Transition Spring 2012 | Look What's Possible by Ann Vrlak

CPP-DISABILITY ADVOCACY |

A BCCPD PROGRAM

We’re here to help. • Were you previously working and now have a disability?

Contents 2 | Editorial by Paul Gauthier

22 | Engaging With EATI | Laila & Ean

6 | Choosing Hope by Alyas Omeed

24 | Staying Connected

7 | Engaging with EATI | Geoff Jones 8 | Connecting with your Community: A How-to Guide by Shelley Hourston

• Do you need help to apply for CPP Disability or appeal a denial of benefits?

11 | Engagement is Life Changing by PJ Artman

BC Coalition of People with Disabilities is an expert in Canada Pension Plan Disability (CPP-D) advocacy. We provide: • in person, one-to-one assistance • assistance by phone • free self-help publications on what CPP is, how to apply and how to appeal a denial (available in English, Traditional Chinese and Punjabi)

Special 10 | CPP-D Resources 17 | Book Your Free Workshop with Advocacy Access 23 | Planned Giving: A New Way to Contribute Cover Art by PJ Artman. See page 11.

19 | Rick Hansen Global Accessibility Map 20 | Engaging Stories

What do I need to know about CPP-D? CPP-D has several advantages over provincial disability benefits. And, recipients may receive provincial (PWD/PPMB) disability benefits in addition to CPP-D in the form of a top-up, if their CPP-D benefits fall below the provincial minimum.

Please contact us to learn more. CPP-D Advocacy Program Telephone: 604-872-1278 | Toll-Free: 1-800-663-1278 Website: www.bccpd.bc.ca | Program information: OurWork/Advocacy Access | Self-help guides: Library/Money & Income Supports

21 | Ketchup and Surprises: An Engaging Vacation by Brianne Nettelfield

Transition is published four times a year by BC Coalition of People with Disabilities. Subscriptions are $15/year. We welcome articles, graphics and creative writing for consideration. The editors reserve the right to edit and/ or withhold material from publication. Transition material may be reprinted without prior permission, as long as the material is published in its entirety, along with this citation: “From Transition magazine, BC Coalition of People with Disabilities, [edition date].” Thank you.

BC Coalition of People with Disabilities 204-456 W. Broadway, Vancouver, BC V5Y 1R3 Tel: 604-875-0188 • Fax: 604-875-9227 Transition only: trans@bccpd.bc.ca BCCPD: feedback@bccpd.bc.ca Canadian Publications Mail Product Sales Agreement No.40051676

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BC Coalition of People with Disabilities | Transition

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spring 2012

Editorial Engaging Our Communities by Paul Gauthier

From left to right: foster son Derek, Paul, Sarah and baby Matteo

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hen I was asked to do the editorial for this Transition on “Engagement”, I was intrigued because of my experiences with the new Equipment and Assistive Technology Initiative (EATI). In many ways, I think EATI is becoming a model for what engagement among community organizations, people with disabilities and government can look like and how it can be a win-winwin situation. For those of you who don’t know EATI, in a nutshell we provide funding to people with disabilities who need assistive devices for employment-related goals. Since 2010, we’ve put over $5 million of assistive devices into the hands of almost 700 people around BC. There’s so much interest in EATI, we have a waiting list of four months to respond to applications. We’re looking at ways to reduce this wait time for people seeking our support.

So, What’s Different About EATI? In my opinion, the two most important and fairly amazing things are: our partnership with the provincial and federal governments, and that the partnership is based on a model that puts people with disabilities’ goals first. From the beginning, EATI has used the Participation Model for services and programs which is simple, but quite radical (please see sidebar). We start from a person’s goals, then look at the obstacles to those goals and finally what’s needed to get past those obstacles. This is very different from the conventional approach where a person’s goals are really not part of the equation, if they are looking for equipment, for example.

Where the Engagement Began For several years, a network of organizations, including BCCPD, had been working on various projects aiming to better connect people with disabilities with personal supports and equipment they need to live full and independent lives. We all brought skills and expertise to the group and developed a clear vision for a new program. We were able to speak to government with a united voice. I think this unity was crucial in convincing government to engage with us. Eventually, we allied to form the Personal Supports Working Group comprising people from disability organizations and government. We began to talk about people with disabilities’

BC Coalition of People with Disabilities | Transition

Engage: participate in,

take part in, join in, play a part in, share in.

Putting People at the Centre The Participation Model is a new way of looking at the delivery of goods and services to people with disabilities. The following is from the brief, A Participation Model for a Personal Supports Program for People with Disabilities in BC.

needs, how exactly the Participation Model could work in the area of personal supports, and how we could partner with government to assist more people in the community. And, government began to tell us about their concerns about policies, about funding, and about managing risks for people with disabilities.

Vision & Values

An Evolving Relationship

British Columbians with disabilities have the right to self-determination and will be given every opportunity to make decisions about the resources they need for their participation. Individuals who require assistance with their decision making can be represented by their family and/or support network.

It’s been astonishing to see over these past several months how these meetings have changed. In the beginning, there was more talking than listening, and some distrust or unease between community and government. Now, there’s more mutual understanding and more trust. Our relationship has matured. We’re working together and more engaged in a joint vision for EATI, so we’re more effective. I noticed at a recent meeting that even the seating arrangements have changed. At the beginning of this process, we would see government staff on one side and community people on the other. That separation’s no longer there.

continued on next page

BC Coalition of People with Disabilities | Transition

British Columbians have access to the personal supports that they need in order to achieve their goals and have the opportunity to participate fully in the life of the province.

Inclusive

British Columbians with disabilities have the right to participate fully in society and have access to the personal supports that they need to do so.

Choice

Accessible

Access to personal supports is based on need and is not tied to other factors such as individual or family income, assets, eligibility for other services, geographic location or age. Disability programs and supports are barrier-free and able to accommodate all forms of communication.

Respect

Programs and supports respect language and cultural diversity, protect individual privacy and treat all citizens equitably, compassionately and respectfully. The vision, values and principles for the Personal Supports Program in BC underlie every component of the model. The desired outcome is participation to whatever degree the individual desires. The Personal Supports program is envisioned as open and accessible to all British Columbians with a disability, whatever their age. The model describes a process that begins with the individual. Each individual has goals and a plan for achieving those goals. A goal can be as straightforward as wanting to go shopping once a week or as complicated as travelling the world. Download the Participation Model brief from www.bccpd.bc.ca, in the Independent Living section of the Library.

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Editorial, continued from previous page

We are seeing a kind of ripple effect of “engagement” that flowed from our person-centred approach: from engaging community groups to come together, engaging government in the idea of a person-centred approach, engaging people with disabilities in defining their goals, and being able to deliver supports that help people to engage in our communities.

Ways to Apply for EATI

1. Download the application at www.bcpsn.org. 2. Call the EATI Toll-Free line at 1-877-333-7554. 3. Email eati@bcpsn.org.

