COVER: Hasbro Children’s patient Sebastian with his brother. Read about how a dedicated team, led by Petra M. Klinge, MD, PhD, and Rishi R. Lulla, MD, MS, helped him overcome a brain tumor diagnosis at just 22 months on pages 4-5.
ABOVE: Emma and her mother getting ready to leave the intensive care unit and graduating from the Ventilator Integration Program.
he future of pediatric medicine is shaped by the extraordinary collaboration between the dedicated teams at Hasbro Children’s and the generosity of our supporters. Together, we ensure that every child who comes through our doors receives the best care possible.
We are constantly inspired by the courage and compassion that surround us—whether through medical breakthroughs, the tireless efforts of our clinicians and staff, or the unwavering support from our community. Each act of kindness and every advancement in care creates a ripple effect, transforming lives and offering families hope and strength.
We hope you enjoy reading the many stories of hope and healing in this issue of Healthy Futures, starting with Sebastian’s (on page 4). It’s thanks to the generosity of donors like you, that we continue to push the boundaries of innovative treatments and services, ensuring that children like Sebastian receive not only the medical care they need but also the emotional and psychological support crucial to their healing.
It is with heartfelt gratitude that we share this magazine with you. Thank you for the vital role you play in making this possible.
PHYLLIS A. DENNERY, MD
Pediatrician-in-Chief and Medical Director, Hasbro Children’s Sylvia Kay Hassenfeld Professor and Chair of Pediatrics, The Warren Alpert Medical School of Brown University
AROGER BEGIN
Interim Chair, Rhode Island Hospital Foundation Board of Trustees
FRANÇOIS I. LUKS, MD, PHD
Pediatric Surgeon-in-Chief, Hasbro Children’s Professor of Surgery and Pediatrics Chief, Division of Pediatric Surgery, The Warren Alpert Medical School of Brown University
s I reflect on this past year, I am reminded of the incredible impact our supporters, leaders, clinicians, and caregivers have made in advancing the mission of Rhode Island Hospital and Hasbro Children’s.
This is a time of transition and reflection, and it is impossible to look back without recognizing the steadfast leadership of Bob Vincent as Chair of the Rhode Island Hospital Foundation Board of Trustees. His quiet strength, dedication, and vision have guided us through pivotal moments, and his influence will continue to shape the future of our community. Bob’s deep commitment to the well-being of children and families has been a true example of what it means to serve, and we are forever grateful for his contributions— to Rhode Island Hospital, and to many organizations that support education, medicine, and human welfare across the state.
Looking ahead, we have begun an exciting new chapter as Brown University Health. This academic partnership will help sustain critical research, enhance patient programs, and teach the next generation of physicians—you can learn more about that within the pages of this magazine. It is a pivotal time for our hospitals and our health system, and an opportunity for all of us to get behind the ongoing work.
I am certain that together, as a community of supporters and ambassadors, we will ensure Rhode Island Hospital and Hasbro Children’s continues to be a pillar of excellence for generations to come.
When 22-month-old Sebastian Scolamiero’s playful energy began to wane, his parents
Stephen and Mary noticed some other subtle but concerning changes in their son. Their typically vibrant toddler became unsteady and began to hesitate, clinging tightly to their hands—unwilling to run or jump as he normally would. Alarmed, the Scolamieros brought Sebastian to see his primary care physician who referred them to a neurologist.
Weeks later, on April 28, 2023, everything changed.
While at work as an intensive care nurse, Mary received the call that would rearrange their world. Sebastian’s daycare reported that he had experienced shaky movements upon waking from a nap, prompting them to call 911.
“I’ll never forget that day,” Mary recalls. “One moment, everything seemed fine. The next, our lives were turned upside down.”
Initial assessments at Newport Hospital’s emergency department seemed hopeful. But a CT scan unveiled a devastating reality: Sebastian had a large mass in his brain. Stephen and Mary grappled with shock and disbelief.
Plans were made quickly to transport Sebastian to Hasbro Children’s. Upon arrival, he was whisked off to the Pediatric Intensive Care Unit, where the medical team prepared for an extensive MRI to assess the tumor.
Amidst the chaos and uncertainty, Laura Moynihan, LICSW, a clinical social worker at Hasbro Children’s, became a beacon of hope for Sebastian’s parents. Though her shift had ended, Laura chose to stay, offering Stephen and Mary solace and comfort. When complications arose leading to a code blue, Laura remained by their side, her presence a calming anchor in a storm of uncertainty.
“Laura was our lifeline,” says Stephen. “Without her, it would have been astronomically worse. She provided the emotional support we desperately needed.”
Sebastian underwent multiple surgeries, including the removal of the brain tumor and the placement of a shunt. Throughout this difficult journey, the family felt confident in the multidisciplinary team whose dedication went far beyond medical expertise.
