Children's View Fall 2009 by The Children's Hospital of Philadelphia

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Non-Profit Org. U.S. Postage PAID Philadelphia, Pa. Permit No. 2733

Jayvon, 18 months, cardiac patient

Fall 2009

The Children’s Hospital of Philadelphia Foundation

You Made the Hope Lives Here Campaign a Success

Because someone like you took a moment to give.

3026/54M/10-09

Because our scientists make discoveries that save kids’ lives.

Please recycle. Children’s View is printed on 50 percent recycled paper and 25 percent post-consumer waste paper.

Because our doctors successfully treat the worst childhood diseases.

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Hope lives here.

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Special Issue

INVEST IN HOPE. Charitable Gift Annuity

Contents Fall 2009 3 The View From Here: At Campaign’s End 4 CHOP News Roundup

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Goal Surpassed: A Special Report on the Hope Lives Here campaign

14 View Calendar 16 Volunteers in Philanthropy Top: The Hope Lives Here campaign owes its remarkable success to the generosity of our donors and to the visionary leadership of campaign co-chairs and trustees Jeffrey E. Perelman, Stephen B. Burke and Lynne L. Garbose, shown in the renovated Hospital lobby with President and CEO Steven M. Altschuler, M.D. Cover: CHOP patient Tara, 3, oncology. The Alex Scott Day Hospital, a dedicated area for outpatient cancer treatment, was created during the Hope Lives Here campaign.

Extraordinary Partnership: You support the future of the nation’s top-ranked children’s hospital. We guarantee you income for life. Income for life: Rates are based on the age(s) of the annuitant(s) in the year of funding. Current rates for a one-life annuity are as follows:

You receive guaranteed, fixed income for life in exchange for your gift. And you propel our mission forward. Children’s Hospital not only provides compassionate care for countless children, it is also home to one of the largest pediatric

AGE

RATE

AGE

RATE

9.5%

8.1%

7.1%

6.3%

5.7%

5.3%

5.0%

4.8%

For example, if you are 75 years old and you establish a $25,000 charitable gift annuity, you will receive guaranteed income of $1,575 (6.3% of $25,000) per year for life and you are also eligible for a charitable tax deduction for a portion of the $25,000.

research facilities in the world.

To receive an obligation-free illustration, please contact Sean T. Gallagher, director of Planned Giving, at 267-426-6472 or GallagherSE@email.chop.edu.

GIFT of CHILDHOOD.com/plannedgiving

The View From Here: At Campaign’s End

Children’s View Steven M. Altschuler, M.D. President and Chief Executive Officer

Hope and urgency. The story of the last seven years at The Children’s Hospital of Philadelphia can be told through these two words. At the start of the decade, sensing the change in the wind and seizing on unprecedented opportunity, the Board of Trustees challenged us to make CHOP the premier institution for children’s health in the world. Even for a place like CHOP, where hope permeates every corner, this was an audacious goal. Yet the stars seemed to be aligning. We had a plan to dramatically expand our reach and global impact through new facilities and an extended healthcare network. Groundbreaking research and better understanding of the human genome offered a new toolbox of advanced technologies and treatments for our patients. We were aggressively recruiting the very best and brightest caregivers and scientists. The only piece missing, as so often is the case, was the funding, the spark to make the rest possible. And so, on January 1, 2003, we embarked upon the Hospital’s largest fundraising effort ever, the Hope Lives Here campaign. The enormity and the urgency of the campaign became evident at once. Every sick child who came through our doors, every disease that still lacked a cure, reinforced the truth that our work could not stop. And the global economic uncertainty of the past year has been a stark reminder that our resources are precious — and finite. Every dollar raised is vital to the life of this institution, and to our dream of a better, healthier world for children. As you read through this special edition of Children’s View, you will see the incredible successes we have achieved thanks to your support. New, state-of-the-art facilities — some the first of their kind in the world. Recruitment and retention of the finest medical and scientific talent through 35 new endowed faculty chairs. New treatments and cures for childhood diseases. Hope.

Stuart P. Sullivan Executive Vice President and Chief Development Officer Mark Turbiville Assistant Vice President, Communications and Donor Relations Kim Caulfield Director, Development Communications Rebecca Elias Contributing Writer Stephanie Hogarth Chief Marketing Officer Linda Lightner Creative Director Zan Hale Managing Editor Jennifer Linden Art Director Sara Barton, Jessa Stephens Senior Writers Sandra Gravinese Production Manager Ed Cunicelli Principal Photography Paul Crane, Kevin Tressel Additional Photography Children’s View is produced by the Marketing Department of The Children’s Hospital of Philadelphia and The Children’s Hospital of Philadelphia Foundation.

For each step forward we have made, we owe a debt of gratitude to you. Together, we have surpassed the campaign goal, raising $476 million. And yet the urgency remains. I believe that you, like me, will read this issue and feel that there is so much more we can and must do. In concluding this campaign, this challenge, we now see a larger and brighter horizon before us. With this end is a new beginning. Please join us as we take our first steps into a new era of hope for our children.

Steven M. Altschuler, M.D. President and Chief Executive Officer

Comments and inquiries should be addressed to: Editor, Children’s View Public Relations, Communications and Marketing Department The Children’s Hospital of Philadelphia 34th Street and Civic Center Boulevard Philadelphia, PA 19104-4399 giving@email.chop.edu Prefer to receive Children’s View electronically? E-mail your name and address from the back cover to ViewOnline@email.chop.edu and you’ll get a message with the link to each new issue when it’s published. Read it online at Giftof Childhood.com (click on “publications”).

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CHOP News Roundup From left: Former patient Courtney Braun; Patrick S. Pasquariello Jr., M.D., co-director, Diagnostic Center; featured designer Isaac Mizrahi; CHOP President and CEO Steven M. Altschuler, M.D.; Nancy Wolfson; Stephanie Wolfson; and Mark Magnusson, M.D., Ph.D., co-director, Diagnostic Center.

Visual Observation Unreliable Predictor of Jaundice

Daisy Day Luncheon and Fashion Show Benefits Diagnostic Center The 53rd Annual Daisy Day Luncheon and Fashion Show, the largest daytime fundraising event in Philadelphia, ushered in spring in high style again with featured designer Isaac Mizrahi. This year, more than $1.7 million was raised to benefit the Patrick S. Pasquariello Jr., M.D., Diagnostic and Complex Care Center.

