MS Life Winter 2012 by MS Queensland

MSLIFE. WINTER 2012

QUEENSLAND’S PREMIER MAGAZINE FOR PEOPLE LIVING WITH MS

NDIS RALLY HITS THE STREETS

Thousands gather to send a clear message to Government: we need an NDIS

Jackie helps kiss goodbye to MS

pg. 6

pg. 8

Celebrating World Exercise key MS Day 2012 to your wellbeing

pg. 12

pg. 18

Jackie’s Kiss for MS

MS Heroes announced

LETTER FROM THE EDITOR

Dear readers Hope you are well as we near the second half of the year. Things are very busy in the office as we see the tail end of four MS Swimathons, MS Awareness Month and World MS Day and make our last minute preparations for the Brissie to the Bay bike ride on Sunday 24 June in Brisbane. This year’s MS Awareness Month was our biggest yet with more than a dozen buildings and bridges across Queensland turning red in support of MS and more than 40 events held in the community. Our MS Heroes for 2012 were announced by the Governor on 29 May and on World MS Day our special Black Edition Lottery was drawn to mark the occasion. To read more about how these special events were celebrated please visit our website. Recently I had the privilege of visiting the Gold Coast pwMS Support Group meeting as their guest speaker to talk about the ways we at the Society communicate to our clients and members. Of course this publication, MS Life, is central to our communication to you but we also offer monthly e-newsletters, research updates, social media avenues like Facebook and Twitter and of course our MS videos on YouTube. I’d like to thank the Gold Coast group for their hospitality and for the insight into what an active group you are! If you’d like to stay in touch please visit our: Website: www.msqld.org Facebook: www.facebook.com/msqld Twitter: www.twitter.com/#!/msqld YouTube: www.youtube.com/user/MSAustraliaQ If you have any feedback about this edition of MS Life please don’t hesitate to get in touch by emailing me at mslife@msqld.org.au Your feedback is always appreciated. MS LIFE – WINTER 2012

Kindest regards

Melanie Editor, MS Life

LETTER TO THE EDITOR MS LIFE AUTUMN edition Excerpt from Letter to the Editor received “What I like about the MS Magazine is the section by Tim the Nurse. Sometimes it’s good to see the questions and hear the responses again, as like most of us we tend to forget things after a while. And it’s nice to see he answers them in such a way that it is easy to understand. Thanks Tim.” Julie, MS Life reader. Note: If you have a MS an question to ask our Manager of Specialist Education Tim to be answered in the next MS Life, please email Tim at mslife@msqld.org.au before 30 July 2012.

New MS iPhone and iPad App 3Dme creates ‘MS 3Dme’ iPhone and iPad App to return funds to MS Australia! Our friends at 3Dme Creative Studio on the Gold Coast have generously funded the production of an iPhone and iPad App for MS Australia, with 50% of net revenue being returned to MS Australia. This App will help those diagnosed with MS, their family, friends, parents and health professionals to understand this disease better, and help to alleviate some of the anxiety newly diagnosed people have about MS. This App has a 3D video plus Q & A, and users are encouraged to share and tweet their results. If you have an iPhone or iPad, please support this initiative by downloading a copy for $0.99 at the iTunes Store by searching “MS 3Dme”. Don’t forget to return to the App Store to rate and write a review. This will keep our App in a prime position on the App Store!

Acknowledgement: We wish to thank Jackie Richards for the use of her image on the cover of this publication. Photo by Ryan Smyth Photography.

CONTENTS WINTER 2012

I’m still seeing RED! As we know, May was MS Awareness Month and many activities held around the globe culminated in World MS Day on 30 May. In the lead-up, prominent buildings all the way from Brisbane to Cairns were lit up at night in bright red to raise awareness of people living with MS. Last month we made someone extremely happy when their lottery ticket won them a very rare, bright red sports car; the proceeds of which helped MS Queensland raise much needed funds for MS services and research. Thanks to all who got behind MS Queensland back in late April when more than 50 clients, families, carers and staff loudly and proudly marched (dressed in red of course!) to show our public support for the National Disability Insurance Scheme (NDIS). And finally, we opened our new office in Far North Queensland. Celebrating this remarkable event with Her Excellency the Governor of Queensland and Patron of MS Queensland, Ms Penelope Wensley AC. It was great to meet our faithful MS supporters, friends and staff in Townsville and see our bright red “MS” logo on the door of the new office. So you can probably understand why I’m seeing red! But the last few months’ activities are not the only reason and I’m not alone. Each day my amazing team of staff and volunteers at MS Queensland come to work seeing red about the devastating impact MS can have in people’s lives. We all want to see a world free from MS and so we focus our time, energies and resources on helping people living with MS to get the best out of life; to advocate for change and to search for a cure. Best wishes.

COVER STORY ie Richards

Jack

PAGE 2–3 Letter from the Editor Letter to the Editor From the CEO PAGE 4–5 NDIS Rally hits the streets How Dennise lives positively with MS PAGE 6–7 World MS Day celebrated Brissie to the Bay riding to fight MS After hours exercise to suit PAGE 8–9 Exercise key to your wellbeing MS households spend 12 times more on air conditioning PAGE 10–11 Christine’s dinner parties for MS take the cake Townsville gets official opening Progressive MS research PAGE 12–13 Jackie’s kiss for MS PAGE 14–15 How Australia helped Kiss Goodbye to MS! FNQ MS Swimathons PAGE 16–17 Membership renewals due Thank you to our Big Dinner Party Hosts Community fundraise for MS Latest in mobility vehicles PAGE 18–19 MS Heroes announced PAGE 20–21 220km on the road to physio MS questions with Tim PAGE 22-23 MS Resources ‘Working with MS’ workshops on offer PwMS Support Group update PAGE 24

Lincoln CEO

How young Jackie finds inspiration in living with MS

Calendar of events

To provide feedback, make a donation to the MS Society or for more information please call 1800 287 367, email mslife@msqld.org.au or visit www.msqld.org

MS LIFE – WINTER 2012

FROMthe CEO

NDIS WITH NATALIE Thousands gather to send a clear message to government: we need an NDIS.