Among others, the Scolamieros are tremendously grateful for the extraordinary commitment of Petra M. Klinge, MD, PhD, Director of Pediatric Neurosurgery, and Rishi R. Lulla, MD, MS, Director of Pediatric Hematology/Oncology.
Both Dr. Klinge and Dr. Lulla reviewed initial results with Mary and Stephen. “They sat down and went over all the imaging to show us the tumor. They broke everything down for us, showed us the MRI images, and answered all our questions. You could tell they genuinely cared,” shares Mary.
Dr. Klinge interrupted her vacation to oversee Sebastian’s care. “She came in like a fresh wind,” Mary reflects. Stephen adds, “She apologized for not being there sooner, even though she was on vacation. She stayed with us for days after the surgery to ensure Sebastian was stable. Her dedication was beyond anything we expected.”
The Scolamieros continue to look to Dr. Lulla for his expert opinion on Sebastian’s imaging results. In one instance, Dr. Lulla called Stephen and Mary after one scan indicated a tumor reoccurrence—even before their office visit—to report that he was gathering a tumor review committee to look further into the MRI results. The results were ultimately negative. “We trust him completely,” says Mary.
The nursing staff also left an indelible mark on the family’s hearts. Knowing Sebastian’s love for Minions, one nurse drew a picture of the cheerful yellow characters and taped it to his crib. That simple act of kindness meant the world to them. “We have it framed and hanging in his room,” Mary shares, tears welling up. “It’s a constant reminder of the compassion we experienced.”
Sebastian’s care extended beyond neurosurgery. Endocrinologist Kevin J. Scully, MD, closely monitored Sebastian due to the tumor’s proximity to his pituitary gland. A damaged or compromised pituitary gland could pose challenges, like diabetes insipidus—a condition where the body cannot regulate water balance, leading to excessive urination and extreme thirst. However, with careful management and individualized care, Sebastian thrived.
The Tomorrow Fund Clinic became another pillar of support, offering continuous care and resources. In addition, the ophthalmology team coordinated procedures to minimize Sebastian’s stress by scheduling them alongside his routine MRIs while he was under sedation. Throughout their journey, the family felt grateful for the integrated approach taken by Hasbro Children’s.
“We are forever grateful to everyone who played a part in Sebastian's healing.”
—Mary Scolamiero
“Hasbro Children’s didn’t just treat Sebastian’s medical condition; they cared for his emotional well-being and ours,” Stephen shares. “Every person made a profound difference. Their empathy and dedication saved our son’s life and guided us through an unimaginable situation.”
Today, Sebastian is a thriving three-year-old, full of energy and joy. Just a day before his third birthday, he celebrated his one-year tumor-free milestone—a momentous occasion marked with a grand celebration. “He’s remarkable,” his mother beams. “He loves riding his bike, playing with friends, and he’s known as the ’Best Hugger’ at daycare.”
The journey has not been without its challenges. Sebastian experiences PTSD related to medical environments, a testament to the trauma he has endured. But with the support of Child Life Services and creative strategies like visiting the hospital’s playground, his anxiety is gradually diminishing.
As they look to the future, the Scolamieros are focused on supporting Sebastian’s growth and happiness, even as they continue to navigate related health challenges. Laura, ever the supportive presence, continues to stay connected, sharing resources and celebrating milestones with them.
“We’ve been through so much, but we’re stronger for it,” Mary reflects. “Sebastian has taught us about courage and the power of kindness. We are forever grateful to everyone who played a part in his healing.”
On the final day of September, and representing the culmination of National Sickle Cell Awareness Month, Hasbro Children’s and Brown University Health received a major funding boost to help advance care for patients with the life-threatening blood disorder affecting more than 100,000 Americans and millions more worldwide.
The funding comes in the form of the first-ever “Million Dollar Innovation Grant” awarded by the Papitto Opportunity Connection (POC), a local nonprofit foundation committed to creating systemic change in Rhode Island through its community investments.
For patients suffering with sickle cell disease, life is marred by tremendous uncertainty and bouts of frequent and unbearable pain. Adding to their struggle is difficulty accessing care, fewer resources, and a lack of systems that support the needs of these vulnerable patients, especially as they move from childhood to adolescence, and through adulthood. Nearly all patients with sickle cell disease are Black or Latino, and nationally the disease is woefully understudied and underfunded compared with other chronic conditions.
“Papitto Opportunity Connection was founded on the premise of creating real change in communities with the most need in Rhode Island,” said John Tarantino, Managing Trustee of the POC. “This funding to expand the Comprehensive Sickle Cell Program will directly address the inequity in healthcare faced by those who suffer from this chronic disease.”
Thanks to the POC’s significant grant, the Comprehensive Sickle Cell Program will enhance its support of those living with sickle cell disease. A particular focus will be placed on ensuring access to equitable, patient-centered care during the transitional years that bridge pediatric to adult care, where traditionally there have been a lack of programs.
