Voice of Self-Advocates, summer 2014

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Dear Readers, SUMMER 2014 EALTHYHEALTHY EATING PYRAMID EATING PYRAMID On the next Pyramid floor you can see this issue of the Voice of Self-Advocates meat, eggs, milk and dairy products. we dedicated to the preservation of health.

This kind of food you need to eat We pay attention to lessspecially than fruits and vegetables. health protection during the meat summer.

It is healthier to eat less fatty Isuch wishas you all and fish. chicken pleasant summer days.

Meat andand eggsfun build your muscles, milk and products Iand hope you getdairy a good rest are good for the bones.

Newsletter of the Association for Self Advocacy and see you in the fall.

On the top of the Healthy Eating Pyramid are sugar and fatty food and that is the food you should eat the least.

HEALTHY EATING For example those are: chocolate, cakes and butter.

Topic of the issue:

One of the most important things In summer, you should eat the food that is not greasy. to be careful about in maintaining your health Also, due to the extreme heat in the summer is to eat healthy. you need to drink more water.

Eating healthy means moderate consummation It would be good to drink 2 liters of water a day. of diverse and freshly prepared foods.

Written by Snježana Kanjir and Ana Janjušević It is also important to eat at least three meals a day: breakfast, lunch and dinner.

Dear Rea this issue we dedi We spec health p Issue 15I wish yo pleasant I hope yo and see

TAKING CARE OF YOUR HEALTHHEAL

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ear Readers, Dear Readers, ers, Dear Readers, HEALTHY EATING PYRAMID On the next OnPyramid the next floor Pyramid you can floorsee you can see his issue of the Voice ofissue Self-Advocates this of the Voice of Self-Advocates this of the Voice of Self-Advocates f the Voice ofissue Self-Advocates meat, eggs, meat, milkeggs, and dairy milk and products. dairy products. e dedicated to thewe preservation ofthe health. dedicated to preservation of health. of health. dedicated to preservation ed to thewe preservation ofthe health.

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by Snježana Kanjir andKanjir Ana Janjušević and Ana Janjušević is also important to It iseat also at important least three to meals eat ata day: least three meals a day: portant to It iseat also at important least three to meals eat ata day: least three meals a day: reakfast, lunch andbreakfast, dinner. and dinner. unch andbreakfast, dinner. lunch andlunch dinner.

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Editor Senada Halilčević Journalists Hrvoje Forner Snježana Kanjir Fadil Špuren Nera Bajzec Gordana Huzek Tomislav Ivašković Nejko Perko Neven Puškar Đurđica Nukić Assistants Ana Janjušević Ivana Poslon Hrvoj Damjan Janjušević Mladen Katanić

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This newsletter is supported by a grant from the Open Society Foundations.

BODY BODY HEALTH HEALTH

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2

Newsletter of the Association for Self-Advocacy

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Voice of Self-Advocates

3

alf an hour a day of some light body exercise roducts Products used for keeping Products used forpersonal keeping used forhygiene personal keepingare: hygiene personalare: hygiene are: very good for health. toilet paper toilet paper toilet paper soap, shampoo soap, shampoo andsoap, shower shampoo and gel shower and gel shower gel Next by relevance in Next the by Pyramid relevance are vegetables in the Pyramid fruits. vegetables and fruits.and fruits.

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4

Newsletter of the Association for Self-Advocacy

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Voice of Self-Advocates

5

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6

When youWhen buy sunglasses you buy sunglasses pay attention pay attention that they that havethey UV protection. have UV protection.

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Voice of Self-Advocates

7

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ENCES XPERIENCES EXPERIENCES OF SELF OF ADVOCATES SELF OF ADVOCATES SELF ADVOCATES vaj pregled Ovaj se pregled radi kod se liječnika radi Ovaj kod pregled urologa. liječnika seurologa. radi kodurologa. liječnika urologa.

Ovaj pregled se radi kod liječnika Written by Senada Halilčević rittenself byNukić, Written Ana Janjušević byNukić, Written Ana Janjušević byČakovec Written Ana Janjušević byČakovec Ana Janjušević ukić, urđica Đurđica advocate self advocate from self advocate from from Čakovec ound ne dayout IOne found that day the out I found Institute that the outfor Institute that Public the for Institute Health Publicfor Health Public Health medical rganizesorganizes exams medical forexams medical all citizens forexams all citizens for all citizens WHAT ELSE CAN YOU DO FOR YOUR HEALTH? rethe of centre Čakovec. in the of centre Čakovec. of Čakovec.

HOW TO HOW PROTECT TO HOW PROTECT TO HOW SKIN PROTECT TO AND SKIN PROTECT EYES AND SKIN FROM EYES AND SKIN FROM THE EYES AND SUN FROM THE EYESSUN FROM THE SUN THE SU also ed towanted check I alsomy towanted check healthmy toascheck health everybody my as health everybody else. as everybody else. else.

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8

Newsletter of the Association for Self-Advocacy

have lunch I have at 13 lunch o’clock I have at 13 lunch and o’clock sometimes at 13 and o’clock sometimes I eat and vegetable sometimes I eat vegetable soup I eat vegetable soup soup nd chicken andbreasts. chicken andbreasts. chicken breasts. s a supplement As a supplement I eat As abarley supplement I eat or barley buckwheat I eat or barley buckwheat mealororbuckwheat potatos, meal orcauliflower potatos, meal orcauliflower potatos, or spinach. cauliflower or spinach. or spinach One ofsqueezed the very important thingshealthier. for health is a good night sleep. atural freshly juices are much An adult person usually needs at or least t 16 o’clock At 16 I eat o’clock some At 16 I eat fruit, o’clock some riceI eat fruit, crackers some rice fruit, crackers whole riceor grain crackers whole toast. or grain whole toast. grain toast.

