A guide to care and independent living
What’s next?
Warm Homes
Healthy People
NHS continuing healthcare
Who’s eligible?
SOCIAL CARE tips 10
Building Healthier Communities Leaving hospital
Person-centred Care at Canterbury House
At Canterbury House care home near Ipswich, we understand the difference that high-quality, person-centred residential and dementia care can make. Nestled in the charming market town of Hadleigh, our home offers a welcoming and supportive environment designed to enhance the quality of life for our residents.
Our home provides a nurturing setting, where our residents can enjoy a comfortable, safe, and engaging lifestyle. Canterbury House features well-appointed rooms that offer a blend of comfort and practicality, each equipped with modern amenities and designed to feel like home. Communal areas, such as lounges and dining rooms, are thoughtfully decorated to create a warm and inviting atmosphere, fostering a sense of community among our residents.
What sets Canterbury House apart is its commitment to personalised care. Our experienced and compassionate team work closely with residents and their families to develop tailored care plans, that cater to individual needs and preferences. This bespoke approach ensures that each resident receives the appropriate level of support, promoting independence and well-being.
Our team at Canterbury House are dedicated to providing highquality care and support around the clock. Understanding the unique challenges faced by people living with dementia, our care home employs a person-centred approach that emphasises dignity, respect, and understanding. Colleagues are trained in dementia care techniques, which ensures that our residents receive compassionate care that is sensitive to their specific needs.
Our environment at Canterbury House is also tailored to support dementia care. Our home features secure areas where residents can move freely and safely. The layout is designed to minimise confusion and anxiety, with clear signage and familiar landmarks to help residents navigate their surroundings.
Activities and programmes are specifically designed to stimulate cognitive function and enhance the quality of life for those living with dementia. We welcome groups such as Kiddleydivey, who provide engaging and therapeutic music sessions with meaningful engagement to promote mental well-being. We encourage family involvement, recognising the importance of maintaining strong connections with loved ones. With its dedicated team and comprehensive care, Canterbury House ensures that every resident can live a fulfilling and dignified life.
More information is available on our website at www.anchor.org. uk/CanterburyHouse . Canterbury House care home is located on Gallows Hill, Hadleigh, Ipswich IP7 6JQ. We are happy to answer any questions you may have regarding our care on 01473 905 718 or please call in.
Meeting the mental health needs of older people in Suffolk
Mental health issues, including dementia, can affect anyone at any age. Thankfully, services are available to provide support and guidance. Norfolk and Suffolk NHS Foundation Trust (NSFT) provides several such services in Suffolk.
NSFT provides mental health and learning disability care for people across Suffolk and Norfolk.
The Trust is dedicated to providing high-quality care with compassion, delivering many of the NHS services that are provided outside of hospital and in the community.
It has clinical teams providing services in inpatient, community and primary care settings.
NSFT-run services for older people in Suffolk
Dementia Intensive Support Team – East (DISTE) and West (DISTW)
DISTE, based in Ipswich, and DISTW, based in Bury St Edmunds, work with people with all types of dementia, suspected dementia and delirium on top of dementia and their families in the event of a dementiarelated crisis. The aim is to avoid admission to an acute hospital. A crisis may involve a recent change in behaviour that causes concern, or carers needing more support to prevent care breakdown.
dementia is given, the team may suggest medication, if appropriate. Follow-up support is provided by Dementia Connect, with whom the services work closely. People are referred to the service by their GP.
Abbeygate Ward, Bury St Edmunds
Abbeygate, based at Wedgwood House, West Suffolk Hospital, is an assessment and treatment inpatient service. The ward looks after older people in West Suffolk who have a primary mental health need with physical health complexities. Some of the beds are for the care of people with dementia.
The aim is to avoid admission to an acute hospital.
DIST can offer support to enable a timely discharge from hospital in liaison with other agencies, where required. They can also provide signposting, advice and information to local support services.
Family or carers should contact the GP in the first instance, who will refer to DIST if appropriate.
Memory Services, East and West
Memory Services assess people who are experiencing early symptoms of dementia. If a diagnosis of
When somebody is admitted, assessments are carried out and treatment options discussed with them. They have their own en-suite room. There are separate sleeping areas for men and women.
The ward treats conditions such as anxiety, bipolar disorder, depression, dementia, psychosis, and posttraumatic stress disorder.
Access is via GP referral, NSFT’s Access and Assessment team or other services such as the Trust’s Psychiatric Liaison team and Crisis Response service.
Willows Ward, Ipswich
Willows, based at the Woodlands Unit, Ipswich Hospital, is an older people’s inpatient service for adults over 65 years in East Suffolk. Care is provided to patients with dementia, functional or organic mental illness and/or who require continuing care. Patients under 65 with early-onset dementia may also be accepted.
