Irish Association for Palliative Care Annual Conference 2014
Transitions of Care: The Challenge for Palliative Care Services
Friday 28 November 2014 – Alexander Hotel, Dublin 2
IAPC Annual Conference 2014 PROGRAMME – Friday 28 November 2014 08.00 – 09.00 9.10
Registration / tea and coffee available Opening and Welcome
Chairperson: Dr Paul Gregan, IAPC Chairperson, Consultant in Palliative Medicine, Our Lady’s Hospice & Care Services, Blackrock Hospice and GP, Private Practice.
09.15 – 10.00
KEYNOTE ADDRESS I “From the present to the future of Palliative Care - the ultimate transition”
Dame Barbara Monroe, former Chief Executive, St Christopher’s Hospice, London, UK
10.00 - 10.30
“From service provision to community enablement - a public health approach to palliative care”
Dr Kathy McLoughlin, All Ireland Institute of Hospice and Palliative Care/Irish Cancer Society Research Fellow, Maynooth University, Compassionate Communities Co-ordinator, Milford Care Centre, Limerick
10.30 - 11.00
“Lost in transition - why we need special palliative care for teenagers and young adults”
Dr Lorna Fraser, Anniversary Research Lecturer, University of York, UK
11.00 - 11.30
Tea/Coffee Break
11.30 - 13.00
Mid-Morning Session
11.30 - 12.00
“Palliative/end of life care in designated centres for older persons”
John Farrelly, Head of Older Persons Programme, Regulation Directorate, Health Information & Quality Authority
12.00 - 12.30
“From family caregiver to a grieving relative” - A personal perspective of a bereaved relative
Dr Margaret Clifford, Temporary Consultant in Palliative Medicine, Marymount University Hospice & Hospital, Cork
12.30 - 13.15
Grief Journeys – a model to help practitioners engage with the grief journey of their patients/ clients as they face the dying and death of a significant person in their lives
Dr Linda Machin, Honorary Research Fellow, Research Institute for Social Sciences, Keele University, Staffordshire, UK
13.15 - 14.15
Lunch
14.15 - 14.45
Referral to Specialist Palliative Care Services - A Needs Assessment
Lorna Peelo-Kilroe, Nursing Lead, HSE National Clinical Programme for Palliative Care, Office of Nursing and Midwifery Services Director Dr Aisling O’Gorman, Consultant in Palliative Medicine, HSE Dublin North East
14.45 - 15.15
“Transforming your Palliative and End of Life Care” The perspective of the regional wide project supported by Marie Curie and the Public Health Agency in Northern Ireland
Brendan O’Hara, Progamme Manager for Transforming your Palliative and End of Life Care, Marie Curie Cancer Care, Northern Ireland
15.15 - 16.00
KEYNOTE ADDRESS II “Integrating palliative care into core frontline health services”
Prof Doiminic O’Brannagain, Consultant in Palliative Medicine / Clinical Director, HSE Dublin North East (Louth/Meath Hospitals)
16.00 - 16.30
Panel Discussion and Audience Q&A
Chairperson : Irene Murphy, Director of Bereavement and Family Support Services, Marymount University Hospice & Hospital, Cork
16.30
Closing Remarks
Chairperson: Niamh Finucane, IAPC Vice-Chairperson, Co-ordinator of Social Work & Bereavement Services, St Francis Hospice, Dublin
Dr Paul Gregan, IAPC Chairperson
The IAPC Annual General Meeting will follow the Conference (IAPC Members ONLY)
IAPC Annual Conference 2014 Irish Association For Palliative Care · A Collective Voice for Palliative Care in Ireland since 1993
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Welcome
On behalf of the IAPC Chairperson and the Board of Directors I am delighted to welcome you all to the IAPC Annual Conference 2014 – “Transitions of Care - the challenge for Palliative Care services”. The last two decades have been a period of intense development for palliative care services in Ireland and worldwide. This development and change is set to continue, but now in the context of changing demography and the ever-increasing demand for Palliative Care services within a changing health service delivery system. Trying to do more with less, whilst continuously adapting to a changing economic, political and social landscape is extremely challenging for palliative care and for health services as a whole. This years Conference focuses on the challenges, and indeed potential opportunities, associated with transitions in Palliative Care, both in terms of policy-making, service development, and in the care of individual patients and families. The Conference Programme will address the transitions of patients from their Referrals to Specialist Palliative Care Services; to the Public Health Approach to Palliative Care; the needs of teenagers and young adults as they make the transition to adult services; HIQA’s responsibility to older people; Grief Journeys and the transition from family caregiver to a grieving relative; and Integrating palliative care into core frontline health services.
