Volunteer Voice Autumn 2014 by Cancer Council

VolunteerVoice News for and about volunteers with Cancer Council NSW

Autumn Edition March 2014

cancercouncil.com.au | Volunteer Hotline: (02) 9334 1813

VolunteerVoice | March2014

Desk Notes

from Volunteer Development Advisor, Meghan Hermann

The year seems like it has only just begun and we are already in the third month of 2014! In straightforward headcount terms, volunteers form the largest part of our organisation – over 2,500 people help us out on a regular basis, plus thousands more return to participate annually in events across New South Wales each and every year. Recognising this ongoing and committed participation in Cancer Council’s mission to defeat cancer, we highly value volunteers’ opinions. With that in mind we would once again appreciate your input by completing our Volunteer Engagement Survey. We want to know what we are doing well, and what can be improved on. Also, that you as a Cancer Council NSW volunteer are happy with your involvement, and what we can do to make your experience even better.

Information from the survey is very important to Cancer Council NSW as it helps shape our planning priorities for the next financial year, achieving these priority results in large part only realisable through volunteers’ involvement. We thank you in advance for your participation and your contribution to assisting us defeat cancer. The Volunteer Engagement Survey should have arrived in your inbox/mailbox. If for whatever reason it has not, the online version is available here at https://www.surveymonkey.com/s/8J3QQSP The survey will close on Monday 17 March, so please make sure you complete it before this date. The survey is anonymous and will be analysed by an independent research organisation. If you have any questions about the survey, please call (02) 9334 1813.

We want to know what we are doing well, and what can be improved on. Also, that you as a Cancer Council NSW volunteer are happy with your involvement, and what we can do to make your experience even better

Recent commitment, big impact Sangita Bhatia has only been volunteering for Cancer Council NSW for a short time, but already she’s made a big impact. After attending Cancer Council NSW two-day Consumer Advocacy Training in September 2013, Sangita approached the Policy and Advocacy Unit to volunteer her time. Having just completed a Masters in Policy and Applied Social Research, Sangita was keen to apply some of the skills she had learned, so the fit was perfect for everyone. Working closely with our Policy Analyst, Sangita has undertaken a literature review looking at Aboriginal people’s experience of the cancer journey, including how well (or otherwise) cancer services are caring for the needs of Aboriginal people with cancer and their family and carers. The Policy and Advocacy Unit will be able to use the valuable work that Sangita has done to start discussions within our team, and with Aboriginal communities and agencies, about possible advocacy issues that we can work on together.

Sangita has joined the Northern Suburbs Cancer Action group and undertaken training to join our Member of Parliament Liaison team. She also has a Bachelor of Law and Bachelor of Commerce, so her professional skills will be invaluable additions to our CanAct community, as will her warmth and commitment to social justice. We look forward to a long and happy relationship. Pictured right: new volunteer, Sangita Bhatia.

Editor: Michael McGennan. Please feel free to forward your feedback and contributions to volunteervoice@nswcc.org.au 2

VolunteerVoice | March2014

The Dubbo Cancer Support Group, led by consumer leader and Cancer Council NSW Aboriginal Advocate, Robin Payne, is not fazed by statistics that Aboriginal people are 60 per cent more likely to die from cancer – their focus is on saving lives.

Photo by Louise Donges.

Dubbo group sets the new standard

Starting from that diagnosis dreaded by all.

Left to right: Robin Payne, artist Brooke Sullivan, Trixie Watts, Regina Carpenter and Peter Carpenter.

A breast cancer survivor herself, Robin says cancer patients “all think that cancer is a sentence and they’re going to die. But it is not a sentence.”

The group was recently presented with a painting by Aboriginal artist Brooke Sullivan.

However, Robin notes Aboriginal cancer sufferers would benefit from more support, information and direction from health professionals after diagnosis. The group, backed by an Aboriginal health worker and Cancer Council NSW, currently has ten members actively sharing their experiences.

“This is going to be our symbol. We’ll hang it up when we have an official place,” Robin said. The painting, titled ‘Spiritual Support’, featuring the pink ribbon associated with breast cancer, tells of survival, but also acknowledges those lost to cancer.

Peter Carpenter, fighting liver and bowel cancer, observes:

Cancer Council NSW and the Aboriginal Health and Medical Research Council are working together in a bid to establish more Aboriginal cancer support groups in the state.

“You get to know other people and try to help them because you’ve been through it. If you try to battle this on your own, you’ve got no hope.”

The Dubbo group meets the last Thursday of every month. For more information, contact Robyn Payne on 0413 441 194.

Free advice, priceless results Cancer Council’s Pro Bono Program helps people affected by cancer, but who cannot afford to pay, to gain access to free legal, financial, workplace and small business advice.

extended family and community all play a part in any funeral ceremony that is held for her, as they are such an important part of her life.

Since the program’s inception in 2012, Cancer Council has matched 36 Aboriginal clients with professionals in their communities who provided free advice.

Not just about money or physical possessions, a will can actually include a broad range of requests. By preparing a will, Tracey is making it as easy as possible for her loved ones to know and follow her wishes.

Tracey*, a 60 year old Aboriginal woman with lung cancer, wanted to make sure that her family knows what her wishes are, and they are respected when she passes away.

The local lawyer wrote a will for Tracey covering everything she wanted. It specifies the location for her burial, and also names her nephews and others from her community to be pallbearers at her funeral.

We matched Tracey with a lawyer in her community who helped her prepare a will. Very important to her that she be buried with her parents on their traditional lands, Tracey also wants to make sure that her

Her will in place, Tracey now has the comfort that she has provided guidance for her loved ones, for when she passes away. *Name changed

Artwork by Georgina Altona (Kamilaroi People).

VolunteerVoice | March2014

Update

from CEO, Jim L’Estrange

One of the key features defining Cancer Council is the reputation and credibility we have built within the community. As one of the leading cancer charities in NSW, we are recognised for our independence as a non-government organisation and for the vital cancer programs and services we deliver throughout the state. None of this would be possible though, without your commitment and passion as volunteers. Thanks to the time, skills and expertise you contribute, we are able to work more efficiently, stay connected to and meet the needs of the cancer community.

