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JUST Jordan Happy 1’st Anniversary “JUST Jordan”
Fri 1 Sept IN THIS ISSUE
Introduction Hello everyone and welcome to my Sept edition of “Just Jordan”. Can’t believe am saying this but we’ve been in publication now for a whole year, how time flies!!! My cover photo is to celebrate our 1’st birthday here at “JUST Jordan”. Again am elated with the response about my “JUST Jordan” group and newsletter, so thank you all from the bottom of my heart! It’s been wonderful having so many of you asking to feature various topics and responding with such wonderful feedback too, thank you. I’ve continued
with a similar layout but please do share any suggestions for next month’s! As always please do keep your feedback and messages coming, it’s a pleasure hearing from each and everyone of you! I’ve worked very hard on this Newsletter and I hope that you will enjoy and tell all your friends & family about “JUST Jordan”. You will find information on my “JUST Jordan” Facebook/Twitter page and how to contact me details are also enclosed. As always I look forward to your feedback, submissions and questions for The October edition.
See ya,
Jordan Fernando xx
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Sensory Room
Art Corner
“ “JUST Jordan” Poet – Kerry McGinn
Back at School
Autism & Marriage
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First airport sensory room in Europe!
The first airport sensory room in Europe for children and adults with neurodevelopmental challenges, including autism, has now officially opened at Shannon Airport in Ireland. The sensory room off the airport’s Departure Lounge will offer a relaxing environment for passengers ahead of their flight. It is tailored to be a soothing place away from the activity of a busy airport and comprises facilities such as an aquatic bubble tube, a wavy wall, colour changing LED’s, wheel projector and other things. Shannon airport introduced a customer care programme for people with autism and special needs last year so this is a huge step up and I for one congratulate them. Customers who need additional support can now get a wristband at the airport to ensure that they are immediately identified by staff and receive the special treatment they deserve, including being now brought to the sensory room. We all know that, for some of us, air travel and moving through an airport, whether it’s dealing with check in, security or boarding - can be a daunting experience. I normally have to bring a doctors note to the airport and let the airport know in advance that I have autism and most will help me through the process a bit quicker, but I still have to wait in a really busy and noisy area until boarding, having a quiet area to sit and wait would be perfect and I'd no longer have to worry or get stressed about flying. Details on the Airport’s assistance programme for passengers with autism and special needs are available at Passengers with Autism and Special Needs. Clearly Shannon airport have a special reputation for looking after its passengers, so let's hope all other airlines follow suite!
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Back To School
I never really minded the transition from summer back to school but I know for many on the spectrum it can be a really tough time. My Mum suffered terribly at the hands of bullies too so hated going back to school. I've been having a wee think as so many of you have written and asked about it, I thought I'd write a feature to help you out for next time round. So, to help ease the stress and smooth the transition for you and your family, I've provided 10 helpful tips for everyone involved in this stressful process. That’s me in the photo opposite on my first day at school.
1. Do your research First, find out as much as you can about your child’s next year. Will they need extra support? Is the school aware of their challenges? Can you meet with your child’s teacher(s) before school starts so you can set a game plan that is comfortable for everyone?
2. Dress for Success Does your school have a dress code? A calming deep pressure shirt which can be worn alone, under a vest, or under a school uniform; weighted or pressure vest to be worn in intervals or during mores stressful times; seamless under garments with no tags; backpack that is easy to manage; fidgets to keep in handy when needed.
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3. Is the School Sensory Friendly? If you child needs sensory breaks, is the school set up? Perhaps a meeting and a bit of “sensory room” education may not only help your child but many others. Does your child’s classroom have a Break Box? This may be a good time to suggest one for your child’s classroom. The teacher may really appreciate the gift! My school had a room (we called it F11) where a few of us who struggled with sensory issues could go where it was nice a quiet, if your school does not have anything like this in place then please do suggest it as it can make a huge difference. Be aware however we were left out of important things a lot and forgotten about so it may have it good and bad benefits.
My Mum pictured opposite at the tender age of 17.
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4. Put Some Energy in your Routines Take a look at your morning and afternoon routines. A bit of coordination and movement either before getting in the car or bus may prove highly beneficial. Do you have some things at home that you can set up? A trampoline? An obstacle course? A swing?
5. Start Minimizing Electronics They can be great for use at certain intervals but if your child is on them too much, it can cause a difficult transition back to school. Try setting scheduled times.
My final year at school!
6. Meal Planning Plan some menus that will boost up your child’s brain and immune system. If you send in snacks or lunch try some great sensory foods that are crunchy and chewy such as celery, apples and carrot sticks. Stay away from packing sweets, which can spike sugar levels and cause a mid day crash.
