It takes a community to turn type one into
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Welcome to the JDRF Austin | San Antonio Joint Summit May 21, 2016 | New Braunfels Convention Center | New Braunfels, TX
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I ALWAYS KNOW WHEN HER GLUCOSE LEVEL WILL LET HER SLEEP A LITTLE LONGER
IF YOUR LOVED ONE HAS DIABETES, NOW YOU CAN ALWAYS KNOW HER GLUCOSE LEVEL WITH THE NEW DEXCOM G5™ MOBILE CONTINUOUS GLUCOSE MONITORING (CGM) SYSTEM. IT SENDS READINGS EVERY FIVE MINUTES* — AND ALERTS WHEN NECESSARY — FROM A SMALL, BODY-WORN SENSOR TO YOUR SMART DEVICE.** YOU WILL ALWAYS KNOW HER LEVEL, SO SHE CAN AVOID HIGHS AND LOWS.
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DEXCOM . COM *Dexcom G5 Mobile User Guide, 2015 **For a list of compatible devices, visit www.dexcom.com/compatibility BRIEF SAFETY STATEMENT The Dexcom G5 Mobile Continuous Glucose Monitoring System is a glucose monitoring system indicated for detecting trends and tracking patterns in persons (ages 2 years and older) with diabetes. CONTRAINDICATIONS Remove the System before MRI, CT scan, or diathermy treatment. The device is MR Unsafe. Do not bring any portion of the System into the MR environment. Taking acetaminophen while wearing the sensor may falsely raise your sensor glucose readings. WARNING Do not use the System for treatment decisions. The System does not replace a blood glucose meter. The System is not approved for use in pregnant women, persons on dialysis, or critically ill persons. If a sensor breaks and no portion of it is visible above the skin, do not attempt to remove it. Seek professional medical help if you have infection or inflammation. Report broken sensors to Dexcom Technical Support. Sensor placement is not approved for sites other than under the skin of the belly (ages 2 years and older) or upper buttocks (ages 2–17 years). Your smart device’s internal settings override your app settings. Accessory devices (like a smart watch) might override your smart device’s alert and notification settings. The Share feature must be turned “On” with an active internet connection to communicate glucose information to a Follower. The Follower must download and install the Dexcom Follow App onto a separate smart device with an active internet connection to receive data. Contact Dexcom Toll Free at 877-339-2664 or www.dexcom.com for detailed indications for use and safety information. © 2016 Dexcom Inc. All rights reserved. This product is covered by US patent.
WELCOME FROM SUMMIT CO-CHAIRS Hello and welcome to JDRF’s TypeOneNation 2016.
Welcome to JDRF’s TypeOneNation 2016.
Thank you for joining us for another great event! This year’s lineup of speakers is better than ever! As a mother of a T1 child, I know firsthand how exhausting and frustrating this disease can be. I hope you look forward to being energized by this conference just like I do. Nothing makes me feel better than a day being surrounded by my T1 community that “gets it”—you know what it really means to manage your everyday life with this disease. This is OUR conference and we strive each year to bring together topics that will help empower our T1 community. At each T1 Nation conference you will have an opportunity to get the information you need to take the next step in your journey whether it is to: • Dial in your glucose control • Kick off that new exercise or weight loss plan • Find better ways to help your child or teen emotionally navigate the burden • Train a friend or family member on caring for your T1 child • Be inspired by your T1 peers • Learn more about all the promising research that is underway
Hi! I am Hillary Martin and my son, Benjamin, was diagnosed with Type 1 in December of 2012 at the age of 4. Benjamin’s diagnosis came as a shock to our family. The last three and a half years have been a challenge. We have leaned on JDRF as a source of support and guidance! It is easy to feel alone and get lost in the struggles of this disease, but there are other families that are going through the exact same struggles we are experiencing. JDRF has helped us meet other T1D families. For that, we are so grateful!
Hillary Martin
San Antonio Chair, TypeOneNation 2016
THANK YOU TO OUR PREMIER SPONSORS
I am passionate about helping all T1s live their lives to the fullest and that is what this conference is all about. Make the most of it!
