The Echo Volume 11, Issue 9, May 2013

Page 1

ASCC Parent Education Program Monday May 13, 2013 6:30 pm Sarah Gewanter, MSW, LCSW

The Echo Keeping you informed!

Berard Auditory Integration System

May 2013

Volume 11, Issue 9

IN THIS ISSUE

Study: Eating Troubles Putting Kids With Autism At Risk By Shaun Heasley, February 2013, Disability Scoop LLC.

Kids with autism are five times more likely than other children to experience food-related problems ranging from mealtime tantrums to extreme pickiness, issues with potentially long-term health consequences, researchers say. Though many parents have long indicated concerns about the eating habits of their children with autism, a new analysis of existing research on the issue is believed to offer the first comprehensive look. In the review of 17 studies, researchers at Emory University and the Marcus Autism Center found that kids with the developmental disorder face serious risks of feeding and nutrition problems. In addition to being pickier eaters, kids with autism often have mealtime rituals and other extreme behaviors surrounding feeding, the study found. What’s more, they have lower intake of calcium and protein and more overall nutritional deficits than other children, the researchers report this month in the Journal of Autism and Developmental Disorders. “The results of this study have broad implications for children with autism,” said William Sharp, an assistant professor at Emory who led the study. “It not only highlights the importance of assessing mealtime concerns as part of routine health care screenings, but also suggests the need for greater focus on diet and nutrition in the autism community.” The nutrition deficits and feeding problems found may be putting children with autism at risk for long-term medical concerns like obesity and cardiovascular disease, researchers said. Sharp and his colleagues also warn that the foodrelated problems uncovered in their study may be exacerbated by efforts to eliminate some foods from children’s diets in an attempt to treat autism. “Our findings have immediate and important implications for the work of practitioners serving children and families with autism, who in the absence of such information, may struggle to address parents’ concerns, or, worse, may fill the void with alternative treatments that may be ill-conceived or even harmful to children and families,” Sharp said.

ASCC Programs & Events Find information on upcoming programs and events in the enclosed program and calendar pages. See Pages 2/3

New Workshop – Meet the Advocate See Page 2

Autism Awareness Golf Tournament See Pages 5-6

Thank you donors and volunteers! See Page 7

ASCC Membership Are you interested in becoming a member of the ASCC ? Learn how you can support the ASCC and stay connected with our organization.

See Page 8


The Echo I Issue 9, May 2013

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ASCC Programs-Opportunities for Parents and Children Parent Education Program Please join us on Monday, May 13, 2013, 6:30 pm at the Partnership for Children Resource Center 351 Wagoner Drive, Multipurpose Room 343 for a presentation titled

“Berard Auditory Integration System” by

Sarah Gewanter, MSW, LCSW Free respite care will be available on site through Community Based Developmental Services. Please contact Cynthia Billops at 488-5820 or 488-4584 to reserve your space at least 24 hours in advance.

ASCC Support Groups Support Groups provide an opportunity to share, learn, and connect. Parents, caregivers, guardians, and professionals are welcome to participate in all of our support groups. Please check the calendar on page three for meeting dates/times/locations. The HFA/Asperger’s Support Group meets every second Monday of the month, Sep—Nov, Jan—May, immediately preceding the Parent Education Program. This group meets in Room 414 of the PFC Resource Center. Focus: Families of children, adolescents, and adults diagnosed with HFA or Asperger’s. Childcare will not be provided.

The Autism Lunch Club (ALC) Support Group meets every second Tuesday of the month at various Fayetteville restaurants. Focus: Families of adolescents and adults with ASD. Childcare will not be provided. The Autism Breakfast Club (ABC) Support Group meets every first and third Wednesday of the month at the PFC Resource Center, Room 414. Focus: Families of children with ASD up to age 12. Childcare will be provided. The Preschool Support Group (The High Fives) meets weekly on Thursdays at the PFC Resource Center, Room 343. Focus: Families of young children with ASD ages 1-5 years. Childcare will be provided.

