H O L I D AYS • I N F O R M AT I O N • I N S P I R AT I O N
Gifts &
Tips for the Holidays and Beyond!
iPad
for the Holidays
NOW WHAT ?
10 Wonderful Specialty Stores!
“Thousands of candles can be lit from a single candle, and the life of the candle will not be shortened. Happiness never decreases by being shared.� ~Buddha
May the light of the Season continue to guide us throughout the year ~ Parenting Special Needs Team
Photo by simonsimages on Flickr
Thank you to all who have shared with us throughout the year.
inside this issue... e Nov Dec 2013 Features
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Moms Share 11 Real Carmen Noonan Shares her thoughts about her “learning journey”
20 iPad for the Holidays Now What?
the Most Wonderful 26 It’s Time of the Year... or is it?
Gift Guide 35 Holiday For the Holidays and Beyond! or Nice 46 Naughty Resolutions for the Holiday Season & New Year
psn community news
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50
Caregiver Action Network (CAN) 9 The and Allsup are raising awareness
Noteworthy!
Gabby Douglas, Gold Medal Gymnast Helps Inspire Kids of All Abilities
Polaroid announces the second generation of its award-winning tablet
check out!
35 Products You Can Use & Win! real life
( / , ) $ !93 !9 ! 9 3 s ) . & / 2 - !4 ) / . s ) . 3 0 ) 2 !4 ) / .
Cover Image Courtesy Heather DeFranco Snapshot Photography.com
Gifts
Landyn Joseph Martin Carlier
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II0AD I0 D
FOR THE (OLIDAYS
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Wonderful W Specialty Stores!
the Nurse 16 Ask Making the Holidays Enjoyable Rescue 18 Relationship Relative Remarks! The Pro 23 Ask Tips on the Affordable Care Act
Ask the NURSE
Moments Proud of Myself Katherine Stanley 52 Proud NOV/DEC 2013
PARENTING SPECIAL NEEDS.ORG
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inside this issue... your life
24 28 30
Sharing Real Finds Fun Gifts Under $15
Mommy Time Outs Icebergs in Greenland
Nutrition Myths Debunked
special focus
43 42 49
52 in every issue 6 7 8 53
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psn contributors from the heart contest/giveaways psn apps & more NOV/DEC 2013
32 39 40
Tiny Light: Kael
Shares his shining lightah
Special Resources
10
Wonderful Specialty Stores!
10 Online Specialty Stores Special Resources
health & fitness Fitness Fun 42 Fitness Gift Guide School 43 Middle Monsters Means Pumpkin Season 44 Fall GFCF Recipes to Enjoy & Share
fun & functional
48 49 50
ASL Tips Signing the Holidays plus a few Tips
Power of Play Unusual Gifts that cost little and please a lot
“Foodie� fun for kids: Easy Sufganiyot (JellyDoughnuts)
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Editorial Submission are welcome. We reserve the right to edit, reject, or comment editorially on all submitted material. We can not be held responsible for the return of any submitted materials. Articles and advertisements in Parenting Special Needs Magazine do not necessarily reflect the opinion of the publisher nor does the publisher assume responsibility for statements made by our advertisers or editorial contributors. Acceptance of advertising by Parenting Special Needs does not constitute an endorsement of products, services or information.
Sarah Cook
Sami Rahman
Cristen Reat
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Co-Founder Bridging Apps.org
Parenting Special Needs Magazine, is © 2013 Parenting Special Needs, LLC. All rights reserved. Reproduction in whole or part without permission is prohibited.
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editorial director from the heart
Holiday Season... As I sit here to write this all I can think about is: where did the year go? Where did the time go? Where did everything go? We spend so much of our time these days running around and always on the go...go...go. Now, the holidays are upon us. Thanksgiving is right around the corner and then we all go sliding into “home base” with Christmas, Hanukkah and the end of, yet another, year. With all the time we spend on the go, I wanted to make sure each of you know that my intention here at PSN is to provide you with lots of good advice and tips that might make what little time we each have more efficient and productive. This issue’s Holiday theme is full of just that: advice, tips and gift ideas. Not just for the holidays, but also, beyond this time of year as well. In fact, the theme of our gifts selected for the gift guide, was “gifts that go beyond the holidays”. We also included 10 specialty stores that we think you should take a look at. These might just make your holiday shopping easier. I want to take a moment and offer our heartfelt sympathies, prayers, and love to the residents of the Philippines. The recent typhoon is probably the worst in history and the devastation is beyond most comprehension. Having lived in Florida most of my life, I have been through major storms, including Hurricane Andrew. Please keep them in your thoughts and prayers. Until next year..... Happy Holidays
Coming Next Issue Creating Game Plans
Chantai Snellgrove Founder and Editorial Director chantai@parentingspecialneeds.org
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Meet LANDYN JOSEPH MARTIN CARLIER. He is 7 years old and has been diagnosed with Down Syndrome. Like most young boys, he loves to play and watch sports and loves spending time with his big brother, Darrick. In fact, when he grows up, he wants to be a baseball or football player. He also loves to watch Jake and the Neverland Pirates. Cover Image Courtesy: Snapshot Photography www.snapshotphotography.com Heather DeFranco is a studio owner and photographer. She specializes in newborn and children’s photography.
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National Family Caregivers Month in November Caregivers are important to our nation’s veterans.
spread the word
November is National Family Caregivers Month. Now more than ever, service members from the Iraq and Afghanistan wars who are suffering from traumatic brain injury, post-traumatic stress disorder, or other wounds and illnesses require family caregivers. As many as 1 million Americans are caring in their homes for wounded veterans. Take the time this November to show your appreciation and gratitude for the family caregivers who provide emotional and physical support to our military troops injured while serving our country. Visit www.caregiveraction.org and show your respect for caregivers now more than ever.
CAN www.caregiveraction.org
expert.allsup.com
The Caregiver Action Network (CAN) and Allsup are raising awareness of the importance of the estimated 90 million family caregivers in the U.S. during National Family Caregivers Month. This year’s theme is “Family Caregivers—Now More Than Ever”! Posters, including one that specifically recognizes family members caring for veterans of the Iraq and Afghanistan wars, are available for download at: www.allsup.com/media/files/Caregiver-poster-2013-Veterans.pdf and http://www.allsup.com/media/files/ Caregiver-poster-2013.pdf.
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Gabby Douglas lends support to the TOYS“R”US Toy Guide for Differently-AbledKids® Through Her Participation in this Year’s Guide, Gold Medal Gymnast Helps Inspire Kids of All Abilities, Including Special Olympics Young Athletes. The Company Unveils First-Ever App Guide for DifferentlyAbled Kids, Building on Tradition of Providing Toy Recommendations for Customers Shopping for Children with Special Needs In addition to The Guide, Toys“R”Us has partnered with Wynsum Arts, a social enterprise dedicated to making app discovery and mobile technology accessible to children of all abilities, to identify apps that are most appropriate for children who have special needs. Twenty-five apps were selected to create the company’s first-ever Toys“R”Us App Guide for Differently-Abled Kids www. Toysrus.com/DifferentlyAbled
Kids Tablet 2 Polaroid announces the second generation of its highly-popular, award-winning tablet specifically designed for children—the Polaroid Kids Tablet 2. The 7.0” Kids Tablet 2 features a stunning HD display, Dual-Core processor, and the Android 4.2 OS. The tablet still combines all the fun, entertainment, security, and durability kids and parents loved in the original Kids Tablet. The Polaroid Kids Tablet 2 is pre-loaded with over 70 popular books and apps (over $100 value) to keep children occupied for hours. Available exclusively at all Toys “R” Us stores for the Holiday Season.
Pre-loaded with over
70 popular books and apps
Image courtesy Polaroid
NOV/DEC 2013
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parentingspecialneeds.org
Š 2011 Fox Broadcasting Company
Lauren Potter - American Actress As an actress, Lauren has appeared on the hit show, Glee, but she is also an advisor to the White House for People with Intellectual Disabilities and appointed by President Obama. Lauren was born with Down Syndrome.
no limits! Support Different-Ability Awareness
Carmen Noonan
RealM
MS
share Life’s lessons
Shares her thoughts about her “learning journey”
C
armen Noonan is a wife, mother, volunteer, commmunity activist and the “CEO of her household”. She is contributing to this issue’s “Real Moms Share” section. We asked her to give us an insight into herself, as well as into her life raising her son, Patrick, who has autism. We asked her a series of questions; some serious and some “just for fun”. See what she said.... Photos Courtesy Carmen Noonan
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PARENTING SPECIAL NEEDS: Tell us a little bit about yourself and your family. CARMEN NOONAN: Patrick was welcomed to our family on a cold evening on February 3rd, almost 20 years ago in Fairfax, VA. He was born 11 days earlier and was very healthy and weighted 10 1/2 pounds. In addition, he past the Apgard test with flying colors: a perfect 10. He joined his brother, Henry, who is graduating from FIU in December, 2013, with a double major and sister, Sarah, who now lives in VA. His dad, a retired attorney from the State Department, is enjoying the beautiful beaches in Vero Beach, Fl., and is Patrick’s body-driver these days. Back in the early years of marriage, I made the decision, with my husband, that once our first child was born, I will switch careers and become the CEO of my household and devote my knowledge, time, energy and love to my family and the community; 22 years later I still enjoy my role and never regret not having a pay check at the end of the month. My new “career” is possible by having a very supporting husband. I am not talking just about the financial support, it is about a working partnership, the emotional understanding and the freedom that he allows me to experience, so I can attained my goals in life and be a better person, therefore better wife, parent and active member in our society. PSN: Tell us a little bit more about Patrick’s diagnosis and personality. CN: The best way to describe Patrick is someone with a big smiley face and a heart full of love. He is kind, compassionate, always finds the best in people and enjoys making people feel love and feel important. He works hard since learning does not come easy to him. He is a self-learner and a very responsible person. He is wiling to try new activities and has big dreams for his future. His journey with Autism started right after the MMR vaccines; he stopped talking and began hitting his head against the floor, lost eye contact and overall his typical develop milestones stopped or even regressed. For more than two years we visited different doctors in the DC area with no firm diagnosis. At the time he did not meet all the criteria for Autism diagnosis until the word
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Patrick and his father, Henry, on the beach.
