Resources for Cancer Survivors Physical and Occupational Therapy Programs ...............3 General Physical and Occupation Therapy .......................................................3 Lymphedema Treatment .................................................................................3 Women’s and Men’s Health, Pelvic Floor Rehabilitation Center.......................4 Speech Pathology for Head and Neck Cancer...................................................4
Specialized Programs....................................................6 Psychiatric Oncology........................................................................................6 Cardio-Oncology Program................................................................................6 Ostomy Program .............................................................................................7 Genetic Testing................................................................................................7
Sexual Health and Reproduction Programs ...................9 Sexual Health First Responders Clinic at Lifespan Cancer Institute ...................9 Men’s Sexual Health ........................................................................................9 Rhode Island Hospital Fertility Preservation ....................................................9 Women’s Intimacy and Sexual Health (WISH) Center at Women and Infants.10 Fertility Center at Women and Infants...........................................................10
Women’s Programs ....................................................11 Breast Reconstruction ...................................................................................11 Pelvic Floor Disorders ....................................................................................11
Integrative Health and Wellness Programs .................12 Nutrition Services ..........................................................................................12 Acupuncture..................................................................................................12 Massage Therapy...........................................................................................12 Reiki ..............................................................................................................13 Pet Therapy ...................................................................................................13 Chiropractic Care ...........................................................................................13
Support Groups ..........................................................14 For everyone .................................................................................................14
The LIVESTRONG Cancer Survivorship Program............................................................................... 14
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The Leukemia and Lymphoma Society (LLS) Patient and Family Support ....................................... 14
For women ....................................................................................................14
Women’s Cancer Wellness Group..................................................................................................... 14 Young Women’s Breast Cancer Program.......................................................................................... 15
For men .........................................................................................................15
Men’s Cancer Wellness Group .......................................................................................................... 15
Financial Resources ....................................................16 Federal/State Financial Assistance:................................................................16
Temporary Disability Income ............................................................................................................. 16 The Social Security and Supplemental Security Income disability programs..................................... 16
Grants: ..........................................................................................................16
Family Reach ...................................................................................................................................... 16
Health Insurance: ..........................................................................................17
RIREACH.............................................................................................................................................. 17 Health Source RI................................................................................................................................. 17 Rhode Island Senior Health Insurance Program ................................................................................ 17 RIPIN Healthcare Advocate ................................................................................................................ 17 The Point ............................................................................................................................................ 17
Community Resources: ..................................................................................17
Community Action Programs (CAPS).................................................................................................. 17 Social Service Emergency Line 211..................................................................................................... 17 Housing Network RI............................................................................................................................ 18
Transportation Resources:.............................................................................18
Logisticare .......................................................................................................................................... 18 ADA-Ride ............................................................................................................................................ 18
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PT and OT Programs
