Kidney Community Newsletter | Winter 2019

WINTER 2019

The Kidney Foundation of Canada – Quebec Branch

LYNE AND SANDRA, TWO VOLUNTEERS DEEPLY INVOLVED WITH THE FOUNDATION page 9

KIDNEY CAR

The Kidney Car Program accepts resaleable vehicles page 3

SPECIAL COLLABORATION

Lloyd Mangahas: the curative powers of physical activity pages 6 et 7

RESEARCH

Identity development in adolescents who have had a kidney transplant page 10

WORD FROM THE PRESIDENT AND THE EXECUTIVE DIRECTOR

THE CHALLENGES FACED BY HEALTH AND SOCIAL SERVICES MINISTER DANIELLE MCCANN Danielle McCann has held the important position of Minister of Health and Social Services for over 100 days now. We congratulate her on her appointment and hope to meet her soon to kick off our annual “government roadshow,” held every year to raise awareness among key Government of Quebec officials about the challenges people living with kidney disease face every day.

Advances Important steps have been taken over the past few years to help improve quality of life for people living with kidney disease. As a result, since 2010, the number of people awaiting a donor kidney has dropped by 46% and the average wait time for a kidney fell nearly 43%, from 706 to the current 493 days.

Furthermore, the Government of Quebec recently announced a new living donor program expected to double the number of kidney transplants carried out thanks to living donors. The Foundation is proud to have created this program.

With respect to access to treatments, we are pleased to announce that three establishments in the Gaspé and one in Baie-Comeau now have dialysis chairs, meaning that a dozen or so patients no longer have to travel long distances or even relocate just to have access to their treatments. We welcome these advances, which benefit patients, while pointing out that the most accessible dialysis is the kind that takes place at home. It’s also the least costly for the government. Again, we would like to express our sincere interest in working with the committee tasked with monitoring the health department’s dialysis guidelines in order that the appropriate resources be allocated to train patients to safely administer dialysis treatments at home and enjoy an improved quality of life.

Alarming trends In the past few months, a few alarming trends have emerged, leading the kidney community and its partners to rally around realistic goals in order to slow the shocking rise in the number of people affected by chronic kidney disease (CKD) in Quebec and better meet treatment-related needs.

Kidney disease is not only irreversible, it’s also skyrocketing—its incidence has shot up 60% in the past decade alone. And what doesn’t bode well for the future is that, while an estimated 550,000 Quebecers suffer from CKD, 470,000 of them are oblivious to it.

To meet the resulting needs, it is imperative that the lack of nephrology and dialysis resources be dealt with immediately and that access to treatments be improved.

Even though transplant wait times have shortened, they remain much too long. The experts agree: the shorter the wait time for a kidney, the better the outcome for those living with CKD. The ideal situation for

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The Kidney Community Newsletter WINTER 2019

those with failing kidneys is to avoid dialysis completely by having a transplant as their first treatment. We will continue working with kidney transplant stakeholders to increase the number of kidney transplants performed thanks to both deceased and living donors.

Lastly, in a 2018 report on the economic burden placed on Canadians living with CKD, the Kidney Foundation described how dialysis often leads to a loss of earnings and increased costs for patients, in particular due to transportation to and from treatment centres.

The Quebec Branch of The Kidney Foundation of Canada will continue to advocate for the adoption of a series of measures that will lead to significant progress in three areas related to kidney disease:  Prevention and early detection - Fund a kidney disease prevention program  Access to treatments at home and at a centre - Oversee training and patient support resources to foster patients’ independence while managing home dialysis when their state of health allows it - Work with the committee tasked with monitoring the health department’s dialysis guidelines - Support the development of multimedia tools to inform patients about treatment options  Organ donation - Set up the living kidney donor program announced by the previous government at our Foundation’s behest - Implement measures for identifying potential deceased donors throughout Quebec - Create organ retrieval centres in every region Implementing these measures does not always call for major investments; far from it, it sometimes requires nothing more than a careful reallocation of existing resources. And we must remember that in any case, these measures would lead to immense healthcare cost savings, whether by preventing or diagnosing the disease or improving access to CKD treatments. We are convinced that Minister McCann’s in-depth knowledge of Quebec’s healthcare system will enable her to rapidly address the challenges ahead of her. With her vast public health experience, she will undoubtedly focus on prevention and show concern for the quality of life of people living with kidney disease.

