May 2011 Open door

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MS Trust website

Order form For a full list of publications visit www.mstrust.org.uk/publications

Books Sexuality and MS - a guide for women NEW EDITION At work with MS Primary progressive MS exposed NEW Living with fatigue MS explained MS and me - a self-management guide to living with MS MS: what does it mean for me? Tips for living with MS

Exercise Move it for MS – a DVD of exercises for people with MS (£1) Also visit the Exercises for people with MS pages at www.mstrust.org.uk/exercises

Factsheets Regularly updated, we now have more than 20 titles available including Bladder problems Bowel problems Cognition Diet Fingolimod (Gilenya) Natalizumab (Tysabri) Spasticity and spasms Vitamin D

Publication leaflet The full list of titles available from the MS Trust All items are free unless stated, but if you would like to make a donation towards our costs, we would be very grateful

I enclose a cheque payable to the MS Trust If you Gift Aid your donation, we can reclaim the tax! I would like the MS Trust to treat this donation and all donations I have made for the four years prior to this year and all donations I make from the date of this declaration until I notify you otherwise, as Gift Aid donations.

Signed

Date

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Visit the MS Trust website to find more about multiple sclerosis

New look information pages The information section of the website has been redesigned to make it even easier to find what you need to know. ■ What is MS? - everything you need to know about MS when you have just been diagnosed ■ Symptoms and treatments - accessible information on the range of symptoms that MS can cause and the drugs and treatments that are available ■ Looking after yourself - ideas to help you manage the effects of MS yourself with exercise, diet and much more ■ Living with MS - a map of MS services showing what is available in your area and how you can make contact with the services you need. This section also includes sources of support for issues such as employment, finances, equipment and support for families. ■ Order books - the full range of MS Trust books, factsheets and DVDs. All titles can be ordered or read online. ■ Ask us - how to contact the MS Trust's personal information service, which can help you find the right information at the right time. Add the information pages to your bookmarks/ favourites today

Also on the MS Trust website MS drug treatments

Job title (if health professional)

Neurologist David Bates answers some of the most challenging questions people with MS ask about disease modifying drugs and looks at current treatments, potential new drugs and also the challenges of progressive forms of MS.

Address

www.mstrust.org.uk/information/webcast

You must pay an amount of Income Tax and/or Capital Gains Tax in each tax year (6 April 2011 to 5 April 2012) at least equal to the tax that the MS Trust will claim from HM Revenue and Customs on your Gift Aid donation(s) for that tax year. Please notify us if you change your name or address.

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email alerts Postcode

Have you signed up for MS Trust weekly news alerts and MS research updates?

Telephone number A copy of the MS Trust’s data protection policy is available on request Return to: MS Trust, Spirella Building, Letchworth Garden City, Herts, SG6 4ET

To get the week's news delivered straight to your inbox and receive a guide to the most recently published research visit www.mstrust.org.uk/about/keep_in_touch.jsp

Multiple Sclerosis Trust Spirella Building, Bridge Road, Letchworth Garden City, Hertfordshire SG6 4ET T 01462 476700 F 01462 476710 E info@mstrust.org.uk www.mstrust.org.uk Registered charity no. 1088353

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www.mstrust.org.uk

May 2011

Inside this issue...

Welcome to the Spring Edition of Open Door

A new chapter

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Mindfulness

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The MS Trust is a relatively small charity, just 28 staff and one national office, and we focus on two main things: ■ Ensuring that everybody diagnosed with MS has the health information they need to manage life with MS and ■ Working to ensure services for people with MS are of an high standard and uniformly available across the UK We know there is a lot of information out there, how do you tell the good from the bad? The Department of Health devised the Information Standard quality mark as one way of ensuring information is accurate, based on good evidence, up to date and unbiased. Following a rigorous assessment process, the MS Trust was recently awarded the standard and you will soon start to see the logo on our publications and website. Our second objective revolves around the education and support work that we do with MS nurses and therapists and MS nurses are our particular focus at the moment. The MS Trust was founded in 1993 and for the last 18 years our belief has been that MS specialist nurses are vital and many people with MS have reinforced this view to us. There are currently around 240 MS nurses, not enough to support all of the 100,000 people with MS and with all the changes in the NHS at present, the numbers may go down, not up. That is why we run our MS nurse support programme providing resources, education opportunities, and mentoring for MS nurses, particularly those whose posts are under scrutiny. We are determined not to let the progress we have all made be in vain. Together we can ensure MS specialist nurses continue to provide the best care for people with MS. For more information on our support for MS nurses visit our website. Thank you for your support

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Also inside:

Pam Macfarlane Chief Executive

Sexuality and MS: a guide for women - new edition A new edition of our award winning book Sexuality and MS: a guide for women is now available with revised text and updated resources. The book offers positive and practical advice together with experiences and tips for coping with sexual problems from women with MS. Order your copy from the back page.

www.mstrust.org.uk

Sportability

Call: 0800 032 38 39

What does policy mean 2 to people with MS? News

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Research news

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Relapses

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MS awareness week 14 MS Trust website

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