Club JCC News - 2012/13 by JCC MetroWest

Club

JCC MetroWest Special Needs Services

A Community of Opportunity Leon & Toby Cooperman JCC Ross Family Campus 760 Northfield Avenue West Orange, NJ 07052 973-530-3400 www.jccmetrowest.org Joyce Goldstein Co-Chair, Board of Trustees JCC MetroWest

Larry Gotfried Co-Chair, Board of Trustees JCC MetroWest

Alan Feldman Chief Executive Officer JCC MetroWest

important notes

Issue 10 | 2012–2013

message from the director Dear Participants, Caregivers, Families and Professionals,

s I reflect upon the past two years as Director of Special Needs Services, I am honored to share with you that our department has grown tremendously, both in numbers and in the variety of services we offer. Our five-day-per-week Adult Day Program boasts increased participation and the addition of many new exciting activities. Attendance at our popular, quarterly Adult Sunday Dances has increased exponentially. Consistently, registration has been filled for Saturday evening and Sunday out-of-facility trips. Although our participation has increased, group ratios and size, along with individualization of services, has remained intact; we strongly believe that our participants thrive in a smaller setting and with low staff ratios. None of these accomplishments would be possible without our wonderful, highly-qualified, and specialized staff; we are truly fortunate to benefit from their dedication, caring, reliability, and professionalism. In addition, we are thankful to our many volunteers and supporters, whose contributions are most appreciated.

Continued on page 7

• To register for a program, please call 973-530-3536 or email us at specialneedsservices@jccmetrowest.org

Fall program registration begins: August 9, 2012 Fall programming begins: Wednesday, September 19, 2012 Winter/Spring registration begins: December 13, 2012 Winter/Spring programming begins: January 27, 2013 • An intake interview is required prior to enrollment in programs. • All programs take place at the Leon & Toby Cooperman JCC in West Orange unless otherwise noted. • JCC Special Needs staff includes Certified Teachers of the Handicapped, social workers, therapists, and fitness and other professionals with extensive background working with individuals with special needs. • JCC Membership is not required. Many programs work on a fee-for-service basis. We offer inclusion opportunities in all JCC course offerings. One-on-one “shadow” professionals are available for an additional fee. • JCC MetroWest is an approved New Jersey Department of Developmental Disabilities (DDD) Real Life Choices/ Self-Determination Provider.

inside this issue club jcc junior....................................... 2 club jcc teen......................................... 3 club jcc adult................................... 4–6 Featured article: Random Thoughts…Resources That Can Help contributed by Cherie Castellano condensed by Rebecca Gallanter. ..............................

complimentary workshops and lectures............................................ 8 other programs and events............... 9

Featured article: A Special Needs Parent’s Wish List

by Terri Mauro . ................................................

Featured article: Please Don’t Say to Parents of a Child with Special Needs...........................................

Featured article: Meet Our Program Assistant: Amy Koehler...........

Featured article: Caregiving for the Young

courtesy of Homewatch CareGivers ..........................

why i love the jcc by Greg Weinberger . .......................................... 16

club jcc junior ages 2–15 years

Early Childhood Programs | ages 2–4 years

Club JCC Junior Swim & Yoga | ages 8–12 years

One-on-one “shadow” aide/counselor provided for success in a typical preschool classroom and/or camp group, located at the Cooperman JCC. Interview and acceptance into program required. Additional fee.

A sports & recreation program targeted to children diagnosed with Asperger’s syndrome and ADD /ADHD. Children participate in a group swim session and yoga. Supervised by professionals with extensive experience with individuals with special needs.

For further information, please contact the Early Childhood office, 973-530-3479 or EarlyChildhoodWO@jccmetrowest.org

Camp Friends Inclusion Program at Camp Deeny Riback, Exploration Camps, and Triple Threat Theater Camp pre-K through 6th grade

Thursday afternoons: 4:30pm–6:00pm Fall Session: 9/20, 9/27, 10/4, 10/11, 10/18, 10/25, 11/1, 11/15, 11/29, 12/6, 12/13, 12/20, 1/3, 1/10, 1/17, 1/24 16 Thursdays | Member: $480 • Guest: $560 Winter/Spring Session: 1/31, 2/7, 2/14, 2/28, 3/7, 3/14, 3/21, 4/4, 4/11, 4/18, 4/25, 5/2, 5/9, 5/16 14 Thursdays | Member: $420 • Guest: $490

One-on-one “shadow” counselor provided for success in a typical camp group, located at the Cooperman JCC or Camp Deeny Riback in Flanders, NJ. Experienced leadership staff and on-going supervision of shadows. Intake interview required for new participants. Additional fee. For further information, please contact the Camp office at 973-929-2901 or camps@jccmetrowest.org

Club JCC Junior Sunday | ages 5–18 years Sunday social recreation program including arts & crafts, structured games, music therapy, Jewish education, and swim. Supervised by professionals with extensive experience with individuals with special needs. Snack and beverage included. Sunday afternoons: 12:30pm–3:00pm Fall 2012 Session: 9/23, 10/14, 10/28, 11/18, 12/2, 12/9, 1/6 7 Sundays | Member: $245 • Guest: $280 Winter/Spring 2013 Session: 1/27, 2/3, 2/10, 3/3, 3/17, 4/7, 4/21, 5/5 8 Sundays | Member: $280 • Guest: $320

