NATIONAL MULTIPLE SCLEROSIS SOCIETY
CENTRAL VIRGINIA CHAPTER ANNUAL REPORT 2012
Join the Movement: www.moveVA.org
Dear Friends & Supporters, As we reflect back on 2012, we think of progress and growth. We had nearly 3000 people participate in our walk and bike events, we doubled the amount of money we gave to scholarship recipients, and more Frank N. Cowan treatments options were made available to help slow Chairman, Board of Trustees the progression for relapsing remitting patients. Despite this success at the chapter level and nationally, we still have more work to do so we can find a cure, and that work needs to continue NOW. You may be familiar with our national campaign NOW, which stands for No Opportunity Wasted, to raise $250 million by 2015 to meet our goal of being a driving force of MS research and treatment to stop disease progression, restore function, and end MS forever. We are working together to fuel more MS research, focus more on progressive MS, and recruit more scientists to conduct MS research. During 2012, we have made some great progress to achieve this fundraising goal. We have evaluated over 400 applications across all research fields for funding and committed $46.6 million to 131 new multiyear projects, fellowships, and initiatives. But we are far from being done – we hope you will join us in this mission and we cannot do it without you. We have high expectations for 2013. We hope you will join us as we continue to search for a cure. Thank you for your support as we continue to move towards a world free of MS.
Frank & Sherri Page 1
Sherri D. Ellis, Chapter President
CHAPTER HIGHLIGHTS 2012 New Fundraising Event The chapter hosted its first Shockoe Shuffle: A Night to Benefit MS. Over 80 people came downtown for a fun night that included a tour of Shockoe Bottom’s hottest restaurants and bars. A glass was raised to fight MS and almost $4,000 was raised to assist local families affected by MS and fund critical research! Chapter Services Strive to Assist Those in Need The chapter provided $37,088.25 in financial assistance for those with short-term critical needs, such as help paying for rent, utilities, durable medical equipment, and home modifications. The chapter awarded $16,000 in scholarships to 10 college-bound high school seniors who either have MS themselves or have a parent/guardian living with MS. Chapter Returns to MS Kids Camp The chapter again partnered with the Western Pennsylvania, Central Pennsylvania, and Metro Jersey Chapters to host MS Kids Camp for children who have a parent/guardian living with MS. Over 130 children attended camp with 15 attending from Central Virginia.
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Walk MS & Bike MS Fundraising Events We hosted 4 Walk MS events this year. 2317 people came out and Joined the Movement ®. We raised a total of nearly $300,000! Walkers took to the streets in Richmond, Fredericksburg, Tappahannock, and Petersburg. Bike MS had beautiful weather and raised $393,747. The Page Auto Group returned as our presenting sponsor. Thanks to all the teams and individuals who rode and fundraised.
Our Fredericksburg Luncheon raised over $11,000, had 90 attendees, and honored local English teacher, Laurie Gallup, with the Fredericksburg Women on the Move Award. Thank you to Saxon Shoes and Union First Market Bank for sponsoring this amazing luncheon!
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MS Activists Move Things Forward Nationwide advocacy efforts brought staff and volunteers to Washington, D.C. for the National MS Society’s 21st Annual MS Public Policy Conference. Activists met with their members of Congress to discuss issues such as: increasing MS research funding, enhancing and extending the Lifespan Respite Care program, and supporting increased MS awareness. Women on the Move in Richmond & Fredericksburg This year we hosted two Women on the Move luncheons in Richmond and Fredericksburg. The luncheon in Richmond had 195 attendees and raised over $36,000! Lisa Germano, President & General Counsel of Actuarial Benefits & Design Company received the 2012 Woman on the Move Award. A big thank you goes out to CowanGates and Saxon Shoes for sponsoring our 5th annual Richmond Women on the Move Luncheon.
