Kidney Living Spring 2015

Living

KIDNEY Spring 2015 Volume 8 • Number 1

www.kidney.ca/ontario

A PUBLICATION OF THE ONTARIO BRANCH

Kidney Health for All

contents

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SPRING 2015

Editor’s Message

LIFESTYLE/PERSONAL STORIES 4 Hope for Harrison 5 Voices of Experience 6 Resiliency in the Workplace 7 Work-Life Balance on Dialysis 9 Helping Teens Transition 10 Talking to Your Children about Transplant Surgery 13 A Gold Medal Performance 17 Advance Care Planning

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FOOD AND NUTRITION 11 Cooking at Home THE FOUNDATION OF KIDNEY CARE/FUNDRAISING 15 The Path Well Travelled 19 Tax Tips 21 Community Highlights 23 Mark This Date RENAL PROFESSIONALS/WORKING TOGETHER 8 Teenagers with Transplants 12 Vaccinations and Transplantation 16 Active Living for Life

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Cover photo: Courtney Doyle (see story p. 13). Photo credit: Timothy McNamee www.timothymcnameephoto.com Canadian Publications Mail Agreement #40011479 Return Undeliverable Canadian Addresses t o Tr i s h R e y n o l d s , C o m m u n i c a t i o n s Manager, Circulation Department, 1599 Hurontario St., Suite 201, Mississauga, ON L5G 4S1; email:communications@kidney.on.ca.

Phone:1-800-387-4474.

©2015. Kidney Living, the contents of which is subject to copyright, is published twice a year.

Reproduction in whole or in part, in written, electronic or any other format, without prior written permission, is strictly prohibited. For more information, contact Trish Reynolds, Editor at treynolds@kidney.on.ca or 1-800-387-4474 Ext. 4981.

The appearance of advertising in Kidney Living does not imply an endorsement by The Kidney Foundation of Canada, nor guarantee the quality, effectiveness of any products or services.

Editing, design and printing by GEPM Group Inc. www.gepmgroup.com

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EDITORIAL

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Editor’s Message

The Kidney Foundation of Canada, Ontario Branch 2014 – 2015 Board of Directors

Terry Young, President Harvey Thomson, Past President Greg Robbins, Vice President Niloufer Bhesania, Treasurer Roza Berkowitz Ethel Doyle Debbie Hodgins Craig Kerr June Martin Dr. Judith Miller Ken Mylrea Shirley Pulkkinen Dr. Faisal Rehman Susan Storey Susan Tkachuk Executive Director Jim O’Brien Ontario Branch 1599 Hurontario St. Suite 201 Mississauga, ON L5G 4S1 1-800-387-4474 905-278-3003

www.kidney.ca/ontario

orld Kidney Day will be celebrated around the world on Thursday, March 12, 2015. Kidney foundations, healthcare providers and patients together will help to raise the profile of kidney disease. Each year, the campaign highlights a new theme; this year’s theme is Kidney Health for All. This theme is also a fitting description for the Spring issue of Kidney Living. Kidney disease is often mistakenly thought of as a disease that only affects older people, and that kidney failure rarely affects the young.

The latest statistics indicate that over 53 percent of new renal patients are over the age of 65, but that means that almost 50 percent of new patients are under the age of 65. With kidney disease affecting one in 10 Canadians, the issues faced by those living with kidney disease and their caregivers vary greatly.

Inside these pages are some inspiring stories that showcase how people of all ages are living well with kidney disease. From Courtney’s story of triumph at the 2014 Canadian Transplant Games, to the story of Don and Lori Kraemer and their experience with the paired exchange program, to our feature on Michael McCormick who balances his career at the Toronto Stock Exchange and dialysis, each story illustrates resolve and determination, no matter the age or stage, to manage kidney disease in stride as part of daily living.

We invite you to use this issue of Kidney Living to share the important message of Kidney Health with your personal network. Use it to start a conversation about kidney health, to create a better understanding of what kidney disease is, who it affects and how it is managed.

Pass it on! Help us work towards Kidney Health for All!  Trish Reynolds, Editor Communications Manager The Kidney Foundation of Canada, Ontario Branch

Spring 2015 / Kidney Living /

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PERSONAL STORY

H

Hope for Harrison arrison Osborne’s parents, Jarrett and Angie, both teachers, knew before their second son was born that he had polycystic kidney disease. An ultrasound revealed his kidneys were an alarming stark “white.” Ironically, Harrison was born on World Kidney Day—March 8, 2012.

“It’s the hidden disease. You’d never know.

He’s the healthiest looking kid I’ve ever seen,” says his dad.

Harrison is tested regularly. “He continues to defy all expectations,” says Jarrett. “But it’s not like the problem has gone away. His kidneys are the size of those of a 10-year-old. His cysts are getting bigger and 50 percent of his right kidney is blocked.”

Though the young parents try to prepare themselves for the fact that Harrison’s kidneys will fail some day, they’re told neither dialysis nor transplant is in his immediate future, partly because they’re doing so much to keep his condition stable.

Take, for example, Angie’s red binder: “Harrison was so upset at his last appointment we had to skip a lot of tests. That’s why I have my red binder. The doctors laugh at me. It’s filled

with every single test result from day one. It’s all there. The doctor and I will be talking, and I’ll say, ‘But a few months ago, you said he had four cysts, why are there six now?’ And then we’ll talk more about what’s going on.”

They’ve also upgraded the water quality in their home so it’s on par with a dialysis unit.

Angie prepares all his food, using organics and avoiding salt, and they keep his blood pressure stable by keeping his schedule as consistent as possible.

Before Harrison was diagnosed, the couple knew nothing about kidney disease. “For a long time,” Jarrett admits, “I kept thinking Harrison would get better, possibly grow out of it, or maybe get a transplant and be cured. I was quickly corrected by the professionals—that’s not how it goes. That was a shock to my optimism. It still doesn’t make a lot of sense that there can’t be a fix to this yet.”

Angie’s first questions were, “’Will he have a normal childhood? Will he go to school? Will he be like the other kids?’ You want your child to fit in with everybody else.”

With more questions than answers, Jarrett derives strength by working in his own way to bring attention to the disease. “My hope and inspiration is my son,” he says, “so I’m using what I am passionate about—art—to raise education and awareness.” His concept is “POP Remedy” a comic strip syndicate that merges traditional print syndication with web comics to create and distribute comic strips to new readers. Proceeds from sales go back to support charity. (Visit www.popremedy.com) Angie has found strength closer to home by looking for support groups and opening up about her worries and her fears.

“What’s been hard for us is that no one knows about this disease. We’ve had to educate ourselves, our family and our friends. It kills more people than prostate cancer and breast cancer combined, and still no one knows,” Jarrett says. “But it didn’t break us. It made us stronger and we were already strong.”