Optional supervised bus transportation from AM Friendship Circle program on coordinating program dates: Fall Session | Member : $45 • Guest: $50 Winter/Spring Session | Member : $45 • Guest: $50

We are proud supporters of personal care services to the Club JCC Junior Program Certified, experienced & compassionate caregiving for all ages • Hourly or live-in support in your home or residence • Personalized care • Long term or post surgical assistance • Certified caregivers in Essex, Morris & N. Union Counties

(973) 810-0110

Margo Weill, MSW, Dir. of Client Relations Karen Frank, RN, BSN Dir. of Client Care Nursing Larry Aronson, Owner www.HomewatchCareGivers.com/Essex-County-NJ

| JCC MetroWest Special Needs Services

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AUTISTIC THERAPY Winter/Spring Session: 1/31, 2/7, 2/14, 2/21, 2/28, 3/7, 3/14, 3/21, 3/28, 4/4, 4/11, 4/18, 4/25, 5/2, 5/9, 5/16, 5/23, OCCUPATIONAL 5/30, SOCIAL ANXIETY ABA ABA 6/6, 6/13, 6/20 MUTISM AUTISM 21 Thursdays | Member: $630 • Guest: $735

Club JCC Teen Sunday | ages 13–18 years

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17 Thursdays | Member: $510 • Guest: $595

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11/15, 11/29, 12/6, 12/13, 12/20, 1/3, 1/10, 1/17, 1/24

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Thursday evenings: 6:00pm–8:00pm

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AUTISM A fitness program including yoga and swim, targeted to teens ASSESSMENT with PHYSICAL EVALUATION FLOOR TIME ADHD Asperger’s syndrome and ADD/ADHD. Swimsuit/towel required plus ADHD ANXIETY BEHAVIOR FLOOR TIME comfortable clothing for yoga. Supervised by professionals with ANALYSIS ABA THERAPY ABA extensive experience with individuals with special needs.

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ABA Club JCC Teen Fitness Club | ages 13–18 EVALUATION ANALYSIS PHYSICAL

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Daily summer travel program for teens and young adults. Our teens spend their day in the local community as well as many interesting locations in the NJ/NY metropolitan area. Trips include New York City museums and attractions, the Jersey shore, summer fairs, and more. Supervised by certified teachers and special education professionals. Intake interview required for participation.

Red Bulls vs. Columbus Crew, Red Bull Stadium

July 30–August 24

10/13/12 12/15/12

A Chorus Line at Paper Mill Playhouse, Millburn JCC Teen Theater Performance

Leon & Toby Cooperman JCC • West Orange 4, 3, 2, 1 week options available

Cooperman JCC, West Orange

2012 fees:

1/13–5/13

To be announced

4 weeks | Member: $2650 • Guest: $3050

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Member: $65 per Saturday night Guest: $75 per Saturday night

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OCCUPATIONAL AUTISM ABA AUTISTIC ANXIETY CallSOCIAL to schedule a free consultation ASSESSMENT ADHD

TRAINING EVALUATION Teen FAMILY Tracks Travel

An offsite social recreation program that provides teens with special needs the opportunity to learn and practice life skills in the community. Activities take place at local theaters and entertainment centers. Admissions and transportation to/from JCC and venue included. Supervised by professionals with extensive experience with individuals with special needs.

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• Financial aid/grant applications 761 SOCIAL RiVeR aVenue, lakewood, nJ ADHD MUTISM • Individualized case management confidential phone # 732.833.3723 PHYSICALwww.BRainBuildeRSnJ.oRg ABA ASSESSMENT ASSESSMENT • Onsite and home services EVALUATION

Club JCC Teen Saturday Night | ages 13–18OCCUPATIONAL years

Saturday evenings, 6:30pm–9:00pm (times may vary)

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BrainBuilders SELECTIVE MUTISM

• Most insurances accepted MUTISMRachel SoRotzkin, MS BcBa OCCUPATIONAL OCCUPATIONAL SPEECH ABA

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Member: $45 per Sunday • Guest: $50 per Sunday ABA

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Winter/Spring 2013 Session: 1/27, 2/10, 2/24, 3/3, 3/17, 4/14, 4/28, 5/19 MUTISM

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Fall Session: 9/30, 10/14, 10/28, 11/4, 12/16, 1/13

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Sunday afternoons, 1:00pm–4:00pm (times may vary)

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An offsite social recreation program that provides teens with EVALUATION FAMILY TRAINING ABA ASSESSMENT FAMILY TRAINING special needs the opportunity to learn and practice life skills in SPEECH SPE ABA ABA FUNCTIONAL FUNCTIONAL the community. Activities take place at local restaurants, theaters, SELECTIVE MUTISM ABA THERAPY ANXIETY SELECTIVE MUTISM ABA THERAPY AN FLO AUTISM ANXIETY AUTISTIC ANXIETY AUTISM bowling lanes, entertainment centers, etc. Lunch and admissions EVALUATION EVALUATION ADHD ADHD included in fee. Supervised by professionals with extensive experience ABA ABA ASSESSSMENT ASSESSSMENT MUTISM MUT with individuals with special needs. FAMILY TRAINING FAMILY TRAINING Enhancing child dEvElopmEnt

