MS drug therapy - the real issues
Order form For a full list of publications visit www.mstrust.org.uk/publications
Books Primary progressive MS exposed NEW Living with fatigue MS explained MS and me - a self-management guide to living with MS MS: what does it mean for me? Tips for living with MS
Exercise Move it for MS – a DVD of exercises for people with MS (£1) Also visit the Exercises for people with MS pages at www.mstrust.org.uk/exercises
MS factsheets Regularly updated, we now have more than 20 titles available including Bladder problems Bowel problems Cognition Pain Cladribine Fingolimod Natalizumab (Tysabri)
■ What drugs are in development and when will they be available in the UK? ■ Will the new drugs simply replace existing treatments? ■ How do the side effects of the new drugs compare with those of existing drugs?
Chatroom transcripts Spasticity and spasms transcript NEW
■ Should I wait until the oral drugs become available?
All items are free unless stated, but if you would like to make a donation towards our costs, we would be very grateful
I enclose a cheque payable to the MS Trust If you Gift Aid your donation, we can reclaim the tax! I would like the MS Trust to treat this donation and all donations I have made for the four years prior to this year and all donations I make from the date of this declaration until I notify you otherwise, as Gift Aid donations.
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■ What disease modifying drugs are currently available and how effective are they?
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You must pay an amount of Income Tax and/or Capital Gains Tax in each tax year (6 April 2010 to 5 April 2011) at least equal to the tax that the MS Trust will claim from HM Revenue and Customs on your Gift Aid donation(s) for that tax year. Please notify us if you change your name or address.
Name Job title (if health professional) Address
Postcode Telephone number A copy of the MS Trust’s data protection policy is available on request Return to: MS Trust, Spirella Building, Letchworth Garden City, Herts, SG6 4ET
With newer, more potent MS drug therapies on the horizon, treatment decisions for both people with MS and their health professionals are about to become much more complex. It is more important than ever that people with MS have the information they need to make informed decisions in partnership with their health professionals. Health professionals need to communicate effectively with people with MS in order to quantify the risks and benefits of the various treatment options. The MS Trust has identified some of the most challenging questions people with MS ask about disease modifying drugs and put them to Professor David Bates. In a new webcast recently launched on the MS Trust website, Professor Bates discusses the evidence for early treatment and what the longterm data shows about their effectiveness. The role of the new oral and intravenous drug treatments is also discussed. The webcast can be found at www.mstrust.org.uk For a limited time, an online Q&A board will allow you to submit any questions that have not been answered during the webcast. Don't hesitate, watch the webcast today
Multiple Sclerosis Trust Spirella Building, Bridge Road, Letchworth Garden City, Hertfordshire SG6 4ET T 01462 476700 F 01462 476710 E info@mstrust.org.uk www.mstrust.org.uk Registered charity no. 1088353
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www.mstrust.org.uk
February 2011
Inside this issue...
Welcome to the first edition of Open Door for 2011
Core stability
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2011 will be another year of change and challenges for all of us living and working with MS. Everyone is looking to save money or cut costs and this will have a profound effect on all of the treatments, services and benefits available. Assessing everyone's personal needs may seem like a good idea to target help, but it's very difficult with an infinitely variable condition like MS. Making sure people understand what it is like to live with MS will be important and there are two events coming up which can help with this.
Running alongside MS 10
Firstly, in the last edition of Open Door I mentioned that our third survey of MS services, in partnership with the Royal College of Physicians, would be taking place this year. If you live in England or Wales and had contact with the NHS (your GP, hospital, therapist etc.) about your MS in 2010 please help us by taking part. The more information we collect the more significant the results and the more pressure we can apply for service improvements. The survey can be found on our website at www.mstrust.org.uk/survey. Secondly, we have new dates for MS Awareness week - 21-27 May - and we have enclosed a poster of some of our plans for that time. We would be really grateful if you could find somewhere to display it in your locality.
Wildlife of a garden
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In this issue we are pleased to introduce our new book Primary progressive MS exposed. All of our printed publications are supplied free of charge thanks to your generous donations and fundraising. We have enclosed an updated list of all our publications, please pass it on if you know anyone else who may find it useful. Thank you very much for all your support and very best wishes for 2011.
Also inside: Pam Macfarlane Chief Executive
2011 - What will the year bring
Primary progressive MS exposed - new book The MS Trust's new book explores both the physical and emotional aspects of a diagnosis of primary progressive MS. It looks at living with this type of MS and the ongoing management of the condition. On page 6 Alan Beevers talks about life with primary progressive MS and on page 7 Alison Smith discusses her role as a rehabilitation nurse.
www.mstrust.org.uk
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Call: 0800 032 38 39
News
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Research news
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Primary progressive MS
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Supporting the
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MS Trust
MS drug therapy the real issues
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