Kidz to Adultz Scotland Newz 2018

Kidz to Adultz Scotland Newz

has been healthcare the 1950’s. en Awards.

Care Home Newsletter

2018

THE FAMOUS HARRYS A prince, a comedian & 'one amazing kid'

172 CHANGING PLACES See where your local facilities are

SOUTH OF THE BORDER Visit Kidz to Adultz North

GRANT FUNDING For individuals & organisations

MANAGING CONTINENCE ISSUES AT SCHOOLS For children in Scotland

Kidz to Adultz is a trademark registered to Disabled Living. Charity number: 224742

Welcome to Kidz to Adultz Scotland Newz We are delighted to email you our Kidz to Adultz Scotland Newz. This emagazine is totally dedicated to children and young adults who live in Scotland, with a disability or additional needs, their parents, carers and the professionals who work with them.

Kidz to Adultz Scotland Newz has been developed at the request of visitors attending Kidz to Adultz Scotland exhibitions.

Within this e-magazine you will find a wide range of features and articles including useful information on equipment, products and services, together with charitable trusts who will fund equipment, adaptations and more.

Unfortunately in 2018 there will not be a Kidz to Adultz Scotland exhibition, feedback from our visitors last year suggested we consider alternative venues and therefore we are exploring options for future years.

Key features include:- funding, continence problems in schools, personal stories, accessible gaming and much more.

For further information please email: info@disabledliving.co.uk

We do hope you find the magazine useful and informative - we would love to hear from you if there are any particular topics you would like to be featured in the future.

Carmel Hourigan, Senior Manager, The Kidz Team, Disabled Living

Explore Our Key Features Why Harry Beattie is one amazing kid..........................................................................................................4 New park where children with learning disabilities and non-disabled children can play together.................7 Adaptive controller available by Xbox...........................................................................................................8 Accessible days out in Scotland.................................................................................................................11 Funding for organisations in Scotland........................................................................................................12 Managing continence issues at school for children in Scotland.................................................................16 172 Changing Places toilets in Scotland....................................................................................................20 Free CPD seminars at Kidz to Adultz North this November.......................................................................28 Healthier school foods in Scotland.............................................................................................................30 An accessible day out at the beach............................................................................................................33

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Why Harry Beattie is 'One Amazing Kid'

Harry was born at 27 weeks in Raigmore Hospital Inverness after an spontaneous rupture in the membrane at 22 weeks. He was ventilated for 3 months and had a Patent Ductus Arteriosus closed in Glasgow prior to this. Due to an ongoing chest infection Harry had many stays in hospital. On one occasion he was so ill, he was transferred to Royal Hospital for Sick Children.

Harry ended up being there for 3 months with a tracheotomy at the end of this. Having two other children at home who were adopted (Harry was an IVF baby), was really difficult.

Natasha Bolger from Disabled Living interviewed Harry's mum.

Please can you tell us about Harry's background?

At 11-years-old the next big admission was to try ventilation as he had hypoventilation. Now, Harry ventilates via a tracheotomy 24/7. He has had very little admissions for his chest since this, until recently. I think he finds life tougher as he gets older and feels tired more easily.

Harry has always been the happiest wee boy and although he is in a chair and can’t speak, boy can he get his point across... he is definitely the ‘boss’! Others will ask if I'm his personal

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assistant (or I'll ask if I'm his slave) and Harry shakes his head and sticks out his tongue. This is Harry's way of responding with 'yes'. So I know my place! He understands every word and can answer a yes or no question by actions I've just mentioned.

Harry has severe cerebral palsy affecting all four limbs and has severe dystonia which causes him so much pain. We are waiting for results from St Thomas' Hospital in London about having Deep Brain Stimulation to help manage his dystonia and hopefully managing his pain better as he is on a ton of medication to try and help this. He absorbs medication really quickly and what he is on should knock out a horse, but not our Hars!

man who understood Harry’s sense of humour. They enjoyed a bit of banter throughout the evening. They both said I "forced Harry to wear the kilt". So before the end of the evening, Prince Harry took a few steps back and leaned in to my Harry to say, "Remember, do not let your mum make you wear that kilt again if you don’t want to!"

Of course, Harry giggled. The evening was a star studded affair and the children were the stars that night - just as they deserved to be.

What are Harry's favourite things/hobbies?

Harry loves books including audio books. TV is also a big hit with CBeebies being his favourite.

I tell him he is too old for it but he doesn't care!

What was it like meeting Harry Hill?

Harry Hill has been so kind to him. He invited Harry to London to watch the recordings of his show 'Alien Fun Capsules'. Harry giggled all the way through! We are still in touch with Harry Hill who is an absolute gentleman. ...And Prince Harry too! Can you describe what that was like?

Is there anything else you would like to add?

Harry was awarded a 'Well Child Award' in 2017 - nominated by the Well Child nurses in Edinburgh. He won the Inspirational Young Person Award. We are so proud of Harry getting this award. He has had such a tough life and never complains, unless I’m not doing what he wants!