Jarrett sums it up this way: “Harrison is in a position to make a real difference. Look at the education he’s going to bring people. He’s going to change the face of this disease. He will do that. He has to.”  Reprinted from The Kidney Foundation’s 50 Kidney Stories Magazine. www.kidney.ca/50kidneystories

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www.kidney.ca/ontario www.kidney.ca/ontario

PERSONAL STORY

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Credit: Photos.com

Voices of Experience earning your child has kidney disease is stressful to say the least. What have you learned along the way that might help others? What advice would you give someone whose child has just been diagnosed with kidney failure?

We asked these questions through our website and social media channels. Here are some of your responses:

Connect with others who may understand at kidneyconnect.ca.

There is a discussion group—Parents of Children with Kidney Disease—where you may be able to find support from someone who is facing a similar situation. www.kidney.ca/ontario

First, it’s really scary finding out your child is suffering with kidney disease. My son was three months old when he went into end stage renal failure. Apparently he was born with a genetic recessive disorder so rare that his doctors had never had a case like ours. I was very scared.

They told me if he didn’t have a combined kidney and liver transplant within the first year, he would not survive. We lived in the hospital for almost a year and a lot of that year was trial and error. If I didn’t agree with what the doctors were doing I would say something. If I didn’t like what I heard I would ask for a second opinion.

I became an advocate for children—especially mine—who couldn’t verbally tell us how he felt or what he needed. I learned how to do everything for him. At first I didn’t want to learn how to put his ng tube back in his nose. I was there to bring him comfort, not cause him pain.

But there would come a day when I would take him home and if anything happened to him I needed to know how to take care of it.

So for new parents whose child has just been diagnosed with kidney disease, listen to your

New for 2015! We are asking you, our kidney community, to share your experience. Share your voice at www.kidney.ca/kidneylivingvoices gut if you feel something isn’t right. Take him or her to emerge, get them to draw their blood and check their kidney levels. Learn everything you need to learn when it comes to your child’s disease and how to administer their medication and whatever else they may need. Doctors are great but the real expert on your child is you.

Angela Devastated, overwhelmed, exhausted, scared became emotions that I was well acquainted with. The early days are extremely tough. There are so many questions, so many new things to learn and try to understand. The path is different for everyone. Some may need only dietary changes plus some meds; others like my daughter needed extensive intervention resulting eventually in a transplant. Things do get better. You will settle into a new routine.

You get used to that new “normal.” It will be like a roller coaster. As a parent it’s extra hard because we have no choice but to sit and watch our child go through all this stuff. We would gladly trade spots with them in a heartbeat, but we can’t so we hold their hands, love them, support them while we silently cry for them.

It’s not all bad though. Children are extremely resilient. You may not realize this until you have watched a child deal with something. My daughter has continually amazed us over her 12 years at her ability to adapt and learn to roll with the punches. Being in a hospital as much as we were, we saw many other children dealing with far worse situations. We also found it helpful to Spring 2015 / Kidney Living /

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LIFESTYLE

talk to other families in a similar situation. Reach out; you won`t regret it. Try and stay calm; that has served us well over the years. Our daughter has greatly benefitted from consistent exercise.

For her it was swimming, but it could be anything. It has kept her healthier, given her more confidence and enabled her to feel a sense of belonging with her swim club.

April I have learned that kids want to live and enjoy life despite having kidney disease. Yes, my son had lots of medications; g-tube feeds and was on dialysis every night. But he is still a kid and he wants to play and be with other children and I need to ensure that he has these opportunities to experience a normal childhood despite having a chronic illness. My advice to someone whose child has just been diagnosed with kidney disease is do your research, learn about kidney disease and understand the treatment options. Learn from other families’ experiences, but also understand that everyone’s journey is different and you shouldn’t dwell on the negative aspects of someone else’s experience, but learn from their successes. Kidney failure doesn’t mean your child’s life is over. It will be different. Even if they are on dialysis, you can still enjoy the same activities as a family; you can travel and experience life. Sometimes I have had to set aside my fears and anxiety to allow my son to try something new and experience life. The best decisions we made while my son was on peritoneal dialysis was travelling to San Diego and Newfoundland. It took some coordination but it was definitely worth it for our family. We created great memories and would encourage other families to do the same thing.

Stephanie

Resiliency in the Workplace

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Having a career and being on dialysis is possible.

he benefits of a healthy work life provide so much more than income. It may mean access to benefits and disability support, but equally important, work is often a part of one’s identity and contributes to an overall sense of pride and may improve your sense of self-esteem. We’ve all had days when the ability to immerse yourself in work has given you a fresh perspective on something at home, and the same can be true in providing a focus on something other than your illness.

According to the Living with Kidney Disease Patient Manual, it is important to carefully consider all of your options before making a permanent decision about your work life. There is no right or wrong decision, and every situation is unique. If you have just started dialysis, balancing both work and dialysis may seem overwhelming, but it is possible that you will begin to feel better once you’re on a regular dialysis schedule.

A temporary leave of absence may be one solution that benefits both you and your employer as you adjust to your treatment schedule.

Remember, you are an asset to your employer and many companies will look for ways to keep you on board. Look into your company’s sick leave policy to see what options are available.

It may be possible to adjust your dialysis schedule to fit your work life.

Home dialysis—either hemo or peritoneal dialysis—sometimes makes this easier, although many people are able to adjust work or dialysis schedules to find the right balance.

For different reasons, some people may decide that they need to leave work. Consider all the options before making a permanent decision. Your renal team will be able to provide additional information to help guide your decision making. 

My advice is to take it one day at a time. My son was diagnosed while I was still pregnant.

We had an absolutely wonderful doctor who when I asked, “So there’s no hope?” looked me straight in the eye and responded with “There’s always hope.” We’ve never looked back. These kids are way tougher than most adults. They will surprise us all with their courage. Know you’re not alone.

Amber 

Photo credit: GraphicStock.com

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www.kidney.ca/ontario

LIFESTYLE

Work-Life Balance on Dialysis

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Managing a career while dealing with CKD is definitely a challenge

by Mike McCormick

www.kidney.ca/ontario

am a Senior Manager in the Market Operations department at the Toronto Stock Exchange. It is a high paced, intense and demanding work environment.

Being on the front line of operating Canada’s premier capital market is both challenging and rewarding. I am also a long time dialysis patient, on hemodialysis for over 26 years.

I was 18 and still in high school when I was first diagnosed and began dialysis. This meant that I never had to go through the process of transitioning to a life on dialysis while already in a career. In a way, this was fortunate. Since I had not yet begun my career, I built both my career and life on dialysis simultaneously.

One of my earliest lessons about searching for a job while living with a chronic medical condition was that I needed to be guarded with my information. During one interview process, in the fourth interview and after being given a verbal offer and being introduced to the team I would be working with, I revealed to the hiring manager that I had renal failure and had to go to St. Michael’s Hospital three nights each week to receive dialysis. The following morning the job offer was withdrawn. The lesson I learned was to hold this information back until I had completed the probation

period. Fortunately this was an isolated incident in my experience and all my employers since have been amazingly supportive.