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5 o’clock in the afternoon. in the morning in the and morning 5 o’clock andin5 inthe o’clock themorning afternoon. in theand afternoon.

EXPERIENCES OF SELF ADVOCATES During that ofevery the day it isinthe safest order.

During that During period that of period day ofevery itIthe is the day safest itperiod safest hat is myThat eating is my menu That eating iswhich my menu eating Ithe repeat which menu repeat which week every I is repeat inthe different week in order. different week order. different to be in closed and if possible cooled space. to beof indiet, closed to be in and closed if possible if cooled possible space. cooled space.

With this Đurđica With kind this With kind I also of this diet, do kind sports: I also ofand diet, do bowling, sports: I also do bowling, table sports: tennis, bowling, table running, tennis, table swimming, running, tennis, swimming, running, swimming, Nukić, self advocate from Čakovec XPERIENCES OF SELF ADVOCATES ordic walking nordic and walking ridingand walking a bicycle. riding a bicycle. riding a bicycle.

One day Inordic found out thatand the Institute for Public Health That is the best way protect yourself That is the That best is way the best to protect way to yourself protect yourself requently I frequently attendI the frequently attend sportexams the workshop attend sport the workshop sportwe workshop where practice weto where all practice this.weall practice this. all this. organizes medical forČakovec allwhere citizens self advocate from Nurđica Nukić, from harmful from harmful fromeffects harmful ofeffects the sun. of the sun. effects of the sun. the centre of Čakovec. ne day Iinfound out that the Institute for Public Health would like IWritten would to say like to I would everybody to say like toSenada everybody tomy to say start to everybody eating toasstart healthier eating to start healthier as eating soon ashealthier aspossible. soon asaspossible. soon as possible. also wanted to check health everybody else.

Written by Senada Halilčević byWritten Senada by Halilčević Halilčević rganizes medical exams for all citizens ood luckThe Good to everybody luckGood to everybody who luck me to decides everybody todecides domy who it. nutritionist todecides do it. to do it. doctor advised towho talk to the centre of Čakovec. because I wasmy overweight then and also wanted to check health as back everybody else. ant for as a sports person I have to be healthy and in shape. he doctor advisedWHAT me to talk to myYOU nutritionist WHAT ELSE CAN ELSE CAN WHAT DO YOU ELSE FOR DOYOUR CAN FORYOU YOUR HEALTH? DOHEALTH? FOR YOUR HEAL Nutritionist are diet experts.

NEJKO’S NEJKO’S CORNER CORNER ecause INEJKO’S wasCORNER overweight back then and s a sports personallIBesides have toall bethings healthy and in shape.

Besides things we wrote we about Besides wrote inall this about things newsletter in we thiswrote newsletter about in this newsletter Nutritionist decided what I should eat based on my test results.

ANTARION CANTARION CANTARION utritionist areare dietthere experts. there few other are few things other which there things are are which important few other are important things which are important saidon to me toon drink a glass ofmeadows, water 15meadows, minutes before meal. antarionShe Cantarion grows Cantarion grows grasslands, grows grasslands, meadows, on grasslands, in taking in care taking of your care health. of your in taking health. careand of your health. recommended me consuming olive pumpkin utritionist decided what I should eat on my test results. oil. ongsideShe alongside roads and alongside roads embankments. and roads embankments. andbased embankments.

Every daydrink I eata5glass smaller meals.15 minutes before meal. he said to me to of water Smoking Smoking and drinking and alcohol drinking Smoking are alcohol and are drinking alcohol arelow fat yogurt or In the early morning around 8used o’clock I usually eat oat flakes, he recommended me consuming olive andin pumpkin flower The and flower the The leaves and flower the areleaves and used the in aretherapy. leaves are therapy. used inoil. therapy. very harmful veryand harmful dangerous and ham. dangerous very for health. harmful forand health. dangerous for health. graham bread with turkey very day I eat 5 smaller meals.

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Ifwhole you have If you high pressure high you pressure Ifand you should you avoid high should coffee. pressure avoid coffee. you should avoid coffee. probiotic yogurt ahave banana. hen I eatsometimes grain orhave graham bread with turkey is notcottage recommended It is not recommended to drink It is more not to drink recommended than more thanto drink more than r chickenIt ham, cheese with linseed and 2 to 3 cups 2 to of 3coffee cupsand of a day coffee 2 to a day 3 cups of coffee a day ometimes probiotic yogurt a banana.

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Voice of Self-Advocates

9

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The cantarion The cantarion is also The used cantarion is also for treating used is also forankle treating usedsprains forankle treating and sprains twists, ankleand sprains bruises, twists, and lung bruises, twists,lung bruises, lu deseases deseases and difficulties deseases and difficulties with and thedifficulties stomach with the and stomach withbowls. the and stomach bowls. and bowls.

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As a supplement eat barley or buckwheat meal or potatos, cauliflower or spinach.

Pregnant Pregnant womenI should Pregnant women not should women use the not should cantarion, use the notcantarion, use the cantarion, Natural squeezed juices are much healthier. becausefreshly itbecause can cause itbecause can abortion cause it can abortion cause abortion At 16 o’clock I eat some fruit, rice crackers or whole grain toast.

One of the very Cantarion Cantarion oil important Cantarion oil things oil for health is a good night sleep.

For dinner at 18:30 o’clock eat cooked chicken or An adult usually needs at least What do person you What need do you What to prepare need doI you tothe prepare need cantarion tothe prepare cantarion oil: breast the cantarion oil: oil: stewed hake with vegetables.

7 and half hours of sleep in one of day.

100a grams 100 of grams freshly 100 of harvested grams freshly harvested cantarion freshly harvested cantarion leaves cantarion leaves leaves Sometimes I eat whole grain pasta with sauce or Irregular various 1 litresleeping bottle 1 litre orcauses jar bottle 1 litre or jar bottleproblems. or jar whole grain rice with vegetables.