“Spectrum” was added by his 5th birthday. The team of therapies started by his second birthday. The list includes: speech,language and occupational therapy followed by music therapy. By the time he was 6 years old, we made a radical change in his diet and switched to a Gluten and Casein free diet and work with a wonderful allergist, Dr. Layton, for his bio-medical treatment. What a difference the new treatment made in our lives. Patrick slept through the night for the first time in 6 years and the recovery process began. By the time he was 10 years old, we learned about RDI. We added to his list of therapies and it helped tremendously with his social interaction. Last year we attended a training on MNRI but have not yet fully implemented this into his therapies. PSN: Share with us something YOU, personally, had to overcome by being a mother to a special needs child? CN: Not sure if this will answer your question... Henry (my husband) and I always wanted to have 5 children. After Patrick’s regression (before his second birthday), we had to postpone our plans of having Photo Courtesy Carmen Noonan
more children and eventually accepted (and are content) to have a “smaller” family of five instead of seven. At times Patrick’s care, and the extra financial expenses, did not allow us to add more family members as we wished.
in my child instead of the whole child and his abilities. It is very sad when you invite typically developed peers to your home but they do not want to relate with your child because of his disability.
I overcame my personal emptiness of completing my family by becoming a very active member in our community. I help other families with special needs and I mentor younger girls through Big Brother, Big Sisters. It is not the same as enjoying your own children,but, it helps a lot.
PSN: What has school/education been like for your child?
PSN: What kind of life do you envision for your child’s future? CN: Patrick is 19 years old now, next year he will graduate with a special education diploma. He already has earned some credits towards a regular diploma so he will take full time online classes and try to earn his high school diploma by age 22. I envision Patrick holding a job, living independently, getting married, and continuing to enjoy his life and music.
CN: It has been a very interesting learning journey, but overall a good one. A lot depends on teacher’s expectations, communication styles and the collaboration of the school administrators. The partnership with the school system depends on the acceptance that we, “the parents”, know our children best, and are the only team members who are present year after year at our children’s IEPs. We as parents must be do our part by learning how the system works, and keep up to date information about the issues that our children are facing. PSN: What is something your child does that you’ve come to appreciate as a gift?
PSN: What has been one of the biggest obstacles/challenges raising your child?
CN: I love to wake up to Patrick’s singing every morning. He has such a beautiful voice, I even like when he sings classic country music (not my choice) but I do appreciate his special gift :)
CN: The biggest challenge/obstacle was accepting that typical people might always see the disability
PSN: Do you have a proud moment you would like to share with us? CN: The one that comes to my mind is how well he tolerated his IVIG treatment. He has to have the infusion once a month for about 6 hours at the time (for the past 8 months), to treat a condition call PANDAS, it stands for pediatric autoimmune neuro-psychiatry Disorder Associated with Streptococci. He cooperates all the time by keeping himself busy watching movies, reading or just listening to music. I would love to share about our experience related to PANDAS in a future issue.
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PSN: What has been one of the biggest obstacles/challenges raising your child? CN: It is a learning process; 19 years ago there was no much information available. I wished I had known more about effects and risks of vaccines, perhaps I would have spaced them over time or avoided many unnecessary vaccines like Hepatitis B,or chicken pox, to name few. To be clear in this controversial issue of vaccines, I am just saying, in our case, vaccines played a major role disrupting Patrick’s neuro typical development, his immune system and cognitive abilities as well as communication. PSN: Are there any special resources you have found that have helped you on your journey? (local or web) CN: I joined a local support group for parents while living in Virginia as well as the Puzzled Families of Indian River County, Fl. It is important to share the joys, as well as the challenges, of raising children with autism with other parents. Since becoming a parent of a child with autism was not a choice, I was not prepared. But, I embraced the challenge and the learning journey began. I read many books on different issues related to autism, I enjoyed attending workshops and national conferences. We built support teams with our private professionals and the school system to make sure everyone was well informed. Recently, I started attending webinars which is a nice way to be up to date with information without leaving your home. The best part of that is that it is FREE. Challenges come in different types or forms. For us, it is autism. We embraced it, and learned a lot, but, my child is much more than the autism he has. He is a wonderful person with so many gifts and blessings. These days, there is so much more accurate information available about autism. Recovery is possible, or at least you can minimize the symptoms, to have a better quality of life. w PSN: Carmen, thank you so much for your book and for sharing with us your experiences and the lessons you have learned raising Patrick.
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Just for
fun about Carmen
What do you do to find time for you? I make sure I schedule a weekly “ME TIME”. Sometimes that means going out with a friend other times it is just taking time alone to do my own stuff. During the early years of our journey, I used to take a trip by myself to attend a national conference. For the past few years, I take a trip by myself once a year for a week or two.
Mommy timeout: Dream vacation? Luckily for us, we live in paradise: Vero Beach, Fl. It is a blessing to enjoy the beautiful beaches. It is a very welcoming town with great people.
Favorite treat? Dark chocolate, what else can I ask for?? :)
Your one makeup essential? Mascara; can’t leave the house without it
Do you drink Coffee or Tea? Sometimes coffee
Are you a dog or cat person? well... a dog, but, not by choice just by marriage
Favorite wacky word or phrase from Patrick? When Patrick was little, probably 2 or 3 years old, he would constantly say something like this “it-see-we”. His brother figured out he was saying “It is mine”?
Recognize the family caregivers you know.
November is National Family Caregivers Month. Now more than ever, the importance and role of family caregivers is growing. There are as many as 90 million family caregivers in the U.S. today who are caring for a loved one with a chronic condition, disability, special needs or the frailties of old age. These dedicated women and men provide $450 billion worth of unpaid care each year. That’s more than total Medicaid funding, and twice as much as homecare and nursing home services combined. This November, remember to thank family caregivers for their strength, courage and commitment in providing long-term patient care. Visit www.caregiveraction.org and show your support now more than ever.
CAN www.caregiveraction.org
expert.allsup.com
real life advice
Making the Holidays Enjoyable
Q
I hate to leave my child out of all the holiday festivities. What can I do to make the holidays enjoyable for everyone?
Ask the NURSE
ANSWER: The holidays can be a stressful time of year for families. No matter which holiday your family celebrates, being organized and following a few tips can help make it a fun time for the entire family. Holiday crowds, lights, noise, strangers, hugging, and a change in routine can be a recipe for stress and sensory overload during the holiday season with special needs children. Parents and caregivers need to be flexible during this time of year. You may need to alter traditions and create new traditions which include your special needs child.
by
Here are a few tips. Set Up a Break Space: Set a place where your child can go when overwhelmed. Ensure everyone knows that this space is off limits to other family and guests. Set limits to exposure so your child does not become over stressed or over exposed to excessive sensory stimulation. Be Prepared: Discuss with your child the schedule of events for special activities. Your child will be more relaxed and calm knowing what is coming up. Let them know what to expect during each event or activity. Let family know what to expect. If your child does not like kisses on the face, explain that to friends and relatives. Stories, books, and movies that are related to the holidays can be a big help in preparing your child for what to expect during the holidays. Set Limits: If you’re planning to be at a party, gathering, shopping or restaurant set a reasonable time limit and stick to it. Don’t Rush: Rushing and relaxing don’t go together. Make sure you leave enough time to enjoy the activity.
A few small steps can ensure your holiday season is a stress free one.
Shopping: Avoid taking your children shopping on the busiest shopping days of the year. The chaos, noise of large crowds, and long lines will definitely add stress to your life. Know and be aware of what triggers your child to have a meltdown. Avoid these as possible. Know how you will react and have a plan if your child does have a meltdown. Be Flexible: Relax your expectations and definitions of what the holidays should be like. Just have fun. If you don’t accomplish everything you expected, it’s okay. Being together creates memories. The holiday season doesn’t have to be a stressful time of year for your special needs child! Taking just a few small steps can ensure your holiday season is a stress free one.w DISCLAIMER: The contents of the Ask the Nurse column (“Column”) such as text, medical information, graphics, images and any and all other material contained in the column (“Content”) are for informational purposes only. The Content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your (or your child’s) physician or other qualified health provider with any questions you may have regarding a medical condition. NEVER DISREGARD PROFESSIONAL MEDICAL ADVICE OR DELAY IN SEEKING CARE BECAUSE OF SOMETHING YOU (OR YOUR CHILD) HAVE READ IN ANY MEDICAL LITERATURE!
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Have a question for “Ask the Nurse”?
Send an email to:
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real life advice
Relative Remarks!
Q
How to keep the peace at family gatherings.