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CENTRAL VIRGINIA CHAPTER MS SUPPORTERS $25,000 to $100,000 J. Carrington Burgess Trust Bon Secours Health System, Inc. Owens & Minor MeadWestvaco Smithfield Foods, Inc. Dominion Foundation $10,000 to $24,999 Community Foundation, The Mr. John R. O'Connor Altria Client Services McGuire Woods Mr. Lawrence J. Page Community Health Charities Of Virginia Mr. & Mrs. Alexander H. Slaughter Anthem Health Plans of Virginia Troutman Sanders LLP Universal Leaf Tobacco Co. HCA Virginia VCU Health Systems Authority $5,000 to $9,999 Virginia Capital Partners Mr. & Mrs. Matthew L. Austin Healthsouth Rehab Hospital of Virginia Wells Fargo Bank, N.A. Mr. Ric T. Hersh Wells Fargo Foundation Williams Mullen Foundation Sheltering Arms Rehabilitation Hospital Altria Employee Involvement Program Mr. & Mrs. Joe R. Wilson Mr. Frank N. Cowan Precision Medical Products, Inc. Samuel T Byron Jr. Charitable Foundation Inc. Ahold Financial Services Estate of Margaret T. Core Genworth US Trust Luck Stone Optima Health Saxon Shoes UPS Foundation, Inc. Verizon Litt and Kath Thompson Deborah J. Johnston Foundation Inc. Dominion Resources, Inc. $2,500 to $4,999 Grand Aerie Fraternal Order of Eagles Ms. Diana Goody Mr. Glenn Nunziata Mr. Rick Schoepke Healthsouth Rehabilitation Page 3
Hospital of Petersburg Capital One Services LLC Ernst & Young LLP Mr. David E. Jones Agee's Bicycle Company EMD Serono, Inc. Gray Holdings, LLC KPMG LLP Mr. Wallace Stettinius Teva Neuroscience, Inc. Ms. Deborah J. Johnston Williams Mullen Clark & Dobbins Barefoot Wines Christian Foundation of the Triangle Markel Corporation Mr. Bruce Gray Mr. Kevin Arquit Ms. Julia P. Lee Park Group Union First Market Bank The Landmark Company SunTrust Bank $1,000 to $2,499 Altria Matching Gifts Program Mary Washington Healthcare Mr. & Mrs. Reid Schweickert Bruce & Pam Lowery Ms. Jeanette F. Banton Call Federal Credit Union Handcraft Cleaners Launderers Inc Miss Shannon R. Sanders Mr. Blake Manners Bank of America Matching Gifts Program Ms. Jeanine E. Shearin Mr. Mike Hull Ms. Detra Hagerman Mr. Robbie Quintas Allstate Insurance Booz Allen Hamilton Car Pool Inc J Cline Moriah Fund Inc., The Mr. Julian S. House Mr. Robert E. Spatt Mr. Steve Walman Ms. Andrea H. Childress Ms. Eva Hardy Ms. Joy Spicer Virginia Physicians for Women Mr. Mark J. Avery Ms. Allison T. Pribble Mrs. Susan J. Bodin Dr. Scott C. Berman Mr. Phillip Patch Mr. Robert S. Parsley Mrs. Rose Marie Schoepke Virginia Farm Bureau Mutual
Insurance Co Mrs. Marianne S. Cowan Women In Action County Line Baptist PermaTreat Inc. Mrs. Karen S. Smith Kim Nelson Mr. Ronald P. Powell Jr. Mr. Scott Covey Mr. Jonathan B. Miller AmerisourceBergen Best Buy Co., Inc. County Line Baptist Church DPW Training & Associates GGNSC Admin Services LLC Knights Of Columbus Bishop Ireton Council, #6189 Mr. Bob W. Bailie Mr. Douglas N. Yocom Mr. Harvey D. Wright Jr. Mr. James H. Van Ness Mr. Joe Reubel Mr. Joel Plotkin Mr. John Griffiths Mr. Ray M. Paul Mr. Robert Crotty Mr. Timothy S. McCormick Mr. Warren Graham Mrs. Mary B. Line Ms. Joan Wilton Ms. Kathryn Kimball Neurological Associates Inc Pearl's Cupcake Shoppe LLC Rudy L. Hawkins Elec Contractors, Inc. Spotsylvania Regional Medical Center Colliers Texas Hunton Williams PriceWaterHouse Cooper Comfort Keepers $500 to $999 Bank Of America United Way Campaign Mrs. Mary A. Shifflett Mr. Markus Miller Ms. Brenda Miller Mr. John E. Burchell Jr. Miss Meredith C. Polk Insignia Technology Services LLC Cleveland Cement Contractors Motley's Auction & Realty Group Mr. Bernard M. Dworski Mr. Frank Blankemeyer Mr. Michael T. Johnson Mrs. Jennifer L. Bittmann Patrick Pontiac, Buick, GMC Mr. Bruce M. White Ms. Anita A. Bradley Mr. Jack F. Speed Jr. Dr. John O’Bannon
