Programs Connection, fall 2009

Programs

Fall 2009 • Vol. 8 No. 6

CONNECTION

Care Partner Retreat

Grieving lost dreams. Welcoming new ones.

MS research update and annual meeting Learn how we are moving to a world free of MS.

Plus Fall Education Conference Managing MS and much, much more

JOIN THE MOVEMENT

MOVING IS WHO WE ARE “If you want to lift yourself up, lift up someone else.”

– Booker T. Washington

Megan Sparks, Director of Community Relations and Volunteerism

Last spring we told you about a study that found a significant connection between volunteering and good health. But we don’t need science to tell us that helping others just feels good.

This is certainly true for the MS movement.

Every day, people join our movement by giving their time, their expertise, their talents and their money — whether it’s participating in Bike MS or Walk MS events, speaking in their communities to raise awareness about MS, or spending time with others living with the disease to offer support and encouragement.

And while we are doing a great deal, there is always more to be done. That’s why it’s important that we continue mobilizing the talents and resources of the thousands of people in our area who want to do something about MS. To help us do that, we are launching the Move it Forward program. This program will help foster meaningful connections between fundraisers, volunteers, people living with MS and the general public and create new ways for people to fuel our movement.

Simply said, this program will strengthen people’s passion for the movement and give them even more ways to feel good about giving back.

Lift up someone else, lift up yourself, and help us move forward toward a world free of MS. Learn more Read more about Move it Forward on Page 5.

Sponsorship of society programs or events does not connote that the National Multiple Sclerosis Society recognizes superiority in products or services provided by the sponsoring entity over other entities providing like or similar products or services.

Programs Connection Programs Connection is a free publication of the National MS Society, Minnesota Chapter 200 12th Ave. S. Minneapolis, MN 55415-1255 1-800-582-5296 proconnect@MSsociety.org Editors Steve Korngable Emily Wilson MS Navigators Sarah Danen Jill Parkinson Heather Svenson Vice President of Programs Linda Munson Chapter President Maureen Reeder To obtain an audio tape of Programs Connection, call Kari Harju at the Minnesota Chapter.

Promising treatments for MS

Studies show that early and ongoing treatment with an FDA-approved therapy can reduce future disease activity and improve quality of life for many people with multiple sclerosis. National MS Society medical advisors recommend that people with MS talk with their health care professional about using one of these medications and about strategies and effective treatments to manage symptoms. If you or someone you know has MS, please contact the Society today at www.nationalMSsociety.org or 1-800-582-5296 to learn about ways to help manage multiple sclerosis and about current research that may one day reveal a cure.

Table of Contents Programs by topic

Newly diagnosed

Care partners

MS research update and annual meeting Connect Locally Face Time with Your Local Neurologist Managing MS Talk MS Live

MS research update and annual meeting Care Partner Retreat Clubs and groups Fall Education Conference What’s online?

11 15 26 9 23

Back to Fitness Connect Locally Exercise Fall Education Conference Healthy Living with MS

6 17 24 9 7

Join the movement Move it Forward

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Managing MS symptoms Back to Fitness Connect Locally Exercise Face Time with Your Local Neurologist Fall Education Conference Healthy Living with MS Managing MS Talk MS Live

6 17 24 20 9 7 13 19

Money matters Personal Financial Counseling

Technology What’s online?

Healthy living

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11 17 20 13 19 23

Young adults MS research update and annual meeting Clubs and groups Managing MS Talk MS Live

11 26 13 19

Programs by location Duluth Face Time with Your Local Neurologist Fall Education Conference

20 9

St. Cloud Connect Locally

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Twin Cities — Metro programs MS research update and annual meeting Back to Fitness Care Partner Retreat Connect Locally Face Time with Your Local Neurologist Healthy Living with MS Managing MS Talk MS Live

11 6 15 18 20 7 13 19

JOIN THE MOVEMENT

Learning from others who care “Through my extended MS family, I’ve gained so much.”

– Paul Tuveson, MS care partner

It was curiosity that first drew Paul Tuveson to attend a Care Partner Getaway a couple years ago. Paul, whose wife, Dawn, lives with multiple Paul Tuveson sclerosis, wanted to connect with other care partners and learn from their experiences.

along with Dawn’s MS. Paul has been helping more with transportation, errands and house cleaning because of Dawn’s MS-related fatigue.

“While my wife has MS, I live with it, too,” he said.

“People with MS face different challenges, and so do their spouses or partners,” Paul said.

“I wanted to learn how other care partners adapted to manage the additional duties and challenges of MS.” Since then, Paul has attended a number of MS Society programs for people with MS and their families, which he says have helped him immensely. “Through my extended MS family, I’ve gained so much. The support of other care partners and MS Society staff has been extremely valuable to me.”

Over time, support and education programs like this have become even more valuable to Paul, as his care partner responsibilities have changed

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Paul is looking forward to reconnecting with his MS support network at the Care Partner Retreat Jan. 9 (see Page 15). According to Paul, connecting with other care partners helps him discover strategies to be a better care partner to Dawn and helps to address his own concerns about the disease.

“I never dreamed I would find as many friends as I have developed within the MS community,” Paul said. “For me, the society’s care partner programs have contributed greatly to my circle of friends.”

Get involved Learn more about the Care Partner Retreat on Page 15.

National Multiple Sclerosis Society, Minnesota Chapter

Move it Forward Join the movement.

In order to mobilize the talents and resources of the thousands of people in the local area who want to do something about multiple sclerosis, the Minnesota Chapter is launching the Move it Forward program.

Move it Forward will provide new and exciting volunteer opportunities to people who want to contribute their time and unique talents and expertise to the MS movement. Not only that, this program will help strengthen people’s passion for the movement by providing opportunities for volunteers, fundraisers, corporate partners and people affected by MS to connect.