We are ready to take concrete measures and will be delighted to hold discussions with the minister, her department’s representatives and the provincial parties’ respective health critics. We offer our cooperation to improve quality of life for people suffering from kidney failure.

Sylvie Charbonneau President The Kidney Foundation of Canada Quebec Branch

Martin Munger Executive Director The Kidney Foundation of Canada Quebec Branch

KIDNEY CAR PROGRAM

Do you want to get rid of a car that’s still worth something?

Have you considered donating it to Kidney Car?

In addition to free towing, you’ll get a tax receipt for at least $300. And if your car qualifies for resale, the value of the tax receipt will match the car’s assessed value at the time you donated it. For example, for this 2010 Nissan Versa, evaluated at $2,200, the donor received a tax receipt for $2,200.

If your car can’t be resold, it’ll be recycled and you’ll still receive a tax receipt for $300. Kidney Car: it doesn’t get any easier!

Donating your car to Kidney Car is also an eco-friendly thing to do, as we guarantee that if your car isn’t sold, it will nonetheless be fully recycled in accordance with the industry’s tough environmental standards.

THE KIDNEY CAR PROGRAM ACCEPTS RESALEABLE VEHICLES

For more information about the Kidney Car Program or to book an appointment, go to www.kidneycar.ca or call us at 1-888-228-8673.

GIFT OF LIFE HUMANITARIAN AWARD

THE FOUNDATION IS SEEKING CANDIDATES FOR THE GIFT OF LIFE HUMANITARIAN AWARD

CISSS DES LAURENTIDES, RECIPIENT OF THE 2018 GIFT OF LIFE HUMANITARIAN AWARD

In 2006, the Quebec Branch of The Kidney Foundation of Canada launched the Gift of Life Humanitarian Award to recognize the humanitarian efforts that businesses have made in a variety of ways to facilitate kidney transplants or the kidney donation process for one or more of their employees.

This award arose from a situation in which around 800 Quebecers are currently on the province’s organ donation list. Of this figure, 70% are hoping for a kidney. Despite the fact that 343 kidney transplants were performed in 2017, nothing can be taken for granted when it comes to organ donation. As a result, the Foundation continues striving to raise public awareness and wishes to remind everyone of just how vital organ donations are for people on the waiting list hoping for a new kidney.

Nominating your company is as easy as 1-2-3. Go to kidney.ca/humanitarian, print and complete the form, and send it off to us. Assuming that all the criteria have been met, we’ll get in touch

with you to start the awarding process. It’s that easy. What better way to recognize the support you or someone you know received during the donation or transplant process?

In 2018, the Quebec Branch of The Kidney Foundation of Canada conferred the Gift of Life Humanitarian Award on the CISSS des Laurentides integrated health and social services centre.

The Kidney Community Newsletter WINTER 2019

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OUR EVENTS IN REVIEW

OVER $70,000 RAISED THROUGH THE NEW LEASE ON LIFE CONCERT On November 22, 2018, some 200 people came out to the Maison symphonique for the fourth edition of the New Lease on Life Concert for The Kidney Foundation of Canada, featuring the Orchestre Métropolitain.

The concert featured violinist Kerson Leong, the Orchestra’s soloist in residence, directed by assistant conductor of The Philadelphia Orchestra, Kensho Watanabe. The program included Debussy’s Prelude to the Afternoon of a Faun, Korngold’s Violin Concerto and Shostakovich’s Symphony No. 1, one of the composer’s most sophisticated pieces.

The event raised money for the Quebec Branch of The Kidney Foundation of Canada to fund medical research, deliver patient services, advocate for access to quality healthcare for all Quebecers suffering from kidney disease and promote organ donation.

2018 NEW LEASE ON LIFE CONCERT

The Foundation would like to thank everyone who came out, as well as all the volunteers who helped organize the event and all the sponsors who supported it.

MANY THANKS TO THE EVENT’S SPONSORS: Langlois Lawyers, Mitchell Gattuso Lawyers, Kenny U Pull, Alexion Pharma, Domtar, Nespresso, SAQ and Génération

THIRD-PARTY EVENTS

THE JEAN-JACQUES BÉGIN BENEFIT DINNER RAISED OVER $26,000 FOR THE FOUNDATION The 24th edition of the event, organized by the Eastern Townships Chapter, was attended by 177 generous souls who came out to support the Foundation and people with kidney disease.