Time management, as with most people, is one of the most difficult aspects of managing work and dialysis. One of my first “real” jobs involved gathering stock information from stock markets in Latin America. My hours were aligned with those markets, which meant I was done work at 2:00pm, right in the middle of the afternoon dialysis shift. This meant waiting around for two or three hours for a machine to be available. Time flexibility was one of the main reasons I moved to home dialysis. With my own machine, I can choose when and for how long I dialyze each time. As long as I get enough dialysis to feel well and have good lab results, my dialysis team is satisfied.

In my three main jobs since graduating, I have taken the same approach—be open and honest with my colleagues, my direct reports and my managers about my medical condition.

I have educated them on what dialysis is, what my limitations are and the fact that, from time to time, I need some accommodation to make my life work. In return for this accommodation, I work extra hard and put in longer hours when I am well. In every case, I have received full cooperation and support from the people I work for and the people who work for me.

While there are definitely times when it would be a lot easier to succumb and let kidney disease control my life, the rewards of managing my career while living with chronic kidney disease and doing dialysis have allowed me to have a productive and enjoyable life.  Spring 2015 / Kidney Living /

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MEDICAL RESEARCH

Teenagers with Transplants Kidney Foundation funds new research to help Toronto’s Hospital for Sick Children (SickKids) develop a new program to help young transplant patients better manage their health.

by Heidi Westfield

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he interactive internet project, “Teens taking charge: managing my transplant online” is funded in part by The Kidney Foundation of Canada, in the form of an Allied Health Research Grant. Moira Korus, a nurse in the Renal Transplant Program at SickKids, explains that the research seeks to develop a self-management program that can be accessed by patients from home.

“No comprehensive tool exists where teens can find information about transplants, information and tools to develop self-management and transitional skills and also find social support from their peers,” Korus says.

Teens who tested the new website shared their thoughts with researchers: “You have all the major stuff needed. It’s a great tool because it makes things more fun than reading a booklet.”

“It has everything you could possibly have as a question listed at the side. And so you know ex-

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actly where you need to go if you have a question.”

“It’s meant for real people to read, not just doctors.”

The teenage years can be a tough time for anyone, but research shows they are especially challenging if you have a chronic illness. Studies have found a high risk of non-adherence to medication among adolescents with transplants and they lose their kidney or liver transplant more often than any other group. In fact, a Canadian study showed that teenagers adapting to an adult centre had more than twice the risk of kidney transplant loss.

Young people surveyed early on in the SickKids’ study said they found the transplant process very stressful, particularly in relation to body image, pain and just wanting to be normal teenagers. They were looking for a convenient way to access health information at their own pace and suggested a web-based education site.

“They did, however, stress that this should not replace one-on-one time with the healthcare team,” Korus explains, “but rather should complement this.”

A pilot study is now underway to determine how well the website used by SickKids transplant patients performs in key areas: self-management skills, medical knowledge, and adherence to medication. Researchers are also measuring the web program’s role in helping to ease anxiety and depression among its teenage clients. They hope the site gives users a valuable support tool to help them manage their health care more effectively, and independently. 

www.kidney.ca/ontario

LIFESTYLE

Helping Teens Transition

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For an 18-year-old on dialysis, growing up happens suddenly

by Heidi Westfield

Photo credit: Photos.com

“[teenagers] are twice as likely to lose a transplant due to noncompliance”

www.kidney.ca/ontario

he Toronto General Hospital, where Melissa Rubin works, is a short walk from the city’s main children’s hospital on University Avenue. Those steps can feel like a long journey, though, for teenagers on dialysis transitioning to an adult facility. Rubin is a social worker in the hemodialysis unit, and sees the difficulties young people can face once they turn 18, and become legally responsible for their own health care.

Young patients “graduating” to the adult system are asked to adjust to a new healthcare team and higher expectations. They are responsible for scheduling appointments, knowing and picking up their own medications, and managing their diet “Some of them have really good coping skills that they developed at The Hospital for Sick Children,” Rubin says. “They have wanted to take control of their health, so transferring here they were able to do that. But there are other ones who are not used to being the decision-makers and who rely on parents. A lot of times they don’t necessarily know what they need.”

The teenage years are a time of major change, and as Rubin points out, the adolescent brain is still in transition. They may not be able to prioritize and organize as well as people in their mid-20s. At the same time, when they turn 18, they have to take more responsibility for their health care and juggle other practical needs: transportation, housing and education. “So for us

to expect them to be an adult, come here on time and do everything we want them to do is sometimes unrealistic.”

There is a lot at stake—for teens, their parents and caregivers. Studies in both Canada and the U.S. show that teenagers are more likely not to take their prescribed anti-rejection medications properly. This puts them at a high risk for transplant loss. “Statistically, 15- to 20-yearolds are twice as likely to lose a transplant due to non-compliance,” says Dr. Gabrielle Weiler.

“They are very vulnerable.”

Dr. Weiler is a pediatric nephrologist at the Children’s Hospital of Eastern Ontario (CHEO).

She has experienced first-hand the additional emotional and physical strains on her patients, everything from unwanted side effects of medications, to trying to pay for “pizza, books and anti-rejection drugs.” She views the world of adult care as not better or worse, just different. Still, it can be a bumpy road for teenagers and their parents as they get used to the new normal. Patients are expected to meet with several different specialists. They are allocated less time with their doctors, and in some cases they struggle with finances.

Her team in Ottawa begins discussing the move to adult care years before it actually happens—at the age of 14. CHEO also holds information nights for patients and their parents. It touches on a number of topics such as finances, mental health, alcohol and drugs, pregnancy and cyber safety. These information nights are well-attended, says Dr. Weiler, and she receives a lot of positive feedback.

Back in Toronto, Rubin and her colleagues are also working on ways to better help teens as they move to adult care. They have initiated a research project to survey patients and their family members who have transitioned in the past few years. They hope the results will identify key stumbling blocks, so young people will have an easier time managing the process in the future.  Spring 2015 / Kidney Living /

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LIFESTYLE

Talking to Your Children about Transplant Surgery

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by Heidi Westfield

Don and Lori’s tips for helping your children understand the surgery process.

1. Share and tell your kids what you think they can handle, based on their age.

2. Tell them you will try to answer their questions as best you can.

3. Let them feel they can ask you questions whenever they want to.

4. Let them cry, and tell them it is normal to feel scared, and that you are there for them to talk to.

5. Give them the security that no matter what, you love them, and be positive about the situation.

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few years ago, in the spring of 2012, Don and Lori Kraemer travelled to Toronto to be part of a special television program on organ donation. The Kitchener, Ontario couple left their three children in the care of grandparents, and joined Canada-AM’s live studio audience. Their interest in the topic was sparked by a very personal connection.

Lori had been on dialysis since 2010, when her kidneys failed; Don wanted to donate a kidney to his wife, but had been told early in 2012 that he wasn’t a direct match.

In an unexpected twist, Don and Lori were asked to speak live from the audience. The couple shared with viewers across the country something their close family was not yet aware of—their choice to join a living donor paired exchange program. Don would donate a kidney to a stranger, so Lori could receive a compatible match. They remember their children handling the news, at least at first, fairly well: “I don’t think it really shocked them,” Don remembers.