Mrs. Diane J. Knupp Ms. Karen Halterman Dr. Lawton Salley Jr. Red River Foods, Inc. Ms. Monica L. Byrom Anagram International Inc. Commonwealth Foundation I Commonwealth Foundation II Commonwealth Foundation III Commonwealth Foundation IV Commonwealth Foundation V Mobility Supercenter Dr. Glenn Dubois Ms. Fredburg Branch Mr. John Condon Ms. Greta W. Kidd Mr. TC Jones IV Mr. Erik D. Lindauer Mr. John W. Polk Jr. Mr. Thiyag Chinnappan Mrs. Elizabeth B. Paramore Dr. Alan E. Schulman Mrs. Joycelyn M. Marshall Ms. Ann Barrows Ms. Maria S. Franklin Mr. Jeffery S. Carpenter Richmond BMX Mr. Chas L. Sforza Mr. Sigrid Strebe Mr. Charles Scoven Ms. Susan Guadagno Mr. Donald Mayes Mr. Jamey Davidson Mr. Gary N. Church Acorda Therapeutics, Inc. Betallic, LLC Brooks Printing Service & Equipment Co., Inc. C. Michael & Kim Morris CCA Financial Services, LLC Chris Caffey Circinus, LLC Dr. James Heerwagen Evans & Chambers Technology Llc Horizons Hospice, Llc Little Elam Baptist Church Miss Lyndsey M. Lewis Mr. Bruce A. Harding Mr. Bruce McDonald Mr. Burton B. Ross Mr. Charles E. Olsson Mr. Daniel J Lawrence Mr. David G. Thomassen Mr. David Trebour Mr. David Young Mr. Edward H. Buchanan Mr. Francois Bertrand Mr. Frank J. Barcalow Jr.
CENTRAL VIRGINIA CHAPTER MS SUPPORTERS Mr. Gary Woods Mr. Gerald T. Zerkin Mr. Ignacio Metcalf Mr. Jack R. Broome Jr. Mr. James Guess Jr. Mr. Joe Parker Mr. Larry C. Howington Mr. Mark Paniccia Mr. Matthew Mcgrath Mr. Padraic Baxter Mr. Patrick W. Campbell Mr. Richard F. Cousins Mr. Roy Bivens Mr. Stephen M. Goss Mr. Thomas R. Frantz Mrs. Alexandra Solal Mrs. Cindi D'Aguanno Mrs. Margaret P. North Mrs. Nancy Doerr Mrs. Sandra Sieben Mrs. Virginia Hutchins Ms. Carol A. Ward Ms. Caroline Thielsch Ms. Caryn L. Moore Ms. Darci Weaver Ms. Deborah Y. Ho Ms. Frieda Raben Ms. Janet Hemming Ms. Janet J. Garzia Ms. Janet L. Thrasher Ms. Joyce Fenner Ms. June Altizer Ms. Kathy Claar Ms. Melissa Silver Ms. Pamela M. Bolt Ms. Rose M. Shaia Ms. Shirley Wrenn Ms. Sue Flynn Ms. Susan G. Phillips NOVEC NOVEC Helps Old Dominion Electric Cooperative Oliff & Berridge, PLC Randolph & Susan Reynolds Foundation, The Rappahannock Rotary Club Rotary Club of Innsbrook Rotary Club of South Richmond Sandy's Plants, Inc. Skeet 2 Holdings LLC Specialty Beverage UPS Foundation Virginia Urgent Care, LLC Wellesley Animal Hospital
Top Fundraisers In Order of $$ Raised Walk MS VIP - 500 Club Douglas Yocom
Karen Smith Alexa Perkinson Lisa Hollier Lee Nelson Elissa Mast Amanda Mallory Chas Sforza Cherie Bennett Angela Parrish Malinda Foster Shannon Sanders Maureen Thomassen Amy Claytor Anita Bradley Ric Hersh Sala Webb Andrea Hicks Barbra Nehls Janet Thrasher Gretchen Oliver Mary Sabatino Kathy Hansen Kyle Yocom Nancy Pennington Marge Cramer Heather Shifflett Melissa Morris Ted Vienna Steve Konopka Bill Arnst Matthew Austin Michika Driver John Loper Deana Sutton Alex Hendrickson Yolanda Suitte Kimberly Von Harders Janet Atkinson Nicole Cavagnino Cara Olivo Kelley Vienna Charita Warren Barbara Chalkley Shelly Mayo Stephanie Olive Leighton Brown Sarah Ventura Cynthia Del Buono Charissa Sforza Don Robertori Carl Milligan Bridget Hengle Hank Humphries Lisa Adams Michael Dorto Wanda Murray Karen McCoy Karen Halterman Maureen Thomassen Rebekah Price Brenda Winfree