Ben Lucero Scholarship Fund The Ben Lucero Memorial Scholarship Fund is pleased to be able to award 12 full scholarships to attend Camp Sunshine this summer as well as purchase some additional camp supplies. We thank everyone for their continued support by donations, sponsorship and volunteer time each year. We especially thank everyone for helping to remember and celebrate our son Ben's life as well as give other autistic individuals the opportunity to experience the joys of Camp Sunshine. Thank you again, Bob, Ann and Josh Lucero

ASCC Board of Directors The nomination and election of the Board of Directors will be held at the meeting of the general membership on May 13, 2013.

While every group focuses on a specific age range, parents of children of all ages are welcome to attend all support groups!

iPads for Autism Lending Project

Workshops Please call the ASCC office at (910) 826-3004/3005 to register for all workshops. The Newly Diagnosed Workshop is led by Amy Perry, ASNC Parent Advocate, and is held every first Thursday of the month from 9:30 am—12:00 pm. (even calendar months) The Meet the Advocate Workshop is led by Amy Perry, ASNC Parent Advocate, and is held ever first Thursday of the month from 9:30 am-12:00 pm. (odd calendar months) The Individualized Education Plan Workshop, led by Amy Perry, provides an opportunity for parents and providers to learn all about IEPs. It will be offered quarterly. The Little Miracles Child Development Services Workshop will be offered every fourth Wednesday of the month by Board Certified Behavioral Analysts. The workshops will cover different parenting topics every month.

Who?

For children, adolescents, and adults diagnosed with autism spectrum disorder

What?

FREE iPads for Autism Lending Project

When? Every Monday afternoon from 1-4 pm Every Friday from 9:00 am – 12:00 pm Where?

Autism Society of Cumberland County 351 Wagoner Drive, Suite 410 Fayetteville, NC

Cape Beard– Follicles of Freedom 2nd Annual Pig Pickin’ Saturday, May 11, 2013 2:00 pm– 10:00 pm Where: The Rock Shop 128 S. King Street, Fayetteville NC 29301 Proceeds to support the Autism Society of Cumberland County


The Echo I Issue 9, May 2013

3

May 2013 Sun

Mon

Tue

Wed

1 9:30-11:00 am

ABC Support Group, PFCRC, RM 414

Thu

2 9:30-11 am Preschool Support Group, PFCRC RM 343 9:30 am Meet the Advocate Workshop

Fri

3

Sat

4

9:00-12:00 pm iPad Lending Project PFCRC RM 414

PFCRC RM 414

5

6

7

8

1:00-4:00 pm iPad Lending Project

9:30-11am Preschool Support Group, PFCRC RM 414

PFCRC RM 414

12

13

1:00-4:00 pm

iPad Lending Project 5:45-6:30pm HFA Support Group, PFCRC, RM 414 6:30-8pm Parent Education Program, PFCRCC, Room 343

19

20

9

14 11:30-am Autism Lunch Club (ALC) Support Group at Chili’s

21

15 9:30-11am ABC Support Group, PFCRC, RM 414

PFCRC RM 414

9:30-11am Preschool Support Group, PFCRC RM 414

11

9:00-12:00 pm IPad Lending Project

Cape Beard Follicles of Freedom- Pig Pickin’– 2-10 pm (Children’s Activities 2-6 pm)