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7. Check out some Sensory Friendly School Supplies In addition to pencils and glue for school supplies, your child may benefit from adaptive paper, pencil grips or a wobbly cushion. These items may or may not be on your school supply list, so be sure to check with the school if you feel your child would benefit from using them.
8. Add Some Work to the Schedule Now Begin a little bit of scheduled “work time” during the afternoon for reading, math or other subjects.
9. Post the Schedule for the Day in the House Create a morning and afternoon schedule and post it up on the wall so everyone is aware.
10. Stay Positive!!! Keep an upbeat attitude about school starting and make sure you check in with your child’s teacher(s) a week or two after school starts if a meeting is not already in place. By following these simple steps I really hope this helps make your transitions smoother and successful next time round!! Happy Schooling!
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Indoor Skydiving I’d like to start writing about your hobbies and what’s available for anyone with a disability, whether mental or physical. Are there any Autist Andrenalin Junkies out their? Easy answer- Hell Yeah!
One thing I'd love to do before taking to the actual skies next year is the indoor Skydive, sadly however not one up here in Bonny Scotland but if you’re willing to travel down south then definately worth it. As you know my sister Aaron took on the charity challenge of jumping out of a plane from 10,000 feet in the air to support our cervical cancer survivor Mum Suzanne. It was such a thrill to watch her, and we were so inspired that both my Dad Kes and I decided we'd do it next year! So, watch this space. Am frequently asked on “JUST Jordan” are autists capable of this/that etc including being an adrenalin junkie, (and quite frankly I've been very close to losing the head) but I've remained calm everytime and always answered politely, yes. Bit of a rediculous question if you ask me but hey ho, you do get them!
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If your an adventure seeker with disabilities there are plenty of activities available to us, you just need to have a good old search online to find the best one for you. I realised I had no fear of heights when Mum and I took on an autism charity Zip Wire challenge, 150ft in the air from the Finnieston Crane over the River Clyde in Glasgow. Not only did I not find it scary but I absolutely loved the whole experience and wanted to do it over and over again. Activities like the indoor skydive centre are an ideal starting point for anyone with disabilities as individuals with physical challenges can safely try the free-fall simulation in a giant vertical wind tunnel, with the help of friendly, knowledgeable instructors and a supportive group of families and friends around you. And if you’re thinking that floating in a giant wind tunnel is nothing like jumping out of an airplane with a parachute, then I think you'll find you may be a tiny wee bit wrong.
You definitely get that sensation of flying, and I'll bet completely forget about your disability, whether you’re in a wheelchair or not. You’re just like everybody else. Those who have experienced it with a disability have often said, it’s so freeing and liberating. I asked a flight instructor at the Milton Keynes centre and was told “It’s very similar. Once you get in free fall, it’s the same thing.” Minus the nerves that come with stepping out of a plane, that is.
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Almost anyone between the ages of 3 and 103 can participate at the centre. They recently hosted a group that included a 3-year-old and his 87-year-old great-grandfather. You can’t fly if you’re pregnant or weigh more than 300 pounds (and if you’re over 260 pounds, you need to alert the staff). People with recent back, neck or heart problems should check with a doctor before signing up, and the skydive centre recommends no one with a dislocated shoulder get into the tunnel — the wind could dislocate your shoulder all over again. Common sense really. Fliers wear a special suit like my sister did, goggles and helmet and watch a short instructional video before entering the tunnel with an instructor (fliers with disabilities generally get two). Each flier gets two minute-long “flights.” In between sessions, the instructors — almost all are experienced skydivers — perform tricks, shooting up and down and around the wind tunnel, eliciting gasps from the onlookers. Just don’t expect to be able to do the things these guys do — they’ve put in hundreds of hours of flight time. I'd give it a go though hee hee! It’s not just for the flier but the families, too, it’s a pretty cool meeting place and I bet the atmosphere is always electric.
When you’re handicapped, you usually have to do things a different way from everybody else, but the indoor skydive allows you to do what everybody else is doing. Some of us feel we’re confined to our disability though, (we’re not) at events like these you are provided with an opportunity to do something you never thought you’d be able to do. I think we all have a little bit of that adrenalin junkie in us all. I've never let my disability stop me and I don't intend to start now, so regardless of your disability, if there is something you truly would love to experience and it's viable, then don't just think about it, go for it. Don’t let fear guide you, in the end you’re going to be so happy you did it. https://www.iflyworld.co.uk/locations/milton-keynes/
If you or a family member have an amazing hobby please do share with me at "JUST Jordan", I'd love to hear all about it and perhaps write about it in next month's edition. Drop me a line here or on Facebook: suzfernando@yahoo.co.uk https://www.facebook.com/groups/213071952427706/
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Kids Zone by Jordan Fernando
More in the Kids Zone next month!