It would best 1 litrebe ofthe olive 1 litre oilofifolive 1you litrecould oilof olive oil lie down to bed and get up in the similar time.

My nutritionist recommended me to drink everyday a cup of green tea without Written Ananatural Janjušević sugar orby with stevia sweetener.

1. Put the1.flowers Put thein 1.flowers aPut jar the and inflowers pour a jar and olive in pour a oil jarover and olivepour it.oil over oliveit.oil over it.

2. Cover the 2. Cover jar with the 2. cloth Cover jar with and thecloth fasten jar with and it cloth with fasten rubber and it with fasten band rubber it with band rubber band That is my eating menu which I repeat every week in different order.

3. Leave it3.on Leave the sun it3.on Leave for the 40sun itdays. onfor the 40sun days. for 40 days.

With this kind of diet, I also do sports: bowling, table tennis, running, swimming, EXPERIENCES OF SELF ADVOCATES 4. After 404.days Afterdrain 40 4.days After the drain oil 40and days the the drain oilflowers and the the oil using flowers andathe cloth using flowers a cloth using a cloth nordic walking and riding a bicycle.

5. Keep oil5.in Keep tightly oil5.in closed Keep tightly oil dark in closed tightly bottles. dark closed bottles. dark bottles.

I frequently attend the sport workshop where we practice all this. Đurđica self advocate 6. Do Nukić, not 6. keep Do not the 6. keep oilDo in not thefrom keep refrigerator. oil inČakovec the refrigerator. oil in the refrigerator.

One day I found out that the Institute for Public Health I would like to say to everybody to start eating healthier as soon as possible. organizes medical exams for all cantarion citizens You can buy You can buy You cantarion can oilwho inbuy healthy oil infood healthy oil stores healthy or pharmacies. stores food or pharmacies. stores or pharmacies.

Good luck to cantarion everybody decides to do it.infood in the centre of Čakovec.

ICantarion also wanted Cantarion teato check Cantarion teamy health tea as everybody else.

The doctor advised me to talktea my nutritionist Cantarion Cantarion tea helpsCantarion tea in treating helps into bowl treating helps problems, inbowl treating problems, headaches bowl problems, headaches or uterus headaches or inflammations. uterus or inflammation uterus infla NEJKO’S CORNER because I was overweight back then and as sportsToperson ITo have to healthy and intea shape.

Toaprepare the prepare cantarion the prepare cantarion teabeyou the need cantarion tea you to: need you to: need to: CANTARION Nutritionist are dietdry experts.

1. Harvest 1.and Harvest 1. the and Harvest cantarion dry the andcantarion flowers dry theand cantarion flowers leaves. and flowers leaves. and leaves.

Cantarion grows onone grasslands, 2. Put one 2.teaspoon Put 2.teaspoon of Putdried onemeadows, flowers teaspoon of driedand flowers ofleaves driedand flowers in aleaves cupand ofinhot aleaves cup water. ofinhot a cup water. of hot water Nutritionist decided I should eat based on my test results. alongside roads and what embankments.

She said to me to drink a glass of water 15 minutes before meal.

She me consuming and pumpkin oil.

The recommended flower and the leaves are used olive in therapy.

Every day I eat 5 smaller We use it for treating gallmeals. diseases, depression In the early morning around 8 o’clock I usually eat oat flakes, low fat yogurt or and nervousness. graham bread with turkey ham.

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Then I eat whole grain or graham bread with turkey or chicken ham, cottage cheese with linseed and sometimes probiotic yogurt and a banana.

Newsletter of the Association for Self-Advocacy

10

NEWS

THE BROCHURE SAFE USE OF INTERNET AND FACEBOOK he cantarion is also used for treating sprains twists, bruises, The cantarion is also used forankle treating ankleand sprains and twists,lung bruises, Many self advocates often use Internet and Facebook. eseases lung and difficulties with the stomach diseases and difficulties withand the bowls. stomach and bowls.

Internet is very useful because it contains a lot of elps treating forms of Helpsall treating all inflammations. forms of inflammations. useful information and Facebook helps you to connect and share information from your own life with other people. regnantPregnant women should not use the women should notcantarion, use the cantarion, shly ezed squeezed juices are juices much freshly are healthier. squeezed much healthier. juices are much healthier. ecause itNatural can cause abortion because it can cause Internet changed ourabortion. world and culture in many good ways.

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Written by Fadil Špuren 2. Cover the jar with andcloth fasten it with rubber band 2. Cover thecloth jar with and fasten it with rubber band My nutr 3. Leave it3.on the sun 40sun days.

Leave it onfor the for 40 days. sugar or SENCES OF SELF EXPERIENCES OF ADVOCATES SELF ADVOCATES SELF ADVOCATES 4. After 40 drain the oilOF and the a cloth 4.days After 40 days drain the oilflowers and theusing flowers using a cloth OTHER FACE OF bottles.

DISABILITY IN DUGOPOLJE NEAR SPLIT 5. KeepWORKSHOP oil5.in tightly closed dark bottles.

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Youcantarion can buy cantarion oil infood healthy food stores or pharmacies.

I frequen ovec. re of Čakovec. in the centre of Čakovec.

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There were around 14the persons with disability at leaves. the workshop.

1. Harvest dryare the cantarion flowers and leaves.

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2.teaspoon Put one how teaspoon ofadried flowers and a cup of hot water. twhat decided I should Nutritionist whatiseat Ithe should based decided onbased my what Ion should results. mythemselves test eatresults. basedto onthe myemployers. test results. what besteat way to test present CANTAR ink meato glass drink Sheofsaid awater glass to me 15 of minutes water to drink 15before aminutes glass meal. ofbefore water 15 meal. minutes before meal.