Physical and Occupational Therapy Programs The Outpatient Rehabilitation Center at Lifespan provides services for general physical and occupational therapy, lymphedema, speech and language, and pelvic floor disorders, which are outlined below.
General Physical and Occupation Therapy With the help of occupational therapists and physical therapists, general rehabilitation services focuses on addressing the common side-effects of cancer including: • • •
Pain Fatigue Balance problems
• • •
Difficulty walking Difficulty washing and dressing Gross and fine motor deficits
Once referred, patients will be evaluated to develop an individualized treatment plan. Plans can include individualized exercise programs to improve balance, coordination and strength as well as occupational therapists to improve daily functioning. All five locations below offer general outpatient rehabilitation services. Providence 765 Allens Ave, Suite 102 Providence, RI 02905 401-4445418
Providence 195 Collyer Street suite 301 Providence, RI 02906 401-793-4080
Newport Newport Hospital 20 Powel Avenue Newport, RI 02840 401-845-1845
East Greenwich Lifespan Ambulatory Care Center 1454 South County Trail Suite 1300 East Greenwich, RI 02818 401-444-2050
Lincoln, RI 1 Commerce St, 2nd Floor Lincoln, RI 02865 401-793850
Lymphedema Treatment The Outpatient Rehabilitation Services through Lifespan offers specialized treatment for patients suffering from lymphedema. Services offered: • skin care – keeping the area clean and dry to reduce risk of infection • compression – pressure exerted on tissues through multilayer bandaging, compression garments, or a compression pump • manual lymphatic drainage – a hands-on technique that stimulates your lymphatic system by stretching the skin in particular ways 3
PT and OT Programs • decongestive
exercise, in which joint movements are performed in specific sequence while wearing compression • patient education, comprising information on lymphedema precautions and self-care that may include self-lymphatic drainage, home exercises, skin care, self-bandaging, compression garment use and care, and bandaging alternative use and care All five locations have physical therapists trained to address lymphedema. Providence 765 Allens Ave, Suite 102 Providence, RI 02905 401-4445418
Providence 195 Collyer Street suite 301 Providence, RI 02906 401-793-4080
Newport Newport Hospital 20 Powel Avenue Newport, RI 02840 401-845-1845
East Greenwich Lifespan Ambulatory Care Center 1454 South County Trail Suite 1300 East Greenwich, RI 02818 401-444-2050
Lincoln, RI 1 Commerce St, 2nd Floor Lincoln, RI 02865 401-793-850
Women’s and Men’s Health, Pelvic Floor Rehabilitation Center Women’s and Men’s Health Pelvic Rehabilitation addresses disorders relating to the pelvis (ie joints, muscles and nerves), such as urination, defection, sexual dysfunction, and pelvic pain that can occur after treatment for gynecologic cancer, prostate cancer, rectal cancer, and bladder cancer. Treatments offered include biofeedback assessment and training, electrical stimulation, bladder retraining, manual therapy and specialized exercise programs, and behavioral management strategies and training. A physician referral is required. Please call 401-793-2145 for more information. Location: West River Center; 148 West River Street 2nd Floor, Suite 1-D Providence, RI 02904
Speech Pathology for Head and Neck Cancer Speech language pathologists are trained to address dysphagia and motor speech disorders in order to improve speech articulation, swallowing, and verbal skills. A physician’s referral is required. All five locations below over speech and language programs.
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PT and OT Programs Providence Lifespan 115 Georgia Ave Providence, RI 02905 401-444-5485
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Providence 195 Collyer Street suite 301 Providence, RI 02906 401-793-4080
Newport Newport Hospital 20 Powel Avenue Newport, RI 02840 401-845-1845
East Greenwich 1454 South County Trail Suite 1300 East Greenwich, RI 02818 401-444-2050
Lincoln 1 Commerce St, 2nd Floor Lincoln, RI 401-793-8501
Specialized Programs
Specialized Programs Psychiatric Oncology The psychiatric oncology and behavioral health team at the LCI offers patients services to help manage the emotional and behavioral challenges that may arise at any stage of a one’s cancer diagnosis. The psychiatric oncology team includes psychiatrists, who work collaboratively with social workers, oncologists and nurses. They are available to discuss options of interventions, including medications and psychotherapy (counseling or “talk therapy”), support groups and peer to peer support. Appointments with the LCI psychiatrists are made by the Clinical Social Workers. The social worker will contact the patient upon referral to complete a psychosocial assessment and if appropriate, schedule appointment with psychiatrist. LCI psychiatric services are available for LCI patients who are receiving active treatment or are post treatment. The social worker completing the assessment will make recommendations for appropriate psychosocial supports that may include referrals outside of the LCI psychiatric service. If you would like to refer a patient to the LCI Psychiatric Oncology Service please contact the clinical social worker at the site where the patient received his/her treatment.
Rhode Island Hospital/East Greenwich Susan Garland sgarland@lifespan.org 401-444-2584
The Miriam Hospital
Elaine McDonald emcdonald@lifespan.org 401-444-0058
Alice Deignhan Alice.deighan@lifespan.org 401-793-2713
Newport Hospital
Kathleen Higginbotham Jennifer Przygoda khigginbotham@lifespan.org Jprzygoda1@lifespan.com 401-793-2078 401845-1519
Melissa Conroy Mconroy1@lifespan.org 401-444-5519
Cardio-Oncology Program The Cardio-Oncology Program: • Evaluates and treats the cardiac complications of cancer and its therapy • Participates in the management of patients with coexisting cardiac disease and cancer • Provide pretreatment cardiac risk assessment • Provide survivors with appropriate cardiac care.