Whatever your role in the movement to create a world free of MS, we’re all in it together, and Move it Forward will bolster passion for the cause and help us all work together as a team to get there.

To learn more about Move it Forward or to be a part of the planning team, contact Minnesota Chapter Director of Community Relations and Volunteerism Megan Sparks at 612-335-7955 or msparks@MSsociety.org.

phone 612-335-7900 or 1-800-582-5296 (v/tdd) • fax 612-335-7997 • www.MSsociety.org

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Back to Fitness Discover the benefits exercise can bring to your life.

At a doctor’s visit last year, Michelle Hergesheimer — who lives with multiple sclerosis — learned about the Back to Fitness program at the Minneapolis Clinic of Neurology. The program provides people with MS individualized therapeutic conditioning exercises, designed by an experienced clinical exercise physiologist, to help restore ability and balance. It can also help reduce pain, tightness and spasms and improve posture and daily energy levels.

Michelle had been experiencing increased walking difficulty and decided to give it a try.

She met with an exercise physiologist who developed a customized exercise plan she could do on her own. After meeting regularly for the first few months, she now visits her physiologist only twice a year.

Michelle appreciates being able to do the exercises at home and has seen improvements in her strength and endurance. “When I first started, I couldn’t walk on the treadmill at the gym and now I can walk a half mile,” Michelle said.

Learn more Contact Judy Soderberg at 763-302-4199.

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You do not need to be a patient at the Minneapolis Clinic to participate and many insurance plans cover the Back to Fitness program. Plus, this program is supported through generous grants from Questcore Pharmaceuticals and Genzyme Corporation to help participants with MS who have no insurance or an insurance policy with a front-end deductible of $1,000 or more.

National Multiple Sclerosis Society, Minnesota Chapter

Healthy living with MS Learn about MS research, treatment strategies, health and wellness and the future.

Oct. 24 n Bloomington Whether you or someone close to you has multiple sclerosis, you probably want to learn more about the latest research, treatment strategies, as well as emerging therapies that may be available in the future.

This important program features two leading MS neurologists who will share their insights and provide health and wellness tips to maintaining quality of life with MS in the years ahead. Plus, learn strategies to deal with injection site management and skin breakdown from an MS-certified nurse.

Featured speakers Featured speaker Dr. Mark Cascione’s clinical research experience includes the investigation of various drugs used in multiple sclerosis. He has also been principal investigator in a number of MS trials. Cascione is medical director of the South Tampa Multiple Sclerosis Center in Tampa, Fla. This program also features Dr. Jonathan Calkwood, neurologist at the Minneapolis Clinic of Neurology, and Melissa Rosin, an MS-certified nurse at St. Mary’s Duluth Clinic MS Center.

phone 612-335-7900 or 1-800-582-5296 (v/tdd) • fax 612-335-7997 • www.MSsociety.org

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Healthy living with MS Space is limited. Registration form must be received by Oct. 16.

Register online at www.MSsociety.org.

Please print ID# (from mailing panel) ________ Name of person with MS _____________________________ Age_________ Address_____________________ City_________________________ State________ ZIP_____________ Home phone _____-_____-_____ Work phone _____-_____-______ E-mail_______________________

Saturday, Oct. 24

8:30 a.m.

9:30 -10:30 a.m.

10:30-10:45 a.m.

10:45-11:30 a.m.

11:30 a.m.-12:15 p.m.

9:30 a.m. – 12:15 p.m.

Check-in begins with breakfast buffet Research and emerging therapies — Dr. Mark Cascione Break MS health and wellness — Dr. Jonathan Calkwood Injection site management and skin care — Melissa Rosin, MS-certified nurse

Location Holiday Inn Hotel & Suites Three Appletree Square I-494 and 34th Ave. (Exit 1) Bloomington, MN 55425 763-588-0661

Program fee

Complete name and address of others attending:

There is no fee for this program.

Name________________________ Address_____________________ _____________________________

Online or by phone Visit www.MSsociety.org or call 612-335-7970.

Name________________________ Address_____________________ _____________________________ Name________________________ Address_____________________ _____________________________ Special accommodations: If you need any special accommodations such as an ASL interpreter, vegetarian meal, or transportation please call 612-335-7970 to make arrangements. Requests must be received by the registration deadline date.

MNM0CEDW20091024BLO

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Register

By mail Mail registration form to the National MS Society.

National MS Society, Minnesota Chapter 200 12th Ave. S., Minneapolis, MN 55415

Questions For more information, contact Steve Korngable at 612-335-7974 or skorngable@MSsociety.org.

Made possible with financial support from

Fall Education Conference Learn, connect and share.

Nov. 7 n Duluth

General session

Join other people affected by multiple sclerosis to learn the latest in MS research and treatments, strategies for facing the challenges of the disease and much more.

MS research update and treatments Learn about the latest MS research and emerging treatments from Dr. Gary Beaver of the St. Mary’s Duluth Clinic MS Center.

Beaver is chair of the chapter’s Clinical Advisory Committee.

Grieving lost dreams. Welcoming new ones.

Whether you care for a person with MS or live with the disease yourself, MS can upset expectations and disrupt dreams.

Learn strategies for managing these changes with Thomas M. Ellis — licensed marriage and family therapist and author of “This Thing Called Grief: New Understandings of Loss.”

Breakout sessions Door prize drawings will be held at the end of each breakout session.

Care partner discussion Join Thomas M. Ellis for an engaging, interactive discussion with other care partners, whether you are a spouse, partner, family member or friend of someone with MS.

Keeping fit with MS Learn strategies to maintain fitness and join the movement with Tom Holtackers — person with MS, physical therapist and facilitator of the newly-launched MS Fitness Club in Duluth.