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What I’ve Learned I’ve learned a few things from the EATI experience that can be applied to any community campaign to develop new services. First, my conviction has grown that the Participation Model could and should be used in delivery of any government service. Rather than offering a variety of disconnected services, from disconnected suppliers and organizations that may or may not meet people’s needs, everyone needs to start by enabling people to define their goals and then work with them to overcome the barriers to those goals. We do this best and most cost effectively when community organizations collaborate and form partnerships with government to use our scarce resources wisely. Changing the way an institution thinks and works is not a small thing–and government is no exception. So, having a clear vision and having strength in numbers, is very important. Community organizations are always overworked and under-funded, and it’s difficult for any one organization to change the direction of a longstanding program or way of doing things. A group of organizations working together strengthens the message and has more power to engage government in a new direction. And finding one idea you can all agree on as a priority, among the many many needs in the community, is a necessary step, too. And, finally, be strong and be willing to listen. Government

priorities and methods will usually be different from those of community organizations. You need to believe in your idea and be willing to stand up for it. And, we also need to listen to what’s important to government and work hard to find where our needs and government’s needs overlap. EATI works because we were able to clearly identify the problem, make a strong case for an alternative and to work cooperatively with government–and, last but not least, we were also fortunate to find federal funding that fit with our goals and government goals for more inclusion of people with disabilities. EATI isn’t perfect and it’s still a work in progress. But, we are seeing a kind of ripple effect of “engagement” that flowed from our person-centred approach: from engaging community groups to come together, engaging government in the idea of a person-centred approach, engaging people with disabilities in defining their goals, and being able to deliver supports that help people to engage in our communities. In this Transition, we look at some of the ways people living with a disability are engaging in their lives and in their communities–and showing “what’s possible” when programs like EATI provide supports that allow us to engage in new and amazing ways. Paul Gauthier has been a personal and community advocate for over 20 years. He is the Network Coordinator of the BC Personal Supports Network. n

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Choosing Hope by Alyas Omeed

y name in Persian, means “hope” and this is the name I chose for myself several years ago to reflect my attitudes and life views. I lost my eyesight at the age of seven in the Civil War in Afghanistan. There were many hard days in my childhood, but a time came when I became a voice for many silenced people in Afghanistan. I’m often asked, “How were you able to finish your studies in Afghanistan and Pakistan, where most people believe that people with a disability don’t have the capacity to study, to become a human rights activist or to be an active member in the society?” Since I lost my sight, all my effort went into showing Afghan society that a person who has a disability can have a constructive role in society, if only people would believe in our capabilities and strengths.

In my situation, I was told not to attend school. The argument was that, since I couldnt’ see, class activities would never benefit me. The most pessimistic argument was that my efforts in education would not assist me to be an independent person and active member of society. I was told regularly by members of the community, “Even if you finish high school, you will never get a job because you are blind.” Deciding not to take this advice, I completed my secondary schooling and soon after earned a position in a non-governmental organization in Afghanistan. Dear readers, you might be curious to know what gave me the drive to succeed in my endeavours. I have two attitudes that keep me motivated: hope and aim. Despite all the challenges, I have been hopeful. I always hope to see a better tomorrow and a life

Despite all the challenges, I have been hopeful. I always hope to see a better tomorrow and a life of success. of success. I decided to change my last name after I finished high school to remind myself and the community of my achievement. Although there have been times I have felt less than hopeful, I have always had aims: life goals that urge me to continue. An aim is like a close friend, closer than anything and anyone in life. In fact, having an aim has taught me how to plan in order to reach my goals and keep me from losing my path. Finally, my understanding of “aim” and “hope” is that if human beings do not have hope and aim, they are like a fish out of water. Alyas is a now living in Vancouver and is available for writing or other work projects. You can reach him at a.omeed@gmail.com. n

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Engaging with EATI | Geoff Jones

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When Geoff Jones approached EATI in January 2011, he had a goal to work in the financial customer service industry. His barrier was low vision that prevented him from reading normal sized print and text. He had lived with his disability for five years and had many discussions with his peers about what might help. Geoff is a selfadmitted “technology nerd,” so he looked forward to researching his options for assistive technology. Based on his research, EATI provided him with several visual aids. The Ai Squared Zoomtext Magnifier is software that enlarges and enhances everything on his computer screen, allowing him to quickly access information. Geoff keeps the magnifier on a USB key so he can use it on any computer. He also received a Reinecker Mano Portable Video Magnifier which allows him to read everything

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wherever he travels, from bus stop signs to printed materials in offices. Geoff now works in the City of Vancouver’s main call centre. When a Vancouverite has a question about any of the city’s municipal services, policies or programs, calling Geoff is the first step to getting an answer. Geoff is also beginning to work with emergency services to provide them with phone support. One of his more exciting days in this capacity occurred the morning after Vancouver’s Stanley Cup riots. In this role, Geoff disseminated instructions from tip lines and provided information for the city’s on-the-ground staff. Geoff is providing the customer service that he envisioned when he approached EATI and his assistive technology prepared him to be the best candidate for the job. n

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Our thanks to the Health Sciences Association for their donation toward our Disability Benefits Help Sheets series. These self-help guides on topics ranging from the People with Disabilities Benefit to the Registered Disability Savings Plan are BCCPD’s most requested and downloaded resources.

Please make cheques payable to “BCCPD” and send to us at Transition, c/o BCCPD, 204 - 456 W. Broadway, Vancouver, BC V5Y 1R3.

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For information on BCCPD’s privacy policy, see the Privacy Statement in this Transition.

BC Coalition of People with Disabilities | Transition

Connections among people add value to a

society in much the same way that financial capital does. Social capital refers to the collective value of all social networks–or who people know.” –Robert Putnam in Bowling Alone: The Collapse and Revival of American Community

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Connecting with Your Community A How-to Guide by Shelley Hourston

f you are naturally introverted like I am, mustering the energy and courage to go out into unfamiliar situations can often feel overwhelming and just not worth the effort. Participating in a community– whether it’s your neighbourhood or a community of bird watchers– can be a challenge for many of us. If you’re living with a disability or chronic health condition, your daily life may be complicated by low energy and fatigue, pain, physical barriers, medication side-effects or other factors. Living with a disability can also affect your self-esteem and confidence. Researchers have shown, however, that there is a strong connection between community participation and improved health and sense of well-being. And the good news is that even occasional interaction–attending a meeting twice a month or volunteering once a month–is enough to generate positive results. In Canada, we have identified “social support networks”–what we develop when we participate in a community–as number two in the list of determinants of health.** If this is enough evidence to encourage you to venture into

your community (or increase your involvement), let me share my tips for community participation. Remember that “community participation” can take place in many ways: in person, over the telephone, letters in the mail or via the Internet.

Five Steps to Participation Don’t know where to start? Ask yourself the following questions and make a list of your answers.

• • • •

•

• •

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What catches your attention on the news, in newspapers/ magazines or on the radio? What is your favourite pasttime or leisure activity? What makes you laugh? What makes you angry? Do you have neighbours, family members or friends– nearby or in another part of the world–who are involved in activities or projects that interest you? What are they? Do any of the stories or ideas in this inspire you to try something new?

