Keiron's story: Citrullinaemia Hi, I'm Tori. My son, Keiron, lost his life to the complications of Citrullinaemia in April 2007. He was a beautiful healthy bouncing baby boy... or so we thought. He passed all his tests in the hospital with flying colours and we were sent home the next day to begin our journey as a new family. Sadly, in the next hours Keiron became very unwell. Despite making a number of calls through the night and the next morning to the midwives, who assured me time and time again that he was crying because he's a baby, I knew in my heart that something wasn't right. So I took him to the hospital regardless. Our nightmare soon began. Keiron was diagnosed with Citrullinaemia, and although he fought so hard, he sadly passed away at 17 days old in my arms after being taken off his life support machine. Keiron didn't die of Citrullinaemia, he died because of the complications of it, by ammonia levels getting so high in his blood he was brain damaged. After surviving a dialasis machine to replace his poisoned blood and spending 17days fighting this evil disorder, he was declared brain dead. It was recommended that we let him die peacefully in my arms rather than die hooked up to a machine that would eventually flat line.
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