Children's View Winter 2012

Winter 2012

24 Hours in the ER Also Inside Eric Lindros and John LeClair Team Up for CHOP

The View from Here

Board of Trustees Officers Mortimer J. Buckley Chairman Mark Fishman Vice Chairman Tristram C. Colket, Jr., R. Anderson Pew Honorary Vice Chairmen Steven M. Altschuler, M.D. Chief Executive Officer Aminta Hawkins Breaux, Ph.D. Secretary Anthony A. Latini Treasurer Thomas J. Todorow Assistant Treasurer Jeffrey D. Kahn, Esq. General Counsel & Assistant Secretary Margaret M. Jones Assistant Secretary Board of Trustees N. Scott Adzick, M.D., M.M.M., Steven M. Altschuler, M.D., Clark Hooper Baruch, A. Lorris Betz, M.D., Ph.D., Fred N. Biesecker, Aminta Hawkins Breaux, Ph.D., Mortimer J. Buckley, Stephen B. Burke, Dominic J. Caruso, Alan Cohen, M.D., Tristram C. Colket, Jr., Arthur Dantchik, Mark Denneen, Mark Fishman, Lynne L. Garbose, Esq., Anthony A. Latini, James L. McCabe, John Milligan, C.P.A., Asuka Nakahara, Jeffrey E. Perelman, R. Anderson Pew, Gerald D. Quill, Daniel T. Roble, David B. Rubenstein, Anne Faulkner Schoemaker, Salem D. Shuchman, Binney Wietlisbach, Nancy Wolfson, Dirk E. Ziff Ex-Officio Tami Benton, M.D., David Cohen, M.D., Jeffrey A. Fine, Psy.D., Jeffrey Golden, M.D., Kathleen Chavanu Gorman, M.S.N., R.N., William J. Greeley, M.D., M.B.A., Diego Jaramillo, M.D., M.P.H.

What makes CHOP the greatest pediatric hospital in the nation is not just that we have the best physicians, surgeons, nurses and researchers, but the fact that they work closely together — around the clock, seven days a week — to solve medical mysteries, to treat even the most difficult cases and to do it all with caring and compassion. This high level of teamwork, communication and collaboration is especially critical in one of the busiest areas of the Hospital, the Emergency Department, which gets more than 85,000 patient visits each year.

For this issue of Children’s View, our writers spent 24 hours in CHOP’s Emergency Department to bring you a personal look at families that seek answers and hope there (Page 10). You’ll also meet a brave young woman whose life was saved by a team of CHOP oncologists and surgeons (Page 18) and learn how another team of doctors has helped revolutionize care for spina bifida (Page 20).

Of course, all of CHOP’s efforts and breakthroughs throughout the Hospital, from the Emergency Department to the operating rooms, are only possible because of our generous donors. Philanthropy enables our unparalleled clinical care and laboratory research, and it allows us to reach more children and families in more communities each year. One such gift will create the new Nicholas and Athena Karabots Pediatric Care Center in West Philadelphia in early 2013 (Page 7) that will benefit generations of children in the neighborhood.

All of you are valuable members of the Children’s Hospital team, participating in CHOP’s mission and advancing medical care, education, training and research every day, year in and year out. Thank you for everything you do for the Hospital and the health of the patients and families we are privileged to help.

Emeritus

Steven M. Altschuler, M.D. Chief Executive Officer

Leonard Abramson, Willard Boothby, Ruth M. Colket, Armin C. Frank, Peter C. Morse, George Reath Jr., Stuart T. Saunders Jr., Esq., Richard D. Wood Jr.

Children’s View Steven M. Altschuler, M.D. Chief Executive Officer Stuart P. Sullivan Executive Vice President and Chief Development Officer Mark Turbiville Assistant Vice President Julie Sloane Editor Kim Caulfield Director, Development Communications

Nicole Keane Associate Director Eugene Myers Development Writer Stephanie Hogarth Chief Marketing Officer Linda Lightner Creative Director Zan Hale Managing Editor Jennifer Linden Art Director

Sara Barton, Abny Santicola, Jessa Stephens Senior Writers Sandra Gravinese Production Manager Ed Cunicelli Principal Photography Holly E. Clark, Paul Crane, MB Photographers Additional Photography

Children’s View is produced by The Children’s Hospital of Philadelphia.

Comments and inquiries should be addressed to: The Children’s Hospital of Philadelphia Foundation 34th Street and Civic Center Boulevard Philadelphia, PA 19104-4399 givehope@email.chop.edu For information about making a contribution to support CHOP, call 267-426-6500 or visit Giftof Childhood.org.

Contents Winter 2012

10 Cover Story 24 Hours in the ER A Day in the Life Go behind the scenes of our busy Emergency Department.

On the Move The first step in any CHOP experience? Getting there.

Help for Toxic Times The Poison Control Center at CHOP protects communities.

18

2 The View from Here 4 Today@CHOP

18 Patient Story Neurosurgery

4

20 Research Spina Bifida

THE VOICE continues to bring in celebrities like Joe Jonas.

22 Volunteers in Philanthropy September 2011 – January 2012

Kelsea, 21, Neurosurgery and Oncology

20

On the cover: Lily, 14 months, on a visit to CHOP’s Emergency Department Jaidyn, 4 months, and his mom, Merissa, after fetal surgery Children’s View

3

Today@CHOP VIEW News

1

2

3

A StarStudded Season THE VOICE Continues to Deliver Fun and Celebrity Visits

4

7 5

Since Ryan Seacrest and Selena Gomez were on hand in July to open THE VOICE multimedia broadcast studio in the Hospital’s Colket Atrium, it has become a much-loved center for fun, games and celebrity visits.

The Media Programs staff, led by veteran television producer Kris Schrader, organizes more than 20 hours each week of live programming, spanning interviews, music, game shows, karaoke, world travel segments, trivia and more. In January, a live weekly sports show began, drawing local pro athlete guests. Reruns add another 49 hours to the weekly schedule.

All programs from THE VOICE are broadcast on the closed-circuit Galaxy 51 channel on patients’ TVs. Kids can dial 55555 from their room phones to request songs, answer trivia questions, participate in games and ask questions of celebrity guests. Many patients visit the studio to meet guests, sing karaoke or join the studio crew as guest DJs. “I have seen the way a child’s face lights up when singing along to a song in that moment when THE VOICE truly is their own,” says Schrader. “It helps them forget about the treatments or their illness or the challenges they may face tomorrow.”

To date, more than 25 celebrities have visited CHOP, including: [1] Kenny Wormald and Julianne Hough from Footloose (with Philadelphia Mayor Michael Nutter and CHOP CEO Steven Altschuler, M.D.), [2] Gym Class Heroes, [3] Iyaz, [4] Joe Jonas, [5] Keri Hilson, [6] Matt Nathanson, [7] Tinie Tempah, [8] Plain White T’s, [9] Allstar Weekend and [10] Cee Lo Green. n View more photos and videos at giftofchildhood.org/thevoice.