Functional mental illness describes conditions of acute psychiatric illness such as depression, anxiety, or psychosis. Organic mostly describes dementia as well as other conditions which may result from brain injury.
Access is via GP referral.
Community Mental Health Teams (CMHTs) Bury North – Bury South – Central Suffolk – Coastal Suffolk – Ipswich
They treat disorders ranging from Alzheimer’s disease and anxiety, through dementia and psychosis, to schizophrenia and severe depression.
Most referrals come from GPs, through to the Access and Assessment team. Other professional agencies can also refer people.
For further information
You can find out more about the services run by NSFT by visiting the Trust’s website: www.nsft.nhs.uk Search under ‘Our services – Older people’.
Urgent help
Service users in crisis can contact the service using the number they were given.
Most referrals come from GPs, through to the Access and Assessment team.
CMHTs co-ordinate community mental health services in their areas. The teams can also support people with a learning disability. There is a dedicated specialist service to support people with complex learning disabilities.
The CMHTs provide clinical interventions to address complex mental health needs. This includes difficulties such as ADHD and autism. The teams include doctors, nurses, social workers, occupational therapists, support workers, psychologists, and therapists.
Anyone in crisis can call 111 and select the mental health option to speak to our 24-hour mental health crisis line.
If you are with someone who has attempted suicide, call 999 and stay with them until the ambulance arrives.
If anyone is at serious risk of harm, call 999 and ask for the police.
For non-life threatening medical situations, call NHS111 on 111.
Warm Homes Healthy People
The Councils in Suffolk have been working as a consortium since 1994 to deliver cost effective solutions to address fuel poverty, energy efficiency, carbon reduction and health improvement programmes.
The projects delivered with a range of partners have relied on external funding to deliver practical solutions to thousands of households who have benefitted from loft insulation, cavity and external wall insulation, improved heating and other related support. Initially branded as Suffolk Energy Action Link (SEAL) the programme became Suffolk Warm Homes Healthy People in 2012 when the funding shifted to health priorities.
Warm Homes Healthy People (WHHP) is a Suffolk wide, multi-agency partnership project, including all the Suffolk Councils, Integrated Care Boards, Hospitals, Voluntary sector and communities.
The vision is to provide practical support, signposting and referrals to achieve the following:
• Raising awareness of fuel poverty, its prevalence, and effects.
• Reduce the number and severity of households in fuel poverty
• Reduce cold home related ill health
• Reduce the number of excess winter deaths
• Reduce home energy consumption & energy bills
Warm Homes
Healthy People supports clients accessing all available grants relevant to their housing needs.
• Reduce carbon emissions by making homes more energy efficient
Core funding originates from annual contributions from each local authority and Public Health Suffolk. Other sources of external funding are essential to deliver solutions and have included Central Government, National Energy Action (NEA), Scottish Power, Affordable Warmth Solutions, and Smart Energy GB. The nature of this stop start funding often means the exact offer to residents can change on a yearly basis.
Warm Homes Healthy People delivery is managed by East Suffolk Council on behalf of all the Suffolk
Councils. Suffolk County Council is a lead partner for the large funds including the Warm Homes Fund. Governance is jointly provided by Suffolk Housing Board and Suffolk Climate Change Partnership with regular reports to the Health and Wellbeing Board.
Warm Homes Healthy People supports clients accessing all available grants relevant to their housing needs.
To find out more or book a free home energy survey please call, 03456 037686 or email whhp@eastsuffolk.gov.uk
East Coast Community Healthcare – Building Healthier Communities
East Coast Community Healthcare
(ECCH)
has been providing NHS community and public health services across Norfolk and Suffolk since 2011.
If you are at home recovering from a hospital stay or are being supported at home because your condition doesn’t require treatment in hospital, it’s likely you will have met some of the nurses and therapists who work for ECCH.
ECCH has four multi-disciplinary Primary Care Home (PCH) teams who offer personalised care in patients’ own homes. They support the four groups of GP practices which cover Lowestoft, Great Yarmouth and the northern villages, Gorleston and South Waveney.
Each PCH is made up of clinicians from a wide range of disciplines including nurses, occupational therapists, healthcare assistants, physiotherapists, specialist palliative care nurses and more - all working alongside colleagues from social care.
‘Virtual Ward’ in your own home
The emphasis across the NHS on avoiding hospital stays, where possible, is based on evidence that we recover better in our own homes. ECCH’s Community Virtual Ward is another measure which enables this, allowing patients in Great Yarmouth and Waveney to receive hospital monitoring and treatment at home.