A heartfelt thank you to our loyal and generous sponsors: Diamond Sponsors – Leonard and Madlyn Abramson Family Foundation, Jeffrey and Marsha Perelman; Platinum Sponsors – William and Donna Acquavella, Leonard and Lynne Barrack, Dorman Products, Evie and Ronald A. Krancer, Mr. and Mrs. John Thalheimer; Gold Sponsors – Dechert LLP, Margaret Anne and James A. Nolen IV, Debbie and Rick Stamm, Nancy and Richard Wolfson Charitable Foundation, Jane and Mickey Zolot. ■

The common practice among clinicians of visually examining newborns for signs of jaundice is unreliable, according to a new study at Children’s Hospital. Doctors, nurses and midwives routinely inspect new babies for yellow skin tone, a symptom of jaundice, which can signify greater illness. “Our study tells clinicians that our ability to estimate a baby’s bilirubin level, or predict the baby’s risk of developing clinically significant hyperbilirubinemia, by visually observing the extent of visual jaundice, is inadequate, and not very helpful,” says study leader Ron Keren, M.D., M.P.H., a pediatrician in the Center for Pediatric Clinical Effectiveness. The study appeared in Archives of Disease in Childhood, Fetal and Neonatal Edition. ■

CHOP Earns Highest U.S.News & World Report Scores The Children’s Hospital of Philadelphia was awarded the highest scores when U.S.News & World Report conducted its annual survey of children’s hospitals. This year, rather than issuing an overall ranking, each hospital received a “U.S.News score” in 10 specialties. CHOP’s combined U.S.News score of 944 outdistanced its nearest competitors by 77 points or more. Additionally, CHOP is ranked No. 1 in more specialties (five) than any other hospital and is the only hospital to score in the top three of all 10 specialties. “This national recognition, once again, affirms what I have always known: that CHOP is truly gifted with the most exceptional team in pediatric healthcare,” says President and CEO Steven M. Altschuler, M.D. “This is a reminder of our

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profound responsibility to lead the way in all facets of pediatric patient care, research and education.” CHOP was ranked No. 1 in Cancer, Diabetes and Endocrine Disorders, Neonatal Care, Respiratory Disorders and Urology; No. 2 in Digestive Disorders, Heart and Heart Surgery, Kidney Disorders, and Neurology and Neurosurgery; and No. 3 in Orthopaedics. “While we are honored by this recognition, we understand there is still much more to do to constantly improve the ideal patient experience for patients, families and employees,” Altschuler says. “We should be humbled by this ranking and recommit ourselves daily to every child affected by our work.” Details are posted at usnews.com/childrenshospitals. ■

Jazz Event Raises $60,000 for Sickle Cell On June 20, the Ninth Annual Jazz Event was held at the Hilton Philadelphia City Avenue. Hosted by the Community Advocacy Committee for the Sickle Cell Center at The Children’s Hospital of Philadelphia, this year’s event raised more than $60,000. The Rev. Charles W. Quann, pastor of Bethlehem Baptist Church, was the honorary chairman, and Monique Braxton of NBC10 was the evening’s mistress of ceremonies. Rev. Quann and Bethlehem Baptist Church are ardent supporters of the Jazz Event. For the second straight year, church members donated more than $10,000 to CHOP’s Sickle Cell Center. This gift is in response to Rev. Quann’s personal commitment to serving those in need and his leadership in educating the congregation about sickle cell. Because sickle cell is especially prevalent in the AfricanAmerican community, this multicultural congregation feels responsible to do whatever it can to help support patient care, research and education to eradicate the disease. “We will continue to have sickle cell as a mission of the church,” says Rev. Quann. “This is not a one-time thing. We have a passion to help children with this disease.” Christopher “Chris” and Christian “C.J.” Johnson, 13-year-old fraternal twins, were the patient speakers for the evening. They were diagnosed with sickle cell disease as newborns. They have been followed by the Sickle Cell Center

Novel Technology from CHOP Researchers Offers Hope for HIV Vaccine Using a novel approach that leapfrogs the usual methods of vaccine developers, CHOP researchers made a significant breakthrough toward an effective vaccine against HIV. The scientists used gene-transfer technology, which produces molecules to block infection, to successfully protect monkeys from a virus closely related to HIV — the simian immunodeficiency virus, or SIV — that causes AIDS in rhesus monkeys. The study, led by Philip R. Johnson Jr., M.D., chief scientific officer at CHOP and holder of the Edmond F. Notebaert Endowed Chair in Pediatric Research,

ever since and said the medical staff and employees of CHOP are extended members of their family. They have been inpatients many, many times and have both had several surgeries. They said, “When we’re headed to the Hospital, we joke that we’re checking into ‘Hotel CHOP.’ Everyone here treats us like we’re the most important people in the place.” They both praised all of the Hospital employees for making their hospitalizations and treatments as easy as possible. They ended their presentation by thanking guests for coming and telling them that “your support of the Sickle Cell Center benefits kids like us who depend on CHOP.” ■ From left: CHOP patients Christian “C.J.” Johnson, Christopher “Chris” Johnson and their parents, Ray and Tracey Johnson, spoke at the event.

cleared a major hurdle in the development of an HIV vaccine. “To ultimately succeed, more and better molecules that work against HIV, including human monoclonal antibodies, will be needed,” says Johnson. The study appeared in the journal Nature Medicine. ■

Genomics Center Identifies Autism Genes That Help with Early Brain Development A Children’s Hospital research team published two landmark studies that identify genes with important contributions to autism. One study pinpoints a gene region that may account for as many as 15 percent of autism cases, and another study identifies missing or duplicated

stretches of DNA along two crucial gene pathways. Both studies detected genes implicated in the development of brain circuitry in early childhood. Autism is the most widely known of the neurodevelopmental problems categorized as autism spectrum disorders. It affects as many as one in 150 U.S. children. The discovery provides a basis for translating biological data into future autism treatments. Both studies were led by internationally renowned genomics expert Hakon Hakonarson, M.D., Ph.D., director of the Center for Applied Genomics at CHOP. Hakonarson’s team is the first to identify common genetic variants associated with autism. The research appeared in the journal Nature. ■

