Milford Training Manual by One Little Studio

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Compassionate Communities Volunteer

Training Manual Mi

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V1.0

“A Compassionate Communities Volunteer makes the link between a person / family living with palliative care needs at home and those in their circle of community who are able to offer support – to seek out and enlist the “Good Neighbour” capacity within local communities.”

No part of this publication can be copied, reproduced, distributed or adapted without permission from the authors. The recipient of the materials may not copy, reproduce, distribute or adapt them for commercial gain. The following wording should be used to credit the source of the information in all approved copies, reproductions, distributions and adaptations of the material. “Based on work from the Compassionate Communities Volunteer Training Manual for Milford Care Centre’s Compassionate Communities Good Neighbour Partnership (2015) developed by Dr Kathleen McLoughlin (Maynooth University / Milford Care Centre), Jim Rhatigan (Milford Care Centre) and Dr Sinead McGilloway (Maynooth University), supported and funded by Milford Care Centre, All Ireland Institute of Hospice and Palliative Care, The Irish Cancer Society and The Irish Hospice 2 Foundation”.

Contents Objectives..........................................................................................................6 The Good Neighbour Partnership...............................................................7

What is It? How Does it Work? What Social and Practical Help Can be Provided? Who Can Get Help? How Long is Help Provided For? How are People Referred? Does it Make a Difference?

Recruitment and Selection of Compassionate Communities Volunteers.................................................9

The Role

The Type of Person

Recruitment

Application Form and Interview

Garda Clearance and Referencing Checking

Timeframe

The Six Week Training Programme.......................................................... 11 An Introduction

Aim of the Training Programme

Duration Participants Facilitators

Room Set Up

Equipment

Style of the Programme

Evaluation

Contents

Module 1......................................................................................................... 13 Getting to Know Each Other and the Programme

Objectives Module Overview

Detailed Module Guide for Facilitators

Module 2......................................................................................................... 19 Communication Skills, Confidentiality and Helping People with a Cognitive Impairment

Objectives Module Overview Detailed Module Guide for Facilitators

Module 3......................................................................................................... 26 Boundaries, Understanding the Good Neighbour Partnership and Making Introductions

Objectives Module Overview Detailed Module Guide for Facilitators

Module 4......................................................................................................... 31 Assessing Social and Practical Needs, Identifying Circles of Community, Developing and Agreeing Action Plans Objectives Module Overview Detailed Module Guide for Facilitators

Module 5......................................................................................................... 36 Practice and Rehearsal

Objectives Module Overview Detailed Module Guide for Facilitators

Module 6......................................................................................................... 44 Safety, Self-Care, Emergencies and Endings Objectives Module Overview Detailed Module Guide for Facilitators

Contents

Appendices Appendix A ..... The Good Neighbour Partnership Leaflet Appendix B ..... Information Sheet and Application Form for Compassionate Communities Volunteers Appendix C ..... Letter of Invitation to Interview for Volunteers â&#x20AC;&#x201C; Template Appendix D...... Interview Questions for Compassionate Communities Volunteers Appendix E...... Garda Vetting Application Form Appendix F...... Statutory Declaration for Volunteers Awaiting Garda Vetting Appendix G..... Referee Letter Template Appendix H...... Sign in Sheet Appendix I....... Pre Course Evaluation Questionnaires Appendix J........ Post Course Evaluation Questionnaires Appendix K...... Presentation: Overview of Milford Care Centre Appendix L...... Presentation: Compassionate Communities Project Overview Appendix M..... Handout: Characteristics of Helpful and Unhelpful People Appendix N...... Presentation: Core Conditions and Listening Skills Appendix O..... Confidentiality Policy and Declaration of Confidentiality Appendix P...... Boundaries Questionnaire Appendix Q..... Boundaries Guideline Appendix R...... Screening and Assessment Forms Appendix S...... Assessment Forms and Phone Record Appendix T...... Good Neighbour Agreement, Record of Hours and Handling Money Forms Appendix U...... Case Study Appendix V...... Practice and Rehearsal Scenarios Appendix W..... Personal Safety Appendix X...... Emergencies Appendix Y...... Self Care Boat Appendix Z...... Certificate

Objectives

The information provided in this manual is designed to: ›› Explain the purpose of the Good Neighbour Partnership. ›› Explain the role of the Compassionate Communities Volunteer. ›› Explain the recruitment and selection process for Compassionate Communities Volunteers. ›› Describe the six week training programme for Compassionate Communities Volunteers. ›› Provide guidance about facilitating the programme and what is expected of facilitators. ›› Provide resources to use, or adapt for use, as part of the training programme. ›› Provide tools to evaluate the training programme. ›› Describe the resources, forms and policies integral to the operation of the Good Neighbour Partnership.

The Good Neighbour Partnership

What is it? ›› Living with a serious illness can be difficult. It can be hard to do the ordinary, everyday things when you have to cope with not feeling well, think about appointments or juggle the demands of caring. ›› Often friends and neighbours want to help, but are sometimes unsure how to. ›› Milford Care Centre, through the Compassionate Communities Project, is piloting a Good Neighbour Partnership to offer FREE social and practical support to people living with palliative care needs, who may be in their last year of life (2015-2016).

How does it work? ›› We have a panel of Compassionate Communities Volunteers, who have been trained (this programme) and Garda vetted. Compassionate Communities Volunteers are insured by Milford Care Centre. ›› Upon request, they can arrange to meet a person who is living with advanced illness, and/or their family, to discuss what extra social and practical support that person may need at home. ›› They discuss, who, within the person’s circle of community, might be able to meet the needs identified (e.g. extended family, a friend, a neighbour or other local community based initiatives). ›› With the person’s permission, the volunteer contacts the agreed people in the community to ask them to help with the needs identified.

What social and practical help can be provided? We can help with things like: ✓✓ Shopping ✓✓ Collecting Prescriptions ✓✓ Transportation (e.g. to medical appointments, town or church) ✓✓ Lighting a fire ✓✓ Light gardening ✓✓ Meals ✓✓ Help with pets ✓✓ Writing letters / non-legal forms ✓✓ Befriending – someone to chat with, read the paper ✓✓ Sitting with a person whilst a family member takes a break ✓✓ Small household repairs (e.g. change a light bulb, replace a handle on a cupboard) ✓✓ Light housework (e.g. changing the linen, hanging out washing, cleaning windows)

The Good Neighbour Partnership

Who can get help? ›› We can offer support free of charge to people living with palliative care needs and who may be in their last year of life. ›› The pilot extends across Limerick City and Limerick County.

How long is help provided for? ›› Initially the Partnership commits to providing support for 8 weeks. This is subject to review to determine further support requirements. ›› A leaflet about the Good Neighbour Partnership is available in Appendix A.

How are people referred? ›› People can be referred via Primary Care Services, the palliative care team or can self refer.

Does it make a difference? ›› The Good Neighbour Partnership is one element of a research study that is taking place (2015-6) funded by the All Ireland Institute of Hospice and Palliative Care and the Irish Cancer Society. The outcome of that research will provide important information to determine if this model makes a difference to people living with advanced life limiting illness, their families and to the volunteers who engage.

Recruitment and Selection of Compassionate Communities Volunteers The Role The role of a Compassionate Communities Volunteer with the Good Neighbour Partnership is to make the link between a person / family living with palliative care needs at home, and those in their circle of community who are able to offer support – to seek out and enlist the “Good Neighbour” capacity within local communities.

The Type of Person All volunteers are expected to demonstrate: ✓✓ Maturity, common sense and the ability to be discrete and sensitive. ✓✓ A good understanding of ethical/confidentiality issues. ✓✓ The ability to be confident and out-going, relate well to others and communicate effectively. ✓✓ A respectful and non-judgemental approach at all times. ✓✓ A good sense of humour. ✓✓ Good organisational skills and ability to complete paperwork. ✓✓ A good sense of personal boundaries and a clear understanding of purpose of the role.

Recruitment Volunteers are drawn from the general public. A call for volunteers can be made via local press, radio, local volunteer centres, community organisations, websites and social media. An open information session is held for people who are interested to attend. During this session the Good Neighbour Partnership is described, Bill’s Story is shown https://www.youtube.com/ watch?v=_5tJGaWjRZk and an information sheet and application form is distributed Appendix B.

Application Form and Interview Volunteers complete an application form Appendix B and are invited for interview with two members of the Compassionate Communities Project Team Appendix C. Interviews take on average 30 minutes and are guided by a series of questions Appendix D. During the interview process, the interviewers gain a sense of the person’s understanding of the role and of the initiative. They can observe the person’s communication skills and determine their motivation for engagement.

Recruitment and Selection of Compassionate Communities Volunteers

Volunteers are asked about their experience of issues associated with death and dying and are asked to discuss recent bereavements. The interviewers need to ascertain, as far as possible, that the volunteer has the capacity to deal with the experiences of serious illness, death and grief sensitively and with understanding and compassion. In particular, it is important to assess whether or not they have dealt with their own experiences of illness and/or grief and that they are not still working through personal issues.

Garda Clearance and Reference Checking Following the interview stage, Garda Vetting forms are completed Appendix E by the volunteer and returned to the Gardai for processing. This may take a number of weeks, therefore as an interim measure, each volunteer is asked to sign a declaration Appendix F. In line with HIQA regulation for volunteers, three referees are sought for each volunteer. A letter is sent to each referee by the Good Neighbour Partnership Co-ordinator Appendix G. Upon receipt of references, volunteers are invited to participate in a six-week training programme.

Timeframe It is advisable to assign approximately two - three months to the process of recruitment, selection and checking of volunteers.

The Six Week Compassionate Communities Training Programme

Aim of the Training Programme To provide Compassionate Communities Volunteers with the knowledge and skills necessary to provide the Good Neighbour Intervention to people and their family caregivers, living at home with advanced life limiting illness.

Duration This is a 15-hour training programme delivered over 6 weeks in 6 x 2.5 hour modules1. In addition to the 15 hours spent in facilitated sessions, additional time is required between sessions to complete reading tasks and practice delivering elements of the intervention.

Participants The recommended number of participants is 12-16.

Facilitators Ideally the programme is facilitated by two people. In Module 5, one facilitator is required for every 5 participants on the programme. This module also uses professional actors at a ratio of one actor to five participants. To facilitate the programme it is important for facilitators to have good communication skills and enjoy working with people. Facilitators need to have a good understanding of the Good Neighbour Partnership Intervention and ideally some experience working with people at the end of life. The role of the facilitator is to2: ›› Maintain a safe environment for learning. ›› Keep participants focused on the session and exercise within each session. ›› Treat people and their contributions with respect, remaining as neutral as possible, whilst ensuring the integrity of the intervention. ›› Manage the group sensitively, supporting participants to develop confidence. ›› Encourage and involve all participants. ›› Listen and contribute where appropriate. ›› Remind the group what has been discussed and agreed.