To make sure we maintain our strong position, we must continue to improve…which is why we would like your feedback about volunteering at Cancer Council – how you feel about your role as a volunteer and what we can do better to support volunteers. Your feedback is extremely important as it will help us plan and improve for the year ahead. Thanks to those of you who have already completed the survey. If you haven’t had the chance, you can access it here: https://www. surveymonkey.com/s/8J3QQSP

The survey is anonymous and will be analysed by an independent research organisation. If you have any questions about the survey, call the Volunteer Hotline at (02) 9334 1813. The survey will close on Monday 17 March, so please make sure you complete it before this date. We will be sure to provide feedback on the survey results and any next steps in the coming months. Thank you again for your contribution to Cancer Council and for working with us to help beat cancer.

...we must continue to improve…which is why we would like your feedback about volunteering at Cancer Council – how you feel about your role as a volunteer and what we can do better to support volunteers

With Australia’s Biggest Morning Tea (ABMT) Cancer Council NSW leads the way with one of the great success stories of charity fundraising in this country. Started in 1994, this annual event is actually a plethora of many many “events”, as each morning tea is special in itself. You know that if you’ve ever been to one, or hosted one, or been told just how much fun ABMT can be. Millions of dollars have been raised through ABMT, flowing in to help underpin Cancer Council NSW’s work in research, education, prevention and support for all those touched by 4

cancer, patients, carers, health professionals…very likely, you. Each and every year the event has grown bigger, fuelled by the enthusiasm and dedication of volunteers who organise and run individual morning teas right across NSW, in the cities, towns, and smallest

communities. A great cup of tea is one of life’s pleasures. Fight cancer with the joy of sharing one…or two. The official date for this year’s Australia’s Biggest Morning Tea is Thursday 22 May, but events can be held any time during May or June. Visit www.biggestmorningtea.com.au

We’re here to help life get better after cancer treatment Life after treatment can be a challenge. But with support from Cancer Council you can build your skills and confidence to help life get better.

• Nutrition • Exercise • Emotions • Practical support • Returning to work

• Young adult support • Peer support • Face to face groups • Online

When cancer treatment finishes call 13 11 20 or visit www.cancercouncil.com.au

VolunteerVoice | March2014

From the Understanding Cancer series

Cancer, Work & You Many people diagnosed with cancer in Australia are of working age. Cancer in the workplace can present many challenges. However, there are sound business reasons for supporting employees with cancer and carers to continue working or to return to work. Recruitment can be expensive and time-consuming, and it makes sense to retain an employee with skills, expertise and knowledge. From an employee’s perspective, work may be an important part of their identity and self-esteem. Cancer Council produces resources that may be helpful. Cancer, Work & You is a free booklet for employees affected by cancer. There is also a range of fact sheets for managers and human resources professionals.

How cancer may affect employees In many cases, cancer will impact an employee’s work life. For example, a person diagnosed with cancer will probably have several appointments, some of which may be scheduled during working hours. Treatment can also cause side effects such as nausea, fatigue and sensitivity to the sun. Although nearly all side effects can be managed or controlled, dealing with side effects may make it difficult for an employee to maintain their usual routine. It is also not unusual for a person with cancer to feel sad or depressed. An employee and their manager should discuss how to manage work commitments during this time. There may be some things the manager can do to make it easier for the employee to continue working, if that is the person’s intention.

Talking about it It is difficult for some people to talk openly about cancer. There are sometimes stigmas associated with cancer or misconceptions about it. Cultural beliefs and norms also affect social attitudes toward cancer. For example, in certain cultures, people don’t speak openly about cancer because they think it’s bad luck, contagious or always fatal. A manager and employee’s first conversation about cancer may be daunting. The manager will most likely be concerned for their employee’s wellbeing, and conscious of balancing the person’s needs with the needs of the organisation. The employee may be worried about losing their job or being treated unfairly. 6

Before the conversation, the manager should become familiar with the organisation’s policies and legal obligations, such as leave provisions, return-to-work plans, flexible working policies, and details of any Employee Assistance Programs. Human Resources should be able to provide guidance and advise how other managers have handled similar situations. A manager should be sensitive and allow the employee to guide the conversation. They should also reassure the employee that the conversation can be kept confidential, and that they cannot be sacked because they have cancer.

I agreed with HR that I could work from home during chemotherapy. However, I didn’t react well to chemo and at one point I was hospitalised and I couldn’t work at all. My employer said to do what I could.

Practical tips for employers • • • • • • • • • • • •

Plan for absences Facilitate flexible working hours Allow the employee to work from home Re-allocate tasks to another team member temporarily Help the employee prioritise work Understand that the employee may not be able to perform at their usual efficiency or capacity Encourage the employee to access any Employment Assistance Programs in place Provide a quiet place for the employee to rest Organise access to on-site parking, if possible Offer a cab voucher if the employee is feeling unwell and has to leave Offer additional paid leave, where applicable Stay in touch when an employee is away for an extended period of time

Employers have a duty of care to employees and are required by law to make reasonable adjustments to accommodate the effects of an employee’s illness, as long as it doesn’t cause an unjustifiable hardship to the business.

VolunteerVoice | March2014

Supporting working carers According to the NSW Office of Industrial Relations, 1.3 million carers are in paid employment. This is known as being a working carer. It may be difficult for an employee who is a carer to manage their workplace commitments and caring duties. Working carers may have to take time off to support the person who is sick. They can use personal leave (formerly known as sick leave) for these caring responsibilities. A supportive work environment can make it much easier for the carer to manage their situation. Carers may also access available support services, which include the Centrelink Carer Allowance, counselling, respite care, and nursing and home help. Carers donâ&#x20AC;&#x2122;t have to tell their employer about their caring role. Some working carers are reluctant to do so because they fear it will negatively affect their employment. However, it is against the law for workplaces to treat carers unfairly or

less favourably. Working carers who feel harassed or believe they have been treated unfairly can talk to their employer or complain in writing to the discrimination agency in their state or territory or the Australian Human Rights Commission.