“They were more surprised we were on live TV.” Nathan was 11 at the time, and the twins Meghan and Kaylie 13. They had a lot of questions, and some fears. “They were afraid we were going to die,” Lori says. “Our son especially,” remembers Don. “He has Asperger’s Syndrome and it can be more challenging for them to understand the scope and magnitude of things.”

Even as their decision divided their relatives, with Don’s family having grave concerns, they tried to remain positive. About six months after they signed on to the paired exchange, a match was found, with surgery scheduled for April 2013. The couple outlined to their children what was involved using simple language, and reassured them that the likelihood of anything going wrong was very low. “We also explained the process,” Lori remembers. “Dad would have his surgery first, followed by Mom later in the day and how the day would unfold.”

Don and Lori turned to each other, and peer support, to help ease their own stress and worries. “Don was my rock, “says Lori. “We talked a lot to each other. We made some really close friends through our journey and talking to friends really helped us cope.”

An outpouring of support from their community, and friends—everything from meals to time off work—eased the recovery process. The timing of their surgery helped; they could take naps and recuperate while their children were in school.

While having both parents in surgery on the same day was a challenging situation, there are no regrets. After a successful transplant, Lori has more freedom than before, when she was in hospital on dialysis several times a week, and can spend more time with her children. As for Don, he has fully recovered from his surgery, and has earned a black belt in Taekwondo.  www.kidney.ca/ontario

FOOD AND NUTRITION

Photo credit: BigStockPhoto.com

Cooking at Home Keeping it Simple, Stress-free, and Delicious

by Nicole Yuen, MSc, Registered Dietitian

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ife can get busy, especially when juggling work, family and appointments.

Making a meal that is enjoyable for the family while catering to likes, dislikes and special diets can be tough. With a bit of planning it can be easy to turn meal confusion into a healthy and tasty dish to be enjoyed by all.

Here are some suggestions to keep the whole family happy without giving up health or taste:

Choose recipes that are easy to change

Most people eat more sodium (salt) than recommended. Even those without kidney disease should have less than one teaspoon (2300mg) of salt per day. Choosing lower or no added salt broths, fresh and dried herbs and spices, or using flavourful cooking methods such as roasting, grilling or broiling, can bring extra taste to dishes. Try adding different textures (chewy and crunchy) or flavours (sweet and sour) to keep it interesting. Avoid salt substitutes, as they can be high in potassium.

Make a recipe kidney-friendly by changing one or two ingredients or leaving some out. Other recipes may be kidney-friendly if you eat a smaller portion. Here are some ideas: • Change ingredients to kidney-friendly ones.

Add some of your favourite renal-friendly fruits or vegetables or use dried or fresh herbs and spices instead of salt.

• Choose recipes where it is easy to swap ingredients. A homemade pizza can be dressed with regular ingredients on one side and kidney-friendly ones on another.

• Have fun with the recipe. It may not work out the first time. Practice makes perfect!

Add extra items at the table

Get your family involved

Start with a renal-friendly recipe and let your family add extras at the table. Keep extra dressing and sauces, spices/herbs, nuts/seeds, vegetables or cheese on the table for other family members to add to their plate.

From buying groceries, to picking a recipe, or helping with the prep-work, getting your family involved with cooking helps to build nutrition knowledge. Choose a recipe with your family to make it enjoyable for everyone.

This will help create good nutrition habits for the future. Extra help means less time making dinner and cleaning up.

Less salt is good for all

Stock renal-friendly staples in your kitchen

To help you create delicious meals when life gets busy, combine items to make stir-fries, omelets, For kidney-friendly recipes, go to: soups and other quick and easy • www.kidneycommunitykitchen.ca dishes: • www.davita.com • Cupboard: white rice, cous• www.myspiceitup.ca/ cous, white bread/rolls, low www.kidney.ca/ontario

sodium/no salt broth, spices/dried herbs • Fridge: peppers, onions, garlic, broccoli, cauliflower, cucumbers, lettuce, green beans, eggs, tofu • Freezer: frozen fruit (berries) or vegetables, extra lean ground beef/chicken

Speak to a Dietitian

Dietitians are great resources for recipe ideas and to answer your nutrition and kidney questions. They can to tailor meals to your needs and provide suggestions for healthy foods.  Spring 2015 / Kidney Living /

11

RENAL PROFESSIONALS

Vaccinations and Transplantation

by Dr. Jeff Zaltzman, Medical Director, Renal Transplant Program, St. Michael’s Hospital

V

accination for the prevention of infectious diseases has been an integral part of medicine ever since the pioneering work of Edward Jenner in 1796, who vaccinated himself against “cowpox,” a form of smallpox, and Louis Pasteur who developed a rabies vaccine in 1885. Few measures in preventive medicine are of such proven value as standard vaccinations, and in the developed, developing and third world nations, vaccinations have played a major role in eradicating or reducing the incidence of many transmissible infections. In Canada both children and adults are immunized against a variety of infections, the entire list of which can be found at www.phac-aspc.gc.ca/publicat/ cig-gci/index-eng.php .

Vaccination of solid organ transplant ca Vaccine

Cholera and travellers’ diarrhea (inactivated)

Use if indicate

Diphtheria

Routine use

Haemophilus-influenzae type b (Hib)

Individuals 5 y and older: 1 d mended

Hepatitis A

Use if indicate

Hepatitis B

Routine use

HPV

Routine use

Influenza (inactivated)

Recommende

Japanese encephalitis

Use if indicate

Meningococcal conjugate

Children and a routine use Adults: use qu meningococc vaccine if indic factors for inva gococcal disea

Pertussis

Routine use

Pneumococcal conjugate 13-valent

Recommende

Pneumococcal polysaccharide

Recommende

Polio (inactivated)

Routine use

Rabies

Use if indicate

Transplant Recipients

Since all solid organ transplant recipients require life-long immunosuppressive medications, they are at higher risk for infection-related complications including communicable diseases, which can be prevented or ameliorated by vaccination. It is hoped and expected that the majority of vaccinations would have occurred long before the need for transplantation, but this is not always the case. In addition there is an ongoing need for regular vaccination for some diseases following transplantation.

Importantly, some vaccines are derived from live viruses and are not safe for patients who are taking immunosuppressive medications, because of the risk of vaccine-derived infection. One such important example is the “Shingles” or Herpes Zoster vaccine (Varicella, live attenuated “Zostavax”).

Unfortunately shingles is a very common and painful infection that often afflicts transplant recipients. It is a secondary infection of the chicken pox virus that lives in one’s spinal cord forever. In some people, particularly those taking immunosuppressive medications, the virus can reactivate, leading to a linear painful vesicular skin rash that can persist for a long time. The Zostavax vaccine is currently recommended for adults over age 50, but because it is a live vaccine, it is not safe for transplant patients.

However, clinical trials are in process looking at the safety and efficacy of using the shingles vaccine for kidney transplant recipients.