Chapter financial assistance and equipment programs Scott Ahlgren, Financial Assistance Coordinator, and Heather Svenson, licensed social worker, will discuss Minnesota Chapter resources available to people affected

by MS.

phone 612-335-7900 or 1-800-582-5296 (v/tdd) • fax 612-335-7997 • www.MSsociety.org

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Fall Education Conference Space is limited. Registration form must be received by Oct. 30.

Register online at www.MSsociety.org.

Please print ID# (from mailing panel) ________ Name________________________ Address_____________________ City_________________________ State________ ZIP_____________ Home phone _____-_____-_____ Work phone _____-_____-______ E-mail_______________________ Complete name and address of others attending: Name________________________ Address_____________________ _____________________________ Name________________________ Address_____________________ _____________________________ Name________________________ Address_____________________ _____________________________ Special accommodations: If you need any special accommodations, please call 612-335-7970 to make arrangements. Requests must be received by the registration deadline date.

Saturday, Nov. 7

8:30-9:30 a.m.

9:30 a.m.

9:45-10:35 a.m.

10:35 a.m.

10:45 a.m.

Noon

12:45 p.m.

9:30 a.m.–1:45 p.m.

Check-in and continental breakfast Welcome MS research update and treatments Break Grieving lost dreams.

Welcoming new ones.

Lunch Breakout sessions

Location Radisson Hotel Duluth-Harborview 505 W. Superior St. Duluth, MN 55802 320-253-9000 www.radisson.com/duluthmn

Program fee There is no fee for this program.

Register Online or by phone Visit www.MSsociety.org or call 612-335-7970.

By mail Mail registration form to the National MS Society.

National MS Society, Minnesota Chapter 200 12th Ave. S., Minneapolis, MN 55415

DVD or video A DVD or video of this program will be available in the chapter’s lending library.

Questions For more information, contact Steve Korngable at 612-335-7974 or skorngable@MSsociety.org.

Made possible with a restricted educational grant from MNM0CEDW20091107DUL

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MS research update and annual meeting Learn how we are moving to a world free of MS. Nov. 21 n Bloomington Learn how we are moving closer to a world free of multiple sclerosis at the 2009 MS research update and annual meeting. Get up-to-date information about cutting-edge research and emerging treatments in MS. Plus, attend the Minnesota Chapter’s annual meeting to see what progress we’ve made and what’s in store for the year ahead.

About the speakers Dr. Gary Birnbaum is director of the MS Treatment and Research Center at the Minneapolis Clinic of Neurology in Golden Valley, Minn. A member of the National MS Society’s Medical Advisory Board and Clinical Care Committee, Birnbaum also serves on the Minnesota Chapter’s board of trustees and Clinical Advisory Committee and as a research advocate.

Dr. Gareth Parry is medical director of the University of Minnesota MS Center and the Clinical Neuroscience Research Unit, a neurology professor at the university, and medical director of the Fairview MS Achievement Center. He co-chairs the chapter’s Clinical Advisory Committee and contributes to education programs. This year, in New Zealand, Queen Elizabeth II awarded him the Order of Merit for services to Neurology.

Who should attend: n

People with MS

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Care partners (family members and friends in caring roles)

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National MS Society, Minnesota Chapter Board of Trustees

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Health care professionals

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Corporate partners

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Donors

n

Volunteers

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Event participants and team captains

n

Youth with a close relative with MS

Dr. Gary Birnbaum

Dr. Gareth Parry

phone 612-335-7900 or 1-800-582-5296 (v/tdd) • fax 612-335-7997 • www.MSsociety.org

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MS research update and annual meeting Space is limited. Registration form must be received by Nov. 13.

Register online at www.MSsociety.org.

Please print ID# (from mailing panel) ________ Name________________________ Address_____________________ City_________________________ State________ ZIP_____________ Home phone _____-_____-_____ Work phone _____-_____-______ E-mail_______________________

Saturday, Nov. 21

2:30 p.m.

3 p.m.

3:30 p.m.

MS research update, Dr. Gary Birnbaum Emerging treatments in MS, Dr. Gareth Parry National MS Society, Minnesota Chapter annual meeting, Karen Larson, board of trustees chair

Location Sheraton Bloomington 7800 Normandale Blvd.

Bloomington, MN 55439 952-835-7800 www.sheratonbloomingtonhotel.com

Program fee There is no fee for this program.

_____ # of people attending

Register

Complete names of others attending:

Online or by phone Visit www.MSsociety.org or call 612-335-7970.

Name________________________ Address_____________________ City_________________________ State________ ZIP_____________ Name________________________ Address_____________________ City_________________________ State________ ZIP_____________ Special accommodations: If you need any special accommodations, please call 612-335-7970 to make arrangements. Requests must be received by the registration deadline date.

MNM0CAME20091121BLO

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2:30– 4 p.m.

By mail Mail registration form to the National MS Society.

National MS Society, Minnesota Chapter 200 12th Ave. S., Minneapolis, MN 55415

Questions For more information, visit www.MSsociety.org or contact Megan Sparks at 612-335-7955 or msparks@MSsociety.org.

Details about this program are provided for your information. This program is not produced by the National MS Society.

Managing MS Learn strategies to enhance your life.

Dec. 5 n Bloomington Symptoms of multiple sclerosis vary from person to person and from time to time in the same person. While the severity of symptoms can range from mild to severe, people with MS can successfully manage most symptoms with strategies such as medication, self-care, rehabilitation and the use of assistive devices.

Join Dr. Gary Birnbaum, director of the MS Treatment and Research Center at the Minneapolis Clinic of Neurology, as he discusses symptom management, current treatment options and ways to manage exacerbations.

