A guide to care and independent living Bassetlaw OPTIONS Autumn 2022 NHS hospitalLeavinghealthcarecontinuing What’s Healthcarenext?services Choosing the right one Who’s SOCIALeligible?CARE tips 10
©2022. Rossington Hall, Great North Road, Doncaster, South Yorkshire, DN11 0HR. Telephone: 01302 714528 Bassetlaw is published by Octagon Design and Marketing Ltd with editorial contributions from Doncaster and Bassetlaw Teaching Hospitals NHS Foundation Trust, Nottinghamshire Healthcare NHS Foundation Trust, the CQC, Age UK Nottingham & Nottinghamshire and the NHS. The editorial contributors have not vetted the advertisers in this publication and accepts no liability for work done or goods supplied by any advertiser. Nor do the editorial contributors endorse any of the products or services.
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This guide is intended to help you, your carer and your relatives understand how your local health services can help you after discharge from hospital. Also information to help you to live independently or access support and care services in your area. Welcome and introduction Contents NHS continuing healthcare.............................................................................................. 8-11 Paying for your own care (self-funding) ....................................................................... 12-13 Making the most of your healthcare services: avoiding unnecessary Emergency Department visits ............................................................................................................... 4-5 OCTAGONDESIGN&MARKETINGLTD Age UK Nottingham and Nottinghamshire’s Services available in Bassetlaw ............ 14-15 Nottinghamshire Healthcare NHS Foundation Trust ............................................................... 6-7 To view this guide online as an interactive ebook visit: www.regionalcare.co.uk/options/bassetlaw/autumn2022 Read online Unite against dementia in Bassetlaw, Nottinghamshire 18-19 The Care Quality Commission Social Care and GP top tips 16-17
• NHS 111 – This 24 hour, seven day service offers confidential health advice and information over the phone. To access the NHS 111 service text-phone, call 18001 111.
• Pharmacist (chemist) – Your local pharmacist is a highly trained healthcare professional who can give you advice on common illnesses and the medicines you need to treat them. Most now have a quiet area away from other customers where you can speak to the pharmacist more privately.
Due to the hot weather we have experienced lately, the number of Emergency Department attendances increased due to heat-related illnesses and injuries and similar rises in attendance are often seen as we head into Autumn with colder weather bringing about complications with respiratory problems and other weather-related illnesses. Clinicians are urging people to stay safe in the heat and make the right choices if they do become unwell.
Dr Nick Mallaband, Emergency Care Group Director and Consultant at the Trust, said: “We’re asking people to put their health first and understand what services are available should they, or a family member, become ill or injured. Please remember to only use the Emergency Department when it’s just that – an emergency.”
• Minor Injuries Unit at Montagu Hospital – The unit is open every day from 9.00am to 9.00pm, except on Christmas Day when it is closed. The unit re-opens on Boxing Day. The unit is staffed by experienced emergency nurse practitioners who can assess and treat a wide range of minor injuries and ailments, including sprains, cuts and bruises, and some simple fractures.
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avoiding unnecessary Emergency Department visits
• Self-care – A lot of illnesses or symptoms can be treated in your home by using a well-stocked medicine cabinet and by getting plenty of rest.
If you do feel ill or unwell, and you’re not sure if it’s an emergency, you can seek advice at any time of the day by calling NHS 111. You can also book an appointment at the Doncaster Same Day Health Centre or, if it’s really urgent, call 999. Here’s some tips to help you choose health services wisely:
• Emergency Department or 999 – Hospital emergency departments provide immediate emergency care for people who show the symptoms of serious illness or are badly injured. If you call 999 for an ambulance the telephone adviser will arrange appropriate assistance for the patient based on information about the illness or injury. Your treatyoumedicinesandillnessesonyouwhoprofessionalhealthcaretrainedispharmacistlocalahighlycangiveadvicecommontheneedtothem.
Editorial content supplied by: Doncaster and Bassetlaw Teaching Hospitals NHS Foundation Trust
Making the most of your healthcare services:
• GP – Your own GP is the best person to speak to about persistent health problems and illnesses that won’t go away. These include persistent coughs, joint pain and long term symptoms that haven’t suddenly deteriorated to a point where you are extremely unwell. Your appointment may be over the telephone.