This is not the journey we would have chosen for our child, but hand on heart I wouldn’t change a thing (apart from him being in pain) he is an inspiration to us all and makes us laugh every day! We have met amazing people through Harry he has definitely made us better people by having him in our lives. One amazing kid!

Prince Harry is the patron for this charity and he is such a genuine, down-to-earth and funny

Beverley Beattie - Harry's mum

He lives life to the full and for us every day is a blessing – he’s a great wee guy.

For somebody who doesn’t speak he can certainly get his point across. Children like Harry can never really do anything that involves winning, so something like this is just brilliant for him and he so deserves it.

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Visit Disabled Living's Online Shop and Browse a Range of Children's Items

We are delighted to be working in partnership with Complete Care Shop to provide you with a comprehensive online shopping facility for equipment and products to make life easier.

Complete Care Shop has over 250,000 in stock items at competitive prices offering you choice from a wide range of manufacturers including mobility aids, daily living products, continence supplies together with telecare and telehealth equipment.

The main advantage of purchasing via the Disabled Living website, is the opportunity for you or your clients to speak to Occupational Therapists or Continence Specialists for free impartial help and advice, ensuring unnecessary purchases are not made.

For more information please visit: www.disabledliving.co.uk/online-shop or call: 0330 053 5930

Disabled Living Supplier Directory The Directory provides information about companies and organisations that provide equipment, products and services to support disabled children, adults and older people.

Access to the Supplier Directory is via the Disabled Living website.

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For more information please visit: https://supplierdirectory.disabledliving.co.uk/ or call us on: 0161 607 8200

New Inclusive Play Park Now Open

First Minister Nicola Sturgeon opened Play As One’s inclusive play park in Dunfermline – the largest of its kind in Scotland. The park has been specially designed so children with physical or learning difficulties and non-disabled children can play together.

"All children have the right to play and the new inclusive play park in Dunfermline will allow children to play together regardless of ability. I had a wonderful afternoon meeting kids and their families who will benefit from this new facility, and I’d like to congratulate Play As One and everyone involved in the project for all their hard work to make this happen. I have no doubt it will bring joy to many families across the whole of Fife.”

First Minister Nicola Sturgeon

For more information please visit: firstminister.gov.scot/inclusive-play-park-opened/ 7

Accessible Gaming with the Xbox Adaptive Controller

At Microsoft, we believe in empowering every person and every organization on the planet to achieve more. Our CEO, Satya Nadella, has spoken about how essential it is that we push the boundaries of what technology can do in a concerted effort to be inclusive of everyone around the world. These principles have the deepest impact in how we are building products that are designed for everyone. We have been on a journey of inclusive design, which celebrates and draws inspiration from people who are often overlooked in the typical design process.

As I discussed at the annual DICE conference in February, when we truly design for all, we help make the world more equal. That’s why I’m so excited about today’s Microsoft Story Labs feature which shares an in-depth look at our newest piece of hardware which we believe will enable and empower even more Xbox One and Windows 10 gamers across the globe: The Xbox Adaptive Controller.

By taking an inclusive design approach and considerations of gamers who might not be able to reach all the bumpers and triggers or hold a controller for an extended period of time, for example, we were able to design a controller that provides a way for more fans to enjoy gaming. On our journey of inclusive design, we have taken a wider view of our fans and a more inclusive approach to

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designing for them.

For gamers with limited mobility, finding controller solutions to fit their individual needs has been challenging. The solutions that exist today are often expensive, hard to find, or require significant technical skill to create. A number of individuals and organizations are creating custom solutions, but it has been often difficult for them to scale when most rigs need to be so personalized.

Joining the Xbox family of controllers and devices, the Xbox Adaptive Controller was created to address these challenges and remove barriers to gaming by being adaptable to more gamers’ needs. It was developed in partnership with organizations around the world, including The AbleGamers

Charity, The Cerebral Palsy Foundation, Craig Hospital, SpecialEffect, and Warfighter Engaged.

We worked closely with them and directly with gamers who have limited mobility to assist in our development. Our goal was to make the device as adaptable as possible, so gamers can create a setup that works for them in a way that is plug-and-play, extensible, and affordable. In addition to working with common adaptive switches that gamers with limited mobility may already own, it has two large buttons built in. These buttons can also be reprogrammed to act as any of the standard controller’s button inputs via the Xbox Accessories app.

To make the Xbox Adaptive Controller a viable solution for the widest possible range of gamers with limited mobility, we’ve worked closely with third-party manufacturers to support external inputs which can be plugged in to the new controller. These inputs include PDP’s One-Handed Joystick for the Xbox Adaptive Controller, Logitech’s Extreme 3D Pro Joystick, and Quadstick’s Game Controller. We couldn’t be prouder to have their support in introducing the Xbox Adaptive Controller. More recommended partner devices can be found here.