3 weeks | Member: $2175 • Guest: $2475 2 weeks | Member: $1550 • Guest: $1750 1 week | Member: $825 • Guest: $925

For 2013 pricing and additional information, please contact specialneedsservices@jccmetrowest.org or 973-530-3998

www.jccmetrowest.org • 973-530-3998

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club jcc adult

*JCC MetroWest is an approved New Jersey Department of Developmental Disabilities (DDD) Real Life Choices/Self-Determination Provider. Approved programs include the Adult Day Program along with most weekday and weekend events.

ages 18 and over

Club JCC Adult Day Program* | ages 21 and over This five-day-a-week program for young adults focuses on life skills activities both onsite at the JCC and in the community. Activities include but are not limited to music, yoga, aerobics /strength /cardiovascular training, swimming /swim instruction, nutrition/calorie awareness, health awareness, social skills, food preparation, pre-vocational skills training/volunteerism, money management, community negotiation, current events discussions, and communication. *Approved Real Life Choices /SDDS provider through the NJ Developmental Disabilities Division (DDD)*. Supervised by professionals with extensive experience with individuals with special needs. Chris Sokolewicz, Certified Teacher of the Handicapped Program Coordinator, Adult Day Program Five days per week/M–F • 9:00am–2:00pm Ongoing, in session year-round

Member: $80 per day • Guest: $85 per day *JCC MetroWest is proud to serve as an approved Real Life Choices/Self-Determination provider via the New Jersey Developmental Disabilities Division (DDD).

Mondays: Summer 2012: 6/25, 7/2, 7/9, 7/16, 7/23, 7/30, 8/6, 8/13, 8/20 Fall 2012: 9/10, 9/24, 10/1, 10/8, 10/15, 10/22, 10/29, 11/5, 11/12, 11/19, 11/26, 12/3, 12/10, 12/17, 1/7, 1/14 Winter/Spring 2013: 1/28, 2/4, 2/11, 2/25, 3/4, 3/11, 3/18, 3/25, 4/1, 4/18, 4/15, 4/22, 4/29, 5/6, 5/13, 5/20, 6/3, 6/10, 6/17, 6/24 Tuesdays: Summer 2012: 6/26, 7/3, 7/10, 7/17, 7/24, 7/31, 8/7, 8/14, 8/21 Fall 2012: 9/4, 9/11, 9/25, 10/2, 10/9, 10/16, 10/23, 10/30, 11/6, 11/13, 11/20, 11/27, 12/4, 12/11, 12/18, 1/8, 1/15, 1/22 Winter/Spring 2013: 1/29, 2/5, 2/12, 2/19, 2/26, 3/5, 3/12, 3/19, 4/2, 4/9, 4/16, 4/23, 4/30, 5/7, 5/14, 5/21, 5/28, 6/4, 6/11, 6/18, 6/25 Wednesdays: Summer 2012: 6/27, 7/11, 7/18, 7/25, 8/1, 8/8, 8/15, 8/22 Fall 2012: 9/5, 9/12, 9/19, 10/3, 10/10, 10/17, 10/24, 10/31, 11/7, 11/14, 11/21, 11/28, 12/5, 12/12, 12/19, ½, 1/9, 1/16, 1/23 Winter/Spring 2013: 1/30, 2/6, 2/13, 2/20, 2/27, 3/6, 3/13, 3/20, 3/27, 4/3, 4/10, 4/17, 4/24, 5/1, 5/8, 5/15, 5/22, 5/29, 6/5, 6/12, 6/19, 6/26 Thursdays: Summer 2012: 6/28, 7/5, 7/12, 7/19, 7/26, 8/2, 8/9, 8/16, 8/23 Fall 2012: 9/6, 9/13, 9/20, 9/27, 10/4, 10/11, 10/18, 10/25, 11/1, 11/8, 11/15, 11/29, 12/6, 12/13, 12/20, 1/3, 1/10, 1/17, 1/24 Winter/Spring 2013: 1/31, 2/7, 2/14, 2/21, 2/28, 3/7, 3/14, 3/21, 3/28, 4/4, 4/11, 4/18, 4/25, 5/2, 5/9, 5/16, 5/23, 5/30, 6/6, 6/13, 6/20, 6/27 Fridays: Summer 2012: 6/29, 7/6, 7/13, 7/20, 7/27, 8/3, 8/10, 8/17, 8/24 Fall 2012: 9/7, 9/14, 9/21, 9/28, 10/5, 10/12, 10/19, 10/26, 11/2, 11/9, 11/16, 11/30, 12/7, 12/14, 12/21, 1/4, 1/11, 1/18, 1/25 Winter/Spring 2013: 2/1, 2/8, 2/15, 2/22, 3/1, 3/8, 3/15, 3/22, 3/29, 4/5, 4/12, 4/19, 4/26, 5/3, 5/10, 5/17, 5/24, 5/31, 6/7, 6/14, 6/21, 6/28

