Spotlight on Services - MND Advisory Service

A diagnosis of Motor Neurone Disease (MND) is life-changing. In an instant, individuals and their loved ones are thrust into a world filled with uncertainty, complex systems, and countless decisions. It’s a time of profound adjustment, and it’s natural to feel overwhelmed. MND Queensland is passionate about ensuring that no person affected by MND tackles this beast alone. Our MND Advisory Service exists so that when people reach out, they’re met with compassionate guidance, practical support, and - above alla reassuring presence to help them find their way.

One of the greatest sources of stress for individuals with MND and their carers is figuring out where to turn for help. The healthcare system can be confusing, and the NDIS, My Aged Care, and other funding pathways often feel like a maze. That’s where our ‘no-wrongdoor’ approach comes in. Whether someone calls us for the first time with a question, needs assistance navigating their funding options, finding care providers, or is looking for emotional support, they’ll always find the right support at MND Queensland.

Our MND Advisory Service acts as a constant source of comfort and direction, ensuring that no matter what challenge arises, there is always someone to talk to, someone who understands, and someone who can help. We believe in empowering people with MND and their carers with knowledge and confidence so they can focus on what truly matters - living well for as long as possible.

The weight of uncertainty, the fear of what’s ahead, and the daily emotional impact can take a serious toll. Our MND Advisors understand this deeply, and their role extends beyond providing information - they offer a caring ear, a compassionate heart and a steady presence for those facing the challenges of MND.

MND Queensland currently has Advisors on the ground in Townsville, Cairns, Sunshine Coast, Brisbane and the Gold Coast. In 2025, we have already employed three more MND Advisors to meet demand and expand our reach. We are excited to be expanding services further on the Gold Coast and into the Fraser Coast. Whilst we acknowledge that we can’t be everywhere, our team are still very capable and able to support clients anywhere in Queensland. Whilst a cuppa around the table might be hard to share, our Advisors are still only a phone call, text message, or email away and are still very much able to help!

If you or someone you love needs support,

please reach out to our MND Advisory Service. Because together, we can provide not just care, but comfort—and that makes all the difference.

PS – Whilst our MND Advisors play a crucial role in offering emotional reassurance, we know there is more to be done! We are still working hard to fund a dedicated psychologist to provide even greater emotional and psychological support for people living with MND and their carers. If you’d like to help us make this vital service a reality, we’d be incredibly grateful for your support. Visit our website to make a donation!

What our Clients and Carers say about us:

“Without MND Queensland, I don’t know where we would be today” – Carer of a person living with MND.

“Spectacular kindness and professional approach to any contact we have with MND Queensland” – MND Queensland Client and Carers Survey Participant.

“MND Queensland makes sure we do not face our fears and apprehension alone” – MND Queensland Client and Carers Survey Participant.

“You are there – all the time – for me it’s comforting knowing I can call you any time and my carer can do the same” – MND Queensland Client and Carers Survey Participant.

Have you seen our monthly Spotlight on Services Newsletter for clients & carers that is sent out by Alicia? Make sure you check your email inbox to stay up to date on what’s happening at MND Queensland, education opportunities, research and clinical trials updates, and much more!