Fall 2011 Programs Connection by National MS Society, Upper Midwest Chapter

Programs

Fall 2011

CONNECTION

Exercising with MS

Learn about the benefits of exercise and fitness programs designed for people with MS.

Care Partner Appreciation Brunch Recognize and celebrate care partners of people with MS.

Plus 2012 MS Annual Convention Fall MS research symposium 20s and 30s social gatherings and much, much more

JOIN THE MOVEMENT速

MOVING IS WHO WE ARE “We’re here to make your life easier; we’re here to help!” The National MS Society has a variety of services available to empower people with MS to improve their quality of life. These include financial assistance programs, equipment rentals and an MSClassifieds website. Anyone who is chapter member and has a diagnosis of MS can apply. There are too many programs to list, but most fall into the following categories: n Aids

for Daily Living Grant (walkers, bath safety items, cooling vests)

n Adaptive

Equipment/Home and Vehicle Modification Grant

n Chore

Services Grant (light housekeeping, snow removal, lawn care)

n Care

Programs Connection Programs Connection is a free publication of the National MS Society 200 12th Ave. S. Minneapolis, MN 55415-1255 800-582-5296 proconnect@MSsociety.org Editors Steve Korngable Maggie Flanagan MS Navigators Sarah Danen Jill Parkinson Heather Svenson Chapter President Holly Anderson

Partner Relief Grant (in-home or out-of-home respite care)

n Emergency

Assistance (help with mortgage/rent, utilities or other emergency needs)

n Counseling n Driving

Assistance Grant

Evaluation Grant (help with costs of a driving evaluation)

n Transportation

(get to important doctor appointments when no other transportation options are available)

Be sure to check out MSClassifieds.org! Find used mobility assistance equipment and other items that make your home and vehicle more accessible. Items are for sale but often free. Look for “Quick Links” on the right side of our home page at MSsociety.org. Remember, we’re here to make your life easier; we’re here to help!

How to apply To apply for financial assistance grants or to utilize items from the loan pool, call 612-335-7900 or 800-582-5296 (option 1). Sponsorship of Society programs or events does not connote the National Multiple Sclerosis Society recognizes superiority in products or services provided by the sponsoring entity over other entities providing like or similar products or services.

Promising treatments for MS

Studies show that early and ongoing treatment with an FDA-approved therapy can reduce future disease activity and improve quality of life for many people with multiple sclerosis. National MS Society medical advisors recommend people with MS talk with their health care professional about using one of these medications and about strategies and effective treatments to manage symptoms. If you or someone you know has MS, please contact the Society today at nationalMSsociety.org or 800-582-5296 to learn about ways to help manage multiple sclerosis and about current research that may one day reveal a cure.

Table of contents Programs by topic

Technology

Join the Movement®

What’s online?

What’s your story? What’s online?

5 34

Young adults

7 9 15

Programs by location

Care partners MS Annual Convention Care Partner Appreciation Brunch Grieving lost dreams

Managing MS MS Annual Convention 7 MS exercise programs 11 Research symposium, Plymouth 13 Grieving lost dreams 15 Connect locally 18 Face time with your local neurologist 20 Finding the right MS treatment for you 22, 23 A treatment option for MS 24 Exploring multiple sclerosis 25

Money matters Personal financial counseling

Recreation, socializing and connecting Care Partner Appreciation Brunch Teen Connection meeting 20s and 30s social gatherings Connect locally Clubs and groups

9 6 12 18 27

Teen Connection meeting 20s and 30s social gatherings

34 6 12

Carlton Connect locally

Grand Rapids Connect locally

Rochester Exploring multiple sclerosis

Twin Cities metro Teen Connection meeting 6 MS Annual Convention 7 20s and 30s social gatherings 12 Research symposium 13 Grieving lost dreams 15 Connect locally 18 Face time with your local neurologist 20 Finding the right MS treatment for you 22, 23

Scandia 20s and 30s social gatherings

Stillwater Connect locally

Research MS Annual Convention Research symposium, Plymouth Face time with your local neurologist

7 13 20

Important update on Medicare Open Enrollment on page 26!

JOIN THE MOVEMENT®

Why staying fit matters “Joining a group reduces isolation and gives you an opportunity to meet other people living in your community who also have MS. Once I got involved, I couldn’t stay away.” — Sheldon Haaland When Sheldon Haaland was diagnosed with multiple sclerosis in 1988, his friends encouraged him to attend an exercise program to connect with others and stay on top of his MS Sheldon Haaland symptoms. Two years after his diagnosis, he reluctantly joined an MS fitness group in Marshall, Minn.

to walk.” Additionally, exercise can serve as an outlet for stress reduction and help maximize independence.

Before Sheldon joined the group, exercise wasn’t a part of his daily routine. He thought getting to and from an exercise facility was a hassle, but his neurologist told him along with medications, exercise is an important part of a treatment plan. It can help decrease complications that arise from spasticity, muscular fatigue and weakness. Sheldon says walking and water exercise helps his muscles stay loose and keeps him moving. “Without regular exercise, I think it’d be a lot more challenging

“Joining a group reduces isolation and gives you an opportunity to meet other people living in your community who also have MS,” he says. “Once I got involved, I couldn’t stay away.”

The Marshall water exercise group meets twice a week at the YMCA. Six people, plus or minus a few, meet regularly, and Sheldon says he’s formed some special bonds with others in his group. A former farmer, he met another man his age who also used to farm. They walk and talk two hours a week.

The National MS Society works with community fitness facilities to provide exercise programs, ranging from yoga to Tai Chi, to strength training and low-impact water exercise, for people living with MS.

Learn more To learn more about exercise programs or if you’re interested in starting one in your community, see pages 11 and 32.