MS LIFE – WINTER 2012

Thank you for your ongoing support for all MS activity, whether it is through your participation at a MS information session, MS events, community fundraising and particularly for adding your voice and for many, your presence, at the NDIS Rally on Monday 30 April at the country’s biggest disability rally ever held across Australia. From combined efforts across the disability community, our voice has been heard and the first stage of funding for an NDIS was announced at the NDIS Rally by Senator Jan McLucas, Parliamentary Secretary for Disabilities and Carers on behalf of Prime Minister Julia Gillard. The NDIS Rally was a really exciting time for us to join other friends of the disability community for our unified presence of over 2,000 Queenslanders who marched

rally hits the streets

together to highlight the importance of a NDIS and to hear from representatives in government of their understanding and support for a NDIS. Speakers include many fabulous representatives from the Disability community including Spinal Injuries, Carer’s Queensland, Endeavour Foundation and our wonderful MS Ambassador, Mayor Paul Pisasale who shared our voice including commenting, ‘the NDIS is not a handout, but a hand-up’. There was great support from staff and clients of MS Queensland, with residents and clients, coming by the bus loads from across Brisbane and the Gold Coast. It was great to see everyone joining together to advocate for this once in a generation opportunity for change! This most welcome news has been received with an allocated $1 billion of funding allocated in the Federal Budget over four years to launch the National Disability Insurance Scheme. However, the implementation of a NDIS relies heavily on cooperation between Federal, State and Territory governments to have the NDIS legislated. Our campaign must continue so please keep spreading the word amongst your friends, family and communities to ensure the NDIS becomes a reality for all Australians with disability, their families and

carers. Every Australian Counts supporter signups are still needed at www.everyaustraliancounts.com.au Our state was awash in political activity throughout the month of April and many of us have new Queensland State Government representatives and possibly new local councillors too. Many of you would have already met your local and State representatives prior to the election. Post-election is a great time to connect with your local member and congratulate them on their position in government, identify yourself as a member of their community and indeed the MS community. Enjoy the opportunity of meeting with them to share your story and information you can provide on behalf of other people living with MS regarding issues that affect us all including for example the NDIS. To celebrate the beginning of MS Awareness Month in May, the newly re-elected Mayor of Ipswich, Paul Pisasale hosted a beautiful lunch so very generously provided with compliments by Brisbane’s Best Seafood Restaurant Gambaro’s and to also celebrate ‘Living positively with MS’. I was very lucky to join the winner of ‘Living Positively with MS’ Sandy

How Dennise lives positively with MS

McElnea and Mayor Pisasale on this occasion. Gambaro’s treated us to a beautiful 3-course lunch of seafood delights, beautiful wine, gorgeous dessert all combined with fabulous company, sharing stories with each other on how we deal with MS on a daily basis. Living positively with MS, our underlying theme for the lunch was full of great company, great energy and also celebrating Mayor Pisasale’s re-election as Mayor of Ipswich. Our continued thanks are extended once again to Mayor Pisasale for being such an inspiration to so many people living with MS and to Gambaro’s again for their wonderful generosity. If I can assist with any queries or you would like to make contact with your member of council or parliament, I would love to hear from you via natalie.walsh@msqld.org.au or phone 07 3840 0823. Natalie, Advocacy Manager

An eighteen year marriage and three children later, I was thirty-eight. After twelve months of symptoms resulting in numerous tests, I was diagnosed with MS. I couldn’t believe it. I was surely beginning the prime of my life. I had a job in a Catholic School as a Teacher Aide assisting a little girl with Spina Bifida. I needed to be fit, able and alert. My neurologist offered me a then trial drug. I needed to learn to inject myself every second day. I went from suffering dizzy spells, loss of balance to severe trigeminal neuralgia and acute fatigue. I kept working. My marriage ended and it was then I realised I was on my own. I had three children, two daughters; 14 and 11 and my son was just 8. I had to fight this thing that had me! There were days I just wanted to curl up and die and through it all most people who knew me did not know about the MS – I looked normal for the most part. At the same time, I commenced my educational journey and my lifelong ambition to be a teacher. It was financially challenging, daunting and sometimes extremely lonely. I worked full time while studying externally. There were numerous times I just wanted to throw it all away but with the support of some really special people in my life and my three resilient, empowering, independent children I am proud to say at the age of forty-nine, I am a graduating teacher – class of 2011.” Dennise Connolly

MS LIFE – WINTER 2012

Gambaro host ed the winner of Living Positive ly with MS

“When I was younger, I was a gymnast. I competed nationally representing my province in New Zealand. I lived and loved my sport, training and striving for excellence.

World MS Day celebrated How World MS Day was celebrated this year

Louisa’s video

The reality is that more than 2.5 million people are living with multiple sclerosis globally. MS as you may know is one of the most common neurological conditions amongst young adults in the northern hemisphere.

Louisa Ogden who appeared on the cover of MS Life in Autumn this year, also sat down with our team to discuss her MS diagnosis on camera and was the face of our World MS Day campaign this year. She speaks about the day she was diagnosed, how she felt and the positive attitude she still has today about her future.

World MS Day was launched three years ago, and is held every year on the last Wednesday in May to raise awareness about MS and to strengthen the network of people living with MS across the world. This year, the theme for World MS Day was ‘Living with MS’ in the hope to: • raise awareness of the different faces of MS • share the many challenges that people with MS face daily; and • advocate for the changes that help people with MS to live fulfilling lives after diagnosis. The Multiple Sclerosis International Federation (MSIF) developed an interactive ‘puzzle’ campaign to spread awareness about the disease and encourage people to ‘unlock the puzzle’ and learn about how MS affects everyone differently. To view the campaign or to see some of the different faces of MS from around the world, visit the website www.worldmsday.org MS LIFE – WINTER 2012

When asked about her support network in her parents she said: “My Mum and Dad have been an unbelievable support to me throughout my life and in particular when I was diagnosed with MS. I am the strong and optimistic woman that I am today due to their guidance and the knowledge that they will always, no matter what… be there for me through everything and will believe in me and support all of my ambitions. I feel blessed every single day and so incredibly grateful to have such loving and supportive parents... I thank them from my heart. Along with the help of my wonderful husband… my soul mate, Ben, my gorgeous son, Archie and my parents, I am excited about my future and look forward to reaching all my goals, feel extremely lucky to have all that I have and live each day happily and positively. I have MS but MS doesn’t have me!” We’d like to thank Louisa and her family, Pete Ireland and The Production Room for volunteering their expertise, resources and time to produce this heartfelt video for the MS Society for this World MS Day. To see how Louisa lives positively with MS with her family on the Gold Coast in Queensland, head to our YouTube Channel and watch ‘MS and Louisa – World MS Day 2012’. We also have a number of other people living with MS who have shared their story on camera.

Louisa and

her son A

rchie

y Living MS Darning tea d l r o W ively mo Posit

www.youtube.com/MSAustraliaQ

BRISSIE TO THE BAY riding to fight MS!

Brisbane’s much loved charity bike ride is fast approaching on Sunday 24 June. Brissie to the Bay attracts the finest of South Queensland’s cycling community; from the most dedicated of cyclists riding the 100km course to family groups entering the 10km course. But they all have one thing in common – each and every rider is participating to support people living with MS. This year, we expect more than 5,000 participants to ride for MS and hope to raise $700,000. Individual riders and teams have already begun raising dollars in an effort to achieve their personal fundraising goals. By the time you read this article we will have raised well over $300,000

Thousands of cyclists riding to fight MS

to support people living with MS in Queensland. The unique thing about this event is that it caters to riders of all fitness levels and is not just for the serious cyclists. There are four great courses to choose from. There is the family friendly 10km around the Brisbane Riverside, the scenic 25km ride to Balmoral, the classic 50km to Wynnum or the challenging 100km course out to Wellington Point!

All cyclists start and finish the ride at Musgrave Park where an abundance of activity is happening; from food stalls to live entertainment – it is a great day out to support friends, family and work colleagues who participate in the ride. We would love you and your family to come and join us on the day, to help cheer the riders across the finish line. Please join us for morning tea from 9am at the MSQ Tent at Musgrave Park in South Brisbane. To register or for more information visit www.brissietothebay.com.au or email events@msqld.org.au or call 07 3840 0288.