Dr. Birnbaum will also provide an update on the latest in MS research.

To register for this free program, call 877-379-8327.

Saturday, Dec. 5, 11 a.m.-2 p.m.

Sheraton Bloomington 7800 Normandale Blvd.

Bloomington, MN 55439 952-835-7800 www.sheratonbloomingtonhotel.com

Sponsored by

Additional resources Living with MS www.MSsociety.org (click on Living with MS).

phone 612-335-7900 or 1-800-582-5296 (v/tdd) • fax 612-335-7997 • www.MSsociety.org

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Personal Financial Counseling Free counseling sessions with financial experts to help you navigate the complex world of money.

Financial planning can be an intimidating subject but there are experts who can provide guidance and support. The Minnesota Chapter, in collaboration with the Financial Education Partners Program (FEP), offers free personal financial counseling to people with MS.

If you are interested in financial counseling, please contact Steve Korngable at 612-335-7974 or skorngable@MSsociety.org.

Participants should not expect an FEP advisor to act as their long-term financial advisor or sell them financial products.

Volunteers from the Twin Cities Chapter of The Society of Financial Service Professionals provide this program. Individual counseling sessions are over the telephone and last less than one hour.

These free professional consultations may help you address a variety of financial topics, including: n

Basic budgeting

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Savings vehicles: pros and cons

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Insurance analysis, claims assistance

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Investment review and planning

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Employee benefits analysis: medical plans, disability coverage and life insurance

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Retirement planning: analysis and tax planning/effectiveness

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Estate planning: strategies to maximize inheritances

Additional resources For information about financial and life planning, visit MSsociety.org (click on Living with MS, then Insurance and Money Matters).

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National Multiple Sclerosis Society, Minnesota Chapter

Care Partner Retreat Grieving lost dreams. Welcoming new ones.

Jan. 9 n Bloomington People who love and support a person with multiple sclerosis face their own set of challenges in dealing with the disease. Being a care partner can be deeply satisfying, but it can also be demanding, challenging and even exhausting.

The disease can upset expectations, disrupt dreams and test relationships.

Learn how to address the challenges of caregiving and connect with other care partners at the Care Partner Retreat, featuring speaker Thomas M. Ellis — licensed marriage and family therapist, executive director of the Center for Grief, Loss and Transition, and author of “This Thing Called Grief: New Understandings of Loss.”

ADDITIONAL RESOURCES Care Partner Relief Grant If you need respite care for your loved one in order to attend, learn about the Care Partner Relief Grant on the back page of this publication.

phone 612-335-7900 or 1-800-582-5296 (v/tdd) • fax 612-335-7997 • www.MSsociety.org

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Care Partner Retreat Space is limited. Registration form must be received by Jan. 4.

Register online at www.MSsociety.org.

Please print ID# (from mailing panel) ________ Name________________________ Address_____________________ City_________________________ State________ ZIP_____________ Home phone _____-_____-_____ Work phone _____-_____-______ E-mail_______________________ _____ # of people attending Complete names of others attending: Name________________________ Address_____________________ City_________________________ State________ ZIP_____________ Name________________________ Address_____________________ City_________________________ State________ ZIP_____________ Special accommodations: If you need any special accommodations, please call 612-335-7970 to make arrangements. Requests must be received by the registration deadline date.

MNM0CCGW20100109

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Saturday, Jan. 9

9-9:30 a.m.

9:30 a.m.

9:45-10 a.m.

10-11:30 a.m.

11:30 a.m.-12:30 p.m.

12:30-1 p.m.

1 p.m.

9:30 a.m.-1 p.m.

Check-in and continental breakfast Welcome Minnesota Chapter care partner programs Grieving lost dreams.

Welcoming new ones.

Networking lunch Leave with hope and laughter Networking

Location Sheraton Bloomington 7800 Normandale Blvd.

Bloomington, MN 55439 952-835-7800 www.sheratonbloomingtonhotel.com

Program fee There is no fee for this program.

Register Online or by phone Visit www.MSsociety.org or call 612-335-7970.

By mail Mail registration form to the National MS Society.

National MS Society, Minnesota Chapter 200 12th Ave. S., Minneapolis, MN 55415

Questions For more information contact Jeff Fisher at 612-335-7951 or jfisher@MSsociety.org.

Connect Locally Connect with people in your community and learn about MS-related research, symptom management and ways to cope with MS.

Sleep issues with multiple sclerosis St. Cloud n Nov. 11, 7 p.m.

CentraCare Health Plaza, Windfeldt Room 1900 CentraCare Circle Drive St. Cloud, MN 56303 (Woodland Entrance, take elevator to the lower level) Are you tossing and turning at night?

Counting sheep? Sleep problems are common for people living with MS. Symptoms of MS can disrupt sleep and interfere with a person’s ability to get a good night’s sleep.

Fortunately, there are effective treatments and interventions for addressing many MS-related sleep problems. Dr. Troy Payne, neurologist and medical director at the St. Cloud Hospital Sleep Center, will present case studies from his practice, followed by a question and answer session.

ADDITIONAL RESOURCES

“Sleep disorders and MS: The Basic Facts”

Contact the chapter for a free copy.

Please R.S.V.P. to Jeff at 800-582-5296 or jfisher@MSsociety.org

phone 612-335-7900 or 1-800-582-5296 (v/tdd) • fax 612-335-7997 • www.MSsociety.org

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Connect Locally Connect with people in your community and learn about MS-related research, symptom management and ways to cope with MS.

MS and depression Oakdale n Dec. 5, 10:30 a.m.