The Xbox Adaptive Controller has been years in the making, though we realize that this is only one step along our journey of

inclusive design and that we have more work ahead. This has been a passion project for people around the world, both inside Microsoft and beyond. We’re thrilled to introduce it to the world today, tell the story behind it, and take what we have learned on our journey to inform future initiatives in inclusive design. Make sure you check out today’s feature on Microsoft Story Labs and hear directly from Microsoft Chief Accessibility Officer Jenny Lay-Flurrie in her blog today to commemorate Global Accessibility Awareness Day.

At $99.99 USD and available exclusively through Microsoft Store, the Xbox Adaptive Controller will offer significant value over the customized alternatives that exist today.

We’re looking forward to sharing more about the Xbox Adaptive Controller in a few weeks at E3. The Xbox Adaptive Controller will be launching later this year, and we’ll share more information soon about pre-order availability.

Meanwhile, don’t forget to check out Ability Week at Microsoft Store locations starting Tuesday, May 29, through Saturday, June 2, a five-day experience of events that showcases hearing, vision, mobility, and cognitive assistive technologies that empower people with accessibility needs.

Written by Phil Spencer, Head of Xbox

For more information please visit: https://www.xbox.com/en-US/xboxone/accessories/controllers/xbox-adaptive-controller

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Autism Friendly Cinema Screenings at Over 300 Cinemas Nationwide!

Dimensions is a non for profit organisation who support people with autism and leaning difficulties. They are working with ODEON, Cineworld, Vue and Showcase to host autism friendly screenings throughout cinemas across the nation.

Click here for more information.

We're listed in the Top 10 UK Disability Blogs

Disabled Living are pleased to announce that we have been listed on Feedspot's Top 10 UK Disability Blogs. Popular features include: advice on equipment & training, disability travel, bladder and bowel topics and so much more. Content is also created from those listed in our Supplier Directory, contributors who have knowledge of disabilities, Redbank House, Bladder Bowel UK, Kidz to Adultz Exhibitions and their exhibitors.

Click here to see us on the list.

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Kelvingrove Art Gallery and Museum

Edinburgh Castle

Seabird Centre

5 Accessible Days Out in Scotland Click on the images to view more information

Wonderworld Soft Play Falkirk

@disabledliving

Tell us where your favourite accessible days out are in Scotland! @disabledliving

Blair Drummond Safari and Adventure Park

@DisabledLivingUK

Funding for Organisations in Scotland Coal Industry Social Welfare Organisation

The Hugh Fraser Foundation

A national charity supporting former miners and their families with help and advice to alleviate disadvantage arising from disability, ill health or financial hardship. In the 2016/2017 academic year the Trustees of CISWO and the Miners’ Welfare National Educational Fund provided assistance to 176 students totaling £287,080. Learn more here.

The purpose of the trust is the relief of financial hardship in general and the relief if hardship and suffering sustained by those afflicted by physical disability or disease. They tend to support national health charities in Scotland.

Learn more here.

Aberdeen Charitable Foundation

The Adamson Trust

All charities applying for local community grants must meet the following criteria:

Individual families can apply and, in addition, we accept applications on behalf of groups of children, organisations and other registered charities. The application form asks for some detailed information about the child, and also about the planned holiday. It is essential that this is provided. Learn more here.

Be a registered charity Clear connection to a community local to one of Aberdeen's offices The investment should be capable of having a clear and meaningful impact A governance structure in place to allow Aberdeen to monitor the impact of the investment.

Learn more here.

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For more information please visit: www.fundingscotland.com

Funding for Individuals in Scotland

Funding Scotland is a free online funding search provided by the Scottish Council for Voluntary Organisations to provide access to up to date, high quality information on funding opportunities for voluntary organisations in Scotland. It provides information on over 1,300 funding opportunities. It does not include funding opportunities for individuals or private businesses.

Several Scottish funding organisations have exhibited at Kidz to Adultz events. Click on the logos below to learn more about what they fund.

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Camphill Scotland Camphill provides sector leading care services for people with learning disabilities and other support needs. We cater for children, adults and older people through day care, residential care services and schools. Please click on the images below to view each area.

Beannachar

Blair Drummond

Camphill School Aberdeen

Corbenic

Loch Arthur Community

Milltown Community

Newton Dee

Ochil Tower School

Simeon Care for the Elderly

Tigh a’Chomainn

Tiphereth

For more information please visit: www.camphillscotland.org.uk/find-your-place/ or email: info@camphillscotland.org.uk 15

Managing Continence Issues at School for Children in Scotland

Children are individuals with unique abilities, needs and abilities, which require individualised responses. With respect to continence, children with physical disabilities and learning difficulties are more prone to constipation with associated faecal incontinence, day and night time wetting and delayed toilet training than their typically developing peers, but this area of development and health is often neglected (von Gontard et al, 2016). Assumptions are made that children with disabilities will, inevitably be delayed in their acquisition of continence.

