Volunteer Voice newsletter Autumn 2012

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VolunteerVoice A newsletter for Cancer Council NSW volunteers

Autumn Edition March 2012

Cancer Council’s cuppas tea best

L-R: Luke Alexander, Media Manager, Andrew Penman, Cancer Council NSW CEO, and Sally-Anne Prado, Cultural Diversity Manager.

Australia’s Biggest Morning Tea has won the top prize at 2011’s National Multicultural Marketing Awards for its success in engaging ethnic communities. Cancer Council NSW commissioned marketing company LOUD Multicultural to develop a communications plan to engage Culturally and Linguistically Diverse (CALD) communities in NSW. The aim was to invite CALD communities to participate in Australia’s Biggest Morning Tea, and thus expand the audience. The Cancer Council NSW fundraising event was commended for being more accessible to ethnic communities by broadening the definition of the ‘Morning Tea’ from English breakfast to include chai, lassi, Turkish coffee and green tea. Minister for Citizenship and Communities, Victor Dominello MP

said, “This strategy helped our ethnic communities find a way to make the Morning Tea their own, and promote these vital cancer awareness messages to sometimes hard to reach members of the community”.

The Chair of the Community Relations Commission, Stepan Kerkyasharian, observed the simple message of the winning project was that all communities are in the fight against cancer together. “This is a great exercise in inclusion because people of all backgrounds are victims of cancer,” Mr Kerkyasharian said. As a result of this campaign, Cancer Council NSW exceeded its fundraising target of $4.2 million for 2011. The central mission of Cancer Council NSW, and the ‘army’ of volunteers who help put the organisation’s plans into operation, is to defeat cancer. Reaching out, and being reached back to, from a much broader range of communities across New South Wales, ensures that Australia’s Biggest Morning Tea contributes more significantly every year to achieving that mission’s aim.

www.cancercouncil.com.au | Volunteer Hotline: (02) 9334 1773

You have to be there! Australia’s Biggest Morning Tea (ABMT) is one of the great success stories of charitable fundraising in this country. Started in 1994, the annual event – actually, cascade of events, as each morning tea is a unique event in itself (you have to be there!) – has raised millions of dollars, contributing to Cancer Council NSW work in research, education, prevention and support for cancer sufferers. The enthusiasm and dedication of volunteers, who organise and run individual morning teas, sees the event grow bigger, year in, year out. And more personal, which might seem a contradiction, but as with so much else that is true about volunteering, it’s all in the people. It’s an art to make a great cup of tea. It’s the spirit of volunteers that makes a great ABMT. In 2012 Australia’s Biggest Morning Tea is officially May 24, but you can host one right throughout May.

Editorial Team: Michael McGennan and Lucy Mowat. Feedback and contributions to volunteervoice@nswcc.org.au


VolunteerVoice | March2012

Update

from Volunteer Development Advisor, Marion Carroll

In late November, I attended the three-day National Conference on Volunteering. The theme of this conference was ‘Inspire, challenge, influence’.

Partnerships and Communications Division, United Nations Volunteers, and Dr Ram A. Canaan, Professor and Senior Associate Dean, University of Pennsylvania.

The jam-packed conference featured local, national and international speakers.

However, most relevant to me was the release of the National Volunteering Strategy.

Highlights included Keynote Speakers, Ms Raelene Boyle oam, Ms Donna Keher, Chief of the

Greater use of information technology can enhance volunteer involvement. The scope for virtual volunteers is exciting

The National Volunteering Strategy sets out the Federal Government vision for volunteering in Australia over the next ten years. The volunteering landscape is changing as a result of wider social, economic and technological change. This is very challenging for organisations like Cancer Council NSW. The six key areas outlined in the strategy are all relevant to the work of Cancer Council NSW, but of particular importance are responding to key trends in volunteering, and harnessing technology.

Strategic Priorities Cancer Council NSW is a large organisation doing many things and involving many people focused on one major mission – to defeat cancer. It is ‘only’ one mission, but because the task is so challenging, and the physical, emotional and intellectual demands on everyone joined in the mission can become overwhelming, and occasionally confusing, we have come up with statements of five Strategic Priorities for Cancer Council NSW. Touchstone credos which define the core priorities that drive Cancer Council NSW. Statements to refresh your understanding of just why we are here, what we are doing, and how we will not stop doing it until cancer is defeated.

Strategic Priority 1 To drive major advances in research ensuring no cancer is ignored.

To learn more, visit www.cancercouncil.com.au and read a copy of Strategic Directions 2011-2014 and Annual Report 2010/2011. 2

It is true that more people are volunteering than ever before, however they are volunteering for shorter periods of time. Today’s volunteers want roles that are flexible, or require shorter hours or a short-term commitment. People are increasingly ‘time poor’, and want their volunteering hours to be worthwhile and meaningful. Greater use of information technology can enhance volunteer involvement. The scope for virtual volunteers is exciting. Activities include translating documents, research, web design, writing, copy editing, database design, etc. Cancer Council NSW already uses virtual volunteers for the production of this publication. Printed editions began as mute but information-filled electronic ‘bips and bleeps’ – in the e-newsletter version they still are! Filled also, as is all volunteering, with very human thinking, commitment and enthusiasm.

Volunteers is workers now! Bad English caught your eye? Good. From 1 January 2012 workers Australia-wide will be covered by uniform health and safety standards. Cancer Council NSW has long practised managing volunteers exactly as we do paid staff. We’ve all been ‘workers’ here for a long time. Common sense on the job, consideration of others working alongside you, knowing who to inform if something looks dangerous in the place you work, or seems faulty with tools or equipment you use, all these are part of mutually mindful work health and safety.


VolunteerVoice | March2012

Planning for positive change On 7 December 2011, volunteers joined staff at Cancer Council NSW’s first ‘Yarn Up’, to generate conversation and suggestions for our first Reconciliation Action Plan (RAP). The plan, to be released in May 2012, will provide strategies to actively build positive relationships with Aboriginal people and Cancer Council’s programs. Aboriginal Australians are disproportionately affected by cancer compared to non-Aboriginal people. Across all types of cancer, Aboriginal people are 60 percent more likely to die from their cancer, and for some cancers the mortality rate is three times higher than for other Australians. Cancer Council recognises the importance of reducing this life expectancy gap to achieving its mission of defeating cancer in the community. In 2009/10, Cancer Council released a publication titled Aboriginal Cancer Journeys: Our stories of kinship, hope and survival, containing stories from Aboriginal people around NSW. The RAP will be an important next step for moving towards Reconciliation. A RAP centres around fostering relationships with the Aboriginal community, respecting cultural differences, and providing opportunities for participation and engagement for Aboriginal people. The plan will be designed to be action-focused, with realistic and achievable aims. It will involve a large element of volunteer participation, something Cancer Council will incorporate from the ground up, and annually review, in our development of the RAP.