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Specialized Programs The head of the program is Dr. Raymond Russell. Please call 401-444-5803 (Rhode Island Hospital) or 401-793-7870 for more information. Location for RI Hospital: Ambulatory Patient Center (APC Building) 593 Eddy Street Providence, RI 02903 Location for Miriam Hospital: Fain Building 164 Summit Avenue Providence, RI 02906
Ostomy Program The Ostomy Program is designed for patients who have undergone ostomy procedures, often due to colon or bladder cancers. The Ostomy Center provides: • Pre-operative counseling for patients who are to undergo creation of an ileostomy, colostomy, urostomy, or continent diversion. Family members are included in these discussions • Pre-operative stoma marking to identify the most appropriate location on your abdomen for your ostomy placement • Post-surgery follow-up for stoma assessment, ostomy appliance evaluation and continued instruction in stoma and skin care • Evaluation and management of your stoma and surrounding skin • Annual stoma and skin assessment of lifelong ostomates for changes that may occur with weight loss or gain, or as a result of aging • Evaluation and treatment of skin rashes, ulcers or wounds that may occur around the stoma • Fitting of hernia/ostomy support binders • Creation of customized ostomy appliances for challenging stomas • Instruction in colostomy irrigation • Guidance in obtaining your ostomy supplies A physician’s referral is required. Please call 401-793-2930 for more information.
Genetic Testing Two programs exist through Lifespan: the Cancer Genetics Program and the Women’s Genetic Counseling Program. Both programs provide counseling and testing for people at risk for cancer. Cancer Genetics Program The Cancer Genetics Program provides counseling and testing for people at risk for hereditary cancer syndrome. The program is only for family members of current or past patients who received care through Lifespan Cancer Institute. During an appointment, a genetics professional will discuss: 7
Specialized Programs • • • • •
A patient’s personal and medical history and cancer screening history Their family history of cancer Risk assessment for a hereditary cancer syndrome Appropriate genetic testing options based on your history Benefits and limitations of genetic testing
Please call 401-444-8361 for more information. Patients will meet with either Dr. Lauren Massingham, MD, Dr. Chanika Phornphutkul, MD, Dr. Mari Mori, MD or a genetic counselor. Location at RI Hospital: Ambulatory Patient Center (APC Building) 593 Eddy Street Hospital Providence, RI 02903 Location at Miriam Hospital: 164 Summit Avenue Fain Building, 3rd floor Providence, RI 02906 Women’s Genetic Counseling Women’s Genetic Counseling at the Women’s Medicine Collaborative offers comprehensive evaluation for patients and their family members at risk of hereditary cancer syndromes. This genetics program does not require that family members be related to current or past patients of Lifespan Cancer Institute. Services provided: • Risk assessment based on personal and family history • Discussion regarding genetic testing options • Review of cancer screening and management options • Counseling on hereditary cancer syndrome This program is led by Chanika Phornphutkul, MD and a team of genetic specialists. Please call 401-793-7410 for more information or to schedule an appointment. Location: 146 West River St. 3rd Floor Suite 11-D, Providence RI 02904
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Sexual Health and Reproduction Programs
Sexual Health and Reproduction Programs Sexual Health First Responders Clinic at Lifespan Cancer Institute The Sexual Health First Responders Clinic addresses sexual intimacy issues experienced by both men and women. The initial appointment involves a comprehensive intake and physical exam. It provides patients with a safe space to discuss sexual health concerns. The head of this program is Dr. Don Dizon. Please contact Helena Simas at 401-444-4853 to schedule a new patient for a consult.
Men’s Sexual Health The Men’s Health Center at The Miriam Hospital provides specialized care for men who have issues with sexual performance that are often side effects of prostate or testicular cancer. Conditions can include: • Erectile Dysfunction (ED) • Low testosterone (Low T) • Low sexual desire • Delayed or absent ejaculation To combat ED, the Men’s Health Center also offers a specific program called penile rehabilitation. The program is designed to help men experience normal erections again. The program includes: • oral medications • medications inserted into the urethra • the use of a vacuum erection device • psychotherapy Physicians working at the Men’s Health Center include Dr. Martin Miner, Dr. Mark Sigman, and Dr. Vincent Harisaran. For more information, please visit their website: https://www.lifespan.org/centersservices/mens-health-center or call 401-793-4MEN (401-793-4636). Location: Fain Building (The Miriam Hospital) 164 Summit Avenue Providence, RI 02906
Rhode Island Hospital Fertility Preservation
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Sexual Health and Reproduction Programs
Women’s Intimacy and Sexual Health (WISH) Center at Women and Infants The WISH Center offers help to patients dealing with sexual intimacy issues. Problem addressed include: • Vaginal dryness, itching or burning • Pain during intercourse • Decreased desire or less pleasure during intercourse • Changes in body image as a result of surgery or effect of treatment A referral is required. Please call (401)-453-7520.