Specialist Services
ECCH has a number of specialist services such as Heart Failure, Diabetes and Podiatry. It also has services such as Musculoskeletal Physiotherapy where patients who need advice and support can self-refer online via norfolkandwaveneycommunityhealth.nhs.uk/msk
Beccles Hospital
ECCH runs Beccles Hospital which celebrated its centenary this year. When the hospital opened in 1924 it had a 24-bedded ward and a similar number of beds remain today. However, these days, paper charts detailing patient’s conditions are long gone and ECCH has transformed the ward with digital technology which means ward staff and GPs can access and exchange information about patients seamlessly.
The ward now acts as an Intermediate Care Unit, providing intense rehabilitation and reablement to patients who no longer need acute hospital care but are not yet well enough to return home. ECCH is also working in partnership with St Elizabeth Hospice to provide specialist palliative care in six beds on the ward.
ECCH has a number of specialist services such as Heart Failure, Diabetes and Podiatry.
The service sees patients trained to use a device which sends observations, including their breathing, heart rate, and skin temperature, directly to the Community Virtual Ward team. It is suitable for patients with conditions including respiratory disease, frailty, and heart failure.
If there is a sign of health deterioration, such as blood pressure rising, the Community Virtual Ward team will get an alert immediately. They will call the patient by phone or video call to talk through any health changes and decide on next steps.
The Virtual Ward is part of an initiative across Norfolk and Waveney involving the ambulance service, hospitals and community healthcare providers.
Investing in local communities
As a staff owned social enterprise, ECCH does not exist to make a profit. Instead it uses any surplus resources to enhance its services and benefit local communities. Good causes which have received funding in the last year include Waveney Jaguars Under 12s Football Team, whose kit was sponsored, and Musical Lifelines who were given funding for free music workshops in Bungay for people with dementia, Parkinson’s or who are at risk of social isolation.
In addition to its 650 staff, ECCH has around 40 volunteers who play an invaluable role supporting its teams to enhance services for patients.
Volunteering
In addition to its 650 staff, ECCH has around 40 volunteers who play an invaluable role supporting its teams to enhance services for patients. Volunteers carry out roles such as providing company and conversation to patients at Beccles Intermediate Care Centre, picking up and delivering grocery essentials for patients recovering from surgery and making weekly telephone calls to chat with a patient to help them with their speech recovery.
Growing ECCH
ECCH has diversified its business in recent years. In 2022 it bought the domiciliary care provider Cavell Healthcare because it felt the two businesses would complement each other and offer new ways to improve patient care.
Since then, Cavell Healthcare has gone from strength to strength, with the award of PCN Framework contracts with Norfolk County Council and a number of national award wins. It is now launching Cavell Choice, a bespoke care package aimed at empowering people to manage their health and maintain their independence through a focus on reablement and personalised care at home.
To learn more about ECCH and how to access its services, visit www.ecch.org
NHS healthcarecontinuing
Some people with long-term complex health needs qualify for free social care arranged and funded solely by the NHS. This is known as NHS continuing healthcare.
Where can NHS continuing healthcare be provided?
NHS continuing healthcare can be provided in a variety of settings outside hospital, such as in your own home or in a care home.
Am I eligible for NHS continuing healthcare?
NHS continuing healthcare is for adults. Children and young people may receive a “continuing care package” if they have needs arising from disability, accident or illness that cannot be met by existing universal or specialist services alone.
Find out more about the children and young people’s continuing care national framework on GOV.UK
You should be fully involved in the assessment process and kept informed, and have your views about your needs and support taken into account. Carers and family members should also be consulted where appropriate.
A decision about eligibility for a full assessment for NHS continuing healthcare should usually be made within 28 days of an initial assessment or request for a full assessment.
If you are not eligible for NHS continuing healthcare, you can be referred to your local council who can discuss with you whether you may be eligible for support from them.
If you still have some health needs then the NHS may pay for part of the package of support. This is sometimes known as a “joint package” of care.
Your eligibility for NHS continuing healthcare depends on your assessed needs, and not on any particular diagnosis or condition.
To be eligible for NHS continuing healthcare, you must be assessed by a team of healthcare professionals (a multidisciplinary team). The team will look at all your care needs and relate them to:
• what help you need
• how complex your needs are
• how intense your needs can be
• how unpredictable they are, including any risks to your health if the right care is not provided at the right time
Your eligibility for NHS continuing healthcare depends on your assessed needs, and not on any particular diagnosis or condition. If your needs change then your eligibility for NHS continuing healthcare may change.
Information and advice
The process involved in NHS continuing healthcare assessments can be complex. An organisation called Beacon gives free independent advice on NHS continuing healthcare.
Visit the Beacon website or call the free helpline on 0345 548 0300.
NHS continuing healthcare assessments
Integrated care boards, known as ICBs (the NHS organisations that commission local health services), must assess you for NHS continuing healthcare if it seems that you may need it.