8

6 10 4

Children’s View

9

Snowflake Station Spreads Holiday Cheer

A week after 7-month-old Ava Vermeulen underwent brain surgery, her parents gave her her first-ever Christmas present: her first doll.

The gift came thanks to CHOP’s second annual Snowflake Station, a toy shop set up by the Child Life, Education and Creative Arts Therapy department that provides parents and caregivers of inpatients the opportunity to select presents, all free of charge, for their children who are stuck in the Hospital for the holidays. Snowflake Station — located in a conference room behind the main cafeteria — was stocked floor to ceiling with donated gifts ranging from toys and video games to clothes and shoes, DVDs and gift cards. Staff and volunteers distributed 1,500 gifts to nearly 500 families over three days leading up to the holidays.

Kids in the Hall

“It’s been a stressful time for all of us,” says Ava’s dad, Jeff. “The toys really brightened my kids’ day. It was just really something else. We’re looking forward next year to becoming donors, not recipients.” n

What a Trip!

We walked the halls of CHOP and asked patients the same question:

“Where would you go on your dream vacation?”

Tyree, 20, Adolescent Medicine “Africa, because of the culture, animals and history.”

Taryn, 13, Adolescent Medicine “Japan. I draw anime and I’ve always wanted to go there.”

Beatrice, 16, Hematology “Paris, because they are so fashion forward there and I love European food.”

Robyn, 9, Oncology “Australia. My favorite TV show is from Australia, I love kangaroos and I just love the country.”

Sarina, 20, Neurology “Japan. It is such a unique culture and I would love to learn more about it by traveling there.”

Christian, 9, GI “Hawaii, because I would like to see the volcanos we learned about in science class.”

Children’s View

5

Today@CHOP VIEW News

Flyers Legends’ Hat Trick for CHOP

When ice hockey legends Eric Lindros and John LeClair agreed to play in the NHL’s Winter Classic Alumni Game on New Year’s Eve in Philadelphia, they saw an opportunity to do something for Children’s Hospital, where they had both volunteered during their tenure with the Flyers.

“I am really looking forward to coming back to Philadelphia and having the opportunity to give back to the community where I began my career,” said Lindros before the event. “CHOP has always had a special place in my heart, and I am excited to contribute to its excellence and spend time with the kids.”

Lindros and LeClair Team Up for CHOP raised more than $108,000 for the Hospital in a threepart fundraiser. On Dec. 15, the former teammates met fans at a benefit luncheon at Morton’s The Steakhouse in Philadelphia. After lunch, Lindros and LeClair headed to CHOP, where they visited patient rooms and answered questions at THE VOICE studio.

The following day, they held an autograph signing at Granite Run Mall in Media, Pa., where fans began lining up at 9 a.m. for the 6 p.m. event.

Artful Donors A grateful family’s fundraiser celebrates the arts while supporting lifesaving research.

Catherine, November 2011

6

Children’s View

For those not in the area, Lindros and LeClair contributed tons of their old Flyers gear — skates, uniforms, hockey sticks, pads, bags — for an online sweepstakes that ran through the month of December.

TD Bank was the events’ Presenting Sponsor, and Bauer was the Power Play Sponsor. CHOP partnered with radio station 97.5 The Fanatic to make the hat trick of events a success.

“I feel very fortunate to reunite with Eric for such a great cause,” said LeClair. “Having remained in the area with my family, I was more than happy to put together this event to support the place we call home.” n

Top: Lindros (left) and LeClair visit patients at THE VOICE studio at CHOP. Above: The former teammates greet fans at a benefit lunch at Morton’s.

Rayenne Chen is thankful her family lives less than 10 miles from Children’s Hospital. Three years ago, at age 3, Chen’s daughter Catherine was diagnosed with bilateral Wilms’ tumor — cancerous tumors on both of her kidneys — a condition found in only 20 children a year in the United States.

“We were so grateful to be at a place like CHOP, one of the few places where surgeons actually see kids like her, because they’re such a rarity,” says Chen.

The unparalleled expertise at CHOP returned Catherine, now 6, to health.

As an expression of her gratitude, Chen recently held a unique fundraiser to support a study by Catherine’s physicians on the use of advanced imaging prior to surgery for Wilms’ tumor. Catherine benefited from such imaging, and her physicians now hope to establish it as a standard of care for patients everywhere. To raise funds, Chen sold tickets to a special December performance of Charlotte’s Web at Philadelphia’s Arden Theatre Company, one of Catherine’s favorite venues. She also

New Karabots Center to Offer Advanced Care to West Philadelphia

At this time next year, children in West Philadelphia will be able to visit their primary care physicians in a brand-new state-of-the-art facility: the Nicholas and Athena Karabots Pediatric Care Center at 48th and Market streets.

The 52,000-square-foot Karabots Center is a significant addition to the CHOP Care Network, one of the largest pediatric healthcare networks in the nation. The CHOP Care Network primary care practices at 39th and Chestnut streets and 3550 Market Street will relocate to the Karabots Center, which then will accommodate more than 45,000 outpatient visits annually. The $30 million facility was made possible through a $7.5 million gift from Nicholas and Athena Karabots and their family, dedicated philanthropists and advocates for Philadelphia’s youth.

In October, CHOP held a formal groundbreaking for the Karabots Center. The event was attended by Hospital donors, including the Karabots family; administrators such as Steven Altschuler, M.D., chief executive officer of Children’s Hospital; and Tim Buckley, chairman of the Board of Trustees; as well as state Sen. Vincent Hughes and Councilwoman Jannie Blackwell.

The Nicholas and Athena Karabots Pediatric Care Center, now under construction at 48th and Market streets, will be a part of the CHOP Care Network and serve children and families in our community.

“The Karabots Pediatric Care Center will deliver high-level medical services to children and families in West Philadelphia,” said Buckley. The center will also provide a home to many vital family-focused programs for the community, such as Reach Out and Read, the Homeless Health Initiative and the Community Asthma Prevention Program.

Altschuler praised the Karabots’ inspiring vision and devotion to providing better health and more opportunities to generations of young people in Philadelphia. “This generous donation from Nicholas and Athena benefits our community on so many levels,” Altschuler said.

“I feel strongly that all children, especially those living under difficult circumstances, deserve the opportunity to live a healthy and productive life,” said Nicholas Karabots. “To do this, they need to have access to good healthcare services.”

The Nicholas and Athena Karabots Pediatric Care Center is scheduled to open in early 2013. n

created a fundraising page on CHOP’s GiftofChildhood.org website so people who couldn’t attend the show could still support the cause.

The event — Chen’s first-ever fundraiser — raised $25,300 and will enable 15 children to participate in the study. While it was meant as a “thank you” to Catherine’s physicians, the experience proved personally meaningful.

“One unexpected grace in my experience of having a child with cancer was realizing how many people in the community cared about Catherine and jumped in to help our family,” says Chen. “This fundraiser allows me to take the amazing generosity, compassion and enthusiasm that my friends, family and community have shown us and channel it toward current families at CHOP. I hope our efforts illuminate to them how much compassion exists in the community for their struggle and worries.” n To set up your own fundraising page, please visit giftofchildhood.org/fp.