Laura Stoner Austin Chair, TypeOneNation 2016
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JDRF MISSION MESSAGE MARLON PRAGNELL, PH.D. JDRF Senior Scientist, Glucose Control Therapies JDRF Mission Message— Time: 9:30am Room: Exhibit Hall
Artificial Pancreas Update— Session 1: 10:30-11:30am Room 103
Marlon Pragnell, Ph.D., joined JDRF in 2007 and serves as senior scientist in the Translational Development Program where he manages JDRF’s multi-million dollar Artificial Pancreas Project. Dr. Pragnell also leads JDRF’s efforts in the area of hypoglycemia research, which aims to better understand the mechanisms of hypoglycemia unawareness in order to find better treatments for this condition. He has also assumed responsibility for the JDRF-funded CONCEPTT trial, an international effort that aims to improve maternal and fetal outcomes in type 1 diabetes pregnancies through the use of continuous glucose monitors. Dr. Pragnell brings over 10 years of biotech industry experience to the research team. Prior to joining JDRF, he held the position of Principal Scientist in renal and metabolic diseases with Genzyme Corporation, now a Sanofi company. There he led or was a key member on a broad range of preclinical programs including strategies to prevent postmenopausal osteoporosis and improve bone quality by targeting endocrine pathways that mediate bone turnover, proof-of-concept of strategies to treat X-linked hypophospatemic rickets, and lifecycle support of Genzyme products. To complement his in-house research programs, Dr. Pragnell initiated and developed multiple collaborations with key experts in bone metabolism and managed company-sponsored research both in the USA and at international locations. Dr. Pragnell received his doctorate from the University of Iowa, where he characterized the first known regulatory beta-subunit of neuronal voltage-sensitive calcium channels. Before being recruited to Genzyme, Dr. Pragnell was a postdoc at Columbia University in the laboratory of Howard Hughes Medical Institute’s Investigator Dr. Steven Siegelbaum. Dr. Pragnell has published research articles in a number of top journals, including primary author publications in Nature (which merited “News & Views”) and Neuron, and a coauthored publication in Science for his work on voltage-sensitive ion channels.
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KEYNOTE SPEAKER QUINN NYSTROM Diabetes Truth Talk: Learning to Live with Purpose & Passion Time: Noon Room: Exhibit Hall Some people find their calling late in life. Quinn found hers at the age of 10, when her five-yearold brother, Will, was hospitalized with type 1 diabetes. Three years later she was diagnosed with type 1 diabetes and re-doubled her efforts. At 16 Quinn was chosen as the National Youth Advocate for the American Diabetes Association (ADA) and spent a year traveling across the country to camps, conferences, corporations, Congress and even the White House. Quinn devotes her full-time efforts to speaking around North America on diabetes, and working diligently as a diabetes advocate. To date, she has spoken to over 250,000 people. She is an energetic speaker who has inspired, informed and entertained her audiences. Quinn’s been honored to throw out the first pitch at the Minnesota Twin’s Game as well as being featured nationally on XM Radio, Glamour Magazine, MSN, Diabetes Forecast, The Pioneer Press, The Fox Morning Buzz, Twin Cities Live and The Learning Channel (TLC). In 2015 she was one of the youngest individuals elected to the City Council in the state of Minnesota and also received the honor of being named one of the “Ten Outstanding Young Minnesotans” for her nearly 20 years of service to raising awareness about diabetes. Her company, Qspeak, allows her to speak, advocate, consult and raise funds for diabetes. Nystrom has her own non-profit foundation, “Dateline Diabetes,” which provides hope, support and financial assistance for young people diagnosed with diabetes. She currently sits on the Board of Directors for the Minnesota Chapter of the American Diabetes Association. Her first book, If I kiss you, will I get diabetes? was released by River Place Press in January 2014. The book is a first-hand account of negotiating life with a chronic illness. She writes a bi-monthly blog, “Dateline Diabetes Dish” for the website, DiabeticLifestyle.com, on life as a young adult with type 1 diabetes. Nystrom is a 2008 graduate of Hope College in Holland, MI, majoring in Mass Communications and minoring in Political Science. She will graduate this year with a Master’s Degree in Communication Management from Syracuse University. She currently resides in Baxter, MN. To find out more information about her and upcoming appearances, check out her website at www.QuinnNystrom.com.