What kind of experience would I prefer? Socialize with a group of likeminded people? Contribute to a cause or activity (volunteer)?

• • •

Learn? Teach? Create something new? Exchange knowledge with others? Advocate for social change or justice? Try new things? Just pass the time?

How would I like to participate?

What are my interests? •

• • • •

In person? Telephone? Internet? Mail?

Now that I have a list of interests, how do I participate? •

•

Who do you know (in your community or beyond) who shares one or more of your interests? Ask them for more information and how you can become involved too. Are there organizations in your community that relate to your interests? Visit them in person, call them or visit their websites. Depending on the interests you’ve noted in the questions above, ask to speak to someone in the organization about: social or support groups, volunteer opportunities, educational or information events, discussion groups, advocacy activities, or opportunities to mentor others. Find

BC Coalition of People with Disabilities | Transition

•

out how you can participate, any costs involved and how you can receive information about future activities. Don’t know how to start? Maybe a one-time activity, such as an author reading, a teleseminar, or a computer workshop is a way to begin. Don’t know if there is an organization or resource related to your interest? Here’s how to start: -- Yellow Pages–check under all headings that may relate to your interest. -- Telephone book–check under relevant organization names. Note that in some cases a national or provincial office may be listed with a toll-free number. Call and ask for contacts in your community. -- Bulletin boards in your neighbourhood (often located in supermarkets, libraries, community and recreation centres, churches, etc.) often have posters for events, groups or activities. -- Service providers: social workers, community health nurses, counsellors, and occupational and physical therapists are great sources of information. -- Public Library–call or visit your local public library and ask the reference librarian for information about your area of interest. It’s important to ask for help as the librarian will show you

directories, reports, journal articles, local event schedules, community contacts, etc. , that you may not know about. Explain that you’re gathering information and are looking for opportunities to become involved.

But do I have to talk to anybody while I’m there? If you’re shy or uncomfortable in new situations, this isn’t an unusual question. Research (and my personal experience) shows that asking questions is an excellent way to start a conversation. Prepare a couple of questions in advance to get you started and then let them flow naturally into the conversation. By being naturally curious and interested (rather than interrogating, like you’re in a courtroom!), your conversation partner will find you fascinating! If you decide to try these how-to steps, I would love to hear from you. What did you try? Did you have fun? Did you encounter barriers or challenges? Your stories will help us to keep the connections going among our readers.

BC Coalition of People with Disabilities | Transition

Good luck and remember the benefits of connecting go far beyond what you might expect. * Helliwell, John F. and Putnam, Robert D. (2004) The Social Context of Well-being. Philosophical Transactions of The Royal Society (London) B (359), 1435-1446. Retrieved from http://tinyurl.com/yklz55s. ** What Makes Canadians Healthy or Unhealthy? Public Health Agency of Canada. Retrieved from: http://tinyurl. com/yfp64kr. Reprinted from Transition Fall 2009

Visit Us Online

If you haven’t already visited our “new” website launched in late 2011, come check us out. Our new and improved library features hundreds of searchable, free resources on topics including Money & Income Supports, Independent Living, Health and Wellness, and more. And, we now have a blog for all the latest news from BCCPD and other disability-related community news.

www.bccpd.bc.ca

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Engagement i s life changing

LEARN MORE ABOUT CPP-D BCCPD has updated its self-help CPP Disability Series (CPP-D). These four resources are available in English, Punjabi and Traditional Chinese. Benefits Checklist Learn about the various programs and discounts you may be eligible for if you receive CPP-D. Application Guide This guide walks you through the six steps to apply for CPP-D. Appeal Guide Part 1: The Reconsideration Request If your application has been denied, this guide will help you with the first stage of the CPP-D appeal process.

We couldn’t do it without you Thank you to these organizations, companies and government departments who support BCCPD’s work on behalf of people with disabilities. BC Association for Individualized Technology and Supports for People with Disabilities BC Hydro Employees Community Services Fund BC Rehab Foundation Canadian Co-operative Association City of Vancouver Council of Canadians with Disabilities Government of Canada’s Social Development Partnership Program-Disability Component Health Sciences Association of BC

Appeal Guide Part 2: Appealing to the Canada Pension Review Tribunal There is a second stage of appeal for CPP-D. This guide explains the CPP review tribunal.

Homelessness Partnership Strategy–Human Resources and Skills Development Canada

Copies can be downloaded for free from our Web Library/Money & Income Supports page at www.bccpd.bc.ca. Or, contact Val at feedback@bccpd.bc.ca for printed copies.

Notary Foundation of BC

Our thanks to the Notary Foundation and The Law Foundation of BC for funding the CPP-D Series. n

The Law Foundation of British Columbia The Law Foundation of Ontario Legal Services Society of British Columbia Planned Lifetime Advocacy Network Provincial Health Services Authority TELUS Employees Charitable Giving Program United Way of the Lower Mainland Vancouver Coastal Health Vancouver Foundation We acknowledge the financial support of the Province of British Columbia.

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BC Coalition of People with Disabilities | Transition

by PJ Artman

For many years, I was slowly losing Cowley and Company my vision. I didn’t realize it, until I decided to get back into creating one day I ran the company van art. Art hasmagazine always been--my Transition adhappy drafts into a parked car. I had my eyes place! Of course, it was very hard to checked and was told I was legally see what I was doing because I had no blind. I never drove again. I had to real vision in my right eye and blurry quit my job of 16 years. out-of-focus vision in my left. I decided to get back into own. I soon discovered that the creating art. Art has always been equipment was not just totally my happy place! Of course, it was amazing. It was life-changing. very hard to see what I was doing Once I became familiar with because I had no real vision in my I’m working on turning my the camera, the first thing I did right eye and blurry out-of-focus talents into a full-time business. was slide a letter under it. For vision in my left. One day, a friend 1 Without these tools, none of this brought over an old projector lens the first time in many years, I was would have been possible. The able to read my own mail. I knew Car Accident Lawyers to see if that would help. It was from that moment my life as a low comments I’ve been getting on amazing. It didn’t make things my art are so inspiring and overvision personDr.and an artist was clearer, but it brought what I was Lee A. Cowley, D.C., LL.B. whelming. about to get much better. looking at closer. For a few years, I 300-13805 1W7 the right tools for the Eight months later,104 I’mAvenue, proudSurrey, BC V3THaving created art with it. I took that lens P: 604-583-3000 F: 604-583-3045 job helps us to do the very best to say I was right. My quality of everywhere and it became a huge W: cowleylawcorp.ca we can. life has changed for the better part of my life. and I’m more independent–from Over time, technology for peoPJ created the amazing art on the front cover. writing emails, painting pictures ple with low vision got better and See the back cover to learn how you can own better. Then, my friend Debbie told or grocery shopping–thanks to all a piece of PJ’s art. n the new tools I have. me about a program that might be able to help me get equipment. She, and a couple of other friends, helped me fill out the forms. A few weeks later, Albert Ruel, from the Equipment and Assistive Technology Initiative (EATI), called Car Accident Lawyers 2 me. He was so nice and kind. He asked me some questions about Dr. Lee A. Cowley, D.C., LL.B. my vision impairment, to help me get the right tools. 300-13805 104 Avenue, Surrey, BC V3T 1W7 Albert called me on January P: 604-583-3000 F: 604-583-3045 25, 2011, and told me the great news that I was approved. I was so W: cowleylawcorp.ca excited. I was trained on my new equipment and then I was on my