From left: In back, Rev. Dr. Justin Osterman, Rayenne Chen, Tom Kolon, M.D., Beth Fox, M.D. In front: sisters Catherine and Alice.

Children’s View

7

Today@CHOP VIEW News Quiz

1 … distributed books to

Hooray for

approximately how many families? a) 150,000 b) 210,000 c) 260,000

We know that exposure to books and reading in the first years of life increases the probability of both healthy child development and school success. For 15 years, the Reach Out and Read Program at CHOP has been distributing free books and a prescription for reading to kids daily, thanks to our donors and the volunteer efforts of doctors and nurses at six CHOP Care Network practices. New, ageappropriate books are given to children age 6 months to 5 years at checkups. Donated, gently-used books are given to all children up to age 12 at well and sick visits. All are to take home and keep. Test your knowledge: how literate are you about Reach Out and Read?

HERO

2 … distributed a total of how many new books? a) 151,000 b) 281,050 c) 324,075

3 … distributed a total of how many gently used books? a) 200,321 b) 253,000 c) 299,320

Answers: 1) c, 2) b, 3) c, 4) b, 5) a, 6) c

Reading!

My CHOP

In the last 15 years, CHOP’s Reach Out and Read Program has …

According to studies of American families …

4 … what percentage of children

enter kindergarten without the basic language skills they will need to learn to read? a) 10% b) 34% c) 73%

5 … how many parents read

aloud to their children daily? a) 48% b) 55% c) 73%

6 … what percentage of children

in low-income households have no books at all? a) 24% b) 55% c) 61%

Denise Donaghue, R.N., M.S.N. Job title: Fetal Heart Program Coordinator Years at CHOP: 30 A 10-year veteran of the Fetal Heart Program, Denise is part of a multidisciplinary team that counsels families carrying a fetus with congenital heart disease. She provides support, education and guidance on what to expect, facilitating a better prenatal experience and helping to smooth the transition to postnatal life.

“Sullivan was diagnosed in utero with a single ventricle heart defect by a pediatric cardiologist in New York who made it sound like the end of the world. I remember the phrase ‘incompatible with life.’

It was shocking and awful. When we called the Fetal Heart Program at CHOP for a second opinion, Denise Donaghue was the first person we talked to. She was familiar with his condition, so instead of a horrifying diagnosis, it felt more routine and manageable. She met my husband and me with a big, warm smile, and we felt immediately like he was going to be well cared for. We went in feeling a little desperate and came out feeling hopeful. I know the Fetal Heart Program sees lots of patients, but Denise made us feel like our child was important to her. Three surgeries later, Sullivan is healthy and normal. Denise has been supporting us the whole way through, and we are so grateful.”

– Sarah Lowing, mother of Sullivan, 4

To honor a CHOP employee who has gone above and beyond for your family, go to giftofchildhood.org/myhero.

8

Children’s View

Ask Dr. Bell

Food Allergies

Watching What Children Eat

By Louis Bell, M.D. We hear a lot in the news about the rise in food allergies among kids. And it’s real: The incidence of peanut allergy doubled between 1995 and 2005, and allergies in general seem to be increasing over time. No one knows exactly why, which naturally concerns parents.

But studies show something else, too: Around 25 percent of parents suspect that their child has a food allergy, even when only 4 percent to 6 percent of children truly do.

With the thinking on food allergies often shifting and changing, I checked in with two expert CHOP colleagues, Terri Brown-Whitehorn, M.D., and Jonathan Spergel, M.D., Ph.D., who study, diagnose and treat all types of food allergies.

At its most basic, a food allergy happens when the body’s immune system has an adverse reaction to something we eat.

The most common type of reactions include immediate hives or lip swelling that may progress quickly to vomiting, coughing, wheezing and, at times, low blood pressure. These reactions can even be life-threatening, so allergies are not something to take lightly.

Until very recently, doctors recommended that parents delay introducing certain foods known to cause allergy, such as eggs, milk and peanuts, to their children, and many parents are still getting that advice. Unfortunately, withholding those foods didn’t stop the rise of allergies.

As of 2010, guidelines from the American Academy of Pediatrics (AAP) say that when a certain food is introduced does not determine whether an allergy will develop to it. The newer recommendation, say my colleagues, is to feed your baby in much the same way your grandparents fed their kids. The AAP advises giving only one new food at a time, then watching for allergic reactions and waiting a few days before starting another.

Solid foods can typically be introduced at 4 months of age with one new food every three to five days.

There are other, more severe types of food allergies as well.

One of these, food protein-induced enterocolitis (FPIES), occurs when a baby or young toddler eats a food and becomes very sick two hours later with vomiting, diarrhea and even shock.

Another food protein allergy is eosinophilic esophagitis (EoE).

It can appear in young toddlers as severe acid reflux or food refusal, in school-age children as abdominal pain and/or acid reflux, or in adolescents as difficulty swallowing food. CHOP’s Center for Pediatric Eosinophilic Disorders is the largest EoE center in the country, bringing allergists, gastroenterologists and

Louis Bell, M.D., chief of the Division of General Pediatrics at CHOP, explains the latest in medical thinking on an important topic: food allergies.

nutritionists together to treat more than 1,200 children from all over the United States.

Parents play an important role in detecting food allergies.

If there are any concerns, consult your pediatrician right away.

If symptoms are severe, bring your child to the emergency department and follow up with an allergist, who may recommend testing.

Once an allergy has been diagnosed, the safest treatment is to carefully read labels and avoid the allergen, but there is hope for the future. Researchers at CHOP are studying new treatments, including a method to add the food slowly back into the diet under careful supervision. Some studies of this kind have been able to eliminate the allergy in about 80 percent of children. It is promising research and may revolutionize the way that we treat children with food allergies. n

To read more of Dr. Bell’s columns, please visit giftofchildhood.org/childrensview.

Children’s View

9

24 hours in the

EMERGENCY

DEPARTMENT

From top: Sickle cell disease-related pneumonia brought Nikaury, 3, to the ED; Mitchell, 10 weeks, visits for pink eye; CHOP’s newest ambulance joins the fleet; Jakir, 9, injured his lip playing basketball.

10

Children’s View

E

very year, more than 85,000 children visit the Emergency Department (ED) at The Children’s Hospital of Philadelphia.

The ED is so many things: a 24-hour refuge for urgent problems, a training

ground for new pediatricians, a regional referral center for lesser-equipped community hospitals, and a safety net for families who don’t know where else to go. It is a place that touches so many children and families, often at the scariest moments of their lives.

Nationwide, hospitals admit about 6 percent of children from emergency

rooms. At children’s hospitals, it averages 10 percent. CHOP’s admission rate is 18 percent — nearly the highest in the nation. The admission rate reflects the fact that CHOP’s patients face, on average, more severe illness, explains Kathy Shaw, M.D., division chief and director of Emergency Medical Services. “We get the sickest children referred to us from community hospitals, we’re a Level I trauma center, and we’re in an inner city where there’s a burden of illness,” she says.