Kaerts et al (2012) points out that toilet training is a stressful time and that, although they found twenty-one readiness signs for toilet training, there is no evidence for these and there is not even any consensus on whether any of these are more important or on how many should be present before toilet training starts. This makes it difficult for professionals to offer advice and even more so for families whose children have additional needs and may face conflicting opinions.

it is less likely that bladder or bowel problems, such as constipation will be missed. Where there are difficulties with other areas of development support is normally offered early – referral for speech and language therapy would not be delayed because it was felt the child was not ready to talk, support would be offered as soon as there was awareness of a problem. In the same way, there should be early support for the skills needed for toilet training.

Toilet training is a process, not an event and many children need extra support. The skills required include communication, the ability to sit in the correct place (potty or toilet), dexterity to manage clothing; mobility etc can all be worked on from the child’s second year.

Assisting a child with skill development should not be delayed solely on the basis of additional need. Furthermore, if there is a focus on attainment of continence early in a child’s life,

Schools, understandably, find managing incontinence difficult and are not always set up to support children with needs in this area of their development. Whilst it is recognised that adequate fluid intake is important for health and continence, there may be limited access to fluids at school, due to the organisation of the day and location of water bottles; behavioural issues and swallowing difficulties may also restrict fluid intake for some. Not all children

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are allowed to use the toilet in lesson times while toilet suitability and accessibility may be an issue in older buildings or for children with mobility or sensory issues. Furthermore, staff often worry about the safeguarding implications of supporting children with intimate care needs (those who need support with changing or catheterising) and a belief that two people are required to assist.

However, care can be provided on a one-toone basis and Disclosure Scotland provides a scheme to protect vulnerable groups and tries to ensure the suitability of staff working with children.

A survey of Scottish children in years S1 – S6 undertaken in 2013 found that 56% of children avoid using school toilets, 27% rated their toilet provision as poor and many stated that they lacked basic provisions and toilets were not sufficiently private. Avoidance of toilets may lead to chronic constipation, incontinence and urinary tract infections and cause children to limit fluid intake to avoid having to use the toilet. The latter may cause dehydration, affecting concentration and therefore learning.

Children with disabilities and health conditions may be disproportionately affected by poor toileting and drinking facilities in schools.

It is easy to condemn schools for not concentrating on this area of everyday need for all pupils. However, school staff are not health trained and may not understand what is normal; they may not appreciate the

problems some children and their families face with an area of development where there are expectations, but where social stigmas and taboos make discussion difficult.

School staff may consider that incontinence is related to medical or additional needs, but may also assume there is a failure in parenting or a behaviour difficulty. How they respond will depend on how they understand or interpret the problem. The Schools (Health Promotion and Nutrition) Scotland Act 2007 requires authorities to “endeavour to ensure that ... schools are health-promoting”. ...but does not mention continence.

Scotland places more effective duties on schools as part of its School Premises (general requirements and standards) (Scotland) Regulations 1967 relating to school toilets than other parts of the UK, but there is a lack of supporting national policy and guidance.

Although legislation does not guarantee implementation, it does indicate a government's priorities and intentions, and provides recourse if standards fall too low.

However, legislation without advice, guidance and support may mean only a basic minimum is achieved (Burton, 2013). A national consultation on school toilets in Scotland found that poor repair and a lack of cleanliness was a recurring theme (Burton 2013).

In research commissioned by the Children’s Commissioner for Scotland in 2014, it was found that families felt that schools lacked understanding of their children’s toileting needs, communication between staff was poor. In addition, there was limited access to necessary equipment and disabled toilets.

The question remains as to what is reasonable and appropriate to expect of schools in Scotland to support children and young people with continence needs. The Education (Additional Support for Learning) (Scotland) Act 2014 and amendment 2009, place a duty on education

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authorities to identify and support all children over the age of three years who would benefit from extra help.

professionals, whilst being mindful of the requirement for confidentiality.

Where there are issues with understanding of needs, these may be due to failures in communication or differing perspectives. It is helpful if all those supporting and working with the child are able to meet and discuss issues so that a plan can be agreed. All involved need to be mindful, that despite differing roles, there is a common goal: that the child remains as healthy and happy as possible, feels safe and reaches their potential.

Furthermore, this support must be provided for those under the age of three years if they have additional need due to a disability. Children with additional needs should have a personal learning plan; if they require a significant adaptation of the curriculum they should have an individual education plan and if they have complex needs, they should have a coordinated support plan. It may be appropriate to have continence needs addressed in the child’s plan.

Whilst school should provide individualised support and ensure that their rules do not cause problems for individuals, others also have a role. Families should provide school with sufficient information and equipment, so that they can assist the child appropriately.