OVER $6,100 RAISED AT THE 3 ANNUAL MADELEINE VALLÉE SPAGHETTI LUNCHEON

Emceed by Valérie Ross, a nurse at the CIUSSS de l’Estrie transplant clinic, and chaired by Guy Fauteux, FCPA, FCA, Vice-President of Raymond Chabot Grant Thornton Eastern Townships Region, the event raises funds for research and services aimed at meeting the needs of kidney patients in the Eastern Townships.

Hats off to the volunteer organizers of the Madeleine Vallée Spaghetti Luncheon, held October 14, 2018, in Trois-Rivières, which raised $6,100 for The Kidney Foundation of Canada! This third edition of the event made for many happy tummies and twice as many happy ears as diners were treated to a delicious lunch and midday show.

We wish to thank the event’s main sponsor Raymond Chabot Grant Thornton, the CIUSSS de l’Estrie-CHUS nephrology unit, PPD Group, and Lavery Lawyers.

Third-party events are organized by volunteers dedicated to making kidney failure a thing of the past.

Congratulations to the volunteer organizers for this very successful edition of the Jean-Jacques Bégin Benefit Dinner, and thanks to everyone who attended. | 4 |

The Kidney Community Newsletter WINTER 2019

3RD EDITION OF THE MADELEINE VALLÉE SPAGHETTI LUNCHEON IN TROIS-RIVIÈRES

RD

If you’re interested in organizing your own event for the Kidney Foundation, or would like to know more, contact Dany Babin at 514 938-4515, ext. 232, or dany.babin@kidney.ca.

UPCOMING ACTIVITIES

THE FOUNDATION WILL AGAIN BE TAKING PART IN THE SCOTIABANK CHARITY CHALLENGE

THE 2018 SAINT-JÉRÔME KIDNEY WALK

JOIN US FOR THE NEXT EDITION OF THE KIDNEY WALK IN CITIES ACROSS QUEBEC FROM APRIL TO SEPTEMBER 2019

THE KIDNEY FOUNDATION TEAM AT THE 2018 SCOTIABANK CHARITY CHALLENGE

Over the years, the Kidney Walk has become a unifying, mustattend event for kidney patients, transplant recipients, their family members and health professionals.

Do you enjoy running? Always up for a challenge? Then we’ve got just the thing for you! Join the Foundation for the next Scotiabank Charity Challenge, a chance to take part in a major sporting event while raising money for a good cause.

Thanks to all the participants, teams of walkers and volunteers who get involved and walk for the Foundation, the Kidney Walk is so much more than a major fundraising event: it’s also a huge annual social event where Kidney Foundation supporters come together and celebrate.

At the 2018 edition of the Scotiabank Charity Challenge, the Kidney Foundation team’s 31 participants raised over $13,000. And when all was said and done, the 71 participating charities had raised a total of $1.35 million.

Become a part of this huge family by walking the Walk and joining forces to help people suffering from kidney disease, while enabling the Foundation to fulfil its mission of funding patient services and research, and promoting organ donation.

The Scotiabank Charity Challenge will take place on April 27 and 28, 2019, at Jean-Drapeau Park in Montreal.

For more information, visit www.kidneywalk.ca or contact François Caron-Mélançon at 1 800 565-4515, ext. 233, or at francois.caron-melancon@kidney.ca.

The event will include a number of races—choose between the Montreal kids’ race and the 5K, 10K and 21K races.

For more information, contact Dany Babin at 514 938-4515, ext. 232, or dany.babin@kidney.ca.

NOTICE OF ANNUAL GENERAL MEETING Please be advised that the Quebec Branch of The Kidney Foundation of Canada will hold its Annual General Meeting on May 4, 2019, starting at 9 a.m., at the Travelodge Hotel located at 3125 Hochelaga Boulevard in Quebec City. Members are kindly asked to register or obtain a proxy form

by April 12, 2019, by calling Jocelyne Renaud at 514-938-4515 or 1-800-565-4515, ext. 230, or by writing her at jocelyne.renaud@kidney.ca.