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11

NEWS NEWS

This web to comm support THE BROCHURE THE BROCHURE SAFE USESAFE OF INTERNET USE OF INTERNET AND FACEBOOK AND FACEBOOK The cantarion is also used for treating ankle sprains and twists, bruises, lung Many selfMany advocates self advocates often useoften Internet useand Internet Facebook. and Facebook. deseases and difficulties with the stomach and bowls.

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PROJEC 1 litre of olive oil Associat The brochure The brochure is writtenisinwritten easy-to-read in easy-to-read and is intended and is intended for for My nist nutritionist recommended recommended Myme nutritionist to drink meeveryday recommended to drink atocup of megreen atocup drink tea of green everyday awithout cup tea of green tea without My nutritionist recommended meeveryday drink everyday awithout cup tea of green without with the self advocates self advocates to make them to make be safer themon bethe safer Internet. on the Internet. ugar th natural or with stevia natural sweetener. sugar stevia or with sweetener. natural stevia sweetener. sugar or with natural stevia sweetener.

Jointly, w 1. Put the flowers in a jar and pour olive oil over it.

Written byWritten Fadil Špuren

by Fadil Špuren financed 2. Cover the jar with cloth and fasten it with rubber band ZABAVNIK hat eating is my menu eating menu That I repeat iswhich my eating every I repeat week menu every inwhich different week I repeat in order. different every week in order. different order.

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DISABILITY IN DUGOPOLJE IN DUGOPOLJE NEAR SPLIT NEAR SPLIT 5.THE Keep oilTHE in tightly closed dark frequently attend the sport workshop where we practice this. yrequently attendIThe the attend sport IThe the workshop frequently sport workshop where attend the where practice sport we workshop all practice this. all this. we practice all this. visited th Association Self Advocacy forwe Self participated participated atwhere the workshop atall the workshop 6.Association Dofornot keep the oilAdvocacy in the refrigerator. the Otherthe face Other of Disability face of Disability in Dugopolje in Dugopolje near Splitnear Split Iwhich would like to say to everybody to start eating aspossible. soon asaspossible. ewould to saylike to everybody to say to I would everybody to start like to eating to say start to healthier everybody eating healthier as soon to start ashealthier aspossible. eating soon ashealthier soon as possible.

This tim lasted which 3can days lasted from 3 days 27 till from 30 June 27 till2014.

30 June 2014.

You buy cantarion oil in healthy food stores or pharmacies. luckGood to everybody who do it. to do it. to ood everybody luckGood to everybody who decides who luckto to decides do everybody it. todecides dowho it. todecides how the the Conv Self advocate Self advocate Neventea Puškar Neven represented Puškar represented Cantarion in easy-t the Association the Association for Self Advocacy for Self Advocacy Cantarion tea helps in treating bowl problems, headaches or uterus inflammation NEJKO’S S CORNER NEJKO’S CORNER withCORNER the NEJKO’S support withCORNER thefrom support his assistant from his Mladen assistantKatanić Mladen. Katanić .

With Ma To prepare the cantarion tea you need to: our expe ON ANTARION CANTARION CANTARION There were There around were14around persons 14the with persons disability with flowers disability at the workshop. at leaves. the workshop.

1. Harvest and dry cantarion and We shar grows antarion on Cantarion grows grasslands, on Cantarion grows grasslands, onone grows grasslands, meadows, meadows, meadows, They learned They how learned to find how aon job tograsslands, find and job and 2.meadows, Put teaspoon ofadried flowers and leaves in a cup of hot water. in discus alongside roads embankments. ongside oads and roads embankments. alongside embankments. and what isand the what bestisand way theroads best to present wayembankments. tothemselves present themselves to the employers. to the employers.

flower and the leaves are used in therapy. he and flower theThe leaves and the are The leaves used flower in aretherapy. and usedthe in therapy. leaves are used in therapy.

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12

Like last and invi

Newsletter of the Association for Self-Advocacy Interesting fact that theiscantarion was usedwas used teresting fact is that fact theiscantarion that Interesting theiscantarion wasfact used that was used the cantarion

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NEWS

he ageweb is not page entirely is not finished. entirely You can see the webfinished. page on this web adress: ou e itcan on this see web it on address: this web address: http://drugo-lice-invalidnosti.org THE BROCHURE SAFE USE OF INTERNET AND FACEBOOK he cantarion The cantarion is also The used cantarion is also for The treating used cantarion is also forankle treating used is sprains also forankle treating used and sprains fortwists, ankle treating and sprains bruises, twists, ankleand lung sprains bruises, twists, and lung bruises, twists,lung bruises, lu ttp://drugo-lice-invalidnosti.org o-lice-invalidnosti.org Many self advocates often use Internet and Facebook. eseasesThe deseases andworkshop difficulties deseases and difficulties with deseases and thedifficulties stomach with and thedifficulties and stomach with bowls. the and stomach with the and stomach bowls. and bowls.with was organized by the Network ofbowls.

Associations of Persons of Dalmatia M.U.O.S.I.D. in Associations cooperation with Association hop he workshop wasDisabilities organized was organized by the Network by -the of Network Associations of of Persons ofwith Persons with Internet is very useful because it contains a lot of for elps treating Helps treating forms of all inflammations. forms Helps of treating inflammations. all inflammations. forms of inflammations.

Helps-and treating all forms of Rehabilitation Education JABLANI. isabilities of Dalmatia of Dalmatia -all M.U.O.S.I.D. M.U.O.S.I.D. in cooperation in VISOKI cooperation with Association with Association forhelps you for to connect and useful information and Facebook ehabilitation ion and Education and Education VISOKI JABLANI. VISOKI JABLANI. from your own life with other people. share information regnantWritten Pregnant womenbyshould women should Pregnant useand the not cantarion, women use the should cantarion, notcantarion, use the cantarion, Pregnant women should not use the Nevennot Puškar Mladen Katanić ecause itbecause can and cause itbecause can abortion cause abortion it can cause itbecause can cause abortion Neven ritten by Puškar Neven Puškar Mladen and Katanić Mladen Katanić Internet changed ourabortion world and culture in many good ways.