The parents/carers should also engage with both school and healthcare professionals, give required medication at home whenever possible and support their child to meet their potential for independence with toileting.The child should, as far as they are able, let the staff know when they need help and be involved in their own plans. Healthcare professionals should work with and support the child and family, providing individualised and evidence-based assessment, advice and treatment and liaise with other

Web: bbuk.org.uk 18

Tel: 0161 607 8219

References Burton S (2013) Toilets Unblocked a Literature Review of School Toilets. Available from: www.cypcs.org.uk/ufiles/Toilets-LiteratureReview.pdf IPSOS Mori Scotland(2012) Young People in Scotland Survey 2012 School Toilet Summary Report for Scotland’s Commissioner for Children and Young People. Available from: www.cypcs.org.uk/ufiles/School-ToiletsReport.pdf Kaerts N et al (2012) Readiness Sings Used to Define the Proper Moment to Start Toilet Training: A Review of the Literature Neurourology and Urodynamics 31, 437-440 Scotland’s Commissioner for Children and Young People (2015) School Toilets and the Experiences of Children and Young People with a Disability the Views of Parents and Carers. Available from: www.cypcs.org.uk/ufiles/Flushed-withsuccess-the-views-of-parents-and-carers.pdf Von Gontard et al (2016) Do We Manage Incontinence in Children and Adults with Special Needs Adequately? ICI-RS 2014 Neurourology and Urodynamics 35 304-306 Davina Richardson, Children's Specialist Nurse, BBUK, Disabled Living

Email: bladderandboweluk@disabledliving.co.uk

Did You Know There Are 172 Changing Places Toilets in Scotland?

The Changing Places Consortium launched its campaign in 2006 on behalf of the over 1/4 of a million people who cannot use standard accessible toilets. This includes people with profound and multiple learning disabilities, motor neurone disease, multiple sclerosis, cerebral palsy, as well as older people.

To use the toilet in safety and comfort, many people need to be able to access a Changing Places, which have more space and the right equipment, including a height adjustable changing bench and a hoist.

Do you have any questions?

Send an email to: PamisChangingPlaces@dundee.ac.u k or visit www.changing-places.org for more information.

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The Highlands Kirkwall Travel Centre Thor House North Highland College Sutherland Swimming Pool Complex Tain Royal Academy Community Complex The Fingal Centre Burnie Day Centre Dr Gray’s Hospital Cedarwood Day Service Craig Maclean Leisure Centre Aviemore Primary School and Community Centre The Corbett Centre Inverness Airport Inverness Leisure Peterhead Leisure & Community Centre Inverurie Day Centre West Highland College UHI Orkney Islands Kirkwall Travel Centre

Thurso Thor House North Highland College

Golspie Sutherland Swimming Pool Complex

Tain Tain Royal Academy Community Complex

Isle of Skye The Fingal Centre

Fort William West Highland College UHI

Moray Burnie Day Centre Dr Gray’s Hospital Cedarwood Day Service Craig Maclean Leisure Centre Aviemore Primary School and Community Centre

Inverness The Corbett Centre Inverness Airport Inverness Leisure Peterhead Peterhead Leisure & Community Centre

Inverurie Inverurie Day Centre

Alford Alford Community Centre Ellon Ellon Resource Centre Ellon Academy Community Campus

Aberdeen Woodend Hospital Aberdeen Royal Infirmary Union Square Shopping Centre Marischal College Kincorth Sports Centre Aberdeen Community Health and Care Village Westhill Swimming Pool Aberdeen Sports Village Aquatics Centre

Carlisle The Lanes Shopping Centre Cumbria CVS Shaddongate Resource Centre

Perth and Kinross Strathearn Community Campus

Click here to find all of the Changing Places toilets in Scotland

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Angus Rosehill Resource Centre Forfar Community Campus Glen Loch Centre Websters Sports Centre Lilybank Resource Centre Lochlands Adult Resource Centre (First Floor) Lochlands Adult Resource Centre (Ground Floor) Arbroath Harbour Visitors Centre Montrose Sports Centre Perth Bell’s Sports Centre Perth & Kinross Council Offices Perth College Gleneagles Day Opportunities The Wheel Inn

East Lothian East Links Family Park North Berwick Library and Coastal Communities Museum Bleachingfield Community Centre John Gray Centre Musselburgh Public Toilet

Stirling Riverbank Resource Centre (Facility 1) Riverbank Resource Centre (Facility 2) MacRobert Arts Centre The Leisure Bowl Mariner Leisure Centre Blair Drummond Safari Park Grangemouth Sports Complex

West Lothian The Livingstone Shopping Centre Livingston Designer Outlet Xcite Bathgate

Galashiels Galashiels Transport Interchange

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Dundee Windmill Gardens Wellgate Day Support Service Olympia Swimming Pool University of Dundee Capability Scotland – Dundee – Facility One Capability Scotland – Dundee – Facility Two PAMIS White Top Centre Ninewells Hospital Medical School Dundee College Camperdown Country Park

Fife Waid Community Campus Dalgairn Centre - East Fife Community Support Service Cupar Sports Centre East Fife Community Support Service – Robert Gough Centre Levenmouth Academy Rothes Halls Fife College – Stenton Campus Michael Woods Sports & Leisure Centre (Wet) Michael Woods Sports & Leisure Centre (Dry) Bowhill Swimming Pool Parkgate Community Centre Duloch Leisure Centre Kelty Community Centre Brunton House Lochore Meadows Outdoor Education Centre Victoria Hospital Windmill Community Campus St Clair Centre Kirkcaldy Town House Kirkcaldy Leisure Centre (Dry) Kirkcaldy Leisure Centre (Wet) Kirkcaldy Art Gallery & Museum Queen Margaret Hospital Lynebank Wheelchair Clinic Carnegie Leisure Centre Dunfermline Carnegie Library & Galleries