Senior doctors at Doncaster and Bassetlaw Teaching Hospitals are encouraging people to choose their health services wisely.
Editorial content supplied by: Doncaster and Bassetlaw Teaching Hospitals NHS Foundation Trust 5
The course is designed to educate and support people to live well with dementia, and we do this by exploring what dementia is, adapting to diagnosis, memory strategies, changes in mood, healthy living, and planning for the future. We provide informative presentations with the opportunity to take part in discussions, share experiences and engage in activities. We are also currently running an anxiety management group, which is for people who have been struggling to manage thoughts and feelings of anxiety. The course similarly runs for eight consecutive weeks, and each session lasts two hours long (with a break in the middle).
The group is underpinned by Cognitive Behavioural Therapy, which means that we will identify how thoughts and beliefs influence our behaviour. We also explore methods that can be used to help people better cope with their worries and anxieties. Like the dementia group, a key benefit of the group is a safe environment for people to share their experiences as well as engage in discussions and activities.
So far, we have had positive feedback from patients and carers. Mental Health Services for Older People Operational Manager, John Davies was also impressed with the benefits for patients. Wanting to get a feel for how the groups are run, he sat in our dementia group for the session. He commented on the excellent content and the engaging way the facilitators interacted with patients.
Each team comprises of a Clinical Psychologist, two Assistant Psychologists, two Assistant Practitioners, one Community Psychiatric Nurse, one Occupational Therapist, and one Family Peer Support Worker. We are currently running a Psychoeducational Dementia group for people who have recently been diagnosed with dementia. The group runs for eight consecutive weeks, and each session lasts two hours long (with a break in the middle).
1) people with dementia (older adults who are diagnosed 65 years or older, and young onset dementia for those diagnosed 64 years and lower)
Hearing this feedback gives us confidence that our future groups in development, which include a depression management group - based upon compassion-focussed therapy – and a group to help develop stabilisation skills will also be well received.
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Further information about the groups on offer are outlined below:
2) people with mild to moderate mental health difficulties.
TIS covers the whole of Nottinghamshire and is divided into North Nottinghamshire (Mansfield Community Hospital, Byron House in Newark, and Bassetlaw Hospital) and South Nottinghamshire (Lings Bar Hospital and Highbury Hospital). All treatments are group-based and take place at one of the North or South locations. The exception to this is our online ‘Managing Changes’ group for people with dementia who prefer to attend a virtual group.
Nottinghamshire Healthcare NHS Foundation Trust launched the Therapeutic Intervention Service (TIS) on 1 April 2022 providing specific evidence-based treatments for two groups of people:
Editorial content supplied by: Nottinghamshire Healthcare NHS Foundation Trust
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Editorial content supplied by: Nottinghamshire Healthcare NHS Foundation Trust
• Tips for a better night’s sleep
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Communication Planning ahead Managing Anxiety Programme
This group is for individuals who have been impacted by thoughts and feelings of anxiety and is offered on a face to face basis for individuals aged over 65 years. It consists of 8 weekly sessions that will last approximately 2 hours. It is underpinned by Cognitive Behavioural Therapy, which means that we will identify how thoughts and beliefs influence our behaviour.
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• Strategies to help you untangle the cycle of anxiety in your everyday life
• Managing anxiety in the present moment
• Putting together all we’ve learned and moving
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• What is anxiety and where does it come from?
Dementia Post Diagnostic Programme
If you would like further information please contact Sarah Carlisle, Team Leader on 01158542232. We methodsexplorewill that can be used to help you better cope with anxieties.worriesyourand
The group is for individuals who have recently been diagnosed with dementia (any age) and is offered in a face to face group session, or online. The group consists of 8, weekly 2 hour sessions and are designed to educate and support patients to live well with dementia and adapt to diagnosis. The programme consists of the following: Introduction and adapting to diagnosis Identifying change Memory strategies Wellbeing and dementia Healthy living
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• Understanding our anxiety
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• How to manage tricky thoughts
• How physical techniques can help reduce anxiety
We will explore methods that can be used to help you better cope with your worries and anxieties. The programme consists of the following:
Theforwardsservice is open to current MHSOP patients and will be referred internally.