“For too long, sickle cell disease has been ignored and not made a priority within the healthcare system in Rhode Island and across our country,” said Patrick McGann, MD, Director of the Brown University Health Comprehensive Sickle Cell Center at Rhode Island Hospital and Hasbro Children’s. “This grant from the Papitto Opportunity Connection is a testament that we are taking sickle cell seriously and will continue to strive to make Rhode Island the best place to receive sickle cell care in the world through innovative and patient-centered solutions.”
Hasbro Children’s has earned a prestigious spot on Newsweek’s 2024 list of America’s Best Children’s Hospitals for pediatric endocrinology. To gain insight into this achievement, we spoke with Jose Bernardo Quintos, MD, Director of the Diabetes Outpatient Education Center and Chief of Pediatric Endocrinology and Diabetes at Hasbro Children’s.
Dr. Quintos, congratulations on the recognition from Newsweek . What does this accolade mean for your team and for patients?
Thank you! This recognition is a testament to the dedication and expertise of our team and underscores our commitment to top-tier clinical care and innovative research in treating endocrine and diabetes disorders. It also validates our approach of treating each child as an individual while pushing the boundaries of research to better understand and manage endocrinological issues.
What factors contributed to Hasbro Children’s receiving this notable ranking in pediatric endocrinology?
I believe that several factors contributed to this recognition. Our team’s deep commitment to personalized care most definitely played a significant role. We also emphasize innovative treatment strategies and research efforts.
Can you share any recent advancements or innovations that have impacted patient care?
We have advanced clinical practice and research, introducing new therapies and refining treatments based on the latest findings. Notably, our participation in the Trial Net Pathway to Diabetes Prevention research consortium contributed to finding a breakthrough drug that delays disease onset in children at risk of developing Type 1 diabetes.
How does this recognition influence future goals and initiatives for pediatric endocrinology?
This accolade motivates us to continue improving and innovating. We plan to expand our research efforts, enhance our treatment approaches, and further our commitment to patient-centered care. It also encourages us to focus on growing our department and expanding access for patients and families.
Molly Helms: From Patient to Provider
Molly Helms, LCSW, has come full circle in her journey with Hasbro Children’s. As a former patient who was treated as a teen for Type 1 diabetes, Molly experienced firsthand the care and compassion that defines Hasbro Children’s.
“I remember feeling overwhelmed about my diagnosis as a teenager,” Molly recalls. “The support from the team at the hospital was incredible and made a huge difference in my life.”
Today, Molly channels that experience into her work as a dedicated social worker at Hasbro Children’s. In this role, she assists patients and families who are navigating the complexities of their own health challenges—be it Type 1 diabetes or other endocrine disorders.
On the topic of the lasting impact of the family-centered care she received at Hasbro Children’s, Molly says, “My mother still asks about my doctors and follows their work.”
Molly shares, “Being on the other side now, I understand how crucial it is to have someone who truly gets what you are going through. I am grateful for the chance to give back and support others in the same way I was during my treatment.”
You’d be hard-pressed to find an area of Hasbro Children’s or one of its programs that hasn’t benefited from the support of Dunkin’, its Joy in Childhood Foundation, or its generous local franchisees.
For years, this tripartite powerhouse for good has made a difference for the hospital and in the lives of patients and their families, supporting everything from areas of greatest need and annual Heroes Ball to the Healing Arts and so much more. But when you’re wholly dedicated to helping kids, you find ways to do even more, and that’s just what Dunkin’ has done.
Perhaps most exciting is the addition of Cora—a now oneyear-old Portuguese Water Dog—to the hospital’s staff as its first-ever, in-residence, facility comfort dog. Cora, along with her specialized training, was made possible by a grant from the Dunkin’ Joy in Childhood Foundation’s “Dogs for Joy” program. While Hasbro Children’s is fortunate to have incredible volunteer therapy dogs and their owners who bring smiles to kids’ faces, Cora’s role is different . . . and especially unique.
Wearing a hospital badge on her harness to identify herself as an employee, Cora comes to work each day with a wide range of ways she can make an impact on young lives. Being an in-residence facility dog allows Cora to be an active participant in a child’s medical experience. This means she’s able to be present and provide comfort during sensitive medical conversations. She also can offer companionship to help make patients’ transition from one unit in the hospital to another easier or sit calmly so a child working on their motor skills can brush her.
But what might be most impressive is Cora’s trained ability to demonstrate what young patients can expect during their upcoming medical test or procedure. She can show what it’s like to get on the CT scan table and lay on it, or how getting an IV works. Cora can ‘undergo’ an ultrasound so kids can be introduced to its wand and see it in action before their turn. And staff can even demonstrate for a parent holding their child in a comfort position by modeling it with Cora. Cora goes home each evening with one of her certified handlers— Hasbro Children's Manager of Child Life Services Micaela Materne or Certified Child Life Specialist Karen Swartz.