For more information Managers, human resources professionals, employees and carers can call Cancer Council Helpline 13 11 20 for more information about these issues. The Cancer Council NSW employer fact sheets have specific information and tips for managers and human resources professionals. They are available to download from www.cancercouncil.com.au. Click on Get Support, then go to the Employers and workplaces section. The Cancer, Work & You booklet also has information about coping with side effects, changing jobs and self-employment. See Publications on the website.

This information is from the Cancer, Work & You booklet, which is part of Understanding Cancer, a series of more than 50 resources for people with cancer, their families and friends. The series provides easy-to-read information about specific types of cancer, treatments, and emotional and practical issues. It also includes audio-visual materials that can be downloaded or streamed online at www.cancercouncil.com.au/publications/understanding-cancer-book. Publications can be ordered online or from the Cancer Council Helpline 13 11 20.

Practical and support information

VolunteerVoice | March2014

Meet Don Campbell Don Campbell has been involved with the bi-annual Lismore and Villages Relay For Life event since 2002. He originally came on board as a team participant, then joined the committee, served as the event Chair for two Relays, and now offers support and guidance to the new Chair. “I enjoy meeting people and the interaction with other volunteers and the community,” says Don. Don (pictured right with wife Margaret) focuses much of his attention to fundraising, and has managed to secure a new Toyota Corolla as the first prize for the major raffle, raising an astounding $17,000 to date through raffle ticket sales! Don works closely with local Cancer Council staff, and is a vital member of

the organising team for this event. He chose to volunteer with Cancer Council NSW because of his wife being diagnosed with cancer and his wanting to assist Cancer Council in the community and raise funds for research. “I get a sense of accomplishment when I’m helping for a good cause,” he says. Don is also a Community Speaker and a member of the Lismore Community Cancer network, a group of interested people that serves as the connection between the local community and Cancer Council NSW. Additionally, Don assists with Daffodil Day each year. Don is a quiet achiever, never drawing attention to himself or to his efforts or achievements. For all that, we

consider Don to significantly embody what volunteering is all about at Cancer Council NSW, and he definitely deserves his time in the spotlight. Right here, right now. Thanks Don and Margaret.

CaNCER COuNCil REsEaRCh REPORt

CLEAR STUDY Our Cancer Lifestyle and Evaluation of Risk (CLEAR) Study now holds lifestyle and genetic information from people across NSW with all types of cancer and, where possible, their partners. There are now over 9,000 CLEAR participants, making it one of the largest studies into the causes of cancer in this State. This year, we began our first CLEAR international collaboration, with a worldwide consortium of breast cancer investigators led by Professor Dame Valerie Beral at Oxford University. Our data will contribute to a better understanding of the risk factors that lead to breast cancer, such as hormone replacement therapy and contraception. Looking deeper into 2014, further collaborations will soon be possible, as the data from the CLEAR Study is made available to the wider research community as an openaccess resource for cancer researchers in Australia as well as across the world. Scientists can use the CLEAR Study data and blood samples to evaluate risk factors for cancer. Particular interest will be in links between cancer and smoking, infectious agents, hormones, sun exposure and sleep patterns, Body Mass Index (BMI), physical activity and alcohol. 8

As the CLEAR Study is an open resource, scientists may apply to use questionnaire data and blood samples for any cancer research project, subject to scientific and ethical approval, without obligatory collaboration with Cancer Council NSW. However, we also encourage researchers to discuss with us opportunities for collaborative projects, especially those which bring expertise outside our current areas of content knowledge. Learn more here: http://clearstudy.org.au/about-clear-study

“Many people think the only way to help research is to give a financial donation, but when it comes to a broadreaching study such as CLEAR, we’re totally reliant on the courage and goodwill of cancer patients in the community” Associate Professor Freddy Sitas

VolunteerVoice | March2014

Cancer Council NSW Annual Report 2012-2013 PREvENtiON

Late last year Cancer Council’s annual report was released. A document of 58 pages, the report is full of information presented in an attractive and accessible layout. It’s well worth securing a copy by downloading a PDF document from www.cancercouncil. com.au/annualreport2013

83% SunSmart childcare centres

66% SunSmart primary schools

3,500+ parents attended Eat It To Beat It sessions

Our highlights... HOW WE iNVEST iN BEATiNg CANCER

$44m revenue delivers: OUR COMMUNiTiES

$14.8m Research

$7.2m Program delivery across NSW

$7m information

and support

$4.5m Prevention programs and advocacy

Community offices across NSW

11,000

Australia’s Biggest Morning Tea hosts

35,000+ 45,000+ Community members volunteering their time for events, research and other projects

2,700+ Volunteers working alongside our staff

Relay For Life participants

4,400 Daffodil Day volunteers

advOCaCY

Our advocacy supporters including 10,600 CanAct Community members led to some big wins: Update of sun protection guidelines to reduce children’s risk of skin cancer

New State Government smoke-free legislation in NSW

Health Star Rating System to be introduced on food labels

Future ban on commercial solariums

iNFORmatiON aNd suPPORt

2,000+ 18,000+ Families supported through our Pro Bono Programs

Calls were made to Helpline

800 200 Professional firms nationally offered pro bono services

Cancer-specific telephone support groups

VolunteerVoice | March2014

“Volunteer? Me? i’ll tell you why.” The story of a SCAN member by Andrew Crosbie I joined the Sydney Cancer Advocacy Network (SCAN) because I was asked by a friend. I enjoyed the first meeting as we were just embarking on a new campaign – improved car parking for cancer patients and their carers at Sydney hospitals – and it seemed fresh and exciting. However, after a couple more meetings, I felt like I wasn’t sure what I was doing there. The lack of adequate car parking at hospitals is not an issue that has ever touched me, nor is it particularly exciting. After those first few meetings, I was thinking about leaving SCAN. To gain evidence of the problem of car parking, we had decided to collect 100 stories from cancer patients and their carers about the difficulties they had experienced regarding parking at Royal Prince Alfred (RPA) Hospital in Newtown. With the other SCAN members, I was asked to spend an evening at the Woolloomooloo office calling Cancer Council NSW contacts to find out if any of them had stories about the difficulties of parking at RPA. I had volunteered, but on the evening, I arrived later than everyone else, apprehensive, uncertain of what to expect, not looking forward to calling strangers.