Cancer Council to contribute creative ideas to developing the plan. The 25 participants at the first ‘Yarn Up’ believed that Cancer Council should be creating positive, mutually respectful relationships with Aboriginal people, having a presence at Aboriginal events, and ensuring that everyone in the organisation partakes in cultural awareness training. It was also suggested that in order to encourage Aboriginal participation, Cancer Council must be a culturally safe workplace for Aboriginal people, so that they will feel comfortable taking up opportunities for employment and volunteering here, as well as feeling welcome at Cancer Council events.

Aboriginal Patterns of Cancer Care (APOCC) Project Cancer Council NSW is investigating cancer experiences of Aboriginal people in NSW to understand the current gaps in cancer treatment and diagnosis.

If you have any suggestions about how volunteers in your local area could better engage with the Aboriginal community, start a conversation with others from your regional office. Yarn Up! Article written by Lucy Mowat.

In many Aboriginal communities, there is limited understanding of cancer causes and treatments. The RAP will work to address this knowledge gap and to empower Cancer Council staff and volunteers with the appropriate cultural knowledge to connect positively with Aboriginal communities. The collaborative approach of a ‘Yarn Up’ is inspired by the traditional Aboriginal style of decision-making through discussion, and aims to allow all members of 3


VolunteerVoice | March2012

Update

from the CEO, Dr Andrew Penman By making a difference in how we reach out and connect we could save almost 6,000 Australian men per year dying of cancer. That’s around a quarter of all cancer deaths in men! Putting it into perspective; one in two men will be diagnosed with cancer in their lifetime.

We are constantly looking at ways to tackle men’s health issues in relation to cancer. When it comes to men, you’d be surprised at some of the challenges we face. Getting men to the doctor, motivating men to take notice and take action against the risks that can lead to cancer, and providing services that talk their language is not as straight forward as some may think. From our research, we know that men listen to their male peers, men do listen to their wives, and men respond to no nonsense messaging. Most of all, men do care about their health (contrary to popular belief).

Some of our key developments, to target men specifically have been Men and Cancer booklets, a support group for prostate cancer, training male volunteers, specific research studies and events targeting gender specific media with health messages. We also ask for your support, whether you are male or female, husband, wife, father, mother, daughter or son… • Connect with the men you know and inspire them to become a volunteer. • If you know of someone who has recovered from a cancer experience and they would like to offer phone support to people newly diagnosed, let them know about Cancer Connect (see Cancer Connect, on Page 20). If you are a man prepared to share your cancer experience in an

In a so-called male dominated society, we have a lack of men in the not-forprofit sector. Men are massively under represented in our mission of defeating cancer upcoming communications campaign, then contact Karen Kalpage on (02) 9334 1960, Mondays to Wednesdays, 9am to 5pm. There are over 2,500 registered volunteers for Cancer Council NSW contributing immensely to society and helping focus our services where they are needed most. Twenty-five percent of you are men. In a so-called male dominated society, we have a lack of men in the not-for-profit sector. Men are massively under represented in our mission of defeating cancer. Together we can, and need to change this.

Our 2011 NSW Volunteers of the Year Award Winners • Back row, left: Christopher Vollmer, 2011 Hunter Youth Volunteer of Year (Maitland Relay For Life). • Back row, right: Professor Ted Wolfe, 2011 Riverina Volunteer of the Year (Regional Advisory Committee Chair and Community Speaker). • Front row, left: Julie Davis, 2011 Illawarra Senior Volunteer of Year (office volunteer administration). • Front row, right: Denise Bockett, 2011 Sydney South Volunteer of the Year (Cancer Council Information Centre and office administration). For more about Christopher Vollmer, see page 12; Julie Davis, page 16; Denise Bockett, page 8, and Ted Wolfe, page 13 in the previous, Summer Edition 2011 Volunteer Voice. 4


VolunteerVoice | March2012

Transport Services begins help from home By the end of the 12 months running up to 30 June 2011, the home help and transport services associated with Cancer Council NSW had amassed a remarkable set of figures. More than 230 volunteers assisted just short of 6,000 patients and their carers to gain access to treatment. Over 600,000 kilometres, and the larger part of 10,000 hours, was given over to traveling. While the skills of medical practitioners and the remarkable achievements of medical science most certainly offer hope and confidence to cancer patients, it is human contacts that remind us most that we are not alone in confronting cancer. Patients, carers and drivers, share not only the statistics of their trips, but also the everyday events of their lives during it. To give just one example of how what might seem a small thing very much matters, the Southern Region has volunteer drivers who deliver local patients to the main Cancer Council bus, which then delivers them to Campbelltown in Sydney for treatment. Patients without family are thus saved inconvenience or cost to meet the main bus. It may be the smallest

Reon George, a Cancer Council NSW volunteer driver. Read more about Reon on page 13.

portion of the overall trip, but provided without anxiety or concern, it helps to ensure that the larger trip, both in to treatment and away from it, is as comfortable as the reality of the situation allows.

Patients, carers and drivers, share not only the statistics of their trips, but also the everyday events of their lives during it

Tangible assistance “From my perspective I just think it is an incredible privilege to work with people who willingly give up their time to help others,” says Tina Hunt, the Regional Programs Coordinator in Cancer Council’s Southern Region, headquartered in Wollongong. “In the Southern Highlands we have an in-home support program, Information Centre, and a Cancer Council-owned bus with volunteer drivers. “I am very happy to be starting a Volunteer In Home Service in Wollongong. When we let our Community Cancer Network know that we were doing this, they were really excited about it, as there is such a need. “For those people who don’t have close family support, and are facing cancer alone, this service really makes a tangible improvement to their lives. We do have some excellent groups here who work to help cancer sufferers, but there are often still gaps.”