National Multiple Sclerosis Society

What’s your story? “The more I can share my story, the more awareness I can bring. With more awareness comes more research, and with more research, hopefully a CURE! I also share my story so people can see with both good and bad days, I can still have a positive outlook, be a loving and mom, wife and friend, and be passionate about my job.” — Annie Weber

You may think your story of living with MS isn’t remarkable or exciting, but think again! You don’t need to climb a mountain, raise thousands of dollars or bike across the country to have a compelling story. Everyone’s experience is unique. Whether you’re speaking to a group of people or just one person, your story has the power to educate people and inspire them to get more involved in the movement to end MS.

Think about these questions and jot down your thoughts. n What

do you remember from the day you were diagnosed?

n In

what ways does MS affect you or your family, and how are you moving forward in spite of the disease?

n How

has MS changed you?

n What

Get involved The National MS Society would like to use your story as we prepare for the legislative session and MS Awareness Week. If you’d like to help, contact Jenna at 612-335-7981 or jenna.washnieski@nmss.org.

is one thing you wish people could understand about the disease?

Try putting your answers together in a two-minute speech. The secret is to practice until you feel totally comfortable.

phone 612-335-7900 or 800-582-5296 (v/tdd) • fax 612-335-7997 • MSsociety.org

Teen Connection meeting Join other teens to share, plan and have fun!

Jan. 28 n Minneapolis It can be difficult to describe multiple sclerosis and how it affects you and your family to your teenage peers. Take advantage of the opportunity to connect with other people your age who understand the challenges of the disease and want to learn more about how they can help create a world free of MS.

Join us! Please RSVP to Bethany Hansen at 612-335-7954 or bethany.hansen@nmss.org.

Join other teens affected by MS for a fun and productive afternoon. Activities include brainstorming ideas for youth and teen programs, games, prizes, an inspiring special guest and more. This program runs during the MS Annual Convention, offering parents the convenience of dropping their teens off at the chapter office, attending the convention and picking them up afterward.

Details n Saturday,

Jan. 28, 1â&#x20AC;&#x201C;5 p.m.

n National

MS Society 200 12th Ave. S., Minneapolis, MN 55415

n Lunch

will be served.

n There

is no cost to attend.

National Multiple Sclerosis Society

MS Annual Convention

MS = dreams lost. dreams rebuilt.

MS = thief

MS = skating on thin ice

Jan. 28 n Minneapolis Learn what “MS =” to the thousands of people committed to the MS movement at the MS Annual Convention, Jan. 28, 2012. Connect with others, share stories and learn how we’re moving toward a world free of multiple sclerosis. Hear from the Society’s new CEO, Cyndi Zagieboylo, who will share what MS means to her and her vision of the future at the MS= feature program. Plus, visit the vendor exhibition area for tips and resources, and attend the annual meeting to review the progress we’ve made and what’s in store for the year ahead.

Who should attend: n People

with MS

n Care

partners (family members and friends in caring roles)

n Board

of Trustees members

n Health

care professionals

n Corporate

partners

n Donors n Volunteers n Event

participants and team captains

n People

with a close relative with MS

phone 612-335-7900 or 800-582-5296 (v/tdd) • fax 612-335-7997 • MSsociety.org

MS Annual Convention Space is limited. Registration form must be received by Jan. 20. Register online at MSsociety.org. Please print ID# (from mailing panel) ________ Name________________________ Address_____________________ City_________________________ State________ ZIP_____________ Home phone _____-_____-_____ Work phone _____-_____-______ Email_______________________ _____ # of people attending Complete names and addresses of others attending: Name________________________ Address_____________________ City_________________________ State________ ZIP_____________ Name________________________ Address_____________________ City_________________________ State________ ZIP_____________ Special accommodations: If you need any special accommodations, please call 612-335-7900 to make arrangements. Requests must be received by the registration deadline date.

MNM0CAME20120128MPL

Saturday, Jan. 28

1–4 p.m.

1–3 p.m. Exhibit area 1–1:45 p.m. Annual meeting 3–4 p.m. MS= feature program

Location Hyatt Regency Minneapolis 1300 Nicollet Mall Minneapolis, MN 55403 612-370-1234 minneapolis.hyatt.com

Program fee There is no fee for this program.

Register Online or by phone For more information or to register, visit MSsociety.org or call 612-335-7900 or 800-582-5296 (choose option 1). By mail Mail registration form to: National MS Society 200 12th Ave. S., Minneapolis, MN 55415

Care Partner Appreciation Brunch Join us to recognize and celebrate care partners for people with MS.

Nov. 19 n Roseville In honor of National Family Caregiver’s Month, the National MS Society will host an event recognizing care partners who provide support to someone living with multiple sclerosis. This support — from helping with chores, to being a good listener, to providing transportation and so much more — is offered by spouses, family members and friends. The Care Partner Appreciation Brunch gives people with MS an opportunity to honor and thank their care partners for the many ways they improve their quality of life. All people with MS are invited to bring a care partner to enjoy great food, door prizes and a program highlighting the importance of care partners.

phone 612-335-7900 or 800-582-5296 (v/tdd) • fax 612-335-7997 • MSsociety.org

Care Partner Appreciation Brunch Space is limited. Registration form must be received by Nov. 14. Register online at MSsociety.org. Please print ID# (from mailing panel) ________ Name of client _____________________________ Address_____________________ City_________________________ State________ ZIP_____________ Home phone _____-_____-_____ Work phone _____-_____-______ Email_______________________ Name of care partner _____________________________ Address_____________________ City_________________________ State________ ZIP_____________ Home phone _____-_____-_____ Work phone _____-_____-______ Email_______________________ Special accommodations: If you need any special accommodations, please call 612-335-7900 to make arrangements. Requests must be received by the registration deadline date.

MNM0CCGW20111119ROS

Saturday, Nov. 19

10 a.m. – noon

10–10:30 a.m. Check-in and welcome reception 10:30 a.m. – noon Brunch and program

Location Roseville Radisson 2540 N. Cleveland Ave. Roseville, MN 55113 651-636-4567

Program fee There is no fee for this program.

MS exercise programs Help expand MS exercise programs statewide.

The National MS Society works with community wellness organizations to provide exercise programs for people with multiple sclerosis. There is growing evidence that participation in an exercise program helps manage many MS symptoms, in addition to improving overall health and well-being.

