Kidney Link - Fall 2010

Kidney-Link

Health info

Volume 21 • No 2 • Fall 2010

Participation in The Kidney Walk reaches new heights On Sunday, May 16th, more than 1,000 people participated in The Kidney Foundation of Canada’s Kidney Walk in the Eastern Townships, Mauricie, Montreal, Québec City, and Saguenay/Lac-Saint-Jean, raising $145,000 in support of people living with kidney disease and to increase awareness of the need for organ donation. On behalf of all the patients, The Kidney Foundation of Canada would like to thank the sponsors, volunteers, and generous donors who participated is this year’s Kidney Walk.

Diabetes and Kidney disease

Québec Branch Newsletter

Estrie

Mauricie Montreal

Saguenay-Lac-Saint-Jean The foundation of kidney care

Québec

A Word from the President

Novelty….in continuity Annual General Meeting – Provincial Volunteer Awards 3

The leaves on trees have already started to turn colors, a sign that summer has come to an end. I hope you enjoyed your summer and made the most of every opportunity to rest and stock up on your energy.

Chapter News .................... 4 à 6

At The Kidney Foundation of Canada, Québec Branch, we made the most of summer and... secured full staffing.

Patient Services .......... 7

First and foremost, I am pleased to announce that Martin Munger has joined the Québec Branch team as Executive Director, replacing Miklos Fulop. Martin brings more than 15 years of experience working with charity organizations such as the Multiple Sclerosis Society of Canada and, more recently, Centraide of Greater Montreal, to list just a few.

Martin will be responsible for continuing the Branch’s Strategic Plan, including programs, patient services, and volunteer recruitment, an undertaking Miklos had already initiated.

Humanitarian Gift for Life Award ................ 8 Research ................... 9 Kidney-Car ............... 10

KIDNEY STORIES OF HOPE .................. 11 2

Kidney-Link • Fall 2010

Speaking of Miklos, we would like to express our sincerest appreciation to you for your dedication during the few years you spent with us. Your involvement and efforts have, assuredly, helped to move The Kidney Foundation of Canada forward in Québec.

I also would like to welcome Louise Deguire, our new Director of Communications at the Québec Branch. Louise joined the Branch last August, with the specific mandate to increase The Kidney Foundation of Canada’s visibility across Québec.

Finally, I cannot go without mentioning the 35 years of dedicated and loyal service to the Kidney Foundation by Linda Pellas, our Director of Development. Linda, your good humor and cheerfulness contribute to gathering and motivating all of the employees and volunteers around you. If the Québec Branch is what it is today, it is, in great part, thanks to your professionalism, your organizational skill, your determination, and your constant support… all of which you have demonstrated and should be proud of. On behalf of The Kidney Foundation of Canada’s beneficiaries, thank you very much, Linda.

Together we can make a difference

Martin Munger, Executive Director of The Kidney Foundation of Canada – Québec Branch

Provincial Volunteer Awards

Celebrating our volunteers On May 1-2, 2010, The Kidney Foundation of Canada, Québec Branch, gave out its provincial awards at its AGM in Sherbrooke to celebrate its volunteers’ and Chapters’ outstanding contributions in 2009.

Provincial Awards

• President’s Award: Claude Pigeon

• Morty & Harry Tarder Award – Chapter of the Year: Abitibi-Témiscamingue

Claude Pigeon (right) – The President Award

• Door-to-Door Campaign Award: Drury Allen and Claudette Grenier

• Marcel Dufresne Award: Lévi Trottier

• Organ Donation Award: Richard Tremblay (President, Canadian Organ Donors Association - CODA)

• Jean-Jacques Bégin Award: Dr Pierre Cartier • Michel Perron Award: Fondation Gauthier

Chapter Volunteer Awards

Nelson Bellavance and Gisèle Goulet (right) are pleased to receive the Morty & Harry Tarder Award – Chapter of the Year on behalf of the Abitibi-Temiscamingue Chapter.

• Abitibi-Témiscamingue: Françoise Gauthier • Montreal-Metropolitain: Jean-Yves Sirois

• Québec – André Mainguy Award: Dr Simon Desmeule

• Saguenay-Lac-Saint-Jean: Esther Girard

Gaétan Rhéaume (left) accepts the award on behalf of Drury Allen and Claudette Grenier, who were not present at the AGM.

