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Talk 13: Update from Spina Bifida Foundation India

Sneha Sawant

Spina Bifida Foundation India

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Background: The Spina Bifida Foundation is registered as a non-profit organization in India. The foundation works for prevention and awareness of Spina Bifida and rehabilitation for adults and children with Spina Bifida as well as their families.

Method: The Spina Bifida Foundation India organised the following activities:

Results: In the presentation, updates of those above mentioned activities will be shared.

Conclusion: The Spina Bifida Foundation India has already planned upcoming activities including:

Out-reach program in Jawahar, Maharashtra; Meeting Maharashtra State Health Minister for taking lead in starting awareness campaign, Birth Defect Registry, and Fortifying food with Folic Acid and Vitamin B12 to prevent NTDs; Meeting with Food Safety and Standards Authority of India (FSSAI) Scientific Committee for increasing standards of Folic acid and Vitamin B12; Webinar on “The disabled can have it all: Pregnancy and motherhood”; Free counselling for Spina Bifida individuals; Treatment of Mast. Rohit Belkar from Jawahar camp; Treatment of Baby. Ariz Ansari.

Seminar on “Neural Tube Defects and it’s prevention” in Senior College; Out-reach program and CME in Kathmandu, Nepal; Out-reach program and CME in Cochin, Kerala; Out-reach Program and CME in Ballari, Karnataka; Out-reach program and CME in Andaman.

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