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Hope Lives Here through Research

Every Day, a Child Benefits from CHOP Research CHOP is home to some of the most significant contributions to children’s healthcare, with research and treatment breakthroughs going back 80 years. The Hope Lives Here campaign helped fund past and current research. Today’s research will lead to the treatments and cures of tomorrow. Our physician-scientists are searching for solutions to the most vexing childhood illnesses. This work can be a marathon: The CHOP-pioneered rotavirus vaccine, which has the potential to save more than half a million children worldwide every year, was a quarter-century in the making. Fueling the fire of lifesaving research requires long-term dedication from scientists and donors alike. Here are some recent research highlights from Children’s Hospital, and the gifts that made some of them possible:

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The Center for Applied Genomics CHOP’s Center for Applied Genomics (CAG) opened in 2006 with the goals of identifying the genes responsible for common childhood diseases and translating that information into clinical care. The Center, which uses robotic techniques to link genetic variations to specific diseases (a process known as genotyping), now has the world’s largest database of pediatric DNA — and it continues to grow. The Center has identified genetic links to asthma, attention deficit/hyperactivity disorder (ADHD), autism, diabetes, inflammatory bowel disease and neuroblastoma, and its findings already are being used to create effective, precisely engineered therapies that are safer for young patients’ future health. CAG’s work also allows researchers to develop new tests to identify children at risk for particular diseases, such as neuroblastoma, an aggressive childhood cancer. Center director Hakon Hakonarson, M.D., Ph.D., says philanthropy will be critical to funding new technology and equipment, which in turn will speed the pace of discovery.

A Cure for Congenital Blindness An anonymous, multimillion dollar gift to CHOP helped support one of the Hospital’s most remarkable success stories of the past year — a team of researchers restored sight to a group of children born with a rare, blinding retinal disorder. Katherine A. High, M.D., an internationally known expert in gene therapy, leads the multi-institution team that has taken a big step toward curing inherited blindness. Patients have come from all over the world for this research program. The funding bolstered this research before the team succeeded in getting government grants to support the work.

The Center for Autism Research In 2008, Children’s Hospital opened the Center for Autism Research (CAR) to coordinate and support research into the causes of autism spectrum disorders, or ASDs. Robert T. Schultz, Ph.D., an international authority on autism, directs the new Center and holds CHOP’s Regional Autism Center Endowed Chair, funded by an anonymous donor. Center researchers are using advanced imaging techniques to document brain changes in children with autism. With the help of the Jeffrey and Christina Lurie Family Foundation and the Nancy Lurie Marks Family Foundation, CHOP has commissioned the world’s first neonatal magnetoencephalography (MEG) scanner for children as young as 18 months who have autism or epilepsy. The scanner is specifically designed to extend CHOP’s existing work in these areas. The Luries are also funding a MEG study of language in school-age children with autism.

35 Reasons to Hope During the Hope Lives Here campaign, 35 endowed chairs were created, nearly doubling the existing number. Here is how three of those chairs came to be: David and Nancy Colman’s three daughters have Crohn’s disease and are treated at CHOP’s Center for Pediatric Inflammatory Bowel Disease by Robert Baldassano, M.D. “Once our kids were diagnosed, we had genetic testing,” David says. “Both my wife and I are carriers. We know this disease can affect our family for generations to come.” They decided to fight Crohn’s disease by endowing an IBD chair, held by Baldassano. “He is an outstanding researcher and a fine clinician. We wanted to support that,” David says. David and Kathy Oberkircher were introduced to Children’s Hospital when friends invited them to fundraisers. One thing led to another, and they funded the Oberkircher Family Endowed Chair in Radiology in 2006. “We feel so blessed with the success of our company and the health of our kids, we wanted to find a way to support children’s health,” says David. Timothy Roberts, Ph.D., director of Radiology Research and holder of the chair, uses the funds for autism studies.

Teen Driving – Safety on the Road Children’s Hospital’s Center for Injury Research and Prevention has developed a program to build community support and reduce deaths from car crashes, the No. 1 killer of U.S. teenagers. Crashes involving young people kill at nearly four times the rate of those involving adult-occupied vehicles. State Farm Insurance Companies, the Center’s longtime partner in improving infant and child passenger safety restraints, has committed $20 million toward further research on teen driving.

The Best Is Yet to Come Also vital to CHOP are thousands of gifts of $25, $50 and $100 that have funded research in areas of greatest need. These donations allow us to accelerate our scientists’ discoveries, move forward with clinical research and allocate funds to research programs that otherwise may not have the financial support to continue. ■ Opposite page: Yannick Duwe, 8, of Belgium, who has Leber congenital amaurosis, was one of the first patients to benefit from gene therapy that restored his vision. Above: The MEG scanner measures electrical activity in the brain.

Steven D. Handler, M.D., M.B.E., Otolaryngology, and his wife Cynthia Solot, M.A., C.C.C., a senior speech pathologist, have a combined 65 years of service at CHOP, a testament to their loyalty. More proof: a gift that endowed a medical ethics chair in 2008. “We thought, ‘What are we passionate about? Where can we have lasting influence?’” says Handler, who serves on CHOP’s Ethics Committee. “There isn’t anything in the Hospital that isn’t, somehow, relevant to medical ethics.” Chris Feudtner, M.D., Ph.D., M.P.H., chief, Department of Medical Ethics, holds the chair. It allows the department to study the relationship between decision-making and ethics. ■

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Hope Lives Here through Facilities

Much More Than Bricks and Mortar Picture a football field, then another and another, until you have 21 fields. That’s how much Children’s Hospital has added to its physical plant on Main Campus in University City — 1.2 million square feet. Construction has nearly doubled its size thanks in part to the thousands of contributors to the Hope Lives Here campaign. While the sheer size is impressive, it’s the stories behind those numbers — the enhanced ability to bring hope to the sickest children — that are most meaningful. For instance: • The fact that CHOP can care for 62 more inpatients every day. • That the 159 new, private patient rooms all have sleeping accommodations so parents can stay close to their ill children overnight. • That CHOP has seven more operating rooms, shortening the wait for patients with nonemergency surgeries.