The most important “adult” vaccinations that transplant patients should receive include Hepatitis A and B, the annual influenza vaccination, S. pneumoniae, tetanus.

The Health Canada recommendations for pre- and post-transplant recipients are summarized and adapted on the table (right). Of note, live vaccines are not safe for post-transplant recipients.  Reprinted with permission from St. Michael’s Transplant Digest Newsletter, Fall 2013/Winter 2014.

12 / Kidney Living / Spring 2015

Pre-tran

Tetanus

Routine use

Typhoid (inactivated)

Use if indicate

Measles-mumps-rubella

Recommende

Varicella

Recommende

Rotavirus

Routine use

Influenza (live)

Use if indicate

Herpes zoster

Routine use

Yellow fever

Use if indicate

Typhoid (live)

Use if indicate

BCG

Use if indicate

Smallpox

Contraindicate

www.kidney.ca/ontario

LIFESTYLE

andidates and recipients

nsplant

Post-transplant (If not vaccinated pre-transplant

Comments

Use if indicated

by Bruce Hill

Routine use

years of age dose recom-

Individuals 5 years of age and older: 1 dose recommended

ed

Use if indicated

Recommended

Routine use

Higher dosage recommended for post-transplant

Routine use

3 doses

Routine use

n 1972, American swimmer, Mark Spitz participated in seven Olympic events and won seven medals. Impressive. This past summer, Smiths Falls, Ontario resident, Courtney Doyle, participated in the Canadian Transplant games and participated in six events and won six medals. Very impressive! Why? Because Courtney is just 12 years old.

Meet Courtney on any given day and you’ll be faced with a bubbly, vivacious young girl who exudes enthusiasm. Diagnosed at the age of five weeks with kidney disease, she continues to amaze her parents, Mike and April Doyle. Her road to battling the disease has not been without its challenges. When Courtney was first admitted to the Children’s Hospital of Eastern Ontario (CHEO) in Ottawa, she stayed there for seven months.

Thankfully, April works at CHEO and was able to continue working full time, and maintain her medical benefits, while also tending to her baby during breaks and the lunch hour.

Ironically, Courtney’s grandfather, John Wargati, also has kidney disease, due in part to having Type 1 Diabetes. But a link was never made between the two. Courtney’s rare kidney disease is known as Congenial Nephrotic Syndrome of the Finnish Type. She was the first patient in Canada to be diagnosed with this type. It occurs predominantly in families of Finnish origin (which the Doyles aren’t) and manifests itself shortly after birth. The condition is caused by a defect in the protein nephrin, which is found in the kidney. Proteins and fats are excreted in the urine and there is an abnormally high fat level in the blood. Some of the proteins lost in the urine are immune system antibodies that fight

Use if indicated

q Courtney with her family: April, Mike and younger brother, Dalton.

ed annually

Recommended annually

ed

Use if indicated

Beginning 6 Children and adolescents: routine months postuse transplant uadrivalent Adults: use quadrivalent menincal conjugate gococcal conjugate vaccine if cated by risk indicated by risk factors for invasive asive menin- meningococcal disease ase

adolescents:

Routine use

ed

Recommended

Once every 5 years

ed

Recommended

One life-time re-immunization recommended

ed

ed

Routine use Use if indicated Live vaccines

ed

Not recommended

ed

Not recommended

ed

I

Biking, running or swimming, Courtney Doyle doesn’t let a kidney transplant get in her way

Inactivated vaccines

ed

A Gold Medal Performance

Not recommended Not recommended; use inactivated vaccine Not recommended

ed

Contraindicated

ed

Contraindicated; if indicated, use inactivated vaccine

ed

Contraindicated

ed

Contraindicated

www.kidney.ca/ontario

Spring 2015 / Kidney Living /

13

THE FOUNDATION OF KIDNEY CARE

infections. The disorder commonly results in infection, malnutrition, and ultimately kidney failure.

With the diagnosis came another challenge—CHEO had never put a baby on automated peritoneal dialysis. Courtney’s case changed that decision and she became the first baby to use the “cycler” (automated dialysis machine). Under the care of a team of CHEO physicians including Dr. Janusz Feber and Dr. Gabrielle Weiler, Courtney then spent half of her first three years in the hospital for treatment. For the Doyles, their greatest challenge was not knowing if their precious baby would survive long enough to be eligible for a kidney transplant.

But survive she did. At the age of 18 months Courtney received the gift of life—a kidney transplant from her dad. Some years later she turned to swimming as a way to ward off infections and now swims competitively for the Perth Stingrays Aquatic Club. Last summer she and her family travelled to Moncton, New Brunswick to participate in the Canadian Transplant Games. This event is open to anyone of any age who has had a transplant. Courtney won gold medals in the five-kilometer bike, one-kilometer run, 100-metre freestyle, 50-metre backstroke and 50-metre butterfly. She also medalled in the triathlon and relay race.

Next up? The World Transplant Games in August 2015 in Argentina, where she will be gunning for the world record times in swimming.

The Kidney Foundation will follow Courtney as she trains for this event.

If you would like to support her in this journey, please contact Bruce Hill at 613-724-9953, Ext. 4560. 

Photo credit: Timothy McNamee Photo

About the Canadian Transplant Games Since 2000, the Canadian Transplant Games have been a showcase for transplant recipient athletes from across the country, to enjoy the competition and camaraderie while celebrating a second chance at life.

The Canadian Transplant Games, held every two years, is a family-oriented event. In addition to the competition for recipients there are activities designed for family members and other supporters.

The games are usually six days in length, and include opening ceremonies and many special events throughout the week, a donor/donor family recognition, and closing ceremonies followed by a gala dinner and dance.

For more information, contact the Canadian Transplant Association at www.organ-donation-works.org.

14 / Kidney Living / Spring 2015

www.kidney.ca/ontario

FUNDRAISING

The Path Well Travelled Using life insurance as a way to pay it forward

D

by Bruce Hill

ialysis was never allowed to get in the way for Susan Robbins who raised a family, worked in a variety of cities and still managed to travel.

Born and raised in Hamilton, Susan attended Hamilton District School of Nursing. In 1968 she met the love of her life, Greg Robbins. That year, Susan developed Glomerulonephritis as a result of a strep infection that settled in her kidneys when she was 16. When her kidneys finally failed at age 23 she started dialysis treatments, quickly moving to home hemodialysis where she dialyzed eight hours a night, three times a week.

This treatment method allowed her to continue commuting to Toronto to complete her degree in Public Health Nursing and then to practice as a full-time public health nurse. A family move to Windsor in 1976 could have set her back, as the only kidney disease treatment method in the city at that time was in-centre dialysis. Thankfully, her former renal unit in Hamilton agreed to sponsor her, and she continued with home hemodialysis.

While dialysis can usually limit one’s ability to travel, a number of dialysis machine-equipped vans were available from The Kidney Foundation for patients wanting to see the Canadian sites. Where this came to light was in Alberta where the Robbins had moved to in 1981. Greg fondly remembers one trip from Edmonton to Vancouver Island where they parked on the beach and enjoyed a sunset while Susan dialyzed in the van!