The Kidney Community Newsletter WINTER 2019

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SPECIAL COLLABORATION

THE CURATIVE POWERS OF PHYSICAL ACTIVITY

By Lloyd Mangahas, B.Sc kinesiologist Read carefully the following recommendation from a study about exercise and kidney disease in 2013:

PHYSICAL ACTIVITY Encourage physical activity compatible with cardiovascular health and tolerance, aiming for at least 30 min five times per week (1D) A 13% reduction of all-cause mortality was found among patients with CKD (Chronic kidney disease) who did the minimum amount of exercise (average 15 min of moderate intensity) compared with those who did no exercise at all. The effect is expected to be much greater when patients undertake 30 min of exercise five times per week.1 Would you invest in exercise if you get a potential return of 13 %?

Exercise is a key to lowering the risks of heart disease in patients with chronic kidney disease.2 Amongst other benefits highlighted were:  improved blood cholesterol levels;  decreased blood pressure;  diabetes control;  weight control and maintenance;  increased bone density;  decreased lower back pain;  stress reduction;  decreased fatigue and improved quality of sleep;  improved energy levels and well being.

1 2

The Lancet VOLUME 382, ISSUE 9889, P339-352, JULY 27, 2013 The Kidney Link -Spring, 2010

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My opinion as a kidney recipient This is all well said and done, but when you are first a patient recovering on the unit from transplant surgery in the hospital, let me tell you that exercise is the last thing on your mind. The residual pain from the incision, the grogginess from the medication and the endless number of tubes and electrodes attached to you are enough to discourage anyone from trying to lift a limb out of bed.

But in fact, you are strongly encouraged by doctors and nurses to start ambulating from the bed even very soon after the first post-op day. This begins by small steps:  sitting up in bed;  sitting at the edge of the bed;  slowly standing up and shuffling towards a chair;  walking to the bathroom;  walking progressively around the room and eventually around the hallway of the hospital, and so on.

Of course, the progression speed at which a patient graduates from one step to the next is highly individual and will depend on several factors, including how well they respond to the new transplanted organ, and ensuing medical treatment, the patient’s physical and mental readiness, their pain management, family and social support, and so on….

Once we leave the hospital as patients and continue to recover at home, hopefully by now walking and simply going to places at one’s own pace is a goal that a patient has reached.

So now the real work starts! How can one begin or continue a daily exercise routine to keep rebuilding strength and counteract the totalbody weakness that often happens after a long illness or time in bed?

SPECIAL COLLABORATION

I will offer a few pearls of wisdom from my experience that may help on the journey back to recovery: 1. Start at your own pace As mentioned earlier, patients are strongly recommended to move as soon as possible post-surgery. Several main obstacles a patient can face include the levels of pain they are experiencing, fear of movement, muscle weakness and joint discomfort associated with prolonged time in bed and prescribed medication such as Prednisone, low energy levels and any residual nausea and dizziness that may still occur from surgery. Thus, it is important that one respects their own limits at this time and with proper guidance and support, gradually increase their tolerance to physical activity one step at a time as mentioned earlier. In my experience, the pain felt in the incision site once out of bed became more manageable and I began taking short walks around my hospital room and eventually longer walks around the hallways of the hospital. Walking became my main source of physical activity at the start of my recovery and is the simplest form of readily accessible exercise that almost anyone can do immediately post-transplant. Bottom line, it’s alright to not feel well enough to move when you’re in pain, feeling dizzy or weak, but don’t let that stop you from taking one step at a time and progressing at your rhythm.

2. Find activities that you like and enjoy This point may seem quite obvious, but it is imperative that the type of physical activity one chooses is not only frequent and beneficial, but one that is also FUN for the participant. If one sees no joy and satisfaction in engaging in some form of exercise and is only performing it because they were told to do it merely as an obligation, chances are that motivation and adherence to an exercise program will be quite low.

There are many activities to choose from, and the key lies on the individual’s preferences and abilities. Walking is a great activity to start with its accessibility and its low cost. If low impact activities are the only options available, riding a bicycle or swimming are wonderful choices. Are you someone who likes to socialize or has a hard time doing exercise alone? Then perhaps group classes at a gym or outdoor venue may be the answer. Were you an athlete in your youth and excelled in a particular sport? Then a return to playing that activity may just do the trick. In the end, there are many choices that are out there to suit one’s individual needs, it’s all about finding the right choice of activity and the person will more likely stick to it if they’re having fun while doing it.

3. Insert small bouts of exercise in your day Say you are now several weeks or months post-transplant, your recovery is going well, and you are slowly ready to resume your normal daily routine. But you may still lack the energy and the time to dedicate yourself to a regular exercise routine. Is this the time to give up on physical activity and throw in the towel? I certainly hope not!

