Bladder and Bowel June 2017 Newsletter

Featured in this month’s newsletter •Association for Continence Advice Conference, 2017 Belfast •Paediatric Workshop – ACA Belfast •Look Good Feel Good Award •World Bedwetting Update •NICE update - Guideline for Childhood Constipation CG99 •Impress Events •Adult Bowel, Special Interest/Education Group •Paediatric Special Interest Group Meeting •Supplier Directory •Loo of the Month

Welcome to this months Bladder and Bowel UK Newsletter

Bladder and Bowel UK, Disabled Living, Burrows House, 10 Priestley Road, Wardley Industrial Estate, Worsley, Manchester, M28 2LY

ACA Conference 2017 The Bladder and Bowel UK team attended the ACA conference in Northern Ireland.

The conference was held at the Belfast Waterfront Centre and the theme of this year's programme was Continence without Borders.

As many of you will know, this is an annual event, with members attending from across the UK. The educational programme was full of inspirational speakers and there was a wide and interesting variety of lectures, free papers to attend and posters on display to view.

ACA members were informed they would be able to review presentations (where speakers have given permission) on the ACA website, under the member’s forum – ACA conference.

It was good to see the large company exhibition, which provided a wide range of continence products, pharmaceuticals, devices and equipment, along with other charities and organisations .

The exhibition is open to delegates for the duration of the conference.

The exhibition provides us all, with a valuable opportunity to update our knowledge, gain new information, network with each other and talk to the companies about their latest developments and share in their wealth of knowledge about the product market. Its also an opportunity and be informed of new innovative products and practical solutions.

Many health care professionals and company representatives visited us at the Bladder and Bowel UK stand, enquiring about our new look, new name and services. We were able to update on our helpline service and online resources. It was also an opportunity for us all to receive feedback and for us to catch up in person with familiar faces and new and friends. This year, we missed our product information co-ordinator Andrea being with us, as she was holidaying in Ibiza, however our Chief Executive , Debra Evans kindly stepped in to join the team and reprise her role from her days of working within the PromoCon team, catching up with ‘old’ ACA friends and colleagues too.

The ACA conference provides us all with valuable networking opportunities and everyone in the continence arena is warm and friendly. We would encourage people if not already members, to join this wonderful organisation, which bring many additional benefits of local group support as well as national and local events.

Paediatric Continence Workshop – ACA Conference, Belfast For the third year running, a separate morning paediatric workshop was also offered to delegates.

June Rogers and Davina Richardson Bladder and Bowel UK Nurses and ACA Executive members were delighted to be asked to speak at the Paediatric Morning, that was part of the Association for Continence Advice Annual Conference.

June talked about constipation and learning difficulties and Davina about toilet training children with autism to a full room of delegates from across the United Kingdom with a few from much further afield. Other topics covered were NICE guidance, paediatric urology and development of a ‘Poo Passport’. The morning ended with a lively ‘ask the experts’ session where a wide range of topics were covered.

It is hoped this workshop will continue to run at next years event in Bournemouth.

For further information regarding ACA membership, please contact Fitwise

The Association for Continence Advice (ACA) is the association to join for any continence professionals wishing to get the most out of professional development, skill sharing with peers and inter-disciplinary continence professionals, networking and educational opportunities through our regular newsletters, annual conference, study days, local branches, awards, and through our website and members only areas. * NEW MEMBERS OFFER (Direct Debit Payments ONLY): First year's membership half price for Full or Associate Membership Available to NEW MEMBERS, however we shall honour the offer also to previous members who have been lapsed for two years or more.

•Join us TODAY » Go to our online joining form •Download the paper application form •Pay by Direct Debit Please note this offer is only for members within the UK. If you are Ireland based however please contact us at ACA@Fitwise.co.uk and we can arrange to grant you the offer by another payment method

Look Good Feel Good Award Each year, the ACA and Bladder and Bowel UK present “The Look Good, Feel Good” award at the Gala Dinner, to a company, who has launched a new product, which can demonstrate innovative thinking, creativity and which will have a significant impact on outcomes and quality of life for the patient. This year’s award was very closely contended among entries, this year also brought us a clear winner.

The winner of the 2017 “Look Good Feel Good” award was Navina The judges described this as a great product, discreet, great size and shape, good for transporting and easy to use.

Navina TAI Smart System – Wellspect Navina Smart makes TAI simple and intuitive to teach, learn and use. It may help speed up the TAI procedure and gives people control over their bowel. Navina Smart is designed to enable patients - or with the help of their carer - perform effective, individually tailored TAI. The goal of Navina Smart is to make TAI as user-friendly as possible, in order to increase the success rate and compliance for those that try the therapy, as well as making it available for more people.

For more information on this product please contact: Tel: 0800 652 3350 Email navina.uk@wellspect.com www. http://www.wellspect.co.uk/Bowel

Judges comments on the winning product included: ‘A welcome addition to the range of TAI equipment available’ ‘Liked the smart technology option’ ‘A product that can help improve patients quality of life’ ‘Offers patients the opportunity of more independent living with their bowel regimens’ ‘Good supporting literature’ ‘Equipment easy transportable’

2nd Place Look Good Feel Good Award was awarded to Incy Wincy - Kes-Vir(TM) Kes-Vir(TM) stylish incontinence skirt swimsuit is designed to look like a regular swimsuit but has a built-in swim pants.

Designed for bowel and urinary incontinence.