Starting at 8 a.m. on Nov. 7, 2011, we spent 24 hours in the ED to find out what happens in a typical day. As we learned, the ED doesn’t have the running, shouting action of TV hospital dramas — although our day held moments of that — but it does treat many children every day with potentially life-threatening problems. There were 279 children brought in that day. These are their stories. >>

By Eugene Myers and Julie Sloane

Children’s View

11

8 a.m. The doctors and nurses on team 1 discuss each patient

one by one: There is a 6-year-old boy with severe breathing problems, a 9-year-old girl with abdominal pain, and a 3-monthold baby with fever and possible seizures.

Rounds are an institution between every shift change — 8 a.m., 4 p.m., midnight. The incoming team of physicians and nurses forms a circle with the outgoing team, introducing themselves by first name and role. Good communication not only prevents medical errors, but introductions also help patient families know who is taking care of them.

Each team is led by an attending physician and staffed with seven to 10 nurses, fellows, nurse practitioners and residents. As many as seven teams operate simultaneously, each caring for as many as 10 patients. On this morning, team 1 is led by Joel Fein, M.D., who has been at CHOP since his residency in 1988.

He checks in on a 12-year-old girl with suspected appendicitis and a pained expression. “She doesn’t want surgery,” says the girl’s mom. “If you do need it,” Fein says with a smile, “you’ll want it sooner rather than later. Trust me.” By mid-morning, her appendicitis has been confirmed and she is taken to surgery.

10:15 a.m. A resident presents the story of 2-year-old

Ramisha to team 2 attending Mirna Farah, M.D. Ramisha (pictured on opposite page) has had a fever for nine days, the resident explains, and has been getting them every few weeks since she returned from a family trip to Bangladesh six months ago.

“Let’s think of the possibilities of what she might have,” says Farah. They rattle off a long list and look online for information about diseases particular to Bangladesh. Then Farah goes to examine Ramisha herself. Every patient in the ED gets examined by at least two doctors, including an attending, who guides the others and makes the final call on all treatment.

Bright-eyed and alert, but cranky from her fever, Ramisha

one day by

the numbers

12

Children’s View

Lily, 14 months

hugs her mother close and cries. Farah waves her red, lighted stethoscope like a toy to distract Ramisha while listening to her lungs and looking in her ears. Finding no other visible problems, Farah orders a battery of tests that will last the entire morning.

“Nine days is too long,” Farah says to Ramisha’s family. “If we don’t find anything, we’ll admit her.” Around 4 p.m., they do just that.

11:15 a.m.

“It’s wheezin’ season,” says sort nurse Bonnie Rodio, R.N., a 36-year CHOP veteran, watching the waiting room begin to fill. Rodio’s job is to rate the urgency of each child’s problem the moment they arrive, prioritizing the most urgent cases.

Fall, with the return to school and exposure to viruses, cold air and decaying vegetation, always brings a spike in asthma.

While it’s a common condition, asthma is also the top reason kids

Patient Snapshot: 279 Patients seen … 40 ED patients admitted to the Hospital … 3 Trauma cases requiring the resuscitation room … 81 Patient beds in use … 316 Prescriptions written … 20 Children arrived by ambulance … 1 Child arrived by helicopter … 179 Calls to the Poison Control Center

in emergency rooms need to be admitted, so it is taken very seriously.

This day, in fact, will bring 66 kids in respiratory distress. Even with a whole team dedicated to respiratory problems, these patients overflow into all the teams. Come winter, the ED will see more flu and infections; its busiest day ever was in October 2010, when the H1N1 virus drove more than 500 kids to CHOP’s ED.

12:27 p.m. Joel Fein flips through the results of a teen mental

health screen, given to a 14-year-old boy. It is a computerized survey Fein co-developed with CHOP psychologist Guy Diamond, Ph.D., to screen all teens 14 and older in the ED for problems like depression, drug abuse and suicidal thoughts. “These are questions a child would be asked in primary care, but many don’t get primary care,” says Fein. About 20 percent of the time, the doctors find something worrisome on the survey.

Happily, today’s patient reports nothing wrong.

2:30 p.m.

Fourteen-month-old Lily (pictured on opposite page), normally a steady walker, wobbles her way down the hallway, with the medical team and her parents hovering to catch her before she tumbles over. This unsteadiness, called ataxia, is what has brought her family here from Ocean City, N.J. Ataxia can be a sign of a brain tumor, and the team very much hopes that is not the case with Lily. (Fortunately, the next day Lily’s ataxia was found to be post-viral, and she went home.)

4 p.m.

As team 1 holds rounds (pictured below), Joel Fein passes the reins to Mark Zonfrillo, M.D., a pediatric emergency specialist who has been at CHOP for five years. Most of the attendings also do research outside of their clinical hours. In addition to the teen mental health screening, Fein is deeply involved with programs to address and prevent youth and family violence. Zonfrillo, too, spends about half his week with CHOP’s Center for Injury Research and Prevention.

continues >>

Ramisha, 2

From left: Kidney transplant patient Michael, 10, came to the ED with a severe headache; Sabir, 17, receives a cast for his fractured hand; Team 1 rounds at 4 p.m. as Mark Zonfrillo, M.D. (center, in green), takes over for Joel Fein, M.D. (far left).

Children’s View

13

Elias, 20 months

5 p.m.

“Foreign body” reads the screen next to 20-month-old Elias’ name. “Kids swallow things all the time,” says Zonfrillo.

CHOP’s Poison Control Center gets more than 40,000 calls a year about kids under 6 (see box on page 16). “Most of the time it’s harmless, but there are certain things we worry about, like pins or button batteries. Those can actually be fatal.”

Elias’ mother watched him swallow a nickel, which another hospital confirmed by X-ray, but nine days later, she still hasn’t seen it emerge. “I’ve been digging through his diapers like I was digging for gold!” she says earnestly. “I want that nickel out!”

Zonfrillo orders another X-ray and smiles as he looks at the screen. “That’s what I thought,” he says. “It’s gone. It must have come out in a diaper when Elias was at day care.”

6:45 p.m. Monday is the ED’s busiest day, and 2 to 11

p.m. its busiest hours, but the pace of the day seems to slow.

Attending Joe Zorc, M.D., in charge of keeping statistics for the ED, guesses why: The Eagles are on. “There’s not necessarily a correlation with when Philadelphia sports teams play,” he says, smiling, “but it’s a pretty safe bet.”

On the Move

The First Step in Any CHOP Experience? Getting There.

They might be one of the most important groups at CHOP that patients never see. But for the baby fighting for her life in a community hospital who needs to be rushed to CHOP, the Emergency Transport Team is essential.

The Transport Command Center is a small room nestled in the Emergency area. Inside, six or seven people sit in a row, working the phones, which ring just about nonstop, around the clock. An average of 1,200 calls go in and out each day.