For most people, there’s an initial checklist assessment, which is used to decide if you need a full assessment. However, if you need care urgently – for example, if you’re terminally ill – your assessment may be fast-tracked.
Being referred for a full assessment does not necessarily mean you’ll be eligible for NHS continuing healthcare. The purpose of the checklist is to enable anyone who might be eligible to have the opportunity for a full assessment.
The professional(s) completing the checklist should record in writing the reasons for their decision, and sign and date it. You should be given a copy of the completed checklist.
For most people, there’s an initial checklist assessment, which is used to decide if you need a full assessment.
Initial assessment for NHS continuing healthcare
The initial checklist assessment can be completed by a nurse, doctor, other healthcare professional or social worker. You should be told that you’re being assessed, and what the assessment involves.
Depending on the outcome of the checklist, you’ll either be told that you do not meet the criteria for a full assessment of NHS continuing healthcare and are therefore not eligible, or you’ll be referred for a full assessment of eligibility.
You can download a blank copy of the NHS continuing healthcare checklist from GOV.UK
Full assessment for NHS continuing healthcare
Full assessments for NHS continuing healthcare are undertaken by a multidisciplinary team (MDT) made up of a minimum of 2 professionals from different healthcare professions. The MDT should usually include both health and social care professionals who are already involved in your care.
You should be informed who is co-ordinating the NHS continuing healthcare assessment.
The team’s assessment will consider your needs under the following headings:
• breathing
• nutrition (food and drink)
• continence
• skin (including wounds and ulcers)
• mobility
• communication
• psychological and emotional needs
• cognition (understanding)
• behaviour
• drug therapies and medicine
If you’re eligible for NHS continuing healthcare, the next stage is to arrange a care and support package that meets your assessed needs.
• altered states of consciousness
• other significant care needs
These needs are given a weighting marked “priority”, “severe”, “high”, “moderate”, “low” or “no needs”.
If you have at least 1 priority need, or severe needs in at least 2 areas, you can usually expect to be eligible for NHS continuing healthcare.
You may also be eligible if you have a severe need in 1 area plus a number of other needs, or a number of high or moderate needs, depending on their nature, intensity, complexity or unpredictability.
In all cases, the overall need, and interactions between needs, will be taken into account, together with evidence from risk assessments, in deciding whether NHS continuing healthcare should be provided.
The assessment should take into account your views and the views of any carers you have. You should be given a copy of the decision documents, along with clear reasons for the decision.
You can download a blank copy of the NHS continuing healthcare decision support tool from GOV.UK
Fast-track assessment for NHS continuing healthcare
If your health is deteriorating quickly and you’re nearing the end of your life, you should be considered for the NHS continuing healthcare fast-track pathway, so that an appropriate care and support package can be put in place as soon as possible – usually within 48 hours.
Care and support planning
If you’re eligible for NHS continuing healthcare, the next stage is to arrange a care and support package that meets your assessed needs.
Depending on your situation, different options could be suitable, including support in your own home and the option of a personal health budget.
If it’s agreed that a care home is the best option for you, there could be more than 1 local care home that’s suitable.
Your ICB should work collaboratively with you and consider your views when agreeing your care and support package and the setting where it will be provided. However, they can also take other factors into account, such as the cost and value for money of different options.
If your needs have changed, the review will also consider whether you’re still eligible for NHS continuing healthcare.
NHS continuing healthcare reviews
If you’re eligible for NHS continuing healthcare, your needs and support package will normally be reviewed within 3 months and thereafter at least annually. This review will consider whether your existing care and support package meets your assessed needs. If your needs have changed, the review will also consider whether you’re still eligible for NHS continuing healthcare.
Refunds for delays in NHS continuing healthcare funding
ICBs will normally make a decision about eligibility for NHS continuing healthcare within 28 days of getting a completed checklist or request for a full assessment, unless there are circumstances beyond its control.
If the ICB decides you’re eligible, but takes longer than 28 days to decide this and the delay is unjustifiable,
they should refund any care costs from the 29th day until the date of their decision.
If you’re not eligible for NHS continuing healthcare
If you’re not eligible for NHS continuing healthcare, but you’re assessed as requiring nursing care in a care home (in other words, a care home that’s registered to provide nursing care) you’ll be eligible for NHS-funded nursing care.
This means that the NHS will pay a contribution towards the cost of your registered nursing care. NHS-funded nursing care is available irrespective of who is funding the rest of the care home fees.
Find out more about NHS continuing healthcare from NHS England.
Frequently asked questions about NHS continuing healthcare
Q I have a local authority support package that works well. I’m now eligible for NHS continuing healthcare – will my support package change?
If you’re concerned about changes to your care package because of a move to NHS continuing healthcare, your ICB should talk to you about ways that it can give you as much choice and control as possible. This could include the use of a personal health budget, with 1 option being a “direct payment for healthcare”.