Thanks A special word of thanks must be conveyed to our expert panel of speakers who have agreed to speak at this years Conference. The IAPC is invaluably supported in the planning of the Annual Conference by IAPC Administrative Assistant, Hannah Dyas. Thank you for attending the Conference; I hope it proves to be insightful and inspiring and that you find the proceedings worthwhile.
Niamh Clowry IAPC Programme Manager
IAPC Annual Conference 2014 2
21st Century Questions for Palliative Care: Current and challenging themes for Palliative Care
www.palliativecare.ie
Dame Barbara Monroe (former) Chief Executive Officer of St Christopher’s Hospice, London
Barbara has been a Social Worker for over 40 years. She joined St Christopher’s Hospice in 1987 and became Chief Executive in 2000. She was founder and Director of the Candle children’s bereavement project at St Christopher’s and was Chair of the national Childhood Bereavement Network for eight years. Barbara was Module Leader on the MSc in Palliative Care and Policy run jointly by St Christopher’s and King’s College London. She is a well-known speaker and lecturer and has delivered training programmes across the world. She has written extensively about psychological and social aspects of palliative care and sits on a variety of national committees supporting the development of end of life care. Barbara is an Honorary Professor at the International Observatory on End of Life Care at Lancaster University and has a long term interest in how we achieve ‘good enough’ end of life care for all. She was appointed Dame Commander of the Order of the British Empire in the Queen’s Birthday Honours List 2010. She was Vice Chairman of the Commission into the Future of Hospice Care which reported in October 2013. She has a number of voluntary roles including Special Commissioner of the Royal Hospital Chelsea. Barbara retired from her CEO role at St Christopher’s in August 2014.
Dr Kathleen McLoughlin All Ireland Institute of Hospice and Palliative Care / Irish Cancer Society Research Fellow, Maynooth University & Compassionate Communities Co-ordinator, Milford Care Centre, Limerick
Kathleen is a Research Psychologist with a special interest in Public Health and Palliative Care. She moved to the Midlands of Ireland upon graduation from the University of Bedfordshire with a degree in Psychology and had held senior posts in Health Promotion and Quality and Risk in the HSE. In 2006 she commenced a PhD exploring the fear and stigma of palliative care, under the supervision of Dr Sinead McGilloway, Maynooth University, funded by the HRB and IHF. Since then, Kathleen has been working in the field of education, research, audit and review in palliative care and end of life care with Milford Care Centre and the Irish Hospice Foundation. She has led the development of Ireland’s first Compassionate Communities Project, with her colleagues in Milford Care Centre and has recently been awarded a Research Fellowship to examine the effectiveness of the project’s Good Neighbour Partnership – a new volunteer-led model of social and practical care and support for people living at home, in their last year of life. Kathleen has authored several peer reviewed papers, service reports and book chapters and in 2014 was commended for her work by CMG, winning Irish Healthcare Person of the Year. Kathleen is the Irish contact point and a member of the Executive of Public Health Palliative Care International.