Cowley & Company

BC Coalition of People with Disabilities | Transition

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Super Navigators: Masters of Engagement EATI staff help people to think big by Linda Bartram

’d like to tell you about my role as a Super Navigator (SN) with the Equipment and Assistive Technology Initiative (EATI). Seven months into my role as a Super Navigator, I can truly say this is the most challenging and rewarding job I’ve ever been paid to do. As a Super Navigator, it’s my role to find out where an applicant is on their journey toward their employment goal and literally navigate them through the EATI application process. I start with a telephone interview where we complete some forms and determine the person’s eligibility, based on the criteria set out by the agreement between the provincial and federal governments (Labour Market Agreement). All this may sound rather formal and bureaucratic, but as Super Navigators, we take a “cup of tea” approach and hopefully sweeten the experience with a couple of “lumps of sugar”. As people with disabilities ourselves, the SNs know and understand, to some degree at least, what the person is experiencing. Good listening skills and an empathetic ear are two essentials for this job. Once this paperwork is out of the way, the real navigating begins. The person then answers three questions which act as a starting point for our discussions.

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Understanding the Goal The first question helps me to understand the person’s employment goal. Some people have a very clear goal, while others are still clarifying theirs. Some goals are very lofty: “I would like to run for town council,” while others are quite modest: “I want to be able to walk dogs independently for a fee.” For some, the goal is immediate: “I have an opportunity to work for a not-for-profit organization once I have the technology that will make this possible.” For others, the goal may be several steps and several years down the road: “I want to become a counselor, but first I need to be able to get out of my home, so I can gain some volunteer experience as a peer mentor.” Whatever the employment goal, it’s critical that the SN and applicant come to a common understanding of the goal. It takes skill, imagination and a non-judgmental attitude on the part of the SN to help the person reach this understanding.

is primarily concerned with the functional barriers (i.e., seeing, hearing, mobility, learning, communicating, breathing) related to a disability. These are the barriers that can often be overcome, at least in part, by equipment and assistive technology. The SN offers a shoulder, acts as a sounding board and occasionally provides a reality check, while letting the applicant tell their story. Too often, there are no existing programs to help and those that do, often fall short of what is really needed. One applicant told me he could probably get a computer-based job, but he first needed to learn how to use the computer with access technology. He was in the proverbial Catch 22: you can’t get the job unless you know how to use the technology, but you can’t learn how to use access software because you can’t afford to buy it because you don’t have a job. Or, another applicant told me he could have a wheelchair funded through the Ministry, but it wasn’t the chair he needed to do the job.

What’s in the Way?

What Do You Need?

The second question looks at the barriers stopping the applicant from achieving or pursuing their goal. We’re all aware of the many barriers that people with disabilities face (e.g., financial, educational, attitudinal), but EATI

frustration and despair to become tears of excitement and hope. I will confess, I’ve shared those tears on occasion. After we’ve discussed these three questions, the next step is to determine which specific equipment or assistive technology is needed. In some cases, a professional assessment is required. The SN oversees this process and offers assistance, if it’s needed. If a professional assessment is not required or no professional is available, and the applicant has sufficient experience and knowledge, the SN will guide them through a self-assessment. This type of assessment can take weeks, sometimes months, to complete and we keep in touch to offer support and encouragement. This aspect of the Navigator’s role can be very challenging. The SN needs to be aware of the

many types of equipment and assistive technology that might be considered. This is where I rely on my colleagues as I become more familiar with the ever-changing face of technology. Here’s where the soon-to-be-launched Inclusive Technologies Co-operative will be invaluable in providing information to applicants. I often hear, “I just don’t know what’s out there!”

The Final Steps Once the assessment is complete, another Navigator takes over the application. It is this Navigator’s role to ensure the quote for the equipment or assistive technology being requested reflects the applicant’s needs and removes their functional barriers. This can take several discussions with both the vendor and applicant. This SN also takes another look at the rationale for the equipment or assistive

What makes this work so rewarding is the third question: “What do you need to overcome these barriers?” Our hope is to be able to fund a piece of equipment or assistive technology that will help the person overcome the barriers. It’s not unusual for the applicant’s

BC Coalition of People with Disabilities | Transition

Super Navigators helped Tom McGregor get his new wheelchair. See more on page 17.

BC Coalition of People with Disabilities | Transition

Some goals are very lofty: “I would like to run for town council,” while others are quite modest: “I want to be able to walk dogs independently for a fee.” technology being requested and adds their insight. By the time the request goes forward, it has been considered from several vantage points. Navigators monitor the adjudication, answer questions that arise during the adjudication process and keep the applicant informed about the status of their request. The SN also provides follow-up support, ensuring that the applicant receives their approved equipment or assistive technology and that it is meeting their needs. Super Navigators require an understanding and commitment to the participation model, and excellent people and technology skills. Linda Bartram’s story begins about ten years ago when she made a commitment, following an Alliance for Equality of Blind Canadians annual general meeting, to work towards the provision of assistive devices for residents of BC who are blind, partially sighted and deaf-blind. This work led her to the Provincial Equipment and Assistive Devices Committee where she took on the co-chair role alongside of her soon-to-become mentor, Christine Gordon. “I feel privileged to have been part of the entire journey: from meeting with Ministers, to the development of the Participation Model and now as a front line worker.” n

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A level of comfort develops as the weeks pass; people often say how accepted and understood they feel, and that it’s nice to be with a group of people that “get it”.

Engaging With Our Peers by Ken Walker Peer | One that is of equal standing with another. Support Group | A group of people with common experiences and concerns who provide emotional and moral support for one another.

or some time at BCCPD, there has been the recognition of the need for peer support for people with disabilities. As the result of a generous donation, a series of peer support groups for people with disabilities has begun. Our vision is to provide a safe, caring space for people with disabilities to make connections with others, to explore their relationship to their disability or disabilities, and to share information and strategies relevant to individual needs. Two sessions have now been completed and, as a co-facilitator of the groups with Sam Bradd, I appreciate the opportunity to let Transition readers know what we’re doing and to invite people to join us for upcoming sessions. In order to give as many people as possible a chance to attend, each group of new mem-

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bers meets for a certain number of weeks. So far, we’ve run two groups that met for two hours, once a week. The first session ran for five weeks, the second for six weeks. The age range has been from early twenties to late sixties, and there’s been a mix of about 2/3 women and 1/3 men. Generally, the meetings start with people chatting as they arrive, getting snacks and drinks, and settling in before the group begins. At the beginning of the first meeting, we talk about what has brought people to the group and what they may want from the experience or from the group. Together, we agree on guidelines about respectful interactions and how we’ll create a space that’s as welcoming as possible for everyone. Although participants don’t know each other before joining the group, by the end of the first day there is already a growing sense of common experience. A level of comfort develops as the weeks pass; people often say how accepted and understood they feel, and that it’s nice to be