With a little creativity, there are many ways to incorporate even small bouts of short duration of physical activity throughout the day and week, because after all it still counts and the effects add up.

Squeezing in short walks of 10 minutes throughout the day can be a start. If someone’s days and evenings are packed, perhaps getting used to attending an early morning session a few times a week can be a remedy. Commuting to work by walking or cycling is also a great way to get the body moving when going places. Even household chores like vacuuming should not be overlooked, and when done at certain intensity it can be a great workout. Anything and everything even in small amounts at a time is a possibility.

In conclusion, exercise has the enormous potential to enhance one’s quality of life post-transplant. Along with the medical follow-ups with your nephrologist and consistently taking your anti-rejection medication, physical activity is becoming more and more an essential component to improving one’s health posttransplant. With proper guidance and respect of one’s abilities, the quality of life of a patient has much to gain from being more active for their physical, social, emotional and mental health.

Lloyd Mangahas, B.Sc is a certified kinesiologist from Montreal.

He is a graduate from the Université de Montréal and has been working in the fitness industry for over 10 years. He is a proud survivor of two kidney transplants and has competed as an athlete at the Canadian, and World Transplant Games. He is especially dedicated to helping post-transplant patients regain their health and quality of life. He may be reached at info@coachlloyd.ca.

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ORGAN DONATION

TESTIMONIAL BY MARIE-ÈVE JARRY, WHO RECENTLY RECEIVED A KIDNEY FROM HER HUSBAND For almost 21 years, I was lucky enough to have a normal life thanks to my first kidney transplant. University studies, pregnancy, travel, career... I’ve led a fulfilling life. But in early 2018, I got the diagnosis: my graft had reached the end of its useful life. The doctors call it chronic rejection.

From the very first signs, doctors talked to me about living donation.

As soon as I shared this information with the people around me, my father and my husband stepped up to the plate. As they underwent a variety of medical tests, my kidney function continued to decline and, by late August, I had to face the fact that I had to get back on dialysis, three times a week for four hours at a time. In the end, my husband was picked as my donor. But we had things to prepare before the transplant... Who was going to look after our daughter when we were at the hospital? What were we going to eat once we got home? Who would drive us to our appointments? The list went on... We were lucky because our family and friends were really supportive. On December 18, 2018, the operation finally took place at CHUM. I was nervous, but the operation was a total success. Within 48 hours, my tests were

MARIE-ÈVE, LEFT, WITH HER HUSBAND AND DAUGHTER

coming back normal. The medical team joked that I had received a “competition kidney.”

As I write this, it has been just over three weeks since the transplant took place. My husband has already recovered from his operation and is as active as ever. As for me, even though my body is still getting used to my new kidney and all the side effects of the medications I have to take, I’m hopeful that, after 18 months off work, I’ll finally be able to return to teaching when school starts up again in September.

After spending all of summer 2018 going to appointments at the hospital, I’m also looking forward to being able to enjoy next summer to the fullest. It won’t be long before my life is back to normal. Organ donation really does change lives!

Marie-Ève Jarry

FIVE LIVING DONORS RECEIVING A RECOGNITION MEDAL (LEFT TO RIGHT): LORRAINE PAGÉ, NATHALIE TRUDEAU, FRÉDÉRIC CÔTÉ, SYLVIE CHARBONNEAU AND GENEVIÈVE GÉLINAS

THE LIVING DONOR RECOGNITION PROGRAM WAS A HUGE SUCCESS IN 2018 In 2018, the Foundation awarded 76 medals as part of the Living Donor Recognition Program.

Every year, healthy people donate one of their kidneys to help someone suffering from advanced renal failure who relies on a transplant to regain his or her health.

Donating a kidney to provide enhanced quality of life to someone who is suffering is an act of great generosity, one we think deserves to be recognized.

The Foundation’s goal is to recognize every living donor who is brought to our attention. If you are a donor or someone who has had a transplant thanks to a living donation, get in touch with us so that we can recognize this gift of life.

THE MEDAL CAN BE WORN LIKE A CHARM

Contact Philippe Vincent, Coordinator, Patient programs and services, by calling 1 800 565-4515, ext. 222, or writing to philippe.vincent@kidney.ca.

For more information on living donation and this recognition program, go to donatingakidney.ca.