Advice
Over the years, I have had families of special needs children bring up the topic of “ridiculous and insensitive things family members say”. I could add to the lists of those families with many of my own anecdotes and stories, some of which I will share with you in this column as well as some of the stories of clients. I think the most important component to remember is to smile and laugh to yourself. It’s not about you or your child, it’s more about the family member’s own discomfort. One client shared with me something her mother-in-law said to her special needs daughter who has many challenges. Her daughter was feeling very depressed because she is aware of her deficits and yearns to be a typical child. My client was relaying this story about her mother-in-law who tends to be insensitive to her. My client stated, “she was feeding her all of this junk about getting her driver’s license and then becoming a massage therapist”“Can you believe it”? Yes, sadly I can. Or the aunt who says “I don’t understand why you’re so stressed all the time, the kids are so sweet and lovely. What’s your problem”? Or better yet, giving them food and drink at holiday gatherings and not listening to what you want as the parent. I have no problem stating my needs and the needs of my child. At any rate, these family members certainly don’t live our lives or realize the level of coaching and micro-managing that we all do. The best answer at times is not to get into it if your gut tells you that it’s going to be fruitless. There may be opportunities where you can educate them and assist them in understanding. Another story that comes to mind is the countless times there were comments made regarding putting the children into a group home as if it was a death sentence. I was made to feel badly. However, I thank God that I am in the field (and know in my core) that the best place for my children will be in a group home. There is s noone who will be available to care for them. At least I know that they will stand a chance of having a fruitful life and be around other special needs adults when their time comes. Trust your own instincts when it comes to your child or children. No one knows them better than you! w
God Bless, Happy Holidays! Robin Newman LCSW PC
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by Robin Newman, LCSW
It’s not about you or your child, it’s more about the family member’s own discomfort.
Have a question for “Relationship Rescue”.
Send an email to
advice@parentingspecialneeds.org Please make sure to put “Ask Robin” in email subject line.
When kids cook, they get a taste for teamwork.
Start your week off right: Make Monday family night! Š The Monday Campaigns, Inc.
An iPad for the Holidays
NOW WHAT? by Sami Rahman & Cristen Reat
T
his holiday season you have purchased an iPad for your child--now what? We know that looking for appropriate apps can be overwhelming and figuring out how to get started with an iPad can turn a well intentioned gift giver into a Grinch. Here are some tips for getting started, making the most out of the iPad, and celebrating the season with the ones you love.
Our favorite cases for impact protection.
Big Grips Frame ($34.95), Gumdrop case ($58.99) and Big Grips Tweener ($24.95) for the iPad Mini. Recommended cases for carrying from place to place as well as for a dedicated communication device include iBlason ($19.95) and GoNow Sleek case ($59.00). Lifeproof cases ($129.99) are the most expensive of this group, but are waterproof and offer drop protection as well as a carrying strap – great for older kids or those who may drool a lot or get it wet.
In this article we are going to cover three topics to get you started: 1. The Basics on Accessories 2. Making a Plan for using an iPad Second, consider how your child will access the iPad. Is your child able to access the 3. App Suggestions Items to consider before you gift an iPad to your child can be as important as the device itself. You don’t want your investment to be wasted because your child drops the iPad on the first day and needs a holiday miracle to fix it! First, consider where your child will use the iPad. Will your child mostly use it at home or will h/she take it to therapy or school? Do you need a handle or carrying strap or simply lots of cushioning against inevitable drops? Will your child be using it as a dedicated communication device?
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iPad with an open palm or isolated finger? If your child can hold a pencil, perhaps a stylus could be a helpful tool for encouraging fine motor skills. If your child is in a wheelchair, do you need a wheelchair or table mount for the device? Using a stylus may be a great way to encourage the development of fine motor skills. Some of our favorite off the shelf styli for children are the fun triangular AppCrayon by Crayola ($9.99), the chunky Alupen stylus ($15.99) and slender Bamboo stylus ($28.). For those children who may need an adapted or custommade stylus, such as a mouthstick stylus, Ivo Beckers at offers a variety of stylus options at affordable prices. AbleNet makes excellent products for mounting the iPad, including the Tabletop Suction Mount ($105) and the iDevice Friction Knob Mount ($280). Both of these mounting options offer excellent stability and positioning to adapt to your child whether in a wheelchair, hospital bed, or using at a table.
NOV?DEC 2012 NOV/DEC 2013
Product Images Courtesy Big Grips, AbleNet, Crayola, and LifeProof.
Now that the iPad is safe and easily accessible for your child, you need a good plan for using it with your child. Smart App Selection. An iPad is a wonderfully fun device, but it can also be a powerful learning tool. How do you plan to use it? Before you introduce the iPad to your child, speak with therapists, teachers, or other professionals in your child’s life and find out what skills they are currently working on. Check to see if any of them use iPads and have apps that they would recommend to support therapeutic and educational goals. Some examples might be improving articulation, sight word development, increasing attention to task, following a visual schedule, etc. If not, make a list of skills and goals you have and go to BridgingApps.org to search for apps. BridgingApps provides a shortcut for finding apps, especially for people with special needs. All of the reviews are conducted by therapists or special education teachers. Overwhelmed by searching? We have a solution! Check out other parents’ and professionals’ recommended lists posted on the site. Features to look for in an app that we have found beneficial for special needs users are excellent graphics and sound, the ability to customize an app to your child (i.e. import pictures, record sound, type text), ability to adjust the difficulty level, and the ability to share. Sharing could be emailing the picture, converting a document to a pdf or saving results that show progress within an app.
Some BridgingApps favorites are: Bubbles
Starfall ABCs
Cause and Effect Sensory Light Box
Kids Flashcard Maker
Injini Child Development Game Suite
PopOut! The Night Before Christmas
Kid in Story
Christmas Tree
My PlayHome & My PlayHome Stores
123 Coloring: The Hanukkah Coloring Book
Skill Building. Think about how you can use the apps to engage your child and have fun, but also develop skills. If you are working on fine motor skills, try Bubbles (finger isolation), iBaby Buttons (visual discrimination) or Paint Sparkles (handwriting). The key is to start with something simple and appealing that grabs their attention and helps them engage in a meaningful way. One of the most gratifying ways we have seen adults using an iPad with their children is by engaging in “shared enjoyment.” Just as you play with your child using traditional toys, taking turns on a game using the iPad is enjoyable for caregivers and children. Such interactions can help teach vital skills
Bugs and Buttons
NOV/DEC 2013
Toca Hair Salon Christmas Gift
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skills of turntaking, social skills, language development, attention to task, and patience. Super creative apps like Story Land, My PlayHome, Cookie Doodle, Futaba Classroom Games for Kids, and Winter Land are some good examples. Make a holiday card and email it to a loved one using Dr. Seuss Camera – Grinch Edition.
Managing Apps and Stimming. One
way to manage apps on the iPad is to rotate them, just as you might rotate toys so children are offered many opportunities to practice different skills. Once you have purchased an app, you own that app forever. You can delete it temporarily from your iPad by pressing on the icon, waiting for it to wiggle, then hit the “x” to delete. To put it back on the iPad, go into App Store, type in the
N
! W E
Get the Scoop!
name of the app and reinstall it. Many parents complain that their children “stim” on the same app over and over or “get out of apps” that parents or teachers want them to work on. Did you know that you can lock a user into a particular app using an accessibility feature called Guided Access? Watch a short video at http://bridgingapps. org/2012/08/ios6-guided-access/. This feature gives parents and caregivers some control over how the device is used. For complete review of each of the apps listed here, visit Bridging Apps: http://bridgingapps.org/list/?id=46398 If you are interested in searching for more apps, creating your own list of apps and sharing them, please go to BridgingApps.org. BridgingApps, a program of Easter Seals Greater Houston, is a community of parents, therapists, doctors, and teachers who share information about using mobile devices (iPad, iPhone, and Android) with people who have special needs. w Sami Rahman and Cristen Reat are co-founders of BridgingApps.org. Both are parents who found success when using a mobile device with their child with special needs.
Complete, Balanced Nutrition in a New Ice Cream
Introducing Thrive: As much Protein as an Egg As much Calcium as a Glass of Milk As much Fiber as a Bowl of Oatmeal As much Potassium as a Banana
Ice Cream is One of the Most Beloved Foods of All Ages... and Now THRIVE makes this Treat Enjoyble and Easy for Everyone to Get complete Nutrition. www.thriveicecream.com
real life advice
Tips on the Affordable Care Act
Q
Medicaid eligibility has expanded in some states and insurance is now a viable alternative for many families with special needs. How should they evaluate their options?
the Ask PROFESSIONAL PROFESSION AL by Shirley B. Whitenack, Esq.,
Answer:
Special Needs Alliance
Scrutinize Coverage Medicaid obtained through the ACA marketplaces provides only traditional health care services. Those needing residential supports and services, a day program, or community- based aides to assist with daily living tasks, will need to apply for Medicaid benefits through local Medicaid agencies. Insurance policies vary, so read the fine print. Ensure that important specialists, medications, therapies and medical devices are covered. Since some doctors won’t accept Medicaid, private insurance may offer more choices.
Run the Numbers Medicaid obtained through the ACA marketplaces is free but has income restrictions. Some states have expanded eligibility to those with incomes up to 133 percent of the poverty level ($15,282). Compare insurance policy premiums, deductions and co-pays. Deductions and co-pays can prove costly in the event of serious illness. There are subsidies for families with incomes up to four times the federal poverty level ($94,200 for family of four), so parents with employer-provided insurance should compare its cost with insurance exchange offerings. Some families may wish to complement insurance with a Medicaid wraparound. Any time an individual will require means-tested government programs, a special needs trust (SNT) should be established to protect funds needed to ensure a decent standard of living without disqualifying them for benefits.
Medicaid obtained through the ACA marketplaces is free but has income restrictions.
Flexibility Dealing with Medicaid can be frustrating. Families may opt for insurance to preserve their privacy, save time and maintain greater control.
Seek Advice Grants have been awarded to “navigators” who can help families understand the insurance exchanges, but they’re unlikely to be well versed in disability benefits. Families may wish to consult a special needs attorney to understand the implications for a child’s long-range care plan. w NOV/DEC 2013
Have a question for “Ask the Professional”?
Send an email to:
advice@parentingspecialneeds.org Please make sure to put “Ask the Pro” in email subject line. Parenting SPecial needS.org
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your life fun gifts!
Sharing
realfinds
Laugh ‘til the Mascara Runs 2014 Desk Year Ninjabread Men Calendar ‘round FUN!
Cookie Cutter Set
Action baked! FUN!