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Am I eligible for NHS continuing healthcare?
This is known as NHS continuing healthcare. Where can NHS continuing healthcare be provided? NHS continuing healthcare can be provided in a variety of settings outside hospital, such as in your own home or in a care home.
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You should be fully involved in the assessment process and kept informed, and have your views about your needs and support taken into account.
If you are not eligible for NHS continuing healthcare, you can be referred to your local council who can discuss with you whether you may be eligible for support from them.
Find out more about the children and young people’s continuing care national framework on GOV.UK To be eligible for NHS continuing healthcare, you must be assessed by a team of healthcare professionals (a multidisciplinary team). The team will look at all your care needs and relate them to: • what help you need • how complex your needs are • how intense your needs can be • how unpredictable they are, including any risks to your health if the right care is not provided at the right time Your eligibility for NHS continuing healthcare depends on your assessed needs, and not on any particular diagnosis or condition. If your needs change then your eligibility for NHS continuing healthcare may change.
Carers and family members should also be consulted where appropriate.
The process involved in NHS continuing healthcare assessments can be complex. An organisation called Beacon gives free independent advice on NHS continuing healthcare. Visit the Beacon website or call the free helpline on 0345 548 0300.
Information and advice
A decision about eligibility for a full assessment for NHS continuing healthcare should usually be made within 28 days of an initial assessment or request for a full assessment.
Some people with long-term complex health needs qualify for free social care arranged and funded solely by the NHS.
NHS continuing healthcare is for adults. Children and young people may receive a “continuing care package” if they have needs arising from disability, accident or illness that cannot be met by existing universal or specialist services alone.
If you still have some health needs then the NHS may pay for part of the package of support. This is sometimes known as a “joint package” of care.
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Being referred for a full assessment does not necessarily mean you’ll be eligible for NHS continuing healthcare. The purpose of the checklist is to enable anyone who might be eligible to have the opportunity for a full assessment.
For most people, there’s an initial checklist assessment, which is used to decide if you need a full assessment. However, if you need care urgently – for example, if you’re terminally ill – your assessment may be fast-tracked.
Initial assessment for NHS continuing healthcare
The professional(s) completing the checklist should record in writing the reasons for their decision, and sign and date it. You should be given a copy of the completed checklist.
NHS continuing healthcare assessments
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The initial checklist assessment can be completed by a nurse, doctor, other healthcare professional or social worker. You should be told that you’re being assessed, and be asked for your consent.
Full assessment for NHS continuing healthcare
Full assessments for NHS continuing healthcare are undertaken by a multidisciplinary team (MDT) made up of a minimum of 2 professionals from different healthcare professions. The MDT should usually include both health and social care professionals who are already involved in your care. You should be informed who is co-ordinating the NHS continuing healthcare assessment.
9 Editorial content supplied by: the NHS
Depending on the outcome of the checklist, you’ll either be told that you do not meet the criteria for a full assessment of NHS continuing healthcare and are therefore not eligible, or you’ll be referred for a full assessment of eligibility.
You can download a blank copy of the NHS continuing healthcare checklist from GOV.UK
Clinical commissioning groups, known as CCGs (the NHS organisations that commission local health services), must assess you for NHS continuing healthcare if it seems that you may need it.
If it’s agreed that a care home is the best option for you, there could be more than 1 local care home that’s suitable.
Fast-track assessment for NHS continuing healthcare If your health is deteriorating quickly and you’re nearing the end of your life, you should be considered for the NHS continuing healthcare fast-track pathway, so that an appropriate care and support package can be put in place as soon as possible – usually within 48 hours.
NHS continuing healthcare should be provided.
If you have at least 1 priority need, or severe needs in at least 2 areas, you can usually expect to be eligible for NHS continuing healthcare. You may also be eligible if you have a severe need in 1 area plus a number of other needs, or a number of high or moderate needs, depending on their nature, intensity, complexity or unpredictability.
The assessment should take into account your views and the views of any carers you have. You should be given a copy of the decision documents, along with clear reasons for the decision. You can download a blank copy of the NHS continuing healthcare decision support tool from GOV.UK
The team’s assessment will consider your needs under the following headings: • breathing • nutrition (food and drink) • continence • skin (including wounds and ulcers) • mobility • communication • psychological and emotional needs • cognition (understanding) • behaviour • drug therapies and medicine • altered states of consciousness • other significant care needs
These needs are given a weighting marked “priority”, “severe”, “high”, “moderate”, “low” or “no needs”.