Dr Lorna Fraser Anniversary Research Lecturer and NIHR Fellow in Epidemiology, Department of Health Sciences, University of York
Lorna studied medicine at the University of Aberdeen and was a Paediatrician in Scotland before becoming an academic. Lorna undertook an MSc and PhD at the University of Leeds. Lorna’s main research interests are the epidemiology of chronic disease in children especially life-limiting conditions and the equitable provision of services for these children.
IAPC Annual Conference 2014 Irish Association For Palliative Care · A Collective Voice for Palliative Care in Ireland since 1993
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John Farrelly Head of Older Persons Programme Regulation Directorate, Health Information & Quality Authority
Initially trained as a Mental Health Nurse, John is a graduate of The Royal College of Surgeons, Michael Smurfit Business School, University College Dublin and the Honourable Society of Kings Inns. John’s professional goal is to facilitate the development and oversight of efficient/effective health and social care services which deliver optimal outcomes for service users.
Dr Margaret Clifford MRCPI Temporary Consultant in Palliative Medicine, Marymount University Hospital & Hospice, Cork
Dr Margaret Clifford (known as Mags) is currently working as a temporary Consultant in Palliative Medicine at Marymount University Hospital and Hospice, University Hospital and Mallow General Hospital, Cork. Mags is a member of the IAPC Board of Directors, former chairperson of the IAPC (2012-2013), and is Chairperson of the Local Organising Committee for the EAPC World Research Congress 2016 in Dublin. Having graduated from University College Cork with honours in medicine and paediatrics in 2003, Mags completed her basic specialist training in general internal medicine in June 2006. She began working in Specialist Palliative Care in July 2006, initially in New South Wales, Australia, and then back in Ireland, and commenced higher specialist training in Palliative Medicine in July 2008. During this period, her mother died following a short illness and soon afterwards her father was diagnosed with dementia. Mags trained flexibly whilst fulfilling the role of sole carer to her father up until his death in November 2010. Mags will give a personal reflection on her experience of the transition from family caregiver to bereaved relative.
Dr Linda Machin Honorary Research Fellow of Keele University, UK
Linda trained as a Medical Social Worker and went on to conduct pioneering bereavement work for the Anglican Diocese of Lichfield. She published training material for people working with the bereaved and established a bereavement counselling agency in North Staffordshire and then took up an academic post teaching social work and counselling at Keele University. Linda developed the Range of Response to Loss model as a framework for conceptualising grief and an associated measure for exploring diverse grief reactions, the Adult Attitude to Grief scale. These ideas are developed fully in her book ‘Working with Loss and Grief’ (Sage 2009; second edition 2014). Linda is an Honorary Research Fellow of Keele University and has just completed a research project to identify vulnerability in grief. She also works as a freelance trainer and counselling consultant. ‘Grief journeys’ · Linda’s Conference presentation looks at some of the ways practitioners might engage with the grief journey of their patients/clients as they face the dying and death of a significant person in their lives. The Range of Response to Loss model is a theoretical ‘compass’ for exploring some of the central elements of grief and the Adult Attitude to Grief scale is a measure for ‘mapping’ the individual capacity to cope with both feelings and functioning. Together they provide a practice approach to working with loss and grief (Machin 2009; 2014). Machin, L. (2014) Working with Loss and Grief (2nd edition). London: Sage.
IAPC Annual Conference 2014 4
21st Century Questions for Palliative Care: Current and challenging themes for Palliative Care
www.palliativecare.ie
Lorna Peelo-Kilroe Nursing Lead, HSE National Clinical Programme for Palliative Care, Office of Nursing and Midwifery Services Director, Health Service Executive
Lorna has worked as a nurse for over 30 years in Ireland and in the UK both in community and acute services. She developed an interest in workplace cultures and learning with a curiosity for discovering the things that enables or prevents individuals from growing and changing practice. Having been a practice developer for 12 years Lorna has facilitated and co-facilitated many programmes nationally and locally always with the focus on person-centred cultures of care. “Extraordinary as it may seem, healthcare work can make it difficult sometimes for us to see the individual in both the people we serve and in each other as colleagues. When this happens we have to take remedial action or risk loosing our capacity for compassion”. Lorna works in the HSE Office of Nursing and Midwifery Services Director and is Nursing Lead on the National Clinical Programme for Palliative Care.
