Caregiver Solutions 2015 by On-Line Publishers, Inc.

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caregiver solutions 2015 PUBLISHER Donna K. Anderson EDITORIAL Vice -President & Managing Editor Christianne Rupp Editor Megan Joyce Contributing Writers Claire Yezbak Fadden Sylvia D. Hepler Jeff Hoenshell Lynn Lueders Jim Miller Gina Napoli Lisa M. Petsche ART DEPARTMENT Production Coordinator Renee McWilliams Production Artists Janys Cuffe Lauren McNallen SALES Account Executives Angie McComsey Jacoby Amy Kieffer Ranee Shaub Miller Account Representatives Christina Cardamone Robin Gamby Jennifer Schmalhofer Sales & Event Coordinator Eileen Culp EVENTS MANAGER Kimberly Shaffer

Dear Readers, Thank you for reading Caregiver Solutions. Important information is included that can help anyone who is providing care to a loved one. Women account for nearly half of the workforce (and 52 percent of women employed are in management, professional, and related occupations) in the United States. Many of those working women have children living at home, and women are also the predominant caregiver to an older loved one. Their lives are full trying to juggle all of those responsibilities. I am a baby boomer, and many of my friends and acquaintances are now caregivers to parents and, sometimes, even to their spouses. I have become increasingly aware of the challenges they face. Understand, they are not complaining about the circumstances because it is done with love and respect; however, it is a journey that can be filled with bumps in the road, frustration, and stress. But it’s not just the caregiver who feels the strain. The care receiver is aware of the changes in their life as well. You’ll read the story of a gentleman I met who is living with Parkinson’s disease. Thankfully, he was willing to share his thoughts and feelings in undergoing a new procedure in his quest to find some relief from the tremors. He tells his story with a humorous edge, but you know he is anxious and worries about what the future holds. You will not only find informative articles, helpful resources, support information, and two full pages of frequently asked questions within these pages, but also a Directory of Housing & Care Providers and a Directory of Ancillary Services. We hope the information provided will answer a few of your questions or point you in a direction that will connect you with someone who can assist you. If there is a topic on your mind, we would be glad to address the issue in next year’s edition, or for more immediate attention, in one of our other publications — BusinessWoman (www.businesswomanpa.com); b magazine for baby boomers (www.bmagazinepa.com); or 50plus Senior News (www.50plusseniornewspa.com). Because, if it’s on your mind, it’s no doubt on someone else’s mind too.

Christianne Rupp, Editor

Contents 2015

ADMINISTRATION Business Manager Elizabeth Duvall

How Employers Can Support Employees

Marketing Coordinator Mariah Hammacher

Recreational Activities Can Be Therapeutic

Make Room for Mommy (and Daddy)

Project Coordinator Loren Gochnauer Copyright © 2015 On-Line Publishers, Inc. All rights reserved. All listings and advertisements have been accepted for publication on the assumption that the information contained in them is true and accurate and that all merchandise or services offered in the advertisements are available to the customer according to the conditions warranted therein. The appearance of advertisements or products or services does not constitute an endorsement of the particular product or service. On-Line Publishers, Inc. disclaims any and all responsibilities and liability which may be asserted or claimed resulting from or arising out of reliance upon the information and procedures presented in this guide.

On-Line Publishers, Inc. 3912 Abel Drive, Columbia, PA 17512 717.285.1350 • fax 717.285.1360 www.businesswomanpa.com

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Driving Safely with Dementia

Services Address Wandering in Those with Memory Impairment

Monitoring Older Pennsylvanians

Frequently Asked Questions

Resources

Caregiver Support Programs

Probing for a Solution

Directory of Housing & Care Providers

Across the Miles

Directory of Ancillary Services

Understanding Balance to Help Prevent Falls

Support and Information

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How Employers Can Support Caregiver Employees

telecommuting, working from home, frequent breaks, longer lunches, a compressed schedule, exemption from mandatory overtime, or a leave of absence. A couple of these may be easy to pull off, and caregiver staffers receive peace of mind.