evening so she could tell the story in all its detail. Like the 100 other stories we have since collected, it was a sorry tale of unnecessary stress amid the trauma of cancer treatment. What I took away from this experience and from the other people who didn’t have a story of their own but who understood the issue was the value of what we were doing. Later, I put my hand up for a morning shift at RPA, collecting in person more stories about car parking outside the Cancer Centre. Once again, I felt nervous and uncertain. It’s challenging to stop people on their way to an appointment. Standing there with a clipboard, most people’s first reaction is to ignore you. The first few times I ventured, “Good morning. How are you today?” All I got was a brush-off. However, after receiving some excellent advice from Mark Ludbrooke, Regional Programs Coordinator – Health Strategies, I changed this to, “Good morning. Excuse me, do you mind if I ask if you drove here this morning?”

This line proved to intrigue people. It wasn’t at all what they were expecting and, without exception, everyone stopped to find out why I was asking such an unusual question. When I then briefly explained SCAN’s campaign, some people just melted. They had so many stories to tell, they couldn’t believe they had finally stumbled across an outlet for these. Even those The response I received who hadn’t come by car was incredible. That – or the one person who evening, I only When I briefly had never experienced collected one any parking explained SCAN’s story, but this campaign, some people problems – were one person was interested to learn so thrilled to just melted. They had so about our be given an campaign and many stories to tell, they outlet for her were very couldn’t believe they had frustration that supportive. we arranged, finally stumbled across after my initial call, For those who had an outlet for these. for me to call her been struggling with back later that car parking, even if they

had to leave then and there to make it to their appointment on time, they would ask if we would still be around on their way out, or if there was something they could take with them to contact us later. Being given this opportunity, they weren’t about to let go. I spent only two mornings at RPA, but over the course of those six hours, I collected around 10 stories and spoke with over 50 people. One young man had to leave his grandmother alone for her appointment and spend the next 40 minutes driving around looking for – and failing to find – a parking space. I collected his story while he was double-parked – he had to move his car midway through to allow the tailback behind him to clear. One woman told me of having to leave her mother, who did not speak English well, alone for a consultation so she could feed the parking meter. She consequently missed the cancer diagnosis and her mother did not understand what the doctor told her. It was only considerably later she and her mother learned about the cancer. Another young man told me that the parking fines he had received as a result of appointments running late and the metered parking expiring were close to causing him to go broke. He was not well off and was unable to work because of his condition. He told me he’d marry me if we could help to resolve the parking situation at RPA. A woman whose story I’d collected early one cold morning reappeared later with two cups of tea for me and my fellow SCAN story-collector to keep us warm. When she said goodbye for the final time, she held my hand for the longest time, thanking us for what we were doing. I had no personal connection to this campaign. In the early stages, I was barely motivated at all by what we were doing. I had thought about leaving SCAN.

VolunteerVoice | March2014

Central and Southern Sydney Local News

Leading the way with local advocacy Cancer Council NSW plays a vital role influencing legislation, public policy and public funding through advocacy. Advocacy can be described as public support for, or recommendation of a particular cause or policy, and is one of the ways Cancer Council NSW is beating cancer with our volunteers.

“Even small actions, like making phone calls or giving up a morning to collect stories, can have a big impact” However, as soon as I made contact with the people actually affected by this issue, everything changed. Even small actions, like making phone calls or giving up a morning to collect stories, can have a big impact. The people I spoke with felt frustrated, powerless and unheard. The small actions so far of this SCAN campaign have given them power. It has given them a voice, and it is now our task to unite these voices and channel them into real and lasting change.

enabling others to achieve purpose in the face of uncertainty. They also decided it was time for their rapidly growing SCAN to have its own Leadership Team, responsible for planning and running the SCAN meetings, making campaign decisions between SCAN meetings, and supporting new SCAN members.

In Central and Southern Sydney, the Sydney Cancer Advocacy Network (SCAN) is a group of over 50 advocates that comes together each month to campaign on local issues and support Cancer Council NSW statewide campaigns.

Thereafter, four SCAN members, Andy Crosbie, Cat McPherson, Tony Cain and Yasmeen Al Hatimy, were endorsed as the inaugural SCAN Leadership Team, with two reserves, Alison Todd and Lillian Birchall.

Last year, six SCAN members attending a leadership development conference learnt that leadership is about taking responsibility for

For more information or to join SCAN, please email Mark Ludbrooke at markl@nswcc.org.au or call (02) 9334 1857.

Suffice to say no longer am I struggling to feel motivated. Read more about Cancer Council patient support activity here: http://canact.com.au/car-parking-attreatment-centres and another of Andrew’s stories at http://canact.com. au/reflections-on-camp-canact-2013

VolunteerVoice | March2014

Central and Southern Sydney Local News

Celebrating three years of service St George Hospital in Kogarah’s Cancer Council Information Centre opened its doors in April 2010, providing a service to cancer patients, carers and hospital health professionals between 9:30am and 4pm, Monday to Friday.

Cancer Council NSW aims to have no-one face a cancer diagnosis alone... we can keep working with patients and carers to reach this goal Most of the Centre’s volunteer team celebrated three years of commitment last April. Between July and December 2013, they provided over 2,800 direct services within the hospital, which is a remarkable achievement.

Cancer Council Information Centre team-members (left to right), Pam Karaolis, Janet Kassur, Bernice Wright, and Judy Rose.

to support patients”, and said that listening to and supporting patients was “a humbling experience”.

returning to the Centre and thanking the team for their work with a box of chocolates.