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• That up to 50 additional researchers and their teams will have new, state-of-the-art laboratories in the 450,000square-foot Ruth M. and Tristram C. Colket Jr. Translational Research Building, where they’ll dig for the next breakthroughs in the never-ending quest for healing and hope. • That wait times to have an MRI with sedation have dropped from eight weeks to one week with the addition of new equipment that allows CHOP to serve 8,000 more MRI patients a year. Patients and families are at the center of every expansion and renovation: the big ones, such as the glimmering glass façade at the Hospital’s entrance and the enlarged Emergency Department with 10 additional treatment rooms; and the small ones, such as the redesigned “chapel,” now the Schlimm Center for Prayer and Reflection, which serves as a welcoming space that honors every faith and belief and was made possible by the generosity of Roxanna and Loraine Schlimm. Families are welcomed to the Richard D. Wood Pediatric Ambulatory Care Center at the Auto Dealers CARing for Kids Foundation Welcome Center, which has comfy couches, computers and games. For children who are blind, visually impaired, deaf or hard-of-hearing, the Little Rock Foundation

Family Resource Room in the Children’s Seashore House offers special high-tech equipment to help patients and families access information. Rocco and Tina Fiorentino, whose son, Rocco, is blind, created the foundation to help families with blind or visually impaired children. With the goal of keeping kids healthy and preventing acute problems, Nicholas Karabots made a generous $15 million gift for a primary care center to be built in West Philadelphia, an underserved community. The need to increase Hospital capacity spurred the West and South tower projects. The result is extraordinary spaces for exceptional care: • The Harriet and Ronald Lassin Newborn/Infant Intensive Care Unit was able to grow from 50 to 70 beds and has room for five more. • The sixth floor now houses the Garbose Family Special Delivery Unit and the Cardiac Operative and Imaging Complex — both world-class facilities. (See Page 10 for details.) • On the seventh floor, the Epilepsy Monitoring Unit’s expanded space has state-of-the-art equipment. Staff can diagnose patients more quickly and treat them sooner. • The medical staff can hone their skills in the Simulation Center, fulfilling CHOP’s mission of training the next generation of pediatric specialists. A need for additional inpatient and outpatient facilities is on the horizon. Preliminary plans are in the works for a new, 500,000square-foot ambulatory center, so CHOP specialists can help more outpatients. There is a need for more beds in critical care units because only Children’s Hospital has the experience and expertise to deliver the best care to the sickest children. These projects, and others yet to be envisioned, will only happen with your support. With the help of our philanthropic community, CHOP will be able to continue providing the best care in the most advanced facilities. ■ Opposite page, from left: CHOP’s glass façade; The hybrid suite in the Cardiac Operative and Imaging Complex. Above: An architectural rendering of the Ruth M. and Tristram C. Colket Jr. Translational Research Building.

Partners in Hope It was an extraordinary gift from two individuals with a long and wonderful history in support of The Children’s Hospital of Philadelphia. For nearly four decades, Ruth M. and Tristram C. Colket Jr. (above) have played an integral role in the success of the Hospital. Ruth recently stepped down after serving for 18 years as a member of the Board of Trustees, and she remains very involved with the Hospital’s Women’s Committee. Tris is a long-time trustee, also serving as chair of the Translational Medicine and Science Committee. The Colkets’ remarkable $25 million contribution opened the Hope Lives Here campaign with what remains the largest individual gift ever to CHOP. In appreciation, the Hospital’s new 11-story, 450,000-square-foot research building is named in their honor. “Ruth and Tris Colket’s gift has given an enormous boost to the advancement of research at Children’s Hospital,” says Steven M. Altschuler, M.D., president and chief executive officer. “It will allow groundbreaking discoveries and help to ensure that the Hospital remains the preeminent pediatric institution in this country and the world.” The light-filled atrium of the Hospital’s Main Building also bears the Colkets’ name, as does the lobby of the Leonard and Madlyn Abramson Pediatric Research Center. Their philanthropy has fostered continued research through two endowed chairs, one for pediatric surgery and another in pediatric nursing. “The Children’s Hospital of Philadelphia provides us the greatest opportunity to make a difference in the lives of children,” says Ruth. “It is impossible to walk through the halls of this Hospital and not see the need for philanthropy and, at the same time, its incredible results.” ■

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Hope Lives Here through Patient Care

Our Care: Comprehensive and Compassionate Cutting-edge research and state-of-the-art facilities tell only part of CHOP’s story. To fully grasp why hope really does live here, it is important to see those elements in concert with our compassion and our comprehensive clinical programs that support the care and healing of children. CHOP has more than 110 departments, divisions, centers and programs that address the full gamut of children’s complex needs, and many would not exist if not for the support of generous donors. Our unparalleled expertise is recognized by the most recent rankings by U.S.News & World Report, in which only CHOP was rated among the top three in all 10 specialties in the survey. (See story on Page 4.) To get a sense of the world-class clinical care delivered at Children’s Hospital, explore the Main Building’s sixth floor,

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where children’s lives are saved every day. There, new high-tech facilities enhance our ability to provide the best care in a warm and family-friendly environment. In one section is the Garbose Family Special Delivery Unit (SDU), the first facility in the world where babies diagnosed with birth defects during pregnancy and their mothers receive the full spectrum of care — before, during and after birth — in one place. Lynne and Bill Garbose’s gift made the eight-bed unit possible so mothers can stay close to their fragile infants after birth. “We set the benchmark when it comes to the care of mothers and their babies, starting with diagnosis, following the pregnancy, through delivery and prompt care after birth,” says N. Scott Adzick, M.D., M.M.M., surgeon-in-chief and director of the Center for Fetal Diagnosis and Treatment. “Our families have the advantage of being together through it all. It’s been a huge success so far. But we have ongoing needs — for research for the next advances in care, for resources to help families from outside the area travel to the SDU, for a database to track cases, and for long-term follow-up so we can continue to improve the quality of care.”