Oakdale Library 1010 Heron Ave. N Oakdale, MN 55128

Research shows clinical depression is more frequent in people with multiple sclerosis than the general population or among people with other chronic, disabling conditions. Fortunately, depression is a treatable condition. Join Denice Wax, BSN RN, MSCN, and the Oakdale MS self-help group to learn how to take control of MS-related depression.

Wax is an MS-certified nurse and program coordinator for the Fairview-University of Minnesota MS Center.

For information and to R.S.V.P., contact Samantha at 651-735-0190.

Illustration by Bill Stanton

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National Multiple Sclerosis Society, Minnesota Chapter

Details about this program are provided for your information. This program is not produced by the National MS Society.

Talk MS Live Join the conversation.

Nov. 4 n Bloomington Talk MS Live is a live, interactive questionand-answer-style program about living with multiple sclerosis. n

Have your questions answered by leading physicians and nurses

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Connect with others living with MS

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Share your perspective

Featuring: Dr. Lisa Davidson MS LifeLines® Nurse Helen Isberg MS LifeLines® Ambassadors Carrie and David S. To register for this free event, call 866-756-0494. For more information about other talk MS programs, visit www.mslifelines.com.

Sponsored by

DETAILS Registration 6 p.m.

Program 6:30 p.m.

Sheraton Bloomington Hotel Minneapolis South 7800 Normandale Blvd.

Minneapolis, MN 55439

phone 612-335-7900 or 1-800-582-5296 (v/tdd) • fax 612-335-7997 • www.MSsociety.org

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Face Time with Your Local Neurologist Get answers straight from the source. Neurologists from local MS clinics host these informal, question-and-answer style sessions about living with MS and research.

MS Treatment and Research Center at the Minneapolis Clinic of Neurology Join Dr. Gary Birnbaum and Jane Iverson, MS-certified nurse Monthly at 6 p.m.

Perpich Center for Arts Education, Glass Box Conference Room 6105 Hwy. 55, Golden Valley, MN 55422, 763-591-4700 Topics: Oct. 14

Genes in MS

Nov. 11 Research Update form ECTRIMS —

A worldwide meeting on MS December Holiday break — no meeting Dr. Gary Birnbaum Please R.S.V.P. at 763-302-8282, ext. 4823.

St. Mary’s Duluth Clinic MS Center Every other Wednesday at 6 p.m.

Radisson Hotel Duluth Harborview 505 W. Superior St., Duluth, MN 55802, 218-727-8981

Dr. Gary Beaver

Topics:

Oct. 14 The neurological exam — what does this mean?

Oct. 28 MS and cognition

Nov. 4 Intimacy and sexual issues

Nov. 18 Stress/fatigue and MS

Dec. 2 Potpourri of MS

Dec. 16 Holiday party — bring James Brown back!

No programs January through March

For more information, contact St. Mary’s Duluth Clinic MS Center at 218-786-8270.

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National Multiple Sclerosis Society, Minnesota Chapter

Face Time with Your Local Neurologist

The Schapiro Center for MS at the Minneapolis Clinic of Neurology Join Dr. Jonathan Calkwood Every Wednesday from 1 to 2:30 p.m.

Regency Hospital, 4101 Golden Valley Road, Golden Valley, MN 55422, 763-588-2750

Dr. Jonathan Calkwood

Topics:

Oct. 21

No program

Oct. 28

Nov. 4

Nov. 11 Visual issues in MS — the role of OCT

Nov.18

Nov. 25 No program (holiday week)

Dec. 2

Emerging therapies in MS treatment

Dec. 9

Group medical appointment (by invitation only)

Bracing and orthotics needs Assistive technology

Dec. 16 The components of a neurological exam

(lunch will be served)

Dec. 23 No program (holiday week)

Dec. 30 No program (holiday week)

Jan. 6

MS Society services

Jan. 13

Political issues impacting individuals with MS

Jan. 20

Treatment for an exacerbation

Jan. 27

Group medical appointment (by invitation only)

For more information, contact the Schapiro Center for MS at 763-302-4199.

phone 612-335-7900 or 1-800-582-5296 (v/tdd) • fax 612-335-7997 • www.MSsociety.org

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Face Time with Your Local Neurologist

University of Minnesota MS Center Join Dr. Gareth Parry and Denice Wax, MS-certified nurse Every other month at 6 p.m.

Kingsley Commons, 4550 Humboldt Ave. N. Minneapolis, MN 55412

Dr. Gareth Parry

Topics:

Nov. 9

Updates in research

Jan. 11

MS basics

For more information, contact the University of Minnesota MS Center at 612-626-2675.

Noran Neurological Clinic Every other month from 1 to 3 p.m. Locations vary.

Topics:

Oct. 6

How does it feel? Managing sensory symptoms.

Dec. 1

Energizing for the holidays

Both programs are offered at the following locations: Minneapolis office 2828 Chicago Ave. S., Suite 330 Minneapolis, MN 55407 Fridley office 500 Osborne Road, Suite 364 Fridley, MN 55432 Call 612-879-1500 to register.

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National Multiple Sclerosis Society, Minnesota Chapter

What’s online?

Online resources for family caregivers.

New “We care” Web page The National Multiple Sclerosis Society, Minnesota Chapter recently launched an expanded Web page for care partners of people with MS. The new-and-improved “We care” page offers information about upcoming programs and special resources just for care partners, personal stories of care partners in the chapter area and care partner news and updates. The Web page also includes a place for people with MS to publicly thank the care partners in their lives.

To explore the “We care” page, visit www.MSsociety.org and click on “Programs,” then “Family, care partner and youth programs.”

National Family Caregivers Association Check out the National Family Caregivers Association Web site at thefamilycaregiver.org to learn tips and advice for caregivers, connect with others who provide care for a loved one, get involved with caregiver advocacy and much more. Plus, see how you can help celebrate National Family Caregivers Month this November.