Now offering a meal and information service to chemotherapy out-patients, and recently hospital in-patients, volunteers enjoy being able to help others. One volunteer team member commented, “I feel blessed to be able

Upon receiving a volunteer service on the hospital ward, a cancer patient said the volunteer team “have made this a good day for me”. Visitors regularly thank the team for “a wonderful service”, one recently

Cancer Council NSW aims to have no-one face a cancer diagnosis alone, and with the assistance and dedication of the St George Hospital volunteer team, we can keep working with patients and carers to reach this goal.

Heading for a Relay good time Two big Relays about to kick off! The Sutherland Shire Relay For Life, NSW’s largest Relay, takes place on 3 and 4 May, with commitments from 225 teams, 200 survivors and carers, and a fundraising goal of $650,000. The Eastern Suburbs Relay For Life will take place on 17 and 18 May, aiming to have over 55 teams and 650 participants there on the day, and to raise an incredible $250,000 for Cancer Council NSW.

For further information about these Relay For Life events and how you can be involved, visit their websites, http://relay.cancercouncil.com. au/2014/sutherland_shire_2014 and http://relay.cancercouncil.com. au/2014/eastern_suburbs_2014 You can also contact your local Relay For Life Coordinator, Helen Appleton, by email at helena@nswcc.org.au or call (02) 9334 1921.

VolunteerVoice | March2014

Greater Western Sydney Local News

Regional snapshots

Fairfield Relay For Life: this year there were more than 30 teams. From a diverse range of backgrounds, attendees made it not only the biggest Fairfield Relay For Life but one of the most multicultural in NSW.

Eight-year-old Joshua McKeown has raised more then $21,000 for Cancer Council NSW. Joshua’s world changed during Christmas 2011, when his fire-fighter father was diagnosed with throat cancer.

University of Western Sydney Health Promotions students Sarah Marchant, Megan Adamson and Advocate, Sarah Syed, invited Relay participants to sign the tobacco retail pledge.

Certificate-bearing volunteers Ken and Marj Freeman and Bob Maynard attended the Nepean Blue Mountains Volunteer Of The Year Awards at Penrith Panthers on 9 November 2013.

Western Sydney Cancer Advocacy Network members supporting The Tobacco Retail campaign. Over 30 volunteers from the Greater Western Sydney region participated in this research project.

Bob Maynard, Lynn Willis, Norma Waller, Bev Fink, Karen Stewart and Thea Lunney formed a ’Daffo-Dill’ team at Relay For Life Penrith, May 2013, selling daffodil bulbs to raise funds.

VolunteerVoice | March2014

Hunter Central Coast Local News

Central Coast dancing stars Local media identities Craig and Mandy joined eleven of the Central Coast’s brightest stars to raise money for Cancer Council NSW. Craig provided his vocal skills as MC for the event, and Mandy demonstrated her dancing ability in the Musical Theatre style.

partners with our Erina Fair office and have supported Cancer Council events since 2010. In addition to Craig and Mandy the line-up of local stars featured Gosford Mayor, Lawrie McKinna, owner of ‘Lizottes’, Brian Lizotte, and Australia’s Got Talent grand finalist, Greg Gould.

Much like the popular Dancing with the Stars TV show, each local ‘star’ partnered with a professional dance instructor for six weeks to learn a dance routine which was then performed at a gala event on 21 February 2014. Craig and Mandy are the weekday breakfast hosts for Star 104.5FM, a commercial radio station run by DMG Radio. Star 104.5 are corporate

Glammed up and voguing.

Craig and Mandy, chic to chest.

What’s age got to do with it? Gosford City Relay For Life is at Central Coast Grammar School on 29 March 2014. Held for the first time in 2013, the event raised an impressive $82,000. Liz Hart (pictured above), Volunteer Committee Chair says, “Last year’s event was a great success and involved a large participation of youth from our local communities. We really want to focus on growing our engagement with local high schools and get them involved. “Last year saw over 400 people participate in the overnight event, including around 120 students from local schools, and the feedback from everyone was extremely positive with the youth loving the local bands, live twitter feeds on the

big screen, the Segway rides and themed laps.” Gosford City Relay has been a great way for our local youth to get involved, not only in community volunteering, but also Cancer Council’s work generally. The committee’s hard work, and the local schools’ fundraising efforts, prove that commitment and success can come at any age and that all our community members, young and old, have something to offer.

Liz Hart, current Chair of the Gosford City Relay For Life committee, initially chose to volunteer at Cancer Council NSW assisting at the Mingara Relay 2011 “to gain experience in event management. However, whilst I was doing this, my mum was still undergoing treatment for breast cancer. My grandmother and aunty have both beaten breast cancer, so it all seemed relevant.” Liz says that “the most enjoyable part of volunteering for Cancer Council is meeting and working alongside some amazing people. Meeting other volunteers and also participants of Relay inspires me to continue to volunteer for many more years to come.”

On the starting line for the Segway race at last year’s event.

Read more from Liz at: www.cancercouncil.com.au/getinvolved/volunteer/volunteer-voice

VolunteerVoice | March2014

Northern NSW Local News

transport to treatment at Port macquarie In late 2013, eight members of the Port Macquarie community formed a team of volunteer drivers for the new transport to treatment program in Port Macquarie. This transport program is unique in that the drivers all reside in Dahlsford Grove, an ‘active living’ village in Port Macquarie. The Subaru Forester used to transport patients, generously donated through a grant from the Newcastle Permanent Charitable Foundation, is also parked within the secure village at a car space charitably donated by fellow resident, Marion.The drivers, with just a short walk to the vehicle, are able to respond within minutes to emergency transport needs within the Port Macquarie community. Drivers Roy, Jan, Susan, John, Keith, Warren, Noreen and George, having all undertaken driver training, are ‘ready to go’, generously giving up their time to transport disadvantaged cancer patients to and from their treatment. John says, “I have had personal experience as a cancer sufferer and understand the difficulty with transport, in some cases on a daily basis. I feel this program removes much of the stress for those with limited resources”.