Do you want an MS exercise program in your community? Do you work at a fitness facility or know someone who does?

The chapter provides more than 25 exercise programs, including: n water

exercise; n yoga;

n Tai

Chi; and n group exercise.

You can help expand programs to communities across the state, making the benefits of exercise available to more people with MS. Financial assistance is available to members, if needed.

Jeannie Zank, C.T.R.S., Therapeutic Recreation Coordinator

If you have questions or are interested in starting an exercise program in your community, contact Jeannie, C.T.R.S., at 612-335-7939 or jeannie.zank@nmss.org.

Join us! To see a list of current MS exercise programs, see page 32.

phone 612-335-7900 or 800-582-5296 (v/tdd) â&#x20AC;˘ fax 612-335-7997 â&#x20AC;˘ MSsociety.org

20s and 30s social gatherings Snow tube with other young adults affected by MS at Eko Backen.

Dec. 17 n Scandia Meet, eat and connect with other young adults at this social outing created for people with multiple sclerosis in their 20s and 30s. Located at Eko Backen in Scandia, Minn., this program offers a chance to enjoy snow tubing and lunch while connecting with others who understand the challenges of an MS diagnosis. There are hill options for all abilities: expert, intermediate and beginner. Two rope tows make going up the hill nearly as fast as going down!

Details n Saturday,

Dec. 17, 11 a.m.â&#x20AC;&#x201C;2 p.m.

n Eko

Backen, 22570 Manning Trail, Scandia, MN 55073

n There

is no cost to attend this program. Significant others, children and friends are welcome.

Join us at a 20s and 30s happy hour People affected by MS in their 20s and 30s are invited to attend a happy hour social, Nov. 9, at 6:30 p.m., at Sunsets Restaurant (700 Commons Dr., Woodbury, Minn.).

n Lunch

includes a taco and nacho bar buffet. Juice, water, hot chocolate and coffee are provided.

Please RSVP by Dec. 11 to Jill at 612-335-7938 or jill.parkinson@nmss.org. Sponsored by

National Multiple Sclerosis Society

MS research symposium Everything you need to know about the latest MS research and clinical trials.

Jan. 14 n Plymouth Learn about the latest, nationally recognized multiple sclerosis research projects and therapies, and have your questions answered by local MS expert Dr. Gary Birnbaum. In addition, learn about clinical trials in which people with MS can participate and what to expect from the experience. Plus, visit exhibitor tables to learn more about drug therapy options available to people with relapsing forms of MS.

Featured speaker Dr. Gary Birnbaum is director of the MS Treatment and Research Center at the Minneapolis Clinic of Neurology in Golden Valley, Minn. He is a member of the Medical Advisory Board and Clinical Dr. Gary Care Committee of the Birnbaum National MS Society and also serves on the chapter’s Board of Trustees and Clinical Advisory Committee.

phone 612-335-7900 or 800-582-5296 (v/tdd) • fax 612-335-7997 • MSsociety.org

MS research symposium Space is limited. The registration form must be received by Jan. 9. Register online at MSsociety.org. Please print ID# (from mailing panel) ________ Name________________________ Address_____________________ City_________________________ State________ ZIP_____________ Home phone _____-_____-_____ Work phone _____-_____-______ Email_______________________

Saturday, Jan. 14

9–11 a.m.

9–9:30 a.m. Check-in and breakfast 9:30–10:30 a.m. MS research highlights 10:30–10:45 a.m. Break 10:45–11:15 a.m. MS research highlights 11:15–11:30 a.m. Q&A session

Location Crown Plaza, Minneapolis West 3131 Campus Drive Plymouth, MN 55441 763-559-6600

Program fee There is no fee for this program.

_____ # of people attending

Complete names and addresses of others attending: Name________________________ Address_____________________ City_________________________ State________ ZIP_____________

Online or by phone For more information or to register, visit MSsociety.org or call 612-335-7900 or 800-582-5296 (choose option 1).

Name________________________ Address_____________________ City_________________________ State________ ZIP_____________ Special accommodations: If you need any special accommodations, please call 612-335-7900 to make arrangements. Requests must be received by the registration deadline date.

MNM0CREW20120114PLY

By mail Mail registration form to: National MS Society 200 12th Ave. S., Minneapolis, MN 55415

Grieving lost dreams Welcoming new ones.

Nov. 12 n Bloomington Join other people affected by multiple sclerosis to learn about strategies for facing challenges of the disease and much more. This unique program also offers afternoon breakout sessions addressing the needs of care partners as well as men and women living with MS.

General session Whether you care for a person with MS or live with the disease yourself, MS can upset expectations and disrupt dreams. Learn strategies for managing these changes with Thomas M. Ellis, licensed marriage and family therapist and author of “This Thing Called Grief: New Understandings of Loss.”

Breakout sessions Join Ellis for an engaging, interactive discussion with other care partners, whether you’re a spouse, partner, family member or friend of someone with MS. Discuss common issues for women living with MS with Dr. Yelena Usmanova, neurologist at the Minneapolis Clinic of Neurology. Men will be joined by Matt Castens, R.N., C.C.R.N., Patient Care Coordinator at the Multiple Sclerosis Center at the University Thomas M. Ellis of Minnesota Physicians, Clinic of Neurology.

Dr. Yelena Usmanova

phone 612-335-7900 or 800-582-5296 (v/tdd) • fax 612-335-7997 • MSsociety.org

Matt Castens

Grieving lost dreams. Welcoming new ones. Space is limited. Registration form must be received by Nov. 7. Register online at MSsociety.org. Please print ID# (from mailing panel) ________ Name________________________ Address_____________________ City_________________________ State________ ZIP_____________ Home phone _____-_____-_____ Work phone _____-_____-______ Email_______________________ _____ # of people attending Complete names and addresses of others attending: Name________________________ Address_____________________ City_________________________ State________ ZIP_____________ Name________________________ Address_____________________ City_________________________ State________ ZIP_____________ Special accommodations: If you need any special accommodations, please call 612-335-7900 to make arrangements. Requests must be received by the registration deadline date.