Additional resources Be sure to check out these Web sites for family caregivers, too. n

www.caregiver.com

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www.wellspouse.org

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www.lotsahelpinghands.com

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www.caringbridge.org

Visit www.thefamilycaregiver.org.

phone 612-335-7900 or 1-800-582-5296 (v/tdd) • fax 612-335-7997 • www.MSsociety.org

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Exercise Studies show exercise not only improves your overall health and well-being, but can also help to manage many MS symptoms. Read about people with MS who are moving forward through exercise and find an exercise program in your community.

Featured group

Coon Rapids Water Exercise Have fun, exercise and meet others with MS by joining the Coon Rapids water exercise program.

Class is held twice a week at the Emma B. Howe YMCA. For more information, call Lisa at 763-717-1837.

What is your exercise group doing to move forward with MS? If you want to be the next featured group, e-mail your stories and photos to Emily at ewilson@MSsociety.org.

WATER EXERCISE Albert Lea

Andover

Coon Rapids

Family YMCA Bill Vilarreal, 507-373-8228 T/W/R, 1-1:45 p.m.

YMCA Delores Smith, 763-230-6546 R, 11 a.m.-noon

Alexandria

Burnsville

Emma B. Howe Northtown YMCA Lisa Whitcomb, 763-717-1837 T/R, 11 a.m.-noon

Lakes Area Recreation held at Arrowwood Resort Pool Kelly Wencl, 320-762-2868 M/W, 4:30-5:30 p.m.

T/R, 9-10 a.m.

Minnesota Valley, YMCA Nanette Denk, 952-435-9022 T/R, 9-9:45 a.m.

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Detroit Lakes Detroit Lakes Community & Cultural Center Kim Bettcher, 218-844-4221 W/F, 8:30 a.m.

National Multiple Sclerosis Society, Minnesota Chapter

Duluth

Perham

Minneapolis

Duluth Clinic, Fitness & Therapy Center Kelly Fugere, 218-786-5400 Low impact M/W, 10-11 a.m., Water exercise F, 10-11 a.m.

Community Center Marie Hanson, 218-346-7222 T/R, 8:30-9:30 a.m., W, 11-11:45 a.m.

Kingsley Commons Jeannie Zank, 612-335-7939 F, 10:30 a.m.

Eden Prairie

Family YMCA Celeste Waltz, 320-253-2664 M/W/F, 9:30-10:30 a.m.

Community Center Beth Witt, 952-949-8447 M/W, 10:30-11:30 a.m.

Golden Valley Courage Center Kaari Hilgert, 763-520-0385 T/R, 1-2 p.m.

Grand Rapids Itasca County Family YMCA Sue Beer, 218-327-1161 M/W/F, 9:30-10:25 a.m.

Inver Grove Heights The Grove Amy Crary, 651-554-3420 Shallow water T/R, 10 a.m.

Deep water M/W, 7:15 p.m.

Call for more options

Mankato Mankato Family YMCA Joy Leafblad, 507-345-9813 W, 5-6 p.m.

Marshall Marshall Area YMCA Cindy Rosa, 507-532-9622 M, 4:30-6 p.m.

New Hope Northwest YMCA Erin Thune, 763-592-5515 T/R, 11 a.m.-noon

St. Cloud

Stillwater Courage St. Croix Joanie Kiminski, 651-439-8283 T/R, 10-11 a.m.

Virginia Mesabi Family YMCA Becky Zubich, 218-749-8020 T/R, 1-2 p.m.

Waconia Safari Island Sara Foley, 952-442-0695 M/W/F, 8:30 a.m.

Woodbury Southeast Area YMCA Lisa Kovac, 651-739-6589 M/F 11:15 a.m.-Noon

Uptown YWCA Lisa First, 612-822-3504 F, Noon

New Hope Northwest YMCA Amy Bakken, 763-592-5570 W, 11:25 a.m.-12:25 p.m.

Stillwater Courage St. Croix Joanie Kiminski, 651-439-8283 W, 10 a.m., R, 6:30-7:30 p.m.

GROUP EXERCISE Shoreview Harbor Suites Megan Frost, 651-766-0080 M/W, 10:30-11:30 a.m.

M= Monday R = Thursday T = Tuesday F = Friday W= Wednesday S = Saturday

YOGA Bemidji Dionne’s OM Yoga Studio Dionne Daly, 218-766-9262 T, 8-9 a.m., S, 9:30-10:30 a.m.

Eden Prairie Eden Prairie Community Center Beth Witt, 952-949-8447 F, 10:30-11:15 a.m.

phone 612-335-7900 or 1-800-582-5296 (v/tdd) • fax 612-335-7997 • www.MSsociety.org

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Featured group

Clubs and Groups

Care Partner Men’s Breakfast

Join an MS club or group to connect with other people

“While we discuss our experiences as men with a partner with MS, the intent of our group is primarily social, affording members some good natured camaraderie and a couple hours of respite from daily caregiving. We talk about whatever is on our minds and

affected by MS, enjoy lively discussions, learn valuable information and ways to cope with challenges, have fun and be inspired. Read about groups and clubs that are moving forward together and find a club or group in your community that’s right for you.

enjoy breakfast together.” ­— Dan Rude, group leader

BOOK CLUBS

Maple Grove

Minneapolis

Apple Valley

Fourth Monday of the month 10 a.m., Barnes & Noble Mary, 763-420-4562

Third Wednesday of the month 7 p.m., Kingsley Commons Pat, 612-521-4654

Mahtomedi

Rochester

Fourth Tuesday of the month 6:30 p.m., Betty’s Pies Donna, 651-762-4084

Fourth Tuesday of the month 7 p.m., Barnes & Noble Apache Mall Larry, 507-281-2447