Strategic Priority 2 To ensure the NSW community acts to prevent cancer and/or detect it at a curable stage. 5


VolunteerVoice | March2012

Volunteer’s Voice Sinilia Radivojevic I first arrived in this beautiful country on holiday in 1984. I found out about Cancer Council, and for a couple of years after that, as a volunteer at Head Office, helped with translating information on cancer issues into the Spanish language. I also assisted with inputting data into the system about different types of cancer, and how to detect them. The work was invaluable for me, as I was able to obtain work experience in Australia, and at the same time, practise and improve my English. In 1994, I organised the Australia’s Biggest Morning Tea event in my local area. I have held this event over the years since in Sydney’s Spanish community, and I have also been a Speaker for Cancer Council at other events.

The work was invaluable for me, as I was able to obtain work experience in Australia, and at the same time, practice and improve my English. In 2008 I volunteered with the organising committee for the Fairfield Relay For Life. My first year it rained the entire 24 hours. Families from my community participated regardless. In particular, one of my friends, a cancer survivor, walked with me at 3am in the rain. This uplifting experience has motivated me ever since to continue with the Fairfield Relay For Life committee.

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Reverend Jorge Rebolledo (far left) and Ema Rebolledo (centre) from the Iglesia de Dios, Villawood, with Sinila Radivojevic (far right).

My volunteering is not only related to fundraising events. I also visit people with cancer, and provide information about Cancer Council NSW services. In the Western suburbs in particular I have became a familiar face, translating information into Spanish for families that do not understand English.

managed, with investment into providing better services, research into cancer, education, providing transport in the rural areas for cancer patients, just to name a few. All the new Regional offices and Hubs where cancer patients obtain information have been very successful, and I feel, in some ways, my volunteer work is part of all that.

Recently I wrote to the Minister of Immigration, Chris Bowen, on behalf of a cancer I have seen many patient receiving faces, and met This page is palliative care at many people, the Fairfield dedicated to who have Braeside Hospital, contributions from come and requesting help Cancer Council NSW gone at in the granting of Cancer volunteers. Email a visa for the patient’s sister, volunteervoice@nswcc.org.au Council. But as a volunteer who is in Australia and share your I’m still here. temporarily as her volunteering experiences I really believe in carer. I am still Cancer Council’s with us. assisting with the mission statement, sister’s application and its contribution to process. the community. My commitment with Cancer Council Association with Cancer Council has grown over the years. NSW has made my time in this I have seen how successfully the wonderful land all the more positive. organisation’s fundraising has been


VolunteerVoice | March2012

People power in action

Patients undergoing treatment at Westmead Cancer Centre have had the added trauma of trying to find a near-by car park. Carers were either forced to drop the patient off, or park far away from the hospital. Leaving patients to face the long walk back to the car, often while enduring the side effects of their treatment. Long-term Community Advocate James Butler (pictured right), and members of the GWS advocacy network (WESCAN), worked tirelessly over the past four years to change this deeply flawed situation. Recently-trained advocate,

Yvonne McMaster, collaborated with James to draw local media attention to the situation. With NSW Premier and GWS Minister, Barry O’Farrell, made aware of the issue, Westmead Hospital Management was pressured to find a solution.

Photo courtesy of Phil Rogers.

The power of community advocacy has prevailed in Greater Western Sydney (GWS), where a group of dedicated volunteer advocates have won a longstanding battle for the provision of car parking at Westmead Hospital.

The hospital has committed to implementing a permit system, to provide a dedicated parking area for cancer patients accessing treatment.

solution as a precedent for other hospitals to follow.

Patients across the state face similar challenges with parking. This successful campaign provides local advocates with a template for success, and offers the Westmead

If you are interested in taking action around car parking or any other advocacy campaign, please contact your Regional Programs Coordinator for more information.

Cancer Council Information Centres The Centres welcome anyone who has questions about cancer, including patients, carers, family members and friends.

The Centres welcome anyone who has questions about cancer, including patients, carers, family members and friends Volunteer Yvonne Vizard at a Cancer Council Information Centre.

Cancer Council has established Information Centres in hospitals and treatment centres around NSW to help connect cancer patients, their carers and their families, with information and support services.

Visit for: free booklets about cancer, its treatments and related emotional and practical issues; internet access to cancer related websites; information about the support services for patients and carers available in your local community; DVDs and books about cancer; and access to Cancer Council’s main library.

Trained Cancer Council volunteers are available there to help you find the resources you need. The volunteers do not provide counseling or medical advice. However, there is telephone access at the Centres to the Cancer Council Helpline, 13 11 20, so you can talk confidentially to a cancer professional about any aspect of cancer. No appointment is necessary to use these comfortable facilities. They are there for you. You will find the locations of operating Cancer Council Information Centres online at www.cancercouncil.com.au. Type Information Centres into the Search Box.

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VolunteerVoice | March2012

Central and Southern Sydney Local News

Southern Sydney Volunteer of the Year It is not at all surprising that Denise Bockett recently received the NSW Volunteer of the Year Award for the Southern Sydney area. Denise has volunteered with Cancer Council NSW since 2000.

Denise receives her award from NSW Government Minister for Citizenship and Communities, Victor Dominello mp.

Eleven years commitment, and in 2011 alone, she volunteered with us in a range of key ways. • Firstly, as a weekly Cancer Council Information Centre Volunteer at St George Hospital, directing cancer patients and families to information and support services. • Secondly, as a Publications Volunteer regularly updating and re-ordering publications for our information display stands in Sutherland Hospital and local Shire libraries.

Volunteer Profile Anna Sewerin, originally from Germany, currently studies Event Management at the University of Technology, Sydney. She’s volunteered with us for over a year now. After working on the organisational management of the 2011 Inner West Relay For Life event held at Leichhardt Oval, for this year’s event she is “developing a Marketing and Media Plan for the Eastern Suburbs Relay”, scheduled for Saturday 19 May at McKay Sports Grounds, Centennial Park. The task includes identifying local media to maximise the coverage of the event, along with “developing a schedule for the event’s promotion” overall. Anna has a message to anyone else out there who might consider volunteering: “It’s a good experience. You get great tasks and a lot of responsibility. Being on a committee is a great lesson for teamwork, time management and communication skills. “People affected by cancer benefit from the work and time I invest.”

