49 minute read
exhibition catalogue
November 2021
*This part of Brain Tumour magazine reproduces the 2021 online Brilliance! catalogue which can also be found at https://issuu.com/ibta-org/docs/ibta_ brilliance_catalogue . For optimal viewing of the artworks in Brilliance!, and to see the colours more vibrantly, we suggest you look at them online.
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Robert Genn (May 15, 1936 – May 27, 2014), Canadian painter
Welcome to the first “Brilliance!” virtual exhibition.
November 2021
Pablo Picasso is reputed to have said that “the purpose of art is washing the dust of daily life off our souls”. So with that thought in mind, the International Brain Tumour Alliance (IBTA) is very excited to welcome you to “Brilliance!”, our inaugural virtual art exhibition.
People affected by a brain tumour make up a diverse population of patients, family members and friends, men and women, young and not so young, from every culture and walk of life. The same can be said of the healthcare professionals who provide care and do research in the brain tumour community.
While modern medical care strives daily to treat the whole person, it is also true that receiving brain tumour treatment can be very challenging for patients and their families. It is also complex and demanding for the many healthcare professionals who prescribe and provide that treatment and care.
Frequently, the urgency and complexity of discussing medical treatments and other issues surrounding brain tumour care, means there just isn’t time to talk of other things such as, for example, an individual’s interests, passions and talents.
It is from that practical reality, that the idea of “Brilliance!” arose as a way to shine a bright, uplifting light on the talents of those in the international brain tumour community and to share a little bit more of who we are, beyond the impact of a brain tumour in our lives.
We warmly invite you to take some time to enjoy a virtual stroll through the remarkable works of “Brilliance!”. We urge you to read the words of the artists as they explain why they chose to express themselves in a particular way and how a brain tumour has affected them*. The works of art in the “Brilliance!” exhibition are as diverse and inspiring as the people who have created them.
The Brilliance Exhibition Committee and Exhibition Curators:
Kathy Oliver Chair/Co-Director, International Brain Tumour Alliance (IBTA) Maureen Daniels BScN, RN, IBTA Senior Advisor
Rosemary Cashman MA, MSc(A), NP(A), IBTA Senior Advisor
The “Brilliance!” virtual catalogue was designed by Edwina Kelly of Edwina Kelly Design (edwina@edwinakellydesign.co.uk) Copyright of the individual artworks included in the “Brilliance!” catalogue remains with the individual artists who submitted them (save where otherwise specifically stated and acknowledged).. None of the images contained in the “Brilliance!” catalogue may be reproduced in any other form whatsoever without the express permission of the artist (or, where the copyright is acknowledged to belong to a third party, the express permission of the third party shall be required).. Please contact kathy@theibta.org for further information. *The text for some of the entries reproduced in Brain Tumour magazine may have been shortened from the original version of the text online at https://issuu.com/ibta-org/docs/ibta_brilliance_catalogue
Ellen Victoria Sawkins
Australia
Title of creative work: The Deep Medium: acrylic and spray paint
This piece was created in the only space where my fatigue recedes and my spirit energises. I get lost in the inspiration of my coastal environment. I am immersed and at peace.
My brain tumour is inoperable and does create some challenges. I have had to learn not to panic with new symptoms. I am a witness to my brain’s independence. Life is bittersweet now, but I am lit up by small wins and am so grateful for what I can still achieve. It is not easy and it is a conscious effort, but I am loved and I’m proud of who I know myself to be when in the dark.
Sandra E Ball
United Kingdom
Title of creative work: “Long Days – a portrait of Dr Walayat Hussain” Medium: Watercolour
I underwent surgery to remove a rare form of brain tumour, vestibular schwannoma, in May 2011. I always say I am a walking miracle as it was well stuck to the facial nerve, as well as the hearing and balance nerves. I was blessed to have the best possible neurosurgeon and medical team for the surgery. I love to draw and paint as it not only helps the cognitive skills, it takes me out of myself, makes me concentrate and gives me joy. This watercolour painting was given to Dr Hussain as a thank you, September 2020, as I underwent the last surgery on my nose, after suffering from a rare form of skin cancer two years ago. I had made a pencil sketch of Dr Hussain which I presented to him the day after surgery. He is such a busy man who works with a spirit of excellence, often going the extra mile, so the title ‘Long Days’ is very apt. I was drawn to his wonderful colourful head covering, and of course, his eyes which show compassion and care.
Stephen Ménage
United Kingdom
Title of creative work: “Study of fellow artist’s head” Medium: ciment fondu
Stephen belonged to a local sculpture group and this ciment foundu head is one of his works of a fellow artist. It resides in our garden - hence the rather weather beaten look.
Claire Snyman
Canada
Title of creative work: “In My Brain” Medium: photographs
When I was having to contemplate a potential second brain surgery, I felt very depressed. I came across the 365 Gratitudeproject and took photos each day of things I was grateful for. Some of these photos frame a mantra of words that epitomise my brain tumor journey.
Both myself and my family have been affected by my brain tumour. On the positive side, I feel more grateful for so much and see life through a different lens. My short term and long term memory loss plus cognitive challenges have required many regular adaptations, including for my career. While this requires extra work each and every day, I have been lucky enough to find rewarding and purposeful work, meet inspiring people and go down paths I would never have done before. This doesn’t mean I haven’t grieved my loss. It means I have found some doors that have opened, where others may have closed.