MNM0CEOW20111112BLO

Saturday, Nov. 12 9:30–10 a.m. 10 a.m. – noon Noon–12:45 p.m. 12:45–2 p.m.

9:30 a.m. – 2 p.m.

Check-in General Session: Grieving lost dreams. Welcoming new ones. Lunch Breakout sessions:

n Care partner issues, Tom Ellis n Women’s issues, Dr. Yelena Usmanova n Men’s issues, Matt Castens

Location Minneapolis Airport Marriott 2020 American Blvd. E. Bloomington, Minnesota 55425 USA 952-854-7441

Program fee There is no fee for this program.

Personal financial counseling Free counseling sessions with financial experts to help you navigate the complex world of money. The National MS Society, in collaboration with the Financial Education Partners Program (FEP), offers free personal financial counseling to people with multiple sclerosis. Volunteers from the Twin Cities Chapter of The Society of Financial Service Professionals provide this service. Individual counseling sessions are over the telephone and usually last less than one hour.

These free professional consultations may help you address a variety of financial topics, including: n basic

budgeting;

n savings

vehicles: pros and cons;

n insurance

analysis and claims assistance;

n investment

review and planning;

n employee

benefits analysis: medical plans, disability coverage and life insurance;

Financial planning can be an intimidating subject, but there are experts who can provide free guidance and support.

n retirement

planning: analysis and tax planning/effectiveness; and

n estate

Additional resources

If you are interested in financial counseling, contact Steve at 612-335-7974 or steve.korngable@nmss.org.

For information about financial and life planning, visit MSsociety.org (click on “Living with MS” and then “Insurance and Money Matters”).

planning: strategies to maximize inheritances.

Participants should not expect an FEP advisor to act as their long-term financial advisor or sell them financial products.

phone 612-335-7900 or 800-582-5296 (v/tdd) • fax 612-335-7997 • MSsociety.org

Connect locally Connect with people in your community and learn about MS-related research, symptom management, ways to cope with MS and more. Research initiatives in progressive MS Coon Rapids n Nov. 9, 6:30 p.m. Coon Rapids City Center, 11155 Robinson Drive, Coon Rapids, MN 55433

Burnsville n Jan. 3, 6:30 p.m. Fairview Education Center, 152 Cobblestone Lane, Burnsville, MN 55337 Learn about current research initiatives that focus on progressive MS, including the different areas being explored in progressive MS research and some challenges researchers face.

To RSVP for the Coon Rapids program, contact Renee at 763-757-4650, or Travis and Jenny at tgrise423@msn.com. To RSVP for the Burnsville program, contact Mike at 952-898-2857 or Sue at elmo31757@hotmail.com.

Hold that thought: Cognition and MS Grand Rapids n Nov. 10, 12:30 p.m. St. Josephâ&#x20AC;&#x2122;s Church, 315 SW 21st St., Grand Rapids, MN 56744 People with MS can have problems remembering things, finding the right words, concentrating on a task or following a conversation. An estimated 50 to 65 percent of people living with MS have some cognitive issues.

Attend this informational program to learn more about cognitive symptoms associated with MS, how cognitive changes are evaluated as well as treatments and strategies for managing these changes. Time for discussion will follow the presentation. To RSVP, contact Sally or Betty at 218-326-1371 or bettydren@gmail.com.

National Multiple Sclerosis Society

Connect locally MS education series Bethesda Lutheran Church, 204 Fifth St., Carlton, MN 55718 Join the Carlton MS group for the first two presentations in a series of four, offered monthly through February 2012.

MS 101, understanding exacerbations and invisible symptoms n Nov. 28, 3 p.m. Learn basic information about multiple sclerosis and managing symptoms. What is MS? What causes it

and who gets it? What are exacerbations and how are they treated?

Fatigue: Take control n Jan. 23, 3 p.m. Fatigue is one of the most common symptoms of MS, occurring in approximately 80 percent of people who live with the disease. This program provides an overview of MS fatigue and how to manage

it, and introduces concepts for making proactive energy choices. To RSVP for either program, contact Karen at 218-213-3105 or bkc3laine@yahoo.com.

MS and nutrition St. Paul n Jan. 11, 7 p.m. Macalester Plymouth Church, 1658 Lincoln Ave., St. Paul, MN 55105 Good nutrition is essential for everyone. For people with MS, diet can have even greater importance — from helping to manage MS symptoms to possible impact on progression of the disease. Join speaker Sarah Johnson, registered dietitian at

Park Nicollet Melrose Institute, for a presentation on MS and nutrition. To RSVP, contact Beth at 612-825-7990 or bajensen@usiwireless.com or Mary Lynn at 651-644-1429.

Primary-progressive MS: Perspectives on moving forward Stillwater n Jan. 19, 11 a.m. Courage Center St. Croix, 1460 Curve Crest Blvd. W., Stillwater, MN 55082 Primary-progressive MS (PPMS) affects approximately 10 percent of the MS population. It’s characterized by a steady decline in function without relapse. Meet experts on the subject — four individuals living with PPMS. Each has different backgrounds

and stories, and brings a unique perspective to living with the disease. To RSVP, contact Christopher at 651-850-7868 or pcpkinney@aol.com.

phone 612-335-7900 or 800-582-5296 (v/tdd) • fax 612-335-7997 • MSsociety.org

Face time with your local neurologist Get answers straight from the source. Neurologists from local MS clinics host these informal, question-and-answer style sessions about living with MS and research. MS Treatment and Research Center at the Minneapolis Clinic of Neurology Join Dr. Gary Birnbaum and Jane Iverson, MS-certified nurse Monthly at 6 p.m. Perpich Center for Arts Education, Glass Box Conference Room 6105, Highway 55, Golden Valley, MN 55422 Topics: Nov. 30 Research update from the European Committee for Treatment and Research in Multiple Sclerosis (ECTRIMS) Dr. Gary Birnbaum

December No program

Please RSVP to 763-302-8282, ext. 4823.