Please do feel free to comment on my JUST Jordan Facebook page or twitter account. https://www.facebook.com/groups/213071952427706/ @JustJordan2016
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Autism & Marriage
Will I ever experience or be in a happy relationship‌
I've been lucky enough to have experienced it and I was very happy and have no regrets, during school I also went to college where I first met the man who was to be the first person I fell in love with. Like me he was on the spectrum and shared similar difficulties and it did not take long before we fell in love and started dating. It just didn't work out as we wanted different things in the end, that's not to say you can't stay friends or still have feelings for each other as for me that will never change and I wish him nothing but the best in his future, these things just happen. Sometimes for others though a relationship may break down due to a lack of support which can be readily available to you. Most of the support will come from family and close friends and a bit of research on the internet but never be scared to ask for help, guidance and support if you feel you need it. The National Autistic Society has a wealth of information and support readily available. Try not to overthink about finding the perfect partner as life has a funny way of working itself out if you just relax and enjoy the here and now, you may find your soul mate volunteering, at college, a new job or even sitting on a train who knows but that's the magic of life. Just go with it and let nature take it's course, am a great believer in what’s for you won't go by you and am just enjoying my life now in the present.
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Of course people with autism do form relationships, do go on dates, and do get married. There is always someone for everyone, but it may take a while to find that one person. Autistists are not all alike, there's a reason that many refer to it as the "autistic spectrum", these are people who share a certain cluster of personality-traits, but it's a massive mistake to believe that every autist is identical to every other autist. Two different autists may be as different from each other as two different neurotypical people are. Finding the right person to be in a relationship with or to marry, is a difficult task for many people regardless of if they've got a diagnosis on the autism-spectrum or not. Autism frequently brings challenges in communication and socialization, but there's no difference at all in the capacity for love; some autistic people (but not all!) may have more challenges with expressing emotions effectively, but that doesn't mean that they don't have them. Relationships with people on the spectrum are as varied as relationships with anyone else, they'll work best if both sides communicate in a way the other can understand and relate to, but that too is true for neurotypicals. (it's not as if neurotypical couples never fail to communicate!) Every autistic person is different as is every person on the bloomin planet, sometimes we find it easier to get along with a few people but not others and that's ok just go with it. Sometimes better to have a few brilliant people in your life than loads of people you don't have anything in common with. The solution to the problem of not having friends or a partner is to also realize that “not having them” isn’t necessarily a problem unless a person needs other people in order to get by. If this is the case, parents and professionals can give autistic individuals opportunities to interact with other autistic individuals, and to acknowledge that autistic individuals have their own social rules that may be odd or embarrassing to you but are not embarrassing to them. And once there is mutual understanding, we all-—will attain a much better theory of mind towards one another. I found a power of support and information through discussing my issues with The National Autistic Society, so if your struggling and seeking more information and support then please do consider giving them a call as am sure they will be more than happy to help and make suggestions about what could benefit you in the long run. You could also try contacting the Moving Forward team too - Moving.Forward@nas.org.uk Life is what you make it folks. Be happy in yourself before you can be happy with another person. Whatever you do don’t be so hard on yourself and don’t try to be something you are not.
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Worrying about what if's will only make you ill, read what my bestie Kerry says in her poem this month, focus on the present and do the things that make you happy and joyful, so just enjoy your life now, experience new things, spend time with your loved ones.......everything else will fall into place you'll see!
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Our regular JUST Jordan poem submitted by Autist Kerry McGinn 20, Stevenston, North Ayrshire.
Don’t Worry We have lots of worries don’t we? That’s certainly not a doubt Will I have a job? Will I ever get married? Will I have enough money? These are the things some of us constantly worry about As we grow up we begin to have a lot of worries in life Sometimes we can get so stressed that even the littlest things can get us upset I know what you’re thinking “Why are you writing about a topic like this??” Well I thought it was best to discuss it so I could tell you not to fret I have fears about my future and what will happen to me But I try not to let it rule my head So, I focus on the present and do the things that make me happy and joyful Rather than have thoughts that fill me with sadness and dread It’s normal to feel scared about the future sometimes And thinking about what will happen to you can be such a fright But what’s more important is what you do with yourself now As long you live life to the fullest with the people you love then everything will be alright
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Happy 1’st Anniversary “JUST Jordan”
Well would you Adam n Eve it lol (believe it) “JUST Jordan” is 1 year old, a big happy birthday to us!! I thought I’d celebrate the occasion with a selection of covers throughout the past year and just wanted to say a huge thank you to each and everyone of you who have supported me throughout this journey as without you my members and readers the newsletter and groups wouldn’t be the success they are today!