Our new after hours service from our Dutton Park Clinic in Brisbane is available to people with no limitations on their ability to physically perform day-to-day activities, except the need to manage the effects of fatigue and a busy life. It is anticipated that people attending these sessions are unable to attend the Dutton Park Clinic between 8am and 4pm, Monday to Friday. The goals of these sessions are to: 1. Provide you with the opportunity to participate in appropriate, beneficial and safe physical activities; 2. Determine what exercise type is right for you; 3. Learn about your individual exercise requirements and to be able to communicate your specific needs to an exercise instructor in the community; and

4. Assist you in gaining the knowledge and confidence to participate in these opportunities in your local community.

from visiting the MS Society. “They thought I wouldn’t be able to handle seeing others with more aggressive forms of MS.

We recently spoke with Cheryl Tamblyn, who has been living with MS since 1995 and saw great benefit in using the after hours service and recently participated in the swimming and pilates after hours classes.

Despite this, Cheryl joined the MS Society back in 1995 for support she needed at the time. She recently re-established contact through her RSC who visited her at home and organised a referral for a physiotherapy assessment. “Now after going to these classes I don’t get so tired – I can manage my fatigue better and I know when to stop swimming and gardening before I overdo it.”

“This service is great! Everyone has a laugh while getting some worthwhile exercise. I always feel so much better for it.” Cheryl suffered partial blindness in both eyes but when diagnosed with MS, after months of denial, was given no further information or support from her neurologist. Health professionals initially discouraged her

For more information on our after hours service at the Dutton Park Clinic please contact our InfoLine on 1800 177 591.

MS LIFE – WINTER 2012

EXERCISE TO SUIT

EXERCISE

key to your

Physiotherapy, general exercise and stretching all form a healthy part of helping you manage your MS. Recently we spoke with two people with MS, Hilton and Helen, to share their experiences of integrating physiotherapy classes into their daily life, and the benefits and improvements they have seen in their wellbeing. Meet Hilton: Hilton who is in his early 60’s and diagnosed with MS just a year ago, spoke to us about his experience with MS Queensland’s Physiotherapy service at Dutton Park in Brisbane. Having moved to Australia from Zimbabwe in 1981, Hilton believes his MS symptoms started back in 2005. He experienced the uncontrollable closing of his right eye; a symptom which led him to see an eye specialist who prescribed him medication. The condition soon went away and being the strong willed person he is, Hilton ‘just got on with it’ and remained working until he started getting unbearable foot cramps. After seeing a neurologist a few months later, Hilton found out he had MS. Hilton’s first contact with the MS Society was through a referral from his neurologist. In his own word’s he says “it’s the best thing I’ve ever done – the MS Society offers the best service of its kind”. Post retirement Hilton was

MS LIFE – WINTER 2012

Hil

odall ton Go

at phys

spending up to two hours a day doing his stretching and physiotherapy exercises both at home as well as using the MS Society’s open gym. Today, Hilton attends group physiotherapy classes three times a week at the Dutton Park Clinic and has experienced a number of benefits including increased flexibility, better range of movement and improved balance. “For anyone who has MS but hasn’t made use of the Society’s Physiotherapy services and group sessions, you should do so – it makes a world of difference to your quality of life and your health and wellbeing!” Hilton’s next goal is to build his strength and movement up to walk the 5km route in this year’s MS Moonlight Walk on 19 October. We wish him the best of luck in achieving this goal! Please find below an excerpt from a recent email to the MS Queensland Physiotherapy team from Hilton:

yal Brisbane hospital. S appointment at the Ro M r ula reg my to y rda “I went yeste d with the t and was very impresse ou me d ke ec ch e Sh . Dr. Kerryn Green saw me her. vement since I last saw improvement in my mo ed an increase in d walking etc. and I show an ing nd sta s, arm d an She examined my legs nts he muscle strength. , but with my improveme too iew erv int the o int er was to come nt without him. Professor Michael Pend ceed with the appointme pro to n ee Gr . Dr for y t with was happ asked if it would be alrigh he S, M my for gs dru y not taking an MS, for which I However in view of me research into a cure for his r the fur to od blo my me to take a sample of obliged. n’t need to go back for ued’ at present and I do ea at ‘pl s ha S M my t positive attitude The good news is tha o very impressed with my als s wa e Sh m. ble pro a 1 -2 years, unless I have physio towards my MS. d Physiotherapy team’s lan ns ee Qu S M ole wh achievable by the All this has been made you. only say a very BIG thank instructions, which I can Hilton”

Helen

Casey

Helen Ca

sey at ph

Meet Helen: Helen was diagnosed with MS in 2008 and shared her interactions with the MS Society’s Regional Service Coordinator and neurological physiotherapy services. Having been diagnosed with Bell’s Palsy 15 years prior to being diagnosed with MS, Helen was just given medication by her doctor and sent home, with no further testing done. After semi-retiring from her role as an Office Administrator, Helen had her first contact with the MS Society a year ago after being referred by her neurologist following a number of particularly bad falls.

on e r

onditioning c r ai

A recent study has found that people with MS o spend on average four to 12 times more on air conditioning than other Australian households. Dr Michael Summers, a former policy advisor at MS Australia and the study’s co-author, said that there is a need to ensure financial rebates and concessions are maintained for people with MS, especially in the face of increasing electricity costs and the carbon tax which begins on 1 July 2012. Dr Summers proposes looking into implementing a scheme to replace old air conditioners with new, energy efficient units. To read the full study visit www.hindawi.com and search for ‘Keeping Cool: Use of Air Conditioning by Australians with Multiple Sclerosis’.

MS LIFE – WINTER 2012

Want to know more about our range of Physiotherapy Services available to clients and members? For more information contact our InfoLine on 1800 177 591 or visit www.msqld.org/how-we-help/services-area

MS Queensland is committed to helping those with MS gain access to services in their local area, regardless of their geographical location. We have spent time in regional communities across Queensland to identify physiotherapy and exercise therapy services people living with MS can access.

ld useho s spend 1 o h 2t MS im es

Since becoming aware of the MS Society, Helen has been attending the Society’s Physiotherapy Department at Dutton Park for weekly individual sessions. These weekly sessions with our neurological physiotherapy staff have allowed Helen to improve her balance and mobility, as well as develop an exercise program for both at home and in the gym. The sessions have also allowed her to self-monitor her fatigue levels when exercising.

When she first started accessing the Society’s services, Helen was barely able to lift her leg off the ground; now, months later, she has seen remarkable improvements in her movement, flexibility and general health.

In regional Queensland?

The services made available by these independent providers are not linked to MS Queensland and all information from the service should be accessed through the service provider. We currently have services listed for the Toowoomba, Ipswich, Gatton, Esk, Laidley, Dalby, Oakey, Warwick, Stanthorpe, Kingaroy, Nanango and South Burnett regions.