Q
FAQ’s
Can I refuse an assessment for NHS continuing healthcare? If I refuse, will I be able to get services from my local authority?
Consent is not needed for completion of assessments (CHC Checklists, Decision Support Tools (inclusive of FNC by default) and Fast Track), or collation and sharing of information with:
• Care Teams
• Health and Social Care Staff
But consent is needed to share personal information collected for, and as part of, assessments (Checklist, Decision Support Tool (inclusive of FNC by default) and Fast Track) with third parties, such as family, friends or representatives, at the beginning of the process.
There is a legal limit to the types of services that a Local Authority can provide. If you have any concerns about being assessed for NHS continuing healthcare, the ICB should explore your reasons for this, and try to address your concerns.
If someone lacks the mental capacity to consent to sharing of information with third parties (other than Care Teams or Health and Social Care Staff), the principles of the Mental Capacity Act will apply and a best interests decision may be needed.
Q
My relative is in a care home and has become eligible for NHS continuing healthcare. The ICB says the fees charged by this care home are more than they would usually pay, and has proposed a move to a different care home. I think a move will have a negative effect on my relative. What can we do?
If there’s evidence that a move is likely to have a detrimental effect on your relative’s health or wellbeing, discuss this with the ICB. It will take your concerns into account when considering the most appropriate arrangements.
If the ICB decides to arrange an alternative placement, they should provide a reasonable choice of homes.
Q Is it possible to pay top-up fees for NHS continuing healthcare?
No, it is not possible to top up NHS continuing healthcare packages, like you can with local authority care packages.
The only way that NHS continuing healthcare packages can be topped up privately is if you pay for additional private services on top of the services you’re assessed as needing from the NHS. These private services should be provided by different staff and preferably in a different setting.
Personal budgets and direct payments
You’ll be given a personal budget to spend if your local council decide you’re eligible for help with any social care and support you need. You can request an assessment from the council to establish your needs.
The money in your personal budget can be paid to you, to help you make more decisions about how it’s spent. This is known as a direct payment. What is a personal budget?
Your personal budget is the amount of money your local council will pay towards any social care and support you need.
The amount of money in your personal budget is decided by your local council after a needs assessment to work out:
• what kind of care and support you need
• how much it will cost
• how much you’re able to afford yourself
If you’re a carer, you may be entitled to receive a personal budget after having a carer’s assessment to see what might help make your life easier.
Carers and personal budgets
If you’re a carer, you may be entitled to receive a personal budget after having a carer’s assessment to see what might help make your life easier.
A carer’s assessment is free and anyone over 18 can ask for one.
Choosing how to receive your personal budget
You can ask the council to either:
• manage your personal budget for you
• pay the money to another organisation – such as a care provider
• pay the money directly to you or someone you choose – this is known as a direct payment
You can also choose a combination of these options. For example, the council could arrange some of your care but send you the rest of the money. This is often called a mixed package or “mix and match”.
If the council manages your money
The money in your personal budget will be spent for you by the council. They will arrange all your care and support based on your agreed care plan.
They still need to check you’re happy with the care they’re arranging for you.
If your money is paid to another organisation
The organisation you choose, such as your care provider, will speak to the council and arrange the payments.
Sometimes other organisations charge you extra money to arrange payments from the council.
The benefits of direct payments
Direct payments give you more flexibility over how your care and support is arranged and provided.
For example, you could choose to hire care workers or personal assistants who:
• are always the same people and available when you need them
• speak the same language as you
• have experience working with your care needs
• are a specific person that has been recommended to you
• can help you get to shops or social events
You could also consider having someone else manage your direct payments, for example a friend or family member.
There are many ways you could choose to use the money. It’s your choice as long as you’re spending your personal budget on things that meet your agreed care plan.
Most councils will ask for evidence of how you’ve spent your money every 3 months.
When to consider other options
You may decide direct payments are not helpful if:
• you’re worried about managing money or the people you employ
• you spend a lot of time in hospital
• you would rather the council arranged your care
If you’re not confident about keeping records or managing the people who care for you, your local council should be able to provide support.
You could also consider having someone else manage your direct payments, for example a friend or family member. You’ll need to set up a trust for payments that are managed by someone else.
The Money Advice Service has information about setting up a trust.
How to apply for direct payments
You should be offered direct payments as an option after your needs assessment.
You can also ask your local council’s social services department about direct payments.
How direct payments work
If you choose direct payments, the council will send you the money in your personal budget by either:
• paying it directly into a bank, Post Office, building society or National Savings and Investments account
• sending you a pre-paid card
You can then choose how you spend the money on your own care and support, as long as it matches the care plan you’ve agreed with the council.