PFCRC RM 414

17 9:00-12:00 pm IPad Lending Project

22

23

24

9:30-11am Preschool Support Group, PFCRC

9:00-12:00 pm IPad Lending Project

RM 414

PFCRC RM 414

30

31

9:30-11am Preschool Support Group, PFCRC 414

9:00-12:00 pm IPad Lending Project

RM 414

26

27

28

Memorial Day

11 am-1 pm ASCC

Office Closed

Board of Directors Meeting PFCRC, Room 414

18

PFCRC RM 414

10-11am Parenting Children with Autism Workshop, PFCRC

1:00-4:00 pm iPad Lending Project

16

10

29

PFCRC RM 414

25


The Echo I Issue 9, May 2013

4

June 2013 Sun 2

Mon

Tue

3 1:00-4:00 pm

4

5 9:30-11am

iPad Lending Project RM 414

9

16

23

Wed

Thu 6 Newly Diagnosed

ABC

Workshop, 9:30am

Support Group

Sat

7 9:00-12:00 pm

1 8 ASCC Golf Tourna-

PFCRC RM 414

Preschool Support Group, 9:30-11am

IPad Lending Project PFCRC RM 414

ment at King’s Grant 8:00 am

12

13 Preschool Support

14 9:00-12:00 pm

15

Group, 9:30-11am

IPad Lending Project PFCRC RM 414

10 1:00-4:00 pm

11 Autism Lunch

iPad Lending Project RM 414

Club (ALC) Support Group 11:30am Logans

17 1:00-4:00 pm

18 Rhythm & Rhyme 19 9:30-11am

iPad Lending Project RM 414

Sensory Story Time Regional Public Library, 11:00 am

ABC Support Group,

24 Camp Sun-

25

26 10-11am

27Preschool Support

Parenting Children with Autism Workshop

Group, 9:30-11am

shine begins!

Fri

PFCRC RM 414

PFCRC RM 414

20 Preschool Support

21 9:00-12:00 pm

Group, 9:30-11am

IPad Lending Project PFCRC RM 414

PFCRC RM 414

22

28

29

July 2013 Sun

Mon 30 1

Tue

Wed

2

3 9:30-11am

Thu

4 Fourth of July

ABC

Office Closed

Support Group

7

8

14

15

21

22

28

28

29

Sun

9 Autism Lunch Club 10

11 Preschool Support

(ALC) Support Group 11:30am– Sammio’s

Group, 9:30-11am

Mon

11

23

2410-11am

25 Preschool Support

26 Camp Sun-

Parenting Children with Autism Workshop

Group, 9:30-11am

shine Ends

31

August 2013 Tue

Wed

Thu

31 1 Newly Diagnosed

Workshop, 9:30am Preschool Support

ABC

(ALC) Support Group 11:30am– Smokey Bones

Support Group PFCRC

121-4 pm iPad

13

14

iPad Lending Project

27

PFCRC

ing Project PFCRC RM 414

261:00-4:00 pm

20

Group, 9:30-11am PFCRC RM 414

20

iPad Lending Project

25

19

18 Preschool Support

5 1-4 pm iPad Lend- 6 Autism Lunch Club 7 9:30-11am

191:00-4:00 pm

13

ABC Support Group,

27

Fri

2 9:00-12:00 pm

3

IPad Lending Project

8 Preschool Support

9 9:00-12:00 pm

Group, 9:30-11am

IPad Lending Project

15 Preschool Support

16 9:00-12:00 pm

Group, 9:30-11am

IPad Lending Project

10

RM 414

Lending Project

18

12

17 9:30-11am

Lending Project

4

6

Sensory Story Time Regional Public Library, 11:00 am

30

Sat

5

16Rhythm & Rhyme

30

291-4 pm iPad

Fri

219:30-11am

22 Preschool Support

23 9:00-12:00 pm

Support Group

Group, 9:30-11am

IPad Lending Project

2810-11am

29

30 9:00-12:00 pm

ABC

Parenting Children with Autism Workshop

IPad Lending Project

17 24 31

Sat


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The Echo I Issue 9, May 2013

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Rhythm and Rhyme Sensory Story Time The North Regional Library will offer a Rhythm and Rhyme Sensory Story Time for exceptional children and their families on June 18 and July 16 at 11:00 am. For more information about this event, please call Susan Weiler at 910-822-1998, ext. 1439.

From the Desk of the Director‌ Dear Friends and Families, This is the last issue of The Echo newsletter for this fiscal year. All support groups will continue to meet as listed in the calendar on page 3-4. Please visit our website at www.autismcc.org, or visit our Facebook page at www.facebook.com/asccnc to stay informed of the latest information about our organization and upcoming events/meetings. Please expect the next Echo newsletter in your mailbox during the first week of September 2013. We wish you all a safe and wonderful summer! Sincerely, Sylvia Adamczyk

THANK YOU TO OUR DONORS! We are grateful for the following donors who have supported the ASCC with monetary contributions during the months of January-March 2013: St. Elizabeth Seton Catholic Church