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• Thirdly, as a Site Leader for Daffodil Day and Pink Ribbon Day Sutherland stalls. And also as an Office Volunteer phoning key stakeholders to maintain current contact information. Nothing is ever too much for Denise!

Denise has volunteered with Cancer Council NSW since 2000 The Central and Southern Sydney Region tell everyone that they are privileged to have her as part of their team. Cancer Council NSW is truly thankful for all Denise’s time, the energy she puts into her local community, and each of the volunteering roles she’s undertaken over the years.

Relay For Life is an overnight, community event where teams of individuals take turns to walk, jog or run around a local oval, to raise money for Cancer Council to help beat cancer, in a fun, festival atmosphere. The event brings the whole community together to honour those whose lives have been touched by cancer, celebrate survivors and fight back against cancer. Each Relay For Life event is organised by a local volunteer organising committee on behalf of Cancer Council NSW.

www.relayforlife.org.au

Strategic Priority 3 To give the NSW community a voice on issues and entitlements around cancer.


VolunteerVoice | March2012

Central Coast Local News

Mingara Relay sets record

Volunteer Profile Adele Miller, facilitator for Young Women’s Soirée (a group for ladies under the age of 55 who have gone through breast cancer), a committee member for Relay For Life 2011 and 2012, guest speaker at fundraising events like Avoca Beach Girls Night In, and Daffodil Day volunteer, when she takes breath, says… “I chose to volunteer for Cancer Council because, after I went through my cancer journey, I wanted to do something once I was strong enough. This is what I do and I love it.

Youngsters rally to Relay.

The Mingara Relay For Life Committee applauds the Central Coast community for once again showing its support of those battling cancer at our 11th annual Relay. The event, held on 15-16 October, at the Gatorade Regional Athletics Centre in Tumbi Umbi, attracted over 2,000 people, including 260 local cancer survivors and carers. It has so far raised over $313,000 – surpassing the target of $245,000! The event chairperson, Catherine Batiste, said, “Looking out at the huge crowd at the event was extremely moving, and the committee

and Cancer Council NSW thank everyone who attended, supported or donated, to this great local event”.

“This is what I do and I love it”

Lesley Chart, Community Relations Coordinator, commented: “It has been a privilege and inspiration to work with the passionate, motivated and well-oiled machine that was the relay committee for 2011. Their commitment to working together ensured the most spectacular Mingara Relay ever!”

“I have met some amazing and selfless people through my volunteering. The ladies that work for Cancer Council are amongst the most passionate people I have ever met. They truly love what they do.

Passionate commitment to make the lives of local cancer patients and their families better drove the committee to this outstanding achievement. Look out 2012!

“Live every day as if it’s your last, because you never know what tomorrow may bring. Take on a challenge with a smile on your face, it helps to be positive.” Below: Adele with husband Mark.

Practical/Social Support Program Cancer Council, in partnership with Central Coast Community Care Services, has commenced the Practical/Social Support Program for those battling cancer in the Peninsula area. Our trained volunteers provide cancer patients and their carers with a helping hand for practical support in the home, undertake social visits, and assist with shopping, banking and doctors appointments. If you would like to be involved, or would like to find out more information, please contact Sandra Shorrock on (02) 4336 4500.

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VolunteerVoice | March2012

Far North Coast Local News

From houseparty to highlight

A family, a small town, big hearts all round

partygoers, enough to raise $21,500 in the last two years. Girls Night In 2011’s entertainment included comedian Mandy Nolan, belly dancers, a wine raffle, a photo booth with costumes, multiple games and activities. Kim says positive feedback from participants, many of whom have undergone or continue to undergo struggles with cancer, inspire her to make each year’s Girls Night In bigger and better.

L-R: Kim, Taylor, Brittany, and Bronte.

Kim Telling’s Girls Night In has grown from a house party of 20 friends five years ago raising $1,000, to be the annual social highlight of Kingscliff. Kim, teenage daughters Taylor and Brittany, and their best friend, Bronte Rowston, attract hundreds of

Not only to raise funds, but also to let cancer sufferers past and present know that there are people out there who care. And aren’t about to stop.

2011’s entertainment included comedian Mandy Nolan, belly dancers, a wine raffle, a photo booth with costumes, multiple games and activities

Michelle Brown has wonderfully rallied the tiny town of Pottsville in the fight against cancer. Son Ben, now 11, has battled cancer since birth. At just five days old, Ben was the youngest person in Australia to undergo chemotherapy. Both this treatment, and subsequent surgery at four months to remove a liver tumor, were right on the edge of cancer treatment trials. Michelle and her family are passionate about giving back to those who have helped them through the toughest times cancer has thrown at them. Last Pink Ribbon Day the family raised $1,700, and last Daffodil Day, $1,300. The Brown’s first-hand experience of cancer treatment services in Queensland led them to donate another $1,000 to Cancer Council Queensland, giving real weight to their message of highlighting the importance of research to defeat cancer.

Volunteer Profile Since he became a Cancer Council volunteer in 2004, involvement in raising funds and cancer awareness has made Walter Mulgrave a well known face in Ballina. Walter and his Daffodil Day team have collected over $1,000 every year for the last five years.

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Having lost both parents to cancer, and stared down his own cancer struggle, Walter says he tries to help out whenever he can. Walter also partakes in Relay For Life, no mean task given that he lost both legs early in life due to diabetes.

Walter Mulgrave, living determination.

Walter strongly encourages others to volunteer. Not only to help someone else who might be struggling, but to interact with the community and meet a diversity of people.

Walter also volunteers for Lions Club Ballina, helps run a diabetes group, and still finds a little time to pursue his passion for photography.


VolunteerVoice | March2012

Greater Western Sydney Local News

The show DID go on

Volunteer Profile Elaine Crocker has volunteered for over ten years with Cancer Council NSW. Starting out at Parramatta as a Community Speaker, she then became involved with the Regional Advisory Committee, and has assisted on several Cancer Council campaigns. Elaine is also involved with Bankstown Relay For Life.

Federal MP Louise Markus, Councilor Chris Van Der Kley, State MP Roza Sage, and Relay For Life Committee Chair Ken Shaw.