Dr Aisling O’Gorman Consultant in Palliative Medicine, Specialist Palliative Care Service HSE Dublin North East
Dr Aisling O’Gorman is a graduate from UCD. She completed higher medical training in Palliative Medicine in Ireland in 2009. She has been working as a Consultant in Palliative Medicine with the Specialist Palliative Care Service in the North East of Ireland since 2010, supporting the delivery of palliative care in counties Louth, Meath, Cavan and Monaghan. She is the regional lead for the North East for the Palliative Care National Clinical Programme and is committed to supporting and empowering all healthcare professionals in providing palliative care to patients and families.
Brendan O’Hara Programme Manager, Transforming Your Palliative and End of Life Care
Brendan O’Hara has been leading the Northern Ireland wide Transforming Your Palliative and End of Life Care Programme since December 2013. The programme is an initiative of Marie Curie and the Health and Social Care Board/Public Health Agency. It is supporting the redesign and delivery of coordinated services to enable people with palliative and end of life care needs to be cared for at home or as close to home as possible, as appropriate. Previous to his current role, Brendan was Programme Manager for Policy and Practice with All Ireland Institute of Hospice and Palliative Care (AIIHPC) in Dublin from January 2012. Brendan has established links with key people in the palliative care community across the island of Ireland, the United Kingdom and internationally to support the development of palliative care policy and improved practice. He led on a number of projects at AIIHPC, including a key initiative to involve service users, carers and the wider community in its work; and a round table policy event involving key senior figures from across the island of Ireland and internationally. Prior to working in palliative care, Brendan was Communications Manager with the Western Health and Social Care Trust, based in Derry, for four years. Before moving to work in health, Brendan held a similar communications position with the Southern Education and Library Board in Armagh. In both organisations Brendan supported key change and development through the communications function. Brendan has a professional background in journalism and public relations. A graduate in history and politics from the University of Ulster, Brendan also holds a Diploma in Public Relations from the Chartered Institute of Public Relations (CIPR) and certificates in Community Development from Queen’s University Belfast and in Reconciliation Studies from The Irish School of Ecumenics/University of Ulster.
IAPC Annual Conference 2014 Irish Association For Palliative Care · A Collective Voice for Palliative Care in Ireland since 1993
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Professor Doiminic O’Brannagain Consultant Physician in Palliative Medicine / Clinical Director, HSE Dublin North East (Louth/Meath Hospitals), Honorary Clinical Associate Professor, Department of Medicine, Royal College of Surgeons in Ireland (RCSI)
Professor O’Brannagain was appointed as a Consultant Physician in Palliative Medicine in 2001 after completing his special training in Palliative Medicine. He was appointed as Senior Lecturer in Medicine in 2008 and as Clinical Director for the Louth/Meath Hospital Group in October 2009. In June 2013, he was appointed as a Clinical Associate Professor by the Royal College of Surgeons in Ireland. He is a former Chairperson of the Irish Association for Palliative Care (2007-2008) and is currently a member of the IAPC Board of Directors.