By SYLVIA D. HEPLER If you think that caregiving isn’t a big workplace issue today, consider this article as a heads up! Recent Gallup research reports that American businesses lose more than $25 billion annually in productivity due to absenteeism among employees functioning as caregivers to elderly relatives, the chronically ill, and/or dying family members. Further, large numbers of employees giving care (especially those who have been immersed in it long term) tend to experience mental and physical health problems such as depression, anxiety, substance abuse, high blood pressure, diabetes, and heart disease. This serious situation warrants your attention. What is your company currently doing to manage both the individual and organizational impact of employee caregiving? If you are the boss, what are you doing? Take a look at the following tips:

Develop and communicate policies. Think through caregiver challenges, and then write formal, comprehensive policies around them. Define caregiving responsibilities and what constitutes family members. If applicable, explain the FMLA law. Give plenty of examples. Decisions on the fly increase liability risks.

Offer flexible schedules.

Provide useful resources. Today, online literature and community resources abound. Make it your business to learn about them, and don’t hesitate to connect your caregivers. Supply agency contact directories. Refer people to support groups or your Employee Assistance Program. Folks equipped to cope deliver more consistent results.

Demonstrate empathy. No magic words exist to eliminate caregiver frustration, fatigue, and fear, but you certainly can show compassion. Once you’re aware of a situation, acknowledge it directly. Don’t pretend you’re clueless about what’s going on. Every week, make a point to talk with the person. Let her feel your support.

Ask strategic questions. It’s a human tendency to want to tell … tell … tell. Train yourself to ask meaningful questions such as: “What do you need most from me right now? What do you need from your colleagues? What top three things do you want to accomplish over the next five days? How can you succeed?”

Offer alternatives such as flex time, reduced hours, 4

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Share observations.

Check in regularly.

Schedule times to speak privately with the caregiver employee to share your observations about recent behaviors and performance. Open the door by saying: “You seem distracted lately. I imagine it’s difficult to concentrate on your job while you wonder what’s happening at home.” Then let the staff person continue the conversation.

Weekly touch-base phone calls, emails, or brief meetings can provide structure and support. Those connections allow you to follow up on project progress and express reasonable concern for folks who struggle daily to keep their heads above water. Caregiving is a demanding, intense experience. Juggling extra burdensome responsibilities with busy careers, caregivers lead chaotic, fragmented lives. Don’t be fooled: As the pool of older Americans doubles over the next two decades, the problem is going to grow. Since replacing valuable caregiver staff who quit is costly, you’d better find creative ways to work with them. It’s a wise investment. You can’t put a price tag on mutual respect, loyalty, good will, and commitment.

Renegotiate job expectations. Together, you and your caregiving employees must face reality and determine what is possible under challenging circumstances. Discuss options for task completion amidst seemingly endless doctor visits, outpatient test appointments, and hospital stays. To get serious buy-in, proactively solicit employee ideas.

Talk about the topic. If you’ve got staff serving as caregivers outside of work, initiate open conversations about this topic. Incorporate dialogue during staff meetings; invite community experts to provide free lunch ’n’ learns; and/or arrange formal training seminars for supervisors. When you shine light on the subject, everybody benefits.

Expect periodic crises. The lives of your caregiver employees are highly unstable. Intuitively, they know the next crisis lies in wait just around the corner. It’s a matter of time until it erupts. You need to be mindful of this too. Prepare for these emergencies, and figure out how the work still can get done. www.BusinessWomanPa.com

Note: Sylvia is qualified to write this article because she functioned in the primary caregiver role for her uncle and father for more than six years while serving as executive director of a 14county nonprofit organization. She also supervised caregiver staff throughout her career.