Their final move brought them back to Canada from Scotland in 1990.

In 2005, Greg was able to give a kidney to Susan and she lived free of dialysis for five years before passing away in 2010.

Greg vowed to make a difference in the lives of those patients whose lives would be impacted by the disease, and so will be naming The Kidney Foundation as a charitable beneficiary of a percentage of his paid-up life insurance policy. On his passing, a percentage of the face value of that policy will accrue to the Foundation, and his estate will get a tax credit for the value of the donation, thereby reducing estate taxes owing. ď Ž There are many ways to support The Kidney Foundation of Canada. For more information about planned giving, call 1-800-387-4474, Ext. 4560. www.kidney.ca/ontario

Spring 2015 / Kidney Living /

15

WORKING TOGETHER

Active Living for Life Community based pilot program receives funding

T

he Kidney Foundation of Canada wants to help patients achieve their goals to be physically active. A new pilot project, Active Living for Life, will spring into action in Kingston, London, Brampton and Sault Ste. Marie over the next two years.

The pilot is funded by the Ministry of Tourism, Culture and Sport through a grant from the Ontario Sport and Recreation Communities Fund, and supported with additional funding from the Kazman Foundation for Charitable Giving. Throughout the next two years, The Kidney Foundation will develop, implement and evaluate a community-based active living program to help kidney patients become more physically active according to their individual needs and abilities.

Through a collaborative framework of partners, including colleges and universities, recreation professionals, renal healthcare teams and most importantly, patients, the program is designed specifically so that people living with kidney disease can integrate active living into Photo credit: Photos.com everyday routines.

Partnerships have been developed between the physiotherapy and occupational therapy departments at Queen’s University (Kingston) and Western Ontario University (London) to facilitate the classes in their communities. Sheridan College will provide students from its exercise physiology program in Brampton and the Algoma Regional Renal program has confirmed that Sault College will join the project to facilitate program delivery in Sault Ste. Marie. All partners are providing space at their state-of-the-art sport and recreation facilities during the pilot phase.

Currently, work is underway on a patient needs assessment to determine what components of physical activity are important to patients, as well as to identify motivating factors KidneyConnect.ca is a new online social network and barriers to participation. Renal programs for people living with - and affected by - kidney disease have been enlisted to distribute the survey and promote the program in each pilot city.

Join today to enjoy these great features: Programming is anticipated to get under way Discussion Forums • Blogs • Events this fall.

Support Groups • Photos • Chat • Video If you live in Kingston, London, Sault Ste. Marie or Brampton and wish to take part in the needs assessment and/or program, please contact Sarah Hart, Active Living Project Manager, at 1-800-387-4474 Ext.4572 to find out how you can get involved. 

Connect with others...

Join now at KidneyConnect.ca 16 / Kidney Living / Spring 2015

www.kidney.ca/ontario

LIFESTYLE

Photo credit: BigStockPhoto.com

Advance Care Planning Who will speak for you?

by Trish Reynolds

F

acing a chronic illness like kidney disease means that you likely have had to make many decisions about your treatment and care. But have you given thought to who will speak for you if illness, an accident or dementia were to take away your ability to decide or communicate your wishes?

It’s not easy to talk about and plan for a time Resources when your health may deteriorate, but it’s impor• Ontario Seniors’ Secretariat: tant to have a conversation with your loved ones www.seniors.gov.on.ca/en/advancedcare/intro.php to prepare for your future health care. Advance • Advance Care Planning: www.advancecareplanning.ca care planning is the process of planning for • Living with Kidney Disease Patient Manual – Chapter 7 your future medical care, while you are still able www.kidney.ca/resources to communicate your values, goals and wishes.

• For more information about the hierarchy please visit Not only beneficial to you, an advance care plan www.seniors.gov.on.ca/en/advancedcare/dontappoint.php. also offers a level of peace of mind for your loved ones during a stressful time.

Definitions The first step is to gather information about Living Will: A living will or advance directive is a document that states your your health and healthcare goals. Reflect on wishes about your future care when you cannot do so yourself. Your living those goals, beliefs and wishes and begin a conwill may explain in simple terms your treatment and personal care wishes versation with loved ones. There are two main should you be unable to make those decisions. questions to consider: 1. Who do I want to make decisions on my What is capacity in terms of decision making? behalf if I am not capable?

To be capable of making personal care choices means that you can under2. What direction do I want to give to my substand information that is relevant to making a decision about your health stitute decision maker? care, nutrition, shelter, clothing, hygiene or safety, and can grasp the likely Your renal team can help you gather the inresults of making the decision or not making it. formation you need to make decisions that are

www.kidney.ca/ontario

Spring 2015 / Kidney Living /

17

LIFESTYLE

right for you, and guide you on ways to effectively communicate those wishes to caregivers, family and health professionals.

Your substitute decision maker should be someone close to you, someone you know and trust such as a spouse/partner, family member or close friend. In Ontario there is both a Power of Attorney (POA) for Property and Power of Attorney (POA) for Personal Care. Rest assured, if you do not appoint a POA for Personal Care, your healthcare providers can turn to the hierarchy of substitute decision makers.

According to the Living with Kidney Disease Patient Manual, it is not advisable for renal patients to use a living will kit or standard form as a living will. Many of the statements on these general forms are too broad and do not provide the opportunity for you to clarify your wishes. For example, some standard forms say that you would not want to be hooked up to a life support machine, but a dialysis machine is considered a life support machine. In addition, some forms might say that you don’t want a machine breathing for you, but what if you only needed the breathing machine for a very short time, while you recover?

As you change and grow, so too may your healthcare wishes. Review your wishes regularly and keep the lines of communication open with your substitute decision maker and advise him/her about any changes to your wishes. Remember, you will continue to make your own healthcare choices and decisions unless you are unable to communicate your wishes. A living will is no longer in effect once you regain your ability to make decisions.

By completing a living will and making an advance care plan, you gain control over your future health care even in times when you are incapable of making those decisions. 

E-newsletter Get Kidney Foundation news direct to your inbox by registering for our free monthly e-newsletter. Receive the latest news and information aimed at people living with kidney disease, their families and supporters. Find out about how the Foundation can help you, what you can do to support kidney patients, and what’s happening with kidney research in Canada.

Register today—visit kidney.ca/ontario and click on the e-news button.

Has your car reached the end of the road?

“Donate your unwanted vehicle to Kidney Car like I did.

It’s convenient, helps the environment, and best of all, supports The Kidney Foundation. Now that’s a hat-trick we can all celebrate.”

Donate it to the Kidney Car program!

• FREE AND FAST TOWING • VALUABLE TAX RECEIPT • VEHICLES OF ANY AGE OR CONDITION ARE ACCEPTED • ENVIRONMENTALLY-FRIENDLY PROGRAM Donating your old car or truck couldn’t be easier!