“Cora is here to help children cope with their hospital experience. That may be giving a patient the motivation they need to get out of bed and take a walk down the hall with her by their side,” says Micaela. “She lifts spirits everywhere she goes, and that has a significant impact on the patient experience and in making kids feel more comfortable. What Dunkin’ and local franchisees have done for our hospital and our patient families is simply incredible.”
Dunkin’s most recent philanthropy, however, didn’t stop with Cora. Just this past year, the generosity of the Joy in Childhood Foundation and local franchisees gave teens living with chronic illness a night they’ll never forget and transformed a special space inside the hospital.
On a gorgeous night in May, Hotel Providence came alive as the hospital’s Adolescent Leadership Council (TALC) hosted the Hasbro Children’s Prom thanks to grant funding from the Joy in Childhood Foundation. The oneof-a-kind night brought together more than 50 teens living with chronic illness so they could experience everything that makes prom memorable.
And if that weren’t enough, 2024 also saw Dunkin’ completely remodel the family room on the hospital’s sixth floor that bears its name. The Dunkin’ Family Room, originally built just more than a decade ago, offers families a quiet, comfortable space for respite during a loved one’s hospitalization. It’s where you often can find families sharing a meal, and where parents can use one of its computer stations to go online or check in with work.
The transformed room features new lighting and furniture, a wall-mounted television, an assortment of board games, a scenic window bench, kitchenette and refrigerator, and an endless supply of Dunkin’ coffee.
“Hasbro Children’s incredible, life-saving work has made an impact on countless families all across New England, and—as New Englanders ourselves—all of us at Dunkin’ are proud to offer our support,” says local Dunkin’ franchise owner Rob Batista. “From our Iced Coffee Day celebrations to the newly renovated Dunkin’ Family Room, it’s amazing to see how this partnership with the Dunkin’ Joy In Childhood Foundation has evolved over the years. We look forward to seeing where it goes next!”
There were all the bells and whistles—complimentary professional hair and makeup pre-prom, the red carpet and paparazzi treatment, a photobooth, DJ and live entertainment, exquisite food, and, of course, dancing. Additionally, Dunkin’s support helped to ensure teens had what they needed for prom, whether a special new dress or suit, or shoes.
TALC was developed specifically to help prepare teens living with chronic illness for adulthood and independence by providing a support forum with peers living with a similar diagnosis. The nationally recognized program has been a particular focus of Dunkin’s support.
Every child deserves a chance to live, laugh, love, and play,” says Kyle Wohlrab, MD, and Katina Robison, MD, as they pledged a $450,000 gift to Hasbro Children’s on behalf of The Izzy Foundation, marking a significant milestone in pediatric cancer care.
Inspired by their daughter Izzy’s unyielding spirit throughout her battle with cancer, the gift will fund a new pediatric hematology/oncology clinical research nurse position at Hasbro Children’s. This profound act of generosity promises hope and potential research breakthroughs for countless young patients.
Drs. Wohlrab and Robison established The Izzy Foundation in memory of their daughter, Isabelle (Izzy) Marie Wohlrab. Diagnosed with Stage 4 rhabdomyosarcoma cancer two weeks after her first birthday, Izzy maintained an incredible spirit over the next two and a half years, spreading joy and happiness to everyone she met. Izzy passed away in 2011, but her legacy lives on through the foundation’s mission to support families whose children have cancer or other life-altering medical conditions.
Since its inception, The Izzy Foundation has raised over $1 million to provide many services for families of pediatric cancer patients, including the creation of “IZspiring” spaces at Hasbro Children’s like the Izzy Family Room and the Izzy Surgical Waiting Room.
Rishi R. Lulla, MD, MS, Director of Pediatric Hematology/ Oncology at Hasbro Children’s, emphasized the significance of this position: “This generous gift will allow us to significantly expand our clinical research efforts, ultimately leading to better treatment options and improved outcomes for our patients.”
Despite major advances—from an overall survival rate of ten percent just fifty years ago to nearly 90 percent today—for many rare cancers, the survival rate is much lower.
Hasbro Children’s clinical research operation is funded solely through philanthropy. This inspired donation makes it possible to fund a pediatric hematology/oncology clinical research nurse position at Hasbro Children’s over the next three years.
The newly recruited and trained clinical research nurse, Chris Bouressa, RN, has been with Hasbro Children’s for more than 15 years and brings a breadth of experience and expertise as the leader of clinical research efforts. Chris and his team oversee clinical research opportunities for every child with cancer served by the program.
Carla Mulhern, Executive Director of The Izzy Foundation, shares, “While we’ve traditionally focused on creating spaces at Hasbro Children’s, branching out to support research allows us to make an even greater impact.”
The Izzy Foundation’s transformative gift paves the way for future advancements in pediatric oncology and will help ensure that every child has the opportunity to live, laugh, love, and play.