Signing a direct payment agreement
The council might ask you to sign a document called a direct payment agreement. This says:
• how the council want you to record your spending –for example, keeping receipts
• your responsibilities as an employer - if you’re paying for a care worker
If you spend direct payments on something that isn’t agreed in your care plan, the council could take the money back or end the direct payments.
If you’re struggling to manage your money
Ask your local council for advice or call the Money Advice Service on 0800 138 7777.
If you want someone else to receive the direct payment
You could speak to the council and agree for the money to be sent to someone who will spend it for you. For example:
• a carer
When choosing an agency, decide what sort of service you’re looking for and the tasks you need help with.
• a friend or family member
• someone else who speaks up for you (an advocate)
You may need to write down how they will spend the money and which decisions they can make for you. This is known as a decision-making agreement.
Employing your own carer or personal assistant
If you decide to hire a carer or personal assistant yourself, it’s important to know the responsibilities you’ll have as an employer.
Although support from the council should be available, you may need to arrange:
• background checks or references
• tax
• National Insurance
• pension contributions
Read more about employing someone to work in your home on GOV.UK.
Disability Rights UK also have more information on getting a personal assistant.
If you don’t want to become an employer
You could choose to hire care workers through an agency instead. This removes the legal obligations of being an employer, but could:
• cost you more money
• remove some of the benefits - such as having the same person provide your care
How to research a care agency
When choosing an agency, decide what sort of service you’re looking for and the tasks you need help with. It’s a good idea to contact more than one agency, as they may offer different types of services.
You can find out about local home care agencies by:
• speaking to your local council’s social services department
• contacting the UK Homecare Association
If you’re eligible for NHS-funded nursing care, the NHS will arrange and fund nursing care provided by registered nurses employed by the care home.
There are also organisations that inspect care agencies to see how well they are doing. The Care Quality Commission (CQC) regulates all health and adult social care in England.
You might see a CQC inspection rating when you search online for care home agencies. Their 4 ratings are:
• Outstanding
• Good
• Requires improvement
• Inadequate
You could also search for care home agencies on the CQC website to see their full reports.
Telephone helplines
If you would like support to help you manage your personal budget or direct payments, speak to your council or call:
• the Disability Rights UK personal budgets helpline on 0330 995 0404
• the Age UK advice line on 0800 055 6112 (for older people)
NHS-funded nursing care
NHS-funded nursing care is when the NHS pays for the nursing care component of nursing home fees. The NHS pays a flat rate directly to the care home towards the cost of this nursing care.
Who is eligible for NHS-funded nursing care?
You may be eligible for NHS-funded nursing care if:
• you’re not eligible for NHS continuing healthcare but have been assessed as needing care from a registered nurse
• you live in a nursing home
How will my needs be assessed?
You should be assessed for NHS continuing healthcare before a decision is made about whether you are eligible for NHS-funded nursing care. Most people don’t need a separate assessment for NHS-funded nursing care. However, if you do need an assessment or you haven’t already had one, your integrated care board (ICB) can arrange an assessment for you.
Outcome of the assessment
If you’re eligible for NHS-funded nursing care, the NHS will arrange and fund nursing care provided
How to complain about personal budgets
It’s worth speaking to your council’s social services before making an official complaint to see if they can help.
You still have to the right to complain if you:
• have been told you’re not eligible to receive money towards your care and support
• don’t agree with the amount of money in your personal budget
You could either:
• speak to your social worker about being re-assessed
• call your local council social services and request a complaints form
Your council should also have a formal complaints procedure on its website.
If you’re not happy with the council’s response
Contact your Local Government Ombudsman. They investigate all adult social care complaints.
• Age UK have a detailed fact sheet on personal budgets and direct payments in social care
• The Money Advice Service has a guide to direct payments
by registered nurses employed by the care home. Services provided by a registered nurse can include planning, supervising and monitoring nursing and healthcare tasks, as well as direct nursing care.
If you’re not eligible for NHS-funded nursing care and you don’t agree with the decision about your eligibility, ask your ICB to review the decision.
The cost of NHS-funded nursing care
NHS-funded nursing care is paid at the same rate across England. In May 2022, the rate was set at £209.19 a week (standard rate) and will be backdated to 1 April 2022.
If you moved into a care home before 1 October 2007, and you were on the previous high band, NHS-funded nursing care is paid at a higher rate. In May 2022, the higher rate was set at £287.78 a week and will be backdated to 1 April 2022. You’re entitled to continue on this rate unless:
• you no longer have nursing needs
• you no longer live in a care home that provides nursing
• your nursing needs have reduced and you’re no longer eligible for the high band, when you would change to the standard rate of £209.19 a week, or
• you become entitled to NHS continuing healthcare instead
United Against Dementia
Alzheimer’s Society wants everyone affected by dementia to know that whoever you are, whatever you are going through, you can turn to them for support, help and advice.