Not even the rain could stop the fourth annual Blue Mountains Relay For Life from being a huge success. With a last minute change of venue to the accommodating Edge Cinema, the day was host to 21 registered teams, and over 100 participants and onlookers. Although the planned 24-hour camping event was cut down to eight very fun filled but extremely busy hours, over $10,000 was raised. The day’s activities featured music and entertainment, a dance crew, and even a zumba demonstration, which many people enthusiastically joined in with. The Lions Club of Wentworth Falls held a BBQ that had many people going back for more. Other local businesses

contributed to the day, including: Hurley’s Meats, Katoomba RSL, Lawson Bowling Club, Bendigo Bank, The Gazette, as well as many others who donated raffle prizes on the day.

Not even the rain could stop the fourth annual Blue Mountains Relay For Life from being a huge success Having confronted the sudden changes nature forced in the last two days before the event, everyone involved, including Relay teams, the committee and the Edge Cinema, were very pleased with the ‘rescue’ outcome. It turned out one of our best years yet!

In 1999 Elaine started attending the Bankstown cancer support group. She is now the facilitator of the support group. She has attended several training days with Cancer Council, in advocacy, grief and loss training, and to extend her skills as a Community Speaker. Elaine’s partner, Gordon, also attends many of the events. The couple has recently celebrated their 50th wedding anniversary. Apart from thriving on the opportunity to meet so many people during volunteering activities, Elaine also enjoys, and is a great supporter of, ongoing Cancer Council NSW fundraising and Casula Hub activities. Below: Elaine (left) and Janice Low (right) at Casula Hub.

Cold work, but she did it One of the best known and most active volunteers in the Greater Western Region is Marj Freeman, and you might expect a story about her to be right here on the region’s dedicated page. Marj stepped forward at another Cancer Council NSW associated event held in the region that has Australia-wide relevance. Read about Marj and Busting Cancer on page 19.

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VolunteerVoice | March2012

Hunter Local News

Volunteer Profile

Law firms partner with Cancer Council

Christopher Vollmer, ‘lucky’ guy

provided an overview of the support the service provided to cancer patients, their carers and families, covering the writing of a will, establishing power of attorney, securing early access to superannuation or insurance benefits, dealing with mortgage hardship, and advising on family law issues, such as the guardianship of children when a parent dies.

Since he was 16 years old, Christopher, now 25 years of age, has volunteered with Cancer Council NSW, assisting in the running of the Maitland Relay For Life. From ‘early days’ planning to site clean-up at the conclusion of the event, Christopher’s job as Logistics Coordinator is to ensure everything comes together and runs smoothly on site for the Relay weekend. Other times of the year, he can be found at local markets and shopping centres selling Cancer Council merchandise.

As a pro bono partner, Sparke Helmore Lawyers will take on referrals through its Pro Bono Assistance Program. Sparke Helmore’s T’ese Butler (left), Pro Bono and Community Programs Coordinator, and Michael Rosenfeld (right), Pro Bono Director.

And that “luck” of his? “Nobody in my family has had cancer, but being around those who have the disease makes me realise how lucky I am. “Being part of this sort of thing has really changed my life and I look at life differently now. “There are so many people out there battling cancer, and some are my age, and it just blows you away when you think about what people have to go through.”

Strategic Priority 4 To ensure no one faces a cancer diagnosis alone. 12

Cancer Council NSW launched the Cancer Council Legal Referral Service in Newcastle and the Hunter Region on Thursday 1 December 2011, at the offices of Sparke Helmore Lawyers. Five law firms across the Hunter Region have joined forces to assist patients with cancer-related legal issues. Louisa Fitz-Gerald, from the Cancer Council Legal Referral Service,

“Participation in the Cancer Council Legal Referral Service is a welcome extension to our pro bono program... It’s now our pleasure to support the launch of this service in Newcastle and the Hunter”

Michael Rosenfeld, Sparke Helmore Executive Counsel, Pro Bono and Community, said: “Participation in the Cancer Council Legal Referral Service is a welcome extension to our pro bono program. We have already accepted a referral from the service in our Adelaide office and held a firmwide orientation session for our lawyers. It’s now our pleasure to support the launch of this service in Newcastle and the Hunter.” Cancer Council NSW looks forward to developing more fruitful partnerships with law firms participating in pro bono programs to assist those battling cancer in the Region and beyond.

Five law firms across the Hunter Region have joined forces to assist patients with cancer-related legal issues


VolunteerVoice | March2012

Mid North Coast Local News

New Chairman, action on listening Representing the Manning Valley for 15 years, Ken Raison is a very active volunteer for Cancer Council. A carer, driver, facilitator of the Living with Cancer Program, cancer advocate, and member of the Regional Advisory Committee (RAC) since 2006, Ken will be the Chair in 2012. Ken’s vision for the RAC over the next three years is to see the Regional Office, and members of the RAC, really engaging with the local community, and “listening to take action”. Lesley Schoer, then Chair of the Committee, handed over the role to Ken on 23 November. That same day, local grant applicants were considered and $20,000 was allocated to projects across the region. Ken recently represented Cancer Council at the Wingham Relay For Life event, and launched the Lower Mid North Coast Cancer Directory, which was produced in the Manning and Great Lakes area.

A stunning Miss Relay Local retiree Ted Bickford, a well known member of the Great Lakes community, has served as a committee member for the last three Great Lakes Relay For Life events. Drawing on his school connections, he successfully motivated students from Forster High School to get involved, delivering a great diversity of ages of participants at the event. The Relay itself was a huge success, with just over $100,000 raised. One of the highlights of the day was the ‘Great Lakes Miss Relay’. Male team members dressed in women’s clothes, and participants voted (cash votes!), for the best dressed contestant. Dressed up in pink wig, pink fishnets and high heels, Ted successfully secured cash votes of $227 as a very beguiling ‘Miss Relay’. Ted had visited the Op Shop the previous week with his wife, and the staff and customers there took great delight in dressing him up! Left: “Miss Relay”, Ted Bickford. A picture speaks how many words?

Ken Raison presenting at a cancer forum.

Volunteer Profile Reon George has volunteered for Cancer Council NSW with the Manning Cancer Patient Transport Service since 2007, driving cancer patients to Newcastle, Port Macquarie and Manning Rural Referral Hospital for treatment. While balancing work on his farm with his driving commitments, Reon also volunteers to be the caretaker of the Cancer Council vehicle allocated to this service. The vehicle, kept undercover on Reon’s property, is washed and vacuumed every week to ensure utmost comfort for cancer patients and their families travelling long distances. Reon initially volunteered with us because he wanted to give something back to his local community. Transporting approximately 200 patients to treatment last year alone, you could say, we do say, “Reon is one of our local champions”.