For Samuel Fleet and his family, a sudden health crisis involving their then three-year-old granddaughter, Charlotte, brought the challenges of navigating pediatric emergency care into sharp focus. During Charlotte’s three-day stay at Hasbro Children’s for RSV, the Fleets witnessed firsthand how overwhelming the emergency department can be. They noticed several families’ confusion and fear—especially those unfamiliar with medical terminology or who spoke limited English— as they tried to care for their children.
“There’s nothing more distressing than having a sick child and feeling lost amidst the medical jargon and complex processes,” Sam recalls. “We saw families struggling to communicate, ask the right questions, or even know what to expect next. It was a moment that made us realize how crucial it is to have someone there to guide you.”
Driven by this experience, the Fleet Family Foundation has committed $500,000 to establish a bilingual patient navigator position in Hasbro Children’s emergency department. This role is intended to support patient families, offering clarity, enhanced translation services when needed, and a reassuring presence throughout their visit. The Fleet Family’s generous gift ensures that every family—whether fluent in English or not—feels supported during a challenging time.
The Fleet Family Foundation is truly a family affair. It is led by Sam and Debra Fleet alongside their children, Danielle Fleet and Zachary Fleet, and their spouses, Eric Bieler and Allison Fleet. Even the four grandchildren—all under the age of four—are often present during board meetings, a wonderful reminder of the legacy that Sam and Debra are building.
“It’s important for me that our children and grandchildren see how we’re involved and understand the impact of giving back,” Sam notes. “We’re not just leaving behind a financial legacy; we’re passing down values that they’ll carry forward.”
This gift, steeped in the Fleet Family’s core values of family bond, respect, generosity, and action-oriented compassion, is the latest in a series of philanthropic endeavors in the region. In addition to this initiative at Hasbro Children’s, the family has also supported other hospitals in the region. The common thread in all their giving is a desire to create tangible, lasting improvements that benefit the entire community.
“Our family’s values guide everything we do,” says Sam. “Giving is about addressing real needs with meaningful solutions. We wanted to ensure that the stress of navigating emergency care is alleviated, so that families can focus on what matters most: their child’s well-being.”
The Fleet Family’s gift provides critical support when it is needed most, creating a legacy that will benefit every patient and family who require Hasbro Children’s emergency services for years to come.
In a thrilling moment at the golf invitational, David Rampone, a longstanding supporter of Hasbro Children’s and president of Hart Engineering, scored an impressive hole-in-one on the tenth hole. A passionate golfer and philanthropist, David and his company have provided significant sponsorships, philanthropic contributions, and live auction donations that have bolstered the hospital’s ability to meet its greatest needs. We are profoundly grateful for David’s enduring commitment to Hasbro Children’s, and we congratulate him on his remarkable hole-in-one.
Mommy, my belly hurts.” This is a common complaint among children and adolescents. However, parents sometimes have difficulty discerning whether the stomachache is related to a physical ailment or something else, like anxiety or overstimulation.
Functional Gastrointestinal (GI) disorders, recently re-named as “Disorders of Gut Brain Interaction,” are common among children and adolescents, and Hasbro Children’s new Mind-Gut Wellness program helps patients and families understand the gut-brain connection—and set them on the path to feeling better.
“The gut-brain connection is an exciting frontier in medicine,” explains Irina Gorbounova, MD, pediatric gastroenterologist at Hasbro Children’s. “The gut contains approximately one hundred million neurons and is coined the 'second brain.' There is constant communication between the gut and the brain through the vagus nerve, hormones, and the microbiome. The health of the gut and the brain are intertwined, whereas one affects the other.”
The Mind-Gut Wellness program is a new multidisciplinary clinic created to support children and adolescents whose GI systems are prone to heightened sensitivity and various digestive symptoms such as nausea, vomiting, diarrhea due to functional gastrointestinal disorders, such as irritable bowel syndrome (IBS) and functional abdominal pain (FAP).
The holistic program includes nutritional education and pediatric psychology; multidisciplinary teams provide specialized treatment based on each unique situation. In addition to medical treatment of symptoms, a patient’s plan might include dietary modifications, stress management, or medications and supplements to support gut health.
“At Hasbro Children’s, we are committed to the whole health of every child,” says Dr. Gorbounova. “The MindGut Wellness program supports this approach to pediatric healthcare focusing on the interplay between the gut and the brain, providing innovative solutions to common gastrointestinal issues and ultimately improving the quality of life for our patients and their families through a plan tailored to fit the needs of each unique patient.”
Cumberland, Rhode Island resident Adam Slesinger recently took part in his thirteenth consecutive marathon . . . Just not the type of marathon you might imagine.
The 46-year-old software engineer—known in the gaming world as ‘bread4Kids’—participated in the 2024 twentyfour-hour Extra Life gaming marathon for the thirteenth straight year. Throughout the event, Adam livestreamed his gaming to raise money for Hasbro Children’s.