This team coordinated the transport of 7,400 children to CHOP last year — 3,000 through the Hospital’s own ambulances or aircraft and 4,400 more from those of other hospitals. Most of

A 6-day-old baby arrives by helicopter for heart surgery.

14

Children’s View

these children come from other hospitals that can’t offer the same level of specialized pediatric care. They commonly come from any of 150 hospitals in the region but can also arrive from across the country and around the world.

The Transport Command Center may dispatch a helicopter or one of CHOP’s three dedicated ambulances — more than 90 percent arrive by ambulance — making its nurses, paramedics, respiratory therapists and, when needed, physicians quite welltraveled. The team also works to make sure CHOP is prepared to receive patients.

“It’s like the air traffic control of the Hospital,” says Nick Tsarouhas, M.D., director of Transport. “Any child who needs to get here, outside of a private residence, we’re somehow involved.”

– Julie Sloane

8:30 p.m. Without warning, a voice comes over the Haste

System, a loudspeaker controlled by Philadelphia Emergency Dispatch. “Trauma alert.” An 8-year-old boy has been hit by a car. He will arrive in 15 minutes. The resuscitation room, with its three operating room-like bays to handle critical emergencies, comes to life.

Within a few minutes, the Haste System calls out a second trauma alert: 16-year-old male, GSW. Murmurs erupt among the staff: “GSW.” Gunshot wound. More of the staff peel off into the resuscitation room. CHOP receives only about 30 gunshot wounds each year, but the teams have held many simulations to prepare for this scenario. There is a precision to the frenzy, everyone quickly donning gowns, gloves, masks and face shields. Trauma surgeons and X-ray technicians arrive, the blood bank is called, the operating room is notified, security guards man the door. About 50 people fill the resuscitation room.

Zonfrillo calls out to the team in a loud, calm voice: “Get ready to do a chest film. We’re going to need to roll the patient quickly to look for wounds out the back. Who’s going to do that?

Who’s going to be cutting the patient’s clothes off?”

8:46 p.m. The paramedics briskly roll in a gurney with the

8-year-old from the motor vehicle accident and recite his story.

CHOP allows families to observe everything in the resuscitation room, so the boy’s father is met by a child life specialist to serve as

his guide. It takes just seven minutes to assess the boy, who appears fine but for a broken leg. He leaves for a CT scan before heading to a normal patient room in the ED.

8:49 p.m. The boy with the gunshot wound arrives, and

while someone cuts off his clothes, others focus on ABC: airway, breathing, circulation. The doctors call out their findings. “Airway intact. Two wounds on the lower right quadrant of the abdomen.

Breath sounds equal and bilateral.” The boy is awake and alert.

They roll him to the side and find no exit wounds. He got lucky.

The CT scan will show the bullet went through his abdomen superficially. He is going to be all right.

9:03 p.m. In the midst of the action, a third trauma arrives.

(“I have been here for five years, and only one other time have I seen all three trauma bays in use at once,” Zonfrillo would say later.) A third attending arrives to lead the case. The paramedic calls out the story: A 2-year-old boy was climbing a dresser when a TV fell on him. He has been lethargic. A similar frenzy descends on the little boy, cutting off his clothes, checking his breathing, drawing blood. A nurse notes that the boy is moving all of his arms and legs equally. In the haste of getting him to the Hospital, the boy is still wearing one red fuzzy Elmo slipper. He improves quickly and, finding no obvious injuries, the team decides to watch and wait. Hours later, the news is good: He is fine. continues >>

Above: Paramedics arrive with a trauma patient. Right: Staff in the resuscitation room spring into action.

one day by

the numbers

Staff Snapshot: 16 Attending physicians … 2 ED fellows … 18 Residents … 63 Registered nurses … 6 Nurse practitioners …

7 Respiratory therapists … 4 Child Life specialists … 4 Social workers … 13 Techs … 76 Patient care assistants Children’s View

15

10:40 p.m. William, 17, and his parents are

worried about swelling, pain and inflammation down his right leg. There’s real cause for concern, since William is being treated at CHOP for cancer in the soft tissue of his leg. Fortunately, an ultrasound scan shows no sign of a blood clot; Zonfrillo’s diagnosis is cellulitis, which can be treated with an antibiotic. William is especially relieved because this means he can participate in a walk-a-thon the next day, sponsored by his school to raise money for his treatments.

Midnight

“Attention, attention. Rounds are now beginning in team 1.” An announcement on the intercom signals another change in shift. A seven-year CHOP veteran, Manoj Mittal, M.D., takes over from Zonfrillo as attending physician.

3:10 a.m.

Evening in the Emergency waiting room

Help for Toxic Times The Poison Control Center at CHOP Keeps Communities Safer

When a curious child finds out the hard way that the pretty blue liquid in the shower tastes nothing like raspberry, most parents know to call the Poison Control Center for free and speedy help. But what most don’t realize is that for 23 counties in Pennsylvania and all of Delaware, the 24/7 Poison Control Hotline (1-800-222-1222) is staffed entirely by CHOP. The Poison Control Center at CHOP responds to more than 80,000 calls per year, from homes, workplaces and other hospitals. While more than half the calls are about children under age 6, the Center has been helping people of all ages for 25 years. It frequently receives calls about chemical exposures in the workplace or elderly people who take the wrong medications. Many

Sixteen-year-old Justin (pictured on opposite page) broke his arm playing basketball.

Because his bones may still be growing — something adult orthopedists don’t usually see in patients — his community hospital decided to send him to CHOP.

Justin is sedated — he won’t feel or remember any of this painful procedure. An X-ray machine displays a real-time image of Justin’s arm as his bones are realigned.

His father waits right outside the room. He’s no stranger to CHOP or the ED: His other son was once treated here, and he credits CHOP with saving his daughter’s life. He trusts CHOP doctors to take good care of Justin, too. When he re-enters the room, his son’s arm is bandaged, propped on a pillow. A nurse asks Justin how

of the calls, in fact, come from other hospitals seeking advice on perplexing overdosing and poisoning cases.

Every hotline call is fielded by a poison information specialist who is a nurse or pharmacist, and a board-certified toxicologist is always on call. Most incidents can be handled over the phone. Not only does hotline advice frequently prevent unnecessary trips to the emergency room, but also studies show that every dollar spent on poison control services saves $7 in related healthcare spending.

The Center, with a staff of 17, is supported by both state and federal grants as well as funding from CHOP. In recent years, as government funding for poison control has been eroding nationwide, many centers have been forced to close. The CHOP-based Poison Control Center has remained open, and the Hospital is seeking to preserve this important community resource through additional private donations.

– Sara Barton

16

Children’s View

he’s feeling. He groggily raises the thumb on his good hand: He’s okay. Justin’s father tenderly rests a hand on his son’s forehead. It’s been a long night for both of them, but soon they’ll be able to go home.

5:17 a.m. Environmental Services takes advantage of

a temporary lull in the ED to clean, but there’s plenty of activity in Zakee’s room. The 4-year-old boy broke into his anti-seizure medication and drank way too much. Cynthia Jacobstein, M.D., the attending in team 2, examines him and questions his mother; meanwhile, a nurse calls Poison Control for more information on the drug he took.