Sylvia Hepler of Launching Lives LLC is a Mechanicsburg-based career development specialist who supports executive and manager clientele through individual and group coaching, teleseminars, workshops, and tangible and downloadable products. She is also the author of Learning Leadership Through Loss. www.leadershipthroughloss.com

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Recreational Activities Can Be Therapeutic By LISA M. PETSCHE

When we think about recreational activities, such as bingo and bowling, we tend to consider their contribution to our well-being primarily in terms of their enjoyment value. While the value of having fun should not be underrated, the potential benefits of recreational programming extend much further. Read on to learn more.

Emotional Benefits The opportunity to engage in meaningful activity can generate positive feelings not only during the activity, but also leading up to it. Regardless of the degree of physical or mental disability a person may have, many recreational activities can be adapted to enable their participation (for example, seated bowling). When people who have experienced disability or a health setback are able to participate in previously enjoyed activities, their sense of identity is reinforced and positive memories are stimulated. Successfully engaging in activities—especially when they require some degree of skill or creativity—also fosters a sense of competence, enhancing self-esteem. Organized activities typically are communal, and the resulting contact with people—whether it’s through cooperation, competition, or working individually in the company of others—is validating and enriching. Being in group settings can also help to maintain or enhance one’s social skills. Furthermore, sharing experiences creates a common bond among 6

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participants that decreases feelings of loneliness and isolation. In some cases, special relationships may develop and extend beyond the recreational setting.

Cognitive Benefits Recreational activities that involve creativity (sculpting, for example), strategic thinking (playing cards or board games, for instance), or learning new information or skills provide mental stimulation to participants. Such mental exercise can help to ward off cognitive impairment. For those with some degree of impairment, targeted recreation activities can help to improve selfexpression, sensory awareness, attention span, memory, and decision-making abilities.

Physical Benefits Not all activities need to have a fitness focus in order to benefit seniors physically. Depending on the particular activity, physical benefits may include maintenance or enhancement of one’s endurance and energy level, range of motion of joints, eye-hand coordination, fine and gross motor skills, flexibility, and strength. An increase in activity level may help to improve appetite, sleep, and mood and, in the case of people with dementia, decrease agitation, anxiety, and other behaviors considered challenging (noise making and wandering, for example). In long-term care settings, the desire to participate in activities may motivate some residents to get up and out of bed www.BusinessWomanPa.com

on a regular basis. Among other things, this can lead to an increase in their sitting tolerance and a decrease in their risk of developing skin pressure areas (bedsores).

or large group. Settings vary from a patient’s room to a lounge or specialized activity room to a location in the community. Activities are designed as a form of treatment rather than mere diversion. Some examples of the variety of recreational activities that may be offered in an outpatient or inpatient setting include sensory stimulation, relaxation exercises, bocce, horticulture, music (such as singalongs and drumming), movies, pet therapy, intergenerational programming, and outings to cultural events.

Therapeutic Recreation: A Growing Discipline Recreational activities are so vital to quality of life that trained therapeutic recreationists are an integral part of healthcare teams for seniors in rehabilitation, mental health, daycare, and long-term care settings. Therapeutic recreation (TR) staff help individuals find ways to reengage in former activities or find new activities that match their needs, interests, and strengths. Interventions may take place on an individual basis or in a small

Lisa M. Petsche is a social worker and a freelance writer specializing in boomer and senior concerns. She has many years of experience working in healthcare teams.

Build your caregiver circle. Many times the “best” care comes from an expanded care network and a caregiver who feels recharged and supported. Create a strong caregiver circle that supports you and your loved one’s needs. Messiah Lifeways offers more options for caregivers and the ones they love. Talk to the Messiah Lifeways Coach to learn more.