Kidney-Link • Fall 2010

Your donation goes a long way at The Kidney Foundation

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Chapter news ABITIBI-TEMISCAMINGUE

The 2010 Door-to-Door & March Campaign Lévi Trottier, Campaign President and Michel Perron, Honorary President, were delighted with the 2010 campaign results, having raised more than $47,000, which surpassed the initial objective of $40,000.

Lévi Trottier wishes to thank the 230 volunteers who go over and above the call of duty and all the generous donors for their constant support.

Within the framework of this campaign, a brunch was organized and welcomed some 225 volunteers and supporters. This event took place on March 28, at Pavillon des sports, Dupuy.

ESTRIE

From left to right – Lise Langlois, Nicole Gauthier, Michel Perron, Nelson Bellavance, Joëlle Turck, Lévi Trottier and Luc Trottier

A Coffee Club Meeting was held on tax credits for kidney, dialysis, and transplant patients The first Kidney Patient and Family Support Coffee Club Meeting was held on February 24th. The two guest speakers, Mr. Stéphane Drouin and Mr. Alexandre Rouleau, tax experts at Raymond Chabot Grant Thornton, answered questions from participants on the topic of “Tax credits for kidney, dialysis, and transplant patients”.

Kidney patients attended this first Coffee Club Meeting despite the storm.

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Kidney-Link • Fall 2010

We're behind you all the way

MONTREAL-METROPOLITAIN

Chapter news

The Laval Police Annual Spaghetti Day The Laval Police 25th Edition of the Spaghetti Day, was held at the Sheraton Laval Hotel on June 6th. More than 3,500 people turned up for this annual tradition, raising more than $60,000 for The Kidney Foundation of Canada’s Summer Camp for Québec Dialysis and Transplant Children.

Thanks to the large number of participants the funds raised enabled 60 transplant and dialysis children to spend one

week in summer camp supervised by a specialized medical team – quite a change of scenery for all of them.

On behalf of all children living with kidney disease, The Kidney Foundation of Canada would like to thank the Laval Police for their invaluable and continued support.

SAGUENAY-LAC-SAINT-JEAN Kidney Patient Coffee Club Meetings The Kidney Foundation of Canada, Saguenay-Lac-SaintJean Chapter, organized two Coffee Club Meetings, which were very much appreciated by kidney patients present.

A Hemodialysis Nurse spoke on different matters of concern, giving the patients an opportunity to exchange ideas on their disease. The date of the 3rd Coffee Meeting, scheduled for the Fall, will be posted shortly on the Foundation’s website at www.kidney.ca/quebec.

Together we can make a difference

Kidney-Link • Fall 2010

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Chapter news QUÉBEC

Golf Tournament The Golf Tournament took place on May 28th, at Le Montmorency Golf Club. This 15th Edition was held under the Honorary Chairmanship of Carl Viel, CEO of Pôle Québec Chaudière-Appalaches.

Over 100 golfers took part, raising $32,000.

The Kidney Foundation of Canada, Québec Chapter, extends its appreciation to all the sponsors and participants.

Carl Viel, CEO, Pôle Québec ChaudièreAppalaches, and Gaétan Rhéaume, President, Québec Chapter.

The Honorary Foursome

E s t r i e Je a n - J a c q u e s B é g i n O y s t e r Pa r t y : O c to be r 8 , 2 0 1 0

Reserve the date 6

Kidney-Link • Fall 2010

C O DA C e r e m o n y – L i v i n g D o n o r s Tr i b u t e : O c to be r 2 2 , 2 0 1 0

“Soul Of Hope” Concer t in Sa int-Hy acinthe : O c to be r 2 3 , 2 0 1 0 Founde r’ s Aw ar d Gala : No ve mbe r 24, 2010

Your donation goes a long way at The Kidney Foundation

Health Inf0

The Kidney Foundation of Canada, Québec Branch

Volume 21 • No 2 • Fall 2010

Diabetes and Kidney disease

There are several types of kidney disease. Some are hereditary, while others develop with age. Currently, we don’t know with certainty what causes specific kidney diseases.

However, diabetes is one of the principal causes in 40% of kidney failure cases. This percentage is even higher in new patients belonging to specific cultural communities at risk of developing kidney disease.