CONFERENCE SPEAKERS Barbara J. Anderson, PhD, Professor of Pediatrics Barbara J. Anderson, PhD, is a Professor of Pediatrics and Associate Head of the Psychology Section at Baylor College of Medicine and Texas Children’s Hospital. She is a passionate advocate for youth and families living with diabetes and has worked as a behavioral scientist and licensed clinical psychologist for over 25 years in research and clinical work with youth with diabetes and their families. Dr. Anderson is very interested transforming pediatric diabetes health care to be more developmentally- and family-based.
Dr. Thomas Blevins Dr. Thomas Blevins attended the University of Texas at Austin as an undergraduate, majoring in Plan II. He attended medical school at the Baylor College of Medicine in Houston and completed his Internal medicine and Endocrinology training there as well. He has been in Austin since 1986 and was with the Austin Diagnostic Clinic until 2001 when he founded Texas Diabetes and Endocrinology, a practice devoted to bringing the latest in Diabetes advances, Thyroid care and Osteoporosis diagnostics and treatment to Austin and Central Texas. He enjoys spending time with his family and exploring the Hill Country with wife, Donna, in his spare time. He has a particular interest in Endocrinology-related education and research.
Diabetic Danica—YouTube Star Diabetic Danica has had Type 1 diabetes for 12 years. In 2011, she started a YouTube channel called “DiabeticDanica,” which was initially just a way for her to rant about the misconceptions related to Type 1 diabetes. However, today, the channel is approaching 13,000 subscribers and has almost 1.5 million total channel views. It serves as a place for Danica to share about her diabetic journey and educate others along the way. She makes entertaining yet informative videos on everything from insulin pump and CGM tutorials, personal stories, parody songs, and day in the life videos. Apart from YouTube, she is also a pediatric Registered Nurse and is working towards becoming a Certified Diabetes Educator. She loves making diabetes videos regularly, as it gives her a glimpse into what her eventual career as a diabetic educator will be like and allows her to connect with thousands of diabetics all across the globe!
Chrysa Malosh—Cyclist with Team Novo Noridsk Chrysa Malosh has been living with Type 1 Diabetes for 25 years having been diagnosed at age 11. While originally from NE Pennsylvania she currently resides in Nashville, Tennessee with her husband Bob and their two cats Homeless and Cheesey. Chrysa has a Master’s Degree in Biological Chemistry from UTSW Medical Center and began her cycling career in 2006 racing in the Texas Mountain Bike Series. She is a Level 3 USA Cycling Coach and was the JDRF Ride to Cure coach for Middle TN in 2014. She is a Category 2 mountain bike racer and a Category 3 road and cyclo-cross racer. Chrysa competes in about 50 bike races a year; training 10-15 hours a week. Race highlights include: • 2015 Third Place Music City Criterium Series • 2014 TN State Time Trial 1st Place • 2011 TORBAR Champion (TN Off Road Best Area Rider) 5
CONFERENCE SPEAKERS Stephen W. Ponder MD, FAAP, CDE Dr. Ponder has been a board-certified pediatric endocrinologist and certified diabetes educator since 1989-90. Dr. Ponder is also a Joslin 50-year medalist; having lived well with type 1 diabetes since March 1st 1966. He is the creator of Sugar SurfingTM, a paradigm changing approach to managing diabetes. His book Sugar Surfing (www. sugarsurfing.com) is now in its fifth printing and has sold in over 30 countries. Ponder has been serving annually since 1981 on the medical staff at the Texas Lions Camp for Children with Diabetes. He has served as that residential camp’s medical director since 1989. He served on and chaired the National Certification Board for Diabetes Educators (NCBDE) and chaired the organization in 1996. He has served on numerous local, state, and national committees advocating for child health and improved diabetes care. He has authored numerous research articles and received several diabetes research grants. He also serves as the Program Director for the Pediatric Residency Program at Scott and White Memorial Hospital in Temple, Texas. He is medical director for the Feed My Sheep Children’s Free Clinic which aims to serve homeless and uninsured children across central Texas. Dr. Ponder has spoken internationally on all areas of diabetes care for several decades. His professional focus is on empowering children, their families, and individuals with diabetes to assist them in achieving the best possible diabetes control and outcomes.