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You can read through all my back issues by following this link: https://issuu.com/justjordan19/docs Finally I just wanted to mention that our boy Angus has made a full recovery and back playing at his favourite place‌..yep the beach haahaa, thank you very much for all the get well soon wishes they were very much appreciated.
Photo features Angus at the beach having lots of fun !
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It’s a Challenge Many parents are used to their child being stared at but why should they have to put up with it ? Children are one thing, they don't know any better. But these are adults. People can look at autistic children and their mouths fall open and they just stare. And I think, didn't anyone ever tell them how rude that is? Many kids on the spectrum have severe autism and learning disabilities and often look like any other child, apart from when they behave oddly – for example, they might sit there banging two toys together – and sometimes make strange noises. Especially when they are younger, the might have a massive meltdown – at the supermarket checkout, for instance. (Yep been there done that)!! I'm guessing my Mum felt like she had 300 pairs of eyes on us – all watching, all judging us for being disruptive and difficult. This unfortunately even in this day and age, is what you are up against when you have a child with special needs: other people tend not to be very kind. Which is particularly awful because you've already got so much on your plate as it is. The odds seem stacked against you, and if people just gave you a bit of space and support, it would go a long way, right? But the opposite is still more often the case, you're struggling to start with, then people knock you down further. They make assumptions about you, they find you wanting, they treat your child as though he or she is dangerous or badly behaved. It can be soul destroying for a parent. Many parents have come to "JUST Jordan" to vent their feelings; and I realised that many parents are still struggling with these issues. I understand how incredibly hurtful some of the behaviour they were describing was, and know we should do something about it. It's about letting judgmental feelings go and stopping all the tutting from the sidelines. The truth is that it's incredibly tough to have a child with a special need such as ADHD or autism. In many cases, it's a 24/7 job fpr parents and to have to suffer the prejudices of others on top of that is just too much. How we look after our most vulnerable says a lot about our society and you don't get much more vulnerable than children with special needs. So we need to up our act a bit, as a society. A little bit of help goes a long way. A few members have told me that the biggest difficulty about life with a child on the spectrum is the negative attitudes of others, whether there child has moderate-to-severe autism or is largely
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non-verbal, dealing with the realities of this condition pale next to dealing with the unkindness many parents encounter from strangers who decide for themselves that there child is simply badly behaved with an inadequate parent. I remember my Dad telling me a story about when I was little, one day we were in the park, and another dad who was sitting on a bench pushed his glasses down to the end of his nose and sat there staring at me in evident disapproval. My dad was so angry and really felt like heading across to shout and swear at him (amongst other things am sure), but you can't do that. What do people think gives them the right to behave that way?
And the irony is, they think they're making a judgment on a child's bad behaviour. Another parent, says she has survived by growing a skin so thick she doubts anyone's disapproval could penetrate it. What I'd like people to understand, is that these are just beautiful innocent children, a parents pride and joy. It's not a bed of roses, but parents of children on the spectrum try to make the best of every day. What would be nice is if people were kind and considerate once in a while, and gave them a bit of space. We're dealing with issues that most people haven't got a clue about, and it's intrusive when you get someone coming up to you and saying, he/she needs a clip round the ear when one of them has a tantrum. Now that was definately one of my mums pet hates and she often did lose the head at ignorant people who had the nerve to comment.
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If I could ask people to do just one thing, it would be to stop staring. It's fine to do a double take, but once you've taken in that children have a disability, get on with what you're doing. It doesn't give you the right to gawp! Beyond staring, what angers many parents is when strangers ask about there child. They might say something like, what's wrong with him? Obviously the parent would probably reply by saying, nothing's wrong with him. He's fine.