PROJECT I UNDERSTAND antarion Cantarion oil oil Cantarion oil of the Internet helps us in everyday life, Cantarion oil Although using Self Advocacy cooperation What do Association you What need do you tofor prepare need What to the prepare do cantarion you the need cantarion oil:to prepare oil: the cantarion oil: What do you need tocontinued prepare the cantarion oil: ROJECT UNDERSTAND I UNDERSTAND Internet also hides some dangers. with the Association Solem from Skopje, 100 grams 100 of grams freshly of harvested freshly 100 harvested cantarion grams of cantarion freshly leavesMacedonia. harvested leaves 100 grams of freshly harvested cantarion leaves nssociation for Self Advocacy for Self Advocacy continued continued cooperation cooperation That is why the Association for Selfcantarion Advocacyleaves has decided Jointly, we carry out a project I understand ith sociation Solem Solem Skopje, Macedonia.

1the litreAssociation bottle 1 litre orfrom jar bottle orfrom jar 1Macedonia. litre bottle or jar Safe use of Internet and Facebook.

1 Skopje, litre bottle orthe jar to make brochure financed by the European Union. ointly, carry out weofcarry aolive project out understand project understand 1 litre 1 litre oilofaI olive 1 litreoilof olive oil 1 litreoilofI olive nanced y the European by the European Union. Union.

The brochure is written in easy-to-read and is intended for In June two self-advocates and two assistants self advocates to make them be safer on the Internet. from Association for Self Advocacy o June self-advocates two two assistants and two assistants 1. Put theself-advocates 1.flowers Putand thein 1.flowers aPut jar the and in 1.flowers pour aPut jar the and olive inflowers pour a oil jarover and olive in pour it. a oil jarover and olivepour it.oil over oliveit.oil over it.

Written by Fadil Špuren visited the Association Solem in Skopje for the second time. om iation Association for Self Advocacy for Self Advocacy 2. cloth Cover the jar with and fasten it with rubber band 2. Cover the 2. Cover jar with the jar with and 2. cloth Cover fasten and the it cloth with fasten jar with rubber it cloth with band rubber and fasten band it with rubber band sited Association the Association Solem in for Skopje the second the time. second time.

Leave it3. on the sun for 40sun days.

3. Leave it3.Solem on Leave thein sun it3.Skopje on for the 40 sun days.

Leave for 40for itdays. on the for 40 days.

This time the Macedonian self-advocates have shown us After 404.and days drain the oil and flowers using a cloth 4. After 404.days Afterdrain 404.days the drain oil After the the oil 40 flowers and days the drain using flowers the athe cloth oil using andathe cloth flowers using a cloth how they started self-advocates toWORKSHOP making THE OTHER FACE OF DISABILITY IN DUGOPOLJE NEAR S his he5.

Macedonian time the Macedonian self-advocates have shown have us shown us Keep oil tightly closed dark bottles.

Keep oil5.in Keep tightly oil5.in closed tightly dark 5.in closed Keep bottles. oil dark in tightly bottles. closed dark bottles.

Convention on The the Rights of Persons with Disabilities ow tarted theytothe started making to making Association forthe Self participated at the workshop keep oil in refrigerator.

6. Do not 6. keep Do not the6. keep oilDo in not the 6. refrigerator. oil Do in not the keep refrigerator. oilAdvocacy in the refrigerator. in easy-to-read form. he ntion Convention on the Rights on the of Rights Persons ofwith Persons Disabilities with Disabilitiesin Dugopolje near Split the Other face of Disability ead easy-to-read form. form. which 3oil days from 27 till June Youcantarion can cantarion infood healthy stores or2014. pharmacies. ou can buy Youcantarion can buy oil inbuy You healthy can oillasted inbuy food healthy cantarion stores or oil pharmacies. stores infood healthy or30 pharmacies. food stores or pharmacies.

With Macedonian self-advocates and their assistants we exchanged our experience in developing easy-to-read materials. donian ith Macedonian self-advocates self-advocates and their and assistants their assistants we exchanged we exchanged Self advocate Neven Puškar represented Cantarion tea antarion Cantarion tea tea Cantarion tea We share a few advices for inclusion of self-advocates ence ur experience in developing in developing easy-to-read easy-to-read materials. materials. the Association forproblems, Self Advocacy antarionin Cantarion tea helps tea in treating helpsCantarion into bowl treating problems, teabowl helps headaches inthe treating headaches or bowl uterus problems, or inflammations. uterus headaches inflammations. or uterus infla discussions related the rights from Convention. efew share advices a fewfor advices inclusion for inclusion ofwith self-advocates of self-advocates the support from his assistant Mladen Katanić . ons discussions related torelated the rights to the from rights the Convention. from the Convention.

To prepare the cantarion tea you to: needus o prepare To the prepare cantarion the cantarion tea To you prepare need tea from you to: theneed cantarion to: need tea you to:very nicely Like last time, self-advocates Macedonia welcomed There were 14 persons with disability at leaves. the workshop.

Harvest and dryaround the cantarion flowers and leaves.

1. Harvest and Harvest dryus1. the and cantarion dry 1. the Harvest cantarion flowers and and flowers dry leaves. the and cantarion leaves. flowers and and1.invited visit them again soon. me, ke last self-advocates time, self-advocates fromtoMacedonia from Macedonia welcomed welcomed us very nicely us very nicely They learned how to find joband and Putdried one teaspoon ofleaves dried flowers aleaves cup ofinhot water.