Dr Paul Gregan MIGCP MRCGP · Specialist in Palliative Medicine GP and Consultant in Palliative Medicine, Our Lady’s Hospice & Care Services Blackrock Hospice
Paul Gregan is a graduate of UCD (1988) and trained initially as a general practitioner in Ireland, and with the Tayside scheme in Scotland, before returning to part time general practice in Ireland in 1994. That same year, he had an opportunity to do some work at Our Lady’s Hospice in Harold’s Cross. This was a formative experience and one which was to alter his subsequent career path in the direction of Palliative Medicine. He worked as the medical director of the North West Hospice, Sligo 1996-1998 before returning to complete his specialist training in Palliative Medicine in 2001 as the first trainee with the newly set up division of Palliative Medicine training run by the Irish Committee for Higher Medical Training at the Royal College of Physicians. Since 2001 he has returned to work as a half time general practice principal in Deansgrange Co. Dublin and has worked as a half time Consultant in Palliative Medicine at Our Lady’s Hospice Harold’s Cross until 2005 and since then at Blackrock Hospice. Paul has a particular interest in the provision of palliative care at community level and in primary care. He was tutor with the ICGP palliative medicine certificate course 2006-2009. He currently chairs the national steering committee on Primary Palliative Care and is the outgoing Chairperson of the Irish Association for Palliative Care. Paul’s main area of interest is in the provision of community related palliative care services. He is Chair of the National Steering Committee for Primary Palliative Care.
Niamh Finucane IAPC Vice-Chairperson, Co-ordinator of Social Work & Bereavement Services, St Francis Hospice, Dublin
Niamh has been working as a Senior Social Worker in St. Francis Hospice, Dublin since 2006. She worked on one of the Community Palliative Care Teams until 2010 and is currently based in the In-Patient Unit. Niamh also works in the area of bereavement support within the hospice, as well as providing educational inputs. In 2014, Niamh was appointed Co-ordinator of Social Work & Bereavement Services at St Francis Hospice. She has previous experience in the areas of Child Welfare and Child Protection, Fostering and Medical Social Work. Niamh has a Bachelor of Social Studies (NQSW) from Trinity College and a Bachelor of Social Science from University College Dublin. Niamh is the incoming Chairperson of the Irish Association for Palliative Care.
Irene Murphy Director of Bereavement & Family Support Services, Marymount Hospice, Cork
Irene Murphy is Director of Bereavement and Family Support Services, Marymount Hospice, Cork, with responsibility for overseeing pre and post death services to families, supervision of social work team, and educational role. Prior to her current role, Irene worked at the Coombe Women and Infants University Hospital, Dublin and as Principal Social Worker in the National Maternity Hospital, Holles Street, Dublin. Irene is Chairperson and founding member of the Hospice & Palliative Care Social Workers Group. She is a member of the Examinations Board, Postgraduate Diploma and MSc in Bereavement Studies, Irish Hospice Foundation & Royal College of Surgeons of Ireland. She is a member of the Board of the European Association for Palliative Care (EAPC).
Irish Association For Palliative Care A Collective Voice for Palliative Care in Ireland since 1993
Irish Association for Palliative Care Coleraine House, Coleraine Street, Dublin 7 TEL : 01 873 4735 FAX : 01 873 5737 EMAIL : info@iapc.ie
Led by a Chairperson and Board of Directors elected by the Association’s members, the IAPC is organized around a number of specialist fora and working groups. These groups provide individual disciplines with the opportunity to consider specific issues relevant to their own area of interest and expertise. The working groups are designed to create a forum for shared best practice and learning opportunities, and for members to further their professional development, education and research. Current IAPC working groups include the Education and Research Forum, the Palliative Nursing Forum, the Ethics Working Group, the Children’s Palliative Care Special Interest Group, the Palliative Care Pharmacists Group and the Palliative Care Social Work Group.
www.palliativecare.ie for more information and on-line membership application
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Established in 1993, The Irish Association for Palliative Care (IAPC) is an all island body that exists to promote palliative care nationally and internationally through opportunities for networking, education, publications, and representation on national bodies. As the sole membership organisation for those involved in the provision of palliative care, the IAPC is the primary collective and expert voice for palliative care in Ireland. Its mission is to drive national policy for patient-centred, equitable, accessible and accountable palliative care for all who need it. A multi-disciplinary organisation, the membership reflects the multidisciplinary team which delivers palliative care, and includes also those with an interest in the provision of palliative care.