Adult Day Program Daily Schedule Daily schedule subject to change

MONDAY

TUESDAY

WEDNESDAY

THURSDAY

FRIDAY

9:00am–9:30am

Meet and Greet/ Daily Schedule Review

9:30am–10:00am

9:00am–10:00am

Current Events Discussion

10:30am–11:15am

10:00am–10:30am

10:00am–11:30am

Yoga

Cardio Workout

Aerobics & Strength Training

Cardio Workout

Swim/Swim Instruction

11:00am–11:30am Gymnasium Sports

11:30am–12:00pm Aerobics & Strength Training

10:30am–12:30pm

10:30am–12:00pm

11:30am–12:00pm

Into the Community: ShopRite/Luncheon Out

Into the Community: Volunteer/Prevocational Activities

Nutrition Round-Up

12:00pm–12:45pm Sports Medley in Gymnasium

12:00pm–1:00pm

12:30pm–1:00pm

12:00pm–1:00pm

Lunch at Café or Bring Your Own/ Self-Directed Activities

Sort Groceries/ Change for Swim

Lunch at Café or Bring Your Own/ Self-Directed Activities

Lunch at Café or Bring Your Own

Meal Preparation/ Lunch/Clean-Up

1:00pm–2:00pm

Music & More

Swim/Swim Instruction

Music & More

Yoga

Karaoke Fun

| JCC MetroWest Special Needs Services

Wednesday Blend* | ages 18 and over Socially appropriate behaviors and interpersonal skills are taught while using recreation and leisure time. This potpourri of activities includes: Game Night (board games, air hockey, video/ card games) which focuses on turn-taking, frustration tolerance, and communication skills as well as Music which emphasizes selfexpression, movement, and creativity. Other activities include cooking/nutrition, book/literacy exploration, crafts, and holidaythemed celebrations. Supervised by professionals with extensive experience with individuals with special needs. Snack included. Wednesday evenings: 6:00pm–8:00pm Fall Session: 10/3, 10/10, 10/17, 10/24, 10/31, 11/7, 11/14, 11/28, 12/5, 12/12, 12/19, 1/2, 1/9, 1/16, 1/23 15 Wednesdays | Member: $450 • Guest: $525 Winter/Spring Session: 1/30, 2/6, 2/13, 2/20, 2/27, 3/6, 3/13, 3/20, 4/3, 4/10, 4/17, 4/24, 5/1, 5/8, 5/15, 5/22, 5/29, 6/5, 6/12, 6/19 20 Wednesdays | Member: $600 • Guest: $700

Guys Night Out* | men ages 18 and over Activities focus on life skills development and include daily living skills, current events, nutrition, health, fitness, communication, and interpersonal skills. Supervised by professionals with extensive experience with individuals with special needs. Snack included. Monday evenings: 6:00pm–8:00pm Fall Session: 9/24, 10/1, 10/8, 10/15, 10/22, 10/29, 11/5, 11/12, 11/19, 11/26, 12/3, 12/10, 12/17, 1/7, 1/14 15 Mondays | Member: $450 • Guest: $525 Winter/Spring Session: 1/28, 2/4, 2/11, 2/25, 3/4, 3/11, 3/18, 4/1, 4/8, 4/15, 4/22, 4/29, 5/6, 5/13, 5/20, 6/3, 6/10, 6/17 18 Mondays | Member: $540 • Guest: $630

Girls Night Out* | women ages 18 and over Activities focus on life skills development and include daily living skills, current events, nutrition, health, fitness, communication, and interpersonal skills. Supervised by professionals with extensive experience with individuals with special needs. Snack included. Tuesday evenings: 6:00pm–8:00pm Fall Session: 10/2, 10/9, 10/16, 10/23, 10/30, 11/6, 11/13, 11/20, 11/27, 12/4, 12/11, 12/18, 1/8, 1/15, 1/22 15 Tuesdays | Member: $450 • Guest: $525 Winter/Spring Session: 1/29, 2/5, 2/12, 2/19, 2/26, 3/5, 3/12, 3/19, 4/2, 4/9, 4/16, 4/23, 4/30, 5/7, 5/14, 5/21, 5/28, 6/4, 6/11, 6/18 20 Tuesdays | Member: $600 • Guest: $700

Fitness Club* | ages 18 and over A fitness program including yoga and swim, targeted to adults with Asperger’s syndrome and ADD/ADHD. Swimsuit/towel required plus comfortable clothing for yoga. Supervised by professionals with extensive experience with individuals with special needs. Thursday evenings: 6:00pm–8:00pm Fall Session: 9/20, 9/27, 10/4, 10/11, 10/18, 10/25, 11/1, 11/8, 11/15, 11/29, 12/6, 12/13, 12/20, 1/3, 1/10, 1/17, 1/24 17 Thursdays | Member: $510 • Guest: $595 Winter/Spring Session: 1/31, 2/7, 2/14, 2/21, 2/28, 3/7, 3/14, 3/21, 3/28, 4/4, 4/11, 4/18, 4/25, 5/2, 5/9, 5/16, 5/23, 5/30, 6/6, 6/13, 6/20 21 Thursdays | Member: $630 • Guest: $735