1 NB The original programme was run over 7 sessions and included a session specifically regarding dementia, delivered by staff from Dublin City University’s Elevator Programme. The current training programme, as described here has been streamlined into 6 sessions and information regarding dementia is now embedded into Session 2, delivered by the programme facilitators. The streamlining of the programme has been made possible since the materials for the GNP were initially being developed in conjunction with the volunteers. These have now been signed off and are therefore available to present and discuss during each module, saving time. 2 Adapted from the Volunteer Training Programme about Advance Care Planning (Let’s Talk Now and Prepare for the Future) developed by Jane Seymour, Kathryn Almack (University of Nottingham) and Katherine Froggatt (Lancaster University), supported and funded by the National End of Life Care Programme and the Dying Matters Coalition.

The Six Week Compassionate Communities Training Programme

Room Set Up The room used should be conducive to the positioning of 12 - 16 chairs in a horseshoe shape with adequate space for groups of two to five participants to move around the room for breakout sessions.

Equipment ✓✓ Flip-chart stand, paper, markers ✓✓ Computer, projector, screen, speakers (Sessions 1 and 2) ✓✓ Mechanism to play music on arrival / during break out sessions ✓✓ Refreshments on arrival and mid-way through sessions ✓✓ Folders for participants ✓✓ Sticky labels for names ✓✓ Sign in Sheet Appendix H ✓✓ Copies of handouts ✓✓ A box of tissues ✓✓ Candle

Style of the Programme The course is informal and participatory based on the principles of adult and peer learning. Each participant brings to the course a wealth of knowledge and experience and all contributions are valued. A supportive environment is maintained where agreed ground rules are adhered to (see Module 1). Privacy and confidentiality are respected and the sensitive nature of the course and Good Neighbour Partnership is acknowledged. Music is played on arrival to create a warm, relaxed atmosphere. Refreshments are provided for people on arrival and again mid way through each session. Each person is required to sign in on arrival and wear a name sticker.

Evaluation A questionnaire is distributed to participants before the programme starts (this can be done in advance by post or as people arrive on the first evening and again after the final session Appendix I / Appendix J. Data is entered into a data analysis programme (e.g. SPSS) and pre/post tests are administered.

Module 1

Module 1 Getting to know each other and the programme

Module 1

Objectives ›› To enable volunteers to meet each other, the facilitators and to ‘break the ice’. ›› To create a safe space for volunteers to learn and develop within agreed ground rules. ›› To determine the participants' expectations of the programme and issues they feel need to be addressed in order to engage as Compassionate Communities Volunteers. ›› To understand the work of Milford Care Centre with particular focus on the Hospice at Home / Home Care service and bereavement supports available. ›› To understand the Compassionate Communities Programme and where this initiative fits within the programme. ›› To understand the Good Neighbour Intervention. ›› To understand the training programme.

Module Overview Time Allocation

Resources Required

Part 1:

30 minutes

Folders for each participant.

Part 2:

20 minutes

Light the candle.1

Part 3:

15 minutes

Powerpoint Presentation – Appendix K

Part 4:

15 minutes

Arts for Life DVD (Available at MCC) or other DVD highlighting patient experience.

Tea / Coffee

15 minutes

Part 5:

15 minutes

Powerpoint Presentation – Appendix L

Part 6:

35 minutes

Bill’s Story Animation – Available at https:// www.youtube.com/watch?v=_5tJGaWjRZk GNP Leaflet – Appendix A

Part 7:

5 minutes

Welcome, Introductions and Practical Information

Establishing Ground Rules

Overview of Milford Care Centre

Hearing the Patients Voice

Overview of the Compassionate Communities Project

Vision and Expectations

Closing Exercise

Depending on local health and safety arrangements, this may need to be battery operated.

Module 1

Detailed Module Guide For Facilitators Part 1

Welcome, Introductions and Practical Information

Total Time: 30 minutes

As people arrive to the programme, they are entering a warm, organised space. Music is playing gently in the background, the room is set up in a horseshoe style and the facilitators are meeting and greeting people on arrival. Participants are asked to sign in, wear a sticky label with their name on it and help themselves to refreshments. This atmosphere is recreated for each module.

The facilitator ›› Welcomes participants to the training programme and introduces facilitators. ›› Discusses relevant housekeeping arrangements (e.g. fire exits, toilets, phones, keeping room tidy, evaluation form return). ›› Outlines the framework for the evening, including information about break and finish times.

Exercise 1 (10 minutes)

›› Participants are invited to introduce themselves to the person sitting next to them, stating their name, where they are from and one word to describe how they are feeling at that moment2. ›› Each person is then invited to introduce their partner to the rest of the group. ›› The facilitator makes a note of all the ‘feeling words’ on the flip-chart.

Facilitators' notes: The feelings that are shared may be a mixture of excitement and fear – it is important to acknowledge that starting a new programme is an exciting time but also a nerve racking time, as participants may be unsure as to what lies ahead and may not know anyone else in the room.

Exercise 2 (10 Minutes)

›› The facilitator asks each person in turn, to outline one expectation they have for the module. ›› Responses are written onto the flip chart by the facilitator.

Facilitators' notes: As this is the first session, people may have issues that they would like addressed immediately and this exercise enables people to state anything that might be worrying them. 2 Wilson, P. E. (1999). Hospice volunteer training: making the experience more meaningful. The American Journal of Hospice & Palliative Care, 17(2), 107-110.

Module 1

Part 2

Establishing Ground Rules Total Time: 20 minutes

›› The facilitator explains that it is important for the group to establish some ‘ground rules’ so that everyone can work comfortably with each other. ›› The facilitator elicits suggested ground rules from the group and writes them onto the flipchart. ›› The facilitator reads back each rule to the group and asks the group if everyone is happy to agree to these rules. ›› Upon agreement with the rules, a member of the group is asked to light the candle as a symbol of confidentiality. That person is subsequently responsible for lighting the candle at all other sessions. ›› The list of ground rules is fixed to the wall for this session and all other sessions.

Facilitators' notes: The rules should cover areas such as confidentiality, respect, timekeeping, one voice at a time, agreed action if a person becomes upset.

Part 3 Overview of Milford Care Centre Total Time: 15 minutes

As the Good Neighbour Partnership is an initiative of Milford Care Centre’s Compassionate Communities Project, it is necessary for volunteers to understand the following regarding Milford Care Centre: ›› The mission, vision and values of the organisation ›› A brief description of services available, their reach and activity levels A powerpoint presentation can be utilised to cover these areas Appendix K.

Facilitators' notes: During the presentation, ask participants about their own perception of Milford Care Centre or hospice and palliative care e.g. by asking “When you hear the words ‘Milford Care Centre’, what springs to mind?”

Some people may say things like ‘death’ or ‘you go in and never come out’. These perceptions can be addressed during the presentation explaining that palliative care is about improving people’s quality of life for whatever time a person has left, noting that there are more discharges home from the hospice than deaths in the hospice.

Module 1

Part 4

Hearing the Patient’s Voice. Total Time 15 minutes

The facilitator shows the ‘Arts for Life’ clips (available at Milford Care Centre – however any film can be utilised that shows people receiving palliative care discuss their experience. The clips should show patients discussing hospice and palliative care as a source of hope and support).

Facilitators' notes: Purpose of these clips are to show the group footage of ‘real people’ receiving hospice and palliative care services and to hear their views about life with a life limiting illness.

Part 5

Overview of the Compassionate Communities Project. Total Time: 15 minutes

The facilitator provides an overview of the Compassionate Communities Project, providing the framework within which the Good Neighbour Partnership ‘fits’. It is necessary for participants to understand: ›› What the Compassionate Communities Project is. ›› Why a public health approach to palliative care is important. ›› The elements of the project and where the GNP fits. A powerpoint presentation has been developed – Appendix L.

Part 6

The Good Neighbour Partnership – Vision and Expectations. Total Time: 35 minutes

›› The facilitator shows the film ‘Bill’s Story’ to the group, acknowledging that this is the vision of Milford Care Centre’s Compassionate Communities Good Neighbour Partnership. (View Bill’s Story here: https://www.youtube.com/watch?v=_5tJGaWjRZk) - 10 minutes ›› The leaflet describing the initiative is handed out Appendix A ›› The group is divided into groups of 4 and asked to consider what they will need to cover as part of the training to be able to achieve the vision (10 minutes). ›› The group comes back together. The facilitator takes feedback from each group and writes it onto the flip chart.

Facilitators' notes: As the groups give feedback, it is important to confirm whether the points raised will be covered by the training programme and during what module. If there is an area that is not going to be covered, it is important to acknowledge this and consider if this is a gap or in fact not relevant.

Module 1

Part 7 Closing Exercise

›› The facilitator thanks everyone for their contribution. ›› The facilitator asks everyone to state one word to describe how they are feeling. ›› The facilitator observes whether the tone of the words has changed by referring back to the flip chart sheet from Part 1 of the module.

Module 2

Module 2 Communication skills, confidentiality and helping people with a cognitive impairment.

Module 2

Objectives ›› To understand the importance of an attitude and approach to others that is characterised by respect, understanding and genuineness. ›› To understand the essential elements of active listening skills. ›› To understand the importance of silence and stillness as a requirement for listening. ›› To understand the importance of confidentiality in the role. ›› To understand how dementia and other cognitive impairments may present a challenge to effective, clear communication.

Brief Module Overview Time Allocation

Resources Required

Part 1:

5 minutes

Ground rules on wall from Module 1 Candle

Part 2:

5 minutes

Part 3:

20 minutes

Handout Appendix M

Part 4:

12 minutes

Powerpoint Presentation Appendix N Slides 1-5

Part 5:

25 minutes

Part 6:

10 minutes

Part 7:

4 minutes

Tea / Coffee

15 minutes

Part 8:

10 minutes

Policy and Declaration Appendix O

Part 9:

40 minutes

Film clips and MESSAGE booklet – all available online see on.

