EDNF Conference 2012 Speaker List

Following is an alphabetical listing of speakers who have confirmed their participation in EDNF's 2012 Learning Conference; however, schedules can change, so please check back for updates. We will post changes as they become available. Last updated: July 19, 2012.

Patrick Agnew, DPM, Coastal Podiatry Group • Foot and Ankle Issues in Collagen Vascular Disorders James H. Black III, MD, FACS, Vascular Surgery, Johns Hopkins • Vascular Problems in EDS Canines for Disabled Kids Heidi A. Collins, MD, Memorial Medical Group in South Bend, Indiana • Clinic only Susan Cordes, MS, CGC, Cincinnati Children's Hospital • Poor Sleep and Ehlers-Danlos Syndrome Ralph Dehner, COTA/L • Tai Chi for Joint Strength and Stabilization Atiq Durrani, MD, Center for Advanced Spine Technologies • Neck/spine Clair Francomano, MD, Director of Adult Harvey Genetics program at Greater Baltimore Medical Center, associate professor Johns Hopkins • Pain Management in Everyday Life Rodney Grahame, CBE, MD, FRCP, FACP, Consultant Rheumatologist University College Hospital and Honorary Professor at University College London in the Department of Medicine; Affiliate Professor of Pathology, School of Medicine, University of Washington • Hypermobility, Fibromyalgia, and Chronic Pain Mary Kay Irwin, EdD, (ABD), Cincinnati Children's Hospital • School Integration / Re-entry, Plan for 504, IEP Ron Jaekle, MD, University of Cincinnati • Pregnancy in EDS Keith Kenter, MD, University of Cincinnati • Shoulder Instability in Patients with EDS Howard Levy, MD, PhD, Assistant Professor of Internal Medicine at the McCusick-Nathan F. Institute of Genetic Medicine, Clinical Director of Johns Hopkins Internal Medicine at Greenspring Station, MD • It's Not in Your Head—Or Is It? Anne Lynch-Jordan, PhD, Cincinnati Children's Hospital • Pain Management: More than Just a Pill Paula Melson, Cincinnati Children's Hospital • Physical Therapy in Pediatric EDS Anna Mitchell, MD, PhD • Research topics—pregnancy survey results John Mitakides, DDS • Diagnosis and Treatment of TMJ and Head/Neck Pain for the EDS Patient Mitzi L. Murray, MD, MA, University of Washington Medical Center • Vascular Ehlers-Danlos Syndrome: Placing Recent Studies in Context Sabrina Neeley, PhD, MPH, Wright State • Understanding the Relationship Between Self-Efficacy, Locus of Control, and Self-Management Behaviors in Adult Patients with Ehlers-Danlos Syndrome Linda Neumann-Potash, RN, MN, CBN, Nebraska Medical Center • How to Communicate With Your Doctor & Build Your Medical Team Michelle O'Sullivan/Michele Pavlis • Occupational Therapy Management of Hypermobility in EDS Shoshana R. Pehowic, Esq., O'Connor, Acciani & Levy Co., LPA • Ehlers-Danlos Syndrome and Social Security Disability Benefits Alan Pocinki, MD, Internal Medicine, George Washington Hospital • Sleep Disorders in Ehlers-Danlos Syndrome Stephanie Powell, Cincinnati Children's Hospital • Physical Therapy in Pediatric EDS

Marnie Renda, OTR/L, CAPS, ECHM Destination Home • Living at Home with EDS Opal Riddle, PR, DPT/Dawn Westfal, CPT • Hypermobility: Getting Healthy, Improving Function & Strength Shane Robinson, Executive Director, EDNF • EDNF: Past, Present, and Future Elizabeth Russell, MD • VEDS tendon utrasound project Shira Saperstein • Kids & Teens program Crystal Seamon, PT, DPT, OCS, ATC • Pilates: What Can It Offer the EDS Patient?

Andrew Smith, MD • Mast Cell Disorders Brad Tinkle, MD, PhD, Cincinnati Children's Hospital • EDS Today and Tomorrow Kathleen Zonarich, PT • Aquatic Exercise: Benefits and Principles for the EDS Population, Women: Understanding, Preventing, and Managing Pelvic Floor Dysfunction Discussion Groups • Newly Diagnosed, Parents of Children with EDS, Spouses and Significant Others (Caregivers), Vascular EDS, Young Adults Professional Conferences In conjunction with EDNF's 2012 Learning Conference, two professional conferences will be held as part of our efforts to continue training physicians and other medical professionals: Primary Care Providers Conference on August 9, and Occupational & Physical Therapists Conference on August 11. Please note, the educational events at Cincinnati Children's Hospital for physicians and therapists are held in conjunction with the EDNF conference, but are separate events which require separate registration. A PDF brochure is available through this link.

Cincinnati Children's Hospital Medical Center • PT/OT Department, Occupational & Physical Therapists Conference Various Cincinnati providers • Primary Care Providers Conference Speaker biographies are available on the Speaker Biographies page. Session handouts will be available on the Program Handouts page.