Reon initially volunteered with us because he wanted to give something back to his local community 13


VolunteerVoice | March2012

Northern Sydney and Central Coast Local News

Volunteer Profile

Introductory event at Crows Nest Regional Office The Northern Sydney Regional Office in Crows Nest held a “Welcome” function for key volunteers, fundraisers and community supporters, on Thursday 10 November 2011. Held to introduce the neighbouring community to the freshly established office, and showcase what is on offer at their new local facility, it was a very enjoyable evening.

A message from one of our new volunteers... I wanted someone within the organisation to know what a great time I’m having volunteering for the Crows Nest Office. I’ve only been here a few weeks, but am always keen to come in to see what happens next. The team, led by Lee, is happy, productive, helpful and always smiley. Iuli Tristram is an amazing office coordinator and very efficient, and I love helping Carly Kassel with Call To Arms. In my ‘previous life’ I not only worked for the Cerebral Palsy Alliance for 21 years as admin support to a team of therapists, but also volunteered for the organisation, so I have a fairly good idea of what volunteering is and should be about

Approximately 50 guests took the opportunity to explore the office, and view the multiple displays presented by the staff and volunteers. They also had the opportunity to mingle and network

with people from various areas of Cancer Council NSW. Liz Hing, one of the Region’s Community Speakers, and North Shore Relay For Life co-Chair, talked about her experiences working with Cancer Council and her campaign for a ‘Smoke Free North Sydney’. On 29 August 2011, this policy was officially embraced by North Sydney Council. With many new contacts and alliances being made, the evening concluded with a general air of positive enthusiasm for the challenges ahead. The Northern Sydney Regional Office now plans to hold an annual “Thank You” function for all their supporters.

One year on in Wahroonga In February 2011 Cancer Council NSW Northern Sydney Region opened the Cancer Council Information Centre (CCIC) at the Sydney Adventist (SAN) Hospital in Wahroonga. The centre was established by Pauline Don, Community Network Coordinator, who oversees the centre and regularly attends there to support

the 20 volunteers who work there on rotation. This is a free service and no appointment is necessary. For more details about just what a Cancer Council Information Centre is, and the services one provides, check back to page 7 in this issue. You will also find address and access details for Wahroonga CCIC.

Kind regards, Britta Hüttel.

“The team...is happy, productive, helpful and always smiley” Pauline (third from left) and volunteers at the Cancer Council Information Centre. 14


VolunteerVoice | March2012

North West Local News

New place to beat the old enemy Tamworth Cancer Council Information Centre (CCIC) volunteers are looking forward to the opening of the $42 million New England North West Cancer Care Centre at the end of 2012. The project, jointly funded by the State and Federal governments, will include new radiotherapy services to the North West Region, along with a relocated Information Centre. Twelve volunteers look after the current CCIC, located at the Tamworth oncology clinic, based within the grounds of Tamworth Rural Referral Hospital. It is anticipated that another recruitment drive for volunteers will commence early to mid 2012 to prepare for the extra visitors, both patients and carers, to the new Information Centre.

Two volunteers’ trip to town Marlene Chapman and Margaret Rock visited Cancer Council NSW’s Woolloomooloo office late last year. Bek Hooley, Office and Volunteer Coordinator at the Tamworth office, organised the trip and accompanied the volunteers to Sydney. It was a small token of thanks for the wonderful assistance these two volunteers provide Bek with every day they work in the office. The busy two days included presentations around current research funding, an overview of the Helpline, and tour of Helpline and Head Office. The volunteers met with members from the Finance team, Relay For Life team, and the Events Administration Centre. Marlene and Margaret were thrilled to meet Andrew Penman too. Both found the trip very beneficial, had a fantastic time, and now know how volunteering ‘works’ in two different offices united in one mission to beat cancer. Marlene Chapman, Margaret Rock and Bek Hooley at Woolloomooloo.

Tamworth Rural Referral Hospital.

Volunteer Profile Sarah Watson, single mum of four, joined Cancer Council in August 2010 as an Office Administration Assistant, volunteering on Mondays. “Cancer Council offers me learning some new skills in an office environment (something I had never done before), and to be a part of my new community. I meet people who believe in what they are doing. I see people who are survivors taking on life with gusto, and the belief that we can have a world where cancer is not ‘a sentence’.

“I meet people who believe in what they are doing. I see people who are survivors taking on life with gusto, and the belief that we can have a world where cancer is not ‘a sentence’.” “While individual contributions may be small, many others like me combine to make a difference. Volunteering has a way of making you feel good. I choose not to think about that too much, but a sense of being ‘pleased with myself’ cannot hurt. “Finally, if my being here just once meant that none of my children ever wear a sash at a Relay – I’m good with that!”

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VolunteerVoice | March2012

Southern Local News

Volunteer Profile Julie Davis has volunteered at the Wollongong office since 1996. Currently a Volunteer Administration Assistant, she assists in maintaining the up-to-date accuracy of the volunteer database. Used by the whole organisation, this is the central source of volunteer information and statistics.

Southern Region launches new office On Friday 2 December Cancer Council NSW officially launched their new Southern Regional Office at the Innovation Campus, North Wollongong. Approximately 50 guests attended the event, which began with Richard Davis, a local Aboriginal elder, offering the ‘Welcome to Country’. Andrew Penman, Cancer Council NSW CEO, was also on hand to congratulate those who had won Southern Region awards.

These awards recognise and honour those volunteers who we felt had shown an outstanding contribution to working with Cancer Council and its communities in the previous years. We were pleased to announce that Dale Cairney was awarded the Leadership award, Pam Kilby the Commitment award, Noel Dare the Fundraising Partnership award, and Kiama Council the Community Partnership Award. Congratulations to all.

Attending interviews, and conducting referee checks on all newly recruited volunteers, Julie is a welcoming face as one of Cancer Council Wollongong’s longest serving, most experienced volunteers. Working an average seven hours a week, in 2010 alone she committed over 160 hours to her volunteer activity. Julie asks: “Did you know that Cancer Council is Australia’s leading cancer charity dedicated to beating cancer through research? That Cancer Council’s groundbreaking work into the prevention, diagnosis and treatment of cancer has saved thousands of lives? “But statistics show that one in two of us will still get cancer at some point and Cancer Council’s vital work, funded entirely by the public, will help ensure that thousands more people will survive.”