Living alone, she met with our Regional Service Coordinator for the Brisbane South region Craig, who was able to assist her in gaining appropriate accessible accommodation, as well as establish a physiotherapy routine.

“I’ve been getting sore muscles a lot but it’s all part of the progress of the exercise classes and unfortunately (or fortunately) sore muscles go with the territory – it proves that the exercises are helping me just like the old saying ‘no pain no gain’!”

ysio

dinner parties for MS take the She raised more than $7,600 for MS and hosted a Big Dinner Party for the Society in both Brisbane and Townsville during March. But for Christine White, finding the strength to raise both awareness of MS and money for the Society has been a long time coming. Christine was diagnosed with MS less than three years ago and at the time all she could muster for the neurologist was a ‘blank expression’. “I was in shock. My husband was working out of town, so I went straight to my friend’s house who, on seeing my confused tears, called my mum and my husband. We spent most of the day on her deck drinking many cups of tea and talked about anything but MS.” Christine’s neurologist referred her to the MS Society to learn how to inject her MS treatment and since then, has had regular contact with her Regional Service Coordinator and injection nurse. “I can’t thank those two ladies enough for their help anytime I need them.” Fast forward less than three years, Christine has been through a whirlwind of emotions, but with the support of her family and friends, holds tight to a positive outlook. “I was very scared and confused for a long time, but I have grown and reached a place of some acceptance now. I did a skydive for my 35th birthday, not to tempt fate, but for the amazing thrill and to show my kids that we only live once. You should take a few leaps of faith, because the regret of never knowing what might have been if you hadn’t is a high price.”

MS LIFE – WINTER 2012

Inspired by Emerson’s poem `To have succeeded`, she was looking for a way she could take back a bit of control over the disease. “I first read about Big Dinner Party in MS Life – I wanted to give something back to help others living with MS and it looked like an easy thing to do. It started out small but with the support of my friends and family, it just grew into two epic events!”

During March Christine held a lavish high tea in Brisbane for 32 women and raised $2,800 and later in the month she held a starlit garden party in Townsville for 59 people, raising over $4,300 for MS. “The Big Dinner Party was so easy and fun to do. My family and friends are very active and have raised funds for various causes over the years, including the MS bike ride and MS Swimathon, but this is something I can do. I’m no great cook either, but with the help of some truly beautiful people, we achieved not one, but two successful Big Dinner Parties. Next year will be even more fun!” Christine’s advice to others looking to help raise money for MS is “Don’t be afraid, every little bit helps. Your event can be as small or as big as you want, every dollar provides support and hope to real people and their families who live with the uncertainty and personal pain that is MS every day. I have to say that no woman is an island. I could not have done this alone and the success of both events was the product of an amazing circle of friends and family.” “With MS, these are the cards I have been dealt. I live in perpetual hope that new medications or, dare I say a cure, will be found soon. We have to consciously choose to make every day a great day and being part of Big Dinner Party was actually a cathartic experience for me.” To find out more about Big Dinner Party visit www.bigdinnerparty.com.au

TOWNSVILLE gets official opening

More than 35 of North Queensland’s clients and health community turned out for the official opening of the North and Far North Queensland Office by the Governor of Queensland Ms Penelope Wensley AC and MS Society CEO Lincoln Hopper.

The Society has deliberately leased more space than we currently need in the hope that other organisations assisting people with neurological conditions in the region might access it to deliver their own services or even decide to base themselves out of the same office as the MS Society.

As the Patron of the Society, the Governor spoke passionately about the prevalence of MS in Australia and the need to further promote awareness of the disease. She focused on employment and the importance of people with MS maintaining employment for as long as possible to have a happy and fulfilled life.

The new office has been made possible by the generous support from fundraisers and donors and marks a $360,000 investment over the next three years into the region. MS Society CEO Lincoln Hopper says that as the Society receives no government funding for this particular service and

the generous contributions of our fundraisers have made the office happen. A special thanks goes to our Regional Service Coordinator, Susan and her family for their personal assistance with the office move and enabling Susan to work from home for the start of her employment. Also to the range of individuals who provided assistance in preparing the office for people with MS in the region and to the volunteers who have assisted the Society. Our appreciation also extends to the local pwMS Support Group particularly Angela O’Keefe and Arthur Crimp for raising awareness about the event in the area and for their contribution over many years within the support group network in Queensland. The office fit out including the purchase of furniture and equipment for the MS Society was assisted by two grants; from the John Villiers Trust and The Breakwater Island Casino Community Benefit Fund.

After unveiling the formal plaque, CEO Lincoln Hopper spoke about how Progressive important the new office was to the MS Research region. With more than 200 people living with MS in the North and Progression in multiple sclerosis is one of the most Far North Queensland and frustrating and elusive aspects of the disease. As many regional areas, the regional people know, MS can progress very differently for every service coordinator, Susan person. Even when there are no MS symptoms, damage to Thinee’s role has never the central nervous system may still be progressing. been more crucial. A video has been developed by the National MS Society in America and Canada in which The new office scientists, clinicians, and those living with MS discuss the causes of MS progression, who is space is very more likely to have a progression course, and what can be done to stop MS progression. impressive and To view this YouTube video and learn more about progression in MS visit www.youtube.com and features two search for ‘Working for Me: Research in Understanding & Treating Progressive Multiple Sclerosis.’

MS LIFE – WINTER 2012

Society Queensland and MS fice opening Of d Ql rth No es iat fic of

meeting rooms, a breakout room, reception area and a presentation room designed for education sessions for MS and other progressive neurological conditions. It will become a hub of activity for meetings by the pwMS support groups, a place of belonging for clients and a venue to hold information and educational sessions.

Jackie’s Kiss for MS

MS LIFE – WINTER AUTUMN2012 2012

How young Jackie finds inspiration in living with MS

From the dream of being a police officer to finding her passion working with animals, Jackie has been through a whirlwind of emotions in the past four years since being diagnosed with MS at the young age of just 22. Jackie was planning her 22nd birthday and looking forward to a career in the police force when she was diagnosed with MS. Her first major symptom was partial facial paralysis: “I was at work one day and the left side of my face went numb and became paralysed; my lips, my eye all dropped.” She then had problems with her vision along with the paralysis so Jackie rushed to her doctor – she underwent a series of tests before a neurologist delivered the news that she had multiple sclerosis. At the time she was planning a career in the Queensland Police Service, had just graduated from a Diploma in Justice, was juggling full-time work and had an active social life as any 21 year old would. “The diagnosis came as a complete shock – I knew absolutely nothing about MS and thought it was something that mainly affected older people. I was scared my face and my eyes were going to be like that forever.” But as she regained sight, Jackie was determined for MS not to control her

Jackie Andreand her bro w and t Daniehlers

life and she continued to work and study. “I was determined to prove to myself that this disease would not control my life and that I could still work just as hard as anyone else.” And she did, moving jobs to work in Human Resources (HR) for a telecommunications company for another year and connecting with the MS Society as a volunteer.