At the beginning of the first meeting, we talk about what has brought people to the group and what they may want from the experience or from the group. with a group of people that “get it”. In both group sessions, people exchanged contact information on the last day and participants voiced their desire to get together after the group ended. The meetings are very casual and people participate to whatever extent they are willing or able. We have outlines for each week, but nothing is cast in stone. Each group has its own dynamic and we often find ourselves exploring rich and unexpected topics. Discussions have been very lively and far-ranging. The subject of “Navigating the Medical System” has been a great example of the group dynamic in action. We start with an invitation to discuss the topic and participants have had a lot to say. There have been accounts of how the system has or hasn’t worked very well, of caring, sensitive caregivers and represen-

BC Coalition of People with Disabilities | Transition

tatives of various programs, and of various tips and strategies to have needs met, to get relevant information, and to connect with resources that were, up until then, unknown to some. We’ve also brainstormed ideas for particular situations, like, “What can you do if you don’t feel comfortable with your doctor?” and “Strategies for when no one offers a seat on the bus.” Small and large group discussions have focused on a variety of topics, including finding our joy, promoting wellness, dealing with challenges, celebrating personal accomplishments, interacting with others in our lives, and many more. At the end of each meeting, there’s time to chat and finish snacks as people make their way out. Both co-facilitators are available if anyone would like to talk with us. The peer support group is a place to tell our stories, celebrate successes, acknowledge challenges, explore new possibilities, and to be with others doing the same.

Social Capital: Better Than Money In The Bank? Most of us spend a lot of time thinking about capital–or lack of it more likely. Cash in the bank and assets like real estate tend to be hard earned and beyond reach. Researchers say that “social capital”–“the web of relationships that give us a sense of connection, belonging and community”* –may be as important to our well-being as money for housing and food.** This is good news because creating social capital is within reach of everyone. If you are wondering how to boost your social capital, check out “What to Do: 150 Things You Can Do to Build Social Capital” at http://www.bettertogether. org/150ways.htm. Building social capital doesn’t have to cost money and need

Join the Next Group Another group is planned for late Spring. Visit our website to learn more or to sign up for our e-newsletter to get all the current BCCPD and community news. n

BC Coalition of People with Disabilities | Transition

not even involve being especially “social”. Examples include picking up litter on your street, going to a free public event at your public library, writing a letter to the editor of your local newspaper about someone in your community who is kind or helpful, holding the door open for the person behind you or saying hello or smiling at people on your street. *Social Capital: Better Together. http:// www.bettertogethernh.org/bluepic. pdf **Holt-Lunstad J, Smith TB, Layton JB (2010) Social relationships and mortality risk: A meta-analytic review. PLoS Med 7: e316. http://www.plosmedicine.org/article/info:doi/10.1371/ journal.pmed.1000316 n

Human Design Solutions Ltd. Universal by Design ✓✓ Site Audits of Institutional, Commercial and Industrial Facilities for the Access and Inclusion of All Users ✓✓ Custom New Home and Renovation Design Services ✓✓ Disability Awareness Training Programs Patrick Simpson

604-803-7443

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Introducing Chip our Universal Housing Advisor and PADS Certified Service Dog. Chip = Canine Housing Industry Professional

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spring 2012

n the sequel to Born That Way, Made That Way reunites readers with the intrepid young Sylvia, who is challenged by a genetic disorder, wild about horses, and determined to find solutions to the obstacles presented by her life in general. Sylvia wants to be

may find difficult to discuss. What does it mean to be normal or disordered anyhow? Where does a young person turn when her parents don’t listen, when she is tormented at school, and is now faced, not with her dream horse, but one who appears to be complicating her life even further. Ketchen’s writing is fast-paced, compelling and full of surprises. Made That Way can be read in one sitting, but Sylvia’s persistence and creativity in overcoming her life’s challenges will inspire the reader for a lifetime. Visit Susan at: www.susanketchen.ca. Excerpted from a review by Carol M. Upton. First published in Horses All: www.horsesall. com. n

your voice counts | become a member of bccpd I accept your invitation to join the BC Coalition of People with Disabilties and enclose my membership fee of $15 (groups and individuals). I am also sending along a tax-deductible donation of $__________.

Name ______________________________________________ Organization ________________________________________

Address _______________________________________________ City/Prov_______________________ Postal Code ____________ Phone _______________ Email ____________________________

Please return your payment/donation with this form, to BCCPD, 204 - 456 W. Broadway, Vancouver, BC V5Y 1R3. You can also become a member or donate online at http://www.bccpd.bc.ca/supportdonate.htm.

Thank you for your invaluable support.

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BC Coalition of People with Disabilities | Transition

Engaging with EATI | Tom McGregor

om McGregor had a dream. He wanted to combine his love of nature with his writing and speaking skills to create a future for himself as a landscape and accessibility consultant. As a Vancouverite, Tom is well acquainted with many of the urban parks located in the city. However, because of progressive muscular degeneration, Tom has moved from a cane to a scooter and finally to a power wheelchair. And, navigating parks in his old, often broken down wheelchair was a tricky, often impossible business. Tom contacted EATI to see if he would be eligible for a new wheelchair: an X-5 Frontier Power wheelchair that is specifically designed for a variety of terrains. Tom’s application was successful and he revved his career goal into high gear. Tom’s increased mobility is the inspiration for his new blog: AccessEco BC (http://accessecobc. blogspot.com/). He documents his excursions to many of BC’s outdoor attractions, including Jericho Beach, Coal Harbour and Burnaby’s Deer Lake. For many of the locations Tom visits, he assigns an accessibility score to help other people with disabilities decide which may be most suitable for them. In the blog’s short life, it has attracted several thousand hits, as well as a spot on CBC Radio’s BC Almanac. In addition to writing his blog, Tom has raised his profile and networking ability, and he is acquiring new skills by volunteering with a

variety of groups like the Friends of Everett Crowley Park which advises the city on accessibility issues. Tom also organized an Earth Day celebration where the Friends of Everett Crowley staged a demonstration of how people with disabilities can use new assistive technology to better navigate the outdoors. Tom is planning to publish an accessibility guide to the Lower Mainland. He envisions a hard- cover book that describes attractions much like his blog, but in greater detail. Tom is also planning to include choice restaurants, making the publication a mix of culinary and accessibility criticism! Tom believes that he is well on his way to achieving his goal. The fact that EATI believed in Tom’s dream has made it easier for him to convince others to believe in it too. n

BC Coalition of People with Disabilities | Transition

For many of the locations Tom visits, he assigns an accessibility score to help other people with disabilities decide which may be most suitable for them. In the blog’s short life, it has attracted several thousand hits, as well as a spot on CBC Radio’s BC Almanac.