The rest of the sixth floor is devoted to the Cardiac Center, where more than 500 nurses, cardiologists, surgeons, anesthesiologists, social workers and others provide familycentered care in an enlarged space that created a “hospital within a hospital” for all inpatient cardiac services. The contiguous space facilitates communication and the safest, most seamless care. Three cardiac units, including 64 patient beds, are adjacent to the Cardiac Operative and Imaging Complex. The complex, opened in the summer of 2008, includes two cardiac operating rooms; a hybrid suite, configured for both surgery and catheterization; and an XMR suite, which allows patients to move between a catheterization lab and the adjacent MRI. The dual-purpose suites are among the first of their kind in pediatrics in the United States. “We’re lucky to be supported by committed donors, including many families whose children were treated here for their heart defects,” says Susan C. Nicolson, M.D., medical director of the Cardiac Center and chief of the Division of Cardiothoracic Anesthesiology. “Their willingness to give enables us to provide a level of care second to none, which is incredibly beneficial to our patients and their families. Our generous donors are a vital part of the Cardiac Center team.” Other clinical advances made possible by philanthropy are less high-tech but offer a beacon of hope to those who need them. Here are two:

Pediatric Advanced Care Team (PACT) Twenty-four hours a day, seven days a week, CHOP’s Pediatric Advanced Care Team (PACT) is there for our most seriously ill patients and their families, helping to alleviate the child’s physical symptoms and supporting family members as they share their fears, concerns and hopes. Thanks to generous donors like Pam and Tony Schneider, Margaret Anne and James A. Nolen IV, the Auto Dealers CARing for Kids Foundation, the “All In” for Kids Poker Tournament and many others, families never pay for PACT’s services — and

the team is able to care for children at home or in the Hospital. Permanent funding is still needed for many aspects of the program, including child life, social work, art therapy and chaplaincy services, as well as for a popular fellowship training program that is one of the few in the field. Says Tammy Kang, M.D., PACT’s medical director: “CHOP has both an opportunity and an obligation to train the next generation of physicians who are going to take care of these kids.”

Safe Place: The Center for Child Protection and Health More than 900,000 children are abused or neglected in the United States each year, more than 1,000 in Philadelphia alone. Safe Place: The Center for Child Protection and Health is CHOP’s interdisciplinary response to this critical issue. Safe Place addresses the medical and psychosocial needs of children at risk and serves as a resource for clinical services, research, education and advocacy in the southeastern Pennsylvania region. Generous gifts from Mr. and Mrs. Edmund F. Garno Jr. and the Hansjoerg Wyss Foundation have enabled Safe Place to develop and provide a broad range of psychological and supportive services to children and families that have experienced sexual victimization. “Child sexual abuse can create a crisis not only for the child victims, but for their family members as well,” says Cindy W. Christian, M.D., director of Safe Place. “Our psychologist and therapist, who are supported by these donations, provide psychoeducation, support and anticipatory guidance to parents who face the stress of guiding their child through the healing process.” ■ Opposite page: Alexandra Lacayo, from Costa Rica, gave birth to son Stefan Kopper in the Garbose Family Special Delivery Unit. Stefan had lifesaving surgery and went home three weeks later — happy and healthy. Above left: An SDU suite. Above right: The XMR suite in the Cardiac Operative and Imaging Complex.

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Hope Lives Here through Our Donors

Every Donation Brings Hope The Hope Lives Here campaign was the most successful fundraising effort in Children’s Hospital history, and it was the collective generosity of well over 200,000 donors that made it happen. There were transformational gifts from individuals like Ruth and Tristram Colket and corporations like State Farm Insurance Companies. There were gifts from schoolchildren and parents, community leaders, neighbors and friends, many of whom were motivated by their own experience at CHOP, or that of a loved one or friend. Every dollar raised during this campaign made a difference and made it possible for the Hospital to exceed its goal of $400 million by more than $76 million.

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Many of the Hospital’s donors became advocates for our cause, encouraging others to contribute. Families with children who were treated here started events, from golf tournaments to costume balls. Healthy children with classmates stricken by cancer or other illnesses held bake sales, dance-a-thons and fundraisers of all kinds. And most recently, in the closing years of the campaign, this vital community of Children’s Hospital supporters has moved online with individual Web pages within the Hospital Foundation’s Web site. People have used these fundraising pages to share their stories about why they support Children’s Hospital and to invite their friends and family to join them. The most compelling ambassadors for Children’s Hospital have been creative donors who combine their personal passions with the great causes in need of funding at the Hospital.

Some are devoted to ensuring progress is made against a disease that claimed a loved one’s life, hoping that in the future no parent will have to endure what they did. After her daughter died from a brain tumor, Kristen Gillette started a foundation in her name. The Kortney Rose Foundation has raised $175,000 over the last two years to fight brain cancer. Howard and Kara Fraiman’s foundation, Ashley’s Angels, has held a number of events during the last five years to raise money for the palliative care program at CHOP, which provided great care and comfort while the Fraimans’ daughter Ashley faced a terminal illness. In every case, devoted donors, patients and their families have contributed to the success of the Hope Lives Here campaign. A large variety of philanthropic styles — from personal gifts to car washes to corporate giving — were required to meet, and exceed, the $400 million goal of the campaign. The contributions of every donor these past seven years have made this a time of immense progress for the Hospital. And the foundation those donors established will support the children served by Children’s Hospital for many years to come. ■ Opposite page: Campaign co-chairs share a moment with our patients. Clockwise from left, Board of Trustees chairman Stephen B. Burke, Aashka Patel, president and CEO Steven M. Altschuler, M.D., Micah Baldez, trustee Jeffrey E. Perelman, trustee Lynne L. Garbose, Rachel Cohen and baby Monet Crumbley.

Hope Lives Here Campaign By the Numbers We raised $476.5 million with the help of 218,000 donors. ★ For 190,000 donors, this was their first gift to CHOP, making this the most far-reaching campaign in Hospital history. ★ A remarkable nine gifts in excess of $10 million were received. CHOP received the largest individual gift ever from Ruth and Tristram Colket and the largest corporate gift ever from State Farm Insurance Companies. ★ Gifts supported an unprecedented expansion, adding 1.2 million square feet of building space. ★ Donors created 35 new endowed chairs that will allow Children’s Hospital to attract and retain the most talented clinicians and researchers.

