Shuttle bus Smoking Shelter

The free shuttle bus service runs from 07:00-19:00 Monday-Friday (excluding Bank Holidays).

Outpatients & all wards/departments (new hospital) Cancer Centre All wards & departments (old hospital) East Block Day Unit

28/07/2014 16:47