Catholic Health World - October 15, 2019

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Mercy Medical may join Cleveland Clinic  2 Colors of Advent  2 Does peer support counter burnout?  3 PERIODICAL RATE PUBLICATION

OCTOBER 15, 2019  VOLUME 35, NUMBER 18

By DALE SINGER

When you’re 10 years old and you have a rare bone disease causing problems inside your skull, you’d be forgiven for not getting excited over a new piece of medical equipment. But everyone is fascinated with their own bodies and Johnny Edenfield was no exception. He was wowed when he put on a virtual reality headset and saw exactly how Dr. Abilash Haridas, chief of pediatric Continued on 4

Dr. Abilash Haridas, chief of pediatric neurosurgery at St. Joseph’s Children’s Hospital in Tampa, Fla., uses virtual reality technology in pre-surgery consults to give his patients and their parents a clearer understanding of treatment options and risks.

Executive order spurs hope for improvements in kidney care By LISA EISENHAUER

For Nikki Love-McIntyre, the prospect of dialysis was more intimidating than the prospect of undergoing an organ transplant. “I think that’s one thing that just scared the bejesus out of me,” LoveMcIntyre says of being tethered to a blood filtration machine for hours at a time. Fortunately for her, a suitable kidney was found before the renal disease she had been diagnosed with a year earlier progressed to where she had to have dialysis. But just barely. She was a week away from her scheduled appointment for a fistula. Love-McIntyre, of Belleville, Ill., underwent a successful kidney and pancreas transplant at SSM Health Saint Louis University Hospital in October 2015. She says her new organs put an end to the misery of renal disease and the diabetes that triggered it. Now she is hopeful that an executive order signed by President Donald Trump on July 10 will spare others from having to suffer with kidney disease and that, if they do, it will mean more of them will be able to get a life-changing transplant like she did. “It’s going to give more people who are on the waiting list access to organs faster,” she says. “I think that’s awesome, because I think a lot of people don’t understand what someone who is waiting for basically a lifesaving organ goes through.” Dr. Holly Kramer, a nephrologist at Loyola University Medical Center in the

Chicago suburb of Maywood, Ill., sees much to applaud in the executive order. In fact, she sees it as “the most exciting thing that’s happened in the world of nephrology in the past 30 years.” The medical center is part of the Trinity Health system. “It’s very comprehensive,” says Kramer,

Services to:   Launch a public awareness campaign to increase knowledge of chronic kidney disease. The agency says four out of 10 people with chronic kidney disease don’t know they have it.   Reform the nation’s organ procure-

Courtesy Mid-America Transplant

Virtual reality takes patients on trip inside their own bodies

The kidney and pancreas transplant Nikki Love-McIntyre got in October 2015 at SSM Health Saint Louis University Hospital restored her health and made her an advocate for organ donation. She’s hopeful that a new federal kidney care initiative will aid others with kidney disease.

who is also president of the National Kidney Foundation. “It’s really trying to look at the whole spectrum of kidney disease and trying to incentivize better treatments for those patients and to increase organ transplantation and in-home dialysis therapies.” Specifically, the executive order calls on the U.S. Department of Health and Human

ment and management system to increase the supply of transplantable kidneys.   Expand support for living donors through compensation for related expenses like lost wages and child care.   Encourage development of wearable or implantable artificial kidneys, through cooperation between developers and the Continued on 5

Over-the-counter hearing aids on the way

PLEASURE CRUISE SSM Health St. Clare Meadows Care Center in Baraboo, Wis., has two electric “trishaws” to take residents on rides like this one on the Sauk Prairie State Recreation Area trail. Volunteers provide the pedal power. The tricycles are part of the center’s Cycling Without Age program. Story PAGE 8.

Americans suffering from mild to moderate hearing loss soon will be able to buy more affordable hearing aids over the counter once the devices meet federal safety, labeling and manufacturing standards under development now. The Food and Drug Administration Reauthorization Act of 2017 directs the FDA to make hearing aids available without a prescription or a visit to a physician or audiologist. Proposed regulations governing the devices must be issued by August 2020 and the public will have an opportunity to comment, said Alison Hunt, an FDA press officer. By law, the agency must finalize the rules within 180 days after the close of the comment period. The FDA is committed to “ensuring the proper guardrails are in place to make over-the-counter hearing aids a safe and effective option for consumers,” Hunt said. While the availability of overthe-counter, self-fitted hearing aids has been cast as a major breakthrough for consumers who can’t afford to spend thousands of dollars for traditional hearing aids, some clinicians are wary that people will sidestep audiologists

cost is not the optimal solution to this problem.”

Karen Elshout/ © CHA

Courtesy SSM Health St. Clare Meadows Care Center

By KEN LEISER

Kathleen Garavalia has her hearing aid programming validated at the audiology center at Mercy Hospital St. Louis.

altogether and treatable medical conditions will go undiagnosed. “We really are glad that there’s more awareness of the importance of addressing hearing loss,” said Jennifer Main, a clinical audiologist with Mercy Audiology in St. Louis. “We just think that taking the professional out of the picture in order to drive down

Big ticket purchase Dr. Frank Lin, director of the Main Cochlear Center for Hearing and Public Health and a professor at the Johns Hopkins University School of Medicine Lin and Bloomberg School of Public Health, said that with an average price tag of $4,700, a set of hearing aids can reflect the third-largest purchase in a typical American’s life behind a house and a car. According to the FDA, about 37.5 million Americans aged 18 and older report mild to profound hearing loss. Hearing loss can result from aging, exposure to loud noises or certain medical conditions. Most insurance companies do not cover the cost of hearing aids or their fitting, nor does traditional Medicare. Age-related hearing loss usually affects both ears, meaning most sufferers Continued on 6


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