Julie is...one of Cancer Council Wollongong’s longest serving, most experienced volunteers 16

L-R: Merewyn Partland, Dale Cairney, Pam Barnes, Andrew Penman and Judi O’Brien.

Sunsmart Schools volunteers achieve top marks Thanks to all our hardworking SunSmart volunteers we now have over 30 schools across the targeted areas within the Southern Region that have seen the benefits to joining our SunSmart Program. Students are in school when ultraviolet (UV) radiation levels are at their peak, meaning schools are vitally placed to educate about sun protection behaviour, and reduce the risk of skin cancer by becoming SunSmart. The volunteers have written, emailed, phoned, left messages, returned calls, entered information on our database, and kept schools engaged with the message. There are now over 7,000 students in local schools who will benefit from these new partnerships. A positive step towards skin cancer prevention now, and in the future.


VolunteerVoice | March2012

South West Local News

TAFE students turn pink for cancer! Last year Riverina TAFE Wagga Wagga campus events and tourism students volunteered their time to help with the promotion of Pink Ribbon Day fundraising for the South West Region, and made their TAFE teacher happy at the same time. “We like to have the students undertaking as much community involvement as possible on the way to completing their studies,” said events teacher Emma McMahon. Emma, also a volunteer for Cancer Council, said the students have gained valuable new skills and had a fun time in the process. Speaking of the opportunity to work alongside Cancer Council NSW, TAFE

student Theresa Lenehan said, “It was hard work, but we all really enjoyed the challenge”.

“We like to have the students undertaking as much community involvement as possible on the way to completing their studies” Pictured right, L-R: Cancer Council NSW Office Coordinator Laura Thomas, with volunteer TAFE students Theresa Lenehan, Minji Kang and Kate Wilson, and TAFE Teacher Emma McMahon (front right).

Girls go out and raise over $4,000 Guests enjoyed a delicious two-course dinner, and prizes were awarded for the best-dressed attendees. Other fun activities, the fashion parade, raffle, and musical entertainment, capped the evening off. Organisers were Wendy Nick, Sandy Turner, and Anne Robertson. very grateful to their many sponsors and supporters, whose generous Cancer Council NSW has received a backing helped to make the night great fundraising boost, thanks to such a success. A big “thank you” Mathoura’s Girls Night In event held goes out to Anne Robertson and at the Mathoura Bowling Club in her team of helpers for making the November. The large crowd in night unfold so seamlessly. We look attendance helped raise more than forward to next year! $4,000.

Volunteer Profile Coral Blume has been an office volunteer with Cancer Council since August 2011. Currently studying her Certificate III in Business Administration, she puts her skills into action helping to organise events that engage the local community in the fight against cancer. In November the South West office hosted a premiere charity screening of the latest Twilight film, Breaking Dawn Part I. The guests enjoyed the midnight screening of the film as well as goodie bags, lucky door prizes, and who could forget the kissing booth? A huge “thank you” to Coral for giving up her night to help out, and to all of the other volunteers involved in making the night such a success.

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VolunteerVoice | March2012

Western Local News

Volunteer Profile

The good couple

A message from Maureen Green What I enjoy most about volunteering is just that – being able to offer support to Cancer Council. I get a real sense of accomplishment, of doing meaningful work, being involved in Cancer Council’s mission. I enjoy being kept busy, which helps, of course. I tell family and friends how much I enjoy my position at Cancer Council, and how helpful the training I’ve had in this role has been.

“I get a real sense of accomplishment, of doing meaningful work” When not at Cancer Council, I spend time with my family, doing simple things like having meals together. I have six grandchildren. I love to get out walking and going to the gym. I also volunteer locally with St Vincent’s. I help with the cooking for the Senior Citizens. This role I am ‘on call’ when needed. I also work on the St Vincent’s Van, handing out food in areas of Orange. I am passionate about helping people.

A good couple across 60 years.

When Gwen Coulter was diagnosed with breast cancer 44 years ago, at the age of 37, she took it in her stride and decided to do whatever had to be done. Her husband Lloyd helped organise the doctor’s appointments, stood beside Gwen steadfastly during her treatment in Sydney, and helped with the children upon her return home to recuperate. Gwen recovered. Adamant that she wanted to aid other women with their breast cancer journeys, she became the leader of the local cancer support group in Orange in 1976. Lloyd was a very busy man in his own right, owning a pharmacy in Orange at the time. He always fully supported Gwen in her efforts to

make a difference. He has been the babysitter, the driver, the shoulder to lean on, and a wonderfully understanding husband. Gwen has been a volunteer with Cancer Council and many other charities in the Orange district for many years. She recently looked at her records, and was astonished to see that she had visited and supported over 1,000 women in her time with the Orange Breast Cancer Support Service. Upon celebrating her 82nd birthday, Gwen and Lloyd decided that it is time to slow down and enjoy life a little. The local Orange Breast Cancer Support Service held a lovely afternoon tea in Gwen and Lloyd’s honor, and wished them all the very best for the future.

Strategic Priority 5 To expand the opportunities available for people to contribute to our work by giving money or fundraising. 18


VolunteerVoice | March2012

Recipe Corner

Busting Cancer is a unique project within The Groundswell Project http://thegroundswellproject.com. Women with a mission to beat cancer work with artists to create body sculptures that reflect their own personal experience of the disease. And so promote active cancer prevention and screening behaviour.

Spicy roasted broccoli with almonds

At the 2011 Relay For Life in Blacktown, Cancer Council NSW’s own Marj Freeman personally joined in the cause.

Ingredients 1 large head of broccoli 1/4 cup whole almonds

Marj, a breast cancer survivor, is an invaluable member of Cancer Council’s volunteer team in Greater Western Sydney.

Dressing 6 cloves garlic, sliced 2 tbsp minced ginger 1 tsp fresh, hot chili, sliced (more or less, to suit your taste) 1 tbsp olive oil 1 tsp reduced salt tamari

A Cancer Council NSW volunteer as a Community speaker, Relay For Life Committee member, Community Cancer Network member, and Support person, Cancer Council NSW and the Blacktown community are both indebted to Marj, and husband Ken, for their years of dedicated volunteering activity. By joining in The Busting Cancer Project, Marj reaffirmed her very direct commitment to the fight against cancer. Below: Marj sits still for art.