Dawnthea Price Sarah Harris Nikki Lacey Kelly Olsen Kristy Anderson Amy Kramer Reid Ellis Charmeka Stewart May Thomas Robyn Cochran Jessica Hayes Sandy Hricik Donna Phillips Sarah Humphries Lori Jackson Renee McDowell Nancy Yocom Michelle Antonuccio Sharon Umstead Adam Burton Jason Cook David Cummings Pam Lowery David Young
Bike MS Thousandaires Mike Hull Jesse Raben Darma Bennett Jonathan Coleman Matthew Cheek Ronald Powell Robert Lindsey Eric Lee Michael Melnyk Jonathan Miller Eric Williamson David Jones Jeff Wessel Mark Householder Martha Polk Jan Waldron Scott Berman Philip Licking Andre Fraser Mehrdad Erfani Jamey Davidson Bridget Boswell Donald Salle William Franklin Joey Hammond Richard Duke Glenn Nunziata Rick Schoepke John Polk Erik Bodin William Tugeau John Schmitt TC Jones IV Pim Jager
Gregory Bishop Jay Smack Ron Lefever Ethan Johnson Travis Parrish Laforrest Roxbury Joe McGaugh David Weaver Marc Marling Jane Chambers Jonathan Lessin Roger Marshall Tom Saunders Kevin Ogle John Senn Virginia Slack Margaret O'Rourke Mike Gracik Carolyn Grady Matt Gregory Isaac San Soucie Don Cuming Guy Perez Jason Ambrosino John Loper Meaghan Cyphers Robin O'Neil David Warburton Owen Lindauer Derek Kung Debbie Garbers Scott Merithew John Condon Jon Verbeek Jeffrey Smack Jamie Miller Thiyag Chinnappan Marianne Cowan Paul Cariker Scott Covey Jeff Besnier John Jones Mark Bartok Brian Newman Donald Mayes Mark Bates Kristen Covey Ann Powell Joe Primerano Michael Smith Jack Speed Cameron Peek Scott Krell Ronan Flynn Jonathan Shouse Jennifer Dunn Miriam Ford Paul Love Henry Loving Keith Miller Douglas Thorpe
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FUNDRAISING EVENTS Top Individuals Mike Hull Jesse Raben Darma Bennett Jonathan Coleman
$10,265 $9,262 $7,591 $7,300
Top Teams Capital Ale House Team Williams Mullen B&R Road Warriors Team Coop
$58,695 $24,310 $21,501 $19,397
Walk MS: Richmond 138 Teams/1,506 Walkers Total Raised: $186,677
Doug Yocom Karen Smith Alexa Perkinson Lisa Hollier
$9,300 $7,227 $6,140 $4,405
Team Yocom Team Screens 'n' Suds Hollier's West End Walkers Charissa's West End Crew
$19,096 $13,496 $7,200 $7,059
Walk MS: Fredericksburg 48 Teams/514 Walkers Total Raised: $66,684
Amanda Mallory Cherie Bennett Andrea Hicks
$3,045 $3,000 $1,690
GEICO Geckos Bees for Buz Team PermaTreat
$6,749 $6,110 $5,000
Walk MS: Tappahannock 19 Teams/158 Walkers Total Raised: $17,790
Shannon Sanders Maureen Thomassen
$2,675 $2,645
MS is "My Story of More Strength" MonSter Killers
$3,190 $2,760
Walk MS: Petersburg 22 Teams/191 Walkers Total Raised: $ 20,875
Maureen Thomassen Adam Burton
$620 $500
HealthSouth Petersburg Team Rachel
$5,569 $5,000
Bike MS 48 Teams/520 Riders Total Raised: $393,747
Two to three times as many women as men have MS.
MS is not contagious and is not directly inherited.
Most people with MS have a normal or near-normal life expectancy.