Fertility Center at Women and Infants Women and Infants offers fertility options for current cancer patients, both men and women, who may be diagnosed with cancers that might affect fertility. They also offer fertility advice and help for cancer survivors who may be trying to start a family. Fertility Preservation: This program at Women and Infants’ Fertility Center is dedicated to helping patients retain fertility often through freezing and storing eggs, embryos or sperm for future in vitro fertilization. For men or women who have become infertile due to cancer treatments and did not preserve eggs, sperm or embryos still have options for having families, including: o Using donor eggs, embryos or sperm to conceive o Using surrogacy o Adopting a child Dr. Eden Cardozo specializes in fertility preservation for cancer patients. Please call (401) 441-5336 to refer a patient or for more information. You can also visit their website: https://fertility.womenandinfants.org for more information. Location: 90 Plain Street, Providence, RI 02903
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Women’s Programs
Women’s Programs Breast Reconstruction Lifespan offers multiple different options (such as skin expansion or flap reconstruction) for women who are looking for breast reconstruction. Dr. Daniel Kwan, Dr. Paul Liu, and Dr. Rachel Sullivan all specialize in breast reconstruction. Please call 401-444-5495 for more information. Location: Bayside Medical Building 235 Plain Street, Providence, RI
Pelvic Floor Disorders The Program for Pelvic Floor Disorders at the Women’s Medicine Collaborative provides women with treatment options and symptom relief, including: • • • • • •
Fecal incontinence Urinary incontinence Chronic constipation Bladder dysfunction secondary to nerve damage or neurologic injury Hemorrhoids Interstitial cystitis/Painful bladder syndrome
• • • • • • • •
Irritable Bowel Syndrome (IBS) Pelvic pain Pelvic organ prolapse Postpartum pelvic floor issues Rectal prolapse and fistulas Rectovaginal fistulas Anal fissures Cystocele and rectocele
Please contact 401-793-7080 for more information.
Integrative Health and Wellness Programs Nutrition Services If a patient no longer sees an oncologist, they can go through the general Nutrition Services offered through Lifespan. There are many clinics throughout Rhode Island. The phone number for the one at the Miriam Hospital is 401-793-9740.
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Integrative Health and Wellness Programs
Acupuncture Acupuncture has helped patients with symptoms such as headaches, back pain, neck pain, nausea, anxiety and other side effects of medication. This service is free and offered through the Lifespan Cancer Institute to current patients while they are receiving treatment. Patients can speak with their oncologists or call 844-222-2881 and ask to speak with someone regarding acupuncture. If patients are no longer receiving care at Lifespan Cancer Institute, acupuncture is offered through the Lifestyle Medicine Center at the Women’s Medicine Collaborative. Appointments can be scheduled on Wednesday from 9-12pm and are led by Mariah Stump, DC. Please call 401-793-7817 for more information.
Massage Therapy For patients undergoing treatment at Rhode Island Hospital, massage therapists offer seated massages, reflexology (an acupressure and massage technique for the hands and feet), and therapeutic touch, which balances and promotes the flow of energy through touch. Benefits include: • Relief of tension and stress • Increased circulation • Decreased pain and stiffness • Increased energy and alertness This service is free and offered through the Lifespan Cancer Institute to current patients while they are receiving treatment. Patients can speak with their oncologists or call 844-222-2881 and ask to speak with someone regarding acupuncture. If patients are no longer receiving care at Lifespan Cancer Institute, massage therapy is offered through the Lifestyle Medicine Center at the Women’s Medicine Collaborative. Massages are offered by a licensed massage therapist, Cheryl McGuinness, LMT, and appointments are available Monday afternoons. The cost is $40 for a 30-min session or $70 for an hour. Patients can call 401-793-7817 to make an appointment.
