August 2010 Open door

Page 1

MS Trust Information Services

Order form For a full list of publications visit www.mstrust.org.uk/publications or order the Publication Leaflet

What we do

DVDs

Enquiries

Move it for MS – a DVD of Exercises for People with MS (£1)

Books Disease modifying drug therapy Kids’ guide to MS - for children aged 6-10 Living with fatigue MS and me - a self-management guide to living with MS MS explained Talking with your kids about MS Young person’s guide to MS - for people aged 10-16

MS factsheets Regularly updated, we now have more than 20 titles available Bladder problems Cladribine Fingolimod Natalizumab (Tysabri) Sativex Spasticity and spasms Stem cells Vitamin D

We deal with a wide range of enquiries about MS from anyone affected by the condition. You could be someone recently diagnosed, someone with questions on specific symptoms or treatments or looking for news of research that has been in the press. We will gather reliable, independent information to help answer your questions, help you decide how to approach issues that concern you and have informed discussions with your health professionals. Our focus is on health information, but you can ask us anything about MS. If we are unable to find an answer ourselves we will try to direct you to other people better able to help.

Chatroom transcripts

Publications

Fatigue transcript

Publication leaflet The full list of titles available from the MS Trust All items are free unless stated, but if you would like to make a donation towards our costs, we would be very grateful

I enclose a cheque payable to the MS Trust

Date

The order form shows a selection of the books, factsheets and DVDs produced by the MS Trust Information Service. To see the full list, order our Publication Leaflet or visit www.mstrust.org.uk/publications Website

If you Gift Aid your donation, we can reclaim the tax! I would like the MS Trust to treat this donation and all donations I have made for the four years prior to this year and all donations I make from the date of this declaration until I notify you otherwise, as Gift Aid donations. Signed

The core of what we do is the personal information service. We believe that people with MS should have the opportunity to be actively involved in the management of their condition.

/

/

You must pay an amount of Income Tax and/or Capital Gains Tax in each tax year (6 April 2010 to 5 April 2011) at least equal to the tax that the MS Trust will claim from HM Revenue and Customs on your Gift Aid donation(s) for that tax year. Please notify us if you change your name or address.

Name

The MS Trust's website contains pages of information about the whole spectrum of MS. You can check through hundreds of entries in the A to Z of MS, search for local services on the Map of MS services, build your own routine in the Exercises for People with MS pages, or look for leisure ideas in the Staying Active section. For all this and much more, visit www.mstrust.org.uk

August 2010

Inside this issue...

Welcome to the summer edition of Open Door

School project

6

Making treatment choices

8

The phrase below 'bizarre and seemingly unconnected events' directed at Mike Laver's experience of being diagnosed with MS, could equally be applied to the contents of this edition of Open Door. Although it’s August, we have articles on skiing, schools, Sativex and Christmas cards. It is that time of the year when we offer free post and packing on our Christmas cards and like all our fundraising activities, they enable us to provide our information services free of charge to anyone affected by MS. It has taken nine years for Sativex to get a licence and it has been proven to help people living with severe forms of spasticity. However, already we are hearing of people refused it on the grounds of cost. Short-term gains can easily lead to long-term costs as people become less able, but short-term savings could become a common theme in this economic climate. We have outlined health priorities for people with MS on page 2 and we may all need to campaign hard to keep the services we have, let alone gain new treatments. The next generation of disease modifying drugs show positive results, but it is the fact they come as pills which has hit the headlines. Ultimately people will have to assess what they value most. The fact they are pills is possibly of least importance to people with MS when ranked against effectiveness and risk. Neurologist David Footit and a person with MS give their views on page 8.

Sativex

10

A wider choice of drugs and treatments is very positive, but having the information to make personal choices is going to be even more important and that’s where our information team come in - call us or email, we’re here to help. Very best wishes and thank you for supporting our work.

Job title (if health professional) Address

Also inside:

Pam Macfarlane Chief Executive

Postcode Telephone number

Health care priorities

2

News

3

“Bizarre and seemingly unconnected events”

Research news

4

Ex RAF helicopter pilot, Mike Laver, has worked with the MS Trust over the last three years helping to set up our successful Monster Ski fundraising events. On page 12 he writes about how his diagnosis with MS has changed his appreciation of what is important in life. More about next year's Monster Ski on page 15.

Voyage of discovery 12

A copy of the MS Trust’s data protection policy is available on request Return to: MS Trust, Spirella Building, Letchworth Garden City, Herts, SG6 4ET

Multiple Sclerosis Trust Spirella Building, Bridge Road, Letchworth Garden City, Hertfordshire SG6 4ET T 01462 476700 F 01462 476710 E info@mstrust.org.uk www.mstrust.org.uk Registered charity no. 1088353

16

www.mstrust.org.uk

www.mstrust.org.uk

Call: 01462 476 700

Supporting the MS Trust

14

Info Service news

16


Turn static files into dynamic content formats.

Create a flipbook
Issuu converts static files into: digital portfolios, online yearbooks, online catalogs, digital photo albums and more. Sign up and create your flipbook.
August 2010 Open door by MS Trust - Issuu