“I first received a visit from the MS Society nurse Bernie to learn how to inject which was hard for me. But the Society is great if you need and want support with your MS. I decided to become an MS volunteer to do something that was rewarding and lots of fun – and it allows me to see from afar the different stages of MS and how it affects people differently. It’s a huge eye opener. ” But there is more to Jackie. Behind the scenes she’s also volunteered for the RSPCA for years, which is where her true passion lies. “My dream used to be a Police Officer but MS has stopped that. My dream now (and probably always has been) is to be in a room with hundreds of puppies and kittens. I’ve always

Recently Jackie made the brave move to quit her well-paying HR job to work as a dog groomer at ‘Passion for Pets’, a boutique grooming salon around the corner from her home. The move from the office to the dog bath has been interesting but for Jackie, the “best thing” she’s ever done. “It’s quite surreal how quickly it all happened. My mum found a small ad in the local paper that said ‘Casual Dog Groomer Wanted’ – they were closed when I went to enquire so I slipped my resume under their door and within two days I had a job offer! I’d been trying to work for animal grooming and veterinary businesses for months and my dream had finally come true.” Jackie now baths and dries puppies and dogs all day and while she becomes quite fatigued from the long days and physical work, she said it’s all worth it. “Most of the time I’m in bed by 7.30pm each night because I’m so tired but I can’t wait to wake up in the morning, have breakfast with my boyfriend and scoot off to work.” Jackie’s also gone back to the books and is studying a Certificate IV in Companion Animal Services via correspondence in light of her next life goal; to become a Veterinary Nurse. And the MS? At times she suffers from dizziness, eyesight problems, extreme heat sensitivity and fatigue. But it doesn’t stop her every day. “With the right attitude, I feel having MS pushes me to work hard in everything I do. Living in uncertainty about my future is definitely part of MS, but I won’t stop living my life just because I have it.”

MS LIFE – WINTER 2012

She’s been the face of the Australian Kiss Goodbye to MS campaign during MS Awareness Month for three years now and recently shared her personal story on camera for the MS Society which has been watched by more than 1,000 viewers on YouTube. Spend just five minutes with Jackie and in some way she’ll make you smile.

wanted to work with animals – I love them more than I love humans!”

HELPED Kiss goodbye to MS! HOW AUSTRALIA

How MS Awareness Month was celebrated this year From red buildings and bridges in Queensland to large community events in Sydney and Melbourne, this year’s national Kiss Goodbye to MS campaign was a huge success!

We also gave away hundreds of free postcards and posters to help spread the word of ‘Kiss Goodbye to MS’ and how you could Wear, Dare or Share and educate everyone in your community about the rising prevalence of multiple sclerosis in Australia.

What happened in Queensland

What happened down south

A number of Queensland’s most iconic bridges and buildings proudly turned red for multiple sclerosis to help raise awareness of the disease during MS Awareness Month.

Never have so many kisses been seen in the streets of Sydney and Melbourne. Federation Square and Martin Place became hotspots for luscious lips and intriguing looks during MS Awareness Month.

From Paronella Park in Cairns to Jupiters Casino in Townsville to the bridges and buildings that line the Brisbane River, a dozen Queensland icons turned red for MS during May. Even the new Wintergarden shopping centre in Brisbane’s Queen Street Mall also turned its brand new external façade red with the Kiss Goodbye to MS logo projected on World MS Day.

MS LIFE – WINTER 2012

We’d like to thank the following MS Red Supporters who illuminated their buildings and bridges red for the month of May: • Brisbane City Hall, Brisbane • King George Square, Brisbane • Conrad Treasury Casino, Brisbane • Kurilpa Bridge, Brisbane • Gateway Bridges, Brisbane • Queensland Performing Arts Centre (QPAC), Brisbane • The Wheel of Brisbane, Brisbane • Wintergarden, Brisbane • The University of Queensland (St Lucia), Brisbane • Jupiters Townsville Hotel and Casino, Townsville • Paronella Park, Cairns • Toowoomba City Hall, Toowoomba

In early May, event-goers in Melbourne were treated to an appearance by comedian Tim Ferguson who entertained the crowd along with Georgia Sinclair, who did a fantastic job as MC. The launch was also boosted by the presence of 2011 Australian of the Year Simon McKeon. Meanwhile in Sydney, Sunrise Sports presenter Mark Beretta was a most excellent MC, and was accompanied by musician Jim Conway and NSW Health Minister, Jillian Skinner. The rest of the Sunrise team filmed a terrific piece about the event, flanked by an army of supporters. Local fire crews added some muscle to the events, and their cheeks were quickly covered in lipstick marks that were most definitely fire engine red. The team at Elizabeth Arden was on hand to provide lipstick and show everyone how to look their best in red and the gorgeous Virgin cabin crew kindly gave up their time to join the fundraising efforts. Themed merchandise was being snapped up left, right and center with the Kiss umbrellas being a particular success. MS Research Australia (MSRA) would like to thank everyone who came to the events in Sydney and Melbourne, and a special thank you to the team who made it all happen on the day and in the lead-up. For more information on MS Awareness Month or to donate to the MS cause visit www.kissgoodbyetoms.org

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FNQ MS Swimathons raise over $96,000 for MS services Article by Amy Rymer, MS Swimathon Events Coordinator April was a phenomenal month for the MS Society in Far North Queensland! Not only did we open a regional office in Townsville but the MS Swimathons in Townsville and Cairns raised over $96,000 for MS services and support in the region! This has exceeded our original goal by over $25,000. The regional swims have proven to be very successful and I thank the people of North and Far North Queensland – particularly the people of Townsville and Cairns for supporting the swims with such enthusiasm. The MS teams in Cairns and Townville (made up of people with MS and their friends and family) both raised over $7,600 and as a result are our 3rd and 4th highest fundraising teams across all MS Swimathons held this year! What an achievement that is! Thank you all so much for your support. There is just one swim left for the year. Jindalee will be holding the second annual MS Swimathon on November 17 and 18 – so if you live in the Brisbane west area, or you are happy to drive across town to take part in a Brisbane swim, register online now at www.MSswimathon.com.au and search for the Jindalee event. You are also welcome to call me on 07 3840 0822. It has been a pleasure meeting the participants this year, and I look forward to even more success with the MS Swimathon event in the years to come.

MS LIFE – WINTER 2012

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Society? of the MS member a year, Are you a is just $22 ion about with us, which and educat Membershipproviding information to find a cure for in research assists us edge MS MS and leading is. h receive throug multiple scleros ation you our Insight and s the inform This include such as MS Life, MS website. our tions on publica rce Centre about e feedback ocused Online Resou very positiv client-f receive ly flagship t of our continuing We regular ation conten are committed to ce to the inform MS Life. We information resour we le such magazine, this valuab MS and as – QLD lia to provide has an interest in MS Austra and anyone who its circulation to a substantial cost at do not restrict But this comes tly costs the Society only. te MS rt. It curren members your suppo produce and distribu provide we need per year to ership subscriptions year. $30,000 t memb shortfall each Life and currenyear - a significant s MS per and service $12,000 publications please show your value the of then es fee So if you a QLD provid today. For might Australia - joining the Society or you $220 to support by can join us for a year, er for just just $22 you ing a Life Memb membership ever paying your is in its active and consider becom ing about our Society welcome your avoid worry strength of would again! The members and we committed to our vital work. opportunity have the of our contribution you’ll also al member g future plans in As a financi say on the excitin al Meeting (AGM) to have yourat the Annual Gener MS Society the form complete November. er, simply Society as soon as e a memb To becom return it to the MS slanders living with rt overleaf and behalf of all Queen ership suppo . On your memb impact possible. forward to and its devastating look we MS MS, free from for a world r, CEO Lincoln Hoppe

MEMBERSHIP renewals DUE

THANK YOU

Have your say! Help support the MS Society and its good work

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to our Big Dinner Party hosts

Are you a member of the MS Society? Membership with us, which is just $22 a year, assists us in providing information and education about MS and leading edge MS research on finding a cure for multiple sclerosis. This includes the information you receive through publications such as MS Life, MS Insight and our Online Resource Centre on our website.