First Friday of the month 10 a.m., Barnes & Noble Cindy, 952-891-5249

Duluth Fourth Tuesday of the month 11 a.m., Barnes & Noble Betsy, 218-724-9075

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National Multiple Sclerosis Society, Minnesota Chapter

Roseville

For care partners

For men

First Tuesday of the month 10 a.m., Barnes & Noble Har Mar Carol, 763-571-2290

Bemidji Care Partners

Metro Area It’s Just Breakfast (with the guys)

Fitness clubs

Third Saturday of the month 10 a.m., North Country Regional Hospital

Duluth

Men’s Care Partner Breakfast

Third Saturday of the month 3 p.m., Lutheran Church of Christ the King

Third Saturday of the month 10 a.m., Pippin’s Restaurant, Roseville

Minneapolis

Perham Care Partners

Third Saturday of the month 10 a.m., Chapter office

Last Tuesday of the month 1 p.m., Calvary Lutheran Church

Rochester Fourth Saturday of the month 10 a.m., Rochester Athletic Club

SELF-HELP GROUPS New group New Prague Last Wednesday of the month 6:30 p.m., Queen of Peace Hospital

St. Louis Park Care Partners Third Tuesday of the month 6:30 p.m., St. Louis Park City Hall

For couples Stillwater Couples

Various Saturdays of the month 10 a.m., Different restaurant each month Contact Rick for location at 612-791-6473 or rleaf@msnet.org

For newly diagnosed South Metro for Newly Diagnosed Last Wednesday of the month 6:30 p.m., Jo Jo’s Rise & Wine

For people of color Metro MS group for people of color Second Saturday of the month 10 a.m., Wayman AME Church in Minneapolis

Second Saturday of the month Noon, Courage Center

For people mildly affected

by MS

Women Care Partners

For GLBT

Beginning Oct. 17 Third Saturday of the month Dorothy Ann Bakery & Café, Woodbury

St. Paul GLBT: Gay, Lesbian, Bisexual, Transgender Living with Chronic Illnesses and Disability

Southwest Metro MS group for mildly affected

For artists, crafters and writers with MS MS Art Support Group Third Saturday of the month 11 a.m.

D‘Amico’s Cafe, Roseville

First Tuesday of the month 6 p.m., MCIL, St. Paul

Third Saturday of the month 10 a.m., United Methodist Church in Eden Prairie

For professionals Let’s Lunch: professionals living with MS Third Saturday of the month 11 a.m., Chatterbox Pub in St. Paul

phone 612-335-7900 or 1-800-582-5296 (v/tdd) • fax 612-335-7997 • www.MSsociety.org

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For women

Belview

Maplewood Peer Emotional Support Women’s Group

Third Thursday of the month 7:30 p.m., Parkview Home No meetings Nov.–Feb.

Third Thursday of the month 6:30 p.m., Gustavus Adolphus Lutheran Church

General self-help groups Aitkin First Wednesday of the month, 7 p.m., and third Monday of the month, 1 p.m., Hope Drop-In Center

Albert Lea Second Monday of the month 7 p.m., Grace Lutheran Church

Alexandria Second Monday of the month 5 p.m., St. Mary’s Office Building, no meetings Nov.–March Fourth Monday coffee social 10:30 a.m., Daily Grind House of Java

Arrowhead region Second Friday of the month 1 p.m., Babbitt Municipal Building

Austin First Monday of the month 6:30 p.m., Grace Lutheran Church

Second Wednesday of the month 7 p.m., Coon Rapids City Center

Bemidji

Detroit Lakes

Third Saturday of the month 10 a.m., North Country Regional Hospital

Second Monday of the month 6 p.m., Lincoln Park Assisted Living

Bloomington

Duluth

First Thursday of the month 7 p.m., Nativity of Mary Church No meetings January or July

First Tuesday of the month 11:30 a.m. (bring a bag lunch) Bethany Baptist Church

Burnsville/Apple Valley

Eden Prairie

First Tuesday of the month 6:30 p.m., Fairview Education Center in Burnsville (Group also meets for lunch social at Perkins in Apple Valley at noon every third Thursday of the month) R.S.V.P. to Mike at 952-898-2857

Third Tuesday of the month 7 p.m., Wooddale Church

Cambridge Third Thursday of the month 7 p.m., Cambridge Medical Center

Canby Second Thursday every other Month, April-Dec. 4 p.m., Sanford Canby Medical Center

Chaska Third Tuesday of the month 12:30 p.m., Chaska Library

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Coon Rapids North Suburban

Excelsior/Minnetonka Second and fourth Saturdays of the month, 10 a.m., Dunn Bros. in Excelsior

Fergus Falls Second Wednesday of the month 11:30 a.m., United Church of Christ

Forest Lake Area Second Thursday of the month 6:30 p.m., The Meadows for Assisted Living (Group also meets socially at 6:30 p.m. the fourth Thursday of the month) Contact Susan at 651-464-1043

Gaylord First Sunday of the month 7 p.m., Forever Young Senior Center

National Multiple Sclerosis Society, Minnesota Chapter

Grand Rapids

Maple Grove

Rochester

Second Thursday of the month 12:30 p.m., Grand Rapids Public Library

Second Saturday of the month 10 a.m., St. Joseph the Worker Church

Third Wednesday of the month 7 p.m., Meadow Lake Senior Living

Hibbing

Maple Lake/Annandale

Roseville

Last Thursday of the month 1 p.m., Open Door Church

Third Monday of the month Noon, Maple Manor East in Maple Lake

Second Wednesday of the month 6:45 p.m., Guidant John Rose MN Oval

Second Monday of the month 6:45 p.m., Christ the King Lutheran Church

Minneapolis

St. Anthony/New Brighton

Last Saturday of the month 10 a.m., Kingsley Commons

Inver Grove Heights/ West St. Paul

New Ulm

Fourth Tuesday of the month 6 p.m., Christ the King Lutheran Church in New Brighton