Dementia Connect
Dementia Connect, from Alzheimer’s Society, is a personalised support service for anyone with dementia, their carers, families and friends.
We understand that dementia affects everyone differently. So whether you, a loved one, a friend or neighbour needs dementia support, we’re here for you.
We’ll connect you to a whole range of dementia support, by phone, online and face to face. Our highlytrained dementia advisers can help people come to terms with their diagnosis and navigate the complicated maze of health and social care services.
It’s free, easy to access, and offers you the support you need. Whether it’s advice on legal documents, help understanding dementia or someone to talk to when things get tough, we’re here to help.
We can keep in touch with you to make sure you keep getting the support you need. And because we know it’s never easy to tell your story, you’ll only ever need to tell it to us once.
Phone support
Our dementia advisers are available to talk to on the phone seven days a week. They will listen and give you the support and advice you need, including connecting you to help in your local area and online.
We can offer you the option of regular calls so we can keep in touch, to find out how you are and help when things change.
Support line opening hours*
Monday – Wednesday: 9:00am – 8:00pm
Thursday – Friday: 9:00am – 5.00pm
Saturday – Sunday: 10:00am – 4:00pm
*Calls charged at standard local rate.
Online support
Dementia Connect online support is available round the clock through our website. Answer a few simple questions about yourself, or someone you know, to get personalised, relevant information and advice. From guides on dementia to advice on making your home dementia friendly, get the information about the things that matter to you.
‘The Dementia Adviser was lovely and full of information. Without Alzheimer’s Society and the Dementia Adviser we’d have nothing. She is a major networker and knows everything and everyone local. I feel in charge and empowered.’ Katherine, living with dementia
If you need further support, you can request a call from our dementia advisers, who should be in touch with you within a week. Our online support includes Talking Point, our online community where you can connect with others in a similar situation, and our Dementia Directory where you can search for local services.
Face to face support
Where possible, our local dementia support workers can meet you in person to offer further support, advice and information. They will also connect you to other face to face services in your area, including local support groups.
Notes: Dementia Connect phone and online support is available wherever you live. As the service is new, some parts of the service may not be available in your area just yet.
How can you support Alzheimer’s Society?
1) Fundraising and events
From Memory Walk and Cupcake Day to challenging yourself in marathons and treks. There’s plenty of ways you can get involved to help raise money. Search ‘get involved’ on alzheimers.org.uk
2) Donate
Our dementia support services are made possible thanks to generous donations from the public. However, you don’t have to join an event or seek sponsorship to do this. Simply head to alzheimers.org.uk and donate what you can to unite against dementia.
3) Become a campaigner
At Alzheimer’s Society, we work to amplify the voices of people affected by dementia, to create a world where they get the support and care they deserve. We can’t do this alone. Whether you have dementia, you have a personal connection to dementia or you want to stand with those who do. Together we can make a difference, register to become a campaigner at alzheimers.org.uk
“Dementia can and does affect so many families, including mine.
“My father was diagnosed with vascular dementia and Alzheimer’s disease in the summer of 2012. He passed away in September 2018.
“I wanted to do something to help raise awareness of the condition and tackle the stigma associated, so I reached out to Alzheimer’s Society to see if I could help. It gives me an enormous sense of pride being an Ambassador for Alzheimer’s Society and I feel like I’m making a difference.
“I have also personally enjoyed taking part in fundraising activities like Cupcake Day and Memory Walk, as there is a real sense of togetherness for a good cause.
“For anyone wanting to know how they can help, I’d say get involved. Whatever you can give, be that your time, voice or money, you’ll know you’ve made a difference to the lives of people affected by dementia.”
Meera
Syal, actor and Alzheimer’s Society Ambassador
Get in touch
If you are affected by dementia in and would like information and support, contact us:
T: 0333 150 3456
W: alzheimers.org.uk/dementiaconnect
E: dementia.connect@alzheimers.org.uk
The Care Quality Commission is here to make sure health and adult social care services including hospitals, home and residential care as well as GPs in England provide people with safe, effective, high-quality care. We publish independent inspection reports and ratings about services – information you can use when you’re choosing care for yourself, or a loved one.
You can use our website to search for services you might be interested in by geographical area, or by specialism. For example, a care home that might offer specialist care for someone who has dementia.
We also welcome your feedback on the care you have received – good or bad. We use this information to help inform our inspections and can alert authorities including local social services, if there are safeguarding concerns about care being provided.
You can visit our website at www.cqc.org.uk to find our inspection reports, or share an experience of care. You can also call us to share an experience of care on 03000 61 61 61.
Here are some tips to help you choose your care.
1 The Care Quality Commission (CQC) registers all care homes and home care agencies. You can find out which ones support specific groups of people, such as people with a learning disability or those living with dementia.