Click here to find all of the Changing Places toilets in Scotland

Falkirk Mariner Leisure Centre Grangemouth Sports Complex

North Lanarkshire Shotts Community Centre Tryst Sports Complex Pivot Community Education Centre Viewpark Community Centre Strathclyde Country Park Summerlee Museum of Scottish Industrial Life

East Ayrshire Stewarton Sports Centre Darvel Primary School Patna Primary School Boswell Centre Rothesay House

East Renfrewshire Barrhead Health and Care Centre Thornliebank Day Centre

Edinburgh Stevenson College Edinburgh Drumbrae Leisure Centre Royston Wardieburn Community Centre Murrayfield Stadium Orwell Arts The Scottish Parliament Thistle’s Centre of Wellbeing Edinburgh College – Granton Campus – Catering Block Edinburgh College – Granton Campus – Sports Block National Museum of Scotland The Booking Office JD Wetherspoons

Glasgow Bearsden Community Hub West Centre Tollcross International Swimming Centre St Enoch Centre Whitehill Pool, Glasgow Club Glasgow Central Station (Network Rail) Kelvin Hall TouchBase SSE Hydro Hawthorn Day Centre Share Trust Silverburn Shopping Centre Glenwood Day Centre

Midlothian Dalkeith Library and Arts Centre Newbattle Community Campus IKEA Loanhead

Renfreshire Braehead Shopping Centre

South Lanarkshire South Lanarkshire Lifestyles Stonehouse South Lanarkshire Lifestyles Carluke South Lanarkshire Lifestyles Fairhill South Lanarkshire Lifestyles Swimming Pool Harry Smith Complex Cairn Lodge Services (M74) Murray Owen Centre

West Dumbartonshire Dumbarton Centre

North Ayrshire The Portal Leisure Centre 1 The Portal Leisure Centre 2 The Portal Leisure Centre 3 Dumfries and Galloway Annandale Water Motorway Services (M74 Jct 16) Kirroughtree Visitors Centre The Usual Place Dumfries Baptist Church Centre Dumfries & Galloway Royal Infirmary

Click here to find all of the Changing Places toilets in Scotland

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Children’s Health Scotland e-Learning Launch at NHS Scotland 2018

Children’s Health Scotland (CHS) has produced a Children and Young People’s (CYP) Healthcare Rights e-learning resource for practitioners in health and social care who work with CYP. As a rights-based organisation, CHS has used its knowledge and expertise to develop the resource to help practitioners give further effect to UN Convention on the Rights of the Child (UNCRC) articles in their daily practice.

The resource aims to: Promote greater understanding of the health rights and needs of children and young people (CYP) and families; Raise practitioners’ awareness of the Children and Young People (Scotland) Act 2014 (the Act) in relation to children and young people’s health and well-being; Assist practitioners pursue a rights-based approach in line with UNCRC principles.

One user said: "This is an excellent piece of work which will prove invaluable to practitioners all across health and social care in furthering their responsibilities in pursuing a rights-based approach."

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To access the course(s) visit: www.enetlearn.com/childhealthscot Have you seen the Children's Health Scotland leaflet?

This provides information about what we do and what support, advice and information we can give to those caring for children and young people at times of illness.

Download the leaflet here.

Written by Children's Health Scotland

Visit www.childrenshealthscotland.org for more information

Is It Worth a Trip South of the Border?

John, Alison, Katie and Ben from Motherwell thought so!

The Kidz to Adultz exhibition in Manchester is huge!

We found a cheap deal at a Premier Inn and combined it with a visit to the exhibition then to the Trafford Centre and to LEGOLAND Discovery Centre.

We all had a nice couple of days away.

Thursday 8th November 2018 9.30am – 4.30pm EventCity, Manchester 180+ exhibitors FREE CPD Accredited seminars Join TripleC, The Creative Confidence Collective Workshop in the Activity Area Be in with the chance of winning a £200 voucher ...and much more!

REGISTER HERE Web: www.kidzexhibitions.co.uk

Tel: 0161 607 8200

Email: info@disabledliving.co.uk

Kidz To Adultz North - FREE CPD Seminars Thursday 8th November 2018 EventCity, Barton Dock Road, Manchester, M17 8AS

SEMINAR ROOM 1

SEMINAR ROOM 2

10.30am The Effectiveness of Specialised Seating for Children

10.30am Practical Strategies to Support Better Sleep

Outlining the importance of seating, the correct posture and the goals of seating. This includes: identifing the goals of individualised seating, gaining knowledge how to assess clients for their seating needs, and identifying abnormal postures, the causes and how they can be accommodated in seating.

Martina Tierney BSc Hons Occupational Therapy Seating Matters

This seminar will explore why children and young people with SEND are more at risk of sleep issues. Participants will learn about a behavioural approach to sleep and practical strategies that can be used to help to support children and their families to get a better night’s sleep.

