TE AWAMUTU NEWS | 1
THURSDAY SEPTEMBER 17, 2020
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SEPTEMBER 17, 2020
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Brent’s life in lockdown Brent Walker lives in a new three-bedroomed house he and his brother own in Kihikihi. The 26-year-old, pictured here by award winning photographer Alan Gibson, has spinal muscular atrophy, type 2. He is part of a wider group with health conditions trying to get access to treatment not publicly available in New Zealand – but which those with health conditions have access to in other countries. There are treatments available in other countries for his condition – one new treatment includes a spinal injection every four months which helps grow muscle back. It is hoped the United States will soon approve a liquid medicine which can be taken daily. Brent was one of two dozen New Zealanders who shared their story about life during lockdown for a book which will be launched in Te Papa, Wellington, today. Life in a Pandemic has been published by Life Unlimited Charitable Trust and edited by the trust’s Cambridge-based communications manager Mary Anne Gill who undertook many of the interviews, including Brent’s. Three of the 24 subjects were non-verbal so carers were able to share how they coped in Lockdown. Today the News brings you Brent’s story on Page 6.
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