What is diabetes?

Diabetes is a disease resulting from a lack of insulin in the body or from the body’s inability to adequately use normal quantities of insulin.

What is the function of insulin?

The body transforms the food we consume into sugar (glucose) and then uses it, in the form of energy, to fulfil all of its functions. Insulin – the hormone secreted by the pancreas – regulates the level of glucose (sugar) in the blood. If the body lacks insulin or fails to use it properly, an imbalance results, producing elevated levels of blood sugar. In time, various organs, including the kidneys, may suffer the harmful consequences of this imbalance.

Are there different types of diabetes?

Yes. Several types exist. The most common are type l and type ll diabetes.

Type I • Is caused by an inability on the part of the pancreas to produce an adequate amount of insulin.

• Requires regular insulin injections.

• Represents 10% of diagnosed cases.

Type II • The pancreas may produce insulin, but the body does not succeed in using it adequately.

• Represents 90% of diagnosed cases.

Type II diabetes leading risk factors in adults • Diabetes in a parent (father, mother, sister, brother).

• Overweight, namely in the waist size.

HEALTH INFO • Fall 2010

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Health Inf0 • Being a member of a population at high risk (Aboriginal, Latino-American, Asian, or African).

• Having had a pregnancy diabetes.

• Having had a baby weighing over 9 lbs.

• After 40, the risks of developing diabetes are more important.

Intensive treatment can also slow the progression of the disease, regardless of its stage. Annual monitoring of kidney function, including urine protein, is now recommended for purposes of diagnosing and treating diabetic kidney disease in its early stages. At an advanced stage of the disease, the blood sometimes loses so much protein that water contained in the blood filters into the body tissues Symptoms and causes swelling (oedema). After a number of The symptoms, when present, are similar to type years, the kidney filters may become so severely daI diabetes: maged by diabetes that the kidneys will cease to function completely. Renal replacement therapy is • Fatigue, drowsiness therefore imperative. Note that smoking can also • Frequent urination damage the blood vessels and thereby exacerbate • Excessive thirst complications related to diabetes. Persons with dia• Extreme hunger betes are therefore urged to quit smoking.

• Weight loss Nerve lesions • Blurry vision Diabetes can also cause nerve damage to various • Cuts or sores slow to heal parts of the body. When the bladder is affected, • Genital organs infection urination may be difficult. The pressure resulting • Fingers and feet prickling • Irritability Among recommended treatments are proper nutrition, exercise and medication (pills, insulin injections or both).

How does diabetes affect the kidneys?

• 650,000 people have diabetes

Lesions in the blood vessels

• Among them, almost 200,000

Even if they take insulin injections, persons with diabetes eventually develop lesions in the small blood vessels. These lesions may be localized in the eye retina and can thereby provoke a loss of vision.

They can also affect the fragile blood vessels in the kidney filters. In the initial phase, the damage is revealed by the presence of proteins in the urine. Increasingly elevated urine protein levels point to a progressive deterioration of kidney function. As the disease progresses, so too does the amount of protein in the urine. The sooner that treatment begins, the better the chances are of stemming the progress of the disease.

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According to Québec Diabetes, it is estimated that in Québec:

HEALTH INFO • Fall 2010

(almost 9% of the adult population).

(30%) do not know it.

• Every year, it is estimated that

almost 25,000 people will have diabetes.

• According to the World Health

Organization, diabetes cases may double in the year 2025 if no preventative action is taken.

Health Inf0 from the build-up of urine in the bladder may pro- regularly awarded grants and bursaries to researvoke lesions in the kidneys. chers whose intent is to conduct in-depth studies of the phenomenon. In fact, we have noted a Infections steady increase in the amounts allocated to this Infections develop rapidly in persons with dia- area of research on a yearly basis (see chart betes. The latter have a strong concentration of below). sugar in their urine, which promotes the proliferation of bacteria and can provoke renal infections.

Can diabetes be prevented?

If these infections – particularly urinary tract infections – go untreated, there is a risk of damage to Contrary to type l diabetes, type ll diabetes can be the kidneys. Persons with diabetes are therefore ad- prevented. vised to be vigilant with any infection and to have Nutrition it treated immediately.