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Make Room for Mommy (and Daddy)

Careful planning and candid discussions are must-dos before asking ailing parents to move in By CLAIRE YEZBAK FADDEN Many women are adding to their already overwhelming tasks of caring for their children by becoming caregivers for their aging parents, and an increasing number are moving Mom and Dad into their homes. In 2008, 6.2 million families lived in intergenerational households. That number jumped to 7.1 million households by 2010. According to the AARP’s Public Policy Institute, the two-year increase marked a faster rate of growth than the previous eight years combined. And experts expect the trend to continue. The Pew Research Center reports that by 2030, 18 percent of the population will be over age 65, up from 13 percent in 2010. Because many elderly parents don’t want to be a burden on their children and are reluctant to give up their independent living, often it is the adult son or daughter who initiates the move-in conversation. With failing health and financial issues at the root of the move, the decision is frequently made after an emergency arises. A stroke, a fall, or some other physical crisis convinces the family that the senior can no longer live alone. As much as we love our parents, it can 8

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be both a blessing and a weight on many women’s already overscheduled lives to have one or both of them move into our home. It is a good idea to speak with an experienced counselor ahead of time, such as a geriatric social worker or geriatric care manager, to lay the foundation for a smoother transition.

A New Trend? As Americans live longer, many are embracing an old-world style of intrafamily care that was common when we all lived nearby, instead of time zones away. Sybil Rogert grew up with this lifestyle. “Both of my grandfathers came to live with us. One when I was about 7 or 8, and the other when I was 12,” says Rogert. “So when my mother-in-law, Lydia, needed to move in with us, I was used to the idea. I

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assumed that was what you did.” Rogert’s daughters, Holly and Heather, were 3 and 5 years old when she and her husband, Allen, converted the sewing room of their three-bedroom, one-bath home into a bedroom to accommodate the 70-year-old grandmother. What was supposed to be a temporary situation turned into a 22-year living arrangement until Lydia died at age 92. If your family’s deciding what living arrangement is best for your parent or parentin-law, you can minimize some of the stress by considering these points before the move: 1. Be sure of your motivation. Guilt is not the best reason to bring your aging relative into your home. Consider your relationship with your parent. If it is toxic, or severe medical and/or psychiatric issues would cause too much strain on your family, you may want to seek out another plan. 2. Think “big tent.” Get your parents, children, and siblings involved. Talk openly and honestly with everyone and share your concerns, your expectations, and your doubts. www.BusinessWomanPa.com

3. Handling physical restrictions. Early on you need to determine how your house is set up to accommodate your parents’ physical needs. Many baby boomers are retooling their homes to incorporate handicap facilities, wheelchair access, and handrails. Are you able to make physical adjustments to your home for the safety of your family? 4. An identity crisis. It’s no secret that having Mom and Dad move in requires adjustment on everyone’s part. “Each party needs to contribute to the household, no matter how small, to blend into a team,” says author and New York radio host Debbie Mandel. “Remember that your elderly parents are experiencing an identity crisis in a youth-oriented society. They need to feel respected and necessary—so put them to work around the house.” When a parent resides with an adult child, the dynamics of the relationship change, and it can be viewed as a role reversal. Every relationship in the household is affected, especially the marriage of a couple who is sandwiched between parents and children. “They need to have time for fun and creativity. Boomers need to carve out personal time to reclaim their identity,” says Mandel. 5. A private space for everyone. Addressing this real concern up front is imperative. Will Mom or Dad have their own bedroom? How will the common areas of the home be available to them? Aging parents do not want to be a burden, and they want to live as independently as possible.

After the Move Once you’ve decided to become the fulltime caregiver for a live-in, aging parent, it’s critical that you keep realistic expectations. “At first it’s real hard to change your life around. I was in my late 20s when my mother-in-law came to live with us. I learned that families have to continually make adjustments,” Rogert recalls. “But we were so enriched by Lydia and what she shared. She was a much better cook than I was,” she remembers. “There was a big upside for the entire family. For me, I was able to go back to college in the early years because she was there to help care for the girls. I learned so many things from her.”

Claire Yezbak Fadden is an award-winning freelance writer and mother of three sons. Follow her on Twitter @claireflaire.