Cut out for action and made to see action, these stealthy warriors are set to sneak into your kitchen and stage a cookie coup! Cut, bake, decorate with brute force...and then watch them disappear! These are sold as a set of 3. Ninjabread Men are molded from rugged, food-safe ABS plastic and packaged in a colorful giftbox. $12.00 www.givesimple.com
Give the gift of laughter that lasts the entire year. Here is a selection of the funniest cartoons that Shoebox has created. Shoebox is the nation’s number one brand of humor cards. These cartoons range in topics from the battle of the sexes, to social and daily situations all women can relate to. Sometimes you just have to laugh!! $13.49 www.barnesandnoble.com
The Wine Sippy Cup Ever wish you could take your wine with you without worrying about spilling it on your outfit? This might just be the answer to your wishing… The Wine Sippy Cup has a familiar wine glass shape in a spill resistant double wall tumbler, so you can sip your wine in style. Perfect for the beach, park, tailgating, or other fast-paced adventures (like chasing a toddler around at a, ahem, “playdate”). You can match the Wine Sippy Cup with the Beer Sippy Cup. These are BPA free, made of SAN acrylic plastic and designed in the USA. $12.95 www.givesimple.com
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It’s the most
WONDERFUL
time of the year... or is it? by Donna Wexler
M
any say that “It’s the most wonderful time of the year”, however, with this ‘wonderful time’ comes irregular schedules, large family gatherings, travel, unfamiliar food, interrupted sleep patterns and other unexpected events.
26 ParentingSPecial SPecialneedS.org needS.org 26 Parenting
NOV?DEC 2012 NOV/DEC 2013
TIPS FOR MAINTAINING SANITY (1) THROUGHOUT THE HOLIDAY SEASON through it all, Mom and dad are expected to keep their sanity by remaining calm and happy. though i am hardly an expert in this area, it has always struck me as somewhat ironic that we all look forward to the holiday season, as it can be extremely challenging, especially for those of us with special needs persons in our family. are you up for having a great holiday season? note that i did not say a ‘stress-free holiday season’! it is true that many changes at once do cause stress, and if handled with forethought, these challenges can be dealt with thoughtfully, and they can result in positive outcomes! in addition, you will be teaching your children how to be flexible problem solvers.
Here are a few suggestions that we all, somewhere in our consciousness, know. This is just a reminder:
1.EXpectations -Be sure your children
(special needs and typical) know what is expected. -Have a calendar (visual) which has events listed. Start now. -talk about your plans at least one day in advance. -Begin talking about which relatives will be visiting (e.g., grandma). Help children think about what grandma might like to eat, play, or talk about. For example: if your child talks about video games, think about whether or not grandma would want to talk about that.
2. Plan ahead – and then expect the
unexpected. For example: the plan is to go see Santa on thursday. the family has been looking forward to this event for weeks. You wake up and one of the children has a high fever. What are some ways you can solve this problem. enroll the children by coming up with solutions and then help them to choose the best one.
3. Communicate with Family -let the
extended family members know what your child might need to do to be comfortable. this might mean staying at a family dinner for a shorter length of time, leaving the group to seek a quiet place, eating specially prepared foods or shifting a recipe to include him/her.
4. Stay Home - embrace the idea that
staying home and enjoying free time together is a good thing to do. Sometimes we feel that we must be running somewhere every day. Being home after a busy week can be nourishing to the soul. Schedule some ‘home time’ into your plan.
5. Incorporate movement -into each day. let one of your children choose, and lead, a family exercise each day. this can be as complex as having a family yoga class or as simple as doing 10 jumping jacks together. any type of ‘working together’ builds happy memories and feelings of being‘part of a group’.
the reality is that the holidays are coming. You can’t stop that! Your gift to your family is to choose to create the peaceful times together that will stay in your memories for many years to come! let this holiday be the one! Happy Holidays!
P.S. Making a picture
book after the holidays is a good way to create lasting memories and promote speech/ language development.w
Christmas photo book by Shutterfly.com
Donna Wexler is a speech pathologist specializing in children with high functioning AS disorders. She is blessed with a physically and mentally challenged son and a husband who is blind. She will be traveling to her family in New York this season. Please send her positive thoughts of peace and tranquility. She can be reached at wexlerdonnab@bellsouth.net
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Mommy’s Timeout : Take a time out and use V isualization Meditation to relax. Picture yourself here amongst the Arctic Icebergs. Experience the silence Take a couple of deep breaths and begin to let go of any stress. Arctic Icebergs in the clean arctic sea. On this image you can easily see that 1/10th of the iceberg is above the water surface and 9/10th is below the water surface. It is hard to believe that 90% of an iceberg is under water. West Greenland, 70 Degrees North. Photos courtesy of Š Mlenny
breathing space your life
Nutrition Myths
DEBUNKED by Christina Bartlett, RD, LD
? All brown grain products are whole grain.
?
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Parenting SPecial needS.org
sugar
Consuming extra protein is necessary to get lean and build extra muscle mass.
?
• False. Brown dyes and additives can give foods the deceiving appearance of whole grain. Read labels to be sure a food is whole grain. Choose whole grains that contain fiber, because not all whole grain products contain fiber. Aim for 3 or more grams of fiber per serving. Remember, only half of your grains need to be whole grain (3 ounces or more a day). Increasing your whole grain intake may reduce the risk of heart disease, diabetes, and stroke.
fat
• False. Don’t believe the supplement companies! Consuming extra protein does nothing to bulk up muscle unless you are also doing SIGNIFICANT weight training at the same time. Even then the increased requirement can EASILY come from food. I can’t tell you how many times I hear in the gym: “You need to consume 1 gram of protein for every pound you weigh.” Completely untrue! A potential problem with supplements is the body has to work overtime to get rid of excess protein, and can become distressed as a result. Plus, if you consume too much protein, which is equivalent to too many calories, you’ll gain weight. Just eat REAL food and ditch the protein supplements. Don’t you want to learn how to eat right from all food groups instead of relying on powders and drinks?
NOV/DEC 2013
?
s b r ca ?
?
Low-fat or fat-free means no calories. • False. A low-fat or fat-free food is often lower in fat than the same size portion of the full-fat product. Many processed low-fat or fat-free foods have just as many calories as the full-fat versions of the same foods—or even MORE calories. These products may contain added sugar, flour, or starch thickeners to improve flavor and texture after fat is removed. These ingredients add calories. Just because it states “free”, doesn’t mean you can eat the whole package. READ THE LABELS!
?
Eating after 8 p.m. causes weight gain. • False. It does not matter what time of day you eat. It is WHAT and HOW MUCH you eat and how much physical activity you do during the whole day that determines whether you gain, lose, or maintain your weight. No matter when you eat, your body will store extra calories as fat. Evenly distribute your calories throughout the day.
Nutrition your life This means your late night meal won’t break the bank. If you want to have a snack before bedtime, think about how many calories you have eaten that day. Try to avoid mindless eating in front of the TV.
increasing ACTIVITY will lead to successful weight loss.
Olive oil is the best oil. I don’t have to worry about how much I use when cooking
• False. A teaspoon of fat is 45 calories and 5 grams of fat! This includes all Skipping meals will help with cooking oils. Why? Because they are weight loss. fats, too. • False. Many people think that by It is recommended to use more skipping a meal, they will be eating liquid fats vs. solid fats, because solid less food and therefore lose weight. fats contain saturated fat. Saturated If you skip a meal, your body will fats (animal products) affect blood think that you are in starvation cholesterol levels. mode and therefore S-L-O-W down The only plant oils that act like a the metabolism to compensate. saturated fat are palm oil, palm You then tend to overeat at the next kernel oil and coconut oil. meal. Skipping a meal, then eating Choose lean sources of protein too much at the next one, means and dairy products to reduce the that you have a higher total caloric amount of saturated fat in the diet. intake than if you just ate more All fats have calories, so if you don’t frequently throughout the day. A monitor the amounts you use when better approach is to eat smaller, preparing a dish you can easily add frequent, healthy meals and snacks. >100 calories to a “healthy” meal. If you can’t eat smaller meals/ snacks throughout the day, make Brown sugar is better than sure to have a minimum of three white sugar. meals a day. Aim to have your meals • False. Brown sugar is actually no more than five hours apart. If white granulated sugar with added you happen to go longer between molasses. It contains a small amount meals, add a healthy snack that is < of minerals, but not enough to 200 calories. Make sure that “snack” make a difference in your health, will satisfy you until your next meal. unless you eat a huge portion of brown sugar every day. Of course, Certain foods, like grapefruit, this is not recommended because celery, or cabbage soup, can your calorie consumption is now burn fat and make you lose increased. Sugar is sugar!
?
weight.
• False. Foods do not burn fat. Some foods with caffeine may speed up your metabolism, but it is not recommended to increase caffeine to aid in weight loss. If most of your beverages contain caffeine, make sure to increase the no/low/non-caffeinated fluids you consume to aid in adequate hydration. Cutting back on CALORIES and
?
Using sea salt, garlic salt, celery salt, adobo, lemon pepper, ketchup and soy sauce also contribute to salt consumption. The average American consumes 3,400 mg of sodium a day. It is recommended to consume < 1500 mg a day of you have high blood pressure, diabetes or chronic kidney disease. Otherwise, aim to consume < 2300 mg a day. One teaspoon of salt is 2,325!
Eliminating all sugar and carbohydrates is the best way to lose weight.
• False. Eliminating carbohydrates is not the answer. These foods provide your body and brain with fuel. You need a minimum of 130 grams of carbohydrate for adequate brain function. You need more than that for exercising and performing daily living activities. It is recommended to limit the amount of added sugars and calories in your eating plan. Limiting extra calories consumed from juice, soda, fruit punch, sports drinks, coffee drinks, alcohol, sweet tea, baked goods, ice cream and candy will aid in a calorie deficit. An excessive amount of calories consumed, from any food, will lead to weight gain. Modifying your lifestyle is the answer to weight loss, not fad dieting.
