Cu e MS
Foundation of New York Inc
®
AND THE LOMBARDI FAMILY
4T H A N N UA L
CANDLELIGHT GALA FRIDAY MARCH 28, 2014
Our Honoree: Jason DaSilva Director of the award-winning documentary “When I Walk”
The 4th Annual Candlelight Gala, hosted by the Lombardi Family and Cure MS Foundation of NY, promises to be a memorable event. You will be inspired and touched by Jason DaSilva, our person of honor.
“In 2005, 26 year-old Jason DaSilva was on vacation at the beach with family when, suddenly, he fell down. He couldn’t get back up. His legs had stopped working; his disease could no longer be ignored. Just a few months earlier, doctors had told him that he had multiple sclerosis, which could lead to loss of vision and muscle control, as well as a myriad of other complications. Jason tried exercise to help cope, but the problem only worsened. After his dispiriting fall on the beach, he turned to his Mom, who reminded him that, despite his disease, he was still a fortunate kid who had the opportunity to pursue the things he loved most; art and filmmaking. Jason picked up the camera, turned it on his declining body, and set out on a worldwide journey in search of healing, self-discovery, and love”. This is an excerpt from Jason’s website. His documentary “When I Walk” was recently featured at Sundance Film Festival. The Lombardi Family is committed to finding treatments and cures for Multiple Sclerosis and we are proud supporters of the Multiple Sclerosis Comprehensive Care Center at Stony Brook Medicine. Stony Brook Medicine is a world class teaching hospital where the science behind the MRI was discovered and where clinical research studies are conducted. This past year proved to be very monumental for our Foundation. With your help, we can continue to raise money for a ground breaking study to be conducted in collaboration with Hyperbaric Medical Solutions. This study has just received IRB approval, and will prove to be very promising in the future treatment of Multiple Sclerosis and the use of Hyperbaric Oxygen Therapy. It is through your generosity that this is possible. Last year we raised in excess of $100,000 and we hope to exceed that this year. This can only be done with your help. We hope you will partner with the Lombardi Family in the fight against Multiple Sclerosis. We are truly grateful for your support. Sincerely, Filomena Lombardi, CPA Executive Director, Cure Multiple Sclerosis Foundation of New York, Inc. CFO, Lombardi Management Corp. And a person living with Multiple Sclerosis
OUR HONOREE
Jason DaSilva
I love New York. When I was younger, the city was my playground. You could find me on any given weekend catching brunch with a friend at a café, going to an East Village restaurant for dinner, and then hopping the subway, headed to a nightclub in Chelsea. But at age 25, I was told I had multiple sclerosis, and I saw my freedoms slowly vanish. All of a sudden, I found myself using a walker—now, a motorized chair—and planning daily activities with precise schedules and strategies for getting from one place to another, trying to maintain some semblance of the spontaneous city life I loved to live. I wanted to capture this transformative experience—becoming disabled—in WHEN I WALK because I hadn’t seen it
done before, and people need to see how a degenerative disease impacts the lives of those living with it. The first scene in the film is of me on the beach with my family. I brought my camera along to film the get-together, but the footage we captured meant more than I could have imagined: I fell down, and couldn’t get back up. It was the very first time my MS made something in my life go completely awry, made itself visible and impossible to ignore. What was supposed to be a nice family vacation turned into the inciting incident. Soon after, and encouraged by my family, I chose to not ignore my MS but to turn my camera on it instead. I had made films all my life, so making a film about the progression of the disease seemed a natural way for me to process the journey.
The best ideas for finding a cure for MS are inspired by people like Jason.
Congratulations Cure MS Foundation of New York, Inc. 2014 Honoree Jason DaSilva, Director, Award-winning documentary, “When I Walk” H H H
Jason, we greatly admire the passion, determination and fortitude with which you continue to journey through life and filmmaking with multiple sclerosis. Your inspirational documentary, “When I Walk,” offers hope and understanding, while serving as a call for others to take action in the fight against this disease that affects the lives of thousands of children and adults. We are also deeply grateful to the Cure MS Foundation of New York, Inc. and the Lombardi family for supporting our continuing research in the treatment of multiple sclerosis at Stony Brook Medicine’s MS Comprehensive Care Center. H H H
Stony Brook University/SUNY is an affirmative action, equal opportunity educator and employer. Produced by the Office of Communications. 14021030H
THE CURE MS FOUNDATION OF NEW YORK IS PROUD TO BE AFFILIATED WITH STONY BROOK MEDICINE
The MS Comprehensive Care Center is dedicated to the care and treatment of individuals with Multiple Sclerosis. The team of neurologists, nurses and physical therapists at the MS Comprehensive Care Center are recognized as international experts. The Center offers comprehensive consultative services as well as ongoing care to patients and their families. Patients are also offered the opportunity to participate in a range of cutting-edge clinical trials and research studies only available at this institution on Long Island. Further, Stony Brook also offers the only Pediatric MS Center in the United States
Patricia Coyle, MD is the Acting Chair and Professor of Neurology, as well as the Director of the Stony Brook Multiple Sclerosis (MS) Comprehensive Care Center. Her areas of expertise include MS, neuroimmunology and neurologic infectious disease (in particular Lyme disease). She is known nationally and internationally for her expertise in these areas. In addition to lecturing around the country on neurologic topics, Dr. Coyle has a busy clinical and research practice and also maintains a research laboratory. Dr. Coyle has held multiple leadership positions at the American Board of Psychiatry and Neurology, the American Academy of Neurology, the American Neurological Association, and the National MS Society. She has served as an advisor to the Food and Drug Administration and the Institute of Medicine. Dr. Coyle has received research funding from the NIH and the National MS Society and is actively engaged in studies to understand and treat these diseases. Dr. Coyle attended Medical School at Johns Hopkins University School of Medicine in Baltimore, Maryland. She completed her Residency in Neurology at Johns Hopkins University School of Medicine in Baltimore and completed her Fellowship in Neuroimmunology & Neurovirology at Johns Hopkins University School of Medicine.
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To My Sister Barbara, Who I Love & Admire For Her Strength & Positive Attitude As She Battles This Disease Love, Your Brother, Paul
The Lombardi Family & The Cure MS Foundation of New York would like to thank this evening’s sponsors Lombardi Caterers Stony Brook Medicine Hyperbaric Medical Solutions Cardinal Car Service In The Mood DJ Productions Tri State Merchant Services, Inc. Empire National Bank L & S Packing Inc. - Paesano Enright Court Reporting Janson Supermarkets LLC Jamba Juice AHRC Mark J. Sneider T. Ardolino
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The 4th Annual Candlelight Gala Was Made Possible by the Lombardi Family