Photo by Tom McGregor

Books

a real horsewoman and she’s excited about getting her own horse, even if the horse is arriving at a less-than-perfect time. Brooklyn is, well, not quite a regular horse. He has big ears, makes strange sounds, and he’s already bitten the transport driver. Author Susan Ketchen captures, with humour and pathos, the developing personality and growing pains of a not quite fifteen-year-old girl who would just like to be normal. Sylvia also wants to be treated as an adult, but sometimes, no one seems to listen very closely, and she must puzzle things out on her own. The strength of this book lies in Ketchen’s examination of some topics that parents and children

Book Your Free Workshop with Advocacy Access Could your organization benefit from learning more about provincial and federal (Canada Pension Plan) disability income supports and health benefits? Our Advocacy Access staff are experts in these areas, including applications and appeals. We are happy to come to your office to host a workshop for your staff. Workshops can be tailored to the topics that are of most interest to your organization. Please contact Jane Dyson today at jwd@bccpd.bc.ca to arrange your free advocacy workshop.

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The Great acce s s ible Outdoor s A BC man has plans for Canada’s first fully accessible wilderness resort. by Leslie Timmins

hen Dan Bauer decided to check out hiking trails on Vancouver Island on his wheelchair, he found 40 trails that were accessible–and 110 that were not. He wrote the 2011 Vancouver Island Travel Guide that features details on the accessible trails, local hotels, and attractions. “I love being outside,” Dan says. “I love the feeling I get from the trees, the bird sounds. It makes me feel alive.” Although not a religious man, he says, “The forest is my church. I don’t know what that Supreme Being is, but I do know I’m a lot closer to it when I’m in nature. ” The idea for his current project–a barrier-free, fully accessible wilderness resort–came to Dan not long after he was thrown from a car in 1985. “I remember the man in the bed across from me in rehab,” he says. “He was a high-level quad who had broken his neck swimming. He was telling his wife to sell the boat, sell the camper because they wouldn’t be going fishing anymore, wouldn’t be going swimming. His kids looked like they were realizing for the first time their dad wasn’t going to get better. “This really bugged me. It put the seed in my brain. When we moved to Vancouver Island six years ago, I thought, ‘This is the place to do it, to create accessible wilderness.’”

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In 2009, as the President and founder of the Accessible Wilderness Society (AWS), Dan was invited to speak about his vision at a gathering in Prince George. Sitting near him at the head table was Minister Shirley Bond of the provincial government. “I love this,” she said “How can I help?” Right there and then Minister Bond texted another cabinet Minister, Patrick Bell of Forests, Lands and Mines, on her cell phone. Bell thought the AWS could lease land from the province for $1 a year. Two weeks later, when Dan attended a meeting with Bond in Victoria, there were representatives of two others Ministries there as well. ”I don’t really know how it works in Victoria, but I think they talk to each other,” Dan says wryly. Now the AWS has a contract with the provincial government for over 20 acres around Lake Roberts, near Campbell River.

The accessibility of urban spaces is getting better all the time through curb cuts and ramps, Dan says, but wilderness is out of reach for many. As an athletic T12 paraplegic, Dan is able to get around on accessible trails and some semiaccessible trails in his wheelchair. But his vision of a barrier-free wilderness facility is broader than this. He wants opportunities for kayaking, sailing, fishing, camping, as well as hiking. And he wants those opportunities for everybody. Seniors and people with physical disabilities and their families will be able to use the wilderness facility. Young people with disabilities, who were able to go to camp until they were 18, will be able to spend time in wilderness for the rest of their lives. The resort will have universal access. No stairs, no narrow parking spaces, no “accessible” rooms–

BC Coalition of People with Disabilities | Transition

because everything would be designed with everybody in mind. “This is the first of its kind. There’s nothing like this in Canada,” Dan says. The current of energy that rippled from the wilderness to Dan Bauer to Minister Bond and the others also needed a burst of practical, mechanical power to keep it going. Lake Roberts is a heavily treed area where the bush grows right up to the water line. Dan approached the Ministry of Housing and Social Development about getting a mobility device to help him access the area and oversee the resort project. He was told the Equipment and Assistive Technology Initiative (EATI) program might have what he needed. “These guys were amazing,” Dan says. “When I first met with them, their criteria seemed more geared to typical devices like wheelchairs and what I needed was a working vehicle.” But EATI soon approved a device with a name that suggests the power and agility Dan would need. It’s called the Rhino. The Rhino looks and drives like a small all-terrain jeep, with hand controls for the brake and accelerator, and spinner controls for a better grip on the steering wheel. There’s also a bucket in the back where Dan can put his wheelchair. “I have a winch on the Rhino, too, so I can strap onto a fallen log

and help out instead of watching other people move it,” Dan says. He laughs, “When I’m wheeling on rough terrain I really have to concentrate because, if I don’t, I can end up hanging my butt over a stump. Now, I can get through the rough areas I couldn’t before.” The Rhino has made it possible for Dan to directly manage the development of the project, instead of relying on other people. The AWS is talking with groups who have experiences breaking down barriers, like those who run programs for outdoor sports, who can help identify barriers and ways to remove them. Engagement–the practice of getting people interested and involved in a project–is closely related to this kind of education, as Dan sees it. Engagement also means educating the public, especially about what people with disabilities and seniors are capable of and raising that bar. The resort itself will raise the bar by making sure nature isn’t harmed in the building of it. For the resort’s power needs, the AWS is looking into wind, solar, geothermal, and micro-hydro energy instead of traditional sources that cause greenhouse gases. Won’t it be difficult to fund alternative energy? “When I see a barrier I want to knock it down,” Dan says. No doubt others will want to knock it down with him.

The Rick Hansen Global Accessibility Map is an easy-to-use online ratings tool for consumers to submit and search accessibility reviews. People with disabilities review buildings and public spaces (stadiums, parks, trails, etc.) in communities around the world, from a mobility, sight or hearing perspective. Through these consumer reviews, the Global Accessibility Map aims to raise awareness of the importance of improved accessibility. The Map is part of the Rick Hansen Foundation’s ongoing commitment to improving accessibility and quality of life for everyone, including people with disabilities, seniors and parents with strollers. We want to help people make informed decisions on everyday activities such as where to eat, shop, work and play. Join Rick’s journey towards creating a more accessible and inclusive world by visiting www.globalaccessibilitymap.com and submit your reviews! n

Visit http://awsociety.org/ n

BC Coalition of People with Disabilities | Transition

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spring 2012

Engaging

Lessons from the Geese

torie s

By Robert McNeish We live in an area where geese are very common. We see them coming in the Fall and leaving early in the Spring. Their migration is an awesome sight. There is an interdependence in the way geese function. Fact | As each bird flaps its wings, it creates an “uplift” for the bird following. By flying in a “V” formation, the whole flock adds 71% greater flying range than if each bird flew alone. Lesson | People who share a common direction and sense of community can get where they are going quicker and easier because they are traveling on the thrust of one another. A shared vision and sense of purpose create synergy, making the going a little easier for all. Fact | Whenever a goose falls out of formation, it suddenly feels the drag and resistance of trying to

Photo by Tom McGregor

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Ketchup and Surprises: An Engaging Vacation By Brianne Nettelfield

fly alone. It quickly gets back into formation to take advantage of the “lifting power” of the bird immediately in front. Lesson | If we have as much sense as a goose, we will stay in formation with those we see who are headed where we want to go. Fact | When the lead goose gets tired, it rotates back into the formation and another goose flies in the point position. Lesson | It pays to take turns doing the hard tasks and sharing leadership–people, as with geese, are interdependent upon one another. Fact | The geese in formation honk from behind to encourage those up front to keep up their speed. Lesson | Positive encouragement is a strong motivator. We need to make sure our “honking” from behind is empowering, and not something less helpful.