University of Minnesota MS Center Join Matt Castens, R.N., C.C.R.N. Every other month at 6 p.m. Fairview Maple Grove Clinic, 14500 99th Ave., #500, Maple Grove, MN 55369 Topics: Nov. 14 Treatment-related adverse events and their management For more information, contact the University of Minnesota MS Center at 612-626-2675. Matt Castens

National Multiple Sclerosis Society

Face time with your local neurologist The Schapiro Center for MS at the Minneapolis Clinic of Neurology Join Dr. Jonathan Calkwood Every other Wednesday from 1 to 2:30 p.m. Regency Hospital, 4101 Golden Valley Road, Golden Valley, MN 55422 Topics: Nov. 2 The benefits of yoga with guest speakers Lisa First and Julyen Hamilton (Wear comfortable clothes to participate.) Dr. Jonathan Calkwood

Nov. 16 Add exercise into your day with guest speaker Sharon Ruhsam, P.T. Dec. 7

Managing stress during the holidays with guest speaker Pam Kuhl, R.N., C.M.S.N. Join us at 12:30 p.m. for a holiday lunch sponsored by Teva Neuroscience.

Understanding the immune system in MS

Jan. 4

Jan. 18

How does a neurologist deal with having MS? Join guest speaker Dr. Karl F. Gross, neurologist and person with MS. Join us at 12:30 p.m. for lunch sponsored by Bayer HealthCare Pharmaceuticals.

For more information, contact the Schapiro Center for MS at 763-302-4199.

phone 612-335-7900 or 800-582-5296 (v/tdd) â&#x20AC;˘ fax 612-335-7997 â&#x20AC;˘ MSsociety.org

Finding the right MS treatment for you

Details about this program are provided for your information. This program is not produced by the National MS Society.

Nov. 8 n Minnetonka

Learning about multiple sclerosis is essential to managing its symptoms. Join us as a medical MS expert presents the science behind MS, current therapies to treat MS and insight into managing the disease.

n Program:

6–6:30 p.m.

6:30–8:30 p.m.

Sheraton Minneapolis West 12201 Ridgedale Drive Minnetonka, MN 55305

Featured speaker Jonathan Calkwood, M.D., director at Schapiro Center for Multiple Sclerosis, Minneapolis Clinic of Neurology in Golden Valley, Minn.

Join us! To register for this free program, call 866-955-9999 or register online at MSActivesource.com. Dr. Jonathan Calkwood

National Multiple Sclerosis Society

Details about this program are provided for your information. This program is not produced by the National MS Society.

Finding the right MS treatment for you

Dec. 1 n Brooklyn Park Learning about multiple sclerosis is essential to managing its symptoms. Join us as medical MS experts present the science behind MS, current therapies to treat MS and insight into managing the disease.

Details n Registration: n Program:

5:30–6 p.m.

6–8 p.m.

The Northland Inn 7025 Northland Drive N. Brooklyn Park, MN 55428

Featured speakers Join us! To register for this free program, call 866-955-9999 or register online at MSActivesource.com.

Susan Evans, M.D. Noran Clinic, MS Center; Minneapolis, MN

Praful Kelkar, M.D. Noran Clinic, MS Center; Blaine, MN

phone 612-335-7900 or 800-582-5296 (v/tdd) • fax 612-335-7997 • MSsociety.org

A treatment option for MS Meet specialists, learn about an MS treatment option and be inspired.

Details about this program are provided for your information. This program is not produced by the National MS Society.

Nov. 17 n Golden Valley n Program:

6:30–7:30 p.m.

Holiday Inn Express 6020 Wayzata Blvd. Golden Valley, MN 55416

You’re invited to a Novartis MS event to:

Dec. 5 n Bloomington

n hear

Hilton Garden Inn 5140 American Blvd. W. Bloomington, MN 55437

medical specialists discuss information about MS and a prescription treatment option;

n learn

about Novartis and comprehensive support services for people living with MS; and

n Program:

6:30–7:30 p.m.

Featured speaker

n connect

with other people in your community living with MS.

To RSVP, please call 800-973-0362.

Brenda Brelje, R.N., M.S.C.N.

National Multiple Sclerosis Society

Exploring multiple sclerosis Team up with Bayer HealthCare to fight your MS.

Details about this program are provided for your information. This program is not produced by the National MS Society.

Nov. 3 n Rochester

Dr. Jonathan Calkwood

Please join us for an important discussion exploring multiple sclerosis with guest speaker Dr. Jonathan Calkwood, director of the Schapiro MS Center at the Minneapolis Clinic of Neurology in Golden Valley, Minn.

Topics include MS management and overcoming challenges due to the disease.

Join us! Seating is limited and a reservation is required. To RSVP, call 800-788-1467. Choose option 4 to register. The meeting code is BDP110934.

Details n Registration: n Program:

6 p.m.

6:15 p.m.

Ramada Hotel and Conference Center 1517 16th St. SW Rochester, MN 55902 507-289-8866

phone 612-335-7900 or 800-582-5296 (v/tdd) â&#x20AC;˘ fax 612-335-7997 â&#x20AC;˘ MSsociety.org

Medicare Open Enrollment dates have changed Enrollment ends early December.

If you or someone important in your life is on Medicare and wants to choose another option or needs help picking a plan, please note and spread the word that Medicare Open Enrollment dates have changed to Oct. 15, 2011, to midnight, Dec. 7, 2011. People on Medicare and their family or caregivers often make arrangements to look at Medicare options together during the holiday season. However, changing plans after Dec. 7, 2011, will not be allowed. Changes made during the new enrollment dates begin Jan. 1, 2012. Take action â&#x20AC;&#x201D; mark your calendars now!

Questions If you have questions or need help comparing plans, take advantage of the many available resources.