It's not a tragedy, that many of us have a disability. We don't need pity; we're a very happy family and we just want to get on with our lives as do many families. A very wise person once said to me: 'You'll cope Jordan because you have to.' And I did and still am‌‌ There are around 770,000 disabled children in the UK and their families deserve better. A lot of it is about raising awareness about the reality of their situation, and busting some of the many myths. There's a myth that some disorders, such as autism and ADHD, are a fashionable excuse for bad behaviour and bad parenting. Wrong: these conditions are real and disabling and it is terrible that the parents and families of those with them are stigmatised. Another myth is that children with disabilities are given the help they need, when in fact, it's not nearly enough, how much parents have to fight for everything they're given and how long it takes even to get their child's condition diagnosed can be an absolute outrage. Parents often find there
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being ignored by the relevant authorities, or not taken seriously and often never heard even when they set up a meeting to discuss issues. Many parents spend weeks of social worker visits applying/fighting tooth and nail for some respite/support to determine whether they need any support, being made to feel that 4 hours a month was generous!! Many parents struggle to even get a proper diagnosis for their child because they tick some of the boxes but not all of them, far too many boxes if you ask me. One of our "JUST Jordan" members has a son who was diagnosed with Dyspraxia 7 years ago, they were told he had a more severe form with emotional and social interaction along with the gross motor skills severely lacking. They were also told he suffers from social stress and anxiety. However as he has Dyspraxia which is not under the autism spectrum they won't receive any support for him. Their beautiful son never leaves the house or has any friends and lives in his bedroom, his parents have asked for a second opinion on this and again were told yes he has social issues and suffers with anxiety. It was stated by the pycologist that on some occasions he has autism and others they were not sure so based on that they refused to give a diagnosis. Arrrggg. Frustrated dosen t cover it and dosen't help their son, who is now 15 and been struggling since he was 7. As for schools, well where do I start... fighting to get the right support in place when your disabled child meantime is suffering torment at the hands of bullies! Some kids who have autism and severe additional needs can access special schools. Those who have mild additional needs are forced into mainstream schools with little or no support and are struggling socially and emotionally. There are no special schools or units that cater for them. How do we support these families in need ? I could go on and on …………..
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What you can do to help make a difference: • You can't always tell when someone has a disability. Respond kindly, not judgmentally. • Don't make assumptions about a child's potential based on a label. People with disabilities have a range of capabilities, just like anyone else. • If people seem to be struggling, ask: "How can I help?" or "What do you need?" • Saying "at least it's not cancer" is not helpful. • If there is a child with a disability in your child's class, invite him or her over to a playdate, or include him or her on the birthday party list. Too many parents of children with special needs kids say their kids miss out on peer activities. • Contact The National Autistic Society for much needed information & support. • And one last time: don't stare. Really. Just don't.
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Useful contacts : The National Autistic Society Scotland - Address: 109 Hope Street, Glasgow G2 6LL Phone: 0141 221 8090 http://www.autism.org.uk/services/scotland.aspx https://www.facebook.com/autismscotland
Pupil Support Service Extended Outreach, North Ayrshire The Extended Outreach team work with pupils who need support outwith and within mainstream education to return to full time mainstream provision, to achieve both formal and alternative accreditation and to move onto sustainable post-school destinations. Support is tailored to meet individual needs. Pupil Support Service Extended Outreach Auchenharvie Academy Saltcoats Road Stevenston KA20 3JW Contact Details Telephone : 01294 324740 Email : philipgosnay@north-ayrshire.gov.uk Contact Name : Philip Gosnay - Senior Manager Family Lives Family Lives is a charity with over three decades of experience helping parents to deal with the changes that are a constant part of family life. As well as our core family support services offered through our helpline, and online chat, we also work in many different areas and offering tailored support around issues such as bullying, special educational needs, and support for specific communities. https://www.facebook.com/familylives http://www.familylives.org.uk/about/contact-us/
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Review Time Look out for special reviews next month right here in “JUST Jordan�. First Day at College By JUST Jordan
My Sister Aaron has passed all her school exams and off to College now studying Music/Guitar, am so proud of everything that she has achieved and will continue to achieve so I thought I'd write up a little feature providing some hints and tips about anyone out there who's also starting College. From chatting to people who are already in college they have offered some really good advice that I'm going to share with you all. As you've finished high school now and preparing for College, remember your social standing in the class hierarchy no longer applies whatever it was. It's a clean slate so don't act like you're the big man on campus, you’re a grown up now and it just won't be tolerated! Most new students are unprepared for the college-level coursework, financial responsibilities and freedom that they've been granted all of a sudden so try and find out as much as you can beforehand. Going to as many networking events as possible is just as important as going to class, seriously, friendships are forged and memories are made at these things, and it's a known fact that despite whatever disability you may have you'll still be talking about these events for years to come. I think getting to know your tutors is something most people don't realize is as beneficial as it is, this isn't just a 'know their names' but if you get to know them and even if your not top of the class or an A student, they will give you good letters of recommendation in the future because they'll know how much effort you've put in and that your a good person inside and out. Point to
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also note is if you get along well with them their office will always be open to you for advice, a chinwag, or even homework help. They are there to teach the material and help your understanding of the material. They are not there to tell you that you're special, that you can do anything, or spoon feed you answers so keep them on your good side. Student loans are no joke, so if you can stay at home with parents or crash with a friend it will cut your costs. Sadly so many students get into debt at such a young age, so if you can avoid it please do. These are no joke and you may find you spend many many years paying it off! If you have problems getting up in the mornings then do set a few alarms and make sure to get up when at least one of them goes off, perhaps put your alarm on the opposite side of the room, as it forces you to walk when you wake up in the morning, and by the time you get there you should realize you need to stay awake. Always go to class! You have to take responsibility for your own future now, your a young adult. It's up to you whether you want to sleep all day or be successful in life. Make the right choice, even if it's the hard one, it will benefit you in the long run. I understand it maybe really, really hard to do when you have horrid exams at 9 in the morning, but you just have to do it. Please don't make skipping class a bad habit either. When you skip class in college, not only are you wasting your money, but more importantly, you're wasting this amazing opportunity to LEARN! Now as we all know am an Autist but I do still try very hard at times to try new things, the same applies when your at College. Try doing things that you never would have done in high school. Do things that fall way outside your comfort zone. Do it because you can and because you'll never know what you love if you don't find it. Your probably thinking yeah easier said than done when your on the spectrum, but you won't know unless you at least give it a try, right? I grew up petrified to try new things or go out and do new things but as time has gone by am slowly gaining confidence in taking my own advice. Making new friends and working on your social skills can be really hard for us too, but your all young adults now and you may find striking up a conversation a lot less daunting and more enjoyable at College so go on give it a go!