Hope Lives On Since opening its doors in 1855, Children’s Hospital has earned an international reputation for groundbreaking research and compassionate, familycentered care. As the place other hospitals send their most challenging cases, CHOP was a beacon of hope long before it inspired this ambitious campaign to become the world’s best pediatric hospital and research institution. We can all celebrate the tremendous accomplishments of the Hope Lives Here campaign, and the mountains that your philanthropic support has helped to move for the Hospital. Charitable giving throughout the campaign has elevated every aspect of what we can do for children and families on a daily basis, as well as the hope we offer them for the future. As this special issue of Children’s View makes clear, philanthropy has played, and will continue to play, an increasingly critical role in the life of Children’s Hospital. This is not only true for the visionary goals our researchers have been making a reality, but for the fulfillment of our mission to provide the highest-quality care for every child who passes through our doors. With the end of this campaign come new challenges, but also new opportunities to create the future of children’s health. Despite these uncertain economic times, we are confident that with your help, CHOP will emerge stronger than ever. Thank you for making the Hope Lives Here campaign such a success, and for joining us in advancing this tradition of hope and excellence for our children and families.

Stuart P. Sullivan Executive Vice President and Chief Development Officer

Thank You! ★ Children’s View 13

ViewCalendar October Oct. 25 Ride Ataxia Philly Join cyclists of all levels for Ride Ataxia Philly in Limerick Community Park, Royersford, Pa. Ride Ataxia Philly benefits the Friedreich’s Ataxia (FA) Research Alliance and CHOP’s Friedreich’s Ataxia Program. Both are dedicated to research and a cure for FA, a debilitating, life-shortening, degenerative neuromuscular disorder. There will be 10-, 25- and 50-mile routes on scenic country roads, fun family activities and food from sponsor Outback Steakhouse. Find out more at www.rideataxia.org/philly or e-mail RAPhilly@rideataxia.org.

20 09 “ Po All In ker ” To for K urn id am s ent

“All In” for Kids Poker Tournament Nov. 18 The “All In” for Kids Poker Tournament, presented by Jim and Nancy Minnick, at the Mandarin Oriental Hotel in New York City, will use the rules of a No Limits Hold ’Em charity tournament. All proceeds go to the Division of Neurosurgery at CHOP. For more information, contact Lori Busch at 267-426-6465 or busch@email.chop.edu.

Children’s View

October 2009 – May 2010 Oct. 25 Costume Party Celebrate Halloween with the annual Costume Party at the Knights of Columbus in Jackson, N.J. Proceeds will benefit Children’s Hospital. For more information, call Lisa Spinelli at 732-833-0427.

November Nov. 7 and 8 Thanksgiving in the Country 2009 Thanksgiving in the Country is a nonprofit house tour that benefits the Facial Reconstruction Unit at Children’s Hospital. The two-day event, held on the first full weekend of November each year, includes house tours, a luncheon, crafting demonstrations and a complimentary tea. For more information, e-mail Laura@chamberswalk.com or visit www.thanksgivinginthecountry.com. Nov. 19 Daisy Day® Shopping Day With more than 25 vendors selling everything from handbags to stationery to fine jewelry, there will be something for everyone at the Fifth Annual Daisy Day Shopping Day. Twenty-five percent of all sales will benefit Children’s Hospital. For more information, contact Sonia Ocasio at 267-426-6477 or events@email.chop.edu.

January Jan. 29 Silent Auction for Autism Bid on many beautiful items at this silent auction to benefit the Center for Autism Research at CHOP. The event will be held at the Knowlton Mansion in Philadelphia. For more information, call 484-532-7506.

Women’s Committee Holiday Boutique Dec. 3 and 4 The 2009 Women’s Committee of CHOP Holiday Boutique will be held at the Merion Cricket Club in Haverford, Pa. The Preview Party on Dec. 3 promises to be an enjoyable evening of exceptional shopping, cocktails, hors d’oeuvres and socializing. Vendors will be selling fashionable clothing and accessories, fine jewelry, exquisite home accessories, art and collectibles with 25 percent of their sales donated to the Hospital. On Dec. 4, the Boutique, a tradition since 1965, will open to a wider audience. For more information, contact Rebecca J. Elias at 267-426-6489 or elias@email.chop.edu.

Jan. 29 Philadelphia International Auto Show Black Tie Preview Gala Dining, dancing and a preview of the cars featured in the 2010 Philadelphia International Auto Show are part of a fun evening at the Pennsylvania Convention Center. The event is sponsored by the Automobile Dealers Association of Greater Philadelphia. For information, visit www.blacktietailgate.com.

UpcomingEvents Jan. 30 Big Hearts to Little Hearts Ball The annual Ball is a key component of Big Hearts to Little Hearts’ fundraising efforts, and the 2009 Ball brought in more than $87,000. Since its inception in 2003, Big Hearts to Little Hearts has raised more than $570,000 for the Cardiac Center at Children’s Hospital. Donations have helped fund important research, patient education programs and a mobile unit that carries CHOP’s cardiac physicians to hospitals all over New Jersey as well as Pennsylvania. For the latest information on the 2010 Ball, visit www.bigheartstolittlehearts.com.

April April 26 Big Hearts to Little Hearts Golf Outing Join the Big Hearts to Little Hearts Foundation for its second annual golf outing at Center Square Golf Club in Blue Bell, Pa. You will be raising funds for pediatric cardiac care and research at CHOP. For more information, visit www.bigheartstolittlehearts.com.

May May 10 The Children’s Hospital of Philadelphia Golf Classic Join us on the links for The Children’s Hospital of Philadelphia Golf Classic, the Hospital’s premier golfing event hosted by the Lynn Saligman League. Now in its 10th year, the tournament benefits patient care programs that help CHOP extend its specialized care and services to children in need. In addition to playing on the historic Huntingdon Valley course, the tournament includes lunch, a cocktail reception and dinner with a silent auction and raffle. For more information, contact Bailey White at 267-426-5339 or whiteba@email.chop.edu.

Event

Beneficiary

Date

Location

Kohl’s Cares for Kids Program – sale of plush toys/books

Injury Prevention Program

ongoing

Philadelphia-area Kohl’s Department Stores

Ride Ataxia Philly

Friedreich’s Ataxia

10/25/09

Limerick Community Park, Royersford, Pa.