Reiki Reiki is a stress relief technique offered to cancer patients currently undergoing treatment at Lifespan. The twenty to thirty minute sessions are offered before, during and after clinical treatments. A trained practitioner performs the technique with a light touch: he or she may place hands gently on or slightly above the body. During sessions, soft music is played to increase the patient's relaxation. 12
Integrative Health and Wellness Programs This service is free and offered through the Lifespan Cancer Institute to current patients while they are receiving treatment. Patients can speak with their oncologists for more information.
Pet Therapy Visiting with animals can help patients feel relaxed and at ease. Pets, specially trained to interact with patients, can be found at the center on Thursday and Friday mornings for patients currently undergoing treatment.
Chiropractic Care Chiropractic care has helped patients with low back pain, neck pain and headaches, hip and leg pain, and lower and upper extremity pain. The program at Lifespan is led by Camilla Moore, DC, ART, SFMA. Dr. Moore uses a variety of treatment methods including: • Functional assessment • Manual manipulation • Active release technique • Instrument-assisted soft tissue mobilization • Custom exercise program Please call 401-793-7022 for more information. Patients will be asked to download a new patient form (https://www.lifespan.org/sites/default/files/lifespanfiles/documents/centers/lifestyle-medicine-center/Chiropractic-Patient-AssessmentForm.pdf) and bring a copy of their insurance card and any current x-rays or MRIs.
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Support Groups
Support Groups For everyone The LIVESTRONG Cancer Survivorship Program The YMCA offers a 12-week physical activity program designed specifically for survivors. Survivors participate in free or low cost customized exercise regimens catered to their individual needs from certified fitness instructors. The instructors are trained in cancer survivorship, post-rehabilitation exercise and supportive cancer care. Please contact (401) 245-2444 for more information. Location: Bayside YMCA in Barrington; 70 West St. Barrington, RI 029806 The Leukemia and Lymphoma Society (LLS) Patient and Family Support The Leukemia and Lymphoma Society offers a place for patients and family members living with blood cancers to connect with one another and extend support. The focus is on survivorship as well as new diagnoses. When: This group meets on the first Wednesday on every month. Where: Elmhurst Extended Care Facility (free parking); Conference Room on the Ground Level; 50 Maude Street (off Smith Street) Providence, RI Please contact Gayle Bagley at 508-810-1304 for more information.
For women Women’s Cancer Wellness Group Women’s Cancer Wellness Group is a support group for women diagnosed with any type of cancer who are interested in meeting with peers for discussion, education and support throughout the treatment and recovery process. When: Every Thursday of the month from 4-5pm Where: Conference room on the 2nd floor; 1454 South Country Trail East Greenwich, RI Please contact Susan Garland at 401-444-2584 or Elain McDonald 401-444-0058 to confirm time and place.
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Support Groups Young Women’s Breast Cancer Program The Young Women’s Breast Cancer Program is for women 42 years old and younger who are living with or have survived breast cancer, and who may still be receiving treatment. This program is headed by Dr. Mary Lopresti and aims to provide various workshops, lectures, and group discussions on issues relevant to young breast cancer patients, including sexuality, exercise, decreasing risk of cancer, and stress reduction. Please call 1-844-222-2881 and ask to speak with someone regarding the Young Women’s Break Cancer Program for more information.
For men Men’s Cancer Wellness Group This group is a forum for men who have been diagnosed with prostate, bladder, testicular, penile or renal cancer. The group is run by a licensed clinical social worker, Kathy Higginbotham, and aims at providing psychosocial support for participants through treatment and recovery. When: Once a month. Time and date varies. Where: Fain Building, 3rd Floor Conference Room; 164 Summit Avenue Providence, RI 02906 Please contact Kathy Higginbotham at 401-793-2078 for more information.
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Financial Resources
Financial Resources Federal/State Financial Assistance: Temporary Disability Income (TDI): Temporary Disability Income is available through the state of Rhode Island. A patient must work in RI to qualify for this benefit. This benefit provides benefit payments to insured Rhode Island workers for unemployment caused by a temporary disability/injury. The maximum amount of time individuals can collect TDI benefits is 30 weeks. For more information, patients can visit: www.dlt.ri.gov/tdi/ Social Security Disability (SSDI/SSI): The Social Security and Supplemental Security Income disability programs are the largest of several Federal programs that provides assistance to people with disabilities. While these two programs are different in many ways, both are administered by the Social Security Administration and only individuals who have a disability and meet medical criteria may qualify for benefits under either program. Social Security Disability Insurance: pays benefits to you and certain family members if you are “insured,� meaning that you worked long enough and paid Social Security taxes. Supplemental Security Income: pays benefits based on financial need. Both programs require patients to have a disability that is expected to last one year. Patients can apply on-line at www.socialsecurity.gov , or in person at their local SSA office, or via phone at 1-800-772-1213.