The factors contributing to the onset of type What about research…?

II diabetes are well known: Age, family history Since its inception in 1964, The Kidney Founda- of diabetes, obesity and inactivity. As well, tion of Canada has invested over 100 millions dol- some studies show that a high-fat diet can also lars in high level renal health research projects. be a risk factor. However, no one is completely invulnerable to diabetes – even persons with As diabetes is among the leading causes of new healthy lifestyle habits. cases of kidney failure, it is important that the Foundation support research projects in this area. A balanced and varied diet is necessary to prevent Over the years, therefore, the Foundation has a disease like diabetes. This can be achieved by

Investment in research

by The Kidney Foundation of Canada in 2009

HEALTH INFO • Fall 2010

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Health Inf0 opting as often as possible for foods low in fat, rance of precursors of the disease, or if you are sugar and salt, and by increasing consumption of concerned about your state of health, do not foods rich in fibre. hesitate to speak to a health professional, who will be able to advise you.

Physical activity Recent studies have demonstrated that even a slight increase in physical activity can provide health benefits, particularly among persons who are inactive. Just 30 minutes of exercise per day are all that’s needed! Physical activity increases metabolism: By being more active, we expend more energy. And for the person with diabetes, this means improved use of insulin, be it injected or produced by the pancreas.

In the case of a disease like, you may be inclined to believe that nothing can be done to avoid it. Fortunately, we now know that persons with type ll diabetes can take concrete actions to delay its onset and reduce its severity.

Proper management of the condition, i.e., ensuring that blood sugar levels are good before and after meals, should help to keep the kidneys healthy. However, if you notice the appea-

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HEALTH INFO • Fall 2010

For additional information, contact The Kidney Foundation of Canada at (514) 938-4515 or 1-800-565-4515.

References: 2010 CORR Report - Treatment of End-Stage Organ Failure in Canada 1999 to 2008 La Fondation canadienne du rein – 2009 Annual Report Québec Diabetes: http://www.diabete.qc.ca A word of thanks goes out to Dr. Pierre Nantel, medical advisor at the Québec Branch of The Kidney Foundation of Canada and nephrologist at Centre hospitalier Hôtel-Dieu, Sorel, for his invaluable collaboration in drafting this document.

PAT I E N T

Services

To obtain documentation or information on programs offered by The Kidney Foundation, please visit its Web site at www.kidney.ca/quebec and click on “Patient Services” or “Organ Donation” You may also contact:

Summer camp for Québec dialysis and transplant children

Hélène Boisvert, Director of Programs The Kidney Foundation of Canada Québec Branch 2300 René-Lévesque Blvd. West Montréal (Québec) H3H 2R5 Tel.:(514) 938-4515, extension 224 or 1 800 565-4515.

Email: helene.boisvert@rein.ca

Financial support program

This program is offered to hospitals to help patients in emergency situations, as a last resort. It can help with the reimbursement of expenses incurred by patients, such as for travel, accommodation, or food items prescribed for their diets. It can also help buy certain supplies or materials necessary for home peritoneal dialysis (e.g., a scale, a Sphygmanometer, Solution Swabsticks). In some cases, this program has helped cover patients’ Christmas Party costs.

Departure for the Camp of a number of children from the Montreal Children's Hospital on August 9.

The Summer Camp for Québec Dialysis and Transplant Children of The Kidney Foundation of Canada, Québec Branch, was held from Monday, August 9, to Sunday, August 15, 2010. Over 60 children attended the camp this year, supervised by a specialized medical team.

For most of them, this is the only week parents can have a rest during the year and the only vacation week these children will have.

The Kidney Foundation of Canada would like to thank the Laval Police who, through the funds raised at the Spaghetti Day, make this camp possible.

Voyage of a lifetime to Walt Disney World in Florida for children from Québec undergoing dialysis or transplants Again this year, The Kidney Foundation of Canada, Québec Branch, was chosen to participate in the “Dream Vacation” activity. Four children, two from Sainte-Justine Hospital and two from Montreal Children's Hospital, will be able to experience the joy of discovering Walt Disney World in Florida.

This wonderful trip, to take place in November 2010, is made possible thanks to Air Canada employees.