In all cases, the overall need, and interactions between needs, will be taken into account, together with evidence from risk assessments, in deciding whether
Your CCG should work collaboratively with you and NHS
If you’re eligible for NHS continuing healthcare, the next stage is to arrange a care and support package that meets your assessed needs. Depending on your situation, different options could be suitable, including support in your own home and the option of a personal health budget.
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Care and support planning
consider your views when agreeing your care and support package and the setting where it will be provided. However, they can also take other factors into account, such as the cost and value for money of different options.
If the CCG decides you’re eligible, but takes longer than 28 days to decide this and the delay is unjustifiable, they should refund any care costs from the 29th day until the date of their decision.
If you’re not eligible for NHS continuing healthcare
Q I have a local authority support package that works well. I’m now eligible for NHS continuing healthcare – will my support package change?
Find out more about NHS continuing healthcare from NHS England NHS continuing healthcare
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If you’re eligible for NHS continuing healthcare, your needs and support package will normally be reviewed within 3 months and thereafter at least annually. This review will consider whether your existing care and support package meets your assessed needs. If your needs have changed, the review will also consider whether you’re still eligible for NHS continuing healthcare.
CCGs will normally make a decision about eligibility for NHS continuing healthcare within 28 days of getting a completed checklist or request for a full assessment, unless there are circumstances beyond its control.
If there’s evidence that a move is likely to have a detrimental effect on your relative’s health or wellbeing, discuss this with the CCG. It will take your concerns into account when considering the most appropriate arrangements.
If the CCG decides to arrange an alternative placement, they should provide a reasonable choice of homes.
NHS continuing healthcare reviews
Q My relative is in a care home and has become eligible for NHS continuing healthcare. The CCG says the fees charged by this care home are more than they would usually pay, and has proposed a move to a different care home. I think a move will have a negative effect on my relative. What can we do?
No, it is not possible to top up NHS continuing healthcare packages, like you can with local authority care packages. The only way that NHS continuing healthcare packages can be topped up privately is if you pay for additional private services on top of the services you’re assessed as needing from the NHS. These private services should be provided by different staff and preferably in a different setting.
Refunds for delays in NHS continuing healthcare funding
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Frequently asked questions about
Q Can I refuse an assessment for NHS continuing healthcare? If I refuse, will I be able to get services from my local authority?
Q Is it possible to pay top-up fees for NHS continuing healthcare?
An assessment for NHS continuing healthcare cannot be carried out without your consent, so it’s possible to refuse. However, if you refuse, although you’ll still be entitled to an assessment by the local authority there’s no guarantee that you’ll be provided with services. There’s a legal limit on the types of services that a local authority can provide. If you refuse to be assessed for NHS continuing healthcare, the CCG should explore your reasons for refusing, and try to address your concerns. If someone lacks the mental capacity to consent to or refuse an assessment, the principles of the Mental Capacity Act will apply and in most circumstances an assessment will be provided in the person’s best interest.
If you’re not eligible for NHS continuing healthcare, but you’re assessed as requiring nursing care in a care home (in other words, a care home that’s registered to provide nursing care) you’ll be eligible for NHS-funded nursing care. This means that the NHS will pay a contribution towards the cost of your registered nursing care. NHSfunded nursing care is available irrespective of who is funding the rest of the care home fees.
FAQ’s Editorial content supplied by: the NHS
If you’re concerned about changes to your care package because of a move to NHS continuing healthcare, your CCG should talk to you about ways that it can give you as much choice and control as possible. This could include the use of a personal health budget, with 1 option being a “direct payment for healthcare”.
You won’t have to sell your home to pay for help in your own home.
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• you own your own property (this only applies if you’re moving into a care home)
The price will vary according to where you live and the type of care you need.
Paying for your own care (self-funding)
Paying for a care home
Can I avoid selling my home?