Thank you so much to our wonderful big dinner party hosts who popped on an apron and cooked up a storm in the fight against MS during March and April.

We regularly receive very positive feedback about the information content of our flagship clientfocused magazine, MS Life. We are committed to continuing to provide this valuable information resource to anyone who has an interest in MS and as such we do not restrict its circulation to MS Australia – QLD members only. But this comes at a substantial cost and we need your support. It currently costs the Society $30,000 per year to produce and distribute MS Life and current membership subscriptions provide $12,000 per year – a significant shortfall each year.

We have been so amazed and inspired with the efforts and passion over the past couple of months. Thank you so much to everyone who cooked, baked, attended, donated, educated, supported and joined in the fun, it has been fantastic to see everyone come together and be part of the big dinner party’s first year! It was exciting to see all kinds of themes happening such as: garden tea parties, bring a plate BBQ’s, Alice in Wonderland, ‘Pedi’ party, along with traditional dinner parties. Thank you so much for hosting a big dinner party your way. We look forward to seeing you again next year!

fundraise

How can you

HELP

Want to help other people living with MS and have fun at the same time?

Why not organise a fundraiser for MS this month.

Here are some easy ideas to get you started: • run a raffle at work or a ‘dress in red for MS’ day • hold a fun golf day for MS • host a morning tea at work or with friends for MS • in lieu of birthday presents ask for donations to MS Queensland • organise a stall at the local markets for MS It’s simple and fun and you will be making a difference to people living with MS.

m m Co

For more information on membership call 1800 CURE MS.

ity un

MS LIFE – WINTER 2012

As a financial member you’ll also have the opportunity to have your say on the exciting future plans of our MS Society at the Annual General Meeting (AGM) in October. To renew your membership or become a member, simply complete the form enclosed with this MS Life and return it to the MS Society as soon as possible.

fo rM S

So if you value the publications and services MS Australia – QLD provides then please show your support by joining the Society today. For a fee of just $22 you can join us for a year, or you might consider becoming a Life Member for just $220 to avoid worrying about paying your membership lden ever again! The strength of our l ‘GoMS a u n n y’s a e for Society is in its active and committed ey Bals’ raffl v r e H rigina members and we’d welcome your O contribution to our vital work.

To find out how give Julie a call on 07 3840 0887 or email julie.hanlon@msqld.org.au

Latest in mobility vehicles Due to great demand, the Toyota Tarago is now offering a wider range of wheelchair accessibility vehicle modifications to its current fleet in Australia. The Toyota Tarago has become a popular choice due to its affordability and durability – this allows you to save large sums of money in repairs and maintenance. Not only is the Tarago inexpensive to run and maintain, but it is also inexpensive to buy. Additionally, the Tarago is also known for its spaciousness and versatility and makes for the perfect wheelchair accessible vehicle. Mark Elvery who has been living with MS for 18 years and his family recently purchased a Toyota Tarago – Estima which offers dual sliding doors and an electric chair lift including a

detachable electric wheelchair. They love the difference it makes to their family outings. “The vehicle is truly amazing – it’s made such a difference to our lives,” Mark said. “Getting the car was a revolutionary moment for me, life has become enjoyable again and everything seems less of an effort.” His wife Adrienne was just as happy with the vehicle and said a huge benefit was the ease of getting Mark in and out. “Even our 7-year-old son Nathan can maneuver his Dad in and out of the car now which is a huge help for me. Before I had to lift Mark into the vehicle myself,” Adrienne said. Barry Lawrence, a modified Toyota Tarago supplier, organised the vehicle for

The Elvery mi ly with their new fa Tarago.

Mark and Adrienne and is happy to assist other people living with MS attain the right vehicle for their needs. Barry has a showroom in Capalaba in Brisbane with a range of vehicles on show. If you’d like to discuss your options in purchasing a modified Toyota Tarago, please contact Barry Lawrence on 0418 741 741 or email thoas@bigpond.com for more information.

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A.I.M - to brIng InnovAtIon to QueenslAnders

MS LIFE – WINTER 2012

MOTOmed... passive/active exercise. Assist in your own rehab.

CED N U O N AN After 59 nominations and two months of rigorous judging, this year’s MS Heroes – heroes to the multiple sclerosis cause – were honoured by Her Excellency the Governor of Queensland, Ms Penelope Wensley AC, at a reception to mark World MS Day this year.

The 2012 winners are revealed Last year we launched the MS Heroes awards program to acknowledge and celebrate the contributions of Queenslanders who are ‘heroes’ to the multiple sclerosis cause. The 2011 awards had a focus on employment and asked people living with MS to nominate their employer, manager, carer or family member who have done great things for them and their MS in relation to their employment. In this its second year, the awards focused on ‘living with MS’ to share the many challenges that people with MS face daily and to recognise those who advocated for the changes that help people with MS to live fulfilling lives after diagnosis. One lady with MS who nominated her husband said: “I think it’s a wonderful idea about choosing a MS Hero, but I know there are other wonderful people out there that have helped a lot more and are actually super heroes, and really deserve the award, but it’s made me realise how lucky I am to be married to Paul (which at times has been hard) and this nomination has opened my eyes and really made me think of everything he has done for us as a family. And I am guilty of sometimes forgetting that this is affecting him as much as me. So thank you for giving me the great idea of me making him my hero and thanking him myself, I think I will get the little kids babysat and take him out on a date… if we still remember how to go on a date!” MS LIFE – WINTER 2012

The MS Inspiration Award was taken out by brothers Dean and Clayton Evans for the ongoing care they provide their mum and aunt both living with MS and the MS Champion Award was awarded to Wendy Lovelace, for her work in championing and advocating the MS cause in the wider community.