We're behind you all the way

Kidney-Link • Fall 2010

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Organ Donation

Humanitarian Gift for Life Award For the 4th Edition of The Gift for Life Award, The Kidney Foundation of Canada presented the award to La Maison Verte restaurant. This award recognizes the ongoing humanitarian efforts of a company that supports, in various ways, the kidney transplant or donation process for one or more of its employees. This restaurant, located near Sainte-Geneviève, counts among its ranks Mrs. Monique Cardinal, who gave the gift of life to her brother in 2005.

We congratulate the award recipient and thank all the employees who submitted applications. We invite them to participate in the next edition of the Humanitarian Gift for Life Award by registering at www.rein.ca/quebec. Just click on “Organ Donation” on the left side of the screen.

CODA ceremony

From left: Monique Cardinal, who gave the gift of life to her brother, Jacques Cardinal, in 2005.

Claude Proulx, President, Public Awareness Committee, The Kidney Foundation of Canada.

Eric Gosselin, The Gift for Life Award 2010 recipient on behalf of La Maison Verte restaurant.

Denise Cardinal, Jacques Cardinal’s widow

The CODA Ceremony will be held, in partnership with The Kidney Foundation of Canada, on Friday, October 22nd in Sherbrooke and will honour the memory of those who donated their organs posthumously.

In view of making our Newsletter more inspiring with stories of hope, we would love to receive your testimonials. Tell us about your kidney transplant story and you might see it printed in our newsletter, which is distributed throughout Québec.

It will also be an opportunity to celebrate the heroic gestures of living donors.

If you received an organ transplant as a result of the generosity of someone who you would like to honour, complete the form found on our website at www.rein.ca/quebec. Just click on “News and Activities”, on the left hand side of the screen.

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Kidney-Link • Fall 2010

Testimony research

We're behind you all the way

We invite you to send your story in writing, in 300 words or less, and include a high resolution picture, to the following email address: antoine.ardiley@rein.ca.

We are eager to read about you!

research

Canadian Study Finds Chronic Kidney Disease Screening Could Increase Early Disease Management and Public Health According to a study published in the Journal of the American Medical Association (JAMA) by Dr. Brenda Hemmelgarn and colleagues of the Alberta Kidney Disease Network, the reporting of estimated Glomerular Filtration Rate (eGFR) – a measurement of the kidney’s ability to filter waste products – increased first time visits to kidney specialists, especially for middle aged to elderly patients, patients with more severe kidney dysfunction and those with co-morbidities, such as hypertension and diabetes.

adults in a province-wide database. The same research group published an earlier study showing that a lower eGFR is associated with an increased risk of negative outcomes.

nuria associated with increased risk of kidney failure” posted on our website at www.kidney.ca/research under “Research News”.

We also invite you to read the article “Reduced kidney function with protei-

Together these studies underscore that CKD is common and requires referral to a specialist.

Sunny Hartwig, Ph.D.

This news is notable because Chronic Kidney Disease (CKD) is an important and increasing public health problem that could be more effectively addressed and treated by early patient and physician awareness. In fact, early detection and appropriate interventions could stem chronic kidney disease progression – or even reverse it.

“An extremely important measurement of kidney function is estimated eGFR”, says Paul Shay, National Executive Director, The Kidney Foundation of Canada. “People at risk for kidney disease should know their eGFR just as people at risk for cardiovascular disease know their blood pressure.”

A low eGFR is an indication of reduced kidney function. Estimated GFR is calculated using a formula based on age, gender and the result of a blood test (serum creatinine) to estimate kidney function. Creatinine is a natural waste product of body muscle. High levels in the blood or serum tests coupled with other risk factors, is an important indicator of an individual’s kidney health or possible kidney damage.

This Canadian study, funded by The Kidney Foundation of Canada and the KRESCENT Program, and published in March 2010, is based on information of more than 1,000,000

We are pleased to announce that Sunny Hartwig, new researcher at the University of Prince Edward Island, has agreed to write a blog for The Kidney Foundation of Canada on her experiences and new mission.

She obtained her Ph.D. from the University of Toronto and completed her PostDoctoral Fellowship with Dr. Jordan Kreidberg, at the Children’s Hospital Boston, Harvard University.