Tricia Ann Roloff
United States
Title of creative work: “Tahiti Days” Medium: photographic image
Giuseppe Raschiani
Italy
Title of creative work: “Emotions” Medium: acrylic on canvas
I had an attack of epilepsy at Christmas 2020. Suddenly, in the hospital after an MRI I was told that I had a brain tumour that was likely glioblastoma at stage IV. I had brain surgery in less than five days later then I began a standard treatment plan with radiation and chemotherapy. Today, I feel good overall. I have so many moments where I get to enjoy life with my family, my son and my friends.
These paintings are an expression of my energy that manifests itself in colours and shapes. The title says the meaning. This energy radiation can be seen as a big explosion of emotions. Each of us can live it according to his perception and sensitivity. For me these are space colours of vital and sexual energy.
Jami Millon
United States
Title of creative work: “Breathe” Medium: coloured pencil and pigmented ink
Rosemary Cashman
Canada
Scott Norris
United States
Title of creative work: “Urban Flower” Medium: digital photograph
Stephen Ménage
United Kingdom
Title of creative work: “Love Spoon” Medium: Wood
Stephen carved this spoon for his fiancée, Janie, as a token of his love and to celebrate their relationship.
Jenny Hyslop
United Kingdom
Title of creative work: “Bude, Cornwall – Barrel Rock” Medium: acrylic on canvas
I was diagnosed with anaplastic astrocytoma, grade 3, in May [2021]…This came about out of the blue after worsening migraines and becoming more unstable on my legs and suffering falls… I have been able to enjoy my art while being home unable to work. It allows me to forget about the treatment and situation and my life-changing challenges…This is an acrylic painting of Bude, north Cornwall in the United Kingdom. I have always enjoyed painting and this is an area near to where I live. I find painting absorbs my concentration and prevents me worrying about my brain tumour. I love to paint for people and for raising money for charity such as the sea pool at Bude, Cornwall, and for the brain tumour support group.
Tricia Ann Roloff
United States
Title of creative work: “Bohemian Life” Medium: coloured pencils on paper
I had a lot of emotional ups and downs because my tumor affected my hormones. Things got better after my surgery. The one consistent thing in my life has been my photography. Photography is fun, creative and helps see life in a different way wherever you find yourself. I love architectural and seascape photography in particular. The architecture of Europe blew my mind. I encourage everyone to pursue an artistic endevour.
After college (fine arts degree) I travelled around Europe. In Madrid my camera was stolen, so I bought colored pencils and commenced to live my Bohemian Life, sitting in the streets and drawing. It was a very calming experience in the midst of some unusual symptoms I was having at the time (later to be the pituitary tumor diagnosis). I continued to draw throughout my travels.
Rosemary Cashman
Canada
Anonymous
Croatia
Title of creative work: “The Hint” Medium: pen on paper
I have been a patient since 2015. Thanks to modern medicine and my family I am healthy today and have another chance of life. There are other patients who need a chance for life.
This painting was created two years ago just before my brain tumour. I call this painting “The Hint” because this was my first and only sign that something was wrong. Today I am healthy and hope this picture will be only the memory about what has happened in my past.
Rebekah Bagguley
United Kingdom
Title of creative work: “Love” Medium: acrylics
I have been living with a brain tumour diagnosis and the effects of surgery and treatment since 2005 when I was 27. It progressed from Grade 2 Astrocytoma to Grade 3AA (anaplastic astrocytoma) in 2011. I still grieve for the life I thought I would have (children, well paid career, a partner, not to mention the weight gain due to steroids) But I have had to adapt to the many challenges and am managing to live a better life by learning new skills. Painting has become a real pleasure and helps me through times when I feel fatigued, anxious, and hopeless.
This is one of my first paintings of my best friend Archie. He could be credited with life-saving abilities as he has been a source of pure joy for me through the toughest of times.
Ellen Yates
United Kingdom
I was diagnosed with an acoustic neuroma brain tumour in April 2015 and have been on watch and wait since that time. I have regular MRI scans to keep an eye on it. I am now ill-health retired. Among my various symptoms, I have balance issues, tinnitus, brain fatigue/fog, memory loss, dizzy spells, anxiety/depression.
Using a very small crochet hook and fine yarns I decided to have a go at crocheting an angel. I was commissioned to make this item for a friend of mine at Christmas - a challenge I enjoyed and she was very happy with the finished result. Crochet is my ‘zone out’ craft.
Giuseppe Raschiani
Italy
Title of creative work: “Joy” Medium: acrylic on canvas and vinavil
I had an attack of epilepsy at Christmas 2020. Suddenly, in the hospital after an MRI I was told that I had a brain tumour that was likely glioblastoma at stage IV. I had brain surgery in less than five days later then I began a standard treatment plan with radiation and chemotherapy. Today, I feel good overall. I have so many moments where I get to enjoy life with my family, my son and my friends.
These paintings are an expression of my energy that manifests itself in colours and shapes. The title says the meaning. This painting shows flares of bright and vivid colours, the colours of love. The love match between man and woman. What else?
Jami Millon
United States
Title of creative work: “I will survive!” Medium: coloured pencil and pigmented ink
I have an oligodendroglioma, grade 3. I have survived since March 2018. This piece is a layout of brain tumor ribbons along with traits that I have commonly found in individuals battling brain tumors.
Matthew Mallett
Australia
Title of creative work: “Lost in the Fog” Medium: photograph
In 2007 I was diagnosed with a low grade oligodendroglioma tumour. Since then, I have undergone chemo, further surgery to debulk the tumour, radiation, more chemo. Am still here and thankful!
This piece I captured some time ago. The easiness of the fog, trees and the duotone look make me want to get lost in this place...to explore further.
Stephen Ménage
United Kingdom
Title of creative work: “Bust of a Fellow Sculptor” Medium: ciment fondu
His mother explained that Stephen suffered his first brain tumour (ependymoma) shortly before his 19th birthday. It recurred in 2002, then 2005, 2014 and finally in 2020. He was told it would keep recurring and he used to refer to it as his “sword of Damocles”. Despite this he always led a full and active life right up to the week before his final operation enjoying long walks and cycle rides with his fiancée. His love of music and sculpture provided great comfort when things got bad. In March of this year his swallowing shut down and he had to have a tube fitted into his stomach for his food and drink to go down. Stephen’s last operation, delayed from 2020 because of Covid, finally went ahead in April of this year but sadly he passed away a couple of days later.
This work is a head that Stephen sculpted of one of the people in the same sculpture group as himself.
Brian Short
United Kingdom
Title of creative work: “Cadgwith Cove, The Lizard, Cornwall” Medium: water colour on paper
My eldest daughter has been diagnosed with a brain tumour this year (2021) in May, with a grade 3 anaplastic astrocytoma. She had two emergency operations in May and has undergone radiotherapy and now started chemotherapy. It has been a worrying time but as a family we work together and have a shared interest in art and painting.
This is an original watercolour of Cadgwith Cove on The Lizard in Cornwall, UK.
Telma Costa
Portugal
Title of creative work: “Fighting the Fears – Self Portrait” Medium: digital photography
As a medical oncologist, I remember all of my patients with primary and secondary brain tumours. As a daughter, I honour the memory of my mother, who died with brain metastasis. And finally, as a cancer patient, I fight the fear of uncertainty and try every day to keep my mind clear and my heart wide open, so I can allow myself to have a good life.
During chemotherapy, photography appeared as a creative and honest way of communication and expression of some of my deepest feelings. It was pleasant company, and in the future it won’t let me forget some of the most important things I’ve learned.
Sharon Carter
United Kingdom
I have been a brain tumour patient for two years. I have an intracerebral plasma cell granuloma deep in my brain that is inoperable. I have had plasma exchange, rituximab therapy, seven months of chemotherapy and I just finished radiotherapy. Nothing to date has improved the tumour. In this time, I have had to retire from my 32year career as a nurse due to the problems it has left me with. I have a great family and continue to remain positive for the future and hope to stay as I am if not to improve. I suffer with headaches, spatial awareness problems and memory problems. Painting is something I do to relax.
“Water’s Edge” is my interpretation of a calming riverbank, it being allowed to grow as it wishes.
Jan Watson
United Kingdom
Title of creative work: “’Only a Fool” Medium: sand carved glass
Before my craniotomy my neurosurgeon informed me to be prepared that I may not be able to return to working as a stained glass artist with my wife, Dawn, in the business we started together. Little steps at a time and a lot of support from Dawn and we are functioning as a team again although a little slower than before. Yes, the world of stained glass can be hectic at times.
Only a fool, tempting though it possibly is, upon the vague chance of coming across an angel’s trumpet, one is best advised to leave well alone and don’t tempt fate!
Jami Millon
United States
Title of creative work: “Resting Cardinal” Medium: coloured pencil and pigmented ink
I was diagnosed with grade 3 oligodendroglioma in 2018 and am currently undergoing immune checkpoint inhibitor treatment. Cardinals symbolize courage and all cancer patients have remarkable courage.
Sharon Carter
United Kingdom
Title of creative work: “Beach Before the Storm” Medium: acrylic paints on canvas
I have been a brain tumour patient for two years. I have an intracerebral plasma cell granuloma deep in my brain that is inoperable. I have had plasma exchange, rituximab therapy, seven months of chemotherapy and I just finished radiotherapy. Nothing to date has improved the tumour. In this time I have had to retire from my 32 year career as a nurse due to the problems it has left me with. I have a great family and continue to remain positive for the future and hope to stay as I am if not to improve. I suffer with headaches, spatial awareness problems and memory problems. Painting is something I do to relax.
In “Beach Before the Storm”, this is a different feel to a tropical beach before a storm comes in.
Sandra E Ball
United Kingdom
Title of creative work: “A Favourite at the Zoo” Medium: Watercolour
I underwent surgery to remove a rare form of brain tumour, vestibular schwannoma, in May 2011. I always say I am a walking miracle as it was well stuck to the facial nerve, as well as the hearing and balance nerves.…Being a member of my local zoo I love to go to watch the animals/wildlife progress. It is always a source of inspiration and a good exercise regime as it covers acres. The Magellenic Penguin (the smallest of the penguin species) fascinates me. I have watched the chicks grow up into adults and when the zoo is quiet they always come near to see who is looking. This painting is one of several I have done of the penguins. It is an exercise in tones and also textures. The rocks are more colourful in my painting than in real life and I think make for an interesting background.
Joseph Lee
Singapore
Title of creative work: “Origami Mystic Dragons” Medium: foil paper
This piece of origami is very elegant and it’s a special design with wings that can extend and contract at will. It means a lot to me as it showcases my determination to finish my own workpieces and not giving up on anything or any time.
I have double vision and I don’t really know how I’m able to just use my left eye to focus through my daily life and make origamis.
Jenny Hyslop
United Kingdom
Title of creative work: “Port Isaac, North Cornwall” Medium: acrylic on canvas
I was diagnosed with anaplastic astrocytoma, grade 3, in May [2021]…This came about out of the blue after worsening migraines and becoming more unstable on my legs and suffering falls… I have been able to enjoy my art while being home unable to work. It allows me to forget about the treatment and situation and my life-changing challenges…This is an acrylic painting of Port Isaac, north Cornwall in the United Kingdom. I find painting absorbs my concentration and prevents me worrying about my brain tumour. I love to paint for people and for raising money for charity and for the brain tumour support group.
Maureen Daniels
Canada
Title of creative work: “Frosted Fox” Medium: digital photograph
For over 30 years I have had the privilege and honor to work in the neuro-oncology community, in my own institution, within Canada and internationally. I am inspired daily by the courage and strength of my patients and their families and by the dedication and energy of the neurooncology community around the world.
My weekdays are spent in a busy, demanding environment, and on the weekends, my partner and I are fortunate to escape to our Fox Lake retreat in beautiful Muskoka, Ontario, Canada. We woke one morning to this magical, frosty scene in early November. I took this photograph with my phone and no filters added. Mother Nature doesn’t need any help to create beauty!
Matthew Mallett
Australia
Title of creative work: “In Search of Affection” Medium: photograph
in 2007 I was diagnosed with a low grade oligodendroglioma tumour. Since then, I have undergone chemo, further surgery to debulk the tumour, radiation, more chemo. Am still here and thankful!
This image was captured at the Werribee Open Range Zoo (Australia) of a new born cub looking for affection from his father. The pleasure on the cub’s face makes one feel totally at ease and trusting of the surroundings.
Wow Warli by Megha
India
Title of creative work: “Yin Yang Pattern in Warli Art Form” Medium: hand painted on a wall with acrylic colour
I depicted this yin yang through my Warli painting, which shows the balance in life. This personally motivates me and generates a lot of positivity always. Warli is a tribal art form, which is originally from Maharashtra in India. Warlis are the oldest tribes of India.
Nick Dawes
Australia
Title of creative work: “Brain l” Medium: oil on canvas
‘Brains’ was a series completed in 2014 as a part of my year 12 VCE Art portfolio submission. The series focused on my older brother Connor who passed away in 2013 from an ependymoma brain tumour. The works in the series explore his battle with brain cancer, depicting his struggles and anguish in a bright contradictory tone reflecting his personality throughout his journey.
‘Brain I’ depicts Connor’s vibrant and colourful brain being pulled apart by his brain cancer. The work shows the brain in transition where it is unknown whether it could slide back together or be pulled further apart.
Jaya Pal
India
Title of creative work: “Girl with Little Friend” Medium: paint and pen on paper
This drawing shows the friendship of a little girl with her pet and how an animal and a human being can be connected with each other.
I am 18 years old and was diagnosed with a brain tumour in 2020 with symptoms of headache and seizures.
Ben Winters
New Zealand
Title of creative work: “Miracle Baby Over the Moon” Medium: photograph
My life was flipped upside down when I was diagnosed with GBM in May 2017…Brain cancer has definitely taught me to value life and to make the most of those special moments with family and friends… This image of my amazing seven-month pregnant wife, five year old boy and unborn child was photographed by me at a public moon exhibition in my hometown of Upper Hutt, New Zealand. This was a brilliant opportunity that could not be missed… When I was diagnosed with GBM in May 2017, I was told I would be lucky to live two years, and we would never have any more kids due to the chemo and radiation treatment. After having my fertility tested in 2019, It was confirmed there was next to no chance of having any more babies. This was something we as a family struggled with and I carried guilt for as we had planned more. But on 23rd July 2021 I held in my arms my healthy miracle baby. Guess you could say we were over the moon.
Junko Shimazu
Japan
Title of creative work: “You Are Not Alone” Medium: digital illustration
My sister was diagnosed with oligodendroglioma in 2020. My sister is my best friend, and I was devastated when I learned about her situation… Because of its rarity, the journey to battle this disease often feels lonely for patients and family members. I created this artwork to remind myself that we are not alone, and collective efforts, understanding, and knowledge from each person will lead us to more awareness of this terrible disease. Most importantly, I strongly believe that scientists can help gather everyone’s experiences and to help provide a brighter future for patients and their family members…
Lynda Tse
New Zealand
Title of creative work: “Wanda the Friendly Witch” Medium: wooden clothes peg, fabric, beads, mohair, button and other decorative materials
In 2006 I was diagnosed with a glioblastoma (GBM). Designing and crafting these small peg dolls played a huge part in my healing process. I was able to focus on creating these little characters which I collectively called “Peglets”…I have found making peg dolls a way of escaping the harsh reality of having a brain tumour. However, I am lucky to be here and in good health, other than a few issues with my balance which the neurologist has put down to long term radiation effects…Peglets are wooden peg dolls which I design and hand-craft in Wellington, New Zealand.
Abhilasha Azad
India
Title of creative work: “Money Box from Protein Powder Box” Medium: painted plastic
My husband has been affected by a brain tumour, grade 3 oligodendroglioma and has been diagnosed and treated one year back. He has completed his chemotherapy and radiotherapy in September.
I have made a money bank from a protein powder box. Best use of waste box, which we threw in the garbage. And it has beautiful painting of ancient Mughal Dynasty.
Jenny Hyslop
United Kingdom
Title of creative work: “St Ives, Cornwall” Medium: acrylic on canvas
I was diagnosed with anaplastic astrocytoma, grade 3, in May [2021]…This came about out of the blue after worsening migraines and becoming more unstable on my legs and suffering falls… I have been able to enjoy my art while being home unable to work. It allows me to forget about the treatment and situation and my life-changing challenges…This is an acrylic painting of St Ives, Cornwall in the United Kingdom. I find painting absorbs my concentration and prevents me worrying about my brain tumour. I love to paint for people and for raising money for charity and for the brain tumour support group.
Dawn Watson
United Kingdom
Title of creative work: “Autumn Leaves’” Medium: stained glass
My husband was diagnosed with an astrocytoma with IDH mutation in August 2019. This came completely out of the blue to us, sending us on a rollercoaster of emotions and uncertainty… To add to the worries of the future, we also work together running our own stained glass studio which we have done for the past 38 years. When my husband was told he might not be able to do the work he loves after his surgery, it was shattering. Thankfully, two years on (2021) he can, regaining his skills so our creations together continue ... perhaps at a slower pace. I am sure that this creativity has been good therapy; a distraction for the mind and physiotherapy for the body one day at a time…
Sandra E Ball
United Kingdom
Title of creative work: “Yonder – Talla Water in the Scottish Borders” Medium: Watercolour
I underwent surgery to remove a rare form of brain tumour, vestibular schwannoma, in May 2011…‘Yonder’, a watercolour of Talla Water in the Scottish Borders, was inspired by the first break away - as soon as the COVID rules allowed - to see our eldest son and granddaughter…It was May 2021 when we made this trip and I captured a photograph from the car window for reference. It was such a peaceful spring day with the sun coming out to create the light and shadows I tried to depict. This is a big painting for me, 14” x 21” which I created in watercolour using an upright easel. It was a challenge as it is not my normal way, I usually have my paper on a board with a slight incline for the paint to run downwards, often creating the first washes with the board flat… I used some visioneering in the process trying to simplify the painting yet still showing a realistic landscape with some depth…
Brijesh Deshpande
India
Significance My pen seemed sad for the past few days she said, “Everyone writes so shallowly these days!” Wittily, I said, “So, you want them to write deep, ha?” She laughed and said, “What I wish is not to write shallow, write contextual and be significant”, You’ll see the whole world will start falling into place, Everything around will start falling into place, “How I wish, they knew, what being significant really meant?” Title of creative work: “Significance” Medium: poem
I was diagnosed with a brain tumour four years ago. Poetry is a passion of mine. I write in Hindustani, a combination of Hindi and Urdu. I would like to create more awareness of brain tumours and spread the word amongst youngsters and help heal a lot of patients suffering from brain tumour and the dreaded monster ‘cancer’.
Fighting with any such thing is easy, in my opinion. It just requires two things: a positive attitude and humongous conviction. As for the rest, everything will automatically fall in place.
Sharon Carter
United Kingdom
I have been a brain tumour patient for two years. I have an intracerebral plasma cell granuloma deep in my brain that is inoperable. I have had plasma exchange, rituximab therapy, seven months of chemotherapy and I just finished radiotherapy. Nothing to date has improved the tumour. In this time I have had to retire from my 32year career as a nurse due to the problems it has left me with. I have a great family and continue to remain positive for the future and hope to stay as I am if not to improve. I suffer with headaches, spatial awareness problems and memory problems. Painting is something I do to relax.
My painting is of a place to think, feel and breathe.
Jaya Pal
India
Title of creative work: “The Lord Shiva” Medium: painted paper
This is the symbol of an Indian God that represents Lord Shiva in Hinduism. As the most powerful of deities, temples are built in his honour in India.
I am 18 years old and was diagnosed with a brain tumour in 2020 with symptoms of headache and seizures.
Yaron Butterfield
Canada
Title of creative work: “The Elephant and the Camel” Medium: acrylic on canvas
The brain cancer I was diagnosed with, GBM, has affected me in many more ways than I ever would have thought, positive and negative… During treatment, I had a dream. In front of me were a few stalls, like where horses are held and I stood at one of them. There was an elephant facing me. He was calm with a very peaceful look and then he began to flicker into a camel. Now I was facing a camel who stood in front of me just as calmly as the elephant. Then it morphed back to an elephant. Then back to a camel. The cycle continued and I then heard a deep voice that seemed to come from above telling me that everything would be fine. The next day I researched how to interpret a dream of an elephant: “Positive, a request has been heard.” Then, I looked to see what it said about a camel: “Saved from death.” I was convinced that this was a message from a higher source. My website is http:// yaronbutterfield.com
Audrey Thibeau
United States
Title of creative work: “Lila Thinks” Medium: acrylic wool on monks cloth using a loop pile tufting gun
My glioma has brought me through a few horrific surgeries and eventually chemo and radiation. My beautiful brain has told itself how to re-learn to talk and read, and gains to work on its short-term memory day by day.
My brain is so powerful it creates wonderful people to produce beautiful art out of thought and consideration. This lovely piece is done by Lila Khan and is a wonderful gift for me.
Suhani Rajput
India
I [am 16 and] was diagnosed with a craniopharyngioma which impacts my emotions, well-being, quality of life and physical health. It also impacts my family life as well as my studies.
These flowers are made up of paper and they are arranged in a circle. These are also used in Indian festivals for decoration like Duwali, Dussehra etc.
Giuseppe Raschiani
Italy
Title of creative work: “Bright Energy” Medium: acrylic on canvas and vinavil
I had an attack of epilepsy at Christmas 2020. Suddenly, in the hospital after an MRI I was told that I had a brain tumour that was likely glioblastoma at stage IV. I had brain surgery in less than five days later then I began a standard treatment plan with radiation and chemotherapy. Today, I feel good overall. I have so many moments where I get to enjoy life with my family, my son and my friends.
These paintings are an expression of my energy that manifests itself in colours and shapes. The title says the meaning. It is energy that gives light, wellbeing, positivity, good humor and love. I give you the energy of my brain and my love. I love living.
Cathie Short
United Kingdom
Title of creative work: “Our Jack Russell ‘Charlie’” Medium: pastel on paper
My eldest daughter has been diagnosed with a brain tumour this year in May, with a grade 3 anaplastic astrocytoma. She had two emergency operations in May and has undergone radiotherapy and now started chemotherapy. It has been a worrying time but as a family we work together and have a shared interest in art and painting.
This is an original painting of our Jack Russell - Charlie.
Yaron Butterfield
Canada
The brain cancer I was diagnosed with, GBM, has affected me in many more ways than I ever would have thought, positive and negative. I see the beauty in so many things. In my role in genomics, I analyze DNA sequence data from cancer patients to help find disease causing mutations and chromosomal alterations related to specific cancers. Having been through my own cancer journey and being aware of certain mutations that can affect prognosis, I came up with this piece of art. There’s a simple beauty in DNA and how changes in its structure can lead to disease. My website is http://yaronbutterfield.com
Ellen Yates
United Kingdom
I was diagnosed with an acoustic neuroma in April 2015. Since that time, I have regular MRI scans. I suffer from tinnitus, balance issues, anxiety/ depression, brain fatigue/fog, memory loss to name a few of my symptoms. But crochet helps me ‘zone out’ and be in the moment.
I was asked to crochet two cushion covers of a wildflower meadow, using various shades of gold, cream and yellow with a dragonfly, bee and butterfly. I decided on Spring/Summer and Autumn/Winter as themes. I edged both cushions in the same colour and both have the same wooden fence. I did a lot of research beforehand into flowers, etc.
Wow Warli by Megha
India
Title of creative work: “Contemporary Imaginary Bird” Medium: hand painted on handmade paper with acrylic colour
This is a contemporary art form. I was once travelling by train and saw a leafless tree though the train window and there my imagination took over, then it turned into this beautiful painting.
Leon Muzadzi
Zimbabwe
Title of creative work: “Paida” and “Love and Hope” Medium: charcoal pencil
My name is Leon Muzadzi. I’m 19 years old and I live in Zimbabwe. I am a volunteer with the Zimbabwe Brain Tumour Association (ZBTA). I am currently retaking my Advanced Level studies after the delays caused by the COVID-19 virus pandemic. I volunteered to draw a picture of Paida Mungoshi from a portrait and I also drew two dolphins doing a happy leap in the water depicting a heart shape over the rising sun. The rising sun symbolises HOPE whilst the heart shape symbolises LOVE.
Paida’s mother, Christine Mungoshi, said: “Paida would have turned twenty-nine this year. She was always bubbly, even when things were not so rosy. It was only when her illness became much worse that the brightness in her eyes dwindled. Paida lost her battle to a brain tumour after a five-year fight when she was twelve. She fought with both bravery and naivety.
During the early onset of her illness, Paida was given a dolphin snow globe by a family friend, and she was blown away by the dolphins. She loved everything about dolphins such as pictures and videos.
Just recently, we were discussing about this with a young Zimbabwe Brain Tumour Asssociation (ZBTA) volunteer, 19-year-old Leon Muzadzi, and the idea of the drawings was born. Leon is an upcoming young Zimbabwean artist.
When I saw the pictures, tears came flooding into my eyes. I felt both pain and joy. Memories flooded back after seeing the picture of Paida with a shy smile on her face, next to the awesome picture of Paida’s favourite animal, depicting love and hope symbols. I feel both LOVE and HOPE are forever.
Nick Dawes
Australia
‘Brains’ was a series completed in 2014 as a part of my year 12 VCE Art portfolio submission. The series focused on my older brother Connor who passed away in 2013 from an ependymoma brain tumour. The works in the series explore his battle with brain cancer, depicting his struggles and anguish in a bright contradictory tone reflecting his personality throughout his journey.
‘Brain II’ depicts Connor’s battle with brain cancer in a series of horizontal bars. Connor’s healthy brain transitions through different phases of disruption until it is unrecognizable and glitched to black.
Lynda Tse
New Zealand
Title of creative work: “Hydrangea the Fairy” Medium: wooden clothes peg, fabric, diamantes and other decorative materials
In 2006 I was diagnosed with a glioblastoma (GBM). Designing and crafting these small peg dolls played a huge part in my healing process. I was able to focus on creating these little characters which I collectively called “Peglets”…I have found making peg dolls a way of escaping the harsh reality of having a brain tumour. However, I am lucky to be here and in good health, other than a few issues with my balance which the neurologist has put down to long term radiation effects…Peglets are wooden peg dolls which I design and hand-craft in Wellington, New Zealand.
My Verdict...
In my ears, Death whispered, “Come with me, I’ll get you a new life” Far away, Lifeline was convincing me, “Stay, I’ll mould the remainder, graceful” I let go of both and said, “Betrayers! No need of any of you, I’ll find happiness beyond you” A long moment of silence, Both seemingly hailed towards me, With eyes shut and silent gesture of the hand, I stopped them both, and said, “Please, the ‘Exit’ is behind you!”
Brijesh Deshpande
India
Title of creative work: “My Verdict” Medium: poem
I was diagnosed with a brain tumour four years ago. Poetry is a passion of mine. I write in Hindustani, a combination of Hindi and Urdu. I would like to create more awareness of brain tumours and spread the word amongst youngsters and help heal a lot of patients suffering from brain tumour and the dreaded monster ‘cancer’.
Fighting with any such thing is easy, in my opinion. It just requires two things: a positive attitude and humongous conviction. As for the rest, everything will automatically fall in place.
Rebekah Bagguley
United Kingdom
Title of creative work: “Joy” Medium: acrylics
I was first diagnosed with an astrocytoma , grade 2 in my frontal lobe in 2005, aged 27. I was fortunate to have surgery which removed almost all of the tumour and my recovery was almost complete apart from fatigue and bouts of depression. In 2011 the tumour progressed into a cancerous anaplastic astrocytoma (grade 3) and my life was almost completely changed again. Painting helps me to live with these changes and appreciate the world around me.
This piece was painted for a wonderful, supportive friend who loves horses. I wanted it to be colourful, bold and full of energy. It energises me to look at it and I like to think of the horse being free and full of joy.
Tricia Ann Roloff
United States
Title of creative work: “Tahiti Days II” Medium: coloured photographic image
The trip I would’ve taken. After surgery I just wanted to go lay on a beach, but alas I had to go back to work. I believe recovery time is very important!
Jaya Pal
India
Title of creative work: “Ganesha” Medium: paint/pen on paper
Ganesha is an Indian God, and is one of the most important Gods in Hinduism. Ganesha is highly recognisable with his elephant head and human body, representing the soul and the physical.
I am 18 years old and was diagnosed with a brain tumour in 2020 with symptoms of headache and seizures.
Jan Watson
United Kingdom
Title of creative work: “’Noah’s Boat” Medium: sand carved glass
Before my craniotomy my neurosurgeon informed me to be prepared that I may not be able to return to working as a stained glass artist with my wife, Dawn, in the business we started together. Little steps at a time and a lot of support from Dawn and we are functioning as a team again although a little slower than before. Yes, the world of stained glass can be hectic at times.
I have always been fascinated by the movement of the seas. My ancestors were master mariners and I have always wondered how they endured the constant roll of the wind and waves.
Kate Winters
New Zealand
My son, Ben, was diagnosed with a grade four glioblastoma in May 2017. He was given two years to live and no hope for a future. With his positive attitude, he has fought the odds, his brain scans are still clear and he is still out there taking beautiful photos.
This painting, oil on canvas, is based on a photo taken by my son, Ben. It represents a cheeky New Zealand bird enjoying life in the sunshine, just as Ben is with his beautiful family, more than four years after his devastating diagnosis.
Suhani Rajput
India
Title of creative work: “Meaningful 1” Medium: papercraft with beads and mirrors
My creation is a paper flower, made up of colourful paper with decorative materials like beads, stones etc. It is used as decoration during festivals and other functions like marriages, etc.
Wow Warli by Megha
India
Title of creative work: “Dancing Scene in Warli” Medium: hand painted on a wall with acrylic colour
With dancing elephants and dancing Warli tribes, this artwork depicts festivities and celebrations.
Nick Dawes
Australia
‘Brains’ was a series completed in 2014 as a part of my year 12 VCE Art portfolio submission. The series focused on my older brother Connor who passed away in 2013 from an ependymoma brain tumour. The works in the series explore his battle with brain cancer, depicting his struggles and anguish in a bright contradictory tone reflecting his personality throughout his journey.
‘Tic Tac Toe’ depicts Connor’s battle with brain cancer as a simple kid’s game. Connor plays as the Os in his favourite colour of yellow where his brain tumour are the Xs in grey, the symbolic colour of brain cancer. The work aims to summarise his battle through the medium of one of our favourite games as small kids growing up.
Lynda Tse
New Zealand
Title of creative work: “Merlin the Wizard” Medium: wooden clothes peg, fabric, leather and other decorative materials
In 2006 I was diagnosed with a glioblastoma (GBM). Designing and crafting these small peg dolls played a huge part in my healing process. I was able to focus on creating these little characters which I collectively called “Peglets”…I have found making peg dolls a way of escaping the harsh reality of having a brain tumour. However, I am lucky to be here and in good health, other than a few issues with my balance which the neurologist has put down to long term radiation effects…Peglets are wooden peg dolls which I design and hand-craft in Wellington, New Zealand.
Rebekah Bagguley
United Kingdom
Title of creative work: “Waiting for the Hare – Bus A320” Medium: acrylics
I am a 16-year survivor of brain cancer and was first diagnosed at 27. I recovered from the surgery and treatment almost completely after seven years but then discovered it had returned as a grade 3 anaplastic astrocytoma. My hopes for my future career, to become a mother, to live independently disappeared and I have had to rethink and adapt my life post treatment with fatigue, huge weight gain, depression, and anxiety. I have found real pleasure in painting as it helps me to appreciate the world around me and freshen my mind…
Me and You There’s one who can save us all, For me it’s me and for you it’s you. There’s one who will be seen in all, For you it is me and for me it is you. There’s one who makes us dance in all, For me it’s me and for you it’s you There’s only one who resides in us all, In you, it is me and in me, it is you.
Brijesh Deshpande
India
Title of creative work: “Me and You” Medium: poem
I was diagnosed with a brain tumour four years ago. Poetry is a passion of mine. I write in Hindustani, a combination of Hindi and Urdu. I would like to create more awareness of brain tumours and spread the word amongst youngsters and help heal a lot of patients suffering from brain tumour and the dreaded monster ‘cancer’.
Fighting with any such thing is easy, in my opinion. It just requires two things: a positive attitude and humongous conviction. As for the rest, everything will automatically fall in place.
Suhani Rajput
India
This is a Mehndi design which is very popular in India. It is a very important ritual during marriage as the bride and other girls apply on their hands.
Daxa Lad
United Kingdom
Title of creative work: “Colourful Brain” Medium: flowers and oasis
I was diagnosed with schwannoma in 2013, and since then I have had six neurosurgeries… After all these surgeries I have been through part of my brain has given me creative skills such as designing cards, making jewellery and doing flower arranging, the one creativity I love most. In 2019 my son and I gave a presentation at a brain tumour event in the UK which was organised by Brain Tumour Support. I had an idea to use parts of the brain and build it up like a jigsaw using colourful flowers and joining the parts as one brain… We had a workshop organised with six groups of people. Each group was given oasis in the shape of a brain part. When all the parts were completed, we joined them like a jigsaw and made them into one brain.
Yaron Butterfield
Canada
Title of creative work: “Time – There Was, There is, There Will” Medium: pencil on paper
The brain cancer I was diagnosed with, GBM, has affected me in many more ways than I ever would have thought, positive and negative. One thing that gave me strength to heal from the horrible brain cancer was thinking of past moments where I was strong, full of energy, experiencing love and all the beauty I was exposed to. [In this picture] above the big hand on the bottom a man is falling looking down, a strong man is holding him and looking forward, and man behind/beside him with a dagger is looking up. Sometimes I imagine I am all three people at different stages in time. Once I was falling (the past, when I got cancer), I grabbed myself and tried to be strong (the present), and I moved forward, looking ahead and upwards (the future).
Carol Currie and Stu Leggett
Canada
Title of creative work: “Killarney Tree” Medium: bas relief sculpted painting
I was diagnosed with a brain lesion in 2013… As the disease has progressed, my increasing right-sided weakness and violent right hand tremors have eventually led to the complete abandonment of my dominant right hand and the subsequent switch to become an entirely left-handed painter…Through years of struggle and determination, my husband Stu Leggett and I have combined our love for each other with our artistic passions, reinventing ourselves and resuming our position within the art world…A video of my story can be found on YouTube - https://www.youtube.com/watch?v=DQMDbYdCmUc
Colin Oliver
United Kingdom
Title of creative work: “Lego® Car - Post Op” Medium: plastic Lego® pieces
Colin’s parents, Kathy and Gordon Oliver, said: “Colin was diagnosed with an astrocytoma brain tumour in 2004, age 24. Following neurosurgery, he wanted to exercise his newlyoperated-on brain as well as test his dexterity and hand-to-eye coordination… So he asked for some Lego® to be brought to hospital to see whether he could still fit together the very tiny plastic bricks and plastic accessories. Colin laboured over this little Lego® car for some time but was finally able to put it together. This little car represented a real triumph and hope for Colin, and he kept it on a shelf in his bedroom until he passed away, age 32, in 2011."
Full copyright of the design of this plastic car is acknowledged to belong to Lego® and not to the late assembler of the item.
Aristotle (384-322 BC), Greek philosopher and polymath
In 2021, the International Brain Tumour Alliance (IBTA) launched “Brilliance!”, its inaugural exhibition of creative works from the global brain tumour community. This event aimed to shine a brilliant light on the inspiring creativity and diversity of the international brain tumour community. As you have seen in the previous pages of the 2021 exhibition catalogue reproduced in this year’s Brain Tumour magazine, our community did not disappoint. The IBTA was overwhelmed by the enthusiastic response from patients, family members, friends, and healthcare professionals around the world who shared so many beautiful and moving works of art that included paintings, drawings, sculptures, glasswork and more. The beauty of the artworks speaks for itself, and the diversity, courage and strength of the international brain tumour community is truly inspirational. We would like to thank each and every one of our Brilliance! 2021 artists who have contributed to such an amazing collection of creative works.
With the wonderful success of “Brilliance!” in 2021, the IBTA is very pleased and excited to announce the launch of:
Patients, family members, friends, researchers and healthcare professionals of every discipline are once again invited and encouraged to submit their work to “Brilliance! 2022”. Submitted works can include pieces created especially for this exhibition, but may also include artwork created previously by eligible participants. To view the complete guidelines and instructions, along with the official submission document, please visit www.theibta.org