2. Put one2.teaspoon Put one2.teaspoon of 2.flowers of Put dried oneand flowers teaspoon and in ofaleaves dried cup of flowers inhot aleaves cup water. and ofinhot water. a cup of hot water nd usinvited to visitus them to visit again them soon. again soon. what is the best way to present themselves to the employers.

13

They also practiced using the web page Other Face of Disability.

Voice of Self-Advocates

We are looking We are to looking the participation forward toofthe participation of We areforward looking forward to the participation of wo self-advocates two andself-advocates two assistants and fromtwo Macedonia assistants from Macedonia two self-advocates and two assistants from Macedonia the conference of in Croatian the conference of self-advocates Croatian self-advocates in the conference of self-advocates Croatian his web should help all persons hich willpage be held inbe September will held in Zagreb. inwith September which willwhich held inbe September indisabilities Zagreb.in Zagreb. communicate easier with employers and apisalaeach Senada Halilčević Napisala Senada Napisala Senada Halilčević upport other in finding a job. Halilčević g NEWS NEWS NEWS

he web page is not entirely finished.

ISITIG VISITIG OUR VISITING OUR NETWORK ou can OUR see itNETWORK on this web address: THE BROCHURE THE BROCHURE SAFENETWORK USESAFE THE OF INTERNET USE BROCHURE OF INTERNET AND SAFE FACEBOOK USE ANDOF FACEBOOK INTERNET AND FACEBOOK the middle May In the a team from ofthe May aoften team from the In theofmiddle ofmiddle May aoften team from the ttp://drugo-lice-invalidnosti.org Many self Many advocates self advocates use Many Internet self use advocates and Internet Facebook. and oftenFacebook. use Internet and Facebook. ssociation for SelfAssociation Advocacy for Self Advocacy Association for Self Advocacy sited groups ingroups our visited Self-Advocacy groups inuseful our Network.

Self-Advocacy Network. visited inuseful our Self-Advocacy Network. he workshop was organized by the Network of Associations Persons with a lot of Internet is Internet very is very because Internet itbecause contains is very it acontains useful lot of because aoflot of it contains he first cities that The we visited first cities were that we visited were The first cities that we visited were isabilitiesuseful of Dalmatia - M.U.O.S.I.D. inuseful cooperation with Association forhelps information useful information and Facebook and Facebook helps information you helps to connect and you Facebook toand connect andyou to connect and avonski Brod and Slavonski Belišće.

Brod and Belišće.

Slavonski Brod and Belišće. ehabilitation Education VISOKI JABLANI. shareand information share information from your from share ownyour information life with ownother life from with people. your otherown people. life with other people. he second was The to second Rovinj and visit Pula was to and Rovinj Thevisit second visit was to Rovinj Pula and Pula and here met with there Istrian we self-advocates. met with Istrian self-advocates. we met with Istrian self-advocates. rittenwe bythere Neven Puškar and Mladen Katanić Internet changed Internet changed our world our Internet andworld culture changed andinculture many ourgood in world many ways. and good culture ways. in many good ways.

fter thatAfter we visited the that teams we invisited the teams in thatAfter we visited the teams in Although Although using of the using Internet of Although the helps Internet us using in helps everyday of us theinInternet everyday life, helps life, us in everyday life, elovar and Grubišno Bjelovar Polje. and Grubišno Polje.

Bjelovar and Grubišno Polje.

ROJECT Internet I UNDERSTAND also Internet hidesalso some hides dangers.

Internet some dangers. also hides some dangers. n this tour we also On visited this tour we also visited On this tour we also visited ssociation for Self Advocacy continued cooperation That is why That theisAssociation why the Association for That Self is why Advocacy forthe SelfAssociation Advocacy has decided has for decided Self Advocacy has decided akovec, Varaždin Čakovec, and Koprivnica.

Varaždin and Koprivnica. Čakovec, Varaždin and Koprivnica. ith the Association from Skopje, Macedonia. to make the toSolem make brochure the brochure Safe use to make of Safe Internet use the brochure ofand Internet Facebook.

Safe anduse Facebook. of Internet and Facebook. ointly, we carry out a project I understand t the endby we went At to the the southern wethe went toof the our southern county parts of our county At the end we went to southern of is our county nanced the European Union.

The brochure The brochure isend written isinparts written easy-to-read The brochure inparts easy-to-read and is written intended and iniseasy-to-read intended for forand is intended for o visit Šibenik, Split to and visit Ploče. Šibenik, Split and Ploče. to visit Šibenik, Split and Ploče. self advocates self advocates to make them to make self beadvocates safer themon bethe safer to Internet. make on the them Internet. be safer on the Internet.

June two self-advocates and two assistants Written by Written Fadil Špuren by Špuren Written

by Fadil Špuren all Association these cities, we In all met these with cities, self-advocates we met with self-advocates In all these cities, weFadil met with self-advocates om for Self Advocacy LIT nd wethe talked about and our we national talked about conference ourthe national conference and we talked about national conference sited Association Solem inour Skopje for second time. hich willwhich be held inbe September. willatbe held willwhich held the endinofSeptember.

September.

WORKSHOP WORKSHOP THE OTHER THE FACE OTHER WORKSHOP OF FACE DISABILITY THE OFexpose.

DISABILITY OTHER IN DUGOPOLJE FACE IN OF DUGOPOLJE DISABILITY NEAR SPLIT NEAR IN DUGOPOLJ SPLIT hisspoke time We the Macedonian self-advocates have shown us We about topics We spoke which about groups topics could which expose. groups could expose. spoke about topics which groups could ow they The started toThe making Association Association for Self Advocacy forThe SelfAssociation Advocacy participated participated forat Self theAdvocacy workshop at theparticipated workshop at the workshop he Convention onMore the Rights ofwill with Disabilities More details the conference details ofPersons the be conference agreed will agreed More details of theDisability conference will be theof Other face Other of face of Disability in the Dugopolje Other inagreed face Dugopolje near ofbe Disability Split near in Split Dugopolje near Split t easy-to-read the preparatory at meeting the preparatory that meeting at the form. preparatory meeting which lasted which 3 days lasted from 3 days 27that which till from 30 lasted June 27that till2014.