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6. Keep social commitments intact. Have a conversation with your parents about everyone’s expectations. For example, do your parents have an existing social life? Do they belong to clubs and meet regularly with friends? How will they get to and from their activities? www.BusinessWomanPa.com

Caregivers need to recognize that it may become difficult to meet all the demands on their time. Accept the fact that you’re only as good as your mental and physical health allow you to be. Give yourself a break by taking advantage of family and friends who offer to help with errands. Take time to find out about local services that offer respite care. “And, with your doctor’s permission, involve everyone in a fitness program to shed stress and feel empowered—as well as stay healthier,” Mandel says. “And don’t forget: Humor is free medicine.”

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PA105491

By JIM MILLER

Dear Savvy Senior, Is it safe for seniors with dementia to drive, and if so, when should they stop? My dad has early Alzheimer’s disease but still drives himself around town just fine. – Looking Ahead

specialist who’s trained to evaluate older drivers. To locate a specialist, see www.driver-ed.org or www.aota.org/older-driver.

Transition Tips

Warning Signs

Through your assessments, if you believe it’s still safe for your dad to drive, you may want to start recommending some simple adjustments to ensure his safety, like driving only in daylight and on familiar routes and avoiding busy roads and bad weather. Also, see if he will sign an Alzheimer’s “driving contract” (see www.alz.org/driving to print one) that designates someone to tell him when it’s no longer safe to drive. In addition, you should also consider getting a GPS vehicle tracking system for his car (like www.motosafety.com or www.mobicopilot.com) to help you keep an eye on him. These devices will let you track exactly where he’s driving and allow you to set up zones and speed limits that will notify you via email or text message when he exits an area or arrives at a designated location and if he’s driving too fast.

The best way to keep tabs on your dad’s driving is to take frequent rides with him, watching out for key warning signs. For example: Does he have trouble remembering routes to familiar places? Does he drive at inappropriate speeds, tailgate, or drift between lanes? Does he react slowly or make poor driving decisions? Also, has your dad had any fender benders or tickets lately, or have you noticed any dents or scrapes on his vehicle? These, too, are red flags. If you need some assessment help, hire a driver rehabilitation

When your dad’s driving gets to the point that he can no longer drive safely, you’ll need to talk to him. It’s actually best to start having these conversations in the early stages of the disease, before he needs to quit driving, so he can prepare himself. You also need to have a plan for alternative transportation (including a list of family, friends, and local transportation services) that will help your dad get around after he stops driving.

Dear Looking, While most doctors agree that people with moderate to severe dementia should not take the wheel, in the early stages, the medical consensus is that driving performance should be the determining factor of when to stop driving, not the disease itself. With that said, it’s also important to realize that as your dad’s driving skills deteriorate from the disease over time, he might not recognize it. So it’s very important that you work closely with him and his doctor to monitor his driving. Here are some tips that can help.

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Time to Quit

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Driving performance should be the determining factor of when to stop driving, not the disease itself.

For tips on how to talk to your dad, the Hartford Financial Services Group and MIT AgeLab offer a variety of resources at www.safedrivingforalifetime.com—click on “Dementia and Driving.”

Refuses To Quit If your dad refuses to quit, you have several options. First, suggest a visit to his doctor, who can give him a medical evaluation and “prescribe” that he stops driving. Older people will often listen to their doctor before they will listen to their own family. If he still refuses, contact your local Department of Motor Vehicles (DMV) to see if they can help. Some states require doctors to report new dementia cases to the DMV, who can revoke the person’s license. If all these fail, consider hiding his keys or just take them away. You could also disable his vehicle, park it in another location so he can’t see it or have access to it, or sell it.

Aging Parents? We can help.