Gary Scheiner MS, CDE Gary Scheiner is an award-winning Certified Diabetes Educator, Masters-level Exercise Physiologist and person with type-1 diabetes since 1985, Gary Scheiner has dedicated his professional life to improving the lives of people with insulin-dependent diabetes. He was recently named 2014 Diabetes Educator of the year by the American Association of Diabetes Educators. Gary earned a Bachelor of Arts in Psychology from Washington University in St. Louis and a Master of Science in Exercise Physiology from Benedictine University. He received his diabetes training with the world-renowned Joslin Diabetes Center. Gary serves on the faculty of Children With Diabetes and is an active volunteer for the American Diabetes Association, Juvenile Diabetes Research Foundation, Insulindependence, and Setebaid Diabetes Camps. He also serves on the clinical advisory boards for several diabetes device manufacturers and pharmaceutical companies. Gary has authored six books: You Can Control Diabetes (1997), Think Like A Pancreas (2004), The Ultimate Guide to Accurate Carb Counting (2007), Get Control of Your Blood Sugar (2009), Think Like A Pancreas, 2nd edition (2011), and Until There’s A Cure (2012) as well as dozens of published articles related to diabetes education for consumer and trade magazines and diabetes websites. He speaks at local, national and international conferences on a multitude of topics in diabetes care. Gary is certified to train on all models of insulin pump and continuous glucose monitoring systems.
THANK YOU TO OUR LOCAL SPONSORS
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PEDIATRIC ENDOCRINOLOGY PRESENTERS ‘Specially for Children (SFC), Pediatric Endocrinology is a sub-specialty group with Dell Children’s Medical Center of Central Texas. SFC’s practice is comprised of 6 Pediatric Endocrinologist’s, 6 Nurse Practitioners, 2 Dietitian’s, and 7 Diabetic Educators, 2 Spanish Interpreters, 1 Social Worker. Today your presenters are: Shelley Knight RD, LD, CDE is a registered dietitian and certified diabetes educator with 20 years of experience and 17 years’ as a certified diabetes educator. Shelley is married with 1 grandchild. In her free time, Shelley enjoys traveling and volunteering for various things in the community and at her church. Jackie Raleigh RD, LD, CDE is a registered dietitian and certified diabetes educator with 25 years of experience. Jackie is married and has 3 children and 2 grandchildren. She finds it both rewarding and fun to work with children with diabetes and their families. In her free time Jackie enjoys family time, aerobics, tennis, and reading.
Nancy Suknaic RN, BSN, CPN is a registered and board certified pediatric nurse with 30 years of experience. Nancy has 2 children. In her free time Nancy enjoys time with her children, tennis, and golf. Robyn Wolfshohl, RD, LD earned her Bachelor of Science in Nutrition from the University of Texas at Austin in 2011 where she also completed the Coordinated Program in Dietetics participating in various clinical and community rotations throughout Austin area serving the community. She is passionate about working with children and empowering others through healthy eating and nutrition and enjoys swimming and cooking in her free time.
To contact Specially for Children please email: SFCdiabetes@seton.org
There’s a reason Medtronic keeps making their products better – me. At Medtronic, we’re changing what it means to live with diabetes. Our leading-edge technologies help patients do the things they never thought possible. Our unrivaled 24-hour service and support provide the peace of mind parents and their children deserve. Improving lives is what drives us to push through boundaries and lead to breakthroughs. www.medtronicdiabetes.com 1-800-646-4633
9403605-011 20100514 © Medtronic MiniMed, Inc. 2013. All rights reserved.
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SCHEDULE OF EVENTS 8:30 am 9:30 am 10:30 am 11:30 am 12:00 pm 1:00 pm 1:15 pm 2:30 pm 3:30 pm
Registration Begins, KidNation Check-in, Exhibitor Hall Opens, Breakfast Served Welcome and JDRF Mission Message: Marlon Pragnell, Ph.D. Session 1 Begins Lunch Break, Exhibitor Time/pick up children from KidNation Keynote Speaker: Quinn Nystrom Return children to KidNation Session 2 Begins Session 3 Begins End of Summit/Pick up children from KidNation
JDRF Mission Message Room: Exhibit Hall | Speaker: Dr. Marlon Pragnell | Title: JDRF Mission Message Description: Dr. Pragnell will discuss JDRF’s vision for a world without T1D and how every day JDRF works to make this a reality by funding research, advocating for government support, helping new therapies come to market and connecting and engaging the community. While a cure is the ultimate goal, millions of people are struggling with the 24/7/365 burden of living with T1D. Listen as Dr. Pragnell discusses the research JDRF is working on to make treatments less invasive, easier to manage and more effective so that when the cure does arrive people are healthy enough to receive it.