Our Transport to Treatment drivers lined up and “ready to go”.

Patients living within the Hastings Local Government Area, such as Wauchope and Laureton, with no alternative transport available other than expensive taxis, desperately need this program. The drivers are excited to be a part of providing a vital service to the Port Macquarie community and making such a difference in the lives of cancer patients being treated at Port Macquarie hospital.

Nutrition trailblazers gain nutrition knowledge, others confidence in group facilitation and public speaking, and all make a tangible difference to kids’ nutrition and reducing future cancer risk. Gavin Winchester is a father of three and one of our star Program Facilitators in Coffs Harbour. “I enjoy volunteering because it gives me experience in my field of study (nutrition), and because cancer has touched my family, including the loss of a sister who I never had the chance to meet. If we can prevent this happening to just one more person then it would be beyond worthwhile”. Project Officer Aimee Johnston (second from left) with parents (left to right) Carl Crook, Shona Hunter and Ronild Singh reinforcing the Healthy Lunch Box message.

A team of dedicated volunteers have steadily promoted better nutrition to local parents through the Eat It To Beat It program in Northern NSW. Program Facilitators conduct short Healthy Lunch Box talks at kindergarten orientation days and workshops with small groups of parents throughout the year to promote the consumption of fruits and vegetables. Our Program Facilitators include parents, nutrition students and retired teachers. The benefits of the role vary – some

The link between nutrition and cancer is a relatively new one, and not well understood by the general public. It is important we take a lead in promoting the benefits of fruits and vegetables, whilst making it practical for families to eat more of each. Our amazing volunteers have made it possible to educate 782 parents in Northern NSW since launching in May 2013. To find out more about Eat It To Beat It, email Aimee Johnston at aimeej@nswcc.org.au or call (02) 6639 1306. Alternatively, phone the Eat It To Beat It hotline (02) 4923 0710, or visit www.cancercouncil.com.au/ reduce-risks/diet-exercise/eat-it-to-beat-it

VolunteerVoice | March2014

Northern Sydney Local News

Steph and Cam pair-Chair for Relay By Steph Lam This year we took on the roles of co-chair of the Hornsby Ku-ring-gai Relay as we really wanted to help consolidate the knowledge within the committee, and put into place processes and knowledge management tools so that the committee and event could be sustainable into the future. After being on the committee last year, I found that a lot of the knowledge over the past 10 years of the event had left as committee members moved on. This year we hope to put together a ‘bible’ so that it can be passed on to the next Chair, which will allow the new committee to build from the existing event as opposed to starting from scratch each year.

the event and committee from complementary perspectives. While working together as a couple has its benefits, we also knew it was going to be challenging given our different backgrounds and personalities.

We also wanted to do a project together as a couple. With my events background and Cam’s HR background, we were able to manage

The remainder of Steph and Cam’s story can be read online at www.cancercouncil.com.au/getinvolved/volunteer/volunteer-voice

Volunteer Profile Kate Sippel has volunteered at Cancer Council NSW’s Northern Sydney Regional Office since August 2011, tirelessly attending the office once a week as an admin assistant. As a ‘thank you’ for all her hard work, the office staff recently put together and presented Kate with a card and silver bracelet in recognition of all the time she has dedicated and the support she provides. Kate, who is local to the Crows Nest area, has said that her favourite part of the job is the interaction with the staff and other

Speaking bug bites survivor Vedant Tijoriwala was a twotime cancer survivor by the age of 18. He is now 20, in his second year at Macquarie University, and in his spare time coaches school soccer. He commenced as an office volunteer at the Northern Sydney office two years ago, after taking part in the Hornsby Relay For Life.

At just 20 years of age, Vedant has proven to be an inspiration to all of us at the Northern Sydney Office Inspired by his experience, he wanted a more involved role in Relay across the board, so volunteered in the Northern Sydney Office with the Events Team. He spent over a year assisting behind the scenes, but when Uni became a little hectic he took a step back, although continuing to participate in Relay For Life, including taking on the role of key speaker at Manly Relay For Life 2013.

volunteers. As an avid concert-goer, Kate is always keeping everyone at Northern Sydney up to date with all the goings on in the music world.

Vedant must have caught the speaking bug, because he decided to complete the training for our Ambassadors Program. He is now a member of an exclusive group of speakers who go to various community groups, clubs and corporates, sharing their stories.

Kate is a huge asset to the team and we look forward to working with her through 2014 and beyond.

At just 20 years of age, Vedant has proven to be an inspiration to all of us at the Northern Sydney Office.

Volunteer Coordinator Iuli Tristram and Kate Sippel.

VolunteerVoice | March2014

Southern NSW Local News

A very special cookbook They may come from all around the globe, but the recipes in the new Recipes for a Cause Cookbook do share a common theme – every recipe is a cherished family favorite. The cookbook has been created by local Cancer Council Information Centre volunteers, Helen Davis and Maria Beretov, to raise money for Cancer Council NSW and the Illawarra Cancer Carers. According to Helen, the idea for the book came about from the amount of recipe swapping that went on between volunteers, staff and patients at the Wollongong Cancer Care Centre. “We are always talking about food and swapping recipes at the Information Centre,” Helen said.

“It doesn’t matter where you come from in the world, talking about food is something we all love to do. “So we thought, why don’t we collect all those fabulous recipes, put them into one book and try and raise some money for cancer research and care at the same time.” After months of collecting, cooking and, of course, tasting the recipes, the best 170 were collated into the Recipes for a Cause Cookbook. Thanks to the generosity of SNAP Printing, Wollongong MP Noreen Hay, and Wollongong City Diggers, 500 copies of the cookbook are now available for purchase at $15 each.

The cookbook was officially launched on 25 November at Cancer Council NSW’s Information Centre in the Wollongong Cancer Care Centre. Copies can be purchased at the Information Centre – email Helen Davis at helendavis.figtree@gmail.com or call 0438 004 463.