2 CQC’s Chief Inspector for Adult Social Care, always uses ‘The Mum Test’: is a care home safe, caring, effective, responsive to people’s needs and well-led? In other words, is it good enough for my Mum (or anyone else I love and care for)?
Look for care homes and home care agencies where the staff involve people who use services and their families and carers, and treat individuals with compassion, kindness, dignity and respect
Whether you are being cared for in your own home or in a residential setting, the staff looking after you need to be skilled, kind and supportive They should also be capable and confident in dealing with your particular needs. You should always feel that their support is helping you to live the life you want to.
5 A care home will be a home for you or your loved one. Residents should be treated as individuals with their likes and dislikes taken into account. Think about whether a home is close enough to family, friends, and community facilities
Look at how well-led and managed a home is. What does it have in place to ensure that it delivers high quality care? Does it promote
If you or a loved one needs help with day-today care, you can contact your local council’s social services department. They will ‘make an assessment of your needs’ and depending on circumstances, may be able to help you access financial help. For more advice visit Age UK’s website www.ageuk.org.uk/home-and-care.
Your local social services department should be able to provide details of approved agencies.
Safeguarding adults who receive social care is everybody’s business. If you are concerned about the safety of a loved one receiving care, contact the service provider in the first instance. You can also contact social services at your local council. If you feel a crime has been committed, contact the police. You can share your safeguarding concerns with us on our website or contact our National Customer Services on 03000 616161.
The Care Quality Commission is here to make sure health and adult social care services including hospitals, home and residential care as well as GPs in England provide people with safe, effective, high-quality care. We publish independent inspection reports and ratings about services – information you can use when you’re choosing care for yourself, or a loved one.
You can use our website to search for services you might be interested in by geographical area, or by specialism. For example, a care home that might offer specialist care for someone who has dementia. We also welcome your feedback on the care you have received – good or bad. We use this information to help inform our inspections and can alert authorities including local social services, if there are safeguarding concerns about care being provided.
You can visit our website at www.cqc.org.uk to find our inspection reports, or share an experience of care. You can also call us to share an experience of care on 03000 61 61 61. Here are some tips to help you choose your care.
1 If you are new to an area you can find details of local GP services such as doctors’ practices, out-of-hours services and walkin centres in our online directory of care services www.cqc.org.uk/content/doctorsgps
2 You can search any of these services by the name of the service, a place name or your postcode at www.cqc.org.uk
3
After an inspection, CQC publishes its findings in a report on its website. You can use these reports to check and compare services in your area
There are already over 1,000 reports about GP practices published on the CQC website.
5 CQC launched its new-style inspection reports for GPs – looking at the five key areas SAFE, EFFECTIVE, CARING, RESPONSIVE and WELLLED – you can use the reports to compare local GPs and choose services.
You can also use these new style inspection reports to find out more about local services and choose the one that is best for your needs. 6
CQC rates all GPs to help people make choices about where they get treatment. This will be on a four-point scale:
CQC will also look at how specific population groups are treated and give a rating. For instance how well they serve: Mothers, children and young people, vulnerable older people (over 75s) and people with long-term conditions People will be able to choose a GP service that rates highly on the areas that matter to them.
We welcome your feedback (good and bad) on the services you, or a loved one, receives from your GP. You can share information with us online at http://www.cqc.org.uk/share-yourexperience-finder or call us on 03000 61 61 61.
03000 616161 • Web: www.cqc.org.uk
Harbour Manor Care Home in Felixstowe, Suffolk, provides 24-hour residential, respite and dementia care, within a newly built, stateof-the-art home, where residents stay for one inclusive fee. Harbour Manor is part of Danforth Care Homes and benefits from the support of an experienced management team.
Exceptional Care in a Beautiful Location
Harbour Manor Care Home is a purpose-built, five-star luxury accommodation, with exceptional finishing touches. Harbour Manor has luxurious social spaces, attractive décor and stunning landscaped gardens and is situated in Suffolk.
Enjoying Life to the Full
Harbour Manor has been designed to give all residents a fantastic lifestyle in a beautiful, fun and safe environment. The spacious rooms and suites all have en-suite wet rooms, smart TVs and mini-fridges. Each room can have their own land line and direct phone number. You can enjoy wonderful sensory gardens, a hair & beauty salon, cinema, library, dining room, lounge, garden rooms and a sweet shop.
First Class Living For One Inclusive Fee
All residents can enjoy amazing hospitality for one inclusive fee. Hair styling, pampering in our beauty salon, inviting relatives to enjoy restaurant-quality food, cinema, library, daily activities, trips, newspapers and so much more. There are no extra charges so you can relax and focus on the most important thing which is enjoying yourself.