Serves 2

Directions Preheat oven to 200o C. Wash broccoli well, then remove the very end of the stem. Slice the entire head of broccoli and remaining stem in half down the centre lengthwise, then cut each half in half again. Repeat until you have relatively small slices of broccoli tops with long stems. Place in a large bowl. Prepare dressing and pour over broccoli. Using your hands, massage the dressing into the broccoli making sure it is well coated. Place broccoli on a baking sheet and set in the oven.

With thanks to Sarah Britton http://mynewroots.blogspot.com.

Using plaster to bust breast cancer

On a separate baking sheet, place almonds and set in the oven below the broccoli. Roast broccoli and almonds for 15-20 minutes (the almonds will probably need less time), until the broccoli is just turning golden brown on the edges. Remove everything from oven. Roughly chop almonds on a cutting board. Plate broccoli, season to taste. Sprinkle with chopped almonds. Serve.

Book Review Worse Things Happen at Sea by William McInnes and Sarah Watt

While the media coverage of Sarah Watt’s death from breast cancer in November last year focused on the tragic loss of an immensely talented filmmaker, this collection of family stories is filled with optimism, energy and humour. Sarah’s voice shows her strength in the face of personal tragedies and her battle with cancer: “I don’t have to fear cancer anymore. I have it.” Images of the ocean punctuate the story, and symbolise both the predictability and unpredictability of life, and how this can bring us fear or pleasure. This deeply Australian story is honest and relatable, and presents a unique perspective on dealing with cancer. Reviewed by Lucy Mowat.

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VolunteerVoice | March2012

Events Calendar General Events Every Wednesday 5-6pm: Daffodil Choir rehearsals. Level 6, Woolloomooloo. Enquiries: 0400 118 043 Central and Southern Sydney Region 5-6 May: Sutherland Shire Relay 19-20 May: Eastern Suburbs Relay Central Coast Region 13-14 October: Mingara Relay Far North Coast Region 10-11 March: Tweed Valley Relay 16-17 March: Advocacy Training Grafton 24-25 March: Norfolk Island Relay 31 March to 1 April: Grafton Relay 27 April: Women’s Health Day, Grafton 28-29 April: Lismore and Villages Relay Greater Western Sydney Region 24-25 March: Liverpool Relay 31 March to 1 April: Holroyd/ Parramatta Relay

19-20 May: Penrith Relay, Hills Relay 26-27 May: Hawkesbury Relay

Hunter Region 17-18 March: Cessnock Relay 24-25 March: Dungog Relay 31 March to 1 April: Muswellbrook Relay Mid North Coast Region 24-25 March: Hastings Relay 5-6 May: Coffs Harbour Relay North West Region 28-26 April: Inverell Relay 12-13 May: Gunnedah Relay Northern Sydney 24 March: North Shore Relay South West Region 13-14 October: Border Relay Southern Region 10-11 March: Young Relay 31 March to 1 April: Ulladulla Relay, Nowra Relay, Bega Relay 28-29 April: Southern Highlands Relay Western Region 10-11 March: Orange and District Relay 17-18 March: Nyngan Relay 24-25 March: Warren Relay 12-13 May: Mudgee Relay

Cancer Connect Cancer Connect is a free and confidential telephone peer support service that connects a person who has cancer with a specially trained volunteer who has had a similar cancer experience. The volunteer listens and, by sharing their own experiences, provides understanding, practical information and emotional support. Cancer Connect volunteers are trained and supported by the Cancer Connect program, and don’t need to have any prior experience in peer support. Cancer Connect is for all cancers and for all people. If you are interested in becoming a Connect volunteer with the Cancer Connect program you can phone 13 11 20 and then press three to speak to a Cancer Connect consultant.

Paper from responsible sources

Regional offices and hubs For volunteer enquiries please email volunteersydney@nswcc.org.au or call the Volunteer Hotline (02) 9334 1773 Central & Southern Sydney: 153 Dowling Street, Woolloomooloo NSW 2011 .............................................................................................. (02) 9334 1754 Far North Coast: 101-103 Main Street, Alstonville NSW 2477..................................................................................................................................... (02) 6627 0300 Hunter Region: 22 Lambton Road, Broadmeadow NSW 2292. .................................................................................................................................. (02) 4923 0700 Mid North Coast: 121 High Street, Coffs Harbour NSW 2450...................................................................................................................................... (02) 6659 8400 North West Region: Shop 2, 218 Peel Street, Tamworth NSW 2340...................................................................................................................... (02) 6763 0900 Northern Sydney & Central Coast (Crows Nest): Level 1, 117 Willoughby Road, Crows Nest NSW 2065. ........................... (02) 9334 1600 Northern Sydney & Central Coast (Erina Fair): The Hive, Erina Fair, Erina NSW 2250........................................................................... (02) 4336 4500 South West Region: 1/37 Tompson Street, Wagga Wagga NSW 2650................................................................................................................. (02) 6937 2600 Southern Region: Suite 7, Ground Floor, IC Enterprise 1, Innovation Campus, Squires Way, North Wollongong NSW 2500... (02) 4223 0200 Western Region: 75 Kite Street, Orange NSW 2800........................................................................................................................................................... (02) 6392 0800 Young Cancer Council Community Centre: Suite 8, Millard Centre, Boorowa Street, Young NSW 2594................................. (02) 6382 3426 Bega Cancer Council Community Centre: Shop 8 Auckland Plaza, 81-83 Auckland Street, Bega NSW 2550................... (02) 6492 1805 Casula Hub: 39 Ingham Drive, Casula NSW 2170.................................................................................................................................................................. (02) 9354 2050 Penrith Hub: Suite 105, 114-116 Henry Street, Penrith NSW 2750........................................................................................................................... (02) 9354 2060 Rouse Hill Hub: Library & Community Building, Level 2, 29 Main Street, Rouse Hill NSW 2155.......................................................... (02) 9354 2070

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Western Sydney: Rotary House, 43 Hunter Street, Parramatta NSW 2150......................................................................................................... (02) 9354 2000


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