Since he began participating in the Extra Life fundraising program of Children’s Miracle Network Hospitals®, Adam has raised more than $110,000 for Hasbro Children’s doing what he loves best—playing online games. Through countless hours of game streaming, he has connected with a wide audience, sharing his mission and encouraging donations.
“Hasbro Children’s is my local children’s hospital,” Adam explains. “I’ve gone to the hospital myself; I’ve brought my kids there for treatment, and I’ve learned a lot about the hospital and all the wonderful things that they’re doing for the kids.”
A self-described ‘variety streamer’ who does not stick to just one game, Adam brings a dynamic and engaging presence to his streams. He has cultivated a dedicated following who tune in to his regular gaming sessions, with even more logging in to watch his now annual 24-hour gaming marathons. Adam makes it fun for viewers, too—one year pledging to play Just Dance in a bread costume once viewers helped him reach a fundraising milestone.
Adam’s journey with Hasbro Children’s began over a decade ago with a deep desire to give back. This year, his connection to Hasbro Children’s is more profound than ever. Recently, his son Zachary was rushed to Hasbro Children’s with a ruptured appendix—an emergency compounded by the challenges of Zachary’s autism. The compassionate care that Zachary and the Slesinger family experienced elevated Adam’s commitment to support the hospital.
“bread4Kids”
“Knowing that our efforts are helping other families in similar situations is incredibly rewarding.”
—Adam Slesinger
“The Hasbro Children’s team saved my son’s life, modified their treatment plan to account for his autism, and made his recovery as fast as possible,” says Adam. “Knowing that our efforts are helping other families in similar situations is incredibly rewarding.”
Adam’s fundraising efforts are not just about playing games; they are about bringing a community together. His supporters participate and donate during the livestream—for this event directly to his Extra Life fundraising page. Outside of the marathon event, he streams year-round, with all revenue donated back to Hasbro Children’s.
“This project has grown beyond anything I could have imagined, and it’s all thanks to the incredible support from the community. Together, we are making a real difference in the lives of children and their families.”
Growing up during the Great Depression, I saw firsthand the struggles families faced with diseases like rheumatic fever, living in cold-water flats without proper heating,” recalls 99-year-old Frank DelSanto, EdD of his early childhood in Providence’s Federal Hill neighborhood.
This is just one of the memories that Frank—as he prefers to be called—shared recently with incredible detail and empathy. Moments like this ignited a passion that would inspire a life of purpose. “It made me realize how crucial accessible health care is for every child,” Frank shares.
After earning a doctorate in education from Boston University, Frank began work as a recreation therapist at a children’s hospital in South County. There, he focused on using activities like play and sports to foster stronger patient recovery. This work was not just about making a hospital stay more pleasant; it was about helping pediatric patients develop social skills, gain confidence, and cope with medical challenges through engaging and therapeutic activities.
Frank’s subsequent endeavors at Rhode Island Hospital’s Potter Building—the precursor to Hasbro Children’s— reaffirmed his dedication and highlighted the significant influence of blending compassionate care with medical treatment.
It was a natural progression for Frank and his late wife Barbara, an elementary school librarian, to channel their passion for child-focused care into philanthropic efforts. They acknowledged the crucial role of Hasbro Children’s Child Life Services.
“The role of Child Life Services in the healing process cannot be overstated,” Frank emphasizes. “They ensure children receive comprehensive care that addresses both their medical needs and their emotional well-being.”
To safeguard the longevity of Child Life Services, the couple established the DelSanto Family Endowment in 1994, which continues to be maintained annually by Frank. In a meaningful display of his commitment, he recently named Hasbro Children’s as a beneficiary of his trust, guaranteeing that this legacy will sustain Child Life Services in perpetuity.
“The progress we’ve made in pediatric medicine is extraordinary, but there is always more to be done,” he says. “By supporting these initiatives, we are investing in a future where every child will continue to receive the medical care they need.”
Planned giving provides donors, like you, with a meaningful opportunity to leave a lasting legacy by supporting Hasbro Children's and positively impacting the future of patient care for generations to come. This type of philanthropy—whether you designate Hasbro Children's as a beneficiary of your estate, retirement account, donor advised fund, or life insurance policy—enables the hospital to remain focused, in the long term, on its unyielding pursuit of excellence in the delivery of healthcare, pioneering research, medical education, and technology.
For more information visit us at brownhealth.org/ HCHLegacy or contact Chris Josephson, Senior Philanthropy Officer, at 401-444-6412 or email chris.josephson@brownhealth.org
At just two years old, Charlotte had endured enough negative medical experiences that just the sight of a hospital parking lot left her in tears. Her parents, anxious about her upcoming spinal surgery at Hasbro Children’s, feared that Charlotte’s trauma would only deepen.
Enter Hasbro Children’s Child Life Services.