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The Kidney Community Newsletter WINTER 2019

VOLUNTEER PORTRAITS

SANDRA SALVONI, IMPORTANT AND DEDICATED FOUNDATION SPOKESPERSON

LYNE CARTIER, KIDNEY FOUNDATION VOLUNTEER SINCE 2013 IN SAINT-JEAN-SUR-RICHELIEU

Having received a kidney from her sister Linda in 2005, Sandra Salvoni has always been very active, even during the year she spent on dialysis. Since 2017, she has been heading the Laval Kidney Walk Organizing committee, while serving as Kidney Foundation spokesperson. Her energy and infectious enthusiasm make her an indispensable Foundation volunteer.

SANDRA SALVONI

Though Sandra was monitored in predialysis in the early 2000s, she had had no family history of kidney disease. But in the summer of 2004, her creatinine levels skyrocketed as a result of a series of urinary tract infections. That’s when she was started on hemodialysis treatments, which were soon followed by peritoneal dialysis because she remained very active in her career as Account Manager at Nortel.

Seeing how tough things were for Sandra, her sister and father wanted to give her a kidney. They both underwent the necessary tests to become donors, but it was soon determined that her father could not be the donor. Her sister, on the other hand, passed the tests with flying colours.

But Sandra would have none of it. “Why should my sister have to give up a kidney for me when I can just wait for deceased donor organ?” she asked. But in the end, after contracting infectious peritonitis several times as a result of her peritoneal dialysis, Sandra accepted her sister’s kidney and the transplant took place in October 2005, a year after she started dialysis.

After the operation, Sandra suffered complications and had to spend three months in hospital. Then, three years after the operation, she underwent a procedure to fix her ureter, which was working poorly and wasn’t pushing urine effectively toward her bladder. Ever since, everything has been going well and her graft continues to work perfectly.

After the transplant, Sandra completely changed gears… and her life.

She now works in the field of health promotion. “I have to put what happened to me to good use. I need to help people going through what I went through. I have a mission and it goes beyond me,” said Sandra. She had already been involved with the kidney disease cause for 10 years, but in a more hands-off way. But in 2013, after striking out on her own, her frame of mind completely changed.

She took part in the Montreal Kidney Walk that year and the Laval Walk in 2016. That’s when the Organizing committee, who recognized her talents as a natural leader, asked her to take the reins and organize the 2017 Laval Kidney Walk. She saw great potential in the Laval Kidney Walk and over time became increasingly involved with the event.

Lyne Cartier got involved with the Foundation in 2013 and was the originator of the Saint-Jean-sur-Richelieu Kidney Walk. A real self-starter, Lyne has a natural talent for soliciting sponsorship donations in her community. Over the years, she has made herself indispensable to the Foundation.

LYNE CARTIER

Early on, Lyne had to deal with kidney-related problems. At six months old, her daughter Isabelle contracted a urinary tract infection and had to have her ureter reimplanted due to a bout of pyelonephritis. Although she’s 33 now, she could get pyelonephritis again and always has to be careful.

Lyne’s daughter isn’t the only family member to suffer from kidney problems. Tests conducted in 1993 revealed that her mother, Pierrette Garand, had one undersized kidney and was excreting proteins through her urine. She underwent hemodialysis from 1993 to the day she died at the age of 65, on September 12, 2000, when she failed to wake up after bypass surgery to clear a blocked artery.

Lyne had heard about the Montreal Kidney Walk but was surprised to learn that Saint-Jean-sur-Richelieu didn’t have its own. She contacted the Foundation because she wanted to organize one in Saint-Jean in 2013—it was a resounding success that brought together many people from her own family. “I wanted to hold a Walk in Saint-Jean to help the region’s patients and do some prevention work. Everyone talks about cancer, but not so much about kidney disease,” Lyne said.

In the meantime, Lyne discovered that she too was losing proteins through her urine, just as her daughter and mother had. She was monitored closely and took medications to avoid dialysis as long as possible. She fought so that screening clinics would be held more regularly in the Saint-Jean region.

Why is she so invested in the Foundation? Because she wants to raise funds, support kidney disease research and help out the Foundation’s summer camp, all of which aim to improve the day-to-day for the many people living with kidney disease. What’s the most gratifying part for her? When people thank her for the Walk and for everything she’s done over the years.