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Remember College classes aren't like high school classes, they can be hard sure, but it will help to have friends in your class to study with and to help you out when you don't know what you're doing. This can be vital. Now if your anything like me you will at some points throughout the day need some alone time, so finding somewhere that will allow you even five minutes of quiet a day will keep you sane. When I was at school we had a seperate room we could go to where it was lovely and calm so find out if there is anywhere like that at College for you. And most of all, enjoy your time, make the most of it and look forward to a bright happy future! www1.ayrshire.ac.uk https://www.facebook.com/ayrshirecollege
Please do keep your requests coming in and I’ll do my best to feature them in next months edition of JUST Jordan. To submit your entries please send to : Jfernando_1997@hotmail.co.uk suzfernando@yahoo.co.uk
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Dear Jordan…… Ask me anything and I’ll be as frank with my views as Coleen is on Loose Women!! I can be your straightesttalking agony aunt, giving advice on relationships, bullying, early diagnosis and any life problems you may have…..xx Huge thanks to everyone who submitted questions for “Dear Jordan”
“Dear Jordan: **As an autistic teen I’m really scared about the future and how it will turn out. Will I get married, get a job etc. Do you have any advice to help me cope with my fears please?** I'm still young and I have the same fears as you. People with autism do get married but like everything it is a choice you make when that time comes. Relationships are not easy and the best thing you can do now is try to spend time with other people so you can cope with others and tolerate the social rules that come with having a relationship. Spend time with people who have similar interests or hobbies to you as this will make it easier for you to talk to them. There are a few blogs that you could look at and you could ask other teenagers what the do. Wrongplanet.net https://www.autismforums.com
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There are lots of useful projects now that support people with autism. Prospects employment support offer advice to people over the age of 16. They are run by the National Autistic Society. Your teacher could help you get in touch with them. While still at school, make sure you get very good career advice and that if you do decide to go to college or university that you agree a plan of support before starting your course. Don't wait until you are struggling. Student services will help put you in touch with the right people to help you at college. Some people have a mentor which they find very helpful as it keeps them on track with their work. Also remember that not everyone learns by going to college so talk to your guidance staff about what other options are available to you! Hope this helps ! Love Jordan xxx
“Dear Jordan�: **Do you have any helpful tips on how to deal with sensory overload?** Hi, dealing with sensory overload is something we probably all need to deal with at one point in our lives. However, if you have autism it is far more real and really impacts on you on day to day. Autism and anxiety are to be expected if you have autism. Sarah Henrickx is a consultant who does a lot of talks in relation to autism and this one relates to autism and anxiety. This links closely to your question about being overloaded. It's quite long but Sarah has autism so hopefully you can relate to some of it - it is a YouTube video and you can watch it herehttps://youtu.be/rPD_yzMHJls I also came across another article about sensory overload that you might find interesting. It's called Guide to living with sensory overload. I haven't read all of it yet but read it and see what you think - http://householdquotes.co.uk/sensory-overload/ My top tips areRecognise what might make you anxious and try plan for what you would do if things didn't go to plan! Take time out and find quiet spaces. It's ok to say no if you feel something might be too much for you but try! Use noise cancelling earphones- everyone wears ear phones these days so you won't look out of place. But the best ones you can afford. Try and work out what makes you anxious and before and after you do these things - have some quiet time doing something you enjoy.