Visit www.kidneycar.ca or CALL 1-866-788-2277 (CARS)

18 / Kidney Living / Spring 2015

www.kidney.ca/ontario

THE FOUNDATION OF KIDNEY CARE

Tax Tips Every year during tax season, The Kidney Foundation prepares general tax tips for dialysis and transplant patients. The income tax assistance measures most often used by kidney patients are the Medical Expense Tax Credit and the Disability Tax Credit.

The information provided here is general in nature and does not necessarily cover all circumstances.

While we make every effort to be accurate, we recommend that you seek professional tax advice for your individual questions. The Canada Revenue Agency (CRA) also provides detailed instructions for claiming the various tax credits and deductions that are available. These can be obtained from the CRA website www.cra-arc.gc.ca/ or your local tax services office, or by calling 1-800-959-8281.

Tax Tips or f Dialysis Patients The tax tip information package is available online at

kidney.ca/taxtips

or through your Renal Program.

The package includes information about the Disability Tax Credit, eligible medical expenses, home dialysis expenses and more.

While we make every effort to be accurate, we recommend you seek professional tax advice for your individual questions.

www.kidney.ca/ontario

Medical Expense Tax Credit

The Medical Expense Tax Credit is a non-refundable tax credit that can be claimed for a wide range of medical and related expenses such as healthcare services, travel expenses, home renovations to install a hemodialysis machine, drugs, dental services and health insurance.

Out-of-country expenses over and above provincial coverage may also be included. You can claim expenses for yourself, for your spouse, and with some limitations, for your other dependents. With some exceptions (see transportation) you must have receipts for all your expenses.

You may also qualify for a refundable medical expense supplement for working individuals claiming high medical expenses. A full list of eligible expenses is available at: www.cra-arc.gc.ca/tx/ndvdls/tpcs/ ncm-tx/rtrn/cmpltng/ddctns/lns300-350/330/llwbl-eng.html.

Transportation and meals

Travel costs to and from medical treatment may be included as medical expenses for individuals who need to travel more than 40 km each way. People who travel more than 80 km each way may also be able to claim expenses for food and accommodations.

If you require the assistance of an attendant when traveling (the need must be certified by a medical practitioner), the travel costs of the accompanying individual can also be claimed. The cost of travelling by ambulance to or from a hospital is also an eligible medical expense. Receipts are required to claim for all travel expenses other than vehicle and meal expenses.

We recommend that you keep accurate records of your mileage and receipts for your expenses, and get a letter from your doctor or dialysis unit in case you need to provide proof of the number of trips you made.

A sample letter is provided on our website at www.kidney.ca/taxtips. In Ontario, those eligible can claim 57.5 cents/kilometer.

Kidney dialysis machine and home dialysis

People who have installed a home hemodialysis machine can deduct the following costs: • Repairs, maintenance and supplies of the machine; • Water and electricity to operate the machine; • The cost of housing the machine (i.e., municipal taxes, insurance, heating lighting, and maintenance and repairs, but not including capital cost allowance or mortgage interest) or the portion of rent that is attributable to the room where the machine is kept.

If you use a room in your home to store dialysis supplies or as a quiet and sanitary place to do dialysis, you may qualify to claim a portion of your housing costs. For example, if you live in a six-room house, and you use one room as a dialysis room, you may be able to deduct one-sixth of the rent, heating and electricity costs.

Spring 2015 / Kidney Living /

19

THE FOUNDATION OF KIDNEY CARE

In addition, other deductions you may claim include: • additions, renovations, or alterations to a home • a telephone extension in the dialysis room • all calls to a hospital for advice or to arrange for repairs, and necessary and unavoidable costs to transport supplies.

The hospital official who approved installation must provide written documentation stating that the additions, renovations or alterations were necessary

ity amount for 2014 is $7,766 provided that it is certified by a qualified practitioner. Individuals under the age of 18 may also qualify for a supplement. The amount may vary by province or territory.

If you receive a transplant you will no longer be eligible for the credit, unless you qualify under a different type of disability (e.g., blindness). You may be able to claim the credit for the portion of that tax year that you were still on dialysis. For example, if you received a transplant on May 1, 2014 you may apply for the credit from January to April 2014.

Organ transplants

People may claim reasonable amounts paid to locate a compatible donor, to arrange the transplant including legal fees and insurance premiums, and reasonable traveling costs including board and lodging for the patient, the donor and their respective attendants. If the donor paid his/her own expenses, and was not reimbursed, the donor may be able to claim them on his/her own income tax return.

Refundable medical expense supplement

A refundable credit of $1,152 may be claimed by eligible working people with low incomes and high medical expenses. For more information see the General Income Tax and Benefit Guide available from CRA : www.cra-arc.gc.ca/E/pub/ tg/5013-g/5013g-14e.pdf (Line 452, page 60) Drugs and health products

Health Canada provides access to non-marketed drugs and medical devices that have not yet been approved for sale in Canada through its Special Access Programme (SAP) to doctors who are treating patients with serious or lifethreatening conditions where conventional therapies have failed, are unavailable or unsuitable. Further information is available at: www. hc-sc.gc.ca/dhp-mps/index-eng.php Disability Tax Credit

The Disability Tax Credit is a non-refundable tax credit that reduces the amount of income tax that may be owed by people with disabilities or the people who support them. The credit will reduce your income tax payable if you qualify.

If you have no tax payable, you may transfer the credit to a spouse or other supporting person.

We recommend that all dialysis patients apply for the Disability Tax Credit. The federal disabil-

20 / Kidney Living / Spring 2015

Important Note

The Disability Tax Credit Certificate (T2201) must be completed by a qualified practitioner (medical doctor, physiotherapist, etc.). In Part B under Life Sustaining Therapy, we suggest your doctor answer yes to the question: “Does your patient meet the conditions for life-sustaining therapy?” and specify the “type of therapy” as kidney dialysis to filter blood. The letter, “Addendum to the Disability Tax Credit Certificate” may also be helpful in explaining the diagnosis of End Stage Renal Disease and the time required for dialysis. 

Visit our website for the full tax tips information package with information about the Disability Supports Deduction, Family Caregiver Amount (new), Federal Excise Gasoline Tax Refund Program, Working Income Tax Benefit (WITB) and Registered Disability Savings Plan (RDSP).

Helpful Resources Kidney Foundation tax tips—www.kidney.ca/taxtips for further information, sample letters and quick links to information in the CRA guidelines, or call 1-800-387-4474 Ext.4971.

Volunteer Tax Preparation Clinics—Call 1-800-959-8281, or visit www.cra-arc.gc.ca/tx/ndvdls/vlntr/clncs/menu-eng.html Information for People with Disabilities—The booklet, Medical and Disability-Related Information – 2014 (Guide RC 4064 (E) Rev.14), contains detailed information on the Disability Tax Credit and Medical Expenses Credit and other deductions for which you may be eligible. The booklet is available from your local tax services office or on the internet at www.craarc.gc.ca/disability or in alternate formats at www.cra-arc.gc.ca/formspubs/hlp/bt_mltpl-eng.html or by calling 1-800-959-8281.