Costume Party

Patient care programs

10/25/09

Knights of Columbus Jackson, N.J.

Thanksgiving in the Country

Facial Reconstruction Unit

11/7/09 – 11/8/09

Sergeantsville, N.J.

“All In” for Kids Poker Tournament

Neurosurgery

11/18/09

Mandarin Oriental Hotel New York, N.Y.

Daisy Day® Shopping Day

Patient care programs

11/19/09

Green Valley Country Club, Lafayette Hill, Pa.

Toast to the Team with Eagles Radio Network

Community Asthma Prevention Program

TBD*

Women’s Committee Holiday Boutique

Patient care programs

12/3/09 – 12/4/09

Merion Cricket Club Haverford, Pa.

Silent Auction for Autism

Center for Autism Research

1/29/10

Knowlton Mansion Philadelphia

Philadelphia International Auto Show Black Tie Preview Gala

Patient care programs

1/29/10

Pennsylvania Convention Center

Big Hearts to Little Hearts Ball

Cardiac Center

1/30/10

Eagle Oaks Country Club, Farmingdale, N.J.

Big Hearts to Little Hearts Golf Outing

Cardiac Center

4/26/10

Center Square Golf Club Blue Bell, Pa.

The Children’s Hospital Golf Classic

Patient care programs

5/10/10

Huntingdon Valley Country Club

For a current events list and details on upcoming events, visit

GiftofChildhood.com. *TBD - To be determined

Interested in having your own event to raise funds for CHOP? Register your event with The Children’s Hospital of Philadelphia Foundation at GiftofChildhood.com or contact Tess Boyle at communityfundraising@email.chop.edu or 267-426-6496. We can help you get started and make sure that your event is listed on our Web site. Children’s View 15

V.I.P.

Volunteers in Philanthropy

Fifth Annual Philadelphia Insurance Triathlon On June 27, the Philadelphia Insurance Triathlon presented the Cancer Center with a check for $115,000. Funds were raised through a variety of sources including the Karr Barth Charity Challenge, which is part of the Sprint Distance Race. Team Johnson & Johnson was this year’s Charity Challenge winner. Additional monies came through corporate initiatives at Philadelphia Insurance Companies and ESCO Zodiac Aerospace.

Key to Hope On April 4, music and food came together to benefit research in Pediatric Inflammatory Bowel Disease (IBD) at Children’s Hospital. Guests attended a concert by nationally acclaimed pianist George Winston and had a dinner prepared by celebrity chef Chris Scarduzio of Table 31 in Philadelphia. The event, presented by Shire Pharmaceuticals and chaired by Leslie Siegel, Ph.D., a parent volunteer, helped promote awareness of CHOP’s IBD Center and raised $160,000 for its research programs.

Second Annual Childhood Friends Wine Tasting and Eighth Annual Philadelphia Wine Festival The Childhood Friends held their second annual wine tasting and reception at G on April 23. Guests sampled wines from France, Australia and California’s Sonoma County. This event, hosted by Philadelphia magazine and supported by the Pennsylvania Liquor Control Board, was a kickoff to the Eighth Annual Philadelphia Wine Festival. Proceeds benefited Fetal Surgery.

SDU Story Highlight of Founders Society Reception Gloomy weather didn’t dampen the enthusiasm of a record crowd of the Hospital’s most dedicated supporters who gathered for the 2009 Founders Society Reception. Guests enjoyed cocktails and hors d’oeuvres in the Colket Lobby of the Leonard and Madlyn Abramson Pediatric Research Center. Madeline Bell, executive vice president and chief operating officer, thanked everyone for their commitment to children’s health and for making Children’s Hospital their philanthropic priority. Guests were also inspired by trustee Lynne Garbose, who shared her passion for Children’s Hospital and especially the work of the new Garbose Family Special Delivery Unit (SDU). She then introduced Amy Schwarz, who shared her experience of dealing with an abnormal prenatal diagnosis. Schwarz was able to deliver her son, Angus, in the SDU. He was operated on the next day, and they both went home four days later. After the presentations, guests enjoyed tours of some of the exciting new areas of the Hospital, including the SDU, the Alex Scott Day Hospital, the Department of Radiology and the Oncology Research Laboratory. The Founders Society has more than 1,750 members and continues to grow. The Society includes individuals, corporations and foundations whose yearly commitment to CHOP totals $1,000 or more. If you would like more information about the Society, contact Mary Cooney, director of annual giving, at 267-426-6468 or cooney@email.chop.edu. ■

Children’s View

Angus Schwarz, born in the Garbose Family Special Delivery Unit, was in the Founders Society spotlight. He’s shown here with dad Marc (left), mom Amy and N. Scott Adzick, M.D., M.M.M., surgeon-in-chief, director of the Center for Fetal Diagnosis and Treatment and holder of the C. Everett Koop Endowed Chair in Pediatric Surgery.

FOUNDATION

Golf Classic Selling out for the second year in a row, The Children’s Hospital of Philadelphia Golf Classic was held in May at the Huntingdon Valley Country Club. Turner Construction Company was the tournament’s presenting sponsor, and the day brought in more than $220,000 for the Hospital. Hosted by the Lynn Saligman League, the Golf Classic supports a variety of patient care and research programs.

CHOP’s Children’s Circle of Care Members Attend Annual Conference in Seattle

Bryce’s Bridge of Hope On a beautiful sunny day in May, the Fifth Annual Bryce’s Bridge of Hope Golf Tournament was held at Ron Jaworski’s Valleybrook Country Club. Golfers and friends alike had a lovely day of golf, fun and sun. At the reception, Peter C. Phillips, M.D., director, Pediatric Neuro-oncology Program, and the Hubert J.P. and Anne Faulkner Schoemaker Endowed Chair in Pediatric Neuro-oncology, spoke. More than $40,000 was raised for brain tumor research at CHOP.