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The National Autistic Society have some information on sensory overload http://www.autism.org.uk/get-involved/tmi/top-tips.aspx Here are some other personal storieshttp://www.autism.org.uk/get-involved/tmi/stories/sensory.aspx Hope this helps ! Love Jordan xxx
POLL: What would you like to read about in “JUST Jordan”? Let us know by contacting us via email: jfernando_1997@hotmail.co.uk or suzfernando@yahoo.co.uk
HOW TO SUBMIT AN ARTICLE. If you would like to submit an article, picture, ask a question or offer support in next month’s newsletter please contact me via email: jfernando_1997@hotmail.co.uk or suzfernando@yahoo.co.uk
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What’s On in Ayrshire
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Ayrshire Lego and Games Meet This is an informal group for home educating families in and around Ayrshire. Families with children of any age are welcome. We have a large communal Lego pile or children can bring along a game or activity. Tea, coffee, biscuits and a blether for parents. The Centre 7 Standalane, Stewarton., KA3 5BG Stewarton https://www.facebook.com/events/969100523231745/
Youth Vision Community Gathering Sep 16 at 11 AM to Sep 17 at 1 PM Threipmuir Reservoir EH14 7 Edinburgh, United Kingdom https://www.facebook.com/events/164479134103174/
Weekly Craft Club Friday, September 1 at 4 PM - 5:15 PM Arty Party Crafts 37 Rowanside Terrace, Ardrossan
Resourceful Career Centres in Ayrshire If you are due to leave school, or you have left already but you just don't know what to do next, then why don't you visit your local Skills Development Scotland (SDS) careers centre, where you can chat to one of their advisers who have a wealth of knowledge to help you. At your local SDS centre, a Career Advisor can give you up-to-date information and advice about what options that are out there for you, including Modern Apprenticeships, training and college courses, and employment opportunities. You can also get help with your Curriculum VitĂŚ (CV), application forms, cover letters, and much more. Depending on what service you need, you can make an appointment for an interview with a Careers Adviser OR you can simply just walk in and ask for help. For further information, or to arrange an interview, please use the contact details in our attached comments section. SDS: http://www.skillsdevelopmentscotland.co.uk/
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The National Autistic Society's Autism Hour!! Simple steps to an autism-friendly world: For autistic people, the world can seem full of too much information - and too little understanding. That's why The National Autistic Society has launched the Too Much Information campaign to challenge the myths, misconceptions and stereotypes that contribute to 79% of autistic people feeling socially isolated and 64% of autistic people avoiding going to the shops. More than 1 in 100 of the population have been diagnosed with autism. Along with their families, that's over 3 million customers waiting to be welcomed into your business. Over 99% of people have heard of autism, but only 16% of autistic people feel the public understand them. So, as part of the Too Much Information campaign and with the support of shopping centre owner intu, in the week of 2 October JUST Jordan is helping the charity by asking shops and businesses to organise a National Autistic Society Autism Hour and take simple steps for 60 minutes that lead to a more autism-friendly world:
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Turning down music and other noise: Overwhelming noise is a common barrier to autistic people accessing shops. Where possible, in-store tannoy announcements and other controllable noise should be reduced.
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Dimming the lights: Lighting, particularly fluorescent strip lighting, can be overwhelming for autistic people. Wherever possible, whilst maintaining a safe premises, lights should be dimmed or switched off.
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Sharing information about autism with employees: We don't expect everyone to be an autism expert but we believe everyone should understand autism. We'll provide information about autism to help your staff make your customers' experience a positive one.
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Sharing information about our Too Much Information campaign: In the week of October 2 we ask that you help increase the public's understanding of autism by sharing our Too Much Information campaign with customers.
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Taking part in The National Autistic Society's Autism Hour is straightforward but the changes shops and businesses make will have a big impact for autistic people and their families. And in turn the support and loyalty of this new customer base could really benefit businesses too. So, sign up for The National Autistic Society Autism Hour and access resources to help make a lasting difference for autistic people, their families and businesses.
