Cicely Saunders Institute
Public Involvement in Palliative Care Research
Public Involvement is where research is carried out in collaboration with patients, families, and members of the public. It aims to ensure research is meaningful and acceptable to people affected by it, and can improve research quality and impact.
Interested in public involvement in palliative care research? Whether you are:
⚫ New to public involvement and looking for ideas
Public Involvement at the Cicely Saunders Institute
⚫ Experienced in public involvement and
We involve people in our research in a variety of ways, from involvement in specific project to institute-wide activities:
We would like to hear from you!
looking to share good practice
Please contact: csi.ppi@kcl.ac.uk
⚫ Project advisory roles
⚫ Themed groups
All of our projects have public members that advise on the design and delivery of their specific research study. Read about one example here.
We also have themed groups of public members who meet to discuss specific areas of research, such as breathlessness and children and young people.
⚫ Workshops
⚫ Online forum
Twice a year we run workshops where public members learn about research, and give immediate feedback to researchers who present their research. Read more about our workshops here, and how we’ve recently run this virtually due to COVID-19.
For more flexible involvement, we have developed an online forum (www.csipublicinvolvement.co.uk) where public members and researchers can discuss ongoing projects. Our qualitative evaluation of this online forum can be found here.