JDRF Keynote Speaker Room: Exhibit Hall | Speaker: Quinn Nystrom | Title: Diabetes Truth Talk: Learning to Live with Purpose & Passion Description: Life is a series of reactions to unpredictable circumstances. Quinn was 13 years old when she was diagnosed with type 1 diabetes, a chronic disease with no cure. Life was over until she met other kids at a diabetes camp living large despite the disease. She dedicated herself to finding a cure for the disease and improving the lives of those surviving with diabetes and discovered a life full of purpose and passion.
Session 1—10:30-11:30 am Room: Exhibit Hall Speaker: Dr. Stephen W. Ponder, MD, FAAP, CDE Title: Sugar Surfing Basics Description: Discuss the Sugar Surfing mindset and contrast static and dynamic diabetes management. Learn the basic elements of a continuous glucose monitoring system and how to use the data to guide your diabetes management. Room: Conference Room 102 Speaker: Dr. Thomas Blevins Title: Pediatric Diabetes Research in Central Texas Description: While we eagerly await the artificial pancreas and islet cell replacement, exciting research with faster acting insulin and new sensors is taking place now in Central Texas. Come learn more about faster acting insulin and new glucose sensor technology. Room: Conference Room 103 Speaker: Dr. Marlon Pragnell Title: Research Update: Artificial Pancreas
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Description: There are so many exciting developments in artificial pancreas research! Come hear the latest research update in this area directly from Dr. Marlon Pragnell, the Senior Scientific Program Manager in the Treat Therapies Program at JDRF, where he manages JDRF’s multi-million dollar Artificial Pancreas Project. Room: Conference Room 104 & 105 Speaker: Gary Scheiner, MS, CDE Title: HUNGRY and GROWING and MOODY. Oh My! Description: Managing diabetes through childhood is no easy task, especially when the hormones start raging. This session addresses the challenges we face in managing glucose levels from preschool through puberty. Room: Ballroom Speaker: Sponsored By: FIFTY50 Title: KidNation: Drum Cafe Description: The Drum Cafe concept was developed 20 years ago in South Africa, where it is a tradition amongst
the African culture for a group to come together to make music and build community. Making music as a group has always encouraged communities to realize that they are all there for the same reason or to achieve the same goal. We are confident the kids will experience this alignment today as they are gathered, while also allowing each of them to express his/her own uniqueness. Room: Honors Hall Speaker: Diabetic Danica Title: Teen Session: Real Talk with Diabetic Danica Description: :Real answers to questions submitted by our T1 teen community. Teens with T1D face unique challenges and want to hear directly from someone who has been there. Submit your questions to Danica anonymously in this session and get the conversation going.