I don’t use table salt, so I don’t have to worry about salt in my diet.
• False. Main sources of sodium are processed foods and prepared foods. These foods are high in salt and additives that contain salt. Some examples include bread, frozen meals, casseroles, pizza, cold cuts, cured meats, cheese, canned products and restaurant foods.
Christina Bartlett RD, LD is a Registered Dietitian and the owner of Everything In Moderation. Dedicated to providing nutrition information that is tailored to the individual. Visit: www.eimnutrition.com
NOV/DEC 2013
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T
Kael
Tiny Light
Cockayne Syndrome Type 1 Story written by Kelsey Walker Images Captured by Cormack Photography www.cormackphotography.com
w w w. t h e t i n y l i g h t . c o m
T
his little Tiny Light loves riding on his 24V John Deere tractor with trailer and riding in his Dad’s truck towing the cargo trailer or “fifth wheel.” Kael loves spending time with his grandparents and really likes being in the water—from playing in the bathtub to swimming in the lake. Also, his family says he gives the best snuggles. Kael was born on time with no complications. Everything seemed normal until he was about six months old and his weight and head circumference started to fall off the charts. Testing from the age of six months to six years turned up nothing. Kael’s family had no answers as to what was causing his condition. It was after his third MRI that his parents, Kristine and Cam, received a phone call from the neurologist informing them that Kael’s white brain matter had gotten brighter, which indicated the possibility of a brain disease. After further testing, Kael was diagnosed with type 1 Cockayne syndrome, a genetic disorder characterized by poor growth, premature aging, sensitivity to sunlight, moderate to severe developmental and neurological delays and a shortened lifespan. We’re not sure what the future holds for this little Tiny Light. All his family hopes is that Kael can enjoy the people and places he will encounter in life and to “just be a happy boy.”
specialfocus Family...
Like branches on a tree our lives may grow in different directions but our roots will stay as one!!
~Unknown
Shining a light on Tiny Light Kael Holiday Gift Guide Special Resources 10 Wonderful Specialty Stores
NOV/SEPT 2013
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$FREE Enjoy Any Issue, Any Time! Our Gift To you
Parenting Special Needs Magazine is a FREE, online publication. Empowering parents, caregivers, and everyone by providing resources, information and inspiration.
Subscribe FREE Today at www.PaRENtiNg SPEcial NEEdS.oRg
Here are a few toys that provide the initial WOW factor, but also, pack a punch of staying-power with unique ways to use and enjoy them. Try some of these and let your creativity out to think up other ways to play!
POP-ArTy by b.TOyS
is a play product that promotes coordination and creativity at the same time. Young artisans can create a necklace one day and change the beads into a bracelet using new colors and combinations the next. Imaginative kids can use beads to decorate their dresser or as a prop for pretend play. These pop together beads can morph into everything from tight ropes to magical snakes. Parents will like the fact that these beads teach sorting and matching skills which are needed for math readiness along with counting, grouping and patterning. Price $24.99
Win it!
visit www.ableplay.org
PAcIfIc PlAy TEnT ME-TOO PlAyTEnT is a nylon pop-up indoor play
tent that can take kids on countless adventures. Add a dash of imagination and this secure little structure travels to the middle of the wilderness or transforms into a rocket ship or animal cage with equal ease. Perfect little paradise for kids to escape to for quiet time, reading or just relaxation while slightly shielded from the outer world. Price $39.99
Win it!
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Win it! PAIrS In PEArS
is a cousin product of Bananagrams as well as a great game for cousin get-togethers over the holidays. Played traditionally, it’s fun and engaging. Concoct some makebelieve “alphabet soup” by adding them to a pot and stirring with a wooden spoon. Or make up your own games by putting two letters together and then creating new words by adding a different first letter like “pot,” “lot,” and “jot.” This is a great way for little ears to learn rhythm and rhymes as well. These textured letters can even be used to imprint play dough, spell a name or craft a message! Price $14.95
BOOKS
Win it!
Available at www. fun and function.com
by Becca Eisenberg
lET’S gO fIngEr fIShIng
go Fish! learn how to button, zipper and snap with the let’s go “Finger” Fishing manipulative. Set of 3 fish are designed with different closures: zipping, buttoning and snapping to develop fine motor skills and cognitive training. Use the vinyl hook and mesh bag for carrying your catch. let’s go Finger Fishing is perfect to take on a trip, use in your classroom, clinic or at home. They are ideal for children with sensory processing and fine motor challenges as well. Made of soft and colorful fabric, each adorable fish has furry and fuzzy textures for tactile fun. Hand wash. line dry. Ages 4+ Price $25.99
kInETIc SAnd
Playing with Kinetic Sand is a magical and mesmerizing experience, giving a moment of relaxation for both young and old. Sand play stimulates and develops children’s fine motor and creative playing skills. Kinetic Sand is the perfect material for open-ended, non-directed play. It looks like real sand, because it is 98% pure sand. It moves like dense fluid without making a mess. That’s the 2% of non-toxic polymer. It sticks to itself, so cleanup is a breeze. Price $42.95
hAvE yOu fIllEd A buckET TOdAy?
by Carol McCloud This book discusses how everyone carries an invisible bucket. Buckets are filled with good thoughts and feelings. When you make someone feel good, you fill their bucket and your bucket. When you make someone else feel bad, you are dipping into their bucket as well as your own. Bullies are bucket dippers. Full Review
ThAT IS nOT A gOOd IdEA
by Mo Willems The book begins with a hungry fox that invites a plump goose to dinner. Throughout the story, the reader thinks the goose is in trouble, but in the end, it’s the fox that winds up in hot water. This book is ideal for ages preschool to 3rd grade. I love this book because of the clear illustrations, funny storyline and unexpected ending. Full Review
lITTlE SWEET POTATO
by Noah Z Jones Has your child ever felt left out? like they don’t belong. In little Sweet Potato, I love how the author explains a complex situation in such a simple manner that young children understand. This book teaches accepting others as individuals and not judging others and is an all around excellent book to have in your library. Full Review
getting back to Toy Story, Woody’s main threat and best friend, Buzz lightyear, was known to declare with a loud voice and passion, “To infinity and beyond!” I suggest parents demand with equal enthusiasm that their toy choices this holiday season take their child on thrilling adventures, “To the holidays … and beyond”! For more information on these products, go to www.ableplay.org. AblePlay is a website sponsored by the nonprofit national lekotek Center, an authority on products appropriate for children with special needs at www.lekotek.org. Find us on Facebook!
psnresourcecenter
Easter seals Michigan 2nd annual CHEERS TO THE HOLIDAY Friday, December 6, 2013 from 7:00 pm - 10:00 pm.
EasTEr sEals MichiGan
naTiOnal lEkOTEk cEnTEr
Since 1920 Easter Seals Michigan has been providing innovative and effective care to people with disabilities or special needs and their families. These services aide children, adults and families through counseling and therapy to ensure they live the lives they have always dreamed of. Being a non-profit community service provider, the main goal of Easter Seals Michigan is to meet the needs of the community. These needs include programs for autism, behavioral disabilities, speech delays, motor skill delays, substance abuse, military and veteran services, depression, Post-Traumatic Stress Disorder, independent living for older adults, and many more. Since these needs change, so do the programs offered by Easter Seals Michigan.
2001 N. Clybourn First Floor Chicago,, IL 60614 lekotek@lekotek.org TEL:773-528-5766 www.lekotek.org
2399 E. Walton Blvd., Auburn Hills, MI 48371 info@essmichigan.org www. mi.easterseals.com
411 Ocean Avenue Melbourne Beach, FL 32951 info@themorganproject.org www.themorganproject.org
The National Lekotek Center is a non-profit whose mission is to make the world of play accessible to ALL children, especially those who have disabilities or special needs. They have 16 centers across the US and provide an array of services to improve the lives of children with special needs through the utilization of toys and play. Lekotek shares, educates and advocates for children who have special needs/disabilities.