4“Lessons from the Geese,” sometimes called “The Story of the Geese” or “The Goose Story” appears in many places on the Internet and is frequently published in disability-related newsletters. The author is variously listed as “Anon,” Dr. Harry Clarke Noyes, Milton Olson and others. Before reprinting it here, we were determined to confirm authorship. Sue Widemark had fortunately travelled the route before me and confirmed my introductory research. She describes her own research adventure story leading to a phone conversation with Dr. Robert McNeish who had written the story in 1972. You can read more at: http://suewidemark. com/lessonsgeese.htm.

Buddha’s Brain

Fact | When a goose gets sick or wounded, two geese drop out of formation to follow him or her down to help and protect their fallen companion. They stay with him/her until [s]he is either able to fly again or dies. Then they launch out on their own with another formation or catch up with their flock. Lesson | If we have as much sense as the geese, we will learn to stand by each other as we achieve our goals.

Writing about “contribution,” Rick Hanson, author of Buddha’s Brain and Just One Thing, writes: “It includes big things like raising a child, inventing the paperclip, or composing a symphony. But mainly it’s a matter of many little things. You give or receive hundreds of small offerings each day, such as doing the dishes, treating customers with respect, picking up a gum wrapper, encouraging a friend, having good intentions, or staying open to feedback. You contribute with thought, word, and deed, and both by what you do and by what you restrain yourself from doing.” “What Could You Offer?” in Just One Thing (JOT) newsletter (January 5, 2012). http://www.rickhanson.net/blog. n

BC Coalition of People with Disabilities | Transition

sat down with Lillian Wong at a coffee shop near the BC Coalition of People with Disabilities (BCCPD). Lillian, an advocate at BCCPD, told me how she spent her last vacation volunteering at the Union Gospel Mission (UGM). The UGM serves breakfast and lunch and provides chapel services five days a week for their clients– people who are living on very low incomes and/or are homeless. Lillian’s main duties as a volunteer were to serve food, mop up spills, clean tables, and bag vegetables, fruit and pastries for goodie bags. Lillian decided to volunteer because she wanted to spend her vacation doing something meaningful. One way for her to do that was to tell people about the disability programs available to them. “It’s a way of meeting people half-way in a neutral environment where they feel safe.” Helping people apply for provincial disability benefits and learn about the Registered Disability Savings Plan are Lillian’s two main areas of focus in her job as a disability advocate. When I asked her why so many people don’t know about these benefits, Lillian said, “Many people just fall through the cracks.” What impressed Lillian about the Union Gospel Mission was how they respected and nurtured the dignity of each client, including giving people choices. “Everyone was so particular about where they wanted their ketchup,

in one spot, over hash browns only or over everything.” Many people feel overwhelmed by choice and take it for granted. When you’re poor, you lose choices. People are told what they “must” do to get by. Even small choices give people dignity, a feeling of control over their lives, and a way to express their individuality. For Lillian, the best part of volunteering was helping people have hope for their future. By talking to people at UGM, Lillian was able to get to know the regulars. “You get to know the familiar ones. They get to know you and say “Hello” as you walk down the streets in New Westminster.” Though Lillian has worked with people on low-income for almost twenty years through different organizations, she found that working at UGM helped to break down her own preconceptions. When I asked her what she took away from her experience, she said without hesitation, “I came away with a new perspective! Stereotypes and ignorance prevent us from truly relating to one another on a personal level. We forget that we are all human beings with a life, family and friends.” Not only was Lillian able to help other people, but she was able to challenge her own prejudices and fears, and serve dessert while doing so. Brianne works at BCCPD and recently began a director stream in Film Arts. She likes to spend time walking her Boxer, Duke. n

BC Coalition of People with Disabilities | Transition

When you’re poor, you lose choices. People are told what they “must” do to get by. Even small choices give people dignity, a feeling of control over their lives, and a way to express their individuality.

Using HandyDART Scooter Weight & Size Restrictions

If you are planning on buying a mobility scooter and use HandyDART, please be advised that the scooter cannot be more than 48 inches long and 37 inches wide. The combined weight of scooter and user cannot be more than 550 lbs. According to TransLink, these rules on the weight and dimensions of mobility devices have been in place since at least 1999.

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Engaging With EATI | Laila & Ean Laila has a background in early childhood education and approached EATI to help her reach her goal of obtaining employment in this field. Despite her best efforts, Laila’s progressive vision loss made it impossible for her to obtain or manage information independently. Through EATI, Laila requested several pieces of equipment to allow her to manage her world. A colour detector helps her to identify which clothes to wear together. A laptop computer equipped with JAWS enables her to navigate the Internet and conduct online research. An Intel reader converts any printed text into digital text and then reads it aloud to her. This means that Laila can read things like food labels, pamphlets and letters without the assistance of another person. Laila is now working as a program leader at the Place Maillardville Community Centre in Coquitlam. She runs two programs that involve children: a familycentred drop-in and a newborn educational seminar. The drop-in is a free service that operates much like a preschool. Parents can bring their children in for a variety of activities that range from arts and crafts to cooperative games. The newborn seminar is intended to educate parents on some of the challenges that come with raising a child. To do this, Laila invites guest speakers to talk about popular topics like stress management and estate planning.

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Before being hired as a program leader, Laila volunteered once a week at the Maillardville Community Centre. Her new assistive technology helped her to convince her potential employer of her ability to be independent. Laila is also quick to credit the supportive attitude of her co-workers at the community centre for her eventual employment. The equipment Laila received through EATI was just one part of the equation. Her persistence and her employer’s positive attitude helped to complete the circle. Ean had a goal of starting his own business doing multimedia design, computer repair and consulting. His barrier was his sevenyear-old laptop that could not run the recognition software that he needs to overcome his functional limitations. As a result of spinal muscular atrophy, Ean has limited use of his limbs and requires a ventilator for breathing. Ean asked EATI for help. Because of his computer knowledge, he had a very good idea of what assistive technologies he needed. Ean received a variety of assistive technologies from EATI. A powerful Sony Vaio laptop computer enables his recognition software. Dragon Naturally Speaking (software that converts spoken words into digital text) has been indispensable in helping him communicate through email. He also received a Gefen KVM Switch from EATI. This seemingly small gadget has had a major impact on Ean’s

Planned Giving

A New Way to Contribute

productivity. It enables him to use the only movement that he has, the twitch of his thumb, to toggle between his laptop computer and that of another user. In February 2011, Ean became the founder iCAN Resource Group, a newly incorporated multimedia design company. iCAN specializes in creating websites, business cards and corporate logos. In addition, it offers computer repair services and client consulting for all things computer-related. Though the company is brand new, iCAN has already developed a substantial portfolio of work and a multitude of satisfied clients. Stay tuned for Ean’s new website at http://www.icanresourcegroup.com/. n

BC Coalition of People with Disabilities | Transition

Tax Savings

The BCCPD has a new Planned Giving program. Planned Giving is the opportunity to think ahead about causes or organizations that you may want to financially support beyond your lifetime. You can take the time now to gather information and leave instructions in your will. By planning ahead, you can research charities, or have someone research charities for you, that fit your values. You won’t feel rushed or pressured to make a decision and you can ensure that your money is spent in the way you want.