Lauren Slack Sleep Practitioner The Children’s Sleep Charity

11.30am Your Guide to Flying with a Disability

11.30am Effective Communication with Families of Children with Complex Needs

Flying is an essential and desirable form of transport for millions of UK citizens each year, whether for business, pleasure, family or health reasons. In this short seminar we will guide you, step by step through the process of flying on commercial aircraft if you have a disability.

Graham Race, Service Lead, QEF Tryb4uFly

Understanding what goes on behind closed doors and listening to lived experiences of families, is an important step past clinical jargon to understanding the complexity and heartbeat of family life for those who have children with additional needs.

Rachel Wright Registered Nurse/Trainer /Speaker Author of The Skies I’m Under Blogger at Born at the Right Time

1.00pm The Why, When and How of Toilet Training for Children with Additional Needs Toilet training is one an area of child development that most parents find stressful and confusing. However it is important for independence, self-esteem and socialisation.

Davina Richardson Children’s Continence Advisor RGN / RSCN BSc (Hons) Bladder and Bowel UK – Disabled Living

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1.00pm Bathing - The Right to Play Have an overview of “play” as an occupation.

Be able to list the relevant legislation to support bathing.

Explain how clinical reasoning can used to support the necessity of a bath in the design process.

Kate Sheehan DipCOT Occupational Therapist The OT Service

Kidz To Adultz North - FREE CPD Seminars Thursday 8th November 2018 EventCity, Barton Dock Road, Manchester, M17 8AS

SEMINAR ROOM 1

SEMINAR ROOM 2

2.00pm Postural Diets – Considerations in 24 Hour Postural Managements

2.00pm Expert Witness in Moving and Handling: Learning from our Mistakes

This seminar will detail the factors that are important and sometimes overlooked when assessment 24 hour postural management. It will aim to look at what an optimal postural management plan would include through a person-centred solution.

Shruti Verma MSc Physiotherapy More Rehab Ltd

Delegates will: Be familiar with the role of an expert witness Review several relevant legal cases Identify implications for their own work Elizabeth Hallows Chartered Physiotherapist Moving & Handling Advisor

3.00pm How to Use the Law to Improve Equipment Provision for Disabled Children

3.00pm Challenging Behaviour and Supporting the Family in the Home

Research shows that giving disabled children the right equipment at the right time reduces pain, prevents conditions worsening, increases treatment success, improves the quality of life for the child, and health and well-being of the carer. Newlife has commissioned a legal review of statutory obligations and current practices.

This session is designed to inform and empower professionals to challenge policy and decision making, leading to a greater understanding of the appropriate route to provision and ways to provide relevant evidence.

Carrick Brown Senior Manager – Care Services Department Newlife the Charity for Disabled Children

Challenging behaviour can have a negative impact on the individuals’ family. At BeyondAutism we analyse data to find the underlying functions and create behaviour plans tailored to meet those needs. By understanding the antecedents, we are able to teach replacement behaviours that will meet that same need. Doing this with the families means that we can ensure consistency across settings and they can adopt the same interventions. We will share our processes and how these are easily transferred to home settings.

Karen Talty ABA Consultant BeyondAutism Schools

Click here for more information or contact the Kidz Team on: 0161 607 8200 29

Healthier School Foods in Scotland

Less sugar, more fruit and veg on the menu.

Expert recommendations to make school food and drink even healthier are being consulted on by the Scottish Government. Strict rules already apply to the nutritional content of meals, drinks and snacks served in schools. Following a review by health, nutrition and education experts, views are being sought on proposals to further reduce sugar and other measures to promote healthy choices and help tackle childhood obesity.

The proposal includes: Increasing access to fresh fruit and vegetables with a minimum of two portions of veg and a portion of fruit to be offered as part of a school lunch Introducing lower sugar limits, for example for foods such as breakfast cereal and yoghurts Reducing how often sweetened and baked goods are available in primary schools No longer permitting fruit juice and smoothies to be offered in primary and secondary schools Introducing a new regulation for red meat which specifies, for the first time, how much of a child’s weekly intake should be high-quality produce and limits the amount of processed meat

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Deputy First Minister John Swinney said: “More than 360,000 meals are dished up in Scottish schools every day, setting children and young people up for their lessons and – through learning about healthy habits – for life. While our internationally acclaimed nutritional standards are already very high, we want to go further to promote healthy, high quality food and drink and help tackle childhood obesity.

The proposals we are putting forward are based on the latest scientific and expert advice, as well as the views of local authorities, schools and catering staff. I urge everyone with an interest in school food to have their say.”

recommendations are published online.

The remit of the technical working group was to undertake a review of the existing School Food and Drink Regulations (Scotland) 2008, and to provide evidence based recommendations to progress school food further towards the Scottish Dietary Goals (SDGs). The primary focus of the group was the health and wellbeing of children and young people.

Background

The Scottish Government accepted all of the recommendations from the Technical Working Group.