Ten minutes later, Zakee gags. A nurse gently turns him on his side as he coughs up the orange medicine. The team works together efficiently to suction out his mouth and quickly clean him and the area. Now out of immediate danger, Zakee rests comfortably.

6:05 a.m.

The ED seems to be “running a special” on appendicitis, as one staffer notes. There are five appendicitis patients in the ED right now, four of them transferred from other hospitals within the last two hours.

Children regularly arrive to the ED from other hospitals via ambulance, helicopter and even airplane (see Page 14).

The synchronicity in such a short period is unusual, but the cases are in the best possible hands: One of Manoj Mittal’s research specialties is appendicitis.

Because there are so many simultaneous appendicitis cases, Mittal suggests extra care be taken with their medications; the charge nurse already had the same thought and has assigned a different nurse to each patient to avoid any potential mix-ups.

8 a.m.

Mittal and his team hand off their patients and their histories to new caretakers. The departing physicians and nurses may never learn the outcomes for the children they helped, but they’ve touched and improved many lives throughout the night.

Now, sunlight is the only thing filling the ED waiting room — the start of another day. The story for the next 24 hours will be much the same, but it will feature different players, different problems to be solved, different emergencies.

The ED doors slide open. A mother and child walk in.

They head past the empty rows of seats toward the nurses’ station. n

one day by

the numbers

Above: Justin, 16, with his father Below: Fellow Maya Jones, M.D., listens during rounds.

How You Can Help The Emergency Department sees 85,000 patients every year, saving children’s lives every day. If you are interested in making a gift to help further that mission, please contact Mary Cooney at cooney@email.chop.edu or 267-426-6468.

Top 5 Reasons for Visiting the CHOP ED on November 7–8, 2011 1. Breathing difficulties … 2. Fever … 3. Abdominal pain … 4. Headache … 5. Rash Children’s View

17

Patient Story

Neurosurgery

Standing

TALL

Two incredible surgeries gave a teenage cancer patient a second chance at life.

By Jessa Stephens

T

Kelsea Henderson, 21

18

Children’s View

he tumor that extended up and down Kelsea Henderson’s spine was one most doctors consider incurable. Yet the 13-year-old fought on, enduring 37 radiation treatments and a year of chemotherapy.

Unfortunately, the cancer remained.

Her only option was surgery to remove it. Most surgeons wouldn’t attempt it. Fortunately, Phillip Storm, M.D., attending surgeon in CHOP’s Division of Neurosurgery, is not like most surgeons.

In a stunningly complicated procedure, Storm removed a large section of Kelsea’s ribs, collapsed her lung and aimed to remove every bit of the 8-inch-long cancerous spinal tumor. The tiniest misstep could have left her paralyzed.

Storm operated for close to 30 hours. It was Kelsea’s very last chance — and it worked.

Kelsea still remembers the moment in 2006 when Storm told her and her family that he had successfully removed the entire tumor. “It was a wonderful feeling,” she says. “To be battling for two years, not knowing if I would make it, and then knowing that they actually got the tumor — it’s indescribable, really.”

Astonishingly, Kelsea suffered no neurological complications from the surgery, but it was a bumpy recovery. Radiation had left holes in her lungs, and she developed several infections in her chest. To prevent further infections, Storm removed the rods and screws he had placed in her back to stabilize her spine, but unsupported,

Kelsea’s spine began to curve. The radiation had weakened her bones, and they just weren’t healing.

That’s when Storm planned the second unbelievable operation, collaborating with David Low, M.D., attending surgeon in CHOP’s Division of Plastic and Reconstructive Surgery, and Daniel Sterman, M.D., director of Interventional Pulmonology at the Hospital of the University of Pennsylvania.

The surgeons used the calf bone from her right leg to reinforce her weakened spine. (The calf bone isn’t weightbearing, so Kelsea can still walk normally.) They then created a blood supply for the calf bone using a vein harvested from one of her legs. The surgery, done in 2008, took more than 24 hours. Nothing like it had ever been done before.

“It just goes to show you how great it is to be both a patient and a physician at CHOP,” Storm says. “You can do landmark, vanguard things that nobody else can do because you have so many great people around you.”

Kelsea suffered from many complications and missed countless days of school, but she knew it would all be worth it in the end. “I wanted to do whatever I had to do to live,” she says.

“It gives us hope to try other heroic procedures in other patients. And it gives everyone else hope: There’s somebody who beat the odds.”

– Phillip Storm, M.D. Kelsea had the support of many CHOP staff during her long and difficult recovery. A social worker told her about a college scholarship program for cancer survivors, and her nurses in the Pediatric Intensive Care Unit gave her manicures and pedicures to lift her spirits. “It made me feel so much better, and it took my mind off being in the hospital,” she says. “When you have people around you who are so positive and so nice, and willing to help in any way they can, it just makes it so much easier.”

Now 21 and a pre-med honors student at Saint Joseph’s University, Kelsea is deeply proud of the scars that line her back, left there by the expert hands of the surgeons who worked so hard to save her life.

They remind her of all she’s been through — and of all that is, now, behind her. n

Brain POWER For patients like Kelsea, the Divisions of Neurosurgery and Oncology often collaborate. Another remarkable collaboration is the Children’s Brain Tumor Tissue Consortium, an effort to find better treatments for brain tumors, the deadliest type of childhood cancer.

Led by Tom Curran, Ph.D., deputy scientific director at The Children’s Hospital of Philadelphia Research Institute, the Consortium collects tumor samples from patients at CHOP and three other children’s hospitals.

They see collaboration as key to advancing research.

“Pediatric brain tumors, thankfully, are quite rare.

And in order to do scientific studies that are statistically valid, we need a large number of specimens — more than any single institution can contribute,” says Curran.

The Children’s Brain Tumor Foundation and other foundations provided the consortium with critical early funding, and proceeds from the Daisy Day Luncheon on May 3 will be key to the next phase of the project, which the researchers believe will enable personalized treatments for patients.

The long-term goal is to collect samples from every children’s hospital in the nation and make the data gleaned from the samples available to any researcher who wants it. Staff from several CHOP departments are involved in the initiative, including neuro-oncologist Peter Phillips, M.D., and Adam Resnick, Ph.D., a brain tumor researcher at CHOP. These kinds of partnerships are already making a difference. Several CHOP investigators co-authored a 2010 paper on the genetics of the brain tumor medulloblastoma that was published in the journal Science, and there’s much more to come.

“Events like Daisy Day,” says Resnick, “will allow us to continue doing this.” n

Daisy Day luncheon • may

3, 2012

For more information, or to register for the event, please visit daisydayluncheon.org.

Children’s View

19

Research Spina Bifida

HOPE at Last

One year after becoming a standard of care, fetal surgery for spina bifida is helping so many families.