1-800-MEDICARE Medicare.gov

National Multiple Sclerosis Society

Featured group

Carlton/Cloquet MS Group

Clubs and groups Join an MS club or group to

Many folks in the Carlton and Cloquet communities live with MS. If we haven’t already done so, we look forward to meeting you and hope to be a resource for information and support when you need it. We also expect to share good times as we get to know one another. We’re offering an education series this winter with topics we hope will interest you. We hope you’ll join us!

connect with other people affected by MS, enjoy lively discussions, learn valuable information and ways to cope with challenges, have fun and be inspired. Read about groups and clubs that are moving forward together, and find a club or group in your community that’s right for you. Have an idea for a new group? Contact Jeff at 612-335-7951 or jeff.fisher@nmss.org.

— Karen Laine, group leader

CLUBS

Duluth

Mahtomedi

Book clubs

Fourth Tuesday of the month 11 a.m., Barnes & Noble Betsy, 218-724-9075

Fourth Tuesday of the month 6:30 p.m., Betty’s Pies Judy, 651-488-4454

Maple Grove

Minneapolis

Fourth Monday of the month 10 a.m., Barnes & Noble Mary, 763-420-4562

Third Wednesday of the month 7 p.m., Kingsley Commons Pat, 612-521-4654

Apple Valley First Friday of the month 10 a.m., Barnes & Noble Cindy, 952-891-5249

phone 612-335-7900 or 800-582-5296 (v/tdd) • fax 612-335-7997 • MSsociety.org

Roseville

New Brighton/St. Anthony

First Tuesday of the month 10 a.m., Barnes & Noble Har Mar Darr, 651-646-4661 or Lisa, lhayesburt@comcast.net

Fourth Tuesday of the month 6 p.m., Christ the King Lutheran Church, New Brighton

Live FIT (MS Fitness discussion groups) Duluth Third Saturday of the month 3 p.m., Lutheran Church of Christ the King

Minneapolis Third Saturday of the month 10 a.m., chapter office

Nutrition club KC Nutrition Club Fourth Saturday of the month 1:30 p.m., Kingsley Commons, Minneapolis

GROUPS New clubs and groups Carlton/Cloquet Fourth Monday of the month 3 p.m., Bethesda Lutheran Church in Carlton

St. Louis Park Care Partners Third Wednesday of the month 6:30 p.m., St. Louis Park City Hall

Men’s Care Partner Breakfast Third Saturday of the month 10 a.m., Pippin’s Restaurant, Roseville

Perham Care Partners Last Tuesday of the month 1 p.m., Calvary Lutheran Church

St. Louis Park Care Partners Third Wednesday of the month 6:30 p.m., St. Louis Park City Hall

Women Care Partners

CogniFitness

Third Saturday of the month Noon, Dorothy Ann Bakery & Café, Woodbury

Minneapolis

For couples

First Tuesday of the month 2 p.m., Aster Café

Stillwater Couples

For artists, crafters and writers with MS

Second Saturday of the month Noon, Courage St. Croix, Stillwater

Arrowhead region

MS Art & Crafts Interest Group

For GLBT

Meeting monthly at regional restaurant Mary, 218-827-8327

Third Saturday of the month 11 a.m., D’Amico & Sons Café, Roseville

Burnsville/Apple Valley

For care partners

Social gatherings

Third Thursday of the month Noon, Perkins Restaurant, Apple Valley

Forest Lake area Fourth Thursday of the month 6:30 p.m., restaurant varies Susan, 651-464-1043

Bemidji Care Partners Third Saturday of the month 10 a.m., North Country Regional Hospital

GLAMS Twin Cities (for GLBT living with MS) Third Thursday of the month 6:30 p.m., Walker Library, Minneapolis

St. Paul GLBT: Gay, Lesbian, Bisexual, Transgender Living with Chronic Illnesses and Disability First Tuesday of the month 6 p.m., Metropolitan Center for Independent Living, St. Paul

National Multiple Sclerosis Society

For men

For professionals

Austin

Men’s Group

Let’s Lunch: Professionals Living with MS

First Monday of the month 6:30 p.m., Grace Lutheran Church

First and third Thursdays of the month 11 a.m., Courage St. Croix, Stillwater

Metro Area It’s Just Breakfast (with the guys) First Saturday of the month 10 a.m., Famous Dave’s, Calhoun Square Second Wednesday of the month 10 a.m., Restaurant varies Rick, 612-791-6473 or rleaf@msnet.org

For moms with young children Moms with Young Children

Third Saturday of the month 11 a.m., Chatterbox Pub, St. Paul

For people recently to five years diagnosed South Metro Recently to Five Years Diagnosed Last Wednesday of the month 6:30 p.m., Split Rock Grille, Bloomington

For women Maplewood Women’s Peer Support Group Second Thursday of the month 12:30 p.m., Gustavus Adolphus Lutheran Church

Belview Third Thursday of the month 7:30 p.m., Redwood Area Hospital No meetings Nov.–Feb.

Bemidji Third Saturday of the month 10 a.m., North Country Regional Hospital

Bloomington First Thursday of the month 7 p.m., Nativity of Mary Church (south door entrance) No meetings January or July

Buffalo

First Monday of the month 6:30 p.m., Patrick’s Bakery & Café, Edina

General groups

Third Monday of the month Noon, United Methodist Church

For people of color

Aitkin

Burnsville/Apple Valley

Metro MS Group for People of Color Second Saturday of the month 10:30 a.m., Sumner Library, Minneapolis

For people mildly affected by MS Southwest Metro MS Group for Mildly Affected Third Saturday of the month 10 a.m., United Methodist Church, Eden Prairie

First Wednesday of the month 7 p.m., Hope Drop-In Center

Albert Lea

First Tuesday of the month 6:30 p.m., Fairview Ridges Education Center, Burnsville

Second Monday of the month 1:30 p.m., Dec. – Feb. and 7 p.m., March – Nov., Grace Lutheran Church

Cambridge

Alexandria

Canby

Second Monday of the month 5 p.m., St. Mary’s Office Building No meetings Dec. – March

Third Thursday of the month 7 p.m., Cambridge Medical Center Second Thursday every other month, April – Dec., 4 p.m., Sanford Canby Medical Center

phone 612-335-7900 or 800-582-5296 (v/tdd) • fax 612-335-7997 • MSsociety.org

Chaska

Hibbing

New Prague

Third Tuesday of the month 12:30 p.m., Chaska Library

Last Thursday of the month 1 p.m., Open Door Church

Coon Rapids North Suburban

Hutchinson

Last Wednesday of the month 6:30 p.m., Queen of Peace Hospital No meetings Dec. – Feb.