In her research, Dr. Hartwig studies SoxC genes in early kidney development and their role in the coordination of cell specification and differentiation in non-renal tissue. Their role in the developing kidneys has not been determined nor has their function in the kidney. Dr. Hartwig’s study will define the critical role of the Sox and WT1 genes in children kidney development and will provide new insights in the development of Wilm’s Tumour, and lay the foundation for new therapeutic strategies that will treat, reverse and ultimately prevent kidney disease in these children.

To read more on Sunny Hartwig, and on other bloggers, please visit our website at www.rein.ca, “News & Activities” (blogs) To communicate with Sunny: blogs@kidney.ca

Together we can make a difference

Kidney-Link • Fall 2010

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this and that

THE KIDNEY CAR PROGRAM Donate your old or unwanted vehicle to The Kidney Foundation of Canada and help support medical research on kidney diseases and services offered to kidney patients and their families. By doing so, you will also contribute to organ donation promotion.

Vehicles are disposed of in an environmentally friendly manner; the car as well as the tires, battery and oil are recycled. It’s an easy way to get rid of an unwanted vehicle while helping a good cause.

By donating your used vehicle to Kidney Car, not only The Kidney Car Program is a fundraising initiative of The will you benefit from free towing but you will also get a Kidney Foundation of Canada and started in 1995 in Québec. tax receipt.

The process is very simple: If you want to get rid of your old vehicle, donate it to The Kidney Foundation of Canada.

Seventeen (17) Québec recyclers working in partnership with the Foundation will come and tow it free of charge.

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Kidney-Link • Fall 2010

Kidney Car is a simple, convenient way to make a difference in the lives of people living with kidney disease. For further information or to donate your vehicle now, call the kidney Car Line: 1-888-228-867.

Together we can make a difference

this and that FACING T HE FACTS

KIDNEY STORIES OF HOPE

Did you know that… *in Québec, 1,200 people are waiting for an organ donation, 75% of which are waiting for a kidney transplant? **90% of Québecers are in favour of organ donation but only 55% have taken action to donate their organs?

Liz MacRae and her mother Edna

and that diabetes is one of the leading causes of kidney disease? ***every year, in Québec, it is estimated that approximately 25,000 people will have diabetes? * As per December 2009 ** A Léger & Léger survey done in 2008 *** Reference: Québec Diabetes

Congratulations to Liz MacRae, the “Kidney Stories of Hope” competition winner in Québec!

The Canadian campaign “Kidney Stories of Hope” invites those affected by kidney disease to tell us about their kidney experiences.

Each of the five winners – from British Columbia, the Prairies, Ontario, Québec and Atlantic Canada – received a $500 award from The Kidney Foundation of Canada thanks to an unrestricted grant from Shire Canada.

To read Liz MacRae’s moving story, as well as other stories by province, please visit our website at www.kidney.ca.

PFIZER’S GENEROUS CONTRIBUTION TO THE KIDNEY FOUNDATION OF CANADA’S KIDNEY WALK For the third consecutive year, Pfizer has renewed its involvement with The Kidney Foundation of Canada’s Kidney Walk by contributing $10,000. The Walk took place on May 16, 2010, at Parc La Fontaine, Montreal. We extend our appreciation to Pfizer.

Right – Louise Hébert, Pfizer, presenting a $10,000 cheque with the physicians involved in The Kidney Foundation of Canada’s Walk looking on.

Kidney-Link • Fall 2010

Your donation goes a long way at The Kidney Foundation

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T he mi ss io n o f T h e K i dn e y Fo u nd ati on o f C a n ad a The Kidney Foundation of Canada is the national volunteer organization committed to reducing the burden of kidney disease through: • funding and stimulating innovative research; • providing education and support; • promoting access to high quality healthcare; and • increasing public awareness and commitment to advancing kidney health and organ donation.

Québec Branch 2300, René-Lévesque Blvd. West Montréal (Québec) H3H 2R5 Tel. : (514) 938-4515 1 800 565-4515 Fax : (514) 938-4757 info@reinquebec.ca

www.kidney.ca/quebec

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Detach and fill out this form and use the return-envelope included with the newsletter to mail it. Thank you for affixing a stamp.

This stamp helps reduce our costs and is actually an additional donation.

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Kidney-Link • Fall 2010

Your donation goes a long way at The Kidney Foundation