ThE MOrGan PrOjEcT
NOV/DEC 2013
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psn
center specialty stores
Special resources 10 online specialty stores for children with special needs Holiday Shopping just got easier… Fun and Function
ability Station
diFFerent roadS to learning Different Roads to Learning is founded to help teachers and parents give every young student on the autism spectrum the materials and tools they need to reach their highest academic and social potential. They have carefully researched and selected more than 600 of the most effective Applied Behavior Analysis (ABA) tools for educating and empowering students with autism, from assessments such as the ABLLS-R and VB-MAPP, to visual Time Timers and MotivAiders. Their products make a tangible difference in the lives of individuals with ASD! 480 37 East 18th Street, 10th Floor New York, NY 10003 TEL: 212-604-9637 info@difflearn.com www.difflearn.com
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Ability Station provides special toys for special needs. All toys are therapist approved for a child’s growth, development and fun. Created for the purpose of providing special, hand-picked tools and development aids for kids with special needs. www:abilitystation.com
Playability toyS PlayAbility Toys creates award winning products that engage children and adults with special needs. The toys have unique features that are designed based on input from teachers, therapists, and family members of children and adults with special needs. They promote fun first, but, are loaded with features that support therapeutic, educational, and motivational goals. www.playabilitytoys.com
Awesome products for awesome kids is the company’s motto. Their focus is to create fun, engaging, creative and cool products for the best group of people on the planet. Their toys, clothing and therapy tools are lovingly designed to build each child’s skills and self-esteem. Affordable pricing, high quality, and kidfriendly designs are the key to thier success. The company is passionate about designing products that help kids feel good and achieve their best. There are therapists on staff who can answer questions about any of their products, and which products would be most helpful for you and your child(ren). POB 11, Merion Station, PA 19066 TEL: 800.231.6329 Sales@FunandFunction.com www.funandfunction.com
SPecial advertiSing Section
eSPecial needS
next issue’s
special
eSpecial Needs offers a variety of appealing active play toys for children with special needs, including autism. Whether the toy offers an enjoyable sensory experience, teaches balance and coordination, enhances gross motor development or simply entertains your child, these special needs and autism toys are specifically made to accommodate special children. www.especialneeds.com
Kado Kid Kado Kid prides itself in locating the most innovative educational products available. These products are designed to educate, enhance creativity, develop strong communication skills, strengthen fine and gross motor skills, elevate social skills and help kids develop to be the best they can be. All the products that are offered on this site are by manufacturers that have years of high quality inspirational products. The products exceed safety standards in the US and Europe. PO Box 544, Auburn, GA 30011 TEL: 800-796-2310 E-mail: CS@KadoKid.com www.KadoKid.com
toyS ’r’ uS Take advantage of the shop-byskill option online at Toysrus.com/ DifferentlyAbled. Through this dedicated microsite, shoppers can narrow the selection of the toys by refining their search by a specific skill. Shoppers can view the digital, flip-able version of the Guide in both English and Spanish. www:toysrus.com
resources
laKeShore learning Lakeshore Learning creates innovative educational materials that spark young imaginations, instill a sense of wonder and foster a lifelong love of learning. They help children reach developmental milestones and achieve educational goals—while still having fun! All of the products carried must meet stringent quality and safety standards www.lakeshorelearning.com
Fat brain toyS For over 10 years, Fat Brain Toys has been carefully choosing the best toys from around the world, in addition to aquiring the single largest selection of Americanmade toys found anywhere. They provide toll-free support by award-winning toy EXPERTS before AND after the sale. www.FatBrainToys.com/
Special Needs Planning: Financial, Trusts & Guardianship Special Advertising opportunities available. contact us
sales@parentingspecialneeds.org
SPecial needS toyS The company presents their range of Special Needs Toys, from mobile Multi-Sensory to Swings, Trampolines and other Sensory Integration kits, Switches, Rewards and small Sensory toys. www. specialneedstoys.com
NOV/DEC 2013
Join our Resource Center Please contact us for details
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health & fitness fun fitness
Fitness Gift Guide by Eric Chessen, M.S., YCS
Q
uite possibly I have a bias by filling this article with items that I commonly use in programming. But, as I assure and quite a few of my athletes can attest (verbal or otherwise), fitness can be fun. There are multiple reasons why I’ve chosen each of the four items:
• Universality. Each can be used for many different exercises and activities with individuals or groups
• Scalability. Each can be used with
individuals regardless of their current physical abilities, whether very low, very high, or somewhere in-between
• Durability/Quality. Introduce an item to a room full of 14 year-olds and your durability questions will be answered.
• Athlete-approval. These are the
items to which my athletes typically gravitate, whether it is to explore on their own or engage in some type of partner activity
Fitness Ropes (Onnit.com) A giant long rope that you can shake up and down, or jump with? Seems to work every time. Since they tend to be about 20’ in length (once folded in half to make the two ends) you do need some space for these (either indoors or outdoors), but it is entirely worth occasionally moving a table out of the way. In addition to being outstanding for lower body stabilization, the rhythmic swinging of the ropes has a built-in timing and coordination component.
Hyperwear Sandbells w (Hyperwear.com)
After years and years of using these soft, weighted discs, I’ve noticed that many of my athletes, when they first (and in some cases still by the five hundredth time), discover the object’s unique property of being both soft and heavy, will place it on their head. This provides some sort of glorious sensory input that, provided it be done safely, I approve. Sandbells can be pressed, thrown, carried, slammed, and used in fitness “obstacle” courses.
Dynamax Medicine Balls (Medicineballs.com) The medicine ball does not get the respect it deserves. We squat to it. We squat while holding it. We squat to it while holding it. We throw it throw it throw it throw it in the process developing power, reaction time, stability, and, in my experience, new social skills and friends with whom to practice. These medicine balls are a cornerstone in my programming because of their outstanding construction and two sizes, one better for my teen-and-up athletes and one smaller in diameter for my younger ones.
Spending Some Time Exploring Fitness as a Family The first step towards change is the most difficult. Parents and professionals who have not been regularly engaging in fitness and/or active play with children/ students on the spectrum may consider the entire process way too overwhelming. The process has to begin somewhere if any change is to occur. It does not have to be major, and shouldn’t be. Cultivating physical fitness and a healthy lifestyle is something that takes months and years and, eventually, a lifetime of dedication. Relax. Breath. Put a Sandbell on your head. And go forth. w Eric Chessen, M.S., YCS Eric Chessen, M.S. is the creator of the PAC Profile Assessment Toolbox (www.PACProfile.com), PAC Profile Workshop series, and consults with special needs programs around the world. Available on www.Autismfitness.com
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super health health & fitness
The Middle School
MONSTER by Douglas Haddad, Ph.D.
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hroughout a child’s middle school years, which usually includes sixth, seventh and eighth grade, the experiences are like something out of a novel. There are protagonists and antagonists who they meet along the way as they make new discoveries about themselves and the other sex, develop new friendships, engage in conflict with their peers and family members, experience growing pains and raging hormones, break away from their parents and start to gain independence. Looking back, some people enjoyed their childhood years, while others soon dismissed them as a distant memory. Perhaps your child has recently entered middle school and you are worried if he/she has made a smooth transition these past few months. What are the biggest fears that children have when they arrive at the middle school? According to a survey that I did, in my five middle school classes on the first day of school from over 110 students, the top five concerns mentioned were: v Not being able to open up their locker, v Being late for class, v Not being able to meet academic demands, v Not making friends, v Being outcast and not accepted.
Take a Trip to Visit the School Some kids anxiously worry all summer long about going back to school. Depending on their personality,
children react differently to transition. Some kids require more time to adjust to different settings than others and would benefit from taking a trip to the school before the start of the new school year and walk the halls, practice their locker combinations and see their classrooms firsthand.
“Knowing what’s right doesn’t mean much unless you do what’s right.” - Theodore Roosevelt (former President of the
Positives at a Middle School The middle school model encourages a team-based approach where students are placed on “teams” and are assigned to a core group of teachers in which an interdisciplinary approach is taken. Teachers are better able to keep track of the academic and behavioral status of a large group of kids in this manner. After the first week of middle school, I re-polled my students and asked them to make a list of the things they liked about middle school. They indicated: v Able to move from class-to-class, v More independence,
v Getting out of school earlier, v Teachers are nicer, v The library is cool.
Negatives at a Middle School Let’s face it: middle school is a socially awkward time for many kids. Troubled children causing conflict in the school is the reason why some kids experience “school phobia”. The poll that I gave to my students at the end of the first week of school included things they disliked about middle school as well which included: v Being verbally abused or physically hurt, v Getting a locker door slammed on their hand, v Getting “booked” in the hallway by another student, v Getting pushed in the hall by other middle school kids, v Being laughed at or made fun of for how they looked or what they wore to school. For more information on empowering your child and assisting in their maturation, decision-making, overall development and becoming super healthy: Check out Dr. Doug’s official website: www.douglashaddad.comw Douglas Haddad, Ph.D. (“Dr. Doug”) is a public school teacher, nutritionist and the author of parenting/child guidance book Save Your Kids… Now! The Revolutionary Guide To Helping Youth Conquer Today’s Challenges and co-author of Top Ten Tips For Tip Top Shape: Super Health Programs For All Professional Fields..
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health & fitness special diet
GFCF Recipes to Enjoy this Cozy Autumn Season by Barrie Silberberg
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he summer heat is over, the fireplaces are aglow, the leaves have changed colors and are falling, and family-filled holidays are nearing. Stores are filled with many pumpkin items, including canned and fresh pumpkin so that chefs and bakers can make and enjoy some amazing, aromatic and tasty cuisine. Pumpkin is a wonderful and very healthy food that is loaded with many beneficial nutrients. According to Nutrition–and-You.com, Pumpkin fruit is one of the widely grown vegetables that is incredibly rich in vital antioxidants, and vitamins. It is also an excellent source of many natural poly-phenolic flavonoid compounds such as a, ß carotenes, cryptoxanthin, lutein and zea-xanthin. Pumpkin is a storehouse of many antioxidant vitamins such as vitamin-A, vitamin-C and vitamin-E. Zea-xanthin is a natural anti-oxidant which has UV (ultra-violet) ray filtering actions in the macula lutea in retina of the eyes. Thus, it helps protect from “age-related macular disease” (ARMD) in the elderly. It is also a rich source of minerals like copper, calcium, potassium and phosphorus. The fruit is also a good source of B-complex group of vitamins like folates, niacin, vitamin B-6 (pyridoxine), thiamin and pantothenic acid. Now that you have heard about the scientific aspects of this wonderful ingredient, lets get cooking.
These are a few of our families’ favorites and goodies we always enjoy in Autumn. 44
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Chocolate-Pumpkin Gingerbread (GFCFSF and Vegan) 1 2/3 cup GF all-purpose baking flour 1 tsp xanthan gum 3 Tb cocoa powder 1 tsp. baking soda 3/4 tsp salt 1/2 tsp cinnamon 1/2 tsp powdered ginger 1/4 tsp nutmeg 1/4 c almond or coconut milk 1 tsp apple cider vinegar 15 oz. canned pumpkin 3 Tb. blackstrap molasses or agave nectar or maple syrup 3 Tb oil 1 tsp vanilla extract 1 Tb. fresh ginger-finely minced, if desired) 2 Tb. peanut or other nut butter (if desired) 1 c chocolate chips (dark/non-dairy) Mix dry ingredients together in bowl. Slowly add wet ingredients, stirring to mix. When mix is completely wet pour into an 8 x 8 square baking pan. Bake 45 min. at 350 degrees.