By Abny Santicola Above: Merissa Beam with Jaidyn, 4 months

20

Children’s View

Thanks to fetal MMC repair at CHOP’s Center for Fetal Diagnosis and Treatment, Jaidyn Scott Beam was born in the Garbose Family Special Delivery Unit with only a scar where his spinal defect had been.

M

erissa Beam told her husband, Jason, she loved him and gave him the prayer shawl from around her shoulders. Her care team at CHOP’s Center for Fetal Diagnosis and Treatment then wheeled her to a specialized fetal surgery operating room. It was the culmination of the most emotionally trying week the couple had ever experienced. Only days earlier, their unborn baby had been diagnosed with myelomeningocele (MMC), the most severe form of spina bifida. In this birth defect, an opening in the back exposes the fetus’ spinal cord to permanent, often disabling damage.

“I was so scared and nervous getting wheeled into the OR,” Merissa recalls. “There were so many lights and instruments and nurses and doctors everywhere.”

Sue Spinner, R.N., M.S.N., nurse coordinator, who oversaw Merissa’s care at the Center, sensed her anxiety and grabbed her hand. The next thing Merissa remembers is waking up in her recovery room. Her prayer shawl — which had been knit for her by women from her church in western Pennsylvania

— was around her shoulders as it had been before surgery.

Barely able to speak, she mouthed the word “baby” to her nurse and received the good news she and her family and friends had prayed over for days: The surgery was a success, meaning there was hope for a healthy life for her son. Merissa was among the first patients to undergo prenatal surgery for MMC as a standard of care at The Children’s Hospital of Philadelphia.

It was a scenario that would not have been possible just a year earlier. In December 2010, a landmark National Institutes of Health-funded clinical trial, co-led by CHOP, gave credibility to surgical repair of MMC before birth.

Initial findings from the seven-year trial demonstrate that fetal repair of MMC offers children the chance to avoid some of the condition’s most devastating effects, including lifelong paralysis and hydrocephalus (excessive fluid pressure in the brain). Thanks to the trial and nearly two decades of research and innovation by CHOP team members, the Center can now offer prenatal repair as a treatment option to families like the Beams.

“It was just amazing that I fell into this incredible breakthrough at exactly the perfect time,” says Merissa, one of the first women in the world to undergo fetal MMC surgery without it being under the auspices of a clinical trial. “The whole thing was so surreal, but so amazing at the same time.

I feel truly blessed that I had this opportunity.”

The Center’s MMC fetal treatment team is the most experienced in the world. Word of the team’s expertise has quickly spread nationwide: Just one year after the study’s publication in the New England Journal of Medicine, the Center has received over 200 fetal MMC referrals from all over the country and performed more than 100 evaluations and nearly 30 prenatal surgeries. The team now performs about three fetal MMC surgeries a month.

“What was once just an idea is now a standard of care,” says N. Scott Adzick, M.D., M.M.M., Center director and

“What was once an idea is now a standard of care. The path to get here has been long and fraught with extraordinary challenges.

But the beauty of medicine is that, with determination and perseverance, we can change and improve practice to offer new hope.”

– N. Scott Adzick, M.D., M.M.M.

CHOP surgeon-in-chief. “The path to get here has been long and fraught with extraordinary challenges. But the beauty of medicine is that, with determination and perseverance, we can change and improve practice to offer new hope.”

Three months after Merissa’s surgery, she returned to CHOP once more, this time to deliver her son. Jaidyn Scott Beam was born in the Garbose Family Special Delivery Unit with a scar where his spinal defect had been. He will return to CHOP regularly for long-term follow-up but so far shows no signs of paralysis or hydrocephalus. Now 9 months old, he moves his legs like a champ and just started infant swimming lessons.

“My family and I are very thankful for all the hard work and dedication of the team at the Center,” Merissa says.

“They have made an impact on our lives forever.” n

This is just one of the inspiring stories you can read in our latest Annual Report. See the full report at www.chop.edu/ar.

Meet our heroes, big and small.

View the CHOP 2011

Annual Report online at www.chop.edu/ar

Use your phone’s QR Reader app to go to the CHOP Annual Report.

Children’s View

21

V.I.P. Volunteers in Philanthropy

V.I.P. SIGNATURE EVENTS

Many events,

one cause.

2011 Carousel Ball On Nov. 5, CHOP’s biennial black tie gala was held at the Hyatt at Penn’s Landing in Philadelphia. The signature event raised $1.4 million to benefit the Center for Simulation, Advanced Education and Innovation and the Pediatric Endoscopic Surgical Training and Advancement Laboratory (PEDESTAL). Terry and Larry Sorsby, a grateful patient family, were the Platinum Ring of Hope sponsors and the evening’s speakers. Jane and Hank Mullany joined Lynne and Bill Garbose as event co-chairs. n

The Women’s Committee Holiday Boutique The 46th annual Holiday Boutique hosted by the Women’s Committee of The Children’s Hospital of Philadelphia raised more than $330,000 to support patient care, research and education programs. Trion was the presenting sponsor for the shopping event, which was held on Dec. 1 and 2 at the Merion Cricket Club in Haverford, Pa. n

The 2012 Philadelphia Auto Show Black Tie Tailgate The Automobile Dealers Association of Greater Philadelphia sponsored a car show and black tie gala at the Pennsylvania Convention Center in Philadelphia on Jan. 27. Funds raised at the event will benefit the Division of Gastroenterology, Hepatology and Nutrition at CHOP. n 22

Children’s View

The 10th Annual Children’s Hospital of Philadelphia Buddy Walk® & Family Fun Day On Oct. 2, more than 4,000 people participated in the 10th annual Buddy Walk® & Family Fun Day, sponsored by Northwestern MutualThe Guinan Financial Group and benefitting the Trisomy 21 (Down syndrome) Program at CHOP. Held at Villanova University Stadium, the event raised $271,000. The event was also sponsored by the Auto Dealers CARing for Kids Foundation and Seneca Foods. n

Four Seasons Parkway Run

“All In” for Kids Poker Tournament On Oct. 20, the annual “All In” for Kids Poker Tournament was held at the Mandarin Oriental Hotel in New York City. Kristen and Richard Gillette of The Kortney Rose Foundation served as honorary chairs, and $850,000 was raised that evening for the Center for Childhood Cancer Research. n

On Sept. 25, 6,400 people turned out at the Benjamin Franklin Parkway in Philadelphia for the Four Seasons Parkway Run, a 5K run/2K family fun walk sponsored by the Four Seasons Hotel. The event is the largest annual fundraiser for the Cancer Center and this year raised $635,000 for cancer research and survivorship programs at CHOP. The event also had Winner’s Circle sponsorships from Philadelphia Insurance Companies and Grainger. n

Children’s View

23

V.I.P. Volunteers in Philanthropy • September – December 2011 1

1 • Making Miracles Happen Presented By Maaco Franchising • Sept. 15, The Club at Shannondell, Audubon, Pa. • Golfers raised $45,000 for Children’s Miracle Network at CHOP. 2 • Kidzfest • Sept. 18, Challenge Grove Park, Cherry Hill, N.J. • Organized by Help Women and Children Now and sponsored by T-Mobile, the family festival raised $5,000 for the Cardiac Center and the Cancer Center.