To make the Saint-Jean-sur-Richelieu Kidney Walk such a success, Lyne relies on the invaluable help of Réjeanne Roy, an active volunteer from the region, who helps Lyne organize a number of events throughout the year, including the BillardOthon pool tournament (March 2019), two Fun Bowling events (organized by Ms. Roy and scheduled for April 13, 2019, and November 2019), and a pig roast (May 14, 2019).

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RESEARCH

IDENTITY DEVELOPMENT OF ADOLESCENTS WHO RECEIVED A KIDNEY TRANSPLANT Marie Leblond, PhD candidate, Research and Treatment in Clinical Psychology at Université de Montréal, Quebec.

Supervisor: Dr. Marie Achille $58,000 doctoral fellowship (2017–2019) for paramedical staff, provided by The Kidney Foundation of Canada, in the Transplantation category.

Adolescence is a period of development characterized by rapid growth and change. It is during this period that new issues surface, including identity development, considered the leading issue of adolescence. The literature suggests that the question of identity development is intensified for teens living with a chronic disease, as they must adapt not only to the challenges of normative development (i.e. of identity), but also to issues related to chronic illness and its associated treatments. In addition to forging their identities, teen organ transplant recipients face other issues, including parental overprotection, social adaptation challenges, the attitude toward the organ donor, the quest for autonomy,

and identification with their peers. These issues influence the development of identity and self-acceptance in adolescence. Teen transplant recipients cite defining their identity as among the greatest challenges associated with their health condition. Parents play an active and participatory role in the development of their teen’s identity. In addition to assuming normal parenting roles, parents of children with a chronic illness must also take on the role of caregiver. Family dynamics change in instances where a parent donates an organ to his or her child. When the time comes to volunteer to act as a donor, some parents state that they don’t feel they have a choice and that they sometimes feel alone in their decision-making process.

Given that the disease and its associated treatments make it difficult for these teens to develop their identities, particularly in terms of their body image, autonomy and independence, and given that parents tend to be over-protective of their children and play a dual role as parents and donors, this thesis aims to describe and understand the development of identity among young people who have received a kidney transplant from a parent, and the role of the parent in the child’s identity development.

PLANNED GIVING | LEGACY GIVING SOCIETY

Like us, you would like to do something to improve the health and quality of life of people living with kidney disease. Thanks to planned giving, you can contribute to fulfilling this mission in a very tangible way, today and in the future.

Planned giving can take a number of forms, including: • Bequests and testamentary donations • Donation of a life insurance policy • Donation of securities

HAVE YOU CONSIDERED A TESTAMENTARY DONATION? A bequest to The Kidney Foundation of Canada is a gift that will have a lasting impact and bear witness to the values you cherish.

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To find out how to make your own bequest, please contact Martin Munger at martin.munger@kidney.ca or 1-800-565-4515 / 514-938-4515, ext. 231

Vaccination,

the best protection

Vaccine against pneumococcal The risk of death from a pneumococcal infection is greater for people with certain diseases, such as renal failure.

To receive the pneumococcal polysaccharide vaccine free of charge, ask your CLSC or your doctor during your next visit.

You can receive the pneumococcal and flu vaccines at the same time. One shot in your lifetime is usually sufficient.

sante.gouv.qc.ca/vaccination/ 15-213-03A_pneumo_rein_3X5_ang.indd 1

E-NEWSLETTER SUBSCRIPTION GO DIGITAL! The digital newsletter is a great way to receive all the latest news from the Foundation while getting all the juicy details about our events. Thanks for being a loyal reader! If you subscribe to the paper version of the Kidney Community Newsletter, switching to the digital version will help the Foundation save money by reducing production costs. Subscribe at kidney.ca/quebec.

2015-07-23 15:13 The personal information you have provided is used only to send you this newsletter. If you no longer wish to receive it, please e-mail us at infoquebec@kidney.ca or call us at 514-938-4515.

Dear readers: Help enrich our newsletter by sharing your experiences with kidney disease or transplants! Please send a text of up to 300 words, along with a highresolution photo, to infoquebec@ kidney.ca.

CONTACT US: The Kidney Foundation of Canada – Quebec Branch 2300 René-Lévesque Blvd West, Montreal, QC H3H 2R5 TELEPHONE 514-938-4515 or 1-800-565-4515 FAX 514-938-4757 E-MAIL infoquebec@kidney.ca Circulation : 10,000 copies

The newsletter is published three times a year by the Quebec Branch of The Kidney Foundation of Canada. Distributed in English and French to all people suffering from kidney failure, these publications provide valuable information on the Foundation’s services and activities, including the latest news about kidney disease and organ donation.