30 3 days Junefrom 2014.

27 till 30 June 2014. mations. e will have at the we endwill August. at the end of August. we will have onof6have September. ith Macedonian self-advocates and their assistants we exchanged Self advocate Self advocate Neven Puškar Neven Self represented Puškar advocate represented Neven Puškar represented Written by Ivana Poslon Written Hrvoj by Ivana Poslon Hrvoj Written by Senada Halilčević ur experience in developing easy-to-read materials. for Self Advocacy the Association the Association for Self Advocacy forthe SelfAssociation Advocacy e share awith fewthe advices ofwith self-advocates support withfor theinclusion from support his assistant from his theMladen assistant support Katanić Mladen from his . Katanić assistant . Mladen Katanić . discussions related to the rights from the Convention.

There were There around were14around persons There 14with persons were disability around with disability at14 thepersons workshop. at the with workshop. disability at the workshop. ke last time, self-advocates from Macedonia welcomed us very nicely They learned Theyhow learned to find how a job to They find and learned a job and how to find a job and nd invited us to visit them again soon.

Newsletter of the Association for Self-Advocacy what is the what bestisway the best to present way what tothemselves present is the best themselves to way thetoemployers. present to the employers. themselves to the employers.

14

INTERNATIONAL INTERNATIONAL CONGRESS INTERNATIONAL CONGRESS ON INCLUSIVE CONGRESS ON INCLUSIVE RESEARCH ON INCLUSIVE RESEARCH IN VIENNA RESEARCH IN VIENNA IN VIENNA From 14 to From 17 July 14 to From 2014 17 July 14 in Vienna to 2014 17 July in was Vienna 2014 heldin was Vienna held was held international international congress international congress organizedcongress organized

by IASSIDD. organized

by IASSIDD.

by IASSIDD. We are looking toname the participation IASSIDD isIASSIDD shortforward name isIASSIDD short for is short for name forof International International Association International forassistants Scientific Association for from Scientific StudyMacedonia for of Scientific Study of Study of two self-advocates andAssociation two Intellectual Intellectual and Developmental Intellectual and Developmental and Difficulties.

Developmental Difficulties.

Difficulties. in the conference of Croatian self-advocates This web should help all persons with disabilities which willpage be held in September in Zagreb.

The EPSAThe president EPSA The president Senada EPSA president Senada Halilčević held Senada Halilčević held a speech held a speech to communicate easier with Halilčević employers anda speech Napisala Senada Halilčević at the opening at the of opening the at congress. of opening thea congress. support each other inthe finding job.of the congress.

She talked She about talked her She about personal talked herabout experiences personal her experiences personal and experiences and and topics forpage topics future research. topics future for research. future research.

The web is for not entirely finished.

VISITIG You can OUR see itNETWORK on this web address: More than More 800 people More 800 attended than people 800attended the people congress. attended the congress. the congress.

In the middle ofthan May a team from the http://drugo-lice-invalidnosti.org Association for Self Advocacy They were They self in were advocates They self were advocates andself researchers advocates and researchers from andaround researchers fromthe around world, fromthe around world,the world, visited groups our Self-Advocacy The workshop was organized by theNetwork.

Network of Associations of Persons with mostly mostly Europe. from mostly from Europe.

The firstfrom cities that we Europe. visited were Disabilities of Dalmatia - M.U.O.S.I.D. in cooperation with Association for Also, more Also, than more 100 Also, than various more 100workshops than various 100workshops various were held workshops were at the held congress. were at the held congress. at the congress.

Slavonski Brod and Belišće.

Rehabilitation and Education VISOKI JABLANI. The second visit was to Rovinj and Pula and Napisala Senada NapisalaHalilčević Senada NapisalaHalilčević Senada Halilčević there we with Istrian self-advocates.

Written bymet Neven Puškar and Mladen Katanić

After that we visited the teams in FUN PAGES FUN PAGES FUN PAGES Bjelovar and Grubišno Polje.

PROJECT I UNDERSTAND On this tourfor weSelf alsoAdvocacy visited continued cooperation Association FOOTBALL FOOTBALL WORLD FOOTBALL CUP, WORLD BRAZIL CUP, WORLD 2014 BRAZIL CUP,2014 BRAZIL 2014 Čakovec, Varaždin and Koprivnica. with the Association Solem from Skopje, Macedonia.

Football World Football Cup World Football 2014Cup is World over.

2014Cup is over.

2014 is over.

Jointly, we carry out a project I understand Croatian football Croatianselection football Croatianselection lost football 2 matches selection lost 2 matches lost 2 matches At the end we went to the southern parts of our financed by the European Union. against Brazil against andBrazil Mexico. against andBrazil Mexico. and Mexico. county to Šibenik, Splitin and Ploče.

Wevisit won in We 1 match won We against 1 match won in Cameroon. against 1 matchCameroon. against Cameroon.

In June self-advocates and two assistants We left two the WeWorld left the Cup WeWorld left as third the Cup World in asour third Cup group. inasour third group. in our group.

In all Association these cities, for we Self metAdvocacy with self-advocates from NEAR SPLIT and talked about our national conference visited the Association Solem in for the the second time.

The we match The formatch the third The for match place the third on forSkopje the place World third on place Cup World on the Cup World was played Cup was between played between Brazil andBra which will be held in September. was played Netherlands. between Netherlands.

Brazil and Netherlands.