Grants: Joe Andruzzi Grant The Joe Andruzzi Grant is available for eligible cancer patients in treatment greater than 60 days. Patients must be in active treatment. Grants can be used for any non-medical bills/services. Referrals must be made by your social worker/supported provider. Family Reach Family Reach is a grant awarded to patients in active treatment. The household must have a child under 18. There is limited funding available. Social workers at Lifespan can provide a referral. NOTE: There are other cancer grants available. Many of these grants have limited funds and must meet specific criteria. Social workers at Lifespan will have more information.
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Financial Resources
Health Insurance: RIREACH: RIREACH helps Rhode Islanders access healthcare or health insurance, including resolving insurance company denials, complications with Healthsoure RI and Medicaid, medical bills, and more. Patients can call 401-270-0101 for more information. Health Source RI: Health Source RI is a resource that can assist persons 18-64 with obtaining health insurance. There is an open enrollment period in the Fall. Patients may qualify for benefits outside of open enrollment. They can call Health Source RI at 855-840-4774 or visit healthsourceri.com. Rhode Island Senior Health Insurance Program (SHIP): Rhode Island Senior Health Insurance Program is part of a national partnership to help consumers make informed health care choices. SHIP volunteers provide one-to-one counseling to seniors, adults with disabilities, families, and caregivers. The program is designed to help seniors and adults with disabilities to understand health care cost and coverage. SHIP counselors can discuss all health insurance options. For more info please contact: 401-462-0510 or 401-462-0740 or visit their page at: www.dea.ri.gov RIPIN Healthcare Advocate: RIPIN Healthcare Advocate Assists people covered by both Medicare and Medicaid with insurance denials and appeals, medical benefits and billing, and Neighborhood INTEGRITY and UNITY plans. The RIPIN Healthcare Advocate can also be reached toll-free at 1-855747-3224. The Point: The Point provides resources for long-term care options and support for seniors, adults with disabilities, and their caregivers. Contact The Points at: 401-462-4444.
Community Resources: Community Action Program (CAPS): Community Action Programs (CAPS) are social service agencies working to alleviate the problems of poverty through a positive approach. Programs include consumer education, counseling, health & wellness, home weatherization, and hating assistance. Social workers at Lifespan can provide patients with the agency that covers their area. Social Service Emergency Line 211: Social Service Emergency Line 211 is a hotline (24/7) run by United Way. Patients can call 21-1 for information and support on health and human service’s needs.
Utility Problems:
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Financial Resources If patients have utility problems, they may qualify for protection from a utility shut off if they are disabled or have a serious medical condition. They can request the forms from their utility provider or a social worker from the LCI. The George Wiley Center also assists. They can be reached at 401-728-5555. Housing/Tenant Resources: Housing Network RI provides homebuyer education programs, foreclosure prevention, and loan scam alert information. Any questions on down payment and closing-cost assistance program. Patients can call for further assistance at 401-721-5680.
Transportation Resources: American Cancer Society Road to Recovery: Patient must be traveling to an appointment required to being or complete cancer treatment or to an appointment for complementary therapy during cancer treatment. Transportation cannot be provided for follow up appointments after treatment has been completed. Patient must be able to walk unassisted to and from the vehicle or have an accompanying caregiver to assist. Please call: 1-800-227-2345. Logisticare: Logisticare provides transportation for patients that are Medicaid recipients and/or elderly individuals age 60 and older. Rides must be booked 48 hours prior to the appointment. Contact 1-855-330-9131 for further assistance. ADA-Ride: ADA-Ride provides transportation for persons with disabilities who are unable due to their disability to use a regular fixed route RIPTA bus. An application must be completed and may take up to 21 days for decision. There is a $4 charge each way for all ADA RIDE trips. Please call 401-784-9553 for additional information.
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