The consultation on School Food Regulations can be viewed on the Scottish Government website.

In 2017, the Scottish Government established a technical working group with representation from NHS Health Scotland, Education Scotland, Food Standards Scotland. Their report and final

In primary schools uptake of school lunches is the highest it has ever been due to the introduction of free school meals for all Primary 1-3 children in January 2015.

Written by The Scottish Government

For more information visit: https://beta.gov.scot/news/healthier-school-food/

Would you like to view our 5 steps to a healthy lifestyle?

Click here

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Upcoming Awareness Days in 2018

ADHD Awareness Month October

International Walk to School Month October

Bonfire Night 5th November

Hug a Bear Day 7th November

Self Care Week 12th - 18th November

World Kindness Day 13th November

Anti Bullying Week 13th - 19th November

Carers Rights Day 24th November

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World Diabetes Day 14th November

International Day of Persons with Disabilities 3rd December

Universal Children's Day 20th November

International Volunteers Day 5th December

An Accessible Day Out at the Beach

Beach Wheelchairs is a Scottish Charity which believes that everyone has the right to enjoy our beautiful beaches. They employed a summer worker- Katie, who has been at the Beach Hut Thursday-Monday throughout the summer. Katie is a Psychology student at Queen Margaret University and has really enjoyed being at the Beach Hut. Since July 2015, the Beach Hut have helped nearly 500 individuals to get on the beach and spend special time with friends and families.

Customers

Pony AxeS Day

We have had so many amazing hires over the past few months. Some are visitors to the area, and others who visit us regularly including groups from some nearby Day Centres.

From the 27th July to the 3rd August we hired out our small hippocampe to Joelle, a lovely girl from Eyemouth. This allowed her to be involved in Herring Queen Week.

It was a hub of activity at the hut where we welcomed Simon and Obama from Pony AxeS and their fabulous equestrian vehicle. Obama gave 9 rides to individuals who would otherwise find accessing the beach very difficult. It is safe to say it was a thumbs up from everybody! Huge thanks to Simon and Obama. A lovely partnership and dearly loved pony. Stay in touch to find out about the next time we can have a visit from them!

Joelle’s mum told us:

Thanks

“For the first time Joelle was able to join her brother and sisters on the beach to take part in the sand castle competition, games and fun. She ducked her toes in the sea, had her legs buried in sand and enjoyed watching all the shenanigans.”

We have received donations from customers, the public, Turnbulls Hardware Shop, Bundle Bean, Pentland Plants and a very generous donation from Rosie Abernethy.

North Berwick 0300 111 2112 info@beachwheelchairs.org

For more information visit: www.beachwheelchairs.org

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Disabled Living's Services Disabled Living is a charity which provides impartial information and advice about products, equipment (assistive technology) and services for disabled children, adults, older people, carers and the professionals who support them. We have a range of services which you can access via our helpline, through the website or at our Kidz to Adultz Exhibitions.

Watch Our Donkeys to Innovators Film

Equipz The team comprise occupational therapists, trusted assessors, moving and handling specialists, physiotherapists, nurses, continence specialists who together with knowledgeable information co-ordinators offer practical solutions to what may seem like unmanageable problems. The staff, respond to enquiries throughout the UK, primarily via our helpline and website, with some people opting to make an appointment to visit the Disabled Living Centre based in Manchester for a free equipment assessment. Helpline: 0161 607 8200

Bladder and Bowel UK The team provide information and advice for children, young people and adults with Bladder and Bowel problems. We provide a confidential helpline managed by a team of specialist nurses and knowledgeable information staff. In addition, the website offers a wide range of downloadable free resources.

Helpline: 0161 607 8219

Kidz to Adultz Exhibitions Disabled Living organise the largest FREE UK exhibitions totally dedicated to disabled children, young adults, their families, carers and the professionals who support them. With over 100 exhibitors at each event, offering a ’One Stop Shop’ for equipment products and services to enhance the quality of life. We deliver 5 events throughout the UK in: Farnborough, Bristol, Coventry, Manchester and Edinburgh.

Training Disabled Living provides a comprehensive training programme for professionals and carers. Most of our courses are accredited by Open Awards and others provide CPD opportunities. Our training courses can be ‘tailor made’ to suit your organisations requirements and can be delivered throughout the UK for more detailed information on the courses we provide please visit the Disabled Living website.

Web: disabledliving.co.uk

Tel:0161 607 8200

Email: info@disabledliving.co.uk

Get in Touch with Us

For more information please visit: www.disabledliving.co.uk

Disabled Living Head Office - Disabled Living, Burrows House, 10 Priestley Road, Wardley Industrial Estate, Worsley, Manchester M28 2LY Tel: 0161 607 8200 Email: info@disabledliving.co.uk Website: www.disabledliving.co.uk

Redbank House Redbank House, 4 St Chads Street, Cheetham, Manchester M8 8QA Tel: 0161 214 5959 Email: info@redbankhouse.com Website: www.redbankhouse.com