Registered Disability Savings Plan (RDSP)—A registered disability savings plan (RDSP) is a savings plan to help parents and others save for the long-term financial security of a person who is eligible for the disability tax credit. Further information about this plan is available at: www.cra.gc.ca/ rdsp.

www.kidney.ca/ontario

COMMUNITY HIGHLIGHTS

community highlights

Pictured here, Trenton Legion President, Red MacLean presents Kerry McCloy (The Kidney Foundation of Canada, Kingston Chapter) with a cheque for $500. Looking on is Norma Jean Henn, Chair of the Ways and Means Committee.

Thank You for Your Support Models (L to R) Dr. Patrick Luke, Dr. Alp Sener, Dr. Lakshman Gunaratnam, George Georgopoulos, Sheldon Aaron, Tim McKeiver, Brian Semkowski, Jason de Vos, Damian Warner, Scott Moir, Jim Kelly and Dr. Michael Strong

Service Clubs continue to be important supporters of The Kidney Foundation.

p

Celebrity Men in a Fashion Event p Oh, what a night! London’s Celebrity Men in a Fashion event was a tremendous success raising more than $80,000.

Artilicious u The first time event was a smashing

success with 20 restaurants contributing their scrumptious creations ranging from crab rangoons to cabbage rolls to arancini (rice balls). Fourteen artisans also sold their local handmade goods.

L to R: Nikica Begonja, Monika Babic and Sergeant Ray Turner serve up some delicious Ham and Cheese CrĂŠpes and Cabbage Rolls prepared by the Windsor Croatian Centre at the First Annual Artilicious on November 12, 2014 at the Caboto Club in Windsor.

Photo Credit: Eyes on Windsor www.kidney.ca/ontario

Spring 2015 / Kidney Living /

21

COMMUNITY HIGHLIGHTS

Reaching New Heights Dr. Christine Ribic (second from left) Dr. Azim Gangji (far right), with Brian and Katherine Boddington, Kidney Walk Captains and Caledonia Leadership Volunteers.

Hamilton Chapter’s 50th Anniversary Appreciation Event p Over 50 area volunteers and supporters attended the Hamilton Chapter’s 50th

Anniversary Appreciation event on October 16, 2014 at McMaster Innovation Park.

In addition to attendees receiving their 50th anniversary pin, Dr. Richard Austin and Dr. Christine Ribic presented their Foundation-funded research, providing attendees the opportunity to learn first-hand the impact of their support.

22 / Kidney Living / Spring 2015

q Eric and Charlene Van Hofwegen climbed Mount Kilimanjaro in December in honour of Charlene’s mother who had kidney disease. Prior to the climb, the Ottawa couple set up an online kidney page and raised over $3,000 for The Kidney Foundation of Canada.

Congratulations Eric and Charlene!

www.kidney.ca/ontario

COMMUNITY HIGHLIGHTS

For details about these and other events in your community, call The Kidney Foundation of Canada chapter nearest to you, or visit www.kidney.ca/ontario.

March

1-31 March is Kidney Health Month 7 31st Annual Serata Italiana Night, Ottawa 9 Tax Information Session, Hamilton 10 Kidney Connect Support Group, Kitchener 10 Tax Credits & CKD, Oakville 12 World Kidney Day 12 Tax Information Session, Hamilton 18 Kidney Connect Support Group, Oshawa 18 Keeping Your Kidneys Health Presentation, Bowmanville 23 Kidney Connect Peer Support Group, Mississauga 25 Kidney Connect Peer Support Group, Kitchener 25 Keeping Your Kidneys Health Presentation, Pickering 26 No Kidneying Around Annual Fundraiser, London 26 Blue and Green Soiree, Ottawa

April 2 9 15 15 16 23

May 2

12 20

25 27 28

June 4

Celebrity Men in a Fashion Event, Kitchener 10 Kidney Connect Support Group, Kitchener 13 9th Annual Ball Hockey Challenge, Hamilton 17 Kidney Connect Support Group, Oshawa 18 Kidney Connect Support Group, Kitchener

July 3

9 15 27

Tax Information Session, Hamilton Stand Up for a Cure, Comedy Night, London Kidney Connect Support Group, Kitchener Kidney Connect Support Group, Oshawa Spring Fling, Toronto Kidney Connect Support Group, Kitchener Ontario Branch Annual General Meeting Kidney Connect Support Group, Kitchener Kidney Connect Support Group, Oshawa

www.kidney.ca/ontario

Kidney Connect Peer Support Group, Mississauga Kidney Connect Support Group, Kitchener Celebrity Men in a Fashion Event, Sarnia

Christine Labrasceur Golf Classic, Sarnia 2015 Golf Challenge, London Kidney Connect Support Group, Oshawa Kidney Connect Peer Support Group, Mississauga

August 19

Kidney Connect Support Group, Oshawa

September

6-28 Kidney Walks 16 Kidney Connect Support Group, Oshawa 28 Kidney Connect Peer Support Group, Mississauga

October 21 21

Kidney Connect Support Group, Oshawa Celebrity Men Fashion Event, London

Ontario Branch 1599 Hurontario St., Ste. 201 Mississauga, ON L5G 4S1 1-800-387-4474 905-278-3003 kidney@kidney.on.ca African-Caribbean Kidney Association 1-800-387-4474 Ext. 4140 acka@kidney.on.ca Brampton 1.800.387.4474 ext.4120 Brant County 1.800.387.4474 ext. 4130 Central Ontario 1-800-387-4474/905-278-3003 kidney@kidney.on.ca Chinese Renal Association 1-800-387-4474 Ext. 4977 pchan@kidney.on.ca Eastern Ontario 613-724-9953/1-800-724-9953 bhill@kidney.on.ca Hamilton & District 1-800-387-4474 Ext. 4969 jfraser@kidney.on.ca Kingston 613-542-2121 kmccloy@kidney.on.ca Niagara & District 1-800-387-4474 Ext. 4969 jfraser@kidney.on.ca North Bay 1-800-387-4474 Ext. 4110 northbaykidney@gmail.com Northern Superior 807-624-2680 mharms@kidney.on.ca Sarnia-Lambton 519-344-3462 ehayter@kidney.on.ca Sault Ste. Marie 705-949-0400 tmcmillan@kidney.on.ca Southwestern Ontario 519-850-5362 rramzanali@kidney.on.ca Timmins-Porcupine 705-235-3233 tpkidney@ntl.sympatico.ca Windsor & District 519-977-9211 emuscat@kidney.on.ca Western Ontario (Kitchener/Waterloo) 1-800-387-4474 Ext. 4862 eturney@kidney.on.ca Spring 2015 / Kidney Living /

23

Join us this September and walk for someone you love.

Register online

www.kidneywalk.ca Canadian Publications Mail Agreement # 40011479

Postmaster: Please return undeliverable Canadian addresses to The Kidney Foundation of Canada, 1599 Hurontario St., Ste. 201, Mississauga, ON L5G 4S1