This time the Macedonian self-advocates have shown We about topics which could Thespoke Netherlands The Netherlands won Thethe Netherlands match wongroups the with match won 3 tothe with 0.expose. match 3 to with 0. us 3 to 0. how they The started toThe making The finals were finals played were finals between played were between Germany played between Germany and Argentina.

Germany and Argentina. and Argentina. the on The the Rights ofwill Persons with Disabilities More details the conference agreed TheConvention Germany TheofGermany won the Germany finals won the with finals won 1be tothe with 0 and finals 1 to with 0 and1 to 0 and in easy-to-read form. at the preparatory meeting that became the became champion the became champion of the the Football champion of theWorld Football of the Cup World Football 2014Cup World 2014Cup 2014 we will have at the end of August.

Napisala Nera Napisala Bajzec Nera Napisala Bajzec Nera Bajzec With Macedonian self-advocates and their assistants we exchanged Written by Ivana Poslon Hrvoj our experience in developing easy-to-read materials.

We share a few advices for inclusion of self-advocates in discussions related to the rights from the Convention.

Voice of Self-Advocates

15

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TAND UNDERSTAND PROJECT I UNDERSTAND a)continued in the morning and b) at noon n Advocacy for SelfAssociation Advocacy for cooperation Self Advocacy cooperation continued OOTBALL FOOTBALL WORLDcontinued CUP, WORLD BRAZIL CUP, 2014 BRAZIL 2014 cooperation after 5Association in the afternoon sociation Solem from with Solem the Skopje, from Macedonia.

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2014 is from over. Skopje, Macedonia. carry a project out Jointly, aI understand project we carry I understand out a project I understand roatian Croatian selection football selection lost 2 matches matches 3football What cream do we use onlost the2beach? opean ygainst the European Union. financed Union. by the European Union.

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We won in We 1 match won inagainst 1 matchCameroon. against Cameroon. o ocates self-advocates and In June two two assistants and self-advocates two assistants and two We left the WeWorld left the Cup World as third Cupinasour third group. in ourassistants group. iation Self Advocacy for from SelfAssociation Advocacy for Self Advocacy on Association Solem visited in Solem thethird Association in forSkopje the third second forSolem thetime. second in time. for the time. between he match The forSkopje match the for place the on the place World onSkopje the Cup World was played Cupsecond was between played Brazil andBrazil and a) shoe polish

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etherlands.

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16

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N W I ofO M N N Y N DIVING SEA International Association forassistants Scientificfrom StudyMacedonia of wo vocates self-advocates and two two assistants andself-advocates two assistants from Macedonia and fromtwo Macedonia G G I A V K L I A B JOURNEYS SUMMER Intellectual and Developmental Difficulties.

Postage stamp.

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POOL SWIMMING The EPSA president Senada Halilčević S T M K R I E a speech A K Rheld RIVER WALKING enada apisalaHalilčević Senada Napisala SenadaofHalilčević at the opening the congress.

QUIZ Halilčević QUIZ I D A H Q L A R M I She talked about her personal experiences and 1 How to 1protect How toyour protect eyesyour during eyes summer? during summer?

F F O L R M W N X I topics for future research.

N G M O E N U S G N UR ISITIG NETWORK OUR NETWORK VISITIG OUR NETWORK More than 800ofthe people attended dle theofmiddle May a team of May In from the a team the middle from May a team from E X P R T S E G Dthecongress.

X the nssociation for Self Advocacy for SelfAssociation Advocacy for Self Advocacy They were self in advocates and researchers from around the world, ups sitedingroups our Self-Advocacy in our visited Self-Advocacy groups Network. our Network.

Self-Advocacy Network. mostly Europe. he iesfirst thatcities we visited that The we were visited firstfrom cities were that we visited were Also, more than 100Belišće. various workshops were held at the congress.

Brod avonski andCONTACT Brod Belišće. andSlavonski Belišće.

US!Brod and 2 What is The 2the What best istime theand best forPula sunbathing? time for sunbathing? dhevisit second was to visit Rovinj was to and second Rovinj Pula visit was to and Rovinj and Pula and Napisala Senada Halilčević met herewith we met Istrian with self-advocates. there Istrianwe self-advocates. met with Istrian self-advocates.

we ftervisited that we the visited teams After the in that teams weinvisited the teams in FUN PAGES d elovar Grubišno and Grubišno Polje.Bjelovar Polje.and Grubišno Polje.

Bleiweisova 15, tour 10 000 nr we thisalso tour visited we also Onvisited this we Zagreb also visited FOOTBALL WORLD CUP,555 BRAZIL 2014 555Varaždin 66 80, Fax: 66 89 akovec, araždin Telephone: Varaždin and Koprivnica. Čakovec, and01 Koprivnica. and 01 Koprivnica.

Football World Cup 2014 is over.

E-mail: kontakt@samozastupanje.hr football selection lost matches What cream 3Croatian What do cream we use do on we the use beach? on the2beach? we t the went end3to we the went southern At to the the end parts southern we of went our parts county to of the our southern county parts of our county against Brazil and Mexico.

Visit our web site: www.samozastupanje.hr onik, visitSplit Šibenik, and Ploče.

Splitto and visit Ploče. Šibenik, Split and Ploče.

We won in 1 match against Cameroon. or visit usWe onleft Facebook! the World Cup as third in our group. cities, all these we cities, met with we In all met self-advocates these withcities, self-advocates we met with self-advocates ked nd we about talked ourabout national and our we conference national talked conference ourplace national conference The match for about the third on the World Cup was played between Brazil and be hich held willinbe September. held which in September. will be held in September.

Netherlands.

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The finals were played between Germany and Argentina.

More ls of details the conference of theMore conference will details be agreed will ofwon the bethe conference agreed will1be The Germany finals with to agreed 0 and taratory the preparatory meeting that at meeting the preparatory that meeting that