The opinions expressed in this newsletter are not necessarily those of the Quebec Branch of The Kidney Foundation of Canada, its directors, employees or members.

Moving? Write us at: infoquebec@kidney.ca.

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La Division du Québec de La Fondation canadienne du rein2019

THE QUEBEC BRANCH OF THE KIDNEY FOUNDATION OF CANADA 2300 René-Lévesque Blvd West Montreal, Quebec H3H 2R5boul. René-Lévesque Ouest 2300, Phone: (514) 938-4515 • 1 800 565-4515 (Québec) H3H 2R5 Fax: (514) 938-4757Montréal • infoquebec@kidney.ca Tél. : (514) 938-4515 • 1 800 565-4515 www.kidney.ca/quebec

Téléc. : (514) 938-4757 • infoquebec@rein.ca

HOW TO HELP

www.rein.ca/quebec

 I would like to become a “friend” member of The Kidney Foundation of Canada, Quebec Branch, to support its mission of research, patient services, organ donation promotion and fundraising. I understand that this membership is free of charge and does not confer any right to vote, that the Foundation may communicate with me and that at any time I may terminate my membership on simple notice to the Foundation

POUR NOUS AIDER

Je souhaite devenir membre de la Division du Québec de I would likecanadienne to make a donation at The Kidney Foundation of Canada, Quebec Branch LaFondation du rein

2015

name le Bulletin et le Cahier Santé • Soyez informés de nos activités • Full Recevez Nom Address Adresse City Postal Code Ville Code postal E-mail address Oui, je suis âgé(e) d’au moins 18 ans et je veux devenir membre La Fondation canadienne du rein.

Phone  work  home  mobile Veuillez trouver ci-joint ma cotisation de membre au montant de 10 $.

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Aucun reçu officiel aux fins de l’impôt ne sera envoyé pour votre cotisation de membre.

DONATION FORM Les renseignements que vous nous avez donnés sont utilisés à titre administratif pour émettre des reçus fiscaux. Nous ne les conservons pas électroniquement.

Please find enclosed my donation for: S.V.P. m’envoyer le bulletin par courriel à l’adresse suivante :   $35la Fondation  $50  $100  Other amount (Je $20 fais aussi économiser des frais postaux)

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Cheque made TheàKidney Foundation of Canada.du rein Jesouhaite faireout untodon La Fondation canadienne  MasterCard Oui, je désire faire un don à La Fondation canadienne du rein. Veuillez trouver ci-joint mon don au montant de : ❒ Visa Credit card $ number ❒ 20 ❒ 35 $

❒ 50 $

❒ 100 $

Autre

Expiry

Contribution totale = Signature Date ❒ Chèque libellé à l’ordre de La Fondation canadienne du rein.

An official receipt for tax purposes will be issued for all donations of $20 or more.

Date d’expiration ❒ Visa ❒ MasterCard Numéro de carte de crédit  I would like to receive my tax receipt by email – I therefore understand that I will not get one by mail.

Signature  Please remove my name from your mailing lists.

Un reçu officiel pour fins d’impôt seraedition émis pour tout don de 20 $ et plus.  I would like to receive the electronic of the kidney community newsletter

Date

will use the information contained in this form to send you news about kidney health and advances in research, to keep you informed about the social issues surJeWe souhaite m’impliquer (SVPand indiquez-nous dans quelle région) rounding patient care, and notify you ofbénévolement our various outreach initiatives fundraising activities.

Montréal ❒IfAbitibi-Témiscamingue ❒ Estrieregarding ❒ Mauricie ❒ Montérégie ❒ Outaouais ❒ Saguenay-Lac-Saint-Jean ❒ Québec you would prefer not to be contacted any of the above, please call us ❒ toll-free at 1-877-361-4947. allow thirty (30) business your changes to be processed. retirer mon days nomforde vos listes d’envoi. ❒PleaseVeuillez Nous pourrions utiliser les renseignements contenus sur cette fiche pour communiquer avec vous dans une correspondance future, notamment pour vous signaler nos campagnes de financement.

Si vous ne souhaitez pas que nous vous contactions à cet effet, nous vous prions de nous appeler au numéro de téléphone suivant : 1 877 361-4947 Prière de nous accorder 30 jours ouvrables pour procéder au changement.

Votre don fait du chemin à La Fondation...