Second Wednesday of the month 6:30 p.m., Coon Rapids City Center

Duluth First Tuesday of the month 11:30 a.m. (bring a bag lunch) Bethany Baptist Church

Eden Prairie Third Tuesday of the month 7 p.m., Wooddale Church

Excelsior/Minnetonka

Second Monday of the month 6:45 p.m., Christ the King Lutheran Church

Inver Grove Heights/ West St. Paul

Second Thursday of the month 6 p.m., First Lutheran Church

New Ulm

First Monday of the month 5:30 p.m., Emma Krumbee’s Restaurant, IGH No meetings Dec. – Feb.

Third Tuesday of the month 7 p.m., Oak Hills Living Center No meetings Dec. – Feb.

Lake Elmo

Third Saturday of the month 10:30 a.m., Oakdale Library

Second Wednesday of the month Noon, Christ Lutheran Church

Second and fourth Saturdays of the month 10 a.m., Knewtson Health Group Building, Excelsior

Little Falls/Pierz

Fergus Falls

Luverne

Second Wednesday of the month 11:30 a.m., United Church of Christ

Third Thursday of the month 7:30 p.m., Rock County Family Services

Faribault

Mankato

Third Tuesday of the month 6 p.m., Buckham Memorial Library

Second Thursday of the month 7 p.m., ISJ Physical Medicine, Madison East Center

Forest Lake area

Maple Grove

Second Thursday of the month 6:30 p.m., The Meadows for Assisted Living

Second Saturday of the month 10 a.m., St. Joseph the Worker Church

Grand Rapids

Minneapolis

Second Thursday of the month 12:30 p.m., St. Joseph Church

Last Saturday of the month 10 a.m., Kingsley Commons

New Richmond

First Wednesday of the month 1 p.m., Bethel Lutheran Church, Little Falls

Oakdale

Perham Last Tuesday of the month 1 p.m., Calvary Lutheran Church

Princeton Third Saturday of the month 10 a.m., Fairview Northland Regional Hospital

Rochester Third Wednesday of the month 7 p.m., Meadow Lake Senior Living

Roseville Second Wednesday of the month 6:45 p.m., The Fire Station One (Group also meets socially at a local restaurant at 6:45 p.m. the fourth Wednesday of the month.) Robin, 651-647-0809

National Multiple Sclerosis Society

Staples

Superior

Second Thursday of the month 3 p.m., Lakewood Care Center No meetings June – Aug.

Second Tuesday of the month 6 p.m., Superior Public Library

St. Cloud

Third Tuesday of the month 7 p.m., Waseca Medical Center

Second Wednesday of the month 7 p.m., St. Cloud Public Library

St. Paul Care to Share Second Wednesday of the month 7 p.m., Macalester Plymouth Church Mary Lynn, 651-644-1429

Stillwater Third Wednesday of the month 6 p.m., Courage Center

Waseca

Wayzata/Plymouth First Thursday of the month 1 p.m., restaurant varies, Richie, 763-670-9114

Willmar First Tuesday of the month 7 p.m., Bethesda Nursing Home No meetings Jan. – Mar.

Windom/Cottonwood County Third Wednesday of the month 7 p.m., ALC Lutheran Church

Woodbury A.M. Second Thursday of the month 9:30 a.m., King of Kings Lutheran Church

Woodbury P.M. Fourth Tuesday of the month 7 p.m., St. Ambrose of Woodbury

Additional resources Clubs and groups For more information about clubs and groups, visit MSsociety.org. Click “Programs and Services” and then “Clubs and Groups.” If you’d like more information or are interested in starting a club or group in your area, contact Jeff at 612-335-7951 or jeff.fisher@nmss.org.

Do you know a company that could support the chapter? Do you know of a company that could sponsor the chapter’s clubs and groups? If so, let us know! Contact Teri at 612-335-7925 or teri.cannon@nmss.org.

phone 612-335-7900 or 800-582-5296 (v/tdd) • fax 612-335-7997 • MSsociety.org

Exercise Studies show exercise not only improves your overall health and well-being, but also can help manage many MS symptoms. Move forward by finding an exercise program in your community. Featured group

Majestic Shores Resort water exercise Attendees of Majestic Shores Resort, held this past August, had the opportunity to exercise in a fun and relaxing way as part of the water exercise activity.

Whatâ&#x20AC;&#x2122;s your exercise group doing to move forward with MS? If you want to be the next featured group, email your stories and photos to Maggie at maggie.flanagan@nmss.org.

WATER EXERCISE Albert Lea

Detroit Lakes

Inver Grove Heights

Family YMCA Bill Vilarreal, 507-373-8228 T/W/R, 1-1:45 p.m.

Detroit Lakes Community & Cultural Center Leslie Johnson, 218-844-4221 T/R, 9-10 a.m.

The Grove Amy Crary, 651-554-3420 Shallow water T/R, 10 a.m. Deep water M/W, 7:15 p.m. Call for more options.

Alexandria Lakes Area Recreation held at Arrowwood Resort Pool Kelly Wencl, 320-762-2868 M-F, 9-10 a.m.

Eden Prairie

Burnsville

Grand Rapids

Minnesota Valley YMCA Sarah Sparks, 952-435-9022 T/R, 9-9:45 a.m.

Itasca County Family YMCA Sue Beer, 218-327-1161 M/W/F, 9:30-10:25 a.m.

Community Center Beth Witt, 952-949-8447 M/W, 10:30-11:30 a.m.