Hutchinson

First Monday of the month 7:30 p.m., Good Shepherd Lutheran Church

Third Tuesday of the month 7 p.m., Oak Hills Living Center

Oakdale

Lake Elmo

First Saturday of the month 10:30 a.m., Oakdale Library

Third Wednesday of the month Noon, Christ Lutheran Church

Park Rapids

Litchfield Fourth Tuesday of the month 3 p.m., Meeker County Memorial Hospital

Luverne Third Thursday of the month 7:30 p.m., Rock County Family Services

Mankato Second Thursday of the month 7 p.m., ISJ Physical Medicine, Madison East Center

Third Wednesday of the month 6:30 p.m., St. Joseph’s Area Health Services

Perham Last Tuesday of the month 1 p.m., Calvary Lutheran Church

Staples Second Thursday of the month 4 p.m., Lakewood Care Center

St. Cloud Second Wednesday of the month 7 p.m., St. Cloud Public Library

St. Paul Third Wednesday of the month 6:45 p.m., Fairview MS Achievement Center

St. Paul Care to Share

First Wednesday of the month 1 p.m., Bethel Lutheran Church

Second Wednesday of the month 7 p.m., Macalester Plymouth Church Contact Mary Lynn at 651-644-1429 to verify location

Princeton

Stillwater

Pierz/Little Falls

Third Saturday of the month 10 a.m., Fairview Northland Regional Hospital

Third Wednesday of the month 6 p.m., Courage Center

phone 612-335-7900 or 1-800-582-5296 (v/tdd) • fax 612-335-7997 • www.MSsociety.org

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Superior Second Tuesday of the month 6 p.m., Superior Public Library

Thief River Falls Third Saturday of the month 4 p.m., Riverside Terrace

Waseca Third Tuesday of the month 7 p.m., Waseca Medical Center

Wayzata-Suburban West Hennepin First Thursday of the month 1 p.m., Original Pancake House, Wayzata

Windom/Cottonwood County Third Tuesday of the month 7 p.m., ALC Lutheran Church

Woodbury A.M. Second Thursday of the month 9:30 a.m., King of Kings Lutheran Church

Woodbury P.M. Fourth Tuesday of the month 7 p.m., St. Ambrose of Woodbury

Willmar First Tuesday of the month 7 p.m., Bethesda Pleasant View Nursing Home

Additional resources

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Book clubs

Self-help groups

For more information about book clubs, visit www.MSsociety.org. Click on Client Programs, Clubs and Groups and then Book Clubs. If you would like to start a book club in your area, contact Jeff Fisher at 612-335-7951 or jfisher@MSsociety.org.

For more information about self-help groups, visit www.MSsociety.org. Click on Client Programs, Clubs and Groups and then Self-help Groups. If you would like more information about a group or would like to start one in your area, contact Jeff Fisher at 612-335-7951 or jfisher@MSsociety.org.

National Multiple Sclerosis Society, Minnesota Chapter

Didn’t find what you’re looking for?

Use this all-in-one directory to find the programs, services and resources that are right for you.

Advocacy Kari, 612-335-7968 Camps MS Camp Jeannie, 612-335-7939 Youth Camp Steve, 612-335-7974 Care partner programs Jeff, 612-335-7951 Chore services Kari, 612-335-7968 Clubs and groups Book clubs and self-help groups Jeff, 612-335-7951 Education programs Steve, 612-335-7974 Emergency assistance Heather, Jill or Sarah, 612-335-7900

Equipment programs Equipment Loan Equipment Exchange Scott, 612-335-7967 Exercise programs Jeannie, 612-335-7939 Family programs Steve, 612-335-7974 Giving to the MS Society Shannon, 612-335-7928 Rachel Hughes, 612-335-7965 Housing Steve, 612-335-7974 Independent Living Grants Grants are available for care partner relief, aids for daily living, adaptive equipment and home modification.

Scott, 612-335-7967

Calling from Greater Minnesota?

Call 1-800-582-5296.

Information and Referral Center MS Navigators can connect you to resources.

Heather, Jill and Sarah, 612-335-7900 Inservices for companies Steve, 612-335-7974 Lending Library Heather, 612-335-7947 Jill, 612-335-7938 Mentor Program Connie, 612-335-7964 Professional education Steve, 612-335-7974 Volunteer opportunities Megan (Programs), 612-335-7955 Will (Events), 612-335-7992 Walk MS, Bike MS and motorsport events Cortney, 612-335-7971 Youth and teen programs Steve, 612-335-7974

phone 612-335-7900 or 1-800-582-5296 (v/tdd) • fax 612-335-7997 • www.MSsociety.org

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Need a break?

Caring for someone with multiple sclerosis can be deeply satisfying, but also physically and emotionally exhausting.

Taking time for rest and relaxation and attending to personal or business matters is essential to self-care.

We’re here to help.

The Care Partner Relief Grant helps cover the cost of home care or a temporary stay in a skilled facility so care partners can take a break.

To learn more, contact Scott Ahlgren at 612-335-7900, 800-582-5296 or sahlgren@MSsociety.org.

Judy, diagnosed in 1982

We’re helping to find a cure. We give to causes where we can make a difference. That’s why we have a National MS Society Charitable Gift Annuity. We receive fixed payments for life, tax benefits and we help the MS community.

Join the movement by planning for the future.

WE CARE ABOUT A CURE…THIS IS WHY WE GIVE

To learn more, contact Shannon at 612-335-7928 or swolkerstorfer@MSsociety.org.