Club JCC Adult Sunday* | ages 18 and over An offsite social recreation program that provides adults with special needs the opportunity to learn and practice life skills in the community. Activities take place at local restaurants, theaters, bowling lanes, entertainment centers, etc. Lunch and admissions included in fee. Supervised by professionals with extensive experience with individuals with special needs. Sunday afternoons, 1:00pm–4:00pm (times may vary) Fall Session: 9/30, 10/14, 10/28, 11/4, 12/16, 1/13 Winter/Spring 2013 Session: 1/27, 2/10, 2/24, 3/3, 3/17, 4/14, 4/28, 5/19 Member: $45 per Sunday • Guest: $50 per Sunday

www.jccmetrowest.org • 973-530-3998

club jcc adult

continued

Club JCC Adult Saturday Night* | ages 18 and over An off-site social recreation program that provides adults with special needs the opportunity to learn and practice life skills in the community. Activities take place at local theaters and entertainment centers. Admissions and transportation to/from JCC and venue included. Supervised by professionals with extensive experience with individuals with special needs. Saturday evenings, 6:30pm–9:00pm (times may vary) 9/15/12 10/13/12

Red Bulls vs. Columbus Crew Red Bull Stadium

A Chorus Line at Paper Mill Playhouse Millburn

12/15/12

Cooperman JCC, West Orange

JCC Teen Theater Performance

1/13–5/13

To be announced

Member: $65 per Saturday night Guest: $75 per Saturday night *JCC MetroWest is an approved New Jersey Department of Developmental Disabilities (DDD) Real Life Choices/ Self-Determination Provider

Adult Sunday Evening Dances | ages 18 and over Live DJ, pizza, snacks, beverages. Dancing, games, and social time. $14 per person admission fee collected at door.** Supervised by professionals with extensive experience with individuals with special needs. 9/23/12 End-of-Summer Beach Party • 6:00pm–8:00pm 12/2/12

Hanukkah Party • 6:00pm–8:00pm

2/2/13 Fourth Annual Dance-A-Thon Fundraiser 2013: New York State of Mind (in New Jersey!) $20 admission fee, includes light dinner and extended hours, 7:00pm–11:00pm. Giveaways, prizes, games. Snow date: 2/9/13. 4/7/13 Welcome Spring Party • 6:00pm–8:00pm 6/9/13

For more information contact: Lauren A. Klein

Coordinator of Rehabilitation Services

(973) 674-6330 x 237, Lklein@jvsnj.org Jewish Vocational Service of MetroWest

111 Prospect Street, East Orange, NJ 07017

www.jvsnj.org

Hawaiian Luau • 6:00pm–8:00pm

* * Admission fee applies to support staff in attendance; please contact Rebecca Gallanter, Director of Special Needs Services, for further information.

School-to-Careers Transition Services For Students with Special Needs

| JCC MetroWest Special Needs Services

Career Center for Teens & Adults with autism spectrum disorders

Message from Director Continued from front cover

The Department’s Third Annual Dance-A-Thon, Under the Sea, was very successful and exceeded its fundraising goals; this event provides a committed group of teenagers, individuals with special needs, family members, and professionals the opportunity to work together to create an awesome evening for all involved. In addition, area businesses and individuals continue to support this event generously. As a result, participants with special needs and their families are able to benefit from our many activities and programs at reasonable rates. Being a part of the Dance-A-Thon planning process was tremendously special and we look forward to our upcoming 2013 Dance-A-Thon: New York State of Mind (in New Jersey!) on February 2, 2013. The Club JCC newsletter includes listings of most programs for the year; however, e-mail updates along with announcements of new activities and events are available to you on a consistent basis. If you would like your name added to our e-mail list, please let us know by contacting me directly. The Club JCC Newsletter is supported by our advertisers, whom we would like to acknowledge for their continuous sponsorship of the Special Needs Department. Thank you for your support of the JCC and for contributing your ideas and perspectives. I look forward to many more successful years.

Rebecca Gallanter, MSW, LSW, Director, Special Needs Services 973-530-3478 • rgallanter@jccmetrowest.org

Random Thoughts… Resources That Can Help Information condensed by Rebecca Gallanter, Director, Special Needs Services

Special Moms and Special Needs

ccording to Erma Bombeck more than 25 years ago, special needs children need “special moms” and the match is most likely made in heaven. Statistics show that this “special” journey may take its toll with moms of special needs kids—many who experience: n n n n

higher than typical divorce rates poorer health additional work hours financial stress

They experience this in greater numbers than their counterparts with typically developing children. The all consuming role of motherhood is magnified with a special needs child and may require special help. At the Mom 2 Mom helpline program (1-877-914-MOM2), moms report their struggles which include family/ parenting issues, depression, anxiety, anger, and struggles with schools and systems that seem to often fail them. Our goal is to combat stress with “mom peers” to relate, normalize, and offer compassion having “walked a mile in their shoes” on the helpline and through support groups. Most moms have reported that their strength is found in the spirit of their special children who brave adversity as models of hope. These special moms are also examples in that they cherish the moments in between the trials of disability. Life “in between” the crisis makes a simple word, hug, normal lab report, tossing of a ball or laughter resonate joy for a special needs mom. “Although the world is full of suffering, it is also full of the overcoming of it.” —Helen Keller This column is contributed by Cherie Castellano LPC, Program Director, UMDNJ “Mom 2 Mom Program” 1-877-914-MOM2 ..... MOM! (1-877 914-6662). Please visit their website: www.mom2mom.us.com www.jccmetrowest.org • 973-530-3998

complimentary workshops and lectures Continuing the Journey This series of workshops, co-sponsored by MetroWest ABLE and JCC MetroWest’s Special Needs Department, assists families and caregivers with future planning to support the care of family members with special needs. ctober 25, 2012 O January 10, 2013 March 21, 2013

For further information and to RSVP, contact Rebecca Wanatick at 973-929-3129 or rwanatick@ujcnj.org

New Jersey Special Needs Registry for Disasters

“R

egister Ready” is a free, voluntary, and confidential web-based program designed to identify the needs of people who may find it difficult to get to safety in the event of an emergency.

