EDNF Conference 2013 Speaker List

Following is an alphabetical listing of speakers who have confirmed their participation in EDNF's 2013 Learning Conference; however, schedules can change, so please check back for updates. We will post changes as they become available. For more information about the speakers, please visit the Speaker Biographies page. Last updated: July 10, 2013.

Patrick Agnew, DPM Coastal Podiatry Group Foot and Ankle Issues in Collagen Disorders Noah Baerman Noah Baerman Trio: We Shall Overcome Richard Barnum, MD Private Practice; Child and Adolescent Forensic Psychiatrist Psychiatric Questions in Pediatric Pain Disorders: Issues of Diagnosis and Treatment James H. Black III, MD, FACS Vascular Surgery, Johns Hopkins Vascular Issues in EDS Maggie Buckley Workshop: Newly Diagnosed Heather Butler-Pierce, MEd Better Together: Growing Empowered Support Groups and Educated Communities Pradeep Chopra, MD Director, Pain Management Center, Interventional Pain Management Center of Rhode Island; Assistant Professor (Clinical), Department of Medicine, Brown Medical School, Division of Biology and Medicine and Assistant Professor of Anesthesiology (Adjunct), Boston University School of Medicine Management of Pain in EDS Heidi A. Collins, MD Memorial Medical Group in South Bend, Indiana How EDS Affects Digestion, Nutrition, Bowel Function, and Gut-Related Immune Function: The Care and Feeding of Zebras Workshop: Parents of children with EDS Joseph M. Ernest, MD Obstetrics and Gynecology, Carolinas Medical Center Pregnancy and EDS Clair Francomano, MD Director of Adult Harvey Genetics program at Greater Baltimore Medical Center; Associate Professor Johns Hopkins Plenary Session — What's New in EDS: 2013 Workshop: Classical Judy Giddy-King

Workshop: Vascular Rodney Grahame, CBE, MD, FRCP, FACP Consultant Rheumatologist University College Hospital and Honorary Professor at University College London in the Department of Medicine; Affiliate Professor of Pathology, School of Medicine, University of Washington Plenary Session: What should we call our syndrome?

Blair P. Grubb, MD The University of Toledo Medical Center, Toledo, Ohio Postural Tachycardia Syndrome Michael P. Healy, PT, DPT, DOMTP, CSN, CPT, MBA A Unique Pain Management Treatment for EDS Patients: Manual Therapy Approach Fraser Henderson, MD Director of Neurosurgery at Doctors Hospital and Director of the Chiari Center of Excellence Neurological Issues Arising in the Context of EDS Michael F. Holick, PhD, MD Boston University Medical Center: Professor of Medicine, Physiology and Biophysics; Director, Vitamin D, Skin and Bone Research Laboratory; Program Director, General Clinical Research Unit; Director, Bone Healthcare Clinic and Director, Biologic Effects of Light Research Center The D-Lightful Vitamin D: A Solution for Good Health Kathleen Kane, JD Social Security and Disability Howard Levy, MD, PhD Assistant Professor of Internal Medicine at the McCusick-Nathan F. Institute of Genetic Medicine; Clinical Director of Johns Hopkins Internal Medicine at Greenspring Station, MD Hip Pointers and Shoulder Tips Plenary Session: A Truly Multidisciplinary Approach to Managing Pain and Fatigue Richard Malenfant Workshop: Spouses and significant others (caregivers) Jeff Milunsky, MD Co-Director, Center for Human Genetics, Inc.; Director, Clinical Genetics; Senior Director, Molecular Genetics EDS Diagnosis and Hands On Management: Tightening the Connections John Mitakides, DDS, FAACP Distinguished Fellow of the American Academy of Craniofacial Pain; Professional Advisory Network, EDNF Temporomandibular Joint and Cervicogenic Head Pain in the Ehlers-Danlos Patient Kevin Muldowney, PT Sacroiliac Dysfunction with the EDS Patient Mitzi L. Murray, MD, MA University of Washington Medical Center The Ehlers-Danlos Syndromes: Classification, Testing and Diagnostic Challenges Eric S. Palmer, BOCO, BOCP Your Visit with the Orthotist: Or When It Is Time to See the Brace Man Alan G. Pocinki, MD Internal Medicine, George Washington Hospital Non-Restorative Sleep in Ehlers-Danlos Syndrome and

Pseudopsychiatric Symptoms in Ehlers-Danlos Syndrome Abbas Qutab, MBBS, DC, PhD, OMD Botanical Medicines and Dietary Interventions to Alleviate Pain and Inflammation Maggie Ridgely Round Table: Younng Adults Ellen Lenox Smith Workshop: Medical Marijuana Jon Trister, MD Prolotherapy for EDS Patients Shani Weber, MS EDNF Local Groups & Outreach Liaison Better Together: Growing Empowered Support Groups and Educated Communities