NOV/DEC 2013 Recipe Courtesy of Barrie Silberberg www.parentingspecialneeds.org
© Muffet /flickr.com
Fall Means Pumpkins
Pumpkin Drop Biscuits
2 eggs 1 c sugar 1 c canned pumpkin 3/4 c oil 1 1/2 c *four flour bean mix 3/4 tsp xanthan gum 1 tsp. baking soda 1 tsp. baking powder 1/2 tsp. salt 1/2 tsp. EACH: cinnamon, nutmeg, cloves 1 c chocolate chips
2 1/2 cup gluten free all purpose baking flour 2 cups almond or coconut milk 1/4 cup brown sugar 1 1/4 tsp. pumpkin pie spice 3/4 cup canned pumpkin 1 Tb. water
© jamieanne /flickr.com
Pumpkin-Chocolate Chip Muffins (GFCFSF)
Whisk flour, xanthan gum, baking soda, baking powder, salt and spices. Beat eggs, oil, pumpkin and sugar until smooth. Add dry ingredients to wet ingredients. Fold in chocolate chips. Pour into greased muffin tins-or use paper cupcake holders, set into the tin. Bake at 400 degrees for 1620 minutes. Let stand for 10 minutes and turn out to cool. Makes 12. Recipe Courtesy of Barrie Silberberg
www.parentingspecialneeds.org
Mix baking mix, brown sugar, and pumpkin pie spice. Stir in pumpkin, almond or coconut milk, and water until all is moist. Drop into 12 heaps onto baking sheet prepared with non-stick spray. Bake at 425 degrees for 15 minutes. If tops start to brown too fast, reduce heat to 375 degrees for the last 5 minutes. Adapted to be GFCFSF from Megan’s Munchies recipe
Recipe Courtesy of Barrie Silberberg
www.parentingspecialneeds.org
Doughnut Drops
*Four Flour Bean Mix
1 1/2 c. *Four Flour Bean Mix or **GF Mix 1 scant t. xanthan gum 1 Tb baking powder 1/2 t salt, 1/4 cup sugar 1 t. pumpkin pie spice 1 t. gelatin (optional) 1 egg, slightly beaten 1/2 cup.mashed, cooked pumpkin Adapted to be GFCFSF (canned or fresh) from Bette Hagman’s 1/4 c. almond or coconut milk “The Gluten-Free Gourmet 2 Tbs. Vegetable oil Makes Dessert” 1/2 t vanilla, Oil for frying
Garfava Bean flour-1 part Tapioca Flour or Starch-1 part Cornstarch-1 part
In a mixing bowl, whisk together the flour mix, xanthan gum, baking powder, salt, sugar, pumpkin pie spice and gelatin (if used). In a small bowl, beat the egg and add the pumpkin, almond or coconut milk, oil and vanilla. Add this to the dry ingredients, stirring just until moistened. Poor oil to the depth of 2 inches in your deep fryer and heat to 375 degrees. Fill a level teaspoon and, with a rubber scraper, roll the batter into the hot oil, cook until brown, turning once. Drain in a bowl with crushed paper towels. Makes 24 drops.
**GF Mix Rice Flour-2 parts Potato Starch (NOT FLOUR)-2/3 parts Tapioca flour-1/3 part) Recipe Courtesy of Barrie Silberberg www.parentingspecialneeds.org
Enjoy the aroma that fills your home and the love of your family that fills your hearts at this special holiday time. Barrie Silberberg is the author of The Autism & ADHD Diet : A Step-by-Step Guide To Hope and Healing by Living Gluten Free and Casein Free (GFCF) And Others Interventions. Her web site is: www.puttingyourkidsfirst.com NOV/DEC 2013
Recipe Courtesy of Barrie Silberberg www.parentingspecialneeds.org
Print and share Recipe cards or make and give as gifts!
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Making the Choice to be Resolutions for the Holiday Season and New Year
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am a bit like a milk chocolate bar – intense but never dark. However, somehow I still manage to blow people out of the water. I am certain my face it plastered on a dart board or a trash can. I really can’t blame them. I am just a parent who uses every fiber of her being to do one thing – coordinate a successful plan of service and support to help my child succeed. After all, being naughty or nice is really a year round choice. Since I don’t always model the good, I try to take advantage of this seasonal opportunity to begin anew. Here are some of my favorite tips to honor, advocate and create stronger home-school relations. Most cost nothing or very little:
HONOR:
by Cynthia Carr Falardeau
1. Personal Conversations: This may seem like a no-brainer, but, in a world of emails, texting and social media, there is no replacement for the good-ol, face-to-face “Thank You.” It’s a time to purge the guilt and start anew. If it’s too much write a note.
2. Create a Certificate: We found teacher appreciation templates on-line. We personalized them for each team member because support staff get over-looked sometimes. We added a photo of our son and then had him help to personalize each one. We had access to a laminating machine which helped to preserve it. We did these four years ago and they are still hanging up on bulletin boards.
3. Make a Video: Children love being videotaped. It’s their chance to be a star. We did this as an end of year thank you. It ended up being shown on the teacher’s Facebook page and at her family reunion. She said it was the best gift ever. All we did was use the video function on our smart phone. In one shot our son told from his heart why she was the best.
4. Bake: Fresh baked goods go a long way. Especially if you can attached a photo or artwork by your child. Nothing say’s lov’n like something from your oven. 5. Send a Note to the Boss: We have had
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several permanent substitute teachers during our son’s academic career. I think that they often work harder because they have been placed without a lot of training or support systems. Their love for children and a willingness to provide differentiated instruction are the two tools that got them the job. So, I think, writing a letter to a district administrator goes a long way. If you don’t have time to write – pick up the phone. Then make a point of telling your teacher what you did. It goes a long way.
ADVOCATE: 1. Clear Vision: It’s hard to advocate if you don’t have a strong idea about what you want for your child. It could be a wish list. The key point is that your vision is what drives the planning for your child’s future. Most importantly, it needs to be shared with all of the members of the school team. You, the parent, need to make this commitment. It is a gift to you and to your child.
2. Build Relationships: Because I am the queen of mistakes, I know the value of this point. If you take the initiative to do this – it pays off tenfold when you do overreact.
teachers on my Facebook and YouTube accounts has helped to strengthen our relationship. It also has given the team insight to behaviors or skills that may not always be exhibited at school. It takes a commitment to trust but it has developed our friendships long after our child has moved on. 2. Buy a Notebook: Our son was non-verbal for the first seven years of his life. I found that having a communication notebook was a valuable tool. It enabled me to share what we were doing at home and provided the team a way of updating me. Those notebooks also created a journal of our son’s progress. I still pull them out and look at them. They are precious to me. One of the most interesting outcomes of this process is that we became reconnected with the families I reference in the beginning of this essay. They too found it was time for a change. We crossed paths at other camps and afterschool programming. We still continue to share and encourage. We just do it now in other settings and in new ways. w
3. Use People’s Names: People love to hear their names. This one goes both ways. If a school team keeps calling you “Mom” or “Dad” in a meeting, make the point of asking if you can advance your relationship with them? In a kind way, ask them if they like to be addressed formally or casually? Then ask for the same courtesy. It’s a small thing, but, one both sides should resolve to do with the New Year.
HOME-SCHOOL RELATIONSHIPS: 1. Social Media: I may be in the minority on this one, but, I have found that having my son’s
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fun & functional learning to sign
ASK Angie ASL -The Holidays by Angie Craft HandCraftEdASL
Thanksgiving
Holidays
HandCraftEdASL
Christmas Resources: Check out some of these sites for holiday gift ideas that have sign language on them. Lots of great stocking stuffers! ADCOHearing.com – lots of gift ideas with sign language Harris communications.com - equipment and products designed for deaf and hard of hearing individuals. Oriental Trading Company – sometime they will have products with sign language – great for buying bulk. HandCraftEdASL.com – any of my products are great for hearing and deaf children / siblings. Rule-the-School.com – deaf education products
Angie Craft author and teacherbrings over 26 years of experience in deaf education and is committed to serving the deaf community. Keenly aware of the isolation that deaf students often experience, Angie developed and wrote HandCraftEdASL to bridge the communication gap between deaf children who primarily use American Sign Language and their parents, peers or educators. www.handcraftedasl.com
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VIDEO DEMONSTRATION: The HOLIDAYS: As we approach the holiday season, let’s take some time to learn some fun holiday signs that the entire family can use. Remember to encourage signing when your child uses it. This holiday try to use the signs you’ve learned in this video as often as possible when the opportunity arises. Using signs can lower frustrations with non-verbal students, help with eye/ hand coordination, expression, and muscular strengthening in their hands. Signing is fun and a great way to communicate in a different language.
TIPS:
1. Remember that as the weather becomes cooler, it’s easier to allow your child to still communicate if they are wearing gloves vs. mittens. I know it sounds silly, but as a teacher, I see it every year where my students are limited on their communication abilities due to cooler weather. Parents tend to purchase the readily available mittens verses gloves. It is very difficult to fingerspell, or even want to sign, when your hands are cold.
2. Deaf students and those with Down Syndrome are more prone to ear infections during the changing of the seasons. It may not appear to be evident at the onset of the infection, but look for signs of the student suddenly not paying attention as much or showing a preference to a specific ear. Contact your audiologist in the county to look into possibly getting a sound system for the classroom that makes the teacher’s voice equally as loud in all areas of the classroom. If a specific student is prone to multiple ear infections each year, then this is a must for their learning environment.