The MS Inspiration Award is given to the person who has most shown inspirational support for a person living

with MS. It could be for their carer, husband, wife, doctor, nurse, employer, family member or advocate. The judging panel felt both Clayton and Dean had gone above and beyond the call of duty, giving up their way of life to attend to, and care for, not only their mum but also their aunt (both living with MS) in a semi full-time capacity. Their story was one of sacrifice; being University students and managing work, university and home life, the boys have continued to devote themselves to supporting their mother and aunt without hesitation. The MS Champion Award is given to a person who has been an outstanding champion of the MS cause, whether it is towards an individual, MS Support Group or the wider MS community in Queensland. The judging panel felt Wendy Lovelace was a true champion and be recognised for advocating for particular issues to the MS cause. In recent years Wendy has pushed for accessibility and equality for the disability community and empowered others living with MS along the way. Having MS herself has changed Wendy’s awareness of the disease and, by combining professional knowledge as an architect with lived experience, she has become a very powerful advocate for the MS cause. We’d also like to congratulate and recognise the other 18 finalists this year: • Jack Brook – son to Regina Brook (awarded a special Highly Commended in the MS Inspiration Award category) • Stephen Rayward – husband and carer of Diana Rayward (awarded a special Highly Commended in the MS Champion Award category) • Aaron Lutritz – personal trainer to Nadine Granzien • Patrick D’Arcy – husband and carer of Wendy D’Arcy • Vernon Lewis – PwMS Support Group Leader for Cairns nominated by Jenni Saunders

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The judges said all of our MS Heroes nominated have shown true heroism in selflessly supporting a person living with MS. Our congratulations and thanks go to all people living with MS who nominated their loved ones and friends for this year’s awards. The MS Heroes awards form part of the World MS Day and MS Awareness Month celebrations each year. For more information on the 2013 awards program email us on awards@msqld.org.au

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MS LIFE – WINTER 2012

• Ian Brewster – MS volunteer for Granston Lodge nominated by Ann Woodland • Beverley Kelly – wife and carer to Grant Kelly • Naomi Bevin – partner to Michelle West • Caroline Sperry – infusion nurse to Lucy Rees • Karen Wingrove – mother of Anna Wingrove • Glenys O’Dempsey – wife to John O’Dempsey • Doug Gardner – friend and neighbour to John O’Dempsey • Brett Payton – husband and Manager to Sharon Payton • Geoffrey Cornwell – husband and carer to Beverley Cornwell • Paul Pisasale – Mayor of the City of Ipswich and Manager to Di Johnston • Carolyn Brownie – MS volunteer for Physiotherapy and Granston Lodge nominated by Wendy Lovelace • Angela O’Keeffe – PwMS Support Group Coordinator for Townsville nominated by John Terry • Clayton Evans – nephew to Francesca Hillard and son to Vanessa Evans • Dean Evans – nephew to Francesca Hillard and son to Vanessa Evans • Wendy Lovelace – Design Compliance Advisor nominated by John Mayo

Awarde

220km on the road to physio

After being diagnosed with MS four years ago, Laurell Jones from Kingaroy has just discovered a great MS Society service in the heart of Brisbane that she can access when she visits her neurologist. Sadly, Laurell was forced to quit work shortly after her diagnosis and took two years to adjust to her new lifestyle and come to terms with her MS. Located three hours away on a peanut farm outside Kingaroy, Laurell and her husband Brian first heard of the MS Society’s physiotherapy service through her clinical nurse. She then met with the local Regional Service Coordinator and attended a local MS information session held by the Society in Kingaroy earlier this year. “I found this session really valuable as we haven’t had anything like this in the region before. It was great to learn about the new treatments on offer and meet others with MS living near me.” Knowing she was planning a visit to Brisbane to see her neurologist, our staff suggested she also visit the Dutton Park Clinic for a full physiotherapy assessment. “I was quite worried about my muscle ‘wastage’ in my legs so was quite nervous at first about my assessment. But I was able to see where my weaknesses are and was given a number of achievable exercises to do at home. The experience was really good and I’m much more confident about my ability now!”

Laurell Jones from

Kingaroy

Laurell now plans to travel to Brisbane two to three times a year to see her neurologist and access the MS Society’s services and support networks. “When I was diagnosed I was frightened and I didn’t know where to go, who to turn to – but from meeting with the MS Society staff who have been brilliant, has opened up a whole new world.” Laurell is also thinking about joining the local MS Support Group for a regular coffee and chat – “I’ve come to terms with my MS and now I’m ready to get involved – bring it on!” MS LIFE – WINTER 2012

If you live in regional Queensland and are planning a visit to Brisbane, why not make use of the MS Society’s Physiotherapy Services available to you. Simply request a referral to the Physiotherapy Department from the MS Society’s Regional Services Co-ordinator (RSC) for your region. Contact the information line on 1800 177 591 to find the contact details for your local RSC.

* New clients should give the MS Society as much notice as possible when booking an assessment. We will make every effort to work with your visit to Brisbane but not all requests can be guaranteed.

Regular physiothera py can improve your MS

MS questions with Tim How can MS affect my driving? Changes to the Assessing Fitness to Drive Guidelines What happens if I don’t report?

Firstly, visit your Health Practitioner (GP) to fill in the medical form F3712 (your GP will have these forms or they are available through Department of Transport and Main Roads). Take this completed form to the DTMR. For more information contact the Department of Transport and Main Roads at www.tmr.qld.gov.au or phone 13 23 80. To view a copy of the guidelines visit Austroads at www.austroads.com.au

What happens next? The Licensing Authority may issue you with a conditional license. This means that you may continue to drive as long as certain conditions or restrictions are met. Conditions may

Tim Have a question to ask Tim? Email us at mslife@msqld.org.au

Can you help to change the future of MS today? The Wesley Research Institute Clinical Trials Centre is taking part in an international study to evaluate a new medication to prevent relapse in patients with relapsing-remitting MS. You may be suitable to participate if you are: aged between 18 and 55 years diagnosed with relapsing-remitting MS able to attend monthly visits to The Wesley Research Institute Clinical Trials Centre in Brisbane over a period of 3 years Neurological review, study treatment and study related medical care are provided at no cost to participants. If you are interested in obtaining additional information on how to qualify for this study, please contact The Clinical Trials Centre on 07 3721 1527.

The Wesley Research Institute Clinical Trials Centre Level MB2 The Wesley Hospital 451 Coronation Drive Auchenflower Q 4066 Australia T 61 7 3721 1523 F 61 7 3721 1594 E clinicaltrials@wesleyresearch.com.au www.wesleyresearch.org.au

MS LIFE – WINTER 2012

Effective as of 1 March 2012, there has been an update to the Assessing Fitness to Drive guidelines issued by the Driver Licensing Authority. If you currently hold a learners permit or driver’s license you must notify the Department of Transport and Main Roads of your diagnosis immediately (for a commercial license) or as soon as you show any symptoms which could impair your ability to drive safely. This includes significant changes in areas such as vision, memory, sensation, muscle power, attention, coordination, reaction time, dizziness or fatigue.

It is your responsibility to notify the Department of your condition. An annual review of your driving ability by your health practitioner is recommended however, if there are any adverse changes to your condition, it is your responsibility to have them assessed as soon as they develop.

How do I notify the Department of Transport and Main Roads?

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A diagnosis of MS does not automatically mean that you are no longer able to drive. However, you do need to be aware of your legal and moral responsibilities as the symptoms of MS are many and varied, and do not have to be major to affect your ability to drive safely.