Kerri Baker, Certified Child Life Specialist, worked with Charlotte, helping transform this frightened toddler into a brave little girl. Charlotte’s fear gave way to confidence as she navigated the hospital halls, playing with dolls and learning about medical tools. On the day of her surgery, she surprised her parents by calmly saying, “I’m ready, Mommy. Are you ready?”
Charlotte’s story is just one of many that speaks to the care and healing that Child Life Services has provided to patients and families throughout Hasbro Children’s 30year history. This legacy is supported by the dedication of longtime donors who have contributed to the program’s growth and sustainability over the decades.
“Medical experts know that when children feel safe, calm, and understood, when they know what’s happening to and around them, their health outcomes are so much more positive,” explains Micaela Materne, Manager of Child Life Services. “It’s our goal to create a therapeutic environment with plenty of opportunities for coping, learning, and play.”
Hasbro Children’s highly trained team of eleven Certified Child Life Specialists, Child Life Manager, and Clinical Lead are integral members of the healthcare team specializing in a patient- and family-centered care approach to evidenced-based, developmentally and psychologically appropriate interventions. However, because health insurance does not cover this critical team, Child Life Services relies solely on philanthropic support.
To help ensure this vital program thrives for future generations, the Child Life Endowment at Hasbro Children’s was established. This endowment will not only ensure the continued availability and excellence of Child Life Services, but it will also allow Hasbro Children’s
to maintain and expand the team, continue to develop innovative programs like the Pre-Operative Program (POP) that ease the anxiety of young patients like Charlotte, provide comprehensive training for future Child Life Specialists, and ensure that no child or family must navigate the healthcare system alone.
Thanks to inspired donors, progress is well on its way toward the $10 million goal. Most recently, Lisa M. Dunkle Scheffler, MD, donated $25,000 to ensure that this vital program continues; and Tom and Cathy Lawson— longtime Hasbro Children’s supporters—made a generous gift of $200,000. These gifts will make a meaningful difference in the lives of our patients today and into the future.
“Thanks to these generous endowment donations,” says Micaela, “Child Life Services can continue providing vital support to our patients and their families, ensuring a comforting and healing environment for years to come.”
It is arguably the most successful toy and game company in the world, but having recently celebrated its 100th birthday, what truly reverberates with Hasbro, Inc. is being known as a company with heart.
“I don’t think my grandfather, father, mother, sister, or brother would ever have believed we would become what we have become,” says Alan Hassenfeld, Hasbro, Inc.’s former CEO, member of its founding family, and renowned philanthropist. “For all of us, it was always about giving back, and there was never a question that children and families would be our focus.”
Giving back included leading the charge to build a dedicated pediatric hospital in Rhode Island, where there previously was none. That dream became a reality on Valentine’s Day 1994, when Hasbro Children’s opened its doors for the first time. It’s a day Alan thinks about often.
“That was the start of bettering the lives of so, so many kids—it’s incredible,” he says with a smile.
Of course, the penchant of Hasbro Inc. and the Hassenfelds for giving back didn’t stop there. Far from it, actually.
“It’s very important for people to be involved in their community, whether that’s coaching Little League or helping at the local food pantry. With Hasbro Children’s . . . Take a tour of the hospital and see where your donation can make a difference.”
—Alan Hassenfeld
So, last year, as Hasbro, Inc. approached its centennial, Alan knew he wanted to do something special, and personal. He approached the company with his intention: to donate $1 million that would be used to make a difference in the community and in the lives of young people. There was more.
“No one has been more fortunate than me, so this was a gift from me to the company,” he explains, “for the company to choose who to give it to by including our fans’ voice in the decision.”
From there, four purposeful charities aligned with Hasbro, Inc.’s philanthropic priorities were selected, with the company inviting its passionate fanbase to participate in how the $1 million would be given. Over the course of ten weeks, fans cast their votes online with each purchase they made on HasbroPulse.com.
When the ‘Centennial Fan Choice Campaign’ ended, Hasbro Children’s garnered the second-most votes and received a $300,000 donation from The Hassenfeld Family Foundation, sharing the generous and celebratory gift with Toys for Tots, One Tree Planted, and Games for Change.
“They all are incredible organizations, and of course Hasbro Children’s will always hold a special place in my heart,” says Alan.
The amazing gift will have a tremendous impact on local children and their families, helping to support the hospital’s areas of greatest need and to fund special programs that would not be possible without philanthropy. Those programs, such as Child Life, the Healing Arts, and the patient- and family-centered care program, are vital to what differentiates Hasbro Children’s as a hospital for kids.
And this attention to what children need when a hospital can often be an intimidating and scary place brings back fond memories for Alan. For years, he and many other Hasbro, Inc. team members would hand out presents and chocolate chip cookies to kids around the holidays. It’s a tradition that carries on today. Seeing the faces of those children light up despite the adversity around them is something Alan will never forget.