Many of The Children’s Hospital of Philadelphia’s most generous supporters traveled to Seattle for the annual Children’s Circle of Care North America Leadership Conference and Gala. The Children’s Circle of Care recognizes individuals or couples, family foundations and privately held companies that contribute $10,000 or more in a calendar year to one of 24 participating hospitals across the country. CHOP’s own Robert Baldassano, M.D., director of the Center for Pediatric Inflammatory Bowel Disease (IBD) and holder of the Colman Family Endowed Chair in Pediatric Inflammatory Bowel Disease, was a featured speaker at the conference. He shared some of the remarkable progress that is being made in the treatment and understanding of IBD through research at CHOP. Children’s Circle of Care members were also treated to an inspiring presentation by newscaster Tom Brokaw and entertainment by Natalie Cole. If you are interested in becoming a member of the Children’s Circle of Care, contact Mary Cooney, director of annual giving, at 267-426-6468 or cooney@email.chop.edu. ■

DufferFest The rain of June couldn’t stop the music lovers of all ages from attending the Third Annual DufferFest. Hosted by Duffer’s Tavern and Team Kara Marie Kenney, this music festival featured local bands, a disc jockey, children’s crafts, games for the big kids, food and drinks, dancing and good times. It raised more than $20,000 for the Trisomy 21 (Down syndrome) Program at CHOP.

Above: CHOP’s Children’s Circle of Care members gather in Seattle.

Miriam Quigley Dance-a-Thon Kids of all ages put on their dancing shoes and danced the afternoon away at the Fourth Annual Miriam Quigley Dance-a-Thon on April 25. The event was held at St. Katherine of Siena School in Wayne, Pa., and raised $50,000 for brain tumor research at CHOP.

Silver Sponsors The H.N. and Frances C. Berger Foundation

Platinum Sponsors The Foster Foundation MCM

Chateau Ste. Michelle Intelius Ledcor Group of Companies Lee Family Foundation Phil and Helen Smart Seattle Sounders FC Sellen Construction TriWest Healthcare Alliance

Gold Sponsors Nice-Pak Products, Inc. Seattle Children’s Hospital Seattle Children’s Research Institute

▲

continued

Founding Sponsors Costco Wholesale The Oki Foundation

Children’s View

V.I.P.

Volunteers in Philanthropy continued

Peyton’s Promise A fun day was had by all on May 16 when 280 runners and walkers either ran 5K or walked 2K in Sea Isle City, N.J., in honor of Peyton’s Promise. This event raised $21,500 for ongoing research to help babies born with congenital diaphragmatic hernia.

▲ Gelatin Olympics The Kids-N-Hope Foundation’s crazy and wacky 16th Annual Gelatin Olympics raised more than $23,000 for the Children’s Seashore House at Children’s Hospital. Held on June 10, the event had a record year with 93 sliders. The sliders gathered pledges from sponsors in the weeks leading up to the event, dressed up in their wildest costumes, and took the plunge into a pool of 700 gallons of bright red gelatin. Bob Kelly, of CBS3 and 98.1 WOGL, and Frank Lewis, of 98.1 WOGL, once again emceed the event, and even took the ultimate plunge!

Addison’s Ball On May 30, the Second Annual Addison’s Ball took place at The Deck in Essington, Pa. Food, raffles and music helped raise more than $9,000 for the Cardiac Center. This year, Addison’s Ball will also have 100 security blankets made for patients in the Cardiac Center.

Children’s View

▲ Alex’s Lemonade Stand The CHOP community came together on June 12 to host 30 Alex’s Lemonade Stands in Pennsylvania and New Jersey. More than $50,000 was raised for cancer research at Children’s Hospital at this sixth annual event. Audrey Evans, M.D., (pictured with Garrett M. Brodeur, M.D., Oncology, left, and John Maris, M.D., director, Center for Childhood Cancer Research, and chief, Division of Oncology), was honored with the Pitcher of Hope Award for her four decades of service to CHOP and her innovations in the field of cancer research.

▲ Biesecker Pediatric Liver Center Mya and Ava Longacre recently visited the Hospital to make a wonderful donation to the Fred and Suzanne Biesecker Pediatric Liver Center. Mya and Ava are the granddaughters of the Bieseckers, for whom the Center was named. By holding yard sales, selling lemonade and old bikes, and asking friends to contribute, the girls were able to raise a total of $1,678!

Chappy’s Charm In memory of and to honor their friend Leah Chapman, Samantha DelViscio and her best friend Julia Oaks make bracelets out of pink and green thread (Leah’s favorite colors) to raise money to help find a cure for childhood cancer. Their company, Chappy’s Charm, whose motto is “Fighting cancer with style,” has donated $4,000 for oncology research.

▲ Wade’s Walk to Work Walking to work has its benefits. It can be healthier, cheaper and environmentally friendly. But when Wade Wilson, store manager of Rite Aid #4601 in Stratford, N.J., decided to walk to work, he was helping to raise money for Children’s Miracle Network at Children’s Hospital. On May 16, Wade walked 23 miles from his home in Logan Township, N.J., to his store. With help from his associates, Wade raised more than $2,500 for CMN at CHOP! Night at the Lakewood BlueClaws The Kortney Rose Foundation hosted its annual Night at the Lakewood BlueClaws on June 30. Friends and fans were able to support both the foundation and the BlueClaws during the game and picnic beforehand.

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★

Special Issue

INVEST IN HOPE. Charitable Gift Annuity

Contents Fall 2009 3 The View From Here: At Campaign’s End 4 CHOP News Roundup

★ 6 – 13

Goal Surpassed: A Special Report on the Hope Lives Here campaign

AGE

RATE

AGE

RATE

9.5%

8.1%

7.1%

6.3%

5.7%

5.3%

5.0%

4.8%

research facilities in the world.

To receive an obligation-free illustration, please contact Sean T. Gallagher, director of Planned Giving, at 267-426-6472 or GallagherSE@email.chop.edu.

GIFT of CHILDHOOD.com/plannedgiving

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Non-Profit Org. U.S. Postage PAID Philadelphia, Pa. Permit No. 2733

Jayvon, 18 months, cardiac patient

Fall 2009

The Children’s Hospital of Philadelphia Foundation

You Made the Hope Lives Here Campaign a Success

Because someone like you took a moment to give.

3026/54M/10-09

Because our scientists make discoveries that save kids’ lives.

Please recycle. Children’s View is printed on 50 percent recycled paper and 25 percent post-consumer waste paper.

Because our doctors successfully treat the worst childhood diseases.

Children’s View

Hope lives here.