People with access and functional needs (or caregivers on their behalf) are encouraged to register electronically, if possible, by accessing www.registerready.nj.gov. Alternatively, they can call New Jersey’s toll free 2-1-1 telephone service. This service will register people, offer free translation, and provide TTY services for the hearing-impaired. Emergency management officials view special needs registries from varying perspectives, ranging from concerns about the need for consumer expectations management to an increased sense of confidence about being able to track individuals in their communities who require specific assistance during adverse conditions. Registries can also become a focal point for building a dialogue about emergency preparedness with individuals who have access and functional needs or establishing a rapport with stakeholder groups who work with at-risk populations. Registries are a great tool to help emergency management officials enhance services to community members, but they are not the only tool. Planning, emphasis on personal preparedness, and the engagement of stakeholder groups who work with functional needs populations are also essential tasks aimed at building a program which serves vulnerable populations.

| JCC MetroWest Special Needs Services

other programs and events Fourth Annual Club JCC Dance-A-Thon 2013: New York State of Mind (in New Jersey!) Join us for this amazing fundraising event supporting Special Needs Services at the JCC! Organized by our Special Needs Committee, a dedicated group of teen volunteers, special needs participants, family members, and professionals. Light dinner, snacks, and beverages will be provided. Prizes, giveaways, games, and raffle. February 2 • 7:00pm—11:00pm Snow date: February 9

$20 per person or collect donations to reduce admission fee

Moms’ Support Group for Families with Special Needs Are you interested in a support group for moms of children with special needs? This group will offer: support and guidance, an opportunity to network with other moms, tips for advocating for your child and learning about the services and resources available in our community. For more information or to register, please contact Rebecca Wanatick at 973-929-3129 or rwanatick@ujcnj.org Meets the 2nd Wednesday of the Month 7:30pm–9:00pm Dates: 6/13, 7/11, 8/8, 9/12, 10/10, 11/14, 12/12, 1/9, 2/13, 3/13, 4/10, 5/8 No fee

Dads’ Support Group for Families with Special Needs Calling all Dads: Are you interested in forming a support group for fathers of children with special needs? This group will offer support and guidance, an opportunity to network with other fathers, ways to advocate for your child, services and resources available in the community. For more information or to register, please contact Rebecca Wanatick at 973-929-3129 or rwanatick@ujcnj.org Meets the 4th Wednesday of the Month 7:30pm–9:00pm Dates: 6/27, 7/25, 8/22, 9/26, 10/24, 11/28, 12/26, 1/23, 2/27, 3/27, 4/24, 5/22 No fee

MetroWest ABLE Babysitting Course— Learn to Babysit for Children with Special Needs Teens will be trained by a professional in the field of special needs. The training will include workshops, videos, and meetings with parents and professionals. Students will become certified in CPR and first aid, and learn about topics of rights and responsibilities, child development, behavioral challenges, caring for a child with special needs, handling emergencies, and more. Each participant will walk away from the program with a resource kit of materials/activities to guide them as a babysitter. They will also be required to fulfill 3 hours of practical experience at one of our programs supporting individuals with special needs. For more information, please contact Rebecca Wanatick at 973-929-3129 or rwanatick@ujcnj.org

Adapted Aquatics Introduction to swimming for individuals with special needs. Swim instructors have background and experience with persons with special needs. Contact the JCC Aquatics Department, 973-530-3422, for further information. Dates Ongoing

Personal Training for Individuals with Special Needs One-to-one personal training sessions for individuals with special needs ages 10 and over. Certified Personal Trainers and fitness professionals have background and experience with persons with special needs. Contact the JCC Fitness Center, 973-530-3416, for further information.

Jewish Disability Awareness Month Shabbat Shalem MetroWest synagogues will be joining other Jewish communities across North America to celebrate National Jewish Disability Awareness Month throughout the entire month of February. Join us and support meaningful inclusion of people with special needs and their families in every aspect of Jewish life, making MetroWest a community made “whole and complete” by all of its members. For more information about specific programs in our area, please visit www.metrowestABLE.org or contact Rebecca Wanatick, Community Coordinator, at (973) 929-3129 or rwanatick@ujcnj.org.

www.jccmetrowest.org • 973-530-3998

A Special Needs Parent’s Wish List

So you’d like to give me a gift? That’s nice. But the things I really need don’t wrap so well. Put away that paper, keep your card, and just give me one of these. All I really want is: l do A few nights out this year wil her sweater or DVD. me a lot more good than anot . Oh, yeah. Come clean my house

Babysitting:

House Cleaning:

Anytime. Do you do windows?

Teach my kid math. with flashcards. Help her write a paper. Drill him Give me a break. e. Someone like Sounding Board: Therapy? Expenfosiv to r hours? Priceless. you who I can call and gripe and doctors’ Back-up: Come to IEP meetings es su . And maybe a appointments with me. Bring tis

Homework Help:

baseball bat.