Part 10

4 minutes

Boundaries Questionnaire Appendix P

Introductions and Practical Information

Recap on Module 1

Characteristics of a Helpful / Unhelpful Person

Presentation: Core Conditions

Listening Exercises

Presentation: Listening Skills

Silent Presence

Confidentiality

Supporting People with a Cognitive Impairment

Closing Exercise and Homework

Powerpoint Presentation Appendix N Slides 6-7

Module 2

Detailed Module Guide for Facilitators Part 1 Introductions and Practical Information Total Time: 5 minutes

›› The facilitator welcomes everyone to the 2nd module, reminding participants briefly of the ground rules (fixed to the wall) and housekeeping arrangements as per module 1. ›› The designated participant lights the candle. ›› The facilitator moves around the group asking for one word to describe how each person is feeling. ›› The facilitator gives an overview of the plan for the module.

Part 2 Part 2: Recap on Module 1. Total Time: 5 minutes.

The facilitator recaps briefly on the areas addressed in the previous module and asks the group if they have any thoughts on what was covered. Has anyone thought of anything else the programme needs to address to enable them to fulfil their role?

Part 3 Characteristics of a Helpful / Unhelpful Person Total Time: 20 minutes

Exercise 1: ›› The facilitator gives everyone a handout Appendix M. ›› The facilitator asks the participants to think of a situation in their own life when they had a concern or a problem or a worry or an issue that they went to somebody else about and they found that person to be helpful. Based on that experience, what were the qualities, attributes and behaviours of that person that were experienced as helpful? (5 minutes) ›› In addition, the participants are asked to think of a situation in their own life when they had a concern or a problem or a worry or an issue that they went to somebody else about and they found that person to be unhelpful. Based on that experience, what were the qualities, attributes and behaviours of that person that were experienced as unhelpful? (5 minutes)

Facilitators' notes: Emphasise to participants that this is about their experience and not what they think is the right or ‘textbook’ answer. ›› The group then feedback to the facilitator who writes on the flip chart two lists outlining the qualities, attributes and behaviours that are (1) helpful and (2) unhelpful. (5 minutes)

Module 2

Facilitators' notes: Once all the feedback has been taken and the lists developed reflect with the group on the following: (10 minutes) ›› The lists are not the experience of any one person, but the qualities listed for ‘helpful’ and ‘unhelpful’ are found to be so by all present…and also others more generally – so there is commonality of experience. ›› In completing the reflection each person was asked to consider a personal experience without naming or specifying what that experience was. In a group of 12, there are potentially 12 different concerns, problems, worries or issues. No matter what the issue, the same qualities will be experienced as helpful or unhelpful. ›› In reviewing the ‘helpful’ qualities, it will be noted that these are all attributes and abilities that most people posses / are capable of; they are not such highly technical skills that require very specialist training. While we do not need to learn them – we do need to be self-reflective and self-monitoring. Acting out of awareness is important if we are to be experienced as helpful people.

Part 4 Presentation: Core Conditions Total Time 12 minutes

The facilitator uses the slides Appendix N to give a powerpoint presentation (Slides 1-5) on the core conditions of unconditional positive regard, empathy and congruence.

Part 5 Listening Exercises Total Time: 20 minutes

The facilitator divides the group into smaller groups of three, asking the groups to spread out within the space available.

Exercise 1: Non-listening (5 minutes) ›› Each group appoints a speaker and a listener. ›› The facilitator advises the speakers that they are to talk about something interesting. ›› The facilitator asks the listeners to leave the room. ›› Chairs are arranged with one chair facing the other. ›› The facilitator asks the speakers to start speaking as soon as the listeners come into the room (no more than 2 minutes). ›› The facilitator goes back out to the listeners and tells them they have to demonstrate an aspect of non-listening e.g. no eye contact, arms folded, flat expression etc. ›› The facilitator takes feedback from each speaker – Were you listened to? Why not?

Module 2

Exercise 2: Interuptions (5 minutes) ›› Each group appoints a speaker and a listener. ›› The facilitator advises the speakers that they are to talk about something interesting (no more than 2 minutes). ›› The facilitator asks the listeners to leave the room. ›› Chairs are arranged with one chair facing the other. ›› The facilitator goes outside the room, instructing the listeners that they are to over engage i.e. change the subject, interrupt, say things like “Wait ‘til I tell you what I think” or “How it was for me” etc. ›› The facilitator takes feedback from each speaker – Were you listened to? Why not?

Exercise 3: Inner Voice (5 minutes) ›› Each group appoints a speaker and a listener. ›› The facilitator advises the speakers that they are to talk about something interesting (no more than 2 minutes). ›› The facilitator asks the listeners to leave the room. ›› Chairs are arranged with one chair facing the other. ›› Ask the 3rd person in each group to act as the ‘whisperer’ (non stop, incessant whispering about anything, getting right up close to the listener and whispering in their ear). ›› The facilitator goes outside the room and asks the listeners to display good listening skills. ›› The facilitator takes feedback from the listener – Could you listen to what was being said?

The facilitator asks the group to come together in a large semi circle. The facilitator notes that active listening is: ›› Not just hearing ›› Not just being physically present ›› Not an opportunity to tell our own story Active listening requires time, attention, concentration. Being present to the other person, suspending our own concerns, especially internal ones. The whisperer is symbolic of the constant interruptions in life, the main one being the voice in our own head.

Module 2

Part 6 Presentation: Listening Skills Total Time 10 minutes.

The facilitator uses the slides Appendix N to give a Powerpoint presentation on active listening (Slides 6-7).

Part 7 Part 7: Silent Presence Total Time: 6 minutes

›› The facilitator invites the group to sit pairs, with each person sitting opposite the other, in silence together, being present to one another for 2 minutes. ›› The facilitator invites feedback from group – What was it like? Was it difficult? Why?

Part 8 Confidentiality

Total Time: 10 minutes

›› The facilitator emphasises that confidentiality is an important element for volunteers to be aware of and to maintain at all times. ›› The facilitator distributes the confidentiality policy and agreement form, reads it through with the group and asks participants to take it home and review it again and then sign it, returning it during the next module. Appendix O.

Part 9 Supporting People with a Cognitive Impairment Total Time 40 minutes

›› The facilitator reflects with the group that the earlier exercises focused on communication. Many people who are visited by the volunteers will be able to communicate well – they may be tired and sometimes weak, but generally they will be able to hear and respond during an interaction. ›› The facilitator notes that some of the people who may need our help may have a cognitive impairment e.g. dementia. ›› The facilitator asks the group – ‘When you think of dementia, what comes to mind?” ›› The facilitator shows the dementia awareness video available from the Elevator Programme http://dementiaelevator.ie/training-programmes/dementia-awareness-training/level-1general-dementia-awareness (2 minutes) ›› The facilitator notes that we are also here to support people with dementia, as it is considered to be a condition that requires a palliative approach. The persons ability to communicate will depend on the persons stage of dementia.

Module 2

›› The facilitator shows the MESSAGE Communication in Dementia film https://www.youtube. com/watch?v=MhxrVG__l4w (3.5 minutes). ›› And then shows MESSAGE Communication in Dementia: Strategies for Carers https://www. youtube.com/watch?v=EFH1O_UHZws (20 minutes). ›› The facilitator gives participants the MESSAGE and RECAP booklet – Available online from http://www.uqccr.uq.edu.au/dementia-care/home-carers.aspx ›› The facilitator notes that volunteers may be working with people at different stages of dementia. If a person has mild-moderate dementia, volunteers can help them to remember what is planned by repeating what they have said and writing things down for them. ›› Where a person has severe dementia, the volunteer is most likely to work with the carer. However it is important to understand that even someone with severe dementia is able to respond and communicate non-verbally and may sometimes have ‘golden moments’. Show film – Can My Memory Go Completely? https://vimeo.com/77213313 (2.5 minutes) ›› Show film – Meet Henry https://www.youtube.com/watch?v=EgNLLelQYwI (2.5 minutes) ›› The facilitator invites questions and comments from the group.

Part 10 Closing Exercise and Homework ›› The facilitator thanks everyone for their contribution. ›› The facilitator reminds everyone to read the confidentiality policy and sign the form for next week. ›› The facilitator gives the group the boundaries questionnaire Appendix P – to be completed in advance of and brought to the next module. 1 ›› The facilitator asks everyone to state one word to describe how they are feeling.

1. Adated from Claxton-Oldfield, S., Gibbon, L., & Schmidt-Chamberlain, K. (2011). When to Say “Yes” and When to Say “No” Boundary Issues for Hospice Palliative Care Volunteers. American Journal of Hospice and Palliative Medicine, 28(6), 429-434.

Module 3

Module 3 Boundaries, Understanding the GNP and Making Introductions

Module 3

Objectives ›› To understand boundaries for Compassionate Communities Volunteers. ›› To understand the elements of the Good Neighbour Intervention from referral – first visit. ›› To explore the process for assessing need. ›› To test out formulae of words in a practice and rehearsal situation based on the case study

Module Overview

Part 1:

Time Allocation

Resources Required

10 minutes

Ground rules from Module 1 on wall.

Welcome and Practicalities

Candle Collect the declarations of confidentiality (Module 2)

Part 2:

45 minutes

Boundaries

Part 3:

Completed boundaries questionnaire (from Module 2) Boundaries Guidelines Appendix Q

20 minutes

Overview of The Good Neighbour Partnership

GNP Leaflet (Module 1) Screening and Referral Forms Appendix R Assessment Forms and Phone Record Appendix S Good Neighbour Agreement, Record of Hours and Handling Money Forms Appendix T

Tea / Coffee

15 minutes

Part 4:

5 minutes

Ice Breaker

Part 5:

50 minutes

Case Study Appendix U

Case Study

Part 6:

5 minutes

Closing Exercise and Homework

Module 3

Detailed Module Guide for Facilitators

Part 1 Welcome and practicalities Total Time: 10 minutes

›› The facilitator welcomes everyone to the 3rd module, reminding people briefly of the ground rules and housekeeping as per module 1. ›› The facilitator collects the signed declarations of confidentiality from each participant ›› The designated participant lights the candle. ›› The facilitator moves around the group asking for one word to describe how each person is feeling.

Part 2 Boundaries

Total Time: 45 minutes

›› At the end of Session 2, each participant was asked to complete the boundaries questionnaire Appendix P. ›› The facilitator records the results for each question from each participant by asking people to raise their hand indicating their response for each question. ›› A tally is kept on the flip chart.

Facilitators' notes: it is important to ensure that the group are aware that there are some elements that are obviously acceptable or unacceptable, but there are many grey areas. Allow some debate and discussion. Those who may be ‘at odds’ with the rest of the group may discuss their thoughts if they wish.