• residential homes have staff that help with everyday tasks such as getting dressed and supply all your meals
• £840 a week in a nursing home
• £600 a week in a residential home
Find out what care you need
• nursing homes also offer 24-hour nursing care
You can ask your council for a financial assessment (means test) to check if you qualify for any help with costs. You can choose to pay for care yourself if you don’t want a financial assessment.
There are 2 types of care home:
Social care can be expensive. Knowing how much you’ll have to pay will help you budget.
How to arrange your care as a self-funder You can:
A typical hourly rate for a carer to come to your home is around £20, but this will vary depending on where you live.
Even if you choose to pay for your care, your council can do an assessment to check what care you might need. This is called a needs assessment.
Paying for carers at home
Having a carer who lives with you costs from around £650 a week. But it can cost as much as £1,600 a week if you need a lot of care.
You may be eligible for benefits, like Attendance Allowance and Personal Independence Payment (PIP), which aren’t means-tested. You can use them to pay towards the cost of your care.
But you may have to sell your home to pay for a care home, unless your partner carries on living in it.
For example, it’ll tell you whether you need home help from a paid carer for 2 hours a day or 2 hours a week and precisely what they should help you with.
• you have savings worth more than £23,250
For example, serious health problems like dementia and chronic obstructive pulmonary disease (COPD) can increase the cost.
You will not be entitled to help with the cost of care from your local council if:
The needs assessment is free and anyone can ask for one. How much will care cost?
• arrange and pay for care yourself without involving the council • ask the council to arrange and pay for your care (the council will then bill you, but not all councils offer this service and they may charge a fee)
But there may be other ways to pay care home fees if you don’t want to sell your home straight away.
Sometimes selling your home to pay care home fees is the best option.
Even if you choose to pay
Benefits can help with care costs
A room in a care home costs:
• Independent Age: guide to care home fees and your property Get expert financial help You can get unbiased expert advice from a specialist care fees adviser. They’ll help you compare all your options before you decide what’s right for you.
Find a specialist care fees adviser in your area with:
Councils provide funding from the date you contact them. You won’t be reimbursed if your savings are less than £23,250 before you contact them.
• Age UK on freephone 0800 169 6565
You might be able to get some free help regardless of your income or if you’re paying for your care. This can include:
The Money Advice Service has more information on equity release. Renting out your home You can rent out your home and use the income to help pay your care home fees.
• NHS care, such as NHS continuing healthcare, NHSfunded nursing care and care after you have been discharged from hospital
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• Independent Age on freephone 0800 319 6789
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What you can get for free
You can get more information from:
Releasing money from your home (equity release) Equity release lets you take money that’s tied up in your home without selling it. It’s available if you’re over 55. But you have to pay interest on the money you take out, which can be expensive.
• the Money Advice Service: deferred payment schemes
• the Society of Later Life Advisers (SOLLA) on 0333 2020 454 Telephone help Get advice on paying for care from:
on freephone 0800 138 7777
• small bits of equipment or home adaptations that each cost less than £1,000
Ask your council if you’re eligible for a deferred payment scheme.
• the Money Advice Service
A deferred payment scheme can be useful if you have savings less than £23,250 and all your money is tied up in your property.
A deferred payment scheme
The council pays for your care home and you repay it later when you choose to sell your home, or after your death.
• PayingForCare, a free information service for older people
If your savings run out If your savings fall below £23,250, your council might be able to help with the cost of care.
Contact your local council about 3 months before you think your savings will drop to below £23,250 and ask them to reassess your finances.
14 Are you an older person who is struggling to love your later life? Age UK Notts is here to help!
15 Age UK Nottingham & Nottinghamshire is a charitable company limited by guarantee and registered in England and Wales. Registered Charity Number: 1067881. Company Number: 3455485. Bradbury House, 12 Shakespeare Street, Nottingham NG1 4FQ. Age UK Notts has not vetted the advertisers in this publication and accepts no liability for work done or goods supplied by any advertiser. Nor does Age UK Notts endorse any of the products or services. How we can help: • We can provide information and advice on a wide range of issues, including benefits and accessing local services, and we can connect you to eligible grants (where applicable) • We can direct you to a range of services to help you meet new people and stay active • We offer specialist services to help make life better for older veterans. • We can connect you with local solicitors to help you get a basic Will in place, so you can have peace of mind about the future • We can help you stay safe and warm in your own home this winter. There are many other ways we can help too, just contact our team and we will support you however we can. Some services are orsubjecttosuspensionalterationduringtheCOVID-19pandemic.Call01158440011fordetails.Call us today on 0115 844 0011 or email info@ageuknotts.org.uk
The Care Quality Commission has not vetted the advertisers in this publication and accepts no liability for work done or goods supplied by any advertiser. Nor does the Care Quality Commission endorse any of the products or services.