If you fail to report you may receive a maximum $6,000 penalty or be disqualified from driving. If you are involved in an accident and it is found that your MS symptoms were a contributing factor, you may be prosecuted and your insurance rendered invalid.

include certain restrictions placed on your driving, or having to see your doctor regularly.

MS resources www.msqld.org

We have launched an Online Resource Centre on our website www.msqld. org to help you access the latest information about MS from around the world. There are two sections – ‘General information on MS’ and ‘For health professionals’ that offer resources on working with MS, fatigue, sexuality, complementary therapies and motherhood just to name a few. Please find below a review of two of the most downloaded resources from our website. If there is information you need not available through the Online Resource Centre please email us at info@msqld.org.au or phone our InfoLine on 1800 177 591.

Complementary and Alternative Therapies in MS (CAM)

Publication by MSIF – Issue 15 2010. Guest Editor Dr Allen Bowling.

This publication is part of a series produced by the MS International Federation (MSIF). This issue is devoted to providing objective, practical, MS – relevant CAM information. “Around the world, CAM is widely used by those with MS. However, despite this widespread use, there are significant challenges for people with MS who are interested in CAMS. Common sources of health information, such as books and the internet, may provide CAM information that is inaccurate or potentially dangerous for those with MS.” Chapters include an overview by Dr Bowling, Acupuncture and Chinese medicine, Vitamin D, Low dose Naltrexone, Cannabis, Yoga and Music Therapy. Recommendations are given for people considering a CAM.

‘Working with MS’

MS LIFE – WINTER 2012

Food for Thought – MS and Nutrition – Staying Well

Publication by NMSS (USA) – updated 2012. By Denise M. Nowack, RD. and reviewed by members of the Client Education Committee of the NMSS’S Clinical Advisory Board.

‘Food for Thought’ offers information on diet while managing fatigue, dealing with mood changes, mobility and bladder issues among other possible symptoms when living with MS. This is an updated version of a publication which now includes additional information on Vitamin D. Nutrition basics discuss the role of Vitamin D, Calcium, Fats, antioxidants and fibre. The appendices give ideas for stocking the pantry, snacks for energy, fibre facts and website resources. “Good nutrition is essential to everyone. For people with MS, the role of diet can have additional importance – from helping to manage MS symptoms to the possible impact on the progress of the disease. Eating well is a cornerstone to living well with MS.”

workshops on offer

BUNDABERG Saturday 23 June 10am – 12.30pm Bundaberg Library 49 Woondooma Street, Bundaberg.

Are you living and working with MS? Have you heard about our new ‘Working with MS’ workshops? These have already been held in Ipswich, Springwood and Nerang this year with a positive response from people with MS and their partners who attended.

TOOWOOMBA Saturday 6 October 10am – 12.30pm Jacaranda Room Grand Central Shopping Centre, Toowoomba.

The workshops include presentations from an MS Queensland staff member, Employment Support Service and Maurice Blackburn Lawyer. The sessions cover a range of topics from the pros and cons of disclosure, employee and employer rights and responsibilities, strategies and services to assist in the workplace and insurance, superannuation. Attendees from previous workshops said:

“Very informative – it makes such a difference in a relaxed and comfortable environment with lots of interaction with others.”

BRISBANE NORTH Saturday 20 October 10am – 12.30pm Chermside Library Hamilton Road, Chermside. SUNSHINE COAST Saturday 10 November 10am – 12.30pm Community Capital Centre, Bokarina. TOWNSVILLE Saturday 24 November 10am – 12.30pm MS Queensland Office Northtown 280 Flinders Street, Townsville.

From the Chairperson of PwMS Support Groups, Jenni

What an amazing group of people we have who make up our support groups. I am so fortunate to have made contact with many of you and I know there are groups tirelessly working together to make a difference in their MS Community and to others living with MS that I still have to meet! From swimming in our beautiful Far North cities of Townsville and Cairns and blowing fundraising figures out of the pool to taking buses to Brisbane to join the NDIS Rally, the effort and contribution that is provided by everyone, including MS staff, has been outstanding. It is fantastic that we now have a physical presence in the North with our North and Far North Queensland Office and what an honour to have Her Excellency the Governor of Queensland Ms Penelope Wensley AC and Patron of MS Australia – QLD, to officially open our North and Far North Queensland Office. I know that all of our friends in Townsville enjoyed being a part of the opening and meeting with Her Excellency who gave her time so generously to all who were present.

On another note, on behalf of MS Queensland I would like to thank Mike Jones who has been the contact and organiser of the Redlands PwMS Support Group for many years. His commitment has not just been to coordinate the group but has extended to hosting meetings in his home. Mike has decided it is time to hand over the reins. I am very aware of the important role he has played within the Redlands community, particularly the Redlands Lawn Bowls fundraising event – just one of the fundraising initiatives that the Redlands support group have conducted to make a difference for people with MS. Thank you to all for your efforts and support – whether it is joining a support group, fundraising, or attending an event - we all do really make a huge difference and a significant contribution to the Society’s work. Jenni

MS LIFE – WINTER 2012

A number of MS Support Group meetings are detailed on the homepage calendar of our website at www.msqld.org

BRISSIE TO THE BAY BRISSIE TO THE BAY

Bring your family and join us at this year’s Brissie to the Bay bike ride and help cheer the riders across the finish line! Morning tea will be provided at the MSQ Tent. Sunday 24 June Morning tea at 9am, Musgrave Park, South Brisbane RSVP to 07 3840 0854 or glenys.ward@msqld.org.au

JUNE 24

MONTH OF AUGUST

OCTOBER 19

NOVEMBER 17–18

Brissie to the Bay bike ride

MS Readathon

MS Moonlight Walk

MS Swimathon Jindalee

www.brissietothebay.com.au

www.msreadathon.org.au

www.moonlightwalk.com.au

www.MSswimathon.com.au

For more information contact the MS Society on 07 3840 0888 or email events@msqld.org.au Unless otherwise stated, the views expressed in MS Life and submitted photography are those of individual authors and MS Clients, and not of Multiple Sclerosis Society of Queensland (MS Australia - QLD). MS Australia - QLD does not expect or invite any person to act or rely on any information, statement or opinion in MS Life, and readers should make and rely on their own inquiries, and obtain professional advice, before making any decisions or giving any advice arising out of any such information, statement or opinion. Neither MS Australia - QLD nor any of its employees, agents or contributors shall be liable for any errors or omissions in any material in MS Life, and in no event will MS Australia - QLD or any of its employees, agents or contributors be liable for any loss or damage arising from reliance on any information, statement or opinion in MS Life. Apart from any use permitted under the copyright act, no material in MS Life may be reproduced or communicated to the public in whole or in part without written permission from MS Australia - QLD or the relevant copyright owner. © 2012 Advertising Disclaimer: Advertisements are provided to assist consumers to locate and purchase suitable products and services. Multiple Sclerosis Society of Queensland does not endorse any one product or service over another, nor do we receive any commission on sale of items. Consumers are encouraged to discuss the options for purchase with the particular supplier as Multiple Sclerosis Society of Queensland is not liable in the event the product is not satisfactory.