You can realize significant tax savings with Planned Giving. For example, stocks, bonds and mutual funds that you may have in a trust can be transferred in your will to a charity and a tax receipt will be issued. A bequest from your estate of cash or RRSPswill reduce the taxes that your estate will be required to pay. Other ways of donating give twofold value: by naming the BCCPD as the beneficiary in a life insurance policy, you do not incur any costs now and a tax receipt is issued when the estate is settled.

Benefits

To Learn More

There are many benefits to Planned Giving. By writing down your wishes, you will have increased peace of mind and control over your finances. Through Planned Giving, you can provide a significant future donation without reducing your income today. A gift in your will to a registered Canadian charity is taxdeductible. And, your Planned Gift helps the BCCPD to be here in the future for those who need us.

Our donors are important to us and we’ll work with you to be recognized in the way that you’d prefer. If you would like more information about Planned Giving, please contact Nicole at the BCCPD at nicole@bccpd.bc.ca or 604-875-0188. She will send you BCCPD Planned Giving information for you to review with your financial planner or lawyer, family and friends. n

BC Coalition of People with Disabilities | Transition

You’ve always been there for others. It’s part of who you are. Now, you can continue to give beyond your lifetime with Planned Giving. Your bequest to BC Coalition of People with Disabilities will promote and protect the dignity and independence of people living with a disability.

Find and follow BCCPD at www.bccpd.bc.ca/followus.htm. You can also sign up for Our Voice, the BCCPD e-newsletter that will keep you up-to-date on important and interesting disability news between Transitions.

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transition Founding Editor Richard A. Watson Editor/Layout Ann Vrlak Cover Design Fiona Gamiet

Staying Connected

From the Canadian Mental Health Association Sometimes we don’t connect with others because we feel low, anxious or stressed. But, by not connecting, we can feel worse. To stop this vicious cycle, we recommend you make a plan.

Why the goal is important to you.

Contributors Jane Dyson, Shelley Hourston

•

One small step you can take toward your goal. Be specific! How, when, where, how often?

Proofreaders Amanda Schuldt • Andrew Quinn

•

What might get in the way and what you can do about it (e.g., maybe start with a weekly phone call and work up to a visit).

Alternate Formats Val Stapleton • Elena Kubaseck-Berry

•

Admin Assistant Elena Kubaseck-Berry

If you often feel low and want help getting more out of life, you might benefit from a free CMHA program called Bounce Back. You can do the Bounce Back program from your own home. Talk to your doctor to get a SanareAd February 3, 2011 2:20 PM Transition magazine referral or visit www.bouncebackbc.ca for more information.

Editorial Statement The views and opinions expressed within the pages of Transition are not necessarily those held by the total membership or Board of Directors. The material presented herein is meant to be thought-provoking and to promote dialogue. Transition is a forum to share information within the disability community, and with government and the general public. It is also an opportunity for people with disabilities to display creative talent. Disclaimer Any firm or company advertising in Transition is for our readers’ benefit and does not constitute an endorsement by the BCCPD.

spring 2012

bc disabilit y benefits

Download our Help Sheets for free from our web library or ask us to mail them to you.

Put your goal on your fridge. Remember to reward even small successes!

Reprinted from Transition Fall 2009

sanare

Some of our most downloaded Help Sheets are now also available in Traditional Chinese and Punjabi.

Awaken Your Healing Potential with Integrative Energy Healing

IEH treatment helps in reducing pain and anxiety, relieving stress and depression, providing support during chemotherapy, strengthening the immune system, reducing effects of trauma, accelerating wound healing and post spinal cord injury, detoxifying from substance misuse and reconnecting with the body.

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Marija Djordjevic #103-853 Richards St. Vancouver

BC Coalition of People with Disabilities | Transition

sanare

Awaken Your Healing Potential with Integrative Energy Healing

Checklist for the Persons with Disabilities Benefit

5A Appealing Denial of the PWD benefit: The Reconsideration 5B Appealing Denial of the PWD Benefit: The Appeal Tribunal

Health Supplements for People with Disabilities

Get Copies

Trusts for Persons with Disabilities (PWD)

Online: www.bccpd.bc.ca/ library.htm

Employment and People with Disabilities

Phone: Call Val at 604-875-0188

BC Coalition of People with Disabilities | Transition

The Persons with Disabilities Benefit Application

Persons with Persistent and Multiple Barriers (PPMB) to Employment Application

Our sincere thanks to the Human Resources and Skills Development Canada Homelessness Partnering Strategy and the Health Sciences Association of British Columbia for making our 2011 updates to this series possible.

It is designed to complement, rather than replace, conventional approaches to health care.

Email: feedback@bccpd. bc.ca

n effective and holistic method provides an individualized approach with emphasis on awakening the body’s innate potential to heal itself.

www.sanare.ca Tel: 604.727.4186

access

helpsheets

Write down: • One small and realistic “connection” goal (e.g., “Visit my sister every month.”) •

Mailout Coordinator Janis Walsh

advocacy

10 Employment, Education and Training Supplements for People with Disabilities 11A Appealing Denial of PPMB: The Request for Reconsideration 11B Appealing Denial of the PPMB Benefit: The Appeal Tribunal 12 Income Assistance Application Process for People with Disabilities 13 Rate Amounts for PWD and PPMB Benefits 14 Registered Disability Savings Plan and the Disability Tax Credit 15 People with Disabilities on Reserve: The PWD Designation

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spring 2012

BC Coalition of People with Disabilities, Suite 204, 456 West Broadway, Vancouver BC V5Y 1R3 (604) 875-0188 • fax (604) 875-9227 • tty (604) 875-8835 trans@bccpd.bc.ca • www.bccpd.bc.ca

LEARN FROM THE EXPERTS IN INCLUSIVE EMERGENCY PLANNING

OWN ART BY PJ ARTMAN

Training for businesses, community organizations and government Take our one-of-a-kind SITE workshop to: • meet your WorkSafe BC requirements

Contact Karen to book your SITE workshop today. 604-875-0188 karen@bccpd.bc.ca

• identify the safety needs of staff and clients who have disabilities • develop a comprehensive plan FULL DETAILS AT

www.bccpd.bc.ca/site.htm ASK ABOUT NON-PROFIT DISCOUNTS

A PROGRAM OF BC COALITION OF PEOPLE WITH DISABILITIES

To see more of PJ's beautiful art and buy framed prints, greeting cards and more visit: pj-artman.artistwebsites.com