“The ‘smile’ that is part of the Hasbro, Inc. logo is especially meaningful to us,” he says. “Our job always has been to put a smile on a face where there may have been darkness before.”
Asked about the future, Alan makes it a point to also consider the past. He’s incredibly proud of both Hasbro the company and Hasbro the hospital, because each lived up to the expectations he placed on them years ago.
“When my dad passed away, he left a letter talking about not leaving anything to charity, because he wanted to live charity in the moment,” reflects Alan. “I feel that same way—I want my charity to be something I can see while I am here.”
He finishes, “It’s very important for people to be involved in their community, whether that’s coaching Little League or helping at the local food pantry. With Hasbro Children’s . . . Take a tour of the hospital and see where your donation can make a difference. There’s nothing I’d love more than for Hasbro Children’s to also reach its 100th birthday.”
The grueling 1.5-mile open-water swim from Alcatraz to San Francisco is recognized as a test of an athlete’s endurance and mental fortitude. Yet, 21-year-old Sarah Eng took on the infamous frigid waters and vigorous currents to raise crucial funds for pediatric neurosurgery research at Hasbro Children’s.
Sarah is more than an inspiring athlete; she is also a grateful patient who, just two years ago, could not stand for more than a few hours each day. Following four years of debilitating headaches, emergency room visits, hospitalizations, and inconclusive tests, the California teen found herself homebound and in constant pain.
Through a series of fortunate connections, Sarah was referred cross-country to Petra M. Klinge, MD, PhD, Director of Pediatric Neurosurgery at Hasbro Children’s and Director, Center for Surgical Treatment of the Developing Brain and Spine, Rhode Island Hospital. Dr. Klinge diagnosed Sarah with tethered cord, a condition where the spinal cord is stuck to a small piece of tissue from early development in the womb. In 2022, Dr. Petra Klinge performed surgery to release the spinal cord. Sarah’s recovery was remarkable, and she began swimming to regain strength.
To demonstrate their profound appreciation, the Eng family organized a unique Alcatraz swim fundraiser with Hasbro Children’s to support the critical research by Dr. Klinge and her team on spinal cord dysfunction and connective tissue disorders in children and adolescents. Thanks to donors and a generous anonymous match of $15,000, Sarah’s incredible swim raised more than $25,000—of which 100 percent will support the above research projects. Sarah’s journey from patient to fundraiser is an inspiring testament to resilience and gratitude.
Through a heartfelt dedication ceremony in the serene Balise Healing Garden, Hasbro Children’s unveiled a poignant new centerpiece—a breathtaking wall sculpture, titled “Collective Transformation.” Made possible by the incredible generosity of Phillip and Jessica Whittaker and inspired by their beloved daughter Emma, this beautiful artwork honors the children and families who have made the extraordinary decision to donate organs, transforming their tragedies into the gift of life for others.
Created by renowned Rhode Island artist Allison Newsome, the sculpture features a radiant sun surrounded by stars and butterflies. Over time, each will contain the name of a child who became an organ donor. This meaningful installation serves as a lasting tribute to the remarkable selflessness of these young patients and their families.
Emma Whittaker was a vibrant 15-year-old who touched many lives with her joyful spirit. Emma was a member of her high school swim and sailing teams and swam for several other club teams. Emma was not just enthusiastic about water activities; she also loved reading and writing poetry, playing her guitar, and having dance parties in the kitchen. Her infectious smile and laughter, along with her epic hugs, made her a cherished friend to many during her short lifetime.
Phillip and Jessica made the selfless decision to donate Emma’s organs after she passed away in February 2022.
The dedication ceremony brought together clinicians, staff, and families to honor the life-saving gifts and legacies of Emma Whittaker, Laithan Bayersdorfer, Dylan Levesque, Griffin Crossland, and Atlas Porter.
“This sculpture honors families who have selflessly given others the gift of life,” said Phyllis Dennery, MD, FAAP, Pediatrician-in-Chief and Medical Director, Hasbro Children’s. “It stands as a tribute to their generosity and the lasting impact of organ donation.”
A plaque beside the sculpture reads: “We dedicate this representation of freedom, power, and rebirth to the indomitable spirit of Emma Whittaker. This copper wall sculpture by artist Allison Newsome has a ‘living finish’ that will weather and change, becoming more beautiful over time. In this place, we honor all families who created the opportunity to transform sorrow and loss into hope and possibility through the ultimate gift of organ donation.”
Just as the sculpture will weather and change, becoming more beautiful over time, so too do the lives of those touched by organ donation transform, carrying forward the legacy of the donors. The addition of this meaningful sculpture stands as a beacon of hope, reminding visitors of the profound impact of organ donation.
“Emma’s light continues to shine through the lives she saved,” says Jessica. “This sculpture is a reflection of the hope and love she gave to us and now to so many others.”
Click here for more great stories from this combined special edition publication of Advancing Medicine. Touching Lives. and Healthy Futures.