›› The facilitator explains that this exercise was done during the pilot training programme with a group of volunteers. ›› On the authors recommendation, the group developed a boundaries guideline which has been adopted by the Good Neighbour Partnership.1 ›› Distribute the guideline Appendix Q and read through with the group. ›› Confirm that the group is willing to accept these boundaries as the agreed boundaries for the project.

1: The boundaries questionaire was developed and discussed by Claxton-Oldfield, S., Gibbon, L., & Schmidt-Chamberlain, K. (2011). When to Say “Yes” and When to Say “No” Boundary Issues for Hospice Palliative Care Volunteers. American Journal of Hospice and Palliative Medicine, 28(6), 429-434.

Module 3

Part 3 Overview of the Good Neighbour Partnership Total Time: 20 minutes

The facilitator refers back to the leaflet given during Module 1 Appendix A and reads through it with the group. On the flip chart the facilitator draws a flow diagram explaining how the Good Neighbour Partnership works, talking briefly through each step as follows: ›› A referral comes into the Compassionate Communities Office Appendix R. ›› The co-ordinator calls a Compassionate Communities Volunteer to determine if they are available over the following 8 weeks to provide support to the person. ›› Details are given to the Compassionate Communities Volunteer by the Good Neighbour Partnership Co-ordinator. ›› The Compassionate Communities Volunteer makes contact (within 24 hours) with the person by phone to arrange a first visit. Notes from the call are recorded on the Phone Record Appendix S. ›› The volunteer visits the person. During this visit the volunteer: ✓✓ B - Break the Ice ✓✓ E - Explain the Good Neighbour Partnership ✓✓ A - Assess the Person's Social Network Appendix S ✓✓ N - Network of Community Identification ✓✓ S - Summarise and Agree the Action plan ›› The Compassionate Communities Volunteer makes contact with the people outlined on the action plan within 72 hours asking them to help and to sign the agreement form Appendix T. They are also asked to keep a record of the time spent with the person Appendix T. In the event that their task involves handling money, they are given the appropriate form Appendix T. ›› The volunteer communicates the outcome to the person by phone (or visit if needed). ›› The volunteer visits after 4 weeks to see how everything is progressing. ›› The volunteer visits again at 8 weeks to close the process or to offer a further period of intervention as deemed necessary. The facilitators asks the group if they understand the process and if they have any questions at this point.

Module 3

Part 4

Ice Breaker

Total Time: 5 minutes

›› The facilitator asks each person to take off their left shoe. ›› The facilitator acknowledges that they hope everyone did so – from this point on, we are asking people to ‘give it a go’. We are using a case study approach from this point forward – acknowledge that this is somewhat artificial but it provides people with an opportunity to test out their formula of words.

Part 5

Case Study Appendix U Total Time: 50 minutes

The facilitator introduces the case study and works through the document as follows: ›› Read through the background section with the group and answer any questions that may arise (15 minutes) ›› Ask the group to break into pairs and read through the initial phone call (5 minutes) ›› Bring the group back together and asks them if they have any questions about the phone call (10 minutes) ›› Read through the section – Preparing for the initial meeting with the group and answer any questions they may have (10 minutes) ›› Ask the group to break into pairs and read through the breaking ice section (10 minutes)

Part 6

Closing Exercise and Homework Total Time: 5 minutes

›› The facilitator notes that a key element of the process is for the Volunteer to be able to describe briefly and correctly what the Good Neighbour Partnership is about. The leaflet is there as an aid, and there is guidance in the case study but each person must find their own formula of words. Over the next week, the facilitator asks the group to take the time to describe the partnership to someone they know. Participants should check in with the person they have described it to, to determine if they understand what has been said. ›› The facilitator thanks everyone for their contribution. ›› The facilitator asks everyone to state one word to describe how they are feeling.

Module 4

Assessing Social and Practical Needs, Identifying Circles of Community, Developing and Agreeing Action Plans

Module 4

Objectives ›› To reflect on feedback from the group regarding their practice of the explanation of the GNP with others outside the group. ›› To identify a process for assessing need and to examine the documentation. ›› To develop strategies for dealing with emotions e.g: anger, sadness. ›› To understand how social networks are constructed and what is meant by a person’s circle of community. ›› To develop strategies to assess social networks and examine associated documentation. ›› To understand how action plans are developed in collaboration with the person. ›› To understand the agreement form that is completed by the Good Neighbour.

Module Overview

Part 1

Time Allocation

Resources Required

5 minutes

Ground rules on wall from module 1.

Welcome and practicalities

Part 2:

Candle 10 minutes

Case Study Appendix U

Recap on Case Study – Module 3.

Part 3:

20 minutes

Feedback from Practicing the GNP Explanation

Part 4:

20 minutes

Assessment Form Appendix S

Assessing Need and Documentation

Part 5:

15 minutes

Dealing with Emotions

Tea / Coffee

15 minutes

Part 6:

25 minutes

Social Networks

Part 7:

Additional readings (see below) Assessment Form Appendix S

15 minutes

Assessment Form Appendix S

20 minutes

Good Neighbour Agreement Appendix T

Action Plan

Part 8: Approaching the Community

Record of Hours Appendix T Handling Money Forms Appendix T

Part 9: Closing Exercise and Homework

5 minutes

Module 4

Detailed Module Guide for Facilitators

Part 1 Welcome and practicalities Total Time: 5 minutes

›› The facilitator welcomes everyone to the 4th module, reminding people briefly of the ground rules and housekeeping as per module 1. ›› The designated participant lights the candle. ›› The facilitator moves around the group asking for one word to describe how each person is feeling. ›› The facilitator explains the plan for the module.

Part 2 Recap on Case Study – Module 3. Total Time: 10 minutes

›› The facilitator recaps on progress through the case study, asking the group if they are happy with the plan so far and addressing questions and comments as necessary.

Part 3 Feedback from Practicing the GNP Explanation Total Time: 20 minutes

›› The facilitator invites comment regarding the participants' experience of explaining the GNP to others outside the group. Did the other people understand their explanation? ›› Invite 2 people to share their explanation with the group.

Facilitators' notes: It is important that participants recognise this is a key element within their role – they must be able to describe the GNP accurately and succinctly. The leaflet is there to help.

Part 4 Assessing Need and Documentation Total Time 20 minutes

›› The facilitator asks the group to break into threes and invites the group to read and work through the case study regarding the assessment of need. ›› The documentation regarding assessment of need is discussed after the role play with the group Appendix S.

Module 4

Part 5 Dealing with Emotions Total Time 15 minutes

The facilitator notes that in the role play, the woman expresses sadness. As volunteers they may need to deal with an array of emotions. The facilitator invites the group to reflect on this. What emotions might they be confronted with. How would the volunteer react? Refer back to communication skills module during the discussion.

Part 6 Social Networks

Total Time 25 minutes

The facilitator distributes copies of ›› Abel, J. Bowra, J. Walter, T. Howarth G. (2011). Compassionate community networks: supporting home dying BMJ Supportive & Palliative Care 2011;1:129–133. doi:10.1136/ bmjspcare-2011-000068 ›› Abel J, Walter T, Carey LB, et al. Circles of care: should community development redefine the practice of palliative care? BMJ Supportive & Palliative Care 2012;0:1–6. doi:10.1136/ bmjspcare-2012-000359 To the group and uses the flip-chart to draw a series of circles

Wider community Neighbours Work colleages / Team mates Friends Other Family children / parents Partner Self

Module 4

›› The facilitator explains that each of us has our own circle of community. Each circle will be different, so as volunteers we need to suspend our assumptions and work with the person’s circle. In order to do that we need to identify who is in that network. Facilitators' notes: The papers are for background reading only ›› The facilitator asks the group to go back into groups of threes and read through the next part of the case study – assessing social networks and associated section of the assessment form Appendix S. ›› The facilitator invites questions and comments.

Part 7 Action Plan

Total Time 15 minutes

›› The facilitator asks the group to read the action plan section of the case study in their small groups of three and consider the associated section of the form. ›› It is noted that a copy of this is left with the person requiring support so that both parties know what has been agreed. ›› The facilitator invites questions and comments.

Part 8 Approaching the Community Total Time: 20 minutes

›› The facilitator points out that within 72 hours of leaving the person to whom they are assigned, they must approach the people as agreed in the action plan. ›› The group split into pairs and read through the Approaching the Community section of the case study ›› The facilitator introduces the Good Neighbour Agreement Form Appendix T to the group and answers any questions that arise from the group.

Part 9 Homework and Closing Exercise Total Time: 5 minutes.

›› The facilitator encourages participants to read the papers as they provide background to the approach of mobilising the person’s circle of community. ›› The facilitator thanks everyone for their contribution. ›› The facilitator asks everyone to state one word to describe how they are feeling.

Module 5

Module 5 Practice and Rehearsal

Module 5

Objectives ›› To give participants an opportunity to work through each stage of the Good Neighbour Partnership Intervention with professional actors. ›› To provide participants with constructive feedback as they practice and rehearse. ›› To enable participants to identify areas where they may need to focus their efforts before meeting a person who wishes to avail of the Good Neighbour Partnership.

Module Overview

Part 1:

Time Allocation

Resources Required

5 minutes

Ground rules from Module 1 on wall.

Welcome and introductions

Candle Part 2:

8 minutes

Scenarios Appendix V

Plan for the Session

Part 3:

9 minutes

Practice and Rehearsal Session 1: Introduction, Setting People at Ease and Explaining The Good Neighbour Partnership

Part 4:

9 minutes

Feedback Practice and Rehearsal Session 1

Part 5:

13 minutes

Practice and Rehearsal Session 2: Identifying and Prioritising Social and Practical Needs

Part 6:

13 minutes

Feedback Practice and Rehearsal Session 2

Part 7:

9 minutes

Practice and Rehearsal Session 3: Identifying the Social Network

Part 8:

9 minutes

Feedback Practice and Rehearsal Session 3

Tea / Coffee

15 minutes

Module 5

Part 9:

14 minutes

Practice and Rehearsal Session 4: Developing and Agreeing the Action Plan

Part 10:

9 minutes

Feedback Practice and Rehearsal Session 4

Part 11:

14 minutes

Practice and Rehearsal Session 5: Contacting and Mobilising the Community

Part 12:

14 minutes

Feedback Practice and Rehearsal Session 5

Part 13:

7 minutes

Closing Exercise and Homework

Detailed Module Guide for Facilitators NB it is recommended that there is one facilitator and one actor assigned to each group of 3-5 (Max) people. The new facilitators and actors are briefed before the session commences.

Facilitator Notes: Working with Actors

Using experienced actors is hugely beneficial in supporting people in communication training of all kinds. It takes the pressure off group participants to ‘perform’ as the only people playing a role are the actors; group participants are not ‘role playing’, but they are simply practicing and rehearsing elements of the volunteer role that they will be undertaking. Actors can be found through the education departments of some Specialist Palliative Care Services or via most University Medical Schools. Before the session starts, the facilitators must brief the actors. This should take about 15 minutes as the actors will be working through the pre-prepared scenarios and are not learning a script. ›› In advance of the session the following is written onto a sheet of flip chart paper: ✓✓ B - Break the Ice ✓✓ E - Explain the Good Neighbour Partnership ✓✓ A - Assess the Person's Social Network Appendix S ✓✓ N - Network of Community Identification ✓✓ S - Summarise and Agree the Action plan

Module 5

Part 1 Welcome and Introductions Total Time: 5 minutes

›› As additional facilitators and actors are present, each person in the room is invited to say ‘Hello’ and their first name. ›› The designated participant lights the candle. ›› The facilitator moves around the group asking for one word to describe how each person is feeling.

Part 2 The Plan for the Session Total Time: 8 minutes

›› The facilitator explains that this session is about practicing and rehearsing everything that has been learned and discussed to date. ›› The facilitator explains that the group will be divided into smaller groups (Max of 5 people). Each group will be assigned an actor and a facilitator. ›› The facilitator notes that there will be strict focus on time, to ensure that everyone gets through all 5 of the key stages of the intervention. ›› The facilitator refers to the flip chart outlining the 5 stages – this frames the stages of the practice and rehearsal. ›› The facilitator explains the role of each facilitator in the groups, outlining that they are there to oversee time keeping, to stop and start the session if people are running into any difficulty and to give constructive feedback. ›› The facilitator explains that each volunteer will practice one or perhaps two stages of the intervention, depending on the numbers in each group. ›› The facilitator reminds everyone about the shoe exercise (Module 3) and encourages everyone to relax and ‘give it a go’. ›› The facilitator assigns people to groups. Three sets of role plays have been developed Appendix V. These are distributed to the groups.

Module 5

Part 3 Practice and Rehearsal Session 1: Introduction, Setting People at Ease and Explaining The Good Neighbour Partnership Total Time 9 minutes

In small groups the role-play commences. Key learning points for facilitator feedback: ›› Ability to put people at ease ›› Ability to pick up cues ›› Simple and clear explanation of the GNP ›› Possibly introduce the leaflet

Part 4 Feedback Practice and Rehearsal Session 1 (Total Time 9 minutes)

The groups stop and become one group, working collectively together with a lead facilitator seeking feedback from each group against the learning points above asking: ›› Volunteers: How was it for you? ›› Actors: How was it for you? Understand? How did you feel? ›› Facilitators: Any thoughts?

Part 5 Practice and Rehearsal Session 2: Identifying and Prioritising Social and Practical Needs Total Time 13 minutes

Staying in the same small groups, the role play recommences. Key learning points for facilitator feedback: ›› Identifying social and practical needs ›› Dealing with emotions (anger / sadness) / cognitive decline ›› Introduce the form ›› Summarise the needs verbally

Module 5

Part 6 Feedback Practice and Rehearsal Session 2 Total Time 13 minutes

Part 7 Practice and Rehearsal Session 3: Identifying the Social Network Total Time 9 minutes

Staying in the same small groups, the role-play recommences. Key learning points for facilitator feedback: ›› Using the concentric circle model…probe and identify the network ›› Ability to respond to ‘no-one’ to help me ›› Ability to respond to ‘I couldn’t ask’ ›› Ability to respond to ‘I don’t want to be a burden’

Part 8 Feedback Practice and Rehearsal Session 3 Total Time 9 minutes

Module 5

Part 9 Practice and Rehearsal Session 4: Developing and Agreeing the Action Plan Total Time 14 minutes

Staying in the same small groups, the role-play recommences. Key learning points for facilitator feedback ›› Agreeing action plan ›› Completing the form ›› Identifying levels of disclosure ›› Saying Good bye

Part 10 Feedback Practice and Rehearsal Session 4 Total Time 9 minutes

Part 11 Practice and Rehearsal Session 5: Contacting and Mobilising the Community Total Time 14 minutes

The facilitator asks the actor to swap groups and assume a new role – that of a person within the person’s circle of community being asked to provide help. Staying in the same small groups, the role-play recommences. Key learning points for facilitator feedback ›› Introducing yourself ›› Responding to offer of donations (money) ›› Responding to people who would like to gossip re: illness ›› Responding to insurance questions ›› Responding to people who say no ›› The agreement and time-keeping form

Module 5

Part 12 Feedback Practice and Rehearsal Session 5 Total Time 14 minutes

Part 13 Closing Exercise

Total Time 7 minutes

›› The facilitator thanks everyone for their contribution – acknowledging that it is a somewhat false situation and time limited. The facilitator invites some closing thoughts from the group. ›› The facilitator asks everyone to state one word to describe how they are feeling.

Module 6

Module 6: .

Module 6 Safety, Self Care, Emergencies and Endings

Module 6

Objectives: ›› To determine how participants are feeling after the practice and rehearsal module and discuss as a group. ›› To discuss the agreed guidelines for personal safety. ›› To ensure that all volunteers know what to do in an emergency. ›› To consider how volunteers will deal with endings. ›› To discuss the importance of self care. ›› To recap on the areas covered in Modules 1-5. ›› To address any outstanding questions from volunteers. ›› To present certificates of completion and celebrate! ›› To communicate the plan for the future.

Module Overview

Part 1:

Time Allocation

Resources Required

10 minutes

Ground rules on wall from module 1

Welcome and Practicalities

Part 2:

Candle 15 minutes

Thoughts on Practice and Rehearsal

Part 3:

15 minutes

Handout Appendix W

15 minutes

Handout Appendix X

Personal Safety

Part 4: Emergencies

Part 5:

15 minutes

Endings

Part 6:

20 minutes

Handout Appendix Y

Self Care

Part 7:

20 minutes

Recap of Programme and Review of Expectations

Part 8:

30 minutes

Certificate Appendix Z

Certificate Ceremony and refreshments

Part 9:

10 minutes

Closing Exercise

Module 6

Details Module Guide for Facilitators

Part 1 Welcome and Practicalities 10 minutes.

›› The facilitator welcomes the group, acknowledging that this is the final module. ›› The facilitator explains the plan for the session and mentions that the tea / coffee break will be at the end. ›› The facilitator moves around the group asking for one word to describe how each person is feeling.

Part 2 Thoughts on Practice and Rehearsal 15 minutes

›› The facilitator refers back to the practice and rehearsal session held in the previous module, asking the group for their thoughts and learning from the sessions. ›› The facilitator recaps on the five stages of the process, using the flip chart page from the previous module. ✓✓ B - Break the Ice ✓✓ E - Explain the Good Neighbour Partnership ✓✓ A - Assess the Person's Social Network Appendix S ✓✓ N - Network of Community Identification ✓✓ S - Summarise and Agree the Action plan

Part 3 Personal Safety 15 minutes

›› The facilitator distributes a handout on personal safety Appendix W, acknowledging that the participants and should use common sense. ›› The facilitator reads through the document with the group, inviting questions. ›› Take away message – if it doesn’t feel right, don’t do it. ›› Invite questions from the group.

Module 6

Part 4 Emergencies 15 minutes

›› The facilitator distributes a handout on Emergencies Appendix X again acknowledging that the participants and should use common sense. ›› The facilitator reads through the document with the group, inviting questions. ›› The facilitator explains that if an incident occurs, it must be reported to the Good Neighbour Partnership Co-ordinatior immediately and an incident report form will be completed in line with Milford Care Centre policy. ›› Invite questions from the group.

Part 5

Endings

15 minutes

›› The facilitator notes that during the course of working with the Good Neighbour Partnership, volunteers will experience endings, as they do throughout life. The facilitator notes that the person supported by the volunteer may die or cease involvement with the initiative. As a volunteer, they may decide at some point to leave the initiative. ›› The facilitator asks the group how they feel about this and invites open discussion. ›› During the discussion the facilitator notes that the Good Neighbour Partnership is structured and this makes endings a little easier as everyone is aware of the time-frames involved from the start. Volunteers can flag with people at relevant points how long remains to work with the person e.g. “we are half way through the 8 weeks now” or “this is our last meeting today”.

Facilitators' notes: During this discussion, it is important to mention that the person may die during the eight weeks and it is the decision of the volunteer regarding whether they choose to attend the person’s funeral ceremony.

Part 6 Self Care

20 minutes

›› A handout of a boat1 Appendix Y is distributed and the group are asked to reflect on that for a few moments. The facilitator asks “Over the last week, how did you distribute your time? Are there any areas of the boat that need more attention?” The facilitator notes that in order for us – or the boat – to remain balanced, we need to be doing something about all the areas in a balanced way. ›› The facilitator acknowledges that as volunteers, the group are of very little use to people unless they themselves are well and ‘in a good place’. Self care is important. The Good Neighbour Partnership has agreed elements e.g. boundaries and a support structure built in that aims to protect volunteers and give them a framework to work in. It is equally important that each person takes responsibility for their own self care. 1

Adapted from Powell, T (2008). The Mental Health Handbook.

Module 6

›› The facilitator invites each person to tell the group something they do to relax, de-stress, make themselves feel good. The facilitators write this on the flip chart. When everyone has mentioned at least one thing, the facilitator refers to the list as a menu of self care options – there might be something else on there that we might like to try as we look after ourselves.

Part 7 Recap on Programme and Review of Expectations 20 minutes

›› The facilitator recaps on what has been covered over the 6 week programme, acknowledging that a lot of material has been absorbed by the group. ›› The facilitator asks the group to discuss their experience of engaging in the programme and their thoughts at this stage. ›› The facilitator takes out the list of expectations developed in Session 1 and shared it with the group, ticking off all the areas that have been covered and addressing any that have not, explaining the reason why as appropriate. ›› The facilitator invites final questions from the group.

Part 8 Certificate Ceremony ›› A certificate is given to each participant Appendix Z. ›› Refreshments are served.

Part 9 Closing Exercise ›› The facilitator describes the next steps for the programme and outlines when and how volunteers will be contacted in the future. ›› The facilitator thanks everyone for their contribution. ›› The facilitator asks everyone to state one word to describe how they are feeling, writes them on a flip chart and compares them with the flip chart of words generated by the group at the start of Module 1.

Appendix A The Good Neighbour Partnership Leaflet

We are here to help

Social and practical support for people living with palliative care needs

Mi l

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Good Neighbour Partnership

dC for ar

What is the Good Neighbour Partnership about? Living with a serious illness can be difficult. It can be hard to do the ordinary, everyday things when you have to cope with not feeling well, think about appointments or juggle the demands of caring. Often friends and neighbours want to help, but are sometimes unsure how to. Milford Care Centre, through the Compassionate Communities Project, is piloting a Good Neighbour Partnership to offer FREE social and practical support to people living with palliative care needs, who may be in their last year of life.

How does it work? We have a panel of volunteers, who have been trained and Garda vetted. Upon request, they can arrange to meet a person who is living with advanced illness, and/or their family, to discuss what extra social and practical support that person may need at home. They discuss, who, within the personâ&#x20AC;&#x2122;s circle of community might be able to meet the needs identified e.g. extended family, a friend, a neighbour or other local community based initiatives. With the personâ&#x20AC;&#x2122;s permission, the volunteer contacts the agreed people in the community to ask them to help with the needs identified.

What social and practical help can be provided?

We can help with things like: ✓ Shopping ✓ Collecting Prescriptions ✓ Transportation (e.g. to medical appointments, town or church) ✓ Lighting a fire ✓ Light gardening ✓ Meals ✓ Help with pets ✓ Writing letters / non-legal forms ✓ Befriending – someone to chat with, read the paper ✓ Sitting with a person whilst a family member takes a break ✓ Small household repairs e.g. change a light bulb, replace a handle on a cupboard ✓ Light housework e.g. changing the linen, hanging out washing, cleaning windows

Who can get help? We can offer support free of charge to people living with palliative care needs and who may be in their last year of life. The pilot extends across Limerick City and Limerick County.

How long is help provided for? Initially the Partnership commits to providing support for 8 weeks. This is subject to review to determine further support requirements.

How can I get involved? If you, or someone you know would like to avail of support from the Good Neighbour Partnership, or would like to volunteer with us, please contact:

â&#x2DC;&#x17D; Dr Kathleen McLoughlin 089 466 7915 or

â&#x153;&#x2030; email: k.mcloughlin@milfordcarecentre.ie Who funds the Good Neighbour Partnership? The Good Neighbour Partnership is an initiative of Milford Care Centre. This is a pilot project supported by Maynooth University, The All Ireland Institute of Hospice and Palliative Care, The Irish Cancer Society and The Irish Hospice Foundation.

Appendix B Information Sheet and Application Form for Compassionate Communities Volunteers

Social and practical support for people living with palliative care needs

Information Sheet for Potential Volunteers We’re looking for Compassionate Communities Volunteers Milford Care Centre, through the Compassionate Communities Project, is developing a Good Neighbour Partnership to offer free social and practical support to people living with palliative care needs in Limerick City and County.

What’s Compassionate Communities all about? The experience of illness, dying and death affects all of us, but these issues are never easy to deal with. Sometimes we aren’t sure what we should say or what we should do. Talking about death and dying is difficult. We often don’t know how we might help someone even when we want to. But not facing up to illness and loss as an important part of life only makes it harder for everyone. The Compassionate Communities Project is an initiative of Milford Care Centre. We are here to support people in the Mid-West to think a little differently about death, to encourage people to plan ahead, talk with others and offer practical support within the community to those facing the end of life. A small change in our attitude toward death can make a big difference to how we live. A Compassionate Community is one in which we support each other in the face of death, dying, loss and care. You can find out more about the Compassionate Communities Project on our website: www.compassionatecommunities.ie You can read about the work of Milford Care Centre here: www.milfordcarecentre.ie

So How Does The Good Neighbour Partnership Fit In? The Compassionate Communities Project has three core areas of activity. One of these is the development of a volunteer-led community based model of social and practical support for people who are living at home; with an advanced illness and who have a life expectancy of approximately 12 months. We call this model The Good Neighbour Partnership. We would all like to live in an area where people look out for and help each other. This creates a sense of belonging for those who receive the support and it also gives those who help a sense of purpose as they ‘give something back’ to their community. Living with a serious illness can be difficult. It can be hard to do the ordinary everyday things when you have to cope with not feeling well, or think about doctors’ appointments, go to and from hospital or juggle the demands of caring. Often friends and neighbours want to help, but are sometime unsure how to.

tre

Good Neighbour Partnership

Cen

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rd lfo C

Milford Care Centre, through the Compassionate Communities Project, is coming together with community organisations to create a Good Neighbour Partnership to offer free social and practical support to people living with palliative care needs in Limerick. Compassionate Community Volunteers supported by Milford Care Centre and local community organisations are at the heart of the Good Neighbour Partnership. The aims of the Good Neighbour Partnership are: ›› To enable people living with palliative care needs in the community to identify their social and practical needs ›› To enable the social and practical needs to be met from within the person’s circle of community In fulfilling these aims, there may be an impact on a person’s quality of life, psychosocial wellbeing and unplanned health service use. The Good Neighbour Partnership is not a service provided by an organisation, but is about what members of communities can do for each other, supported by Milford Care Centre and local community organisations.

What Help Can the Good Neighbour Partnership Provide? The Good Neighbour Partnership can assist the person affected by advanced illness, and their family, to find the extra social and practical support that they may need from within their community by making links with those living close-by who would like to offer help. The Partnership can find additional help for things like walking the dog, doing the shopping, collecting a prescription, going to the library, filling a coal bucket, lighting the fire, mowing the lawn, making a snack, tidying up or sitting with a person who needs a break. It doesn’t involve providing personal care physical care, heavy lifting of people or objects and cannot help with medical or financial matters.

So, You’re Looking for Compassionate Community Volunteers? Yes. We are looking for Compassionate Communities Volunteers and local community organisations who are interested in working with us. We know that some community organisations already have an interest in areas like this and we would like these community organisations to partner with us with a view to possibly supporting the initiative into the future, to ensure sustainability. Volunteers will be initially registered as Milford Care Centre Volunteers and we will pilot this project for 18 months.

So, What Type of Person Are You Looking For? Someone who… ›› Has maturity, common sense and the ability to be discrete and sensitive ›› Has a good understanding of confidentiality ›› Is confident and out-going, relates well to others and communicates effectively ›› Is respectful and non-judgmental at all times ›› Has a good sense of humour

›› Is a good organiser and who doesn’t mind a bit of paperwork ›› Has a good sense of personal boundaries and a clear understanding of purpose of the role ›› Has been nominated by a community organisation, is person of good standing and will become a volunteer with us Volunteers will have Garda Clearance; references checked and will be selected by interview. They will be provided with initial training and on-going support by Milford Care Centre. As part of that training, they will be given a manual to help them understand their role, what is expected of them and what they can expect from us. The role of a Compassionate Community Volunteer with the Good Neighbour Partnership is to make the link between a person / family living with palliative care needs as home, and those in their circle of community who are able to offer support – to seek out and enlist the “Good Neighbour” capacity within local communities. If you don’t think you can commit to being a Compassionate Communities Volunteer, but you are happy to help as a Good Neighbour doing some of the practical tasks we would love to add you to a pool of volunteers. We may then call on you in the event that someone has noone within their own circle of community to help.

Who Can Be Supported by The Good Neighbour Partnership? The Good Neighbour Partnership is available to people considered to be in their last year of life, living with palliative care needs in Limerick City and County. We also support families / carers of people living with palliative care needs. Referrals will be made by Milford Care Centre’s Hospice at Home Team, from any member of a Community Based Primary Care Team or self-referrals can be made directly to The Good Neighbour Partnership Co-ordinator (Dr Kathy McLoughlin 061 201 769 or 089 4667915 k.mcloughlin@milfordcarecentre.ie). We hope to accept referrals from April 2015.

So What Happens When a Referral Is Made? The Good Neighbour Partnership Co-ordinator will appoint a Compassionate Communities Volunteer, taking into account the person’s needs, geographical location, personalities, availability and experience. Compassionate Communities Volunteers will meet with the person four times during the 8 -week cycle. Visit One: The assigned Compassionate Communities Volunteer will visit the person at a mutually agreed time, in the person’s own home, to identify their social and practical needs and the type of support required. They will identify with the person, who in their circle of community they would be happy to approach to enable these needs to be met. For the purposes of this document, we shall refer to these people as “Good Neighbours”. An agreement will be reached regarding a plan of action. This may involve the person requiring support directly approaching the identified Good Neighbours to enable their needs to be met, perhaps agreeing a formula of words to “break the ice”. Alternatively, it may involve

the Compassionate Communities Volunteer directly asking the agreed Good Neighbours to engage in the tasks identified. In the event that no-one has been identified in the personâ&#x20AC;&#x2122;s circle of community, then an agreement will be reached to approach community organisations to determine if they are in a position to enable the need to be met. As part of this visit, data will also be collected for the research study. It is anticipated that this visit will take 60 minutes. Visit Two / or Phone Call: Once agreement has been reached regarding who will complete the specific tasks, the Compassionate Communities Volunteer will report back to the person requiring support, to update them as to who will do what, and when. It is anticipated that this visit will take 20 minutes. Depending on the situation, it may be necessary to accompany the Good Neighbours completing the task on their first visit, to introduce them to the person who requires support. Assistance is provided without an expectation or implication of payment or other reward or benefit. Visit Three: Three / four weeks after the first visit, the Compassionate Communities Volunteer will visit again, to determine if the arrangements are working well or if there needs to be any changes to the plan / modified supports. A small mid-way evaluation will also be conducted during this visit. It is anticipated that this visit will take 30 minutes. Visit Four: Eight weeks after the first visit, the Compassionate Communities Volunteer will visit again to evaluate the process and determine if any additional support is required. It is anticipated that this visit will take 30 minutes. All visits will be agreed in advance and will be made by appointment only. On the first cycle of visits, the Compassionate Communities Volunteer will be supported by a staff member from Milford Care Centre. Compassionate Communities Volunteers are asked to keep a record of their visits on the Good Neighbour Partnership Report Form. These should include dates of visits, duration of visits, and type of activity undertaken. They are also asked to remind the â&#x20AC;&#x153;Good Neighboursâ&#x20AC;? to also keep a note of their visits on these forms too. At the end of the eight week cycle, these forms are returned to the Good Neighbour Partnership Co-ordinator. The evaluation components have been added to the model so that we can ensure that the project makes a difference and to determine what improvements we need to make to the partnership we are developing.

Mileage and parking expenses We do not expect anyone to be out of pocket for their work with the project.

What Support Will Compassionate Communities Volunteers Get? Compassionate Communities Volunteer will have access to the Compassionate Communities Good Neighbour Partnership Project Co-ordinator for support and advice as required. Once the partnership is up and running, regular opportunities for support and supervision will be provided.

What about Confidentiality? As a volunteer you will understand the importance of maintaining confidentiality will have access to the Confidentiality Policy and will sign a declaration of confidentiality.

How Long Will I Stay in Touch with the Person? The Compassionate Community Volunteer role with the Good Neighbour Partnership is short-term and this is a pilot scheme. We will review the situation after eight weeks and discuss any further commitment with you at that stage.

Who is Funding this Project? This project is funded by Milford Care Centre and The Irish Hospice Foundation. Research. Evaluation of the project is funded by The All Ireland Institute of Hospice and Palliative Care and The Irish Cancer Society and will be conducted in partnership with The Department of Psychology, NUI Maynooth.

How Do I Find Out More? Please contact usâ&#x20AC;Ś

Compassionate Communities Project 1st Floor Milford House Milford Care Centre Castletroy, Limerick www.compassionatecommunities.ie Email: k.mcloughlin@milfordcarecentre.ie Phone: 0894667915

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Milford Care Centre’s Compassionate Communities Volunteer Application Form All information is treated in confidence. If you are uncomfortable with any question, please leave it blank and we can discuss it when we meet Name: _____________________________________________________________________________________________ Address:___________________________________________________________________________________________ ____________________________________________________________________________________________________ ____________________________________________________________________________________________________ Phone:

Home: ________________________________

Mobile: __________________________________ Email:___________________________________________________ Next of Kin: Contact Number:____________________________________________________________ Occupation: Please tell us a little about your work history

Have you ever done voluntary work before? _________________________________________ Yes â?&#x2019; No â?&#x2019; Please outline _____________________________________________________________________________________________________ _____________________________________________________________________________________________________ _____________________________________________________________________________________________________ _____________________________________________________________________________________________________ _____________________________________________________________________________________________________ Why would you like to volunteer as a Compassionate Communities Volunteer?

____________________________________________________________________________ _____________________________________________________________________________________________________ _____________________________________________________________________________________________________ _____________________________________________________________________________________________________ What do you hope to gain from volunteering as a Compassionate Communities Volunteer? _____________________________________________________________________________________________________ _____________________________________________________________________________________________________ _____________________________________________________________________________________________________ _____________________________________________________________________________________________________ What attributes / qualities do you feel you feel you will bring to the role of Compassionate Communities Volunteer? _____________________________________________________________________________________________________ _____________________________________________________________________________________________________ _____________________________________________________________________________________________________ _____________________________________________________________________________________________________ _____________________________________________________________________________________________________ What experience (if any) do you have of supporting people living with advanced life limiting illness?

Have you experienced a significant loss in the last two years? Yes â?&#x2019; No â?&#x2019; _____________________________________________________________________________________________________ _____________________________________________________________________________________________________ _____________________________________________________________________________________________________ _____________________________________________________________________________________________________ Is there anything that might affect your participation as a Compassionate Communities Volunteer?

___________________________________________________________________________ _____________________________________________________________________________________________________

References The Good Neighbour Partnership will involve contact with people who may be vulnerable. We have to be very diligent in all our recruitment activities, both for paid staff and volunteers. We would therefore ask you to provide us with the names of three referees who know you well whom we can contact before we meet you â&#x20AC;&#x201C; one of which should be a professional e.g. present employer, nominating organisation, clergyman, solicitor, doctor, teacher or garda. Name:__________________________________________________________________________________________ Occupation:____________________________________________________________________________________ Address:________________________________________________________________________________________ Phone Number:________________________________________________________________________________ Email:___________________________________________________________________________________________

Name:__________________________________________________________________________________________ Occupation:____________________________________________________________________________________ Address:________________________________________________________________________________________ Phone Number:________________________________________________________________________________ Email:___________________________________________________________________________________________

Please use this space to add any other comments

Declaration I declare that the information I have given is, to the best of my knowledge, true and accurate. I agree to respect the policy of fidelity and confidentiality which operates in Milford Care Centre.

Signed:__________________________________________ Dated:

________________________________

Milford Care Centre will seek Garda Clearance for all people selected to go forward as Compassionate Communities Volunteers Please return this form to: Compassionate Communities Project 1st Floor Milford House Milford Care Centre Castletroy Limerick www.compassionatecommunities.ie k.mcloughlin@milfordcarecentre.ie 0894667915

Appendix C Letter of Invitation to Interview for Volunteers â&#x20AC;&#x201C; Template

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Insert date here

Dear insert personâ&#x20AC;&#x2122;s name, Thank you for your application to join the Compassionate Communities Projectâ&#x20AC;&#x2122;s Good Neighbour Partnership as a Compassionate Communities Volunteer. I would like to invite you for an interview on insert date and time here at insert venue here with insert name and titles here of interviewers. The interview will take approximately 30 minutes and will provide an opportunity for us to meet you, tell you more about the role, discuss what has interested you in volunteering with the project and answer any questions you may have. Based on the outcomes of the interviews, we will then select up to insert number here volunteers, who will be put forward for Garda Clearance and invited to attend a training programme insert training details here. I look forward to meeting you again at the interview and if you have any questions, or need to change the time of the interview please do contact me on my mobile insert number here, or email insert email here

Yours faithfully,

Insert name here Insert job title here

Appendix D Interview Questions for Compassionate Communities Volunteers

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Compassionate Communities Volunteer Interview Questions

1. Can you tell us a little of what you know about Milford? ______________________________________________________________________________________________ ______________________________________________________________________________________________ ______________________________________________________________________________________________ ______________________________________________________________________________________________ 2. What do you know about the GNP? ______________________________________________________________________________________________ ______________________________________________________________________________________________ ______________________________________________________________________________________________ ______________________________________________________________________________________________ 3. Why would you like to volunteers - what do you hope to gain? ______________________________________________________________________________________________ ______________________________________________________________________________________________ ______________________________________________________________________________________________ ______________________________________________________________________________________________

4. What experience (if any) do you have supporting people living with a life limiting illness? ______________________________________________________________________________________________ ______________________________________________________________________________________________ ______________________________________________________________________________________________ ______________________________________________________________________________________________ 5. Can you tell us a little about your own experience of illness / loss - what did you find helpful? ______________________________________________________________________________________________ ______________________________________________________________________________________________ ______________________________________________________________________________________________ ______________________________________________________________________________________________ 6. What attributes does a volunteer require? ______________________________________________________________________________________________ ______________________________________________________________________________________________ ______________________________________________________________________________________________ ______________________________________________________________________________________________ 7. What qualities will you bring to the role? ______________________________________________________________________________________________ ______________________________________________________________________________________________ ______________________________________________________________________________________________ ______________________________________________________________________________________________

8. Why do you think we are using volunteers and not paid staff? ______________________________________________________________________________________________ ______________________________________________________________________________________________ ______________________________________________________________________________________________ ______________________________________________________________________________________________ 9. What do you think will challenge you most? ______________________________________________________________________________________________ ______________________________________________________________________________________________ ______________________________________________________________________________________________ ______________________________________________________________________________________________ 10. What other volunteering experience do you have? ______________________________________________________________________________________________ ______________________________________________________________________________________________ ______________________________________________________________________________________________ ______________________________________________________________________________________________ 11. What availability do you have? ______________________________________________________________________________________________ ______________________________________________________________________________________________ ______________________________________________________________________________________________ ______________________________________________________________________________________________

Appendix E Garda Vetting Application Form

An Garda Síochána Use Only

Reference No.:

An Garda Síochána

GARDA VETTING APPLICATION FORM NOTE TO APPLICANT The Application Form must be completed in full using BLOCK CAPITALS (Please state N/A if details are not applicable) ! Writing must be clear and legible ! Return the completed form to xxxxxxxxxxxxxxxxxxxxxxxxxxx ! Do not send this form to The Garda Central Vetting Unit or to any Garda Station !

To be completed by the Applicant

SURNAME:

PREVIOUS NAME (if any):

FORENAME:

ALIAS:

DATE OF BIRTH:(dd/mm/yy)

PLACE/CITY OF ORIGIN:

HAVE YOU EVER CHANGED YOUR NAME?

Yes

IF YES PLEASE STATE FORMER NAME:

Please state all addresses from year of birth to present date House No.

Street

Town

County

Post Code

Country

Year From

Year To

Please Continue Overleaf

Have you ever been convicted of an offence in the Republic of Ireland or elsewhere? No

Yes DATE

Please provide details COURT

OFFENCE

COURT OUTCOME

DECLARATION OF APPLICANT I, the undersigned, who have applied for a position as a *________________________ hereby authorise An Garda SĂochĂĄna to furnish to _______________________ a statement that there are no convictions against me in the Republic of Ireland or elsewhere, or a statement of convictions and / or prosecutions, successful or not, pending or completed, in the State or elsewhere as the case may be, subject to the administrative filter implemented by the Minister for Justice and Equality on 31st March 2014. Signature of Applicant: _______________________________ ( ) * this field is mandatory

Date: _________________

______________________________________________________________________________________________

To be completed by xxxxxxxxxxx Line Manager/Contact Person: ____________________________ Location: ________________________ PLEASE PRINT ALSO ( ) Authorised Signatory: _______________________________ PLEASE PRINT ALSO ( ) Authorised Signatory Registration Number: _________

Date:

______________________

To be completed by the Garda Central Vetting Unit Checks were carried out by this office in accordance with current Garda Vetting policy and based on the information supplied in this application form. The results are as indicated below: No convictions Convictions Prosecutions are pending

NOTE : Checks were carried out at this office based on the information supplied. The convictions may apply to the subject of your enquiry. Please verify information disclosed with the applicant.

Signed: __________________________Member I/C

G.C.V.U.

Appendix F Statutory Declaration for Volunteers Awaiting Garda Vetting

STATUTORY DECLARATION I, of (Address) __________________________________________________________________________________________________________ in the County of ________________ aged eighteen years and upwards SOLEMNLY AND SINCERELY DECLARE as follow:1. This Declaration relates to my voluntary post as a ___________________________________________ with Milford Care Centre and to my suitability for volunteering therein. 2. I hereby declare that to the best of my knowledge and belief there is nothing in relation to my conduct, character or personal background of any nature that would adversely affect the position of trust in which I would be placed by virtue of my appointment to the above position. 3. I hereby confirm that I am not subject now to any investigation or pending prosecution by the Garda Siochana or other Police force on a matter that could adversely affect the position of trust in which I would be placed by virtue of my employment or which could adversely affect the effective discharge of my duties. 4. I further declare that I have given my irrevocable consent to Milford Care Centre to make or cause to be made full enquiries with the Central Vetting Unit of An Garda Siochana in relation to my suitability to hold a position with Milford Care Centre. I confirm that during my volunteering I may be subject to re-vetting in compliance with Milford Care Centre policy, or legislative requirements and hereby give my consent to same. 5. I further declare that by making this declaration, I shall undertake, without delay, to notify Milford Care Centre of any conviction received during my volunteering and understand that any such convictions will be subject to a risk assessment by Milford Care Centre. 6. I also declare that I shall undertake, without delay, to notify Milford Care Centre if I become the subject of a Garda Siochana or other Police force investigation into a matter that could adversely affect the position of trust in which I would be placed by virtue of my appointment to the above position or which could adversely affect the effective discharge of the duties of the post. 7. I further declare that I understand, accept and confirm the entitlement of Milford Care Centre to terminate my volunteering where I have omitted to furnish Milford Care Centre with any information relevant to my application or to my continued volunteering, or where I have made any false statement of misrepresentation relevant to this application or my continuing volunteering with Milford Care Centre. 8. I make this Solemn Declaration consciously believing it to be true for the satisfaction of Milford Care Centre and pursuant to the provisions of the Statutory Declarations Act 1938.

Signed: _____________________________________________________________________________________________________________ Print Name: ________________________________________________________________________________________________________ Date: _______________________________________________________________________________________________________________

Appendix G Referee Letter Template

Social and practical support for people living with palliative care needs

Insert referee name here Insert address here Insert date here Dear insert referee name here, Insert name and address of volunteer here has applied to become a volunteer with Milford Care Centreâ&#x20AC;&#x2122;s Compassionate Communities Good Neighbour Partnership. This involves visiting people who are in their last year of life at home to determine what their unmet practical needs are. I would be grateful if you could complete and return (in the envelope provided) the attached reference check to help us ensure the veracity of the information supplied by the volunteer for the safety of our clients and patients. If you wish to contact me further my number is insert here. Thank you in advance for the time you have taken to complete this reference request.

Yours sincerely,

Insert name and job title here

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Appendix H Sign in Sheet

Social and practical support for people living with palliative care needs

Volunteer Name

Volunteer Signature

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Appendix I Pre Course Evaluation Questionnaires

Social and practical support for people living with palliative care needs

Pre â&#x20AC;&#x201C; Course Evaluation Questionnaires INTRODUCTION Thank you for agreeing to participate in this phase of the INSPIRE study, where we will explore your experience as a Compassionate Community Volunteer engaging in The Good Neighbour Partnership and evaluate the training programme you are attending. The results of this study will inform the development of a larger study â&#x20AC;&#x201C; the INSPIRE study that will assess the effectiveness of a new model of social and practical support for people living with advanced life-limiting illness, at home, in Limerick, Ireland. Please complete the questionnaires in this pack. It should take about 10 minutes to complete the questions. You will be given a second pack of questionnaires on the final evening of the training programme. Thank you for your time and if you have any questions please contact one of the facilitators.

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SECTION ONE Please complete the following questions: 1.

Please tell us your date of birth: _____/______/______

Are you: Male ❒ Female ❒

KNOWLEDGE OF THE GOOD NEIGHBOUR PARTNERSHIP Please rate your knowledge of the Good Neighbour Partnership, by circling a number on the scale from 1-5 (where 1 - is no knowledge at all and 5 – excellent knowledge). 1 2 3 4 5

No knowledge at all

➞ Excellent Knowledge

SECTION 2 Please rate your confidence/comfort with the following situations, by circling a number on the scale from 1 (not at all confident/comfort) to 5 (extremely confident/comfort). (1) Introducing yourself to someone you don’t know. 1 2 3 4 5 Not at all confident ➞ Extremely confident or comfortable or comfortable

(2) Talking to people who have an advanced illness and who may be in their last year of life. 1 2 3 4 5 Not at all confident ➞ Extremely confident or comfortable or comfortable

(3) Asking someone what practical and social needs they would like help with. 1 2 3 4 5 Not at all confident ➞ Extremely confident or comfortable or comfortable

(4) Asking someone about their family and community network. 1 2 3 4 5 Not at all confident ➞ Extremely confident or comfortable or comfortable

(5) Approaching a stranger and asking them to help someone who is unwell, with practical and social tasks e.g. cutting the lawn. 1 2 3 4 5 Not at all confident ➞ Extremely confident or comfortable or comfortable

(6) Dealing with an emergency situation in someone’s home e.g. arriving and finding that someone has collapsed. 1 2 3 4 5 Not at all confident ➞ Extremely confident or comfortable or comfortable

(7) Coping with the death of a neighbour who you help out regularly. 1 2 3 4 5 Not at all confident ➞ Extremely confident or comfortable or comfortable

(8) Communicating with a person who has dementia 1 2 3 4 5 Not at all confident ➞ Extremely confident or comfortable or comfortable

(9) Spending time with someone who cries a lot 1 2 3 4 5 Not at all confident ➞ Extremely confident or comfortable or comfortable

(10) Helping someone who is very angry 1 2 3 4 5 Not at all confident ➞ Extremely confident or comfortable or comfortable

(11) Knowing when you need some support 1 2 3 4 5 Not at all confident ➞ Extremely confident or comfortable or comfortable

SECTION 3 For each of the items below, please rate how certain or uncertain you are that you can perform each one, using this scale from 0-10. 0 1 2 3 4 5 6 7 8 9 10

Highly â&#x17E;&#x17E; Moderately â&#x17E;&#x17E; Completely Uncertain Certain Certain

Please Insert Rating Here 1. Understand the limits of your role as a volunteer 2. Be sensitive to the needs of the patient and his/her family 3. Buy life insurance (for you) 4. Allow the patient and his or her family to support you 5. Handle the death of a grandparent 6. Listen to the concerns of the dying patient 7. Listen to the family of a dying patient 8. Touch a dead body 9. Identify the concerns of a dying patients and his or her family 10. Communicate with the hospice team about the patient 11. Get a medical check-up (for you)

0 1 2 3 4 5 6 7 8 9 10

Highly â&#x17E;&#x17E; Moderately â&#x17E;&#x17E; Completely Uncertain Certain Certain

12. Handle the illness of your child 13. Handle knowing that a family member has a fatal condition 14. Provide physical care for a hospice patient 15. Assist in transporting a hospice patient 16. Prepare your will 17. Run errands for the patient 18. Listen to a news report of multiple deaths 19. Communicate with a dying patient 20. Ask someone close to you if he / she has a terminal illness 21. Allow a patient to communicate fully 22. Purchase your own cemetery plot 23. Cope with the death of your mother 24. Ask whether you have a terminal illness 25. Cope with the death of your father 26. Visit a dying friend 27. Provide emotional support for a patients family 28. Care for the patient so that the family can have some space

0 1 2 3 4 5 6 7 8 9 10

Highly â&#x17E;&#x17E; Moderately â&#x17E;&#x17E; Completely Uncertain Certain Certain

29. Go to a morgue 30. Write a living will 31. Understand the philosophy of hospice 32. Plan your funeral service 33. Sign a card to be an organ donor 34. Attend a funeral or wake where the casket is open 35. Understand bereavement and grief 36. Cope with the death of your child 37. Handle the death of your spouse 38. Cope with the death of a friend the same age as you 39. Tolerate spiritual and religious differences 40. Cope with the death of your pet 41. Care for yourself if you are experiencing stress in caring for a dying patient 42. Be with a person at the time of death 43. Be with a person experiencing unpleasant physical symptom 44. Prepay your funeral

SECTION 4 How disturbed or anxious are you by the following aspects of death and dying? Read each item and answer it quickly. Donâ&#x20AC;&#x2122;t spend too much time thinking about your response. We want you your first impression of how you think right now. Circle the number that best represents your feeling.

Your Own Death Very

Somewhat

Not

1. The total isolation of death.

2. The shortness of life.

3. Missing out on so much after you die.

4. Dying young.

5 4 3 2 1

5. How it will feel to be dead.

6. Never thinking or experiencing.

7. The possibility of pain and punishment during life after death.

8. The disintegration of your body after you die.

Your Own Dying 1. The physical degeneration involved.

Very 5

Somewhat 4 3 2

Not 1

2. The pain involved in dying.

3. The intellectual degeneration of old age.

4. That your abilities will be limited while you lay dying.

5. The uncertainty as to how bravely you will face the process of dying.

6. Your lack of control over the process of dying.

7. The possibility of dying in a hospital away from friends and family. 5

8. The grief of others as you lie dying.

The Death of Others 1. Losing someone close to you.

Very 5

Somewhat 4 3 2

Not 1

2. Having to see the personâ&#x20AC;&#x2122;s dead body.

3. Never being able to communicate with the person again.

4. Regret over not being nicer to the person when he or she was alive.

5. Growing old alone without the person.

6. Feeling guilty that you are relieved that the person is dead.

7. Feeling lonely without the person.

8. Envious that the person is dead.

The Dying of Others Very

Somewhat

Not

1. Having to be with someone who is dying.

2. Having the person want to talk about death with you.

3. Watching the person suffer from pain.

4. Having to be the one to tell the person that he / she is dying.

5. Seeing the physical degeneration of the personâ&#x20AC;&#x2122;s body.

6. Not knowing what to do about your grief at losing the person when you are with him or her.

7. Watching the deterioration of the personâ&#x20AC;&#x2122;s mental abilities.

8. Being reminded that you are going to go through the experience also one day.

Thank you for taking your time to complete these questionnaires.

Appendix J Post Course Evaluation Questionnaires

Post â&#x20AC;&#x201C; Course Evaluation Questionnaires INTRODUCTION Thank you for agreeing to participate in this phase of the INSPIRE study, where we will explore your experience as a Compassionate Community Volunteer engaging in The Good Neighbour Partnership and evaluate the training programme you are attending. The results of this study will inform the development of a larger study â&#x20AC;&#x201C; the INSPIRE study that will assess the effectiveness of a new model of social and practical support for people living with advanced life-limiting illness, at home, in Limerick, Ireland. Please complete the questionnaires in this pack. It should take about 10 minutes to complete the questions. You will be given a second pack of questionnaires on the final evening of the training programme. Thank you for your time and if you have any questions please contact one of the facilitators.