For further details go to https://www.incywincy.net/

3rd Place Look Good Feel Good Award was awarded to Clinimed – Farco-fill Protect Farco-fill Protect is a sterile solution for inflating the catheter balloon, containing an antimicrobial agent that can reduce encrustation which is a common cause of catheter blockage.

For further information please contact: Tel: 0800 036 0100 www. http://www.clinimed.co.uk

World Bedwetting Day Update The Third World Bedwetting Day was on 30th May with this year’s theme being ‘Time to take action’, to recognise that more can be done to raise awareness of bedwetting, for timely diagnosis and treatment. Bladder and Bowel UK were able to take information leaflets and stickers to the ACA conference and promoted the day to delegates at conference, as well as ensuring that their Special Interest Group were aware of the event and how to get promotional materials, which were distributed by Ferring.

World Bedwetting Day is now an annual event, with the theme decided by an international committee of professionals and announced in the autumn for the following year. Next year’s date is 29th May and we will provide information about the theme and where and how to obtain materials towards the end of this year.

NICE update NICE Guideline for Childhood Constipation CG99 The NICE Guideline for Childhood Constipation has recently been reviewed and as there has been no major new evidence the key recommendations remain the same. By using ChiMat (using the link below) services can review their area to check how NICE compliant they are regarding the management of Children and Young people with constipation. ChiMat records a range of factors which help identify the health and wellbeing of the local population and benchmarks them against both national statistics and adjoining area.

One of the areas ChiMat identifies is the number of Children and Young people admitted to hospital with constipation as well as the number of bed days they occupy. As NICE recommends the assessment and treatment of constipation should happen within the community then the number of affected Children admitted to hospital should be very low if not none at all. High numbers of Children admitted to secondary care with constipation would potentially reflect poor community care. http://atlas.chimat.org.uk/IAS/profiles/profile?profileId=45&geoTypeId If anyone would like more information regarding how they can carryout a continence needs assessment for their area or any other advice and support regarding their service then please do not hesitate to contact June or Davina at information@bladderandboweluk.co.uk

Impress Events

IMPRESS is a University of Leeds project which is designed to encourage engineers and scientists to research new technologies for incontinence. They are funded by the National Institute for Health Research and the Engineering and Physical Sciences Research Council.

IMPRESS have run multidisciplinary events to look at the issues, exchange information and encourage networking. They are organising their first ever Children’s event/ workshop at the Thackray Medical Museum in Leeds on Saturday, 30th September.

This will be for Children and Young people aged 6 -16. Young people will be asked to contribute to the workshop and will have time to have a tour of the museum and participate in activities organised specially for them.

There is a flyer and full size posters available. Please would you consider advertising this event to Children and Young people who attend your service, particularly if you live within a reasonable distance of Leeds.

More information is available from IMPRESS at http://impress-network.com/event/incontinence-workshop-young-people/.

For a copy of the poster or for parents/ young people to register for the event please email: impress@leeds.ac.uk

Bladder and Bowel UK Special Interest Education Group Event A date for your diary, bookings now being taken!

Bowel Special Interest Group Meeting and Educational Event Thursday, 28th September 2017 9.15am-3.30pm Aimed at all Healthcare Professionals involved with the care of Adults with Bowel problems and will include educational sessions on a variety of Bowel Care topics, networking opportunities and a company exhibition.

Contact us to book and secure your place Tel: 0161-607-8219 This day is £15 to cover administration fees – payment must be received in advance.

Venue: Redbank house, St Chad’s Street, Cheetham M8 8QA

Paediatric Special Interest Group Meeting and Educational Event Thursday, 19th October 2017 9.15am-3.30pm Aimed at all Healthcare Professionals involved with the care of Children and Young People with Bladder and Bowel problems and will include educational sessions on a variety of issues related to Children’s continence, networking opportunities and a company exhibition.

Contact us to book and secure your place.

Tel: 0161-607-8219 This day is £15 to cover administration fees – payment must be received in advance.

Venue: Redbank house, St Chad’s Street, Cheetham M8 8QA1

Don’t forget to book your place on next years Annual Continence Symposium – Three concurrent streams running throughout the day: Paediatric, Adult Bladder and Adult Bowel.

Thursday, 8th March 2018 Venue: USN Arena, Bolton

Check out our other Disabled Living Services and Web Sites

NEW Disabled Living Supplier Directory

To compliment the launch of the new Disabled Living websites, we have also redesigned the Disabled Living Supplier Directory.

The Directory provides information about companies and organisations that provide equipment, products and services to support disabled children, adults and older people.

Access to the supplier directory is via the Disabled Living Website

Loo of the month A welcoming toilet, set in a private position.

Product of the Month For any commercial partners wanting to showcase products, we are always looking to promote innovation and new ideas in continence care, or you can showcase a range of products Please contact Andrea Greenfield to discuss: Email: bladderandboweluk@disabledliving.co.uk Tel 0161 607 8219

Corporate Partnership We are keen to continue working with our existing partners, who kindly support us here at Bladder and Bowel UK and would also like to welcome and open discussions for new partnership opportunities, please contact Andrea Greenfield Email: bladderandboweluk@disabledliving.co.uk Tel 0161 607 8219

Twitter & Social Media As a charity, social media is a relatively new way of communication with our audience.

However, we are now increasing our followers on Twitter, Facebook and LinkedIn. To keep up to speed with current events, articles and general tweets/articles...

Please connect with us!!

Bladder and Bowel UK, Disabled Living, Burrows House, 10 Priestley Road, Wardley Industrial Estate, Worsley, Manchester, M28 2LY