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Jim Miller, The Savvy Senior, is a contributor to the NBC Today show and author of The Savvy Senior Book. www.savvysenior.org

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Services Address Wandering in Those with Memory Impairment By MEGAN JOYCE

For caregivers of people with memory issues, keeping their loved one in a safe space—whether it’s their home or a care facility—is vital to the person’s well-being. But the reality is that six in 10 people with dementia will wander away from that safe space at least once. Someone with Alzheimer’s disease or dementia may wander as a result of agitation, confusion, anxiety, overstimulation, or the belief that they are searching for something. They may become disoriented and attempt to relive the past or revive past habits, such as going to work or returning to a familiar neighborhood. While wandering, the person might not recall their name or address, making it difficult for those who encounter the person to assess their needs and return them to safety. Clay Jacobs, vice president of programs and services for the Alzheimer’s Association Greater PA Chapter, said anyone who has memory problems and is able to walk is at risk for wandering, even in the early stages of dementia. There are certain behaviors, however, that are red flags indicating wandering is more likely to occur. “It’s important to plan ahead for this type of situation,” Jacobs said. “Be on the lookout for the following warning signs: [your loved one] returns from a regular walk or drive later than usual; tries to fulfill former obligations, such as going to 12

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ComfortZone, a program available through the Alzheimer’s Association, allows caregivers to monitor the person with dementia from a secured website and receive alerts when the person leaves a preset safety zone.

work; has difficulty locating familiar places like the bathroom, bedroom, or dining room; or appears lost in a new or changed environment.” There are some steps caregivers can take to reduce the likelihood of wandering, such as creating a daily routine for their loved one, which reduces his or her anxiety. Identify the times of day when agitation is highest—these are the times when wandering is likelier to occur—and plan activities and exercise for those times. “It’s also important to understand how the stress experienced by families and caregivers when a person with dementia wanders and becomes lost is significant,” Jacobs added. “Have a plan in place beforehand so you know what to do in case of emergency.” Statistics show that 94 percent of people who wander are found within just 1.5 miles of their home, so Jacobs recommends caregivers ask neighbors to call if they ever see the person with memory issues alone; keep a recent, closeup photo and updated medical information handy to give to police; provide the person with ID jewelry; and keep a list of places where the person may wander (former homes or jobs, restaurants, places of worship). Another interesting note to make is whether the person with dementia is rightor left-handed, as wandering tends to follow the direction of the dominant hand.

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Once it is determined that a loved one is missing, caregivers should call 911 and file a “missing report” for a person with dementia, a “vulnerable adult.” Police will then begin to search for the individual. In addition, Jacobs encourages caregivers to enroll their loved one in MedicAlert® + Alzheimer’s Association Safe Return®, a 24-hour, nationwide emergency-response service for individuals with Alzheimer’s or related dementia who wander or have a medical emergency. When a caregiver calls the emergencyresponse line to report a missing person, a community network will be activated, including local Alzheimer’s Association chapters and law enforcement agencies, Jacobs said. Critical medical information will also be provided to emergency responders if needed. A person enrolled in the program will be wearing MedicAlert® + Safe Return® ID jewelry, so that whoever locates the individual can call the toll-free number listed on the jewelry. MedicAlert® + Safe Return® then notifies the listed contacts to make sure they are returned home. ComfortZone, another program available through the Alzheimer’s Association, allows caregivers to monitor the person with dementia from a secured website and receive alerts when the person leaves a preset safety zone. “[ComfortZone] provides peace of mind and allows independence for the www.BusinessWomanPa.com

Project Lifesaver® participants wear a personalized wristband (transmitter) that emits a tracking signal.

person living with Alzheimer’s,” Jacobs said. The service includes enrollment in MedicAlert® + Safe Return® as well as 24/7 access to a monitoring center. “Both services can be in place concurrently but have different aims,” said Jacobs. “ComfortZone is meant for daily use … It can be changed depending on the progression of the disease and can range from a device placed in a vehicle to something directly on the person.” Another safety option for caregivers in Lancaster County is Project Lifesaver®, a rapid-response, public safety program protecting individuals with Alzheimer’s, dementia, and other cognitive challenges. Project Lifesaver® participants wear a personalