WORLD SPINA BIFIDA AND HYDROCEPHALUS DAY The World Spina Bifida and Hydrocephalus Day (WSBHD21), taking place on October 252021, was an inspiring moment of celebrating and sharing information about Spina Bifida and Hydrocephalus across countries and continents both digital and in-person. The theme of this year was “Unlock Your Right to Health”. On this day, IF together with her worldwide members led an impactful awareness raising campaign on social media. IF launched a testimonial challenge and you can see the video on IF YouTube channels (https://www.youtube.com/user/IFgloba lorg). Moreover, IF organised a main conference and several side events also together with IF members. In addition, IF members organised specific activities such as other campaigns on social media, advocacy towards national parliaments, musical concerts, and local conferences in collaboration with healthcare professionals and other experts.
CONFERENCE UNLOCK YOUR RIGHT TO HEALTH For the occasion of the World Spina Bifida and Hydrocephalus Day 2021, IF organised as the main event a conference ‘Unlock your Right to Health’ (see here). This conference was opened by the IF President Cato Lie who highlighted the UNCRPD which states that people with disabilities have the right to the highest attainable standard of health as per article 25. He also pointed out the importance of protecting the rights of individuals with SBH and called worldwide actors to: “Unlock Your Right to Health”. Subsequently, the IF Secretary General Dr Sylvia Roozen, chair of this main event, emphasised October as the SBH awareness month. She also pointed out the importance of advocating and promoting the rights of persons with SBH while underlining the strengths of the SBH community in reaching these goals.
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