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Year 29 • issue 4
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FRIDAY • February 22 • 2019
12-year-old ‘Matthew the Brave’ inspires everyone around him By Jeff Morris Barrhaven Independent
His family and friends call him Matthew the Brave. It’s a cute nickname for a kid. But when you learn about his story and what he endures every day of his life, Matthew Paravan’s nickname suddenly rings with poignancy. The 12-year-old boy spent the first six weeks of 2019 in Roger Neilson House adjacent to CHEO. “He was in Roger Neilson House for pain management,” his mom, Stephanie, explained. Matthew had a seizure so violent that it dislocated his hip. The seizures are a part of his life – something he has to deal with not just daily, but several times an hour. “On a good day, Matthew will only have 30-50 seizures a day,” Stephanie said. “But on a bad day, he will have more than 200.” And through it all, Mat-
thew the Brave had only one request at Roger Neilson House. “He loves sports,” his mom said. “He loves the Ottawa Senators. The cable package there didn’t have all the sports channels. He loves to watch the games, and his favourite show is TSN Sports Centre with Jay and Dan. He couldn’t watch it when he got there.” Stephanie and her husband, Bruno, will be guests at the 12th annual Maddy’s Gala Saturday. Stephanie will pour her heart out to hundreds of unfamiliar faces at the emotionally charged annual fundraiser for Roger Neilson House, which is Eastern Ontario’s children’s hospice. “It will be my fourth year attending Maddy’s Gala,” she said with a nervous smile. Maddy’s Gala was started in 2008 by friends of the Otto family. Maddy Otto was a girl ready to go into kindergarten when she woke up from a
nap. According to her father, Dean, Maddy “just didn’t look right. She was kind of droopy, like something was wrong.” Dean and Jeanine Otto took their daughter to CHEO, and shortly after their arrival, Maddy had a seizure. She was diagnosed with an inoperable brain tumor. On July 17, 2007, Maddy Otto passed away at Roger’s House two days after being admitted into CHEO. She died peacefully, surrounded by a strong and loving family and close friends. Maddy’s Gala, originally planned as a one-shot deal intended to raise $10,000 for Roger Neilson House, has become the hospice’s major fundraising event of the year. Dean and Jeanine Otto and their daughter, Hannah, have been responsible for raising more than three quarters of a million dollars as a legacy for Maddy.
brave continues on page 3
Matthew Paravan, in wheelchair facing camera, get some help as he plays hockey at Roger Neilson House. The local 12-year-old has become a source of inspiration to everyone in the community as he fights through Perry-Romberg Syndrome. “Matthew The Brave”, who has lost most of his mobility and his ability to speak or eat solid food, sometimes has more than 200 seizures per day. He was admitted to Roger Neilson House for pain management after a violent seizure resulted in a dislocated hip.
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