Sts. Constantine & Helen Greek

Mr. & Mrs. Hank Finch

Mr. & Mrs. Lucero

Shane Johnson

Orthodox Church

Tana Oliver

Jacqueline E. Pechmann

Mr. & Mrs. George Armstrong

Leigh Hall

Charmette Ruth Terrell

Jo Anne Lowder

Mr. & Mrs. Tildon Downing

Joyce Bear

Stedman Baptist Church

Mr. & Ms. James Cammack

Cape Fear Valley Medical Center

April Kumm

West & West Trucking & Service

Dr. & Mrs. Joel Hedgecoe

Mr. & Mrs. David Gillum

Natalie Bell

Coastal Family Services, LLC

Sherry Summers

Grace Roman

Mr. & Mrs. Payton

Knights of Columbus

Eric Williams

Mr. & Mrs. Greg Kalevas

Ladies of Philptochos Adelphotis Society

Velma Nelson

Jenny Washington

Karen Estep

THANK YOU TO OUR VOLUNTEERS! We treasure our volunteers. Your efforts and your willingness to make a difference in the services we provide, make the ASCC shine. You are truly amazing and we are thankful for your continued support. Thank you for your volunteer support during the months of January-March 2013. Cynthia Billops

Sandy Riopel

Apple Boyce

Gwendolyn T. Scott

Anna Finch

Sara Gage

Patricia Boyd

Nancy Childress

Chris Leacock

Jamie Scruggins

Cheryl Merritt

Jenna Estep

Suzanna Fletcher

Katelyn Soja

Misty Surles

Julie Gerard

Warren Aronson

Kimberly Yard

Sara Endres

Julie Aul

Ann Palmer

Adrienne Roach

Amy Perry

Jenna Estep

Brandy Mello

Maureen Morrel

Little Miracles Staff

Colleen Quinn

Destiny Sandoval

Adam Jackson

Debbie Gillum

Mary Potter

Last, but certainly not least, we would like to thank you, our friends, families, and professionals who faithfully support us by participating in the many fundraising events held in our city in support of our organization. As a non-profit organization, we not only depend on grant funding that we must apply for every fiscal year, we also greatly depend on donations and fundraising events to sustain our programs. We are thrilled that you continue to support all of our efforts. Thank you!

...and then‌


The Echo

May 2013

Volume 11, Issue 9

351 Wagoner Drive, Suite 410 Fayetteville, NC 28303 Tel: 910-826-3004/3005 Fax: 910-868-5881 E-mail: autismcc@ccpfc.org www.autismcc.org

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Winner of the Autism Society of North Carolina affiliate of the Year Award—1996, 2002, & 2003

“Supporting Individuals Within The Autism Spectrum”

The Autism Society of Cumberland County is an affiliate of the Autism Society of North Carolina.

Membership & Donations Please make checks payable to: Autism Society of Cumberland County

Mission Statement: The Autism Society of Cumberland County is committed to providing support and promoting opportunities which enhance the lives of individuals within the autism spectrum and their families. Vision Statement: The Autism Society of Cumberland County strives to create a community where people within the autism spectrum and their families receive respect, services, and supports based on individual differences, needs, and preferences. Disclaimer: The Autism Society of Cumberland County does not take any position regarding studies of ASD, nor endorse any particular form of treatment, intervention, or therapy. This newsletter allows us to pass along current information in the field of ASD to our families and organization members.

351 Wagoner Drive, Suite 410 Fayetteville, NC 28303 Name: Parent/Caregiver

Professional

Sibling

Individual with ASD

Address:

A great way to help support our program is to become a member. As a member of the ASCC, you enjoy voting rights during membership meetings, you are eligible for election to the Board of Directors, and you receive priority for conference scholarships. Membership is effective for one year. Please remember the ASCC with your tax-deductible charitable contribution. Thank you!

Annual Membership ($10.00)

Telephone:

Donation $_________

Email:

FY 2012/2013 Board of Directors & Staff Board of Directors:

Staff:

Anna Finch President

Sylvia Adamczyk Director of Programs and Outreach

Vacancy Vice President Gwen Scott Treasurer

Funded In Part By:

Alvita Blue Program and Outreach Assistant

Brandy Mello Secretary Cynthia Billops Chris Leacock Dr. Suzanna Fletcher

Editor: Sylvia Adamczyk

Cumberland Community Foundation


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