Connecting Communities Conference This year they have driven 104,835 kilometres over 3,094 trips, visited hundreds of patients, raised millions of dollars, made thousands of cups of tea, given hugs and wiped away tears.

Communication and Community Engagement, Anita Tang and Carolyn Grenville, from Advocacy and Policy, and Lorna O’Brien, Helpline Manager, addressed attendees.

Who are “they”? “They” are the army of volunteers that make the work of Cancer Council NSW Southern Region possible.

“The conference was a wonderful opportunity for volunteers to not only develop new skills, but also to meet and learn from each other,” Leah Dawson, Southern Region Community Workforce Coordinator observed.

The Southern Region hosted a two day conference 2-3 December, Connecting Communities, aimed to support the hundreds of volunteers that contribute to Cancer Council NSW Southern Region every week in roles ranging from office assistant to bus driver. The conference (pictured right) provided learning and development training that will see Southern volunteers refine their skills so that they may better assist their local community in the fight against cancer.

“It was a way for Cancer Council NSW to support the people who give so much to us, as it is these dedicated

volunteers, interns and supporters who provide Cancer Council NSW with a saving of over $8.8 million dollars per year because of the volunteer hours they contribute to the organisation.” “Without their generous contribution, we would not be able to do the work we do to help cancer patients in our region.” The event received rave reviews from attendees who thoroughly enjoyed the guest speakers and networking with each other.

Cancer Council guest speakers Mia Parsons, Community Engagement Manager; Sam Thorp from Research

VolunteerVoice | March2014

Western NSW Local News

volunteer Profile Joyce O’Shannessy and her daughter Maree Weldon have raised funds for Cancer Council for the last 20 years, through Australia’s Biggest Morning Tea, Daffodil Day and Pink Ribbon Day. The funds raised at these yearly events contribute to cancer research to find a cure for this killing disease. Entering their twentyfirst year volunteering, Marie promises it will be bigger and better then the last.

Far West Community Cancer Networks Cancer Council NSW has recently developed two Community Cancer Networks (CCNs) in the Far West, embracing Bourke and Broken Hill. The volunteer CCN members are a broad representation of the community, including the Local Health District, Aboriginal Medical Service, Medicare Local, Local Council, Health Professionals, Specialists, Carers, Survivors, and Fundraisers. These CCNs have been effective in identifying local cancer needs that have guided delivery of Cancer Council NSW services in their respective area. This targeted knowledge and consequent efficiency of services has led to the delivery of several Cancer Council NSW initiatives in the Far West region, including financial assistance programs, the Eat It To Beat It nutrition program, “wall of cancer” information at Local Health Service Oncology, SunSmart and Sun Sound programs. The volunteer committee members have been integral in determining how these services can be adapted to suit the unique landscape of remote communities.

“My mum Joyce and I continued on fundraising for the late Leeanne Daburger (O’Shannessy), Joyce’s daughter who lost her battle to breast cancer at the age of 33. She left three children behind, Hannah 7, Adam 6 and Sam 3. We know from personal experience how devastating this disease can be for life. “The biggest satisfaction for us in volunteering for Cancer Council is being part of something special that helps others when they most need support, seeing our wonderful community gather together and dig deep, always ready to help for all events either by cooking, selling raffle tickets, making items, donating their time, and thanks also all the business houses that donate so much towards our community fundraiser. All this shows the community spirit in Bourke and the generosity of our people.” Joyce O’Shannessy is an “80 years young” lady who volunteers so many hours with so many community events – Meals on Wheels, hospital trolley, Catholic ladies, Touch for Beauty salon, and garden club. Joyce lives for her family and is a very caring and kind person who loves giving. Maree Weldon owns a beauty and massage salon. “I have three children, aged 14, 12 and 9. My husband Wayne is an underground miner. I love sports and exercise which I do everyday because it makes me feel good and healthy.”

griffith gaining Advocacy Network 2014 will be a great year with our very first Griffith Advocacy Network (GAN) starting up. This group is all about advocating for local issues as well as targeting issues that sit at a state and national level. Training for the Griffith Advocacy Network will be held in Griffith on 2 and 3 May 2014. For more information please email Melissa Nixon at melissan@nswcc.org.au or call (02) 6937 2600.

VolunteerVoice | March2014

Book review

Recipe Corner Vegie Curry

A Cancer Patient’s Guide to Overcoming Depression and Anxiety: Getting Through Treatment and Getting Back to Your Life by Derek R. Hopko and Carl W. Lejuez Modern medicine has developed solutions that allow cancer patients to live longer lives, but depression and anxiety often make these years painful and difficult. This book develops the techniques of behaviour activation therapy into practical activities people recovering from cancer can use to recognise and overcome problems with depression and anxiety.

2 cups rice 1 eggplant, cut into thick slices 1 tbs olive oil 2 cloves garlic, crushed 1 small piece ginger, peeled and sliced 1 onion, chopped 2-3 tbs red or green curry paste (according to taste) 2 potatoes, peeled and cubed 2 carrots, peeled and cubed 1/2 butternut pumpkin, peeled and cubed 1 red or green capsicum, seeded and chopped 1 cup cauliflower, broccoli florets or green beans 425 g can chopped tomatoes 1 cup reduced-fat coconut milk 2 tbs chopped herbs (e.g. basil or oregano)

Cook rice following packet directions. Heat oil in a large saucepan and add garlic, ginger and onion, cooking gently to soften. Stir in curry paste over low heat. Add vegetables and canned tomatoes and stir well. Cover tightly and bring to the boil, then simmer until vegetables are tender, 20 to 40 minutes depending on size. Add coconut milk and simmer for a further 5 minutes. Add herbs and stir well. Variation: For a lower fat curry, replace coconut milk with 1 cup low-fat evaporated milk and 1 teaspoon coconut essence. Serves: 6 Preparation time: 30 minutes Cooking time: 40 minutes

The concept of behaviour activation is deceptively simple: By reconnecting with naturally occurring sources of pleasure – in other words, by engaging in activities they already know they enjoy doing – individuals can put themselves on the path to actively replace feelings of depression and anxiety with feelings of accomplishment and contentedness. Successes build on one another, creating a model for ever more positive feelings in everyday life. The key to success, though, is to keep focusing on engaging in enjoyable behaviours without getting bogged down by pain, frustration, and worry. Keeping on track is facilitated through the step-by-step approach offered in this book.