http://www.autism.org.uk/get-involved/tmi/autismhour.aspx?utm_source=twitter&utm_medium=organic_post&utm_campaign=autism_hour
Bowling for 10s and overs Ten pin Bowling for 10s and overs. Small 'wimpy ' cafe on site. Price - about ÂŁ5 for 2 games and shoe hire Monday, September 4 at 11 AM - 2 PM The Garage - Leisure Complex 36-40 Grange St, Kilmarnock
Ayrshire's Biggest Monthly Craft Fair FREE entry :: 11am - 4.30pm With 40 stalls, thousands of quality hand-crafted items at affordable prices and new crafters every month it's a great place to buy unique gifts & cards, or just to treat yourself! Summer is here and even if the weather doesn't bring us sunshine we have plenty of beautiful handcrafted items to brighten your home and garden. As well as visiting the craft fair, you can take advantage of the many great shops, cafĂŠs and restaurants the beautiful seaside town of Troon has to offer. We have introduced a new information table at our events called "A Taste of Troon" where you can find details of some of the many great businesses in the town, so feel free to pick up their information & go exploring, it's a great day outđ&#x;šś Saturday, September 2 at 11 AM - 4:30 PM Troon Concert Hall 7 South Beach, KA10 6 Troon
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The Scottish International Air Show Site opens at 10 am – Flying display finishes at 6 pm The RAF Falcons parachute team will land on Ayr beach RAF Typhoon Fighter Yak 3 WW2 Russian classic fighter The Battle of Britain memorial flight – Lancaster Hurricane Spitfire Royal Marines role demonstration and beach assault featuring a Type 23 Frigate, P2000 inshore fast patrol craft, Offshore Raiding Craft, Merlin helicopter and a full detachment of Royal Marines The RAF Grob Tutor aerobatic display MiG 15 Cold War fighter jet Belgian Air Force F16 Fighting Falcon supersonic fighter jet Plane Sailing’s WW2 classic Catalina Flying Boat Captain Ham and the ever popular Wee Dram sea plane Flying display finishes at 6 pm September 2 – September 3 Sep 2 at 8 AM to Sep 3 at 6 PM The Low Green EH46 Ayr
Muddy Trials Reverse A Natural Obstacle Course Race , where the mud, fallen trees, and the terrain are the obstacles. Winners of best Mud 2017& 2016 at Scottish OCR. (Like a daytime muddier Deer Stalker ) 10K - Arduous, Gruelling, Unrelenting, Endurance, MUDDY 18 and over 5K - Challenging, Dirty, Muddy, Filthy Fun. 12 and over Muddy Mile - Mucky, Gloopy, Fun. For under 12s A great family event Sunday, September 10 at 9:30 AM - 3 PM Craufurdland Muddy Trials Craufurdland Castle, KA3 6BS Kilmarnock https://www.eventbrite.co.uk/e/muddy-trials-reverse-craufurdland-estate-10th-september-17registration-32952846852
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Colour Dash Our award winning Colour Dash event is returning to Eglinton Park on Sunday 10th September 2017. Registration will open on Monday 29th May 2017 with our early bird deal for one week only so don't miss out! Guaranteed to be the most colourful, fun 5k you’ll ever do! You don't have to run - you can walk, skip, jump, dance or even hop the distance - whatever takes your fancy. Just be prepared for a kaleidoscope of colour to rain down over you and your fellow runners, leaving you looking like a brightly- coloured rainbow. Lots of entertainment to get you warmed up beforehand and even more afterwards, when you can sit back and enjoy your well-deserved complimentary burger! Registration fees: 28th August - 3rd September - adults £30, under 16's £20, family of 4 (2 Adults, 2 under 16's) £60 We hope that each participant or family will raise a minimum sponsorship of £50, but will be extremely grateful for any amount raised. Please note this event is unsuitable for under 4's. Please see website for conditions of entry. To book online from the 29th May visit https://www.ayrshirehospice.org/how-you-canhelp/fundraising/events/2017-colour-dash/ or call our events team on 01292 288488 Sunday, September 10 at 11 AM - 3 PM Eglinton Country Park The Visitor Centre, KA12 8 Irvine, North Ayrshire https://www.ayrshirehospice.org/how-you-can-help/fundraising/events/2017-colour-dash/
Pirate Day Workshop Ahoy Matey!! It's International Talk Like a Pirate Day on the 19th of September so Craft daft are having a Pirate Day Workshop on Saturday the 16th of September from 1pm-3pm!! The workshop costs £10 per person with all craft materials & refreshments included in the price. Pre booking is required by calling us on 01292 280844 or message us here. A deposit of £5 is payable when calling or by PayPal craftdaftayr@gmail.com. Dress up is optional! For ages 3 yrs+. ☠☠☠ Saturday, September 16 at 1 PM - 3 PM Craft daft 2 Cow Wynd, Alloway St, KA7 1SP Ayr Autism Carers Group Largs Fri 1st Sept 9:30 AM - 11.30 AM Largs Library 26 Allanpark Street, KA30 9AG Largs
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Happy 1’st Anniversary “JUST Jordan”
Copyright of Miss Jordan Fernando Jfernando_1997@hotmail.co.uk suzfernando@yahoo.co.uk https://www.facebook.com/groups/213071952427706/ @JustJordan2016 https://issuu.com/justjordan19/ Disclaimer: All articles and information in this newsletter are of the writers own personal experiences and opinions.