2

3

4

3 • 4th Annual RE/MAX Miracle Challenge • Sept. 19, Back Creek Golf Club, Middletown, Del. • Hosted by RE/MAX 1st Choice, the golf outing raised $28,500 for Children’s Miracle Network at CHOP. 4 • Kayla’s Hope for Kids 11th Annual Golf Tournament • Sept. 24, Center Valley Golf Club, Center Valley, Pa. • The golf outing, held in memory of Kayla Romaelle, raised more than $60,000 for brain tumor research.

5

5 • Golfing for Angels • Sept. 24, Jeffersonville Golf Club, Jeffersonville, Pa. • The golf outing, hosted by the Chicchi and Toussaint families in memory of their daughters Jenna Chicchi and Adelaide Toussaint, raised more than $11,000 for the sibling care program.

6

6 • April Pettit Memorial 5K Run/ Walk • Sept. 24, Marlton Park, Woodstown, N.J. • The run/walk held in memory of April Nicole Pettit raised $4,000 to support families with children in the Pediatric Intensive Care Unit.

8

7

7 • Merrill Lynch Wealth Management 2011 Charity Golf Outing • Sept. 26, Hopewell Valley Golf Club, Hopewell, N.J. • The golf outing raised nearly $18,000 to support free flu shots for families.

8 • H&K Group Charity Golf Open • Oct. 1, Lederach Golf Club, Harleysville, Pa. • The golf outing raised $10,000 for CHOP.

24

Children’s View

9 • RE/MAX Tri County 2nd Annual Monte Carlo Night • Oct. 7, Cedar Gardens Banquet, Hamilton, N.J. • RE/MAX Tri County’s evening of entertainment raised $22,500 for Children’s Miracle Network at CHOP. 10 • Annual TOMA Break-a-Thon • Oct. 16, TOMA Martial Arts, Norristown, Pa. • Students of the Elite TOMA Martial Arts school broke 2,400 boards to raise $12,000 for CHOP.

9 10

11

12

13

11 • 2011 Walk for Hope • Oct. 23, Veterans Park, Hamilton, N.J. • The 5K run/family fun walk was sponsored by the IBD Family Research Council and raised more than $56,000 for IBD research.

12 • Monte Carlo Night • Nov. 3, Courtyard by Marriott Philadelphia Downtown • An evening of entertainment hosted by Marriott Business Council raised $100,000 for Children’s Miracle Network at CHOP. 13 • Kids-N-Hope Foundation by American Heritage Federal Credit Union Check Presentation • Nov. 18, Children’s Seashore House at CHOP • The Music Therapy Program received $80,000, representing the group’s proceeds from the American Heritage Gelatin Olympics and its Annual Golf Tournament.

14

14 • Q102’s Jingle Ball • Dec. 7, Wells Fargo Center, Philadelphia • One dollar from every concert ticket sold was donated to THE VOICE@CHOP, bringing in $15,000. The check was presented to CHOP patients by singer Joe Jonas.

2012 CMN Balloon Campaign • March – July When you see the yellow Children’s Miracle Network at The Children’s Hospital of Philadelphia balloon cutouts at your favorite retail location, please donate. Children’s Miracle Network partners raised more than $3.2 million for patient care programs at CHOP last year. Look for the balloons from March through the end of the summer at Rite Aid, Walmart, Sam’s Club, Wawa, GIANT, Costco, Sunoco, Chico’s, White House/Black Market, Soma, Dairy Queen, Food Lion and other outlets. n Children’s View

25

V.I.P. Volunteers in Philanthropy • September – December 2011

Kohl’s Cares Check Presentation On Dec. 22 at Neighborhood Bike Works in Philadelphia, Kohl’s Department Stores presented a check for $637,125 to fund the Kohl’s Injury Prevention Program. It was Kohl’s largest ever donation to CHOP. n

15 • Holiday Chari“tea” for CHOP • Dec. 11, the Silla home, Newtown, Pa. • Friends Jenna Silla, Bitsy Mullarky and Abby Karch held a tea party, raising $3,850 for the Division of Pulmonology Medicine.

15

16

16 • Yule Time Classic Throwdown • Dec. 13, Philadelphia Marriott Downtown • Hosted by Marriott, the cook-off and tasting event raised $2,800 for Children’s Miracle Network at CHOP. 17 • Kortney Rose Foundation Check Presentation • Dec. 14, The MAC at Monmouth University, West Long Branch, N.J. • At Monmouth University Women’s Basketball’s Kortney Rose Foundation Night, the Foundation presented its 2011 donation to CHOP. The $150,000 contribution will go to brain tumor research.

17

18 • 7th Annual Ugly Sweater Soiree • Dec. 17, The Blockley, Philadelphia • Hosted by the Matthew Mullin Memorial Fund, the “ugly Christmas sweater party” raised more than $10,000 to support cystic fibrosis families.

Planning a CHOP fundraiser?

18

Register your event with The Children’s Hospital of Philadelphia Foundation at GiftofChildhood.org or contact the Community Fundraising team at communityfundraising@email.chop.edu or 267-426-6496. We can help you get started and make sure your event is listed on our website.

For details on upcoming events, go to

Mark your calendar for the 2nd Annual Volunteer Leadership Summit Saturday, March 31, 2012 • 8:30 a.m. to 2 p.m.

Loews Philadelphia Hotel • 1200 Market St. • Philadelphia

26

Children’s View

Not all our heroes wear scrubs.

Let Your Legacy Be the Gift of Childhood

Kieran, 2, Oncology

Our care, our research, our teaching.

They all rely on gifts from Children’s Hospital supporters, now and in the future.

Many of the most important and enduring gifts to CHOP have been made through wills, retirement plans, life insurance or trusts. Including us in your plans is one of the easiest ways to invest in the health and well-being of future generations of children, and it won’t affect your current cash flow. It also may help reduce taxes for loved ones.

If you have already made a planned gift to CHOP, thank you, and please let us know. We can help you designate your gift to a specific Hospital program, and we’ll invite you to join the Lewis Society, a select group of supporters who have included Children’s Hospital in their plans.

Visit us at giftofchildhood.org/plannedgiving to learn more, including information on increasing your retirement income through a gift annuity. Or contact Tom Yates, director of planned giving, at 267-426-6472 or yatestg@email.chop.edu.

G i f t of C hildhood .org/plannedgiving

Because our scientists make discoveries that save kids’ lives.

Because someone like you took a moment to give.

Please recycle. Children’s View is printed on 50 percent recycled paper and 25 percent post-consumer waste paper.

© 2012 The Children’s Hospital of Philadelphia, All Rights Reserved.

Hope lives here.

GiftofChildhood.org

Abby, 1, complex heart defect

Because our doctors successfully treat the worst childhood diseases.

5424/57.8M/02-12

Non-Profit Org. U.S. Postage PAID Philadelphia, Pa. Permit No. 2733