, needs My child wants to play with me e. You take a few to play with me all the dar n tim shifts, okay? hool one morning. Sleep: Offer to take my kids to sc m dressed and fed. I’m Also wake them up, and get the sleeping in.

Child’s Play:

| JCC MetroWest Special Needs Services

8 Please Don’t Say to Parents of a Child with Special Needs…

4 Yes! Say This!

Instead…

“God only gives us what we can handle; He must think you two are special parents.”

“ I’ll be over on Saturday to help do laundry/ wash dishes/scrub floors!”

U sing the word “Autistics” to describe people on the spectrum.

“ I don’t know what to say to you, but I love you.”

“ Remember, you have to take care of yourself, so you can take care of them.”

“ How are you doing?” (and actually listen to the answer)

“ He’ll speak when he’s ready to.”

“How can I help?”

W hen looking at my son using a reverse walker: “Wow, we need to get one of those for my (typical) 10 month old so he/she can walk better!”

“ Just wanted you to know I was thinking about you.”

“ I just made an extra dinner when I was cooking for us, can I drop it by now?”

“ They’ll EAT when they’re ready. They’re not going to starve to death.”

“ I know you had an appointment yesterday, how did it go?”

“ You are so much stronger than me… I don’t know how you do it.”

“ Want to drop your kids off with us for an hour or so?”

P ointing out that my non-walker shouldn’t be in a stroller, not knowing he can’t walk.

“ I’m on my way to the store, want me to grab you some milk or bread?”

That my child is just playing us.

“Need any help at bedtime with the kids?”

“ They just need discipline.”

“You two are amazing for adopting two special-needs children. They are SO LUCKY.”

“ I’m coming over to watch the kids right now for an hour so you can take a nap.”

“ We’re on our way to take care of the yard work.”

“Sounds like you’re doing a great job.”

“Here are some things that worked for us.”

amily and friends that downplay a F diagnosis. F or a child that has tics, saying, “Do you think she is doing it for attention?”

Anything that implies that sensory issues are not real or that we’re playing into their “fear.”

hen people say they are sorry or offer W condolences for a child with disabilities.

A ny comment that starts with “If you would just…”

“What’s wrong with her?”

“Don’t worry. She’ll catch up.”

“She’ll grow out of it.”

“ Is your other son/daughter ‘normal?’” or “Are your other kids ok?” (As if to imply the child with the disability is not?)

www.jccmetrowest.org • 973-530-3998

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Since 1969 Summit is synonymous with excellence in camping, school year programs and special travel. Summit Camp offers structure, support, excellent supervision and social skills development through the challenge of a full range of recreational, social, athletic, and water safety programs.

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Fourth Annual Dance-A-Thon

Club

JCC MetroWest Special Needs Services

New York State of Mind (in New Jersey!) Join us to raise awareness and funds for Club JCC Special Needs Services

Saturday, February 2 • 7:00pm—11:00pm Dancing Begins • 7:15pm Snow date: February 9

Leon & Toby Cooperman JCC | West Orange

$20 Admission Includes a serving of baked ziti, salad, and drink. Additional snacks available for purchase. Registration $20/Person or Raise Donations—Ask Us How! To register, visit www.firstgiving.com/jccmetrowest For more information, contact Rebecca Gallanter at 973-530-3998 (specialneedsservices@jccmetrowest.org). Real Life Choices Approved Provider State of New Jersey Division of Developmental Disabilities (DDD)

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ComeWhere experience Kings the right spice our is addednewly at preciselyrenovated the right time to bring out Livingston Store. the unbridled flavor delicately hidden within. At Kings, everything we With our expanded fresh produce department, high quality meats do is about helping you find this moment. Just take one step inside and & seafood, Coffee House with cappuccinos & iced lattes, expanded you’ll feel it. Kosher selections and our new Wi-Fi Café. Make Kings your facebook.com/kingsfoodmarkets destination alltoyour needs.online! We havefor plenty inspireculinary you in store...and We havewww.kingsfoodmarkets.com plenty to inspire you in store…and online!

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2 5 5 S O U T H L I V I N G S TO N AV E N U E • L I V I N G S TO N , N J

Caregiving for the Young Article Courtesy of Homewatch CareGivers

hen we think of caregiving, we typically imagine taking care of an elderly loved one who is afflicted with illness or old age. We very rarely consider that we could find ourselves caring for a young child—or grandchild—who is chronically ill/disabled. For families living with a special needs child, caregiving can become a full-time job.

Facing the Diagnosis “When you’re caring for a child who has functional loss, your initial dreams for that child feel like they have slipped away and may need to change. With the elderly, most can at least justify that they’ve lived a long life and fulfilled their dreams,” Pat Furlong, founder and CEO of Parent Project Muscular Dystrophy, says. “We all want the best for our children—for them to grow up, grow old, and enjoy their lives. When a catastrophic diagnosis is made, we don’t know what’s going to happen, and the plan we had in our heart has to change.” There are many types of disabling diseases afflicting the young, many of which have an early onset period—some as early as birth and infancy, others into childhood, the teen years, and early adulthood. Those that affect children and young adults typically begin with developmental delays in speech and motor skills in toddlers and children. As a disease progresses, fatigue may also present and more frequent use of assistive devices (wheelchairs, walkers, devices to assist breathing) are necessary. In the most severe cases, the affected individual will need permanent assistance from an in home caregiver. Some youngsters will be confined to a wheelchair or electric scooter.