Mankato Mankato Family YMCA Joy Leafblad, 507-345-9813 W, 5-6 p.m.

National Multiple Sclerosis Society

Marshall

Willmar

Minneapolis

Marshall Area YMCA Cindy Rosa, 507-532-9622 M, 4:30-6 p.m.

Kandiyohi County Area YMCA Christy Marthaller, 320-222-9622 Shallow water M-F, 8:30-9:30 a.m. Deep water M/W/F, 9:30-10:30 a.m. Shallow/deep combo M/W, 5:30-6:30 p.m.

Kingsley Commons Mary Salisbury, 651-690-1850 T/F, 10:30 a.m.

New Hope Northwest YMCA Kylie Sundberg, 763-535-4800 T/R, 11 a.m.-noon

Perham Community Center Marie Hanson, 218-346-7222 T/R, 8:30-9:30 a.m. W, 11-11:45 a.m.

Woodbury

St. Cloud

Tai Chi

Family YMCA Celeste Waltz, 320-253-2664 M/W/F, 9:30-10:30 a.m.

Mankato

St. Paul Jewish Community Center Christina Eide, 651-255-4762 T/R, 9:50-10:35 a.m.

Stillwater Courage St. Croix Joanie Kiminski, 651-439-8283 T/R, 10-11 a.m.

Virginia Mesabi Family YMCA Chelsea Spreeman, 218-749-8020 T/R, 1-2 p.m.

Waconia Safari Island Sara Foley, 952-442-0695 M/W/F, 8:30 a.m.

Southeast Area YMCA Lisa Kovac, 651-739-6589 T, 11:15 a.m.-noon.

V.I.N.E. Summit Center, Karen Christy, 507-345-5262 T, 3:30-4:30 p.m.

Burnsville Diamondhead Education Center Linda Ebeling, 651-686-0335 W, 11 a.m.-noon

YOGA Bemidji Dionne’s OM Yoga Studio Dionne Daly, 218-766-9262 T, 8-9 a.m.; S, 9:30-10:30 a.m.

Uptown YWCA Lisa First, 612-822-3504 T/F, Noon

Stillwater Courage St. Croix Joanie Kiminski, 651-439-8283 W, 10 a.m.; R, 6:30-7:30 p.m.

GROUP EXERCISE Duluth Duluth Clinic, Fitness & Therapy Center Kelly Fugere, 218-786-5400 Low impact M/W, 10-11 a.m. Muscular strength and range of motion M/W, 10 a.m.

Shoreview Harbor Suites Megan Frost, 651-766-0080 M/W, 10:30-11:30 a.m. M= Monday R = Thursday T = Tuesday F = Friday W= Wednesday S = Saturday

Eden Prairie Eden Prairie Community Center Beth Witt, 952-949-8447 F, 10:30-11:15 a.m.

phone 612-335-7900 or 800-582-5296 (v/tdd) • fax 612-335-7997 • MSsociety.org

Whatâ&#x20AC;&#x2122;s online? Join the MS Research Revolution.

Become an MS Research Champion. Did you know the National MS Society made a bold commitment to raise $250 million by 2015 to fuel MS research?

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Now, we need everyone to be a champion in the research revolution. It will take each and every one of us to make sure we reach our goal. Simply complete a brief online training and the National MS Society will provide all the tools you need to speak confidently about MS research and rally everyone you know to become a part of the revolution. Champions receive a certificate of completion, a handy reference card and much more. Become an MS Research Champion at http://tinyurl.com/MSResearchChampion

National Multiple Sclerosis Society

Didn’t find what you’re looking for? Use this directory to find the programs, services and resources that are right for you. Advocacy Jenna, 612-335-7981 Camps Majestic Shores Resort Jeannie, 612-335-7939 Youth Camp Bethany, 612-335-7954 Care partner programs Bethany, 612-335-7954 Chore services Kari, 612-335-7900 Clubs and groups Jeff, 612-335-7951 Corporate sponsorship Teri, 612-335-7925 Lindsay, 612-335-7976 Client education programs Steve, 612-335-7974

Calling from outside the Twin Cities area? Dial 800-582-5296.

Emergency assistance Heather, Jill and Sarah, 612-335-7900 Equipment programs Equipment loan MSClassifieds Scott, 612-335-7900 Exercise programs Jeannie, 612-335-7939 Family programs Bethany, 612-335-7954 Giving to the National MS Society Shannon, 612-335-7928 Chris, 612-335-7965 Housing developments Steve, 612-335-7974 Independent living grants Grants are available for care partner relief, aids for daily living, adaptive equipment and home modification. Scott, 612-335-7900

Information and Referral Center MS Navigators Heather, Jill and Sarah, 612-335-7900 Inservices for organizations Steve, 612-335-7974 Lending Library Jill, 612-335-7900 Mentor Program Connie, 612-335-7964 Professional education Megan, 612-335-7955 Volunteer opportunities Josh (programs), 612-335-7984 Will (events), 612-335-7992 Walk MS, Bike MS, Mud Run MS, Run MS and motorsport events Ann, 612-335-7975 Youth and teen programs Bethany, 612-335-7954

phone 612-335-7900 or 800-582-5296 (v/tdd) • fax 612-335-7997 • MSsociety.org

When care partners need a break Caring for someone with MS can be deeply satisfying, but also physically and emotionally exhausting. Respite — temporary relief for family care partners — is an important family preservation and support service.

We’re here to help. The National MS Society provides care partner relief grants to help cover the cost of home care or a temporary stay in a skilled facility so care partners can take a break. For more information, contact Scott at 612-335-7900, 800-582-5296 or scott.ahlgren@nmss.org.

Leave your legacy In 2010, the National MS Society received more than $7.5 million in legacy and bequest gifts. Every planned gift makes an impact — many of these donations were less than $1,000. Join other people with unparalleled passion by creating your

legacy today with a gift through your will, retirement or life insurance plan.

JOIN THE MOVEMENT® For more information, contact Chris at 612-335-7965 or chris.neher@nmss.org.