Session 2—1:15-2:15 pm Room: Exhibit Hall Speaker: D r. Stephen W. Ponder, MD, CDE Title: Recognizing CGM Waves & Learning to Surf Description: Read the CGM waves and identify the elements of safe surfing technique and safe self-experimentation. Learn the basic tools needed to successfully tackle the waves such as managing food-timing and micro-dosing insulin and carbohydrates. Room: Conference Room 102 Speaker: SFC Title: Basics of Carb Counting Description: Come join one of the Registered Dietitian’s from the ‘Specially For Children team to learn about the basics of carbohydrate counting including identification of carbohydrate and carbohydrate-free foods, ways in which to count carbohydrates, label reading, carbohydrate counting when eating out, and understanding insulin to carbohydrate ratios. Room: Conference Room 103 Speaker: Dr. Barbara Anderson Title: Lessons from Behavioral Research about Teens with T1D
Description: Get an update on the most recent findings from federally-and foundation-funded behavioral research on youth with T1D and their families. We will share the best practice approaches from this research for parenting adolescents with T1D. Room: Conference Room 104 & 105 Speaker: Gary Scheiner, MS, CDE Title: Weight Control for Insulin Users Description: We need insulin to stay alive and manage glucose levels. But insulin promotes weight gain. So what’s an insulin user to do when weight becomes a concern? Learn how to lose weight safely and effectively WITHOUT sacrificing blood sugar control. Room: Honors Hall Speaker: Chrysa Malosh, Team Novo Nordisk Pro Cycling Title: KidNation: Growing Up and Being Active with Type One Diabetes Description: Growing up and being active with type 1 diabetes is a key ingredient to a healthy lifestyle. Chrysa is a cyclist with Team Novo Nordisk which
is comprised of over 100 type 1 athletes swimming, running, and cycling with type 1. Chrysa will talk to the kids about growing up and racing with diabetes while leading them in an interactive, fun session. Room: Ballroom Speaker: Sponsored by FIFTY50 Title: KidNation: Kiddie Yoga Description: In this class taught by Tamara Masters we’ll be engaging in the natural vivacious energy children have and introduce them to new ways to learn through movement. This class will be alive with flowing sequences, fun and challenging balancing poses, breathing exercises, and creative relaxation and visualization techniques that children relish in. Participants will gain a deeper understanding of the physical aspects of practicing yoga. Modifications will absolutely be provided (according to age group) and for those who would like to push themselves. Bring your smiles and laughter!
Session 3—2:30-3:30 pm Room: Exhibit Hall Speaker: Dr. Stephen W. Ponder, MD, FAAP, CDE Title: P utting It All Together— Master the Waves Description: Learn how to resolve common Sugar Surfing scenarios. Discuss how to navigate complex, chaotic, or unexpected surfing situations. Room: Conference Room 102 Speaker: SFC Title: The Basics of Diabetes Care Description: Are you new to T1D? Come meet with the team from ‘Specially for Children and learn the basics of blood glucose goals, treating highs and lows, proper technique for insulin injections, proper use of an insulin pens, and blood glucose monitoring.
Room: Conference Room 103 Speaker: Chrysa Malosh, Team Novo Nordisk Pro Cycling Title: Exercise and Type 1 Diabetes Description: If you are living with diabetes, exercise is a key ingredient to a healthy lifestyle. Whether it is a walk around the block after dinner or a 65 mile mountain bike race, diabetes management is always at the forefront. Come join in on a discussion and Q&A session with Team Novo Nordisk cyclist Chrysa Malosh. Room: Conference Room 104 & 105 Speaker: Quinn Nystrom Title: Life in the Fast Lane: Driving, Dating and Diabetes Description: It’s a tough life to be a teenager. Add a chronic disease and life
seems almost impossible. Balancing twin loads of peer and parental pressure while managing a disease requires negotiation and compromise. A frank discussion for parents on how to best communicate with your teen with diabetes. Room: Ballroom Speaker: Diabetic Danica Title: KidNation: 10 Things I Like About T1D Description: Danica will share her “10 Things I Like about T1D” video and lead the kids through an interactive activity focused on highlighting the positive aspects we can find in our daily lives living with T1D.
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KIDNATION SCHEDULE OF EVENTS Your children will be able to mingle with one another throughout the day while exploring their creativity and expanding their horizons with type 1 diabetes education. Activities are geared towards age groups and welcome siblings of those living with T1D.
8:30 am
KidNation Check-In Begins, Exhibitor Hall Opens, Breakfast Served
9:30 am
Welcome to KidNation: Facilitated ice breakers and introductions.
10:30 am
Session 1 Begins—Drum Cafe
11:30 am
Children picked up from KidNation for Lunch Break, Exhibitor Time
12:00 pm
Keynote: Quinn Nystrom
1:00 pm
Children return to KidNation
1:15 pm
Session 2 Begins—Kiddie Yoga & Speaker Chrysa Malosh
2:30 pm
Session 3 Begins: Diabetic Danica
3:30 pm
End of Summit
Tandem Diabetes Care® is proud to support the JDRF in its efforts to improve the lives of people with diabetes.
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EXHIBITORS
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NEW BRAUNFELS CONVENTION CENTER