Social care Top tips
Think about whether a home is close enough to family, friends, and community facilities
7 If you would like to organise your care yourself, you can find a care worker or personal assistant through an agency Your local social services department should be able to provide details of approved agencies.
If you or a loved one needs help with day-today care, you can contact your local council’s social services department. They will ‘make an assessment of your needs’ and depending on circumstances, may be able to help you access financial help. For more advice visit Age UK’s website www.ageuk.org.uk/home-and-care.
Look at how well-led and managed a home is. What does it have in place to ensure that it delivers high quality care? Does it promote meaningful activity and connect the home with the community?
A care home will be a home for you or your loved one. Residents should be treated as individuals with their likes and dislikes taken into account.
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3 Whether you are being cared for in your own home or in a residential setting, the staff looking after you need to be skilled, kind and supportive
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1 The Care Quality Commission (CQC) registers all care homes and home care agencies. You can find out which ones support specific groups of people, such as people with a learning disability or those living with dementia.
CQC’s Chief Inspector for Adult Social Care, Andrea Sutcliffe always uses ‘The Mum Test’: is a care home safe, caring, effective, responsive to people’s needs and well-led? In other words, is it good enough for my Mum (or anyone else I love and care for)?
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9 Safeguarding adults who receive social care is everybody’s business. If you are concerned about the safety of a loved one receiving care, contact the service provider in the first instance. You can also contact social services at your local council. If you feel a crime has been committed, contact the police. You can share your safeguarding concerns with us on our website or contact our National Customer Services on 03000 616161.
The Care Quality Commission is here to make sure health and adult social care services including hospitals, home and residential care as well as GPs in England provide people with safe, effective, high-quality care. We publish independent inspection reports and ratings about services – information you can use when you’re choosing care for yourself, or a loved one. You can use our website to search for services you might be interested in by geographical area, or by specialism. For example, a care home that might offer specialist care for someone who has dementia. We also welcome your feedback on the care you have received – good or bad. We use this information to help inform our inspections and can alert authorities including local social services, if there are safeguarding concerns about care being provided. You can visit our website at www.cqc.org.uk to find our inspection reports, or share an experience of care. You can also call us to share an experience of care on 03000 61 61 61.
Here are some tips to help you choose your care.
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8 CQC’s ratings will identify services as: Outstanding ★ Good ● Requires improvement ● Inadequate ● This will help you make informed choices around your care.
Look for care homes and home care agencies where the staff involve people who use services and their families and carers, and treat individuals with compassion, kindness, dignity and respect
They should also be capable and confident in dealing with your particular needs. You should always feel that their support is helping you to live the life you want to.
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17 GP Top tips 1 If you are new to an area you can find details of local GP services such as doctors’ practices, out-of-hours services and walkin centres in our online directory of care services www.cqc.org.uk/content/doctorsgps 2 You can search any of these services by the name of the service, a place name or your postcode at www.cqc.org.uk 5 CQC launched its new-style inspection reports for GPs – looking at the five key areas SAFE, EFFECTIVE, CARING, RESPONSIVE and WELLLED – you can use the reports to compare local GPs and choose services. After an inspection, CQC publishes its findings in a report on its website. You can use these reports to check and compare services in your area 3 There are already over 1,000 reports about GP practices published on the CQC website.4 You can also use these new style inspection reports to find out more about local services and choose the one that is best for your needs. 6 We welcome your feedback (good and bad) on the services you, or a loved one, receives from your GP. You can share information with us online at experience-fihttp://www.cqc.org.uk/share-your-nderorcalluson03000616161.