Friday 22 August Register at www.daffodilday.com.au/ volunteer-your-time where various shift times and locations are available across NSW. Dress up in yellow for a fun day contributing to growing hope for a cancer-free future.

www.daffodilday.com.au/ volunteer-your-time

Monday 27 October Registrations will be open in August at www.pinkribbonday.com.au. You can contribute to the fight against women’s cancers by joining us in raising awareness and funds.

www.pinkribbonday.com.au 19

VolunteerVoice | March2014

Events Calendar Relays For Life Lismore & Villages: Southern Cross University, 5 April Bega Valley: Pambula Sports Complex, 5 April Inverell: Varley Oval, Cnr Evans and Mansfield Streets, Inverell, 5 April

Eastern Suburbs: McKay Sportsgrounds, Centennial Park, 17 May Hawkesbury: Hawkesbury Showground, Clarendon, 24 May Coffs Harbour: Coffs Coast Sport & Leisure Park 2, 31 May Find a local Relay here www.relay. cancercouncil.com.au/find Visit www.cancercouncil.com.au/getinvolved/events for more information on Cancer Council’s 2014 events.

Liverpool: Hillier Oval, Liverpool, 5 April Muswellbrook: Weeraman Field, Common Rd, Muswellbrook, 12 April Eurobodalla: Hanging Rock Sports Complex, Batemans Bay, 12 April Sutherland Shire: Sylvania Athletic Track, Belgrave Esplanade, Sylvania, 3 May Southern Highlands: Eridge Park Oval, Bowral, 3 May Penrith: Howell Oval, Cnr Station St and Jamison Rd, Penrith, 3 May Kiama: Kiama Leisure Centre, 3 May Mudgee & Districts: Victoria Park, 3 May Hills: Wrights Road Reserve, Kellyville, 3 May

Volunteer Survey 2014 Cancer Council invites you to tell us what works best for you about volunteering with us. This short survey will assist us in enhancing volunteers’ experiences at Cancer Council. Please check your email for a web link inviting you to take part, or you may have already received your survey in the post. If you have not received the survey and wish to take part, please contact the Volunteer Unit on (02) 9334 1813.

Help us beat cancer Join a research study NOW!

From time to time, Cancer Council conducts research studies on people drawn from the NSW population. These studies range from questionnaire-based surveys, focus groups and interviews to other types of research. Your help is vital to our research to defeat cancer. By helping us now, you can help us defeat cancer in the future. Register at www.cancer council. com.au/research/join-aresearch-study or call the special Join a Research Study number, (02) 9334 1398. Please note: study participants will not necessarily be cancer patients.

Your local Cancer Council contact details

Regional and Rural offices: Hunter & Central Coast Charlestown Regional Office, Unit C1.2, Level 1, Landmark Building, 215 Pacific Hwy, Charlestown NSW 2290 .................................................................................................................................................................................... (02) 4923 0700 Upper Hunter Community Office 69 John St, Singleton 2330 (PO Box 570) ................................................................................................ (02) 6571 2899 Erina Fair Community Office The Hive, Erina Fair, Erina NSW 2250 (PO Box 5102) ................................................................................ (02) 4336 4500 Northern NSW Suites 8 & 9, Level 1, 130 Jonson Street, Byron Bay NSW 2481 .......................................................................................... (02) 6627 0300 Coffs Harbour Office 121 High St, Coffs Harbour NSW 2450 ................................................................................................................................... (02) 6659 8400 Tamworth Office Shop 1, 218 Peel St, Tamworth NSW 2340 (PO Box 1616) ................................................................................................. (02) 6763 0900 Southern NSW Wollongong Regional Office, Suite 7 Ground Floor, iC Enterprise 1, Innovation Campus, Squires Way, North Wollongong NSW 2500 (PO Box 21, Fairy Meadow NSW 2519) ................................... (02) 4223 0200 Bega Community Office Shop 8, Auckland Plaza, 81-83 Auckland St, Bega NSW 2550 (PO Box 772) .................................... (02) 6492 1805 Queanbeyan Community Office Southern NSW Medicare Local, 15 Crawford St, Queanbeyan NSW 2620 (PO Box 1506) ................................................................................................................................................................................................................................................... 0413 886 584 Western NSW Orange Regional Office, 4a/122-124 Kite Street, Orange NSW 2800 (PO Box 1977) .............................................. (02) 6392 0800 Wagga Wagga Office: 1/37 Tompson St, Wagga Wagga NSW 2650 (PO Box 1164) ............................................................................... (02) 6937 2600

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Metro Regions: Central & Southern Sydney 153 Dowling St, Woolloomooloo NSW 2011 (PO Box 572, Kings Cross NSW 1340) ............ (02) 9334 1754 Northern Sydney Crows Nest Regional Office, Level I, 117 Willoughby Rd, Crows Nest NSW 2065 .............................................. (02) 9334 1600 Greater Western Sydney Parramatta Regional Office, Rotary House, 43 Hunter St, Parramatta NSW 2150 (PO Box 3426) .. (02) 9354 2000 Casula Community Office 39 Ingham Drive, Casula NSW 2170 (PO Box 287) ............................................................................................ (02) 9354 2050 Penrith Community Office 114-116 Henry St, Penrith NSW 2750 (PO Box 4379) .................................................................................... (02) 9354 2060 Rouse Hill Community Office Health One, The Terrace, 40 Panmure Street, Rouse Hill NSW 2155 (PO Box 6112) ......... (02) 9354 2070