My wish this holiday season is love, joy and peace. w
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power of play fun & functional
UNUSUAL GIFTS That Cost A Little And Please A Lot by Barbara Sher
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hen my daughter Marissa was four years old, she flashed her eyes at every good-looking male and told me she wanted to grow up to be Cinderella. it wasn’t what i had in mind; i was thinking more along the lines of an astrophysicist-prima ballerina. But not one to impose my expectations on others, i called a local flower shop and ordered a pink nosegay bouquet for her birthday. She was thrilled and put on the lacy white slip she called her Cinderella dress and all her costume jewelry and with her nosegay she looked, i admit, like a fairy princess. i’m telling you this in case you have a Cinderella of your own and need an idea for a gift. Finding the right gift can be wearing. i find it easier if i think of something ahead of time rather than wander around a store and end up buying something expensive that’s still not right. So, if you want ideas, here are inexpensive gifts for children that i have tried that went over well:
Colored ribbon: get a large assortment of about
one yard of each color. include different textures such as satins, velvet and woven. Buy a floral tin or something lovely to put them in.
Business supplies: Buy items such as paper clips, staplers, hole punchers, folding files, index cards (with box), ledger, tape, rulers, receipt book with carbon, stamp pad, stamps. You can get an empty boot box to sort it in. they often will give these big boxes away at shoe stores. these supplies will keep kids busy for hours and isn’t that what busi-ness is all about anyway? Cotton: a box of cotton or cotton balls. Kids sometimes just like to plunge their hands into all that softness or use them to stuff small pillows or paste on pictures to make clouds and beards. An all purpose cape: if you are good at sewing, make a cape out of velvet or glossy satin or some other spectacular material so your child can be a super person or prince or sorceress. if you don’t sew, second hand stores are good for finding dramatic clothes and gobs of gaudy costume jewelry.
Shoe box art: Most shoe stores will give you all the
shoeboxes you could ever want if you ask them to save some for you. they make wonderful trains for the younger child by connecting them with a piece of sting; leave a long piece at the front for pulling. You can add wheels, paint, animals, etc. Larger boot boxes can be decorated and personalized to make a private place for your child’s “treasures”.
Magnifying glass: i once read “no self respecting
five year old should be without a magnifying glass”. i took it to heart and by adding a string of yarn, making a small magnifying glass into a necklace for my then five year old. She wore it constantly for weeks and weeks checking out the whole world, up close and personal.
Ream of paper and package of pens:
i can’t imagine there is an up and coming artist, writer or scribbler alive that wouldn’t love 500 sheets of paper all their own!
Books: always books. it’s impossible
to overestimate the importance of books in a child’s development. a man named Stickland gilian said it well: You may have tangible love, caskets of jewels and coffers of gold; richer than i you can never be i had a mother who read to me.w
Barbara Sher M.A.,O.T.R, an occupational therapist and author of nine books on childrens games. This game is adapted from Barbara’s new book THE WHOLE SPECTRUM OF MOTOR, SOCIAL AND SENSORY GAMES: Using Children’s Natural Love Of Play To Enhance Key Skills And Promote Inclusion. Check out Barbara’s other game books at any on-line bookstore or get a free game designed for your child at her web site: www.gameslady.com NOV/DEC 2013
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Easy Sufganiyot (Jelly Doughnuts) Encouraging Speech & Creating Yum!
Ingredients Immaculate Crescent rolls (or any store brand ready-to-bake dinner rolls, but, NOT biscuits) • 1/8 cup of cocunt oil • A cup of your favorite 100% fruit jam (or favorite pie filling) • About a cup of powdered sugar
by PSN Team & Becca Eisenberg
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raditionally, during Hanukkah, families eat Sufganiyot (jelly donuts), or other foods, which are fried in oil to celebrate and commemorate the miracle of the festival of lights. With the holiday season quickly approaching, it’s time to break out the cookie sheets, muffin tins and Sufganiyot! Sufganiyot is like a jelly-filled donut that you and your family are sure to enjoy this holiday. Traditionally, these are fried, but, we are going to make these a “little-bit” easier and healthy for the parents.
Cooking Time: 12-14 minutes
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Instructions
Parent: Preheat oven for 350 degrees. Kiddo: “Pop” open the tube of dough. For large donuts, simply place the rolls two inches apart on an ungreased baking sheet. For small donuts (like donut hole-size), cut each roll in half and re-form it into a ball by rolling it between your hands; place them at least one inch apart on an ungreased baking sheet.
Language Time: Baking together can be a language rich and bonding experience with your child. When baking these jelly doughnuts focus on key vocabulary such as “jelly”, “doughnut”, “dough”, “sugar”, “jam”, “oil” and different main actions such as “open”, “cut”, “roll”, “squeeze”, “brush” and “bake” and “eat”.
Kiddo: Put the powdered sugar in a medium bowl. Parent: As soon as the rolls are cool enough to handle,
Before beginning the recipe, review all of your ingredients and the steps you will need to take to create these doughnuts. I always like to show a child a picture of the finished product (go online and print out different pictures of jelly doughnuts). You can even view pictures of different sizes, shapes, etc. During this exploration time with the recipe, ask your child questions such as “What is made of fruit and is sweet?” or “What is white and sweet?”. Also, take this time to taste test some of the ingredients that are safe to eat such as jam and a tiny bit of sugar. Ask your child to describe the taste of the ingredients, color, texture, etc.
Kiddo:
Encourage as much language as possible during the baking activity. Make silly mistakes and give your child the opportunity to correct you. For example; fill the zip lock bag with jam but don’t cut a hole. How will the jam come out? What should we do? This can encourage problem solving and encourages language.
Kiddo: brush dough with coconut oil. Parent: Bake for 12-15 minutes, or until golden brown at
the edges.
Parent&Kiddo: While the rolls are baking, fill a sand-
wich-sized zip lock baggie with the jam or pie filling of your choice and cut off a small tip of the corner.
use a paring knife to make a slit in the side of the roll, then gently (so as not to poke a hole out the other side) cut in both directions to create a pocket inside (the opening should stay the same size, but the pocket inside should be bigger).
Insert the tip of the jam baggie into the donut, and squeeze the jam inside until just full. Do not over fill.
KIddo: Roll the filled donut in the powdered sugar to coat (it may take a couple of passes).
Eat! Light candles! Enjoy! Becca Eisenberg is a mother of two young children and a speech language pathologist, author and instructor. Her website, www.gravitybread.com encourages learning time during mealtime. On her website, she writes children’s book recommendations, app recommendations, as well as child friendly recipes with language tips their family.
Give your child choices throughout the activity. Have them choose the type of jam they want to fill the doughnut with. Encourage taking turns for different steps such as opening the crescent roll can, choosing a jam, filling the doughnut and rolling the doughnut in the sugar. As you are baking, try not to ask too many “wh” questions. Use some fill in the blank prompts such as “Time to brush the dough with some ____” or give choices, “Should we roll the doughnut in sugar or jam?”. Finally, discuss the meaning of the jelly doughnuts, Sufganiyot. These doughnuts are significant to a special holiday in November/ ßDecember called Hanukkah. Encourage discussion of this holiday and the meaning of why it is traditional to eat Sufganiyot on Hannukkah. Carryover Book to read during doughnut time: “If You Give A Dog A Donut” w
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proud moments® enjoy your life
Proud Of myself
Editor’s Note: when we ask for submissions, we usually get them sent to us by a parent or loved one who shares their proud moment. We received this from Katherine, herself, and thought she deserved an entire page. Good for you, Katherine. My name is Katherine Stanley and I am 17 years old. I was born with Prader-Willi Syndrome (PWS), and because of that I have had difficulties and obstacles that the average kid does not have to live with. In school, I was sometimes teased and bullied because I am different. Unfortunately, I became an expert on bullies. Bullies made me feel sad, embarrassed and bad about myself. I decided to stop feeling bad about myself and do something to make me feel good about myself. I took all the bad experiences and lessons that I had learned from bullies and made it into something positive. I wrote a book called A BOOK OF BULLIES. I don’t draw well, but my older sister, Laura, does. So, she drew illustrations for my book. I submitted my book to a publisher, Grateful Steps Publishing, and it was accepted! Prader-Willi Syndrome Association (USA) read my manuscript and is sponsoring my book.
Katherine exhibiting an “I CAN” attitude Photo courteousy Katherine Stanley
A Book of Bullies
by Katherine Stanley illustrated by Laura Stanley
Katherine Stanley is a self-proclaimed expert on bullies. Born with PraderWilli Syndrome, she has been the target of a great deal of bullying. Katherine hopes this book will make people want to be kinder to each other.
www.abookofbullies.com
I plan to write many more books in my life. I have something to say that I believe people need to hear and I am determined to make my voice heard. I am passionate about my message. I came into this world with difficult problems that genetics forced on me, but I love my life. I will always do the best I can with what I have. I am happy and proud of myself.w
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About the Illustrator
Laura Stanley is Katherine’s big sister, best friend and lifelong advocate. She is currently a student at the University Of North Carolina at Chapel Hill.
US $16:95
Laura E. Stanley
My book is for everyone who has ever known a bully. In it you will find the Tough Guy Bully, The Comedian Bully, The Cool Girl Bully, The Gossip Bully and others. My book is written in rhyme, and it is humorous and uplifting. I hope my book will make kids want to never be a bully. About the Author I hope it will make people want to be kinder to each other. I also hope it will encourage other kids with special needs to believe in themselves and have goals. Many people did not think that I was smart enough to become a published author, but A BOOK OF BULLIES is scheduled to be released in November, 2013.
N OW l e ! Availab
Katherine A. Stanley
This book is for everyone who has ever known a bully. Written by a young girl who has experienced bullying firsthand because she is different, A BOOK OF BULLIES puts the spotlight on the hurt and harm caused by bullying and calls for us all to unite against it. Humorous and uplifting, the book engages the reader in making the world a better place.
Authored by Katherine A. Stanley Illustrated by Laura E. Stanley
Published by Grateful Steps Foundation, where ideas and voices grow. They are committed to publishing voices that otherwise might not get heard, to preserving Western North Carolina history and culture and also to promoting conversation that traverses faiths and cultures. www.gratefulsteps.org
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