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9 CQC will also look at how specific population groups are treated and give a rating. For instance how well they serve: Mothers, children and young people, vulnerable older people (over 75s) and people with long-term conditions. People will be able to choose a GP service that rates highly on the areas that matter to them. CQC rates all GPs to help people make choices about where they get treatment. This will be on a four-point scale: 03000 616161 Web: www.cqc.org.uk
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Dementia Connect, from Alzheimer’s Society, is a personalised support service for anyone with dementia, their carers, families and friends. We understand that dementia affects everyone differently. So whether you, a loved one, a friend or neighbour needs dementia support, we’re here for We’llyou.connect you to a whole range of dementia support, by phone, online and face to face. Our highlytrained dementia advisers can help people come to terms with their diagnosis and navigate the complicated maze of health and social care services. It’s free, easy to access, and offers you the support you need. Whether it’s advice on legal documents, help understanding dementia or someone to talk to when things get tough, we’re here to help. We can keep in touch with you to make sure you keep getting the support you need. And because we know it’s never easy to tell your story, you’ll only ever need to tell it to us once. Phone support Our dementia advisers are available to talk to on the phone seven days a week. They will listen and give you the support and advice you need, including connecting you to help in your local area and online. We can offer you the option of regular calls so we can keep in touch, to find out how you are and help when things change.
If you need further support, you can request a call from our dementia advisers, who should be in touch with you within a week. Our online support includes Talking Point, our online community where you can connect with others in a similar situation, and our Dementia Directory where you can search for local services.
Face to face support
‘The Dementia Adviser was lovely and full of information. Without Alzheimer’s Society and the Dementia Adviser we’d have nothing. She is a major networker and knows everything and everyone local. I feel in charge and empowered.’
Where possible, our local dementia support workers can meet you in person to offer further support, advice and information. They will also connect you to other face to face services in your area, including local support groups.
Online support Dementia Connect online support is available round the clock through our website. Answer a few simple questions about yourself, or someone you know, to get personalised, relevant information and advice. From guides on dementia to advice on making your home dementia friendly, get the information about the things that matter to you.
Support
Dementia Connect
opening hours* Monday – Wednesday: 9:00am – 8:00pm Thursday – Friday: 9:00am – 5.00pm Saturday – Sunday: 10:00am – 4:00pm *Calls charged at standard local rate. United Against Dementia
Notes: Dementia Connect phone and online support is available wherever you live. As the service is new, some parts of the service may not be available in your area just yet.
Katherine, living with dementia line
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3) Become a campaigner At Alzheimer’s Society, we work to amplify the voices of people affected by dementia, to create a world where they get the support and care they deserve. We can’t do this alone. Whether you have dementia, you have a personal connection to dementia or you want to stand with those who do. Together we can make a difference, register to become a campaigner at alzheimers.org.uk
can you
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“Dementia can and does affect so many families, including mine. “My father was diagnosed with vascular dementia and Alzheimer’s disease in the summer of 2012. He passed away in September 2018. “I wanted to do something to help raise awareness of the condition and tackle the stigma associated, so I reached out to Alzheimer’s Society to see if I could help. It gives me an enormous sense of pride being an Ambassador for Alzheimer’s Society and I feel like I’m making a difference.
“I have also personally enjoyed taking part in fundraising activities like Cupcake Day and Memory Walk, as there is a real sense of togetherness for a good cause.
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“For anyone wanting to know how they can help, I’d say get involved. Whatever you can give, be that your time, voice or money, you’ll know you’ve made a difference to the lives of people affected by dementia.” Meera Syal, actor and Alzheimer’s Society Ambassador touch you are affected by dementia in and would like information and support, contact us: 0333 150 3456 W: alzheimers.org.uk/dementiaconnect E: dementia.connect@alzheimers.org.uk Registered office: 43-44 Crutched Friars, London EC3N 2AE. Registered charity no. 296645. A company limited by guarantee and registered in England no. 2115499
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1) Fundraising Memory Walk and Cupcake Day There’s get involved to help money. 2)alzheimers.org.ukDonate dementia support services made possible thanks to generous donations from the public. However, you don’t have to join an event or seek sponsorship to do this. Simply head to alzheimers.org.uk and donate what you can to unite against dementia.
to challenging yourself in marathons and treks.
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How support Alzheimer’s Society?
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