Shockoe Shuffle 77 Participants Total Raised: $3,520
Dinner of Champions Total Raised: $286,750
Women on the Move Events Total Raised: $51,747
EVENT SPONSORS
A VERY Special Thank You Goes to our FY 2011-2012 Event Sponsors
Bike MS and Walk MS The Page Auto Group $15,000 Screens ‘n’ Suds $10,000 HealthSouth- Fredericksburg $5,000 Luck Stone $5,000 Martin’s $5,000 UPS $5,000 PermaTreat $3,500 Agee Bicycles $3,000 EMD Serono $3,000 Barefoot Wines $2,500 Care Advantage $2,500 Call Federal Credit Union $2,000 HealthSouth of Virginia $2,000 VA Capital $2,000 Miles of Scarves $1,900 Ernst & Young $1,500 McGuireWoods $1,500 TEVA Neuroscience $1,500 Wells Fargo $1,500 Burk Gift Fund $1,000 Mary Washington Healthcare $1,000 NOVEC $1,000 SRMC $1,000 NextCare $500 Rappahannock Rotary Club $500
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Corporate Achievers Total Raised: $11,980
Women on the Move Luncheons Saxon Shoes $5,000 CowanGates $5,000 Union First Mkt. Bank $2,500 Wells Fargo $1,500 Allstate $1,500 Care Advantage $1,500 PhRMA (We Work for Health) $1,500 PriceWaterHouse Cooper $1,500 HealthSouth $1,500 Landmark Company $1,500 William Mullen $1,500 Ernst & Young $1,500 McGuire Woods $1,500 VA Capital $1,500 Bon Secours College of Nursing $1,500 Virginia Physicians for Women $1,500 Motley Auctions/Ivy Venture $1,500 Car Pool $1,500 MH West $1,500 Comfort Keepers $1,000 DPW Training $1,000 Booz Allen Hamilton $1,000 BB&T $1,000 Mary Washington Healthcare $1,000 PermaTreat Exterminating Co. $1,000 Shockoe Shuffle New Belgium Brewing $500
CHAPTER LEADERSHIP BOARD OF TRUSTEES OFFICERS Chairman Chairman Elect Treasurer Secretary
Sharon Barcalow Gregory Bishop Jennifer L.D. Bittmann Susan Bodin David Carminucci Charlie Colpo
Frank N. Cowan Matthew Austin James E. Sok Suzanne L. Gardner
COMMITTEE CHAIRS Board Governance Chair Programs Chair Clinical Advisory Chair Golden Circle Chair Finance Chair Audit Chair
Alexander H. Slaughter Jeffrey Ruskan, PT, MBA Susan Bodin Frank N. Cowan Glenn Nunziata Jennifer L.D. Bittmann
MEMBERS AT LARGE Mark Householder Jeffrey Ruskan Ashley Johnson David Saunders Glenn Nunziata Richard Schoepke John O’Bannon, MD Daniel B. Shoop John O’Connor Alan Shulman, MD Unsong Oh, MD Alexander H. Slaughter
Robert A. Vallejo James VanNess Philip J. Wallin Kyle Yocom
FINANCIAL REPORT REVENUE FY 2011-2012
EXPENSES FY 2011-2012
TOTAL $1,216,806
TOTAL $1,100,895
AS OF SEPTEMBER 30, 2012– UNAUDITED Page 6
CENTRAL VIRGINIA CHAPTER– EVENTS 2013
Legislative Action Day - State Capital January 27 - 28 Corporate Achievers 2012 - Kick Off March TBD Public Policy Conference/Washington DC March 4 - 6 MS Awareness Week March 11 - 15 Corporate Achievers 2012 - Celebration April TBD Walk MS - Richmond March 23 Walk MS - Fredericksburg April 20 Walk MS– Kilmarnock April 20 World MS Day May 30 Bike MS - Ride Virginia June 1 - 2 Shockoe Shuffle August 15 Walk MS– Tappahannock September 14 Women on the Move - Kilmarnock September 18 Women on the Move - Richmond September 19 Women on the Move - Fredericksburg September 20 MS Challenge Walk September 20-22 Walk MS - Petersburg October TBD Dinner of Champions October 11 CENTRAL VIRGINIA CHAPTER STAFF
Chapter President Sherri Ellis VP of Operations Robert McKoy Director of Programs & Services Kathryn Zapach Development Manager Tiffany Epley Volunteer & Administrative Manager Linda Pretlow Community Outreach Coordinator Jessica Ramirez Systems Administrator Matt Gregory Development Coordinator Christian Tiller Manager of Finance Diana Oakley Finance Assistant Deborah Richards VA Statewide Advocacy Manager Ashley Chapman
Approximately 400,00 Americans acknowledge having MS, and every week about 200 people are diagnosed.
MISSION OF THE NATIONAL MS SOCIETY: We mobilize people and resources to drive research for a cure and to address the challenges of everyone affected by MS.
Worldwide MS may affect 2.5
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