Caring for the Young When caring for the young, Furlong suggests taking advantage of any and all resources available in your area, including state assistance and home care services. “If you’re providing care 24 hours a day, seven days a week, and are the person responsible, it can feel very overwhelming. You have to solicit help.” Although the same principles apply to basic care throughout the ages, there are some special considerations to keep in mind if you’re the caregiving parent or family member of a child. “It’s a never-ending process of accommodation and often re-accommodation as a child gets older and/or if the disease progresses,” Furlong states.

Creating a Safe Home Parents will need to make sure that home is a safe, healthy place for the child affected. Furlong notes that along with all of the larger adaptations there are some smaller considerations to remember: Can your child’s wheelchair fit underneath the dining room table so that they can join the family at mealtime? If your child is still walking, are there obstacles in the home that may lead to a fall? Can your child access the bathroom sink, so s/he can maintain independence in grooming for as long as possible?

Above all, Furlong suggests planning ahead, as there are many costs, insurance issues, and waiting lists for equipment that your child may not need now, but will eventually. Providing easy mobility so your child can maintain independence will most likely be the biggest challenge. Special equipment and additions, such as wider doorways, ramps, wheelchair-accessible rooms, and lifts may be needed. Muscle weakness can present sleeping problems, so speaking with a physical therapist about special beds and mattresses that will help your child sleep comfortably is often recommended.

Providing a Strong Support Structure “It’s common and certainly appropriate that when parents have a child who’s been diagnosed with a debilitating illness, their instant reaction is building a protective bubble,” Furlong says. “Parents want to protect their child in every way possible, and sometime this can lead to overprotection and discourage independence. Parents need to change that mindset.” According to Furlong, it’s important to prepare children to grow up, grow old, and be independent, regardless of a diagnosis. They need to be encouraged to speak up if they need assistance, do a task themselves if they’re able, and function in this world—to the best of their abilities—just as their siblings and peers do. Providing a family support structure that encourages this is imperative. Furlong says that simple things, like letting your child order his or her own dinner at a restaurant, expecting your child to obey all household rules, and having your child participate fully in school will take the focus off of disabilities, positively repositioning them to abilities.

Coping as a Family Disabilities affect the whole family, not just the individual diagnosed, and, before you know it, become the family’s main focus. It’s important to know that everyone will deal differently day-to-day with the implications, and that it’s OK for each family member to be on their own journey. “Parents need to be honest with children. They deserve a diagnosis,” Furlong notes. “It’s only fair that symptoms are named.” Finding an honest and acceptable way to talk with children about their physical experience is key to coping with—and accepting—the condition. Having a united and open household will give each family member the support and space to cope accordingly. Furlong advocates for plenty of family time that isn’t centered around the disability. “Have a family meeting, family movie night, or whatever it is that brings everyone together as a family.” She also suggests a weekly getaway for parents or the head(s) of the household, whether it’s one hour or one evening — as family leadership must be strong for the family to stay strong.

Homewatch CareGivers is a premier caregiver agency, providing home care, hospital discharge planning, and daily living assistance to individuals of all ages. Please visit www.homewatchcaregivers.com, where you can read articles related to home health home care news or download PDF home care resources, or contact 973-810-0110 for further information.

12 | JCC 14 JCC MetroWest MetroWest Special Special Needs Needs Services Services

Meet Our Program Assistant:

Amy Koehler

Celebrating 15 years of proudly serving individuals and families whose lives are affected by Autism Spectrum Disorders.

ASPEN of Essex County meets at the Leon & Toby Cooperman JCC on the 3rd Monday of each month, 7:30 – 9:30 PM. Contact Anita Finkel (973) 845 -‐2626 for more information or visit our website www.aspennj.org

hat friendly voice on the phone belongs to Amy Koehler, who joined our Special Needs Department in December 2011 as our Program Assistant. Amy, who also supports the JCC’s Department of Jewish Life, is a tremendous asset to our Department. Her background includes many years as an assignment editor for CNN in both Washington, DC and Atlanta, Georgia. Amy has traveled the world and met many well-known individuals, including former Presidents of the United States. Here at the JCC, Amy assists with administrative oversight of the Special Needs Department, program planning and outreach. The parent of a child with special needs, Amy brings a unique perspective and experience, which results in a perfect fit for our Department! Amy resides in Maplewood with her husband, Donald; daughter Danielle, 18; and son Ethan, 13. She enjoys observing Danielle as she rides horses and Ethan defending his soccer team’s goal.

Welcome to Club JCC, Amy! www.jccmetrowest.org • 973-530-3998

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JCC MetroWest 760 Northfield Avenue West Orange, NJ 07052 www.jccmetrowest.org

JCC MetroWest is a beneficiary agency of United Jewish Communities of MetroWest New Jersey.

Club

JCC MetroWest Special Needs Services

Issue 10 | 2012–2013

“ I love Club JCC because I get to hang out with my friends and go out to lunch sometimes. I get to work out, go swimming, and lift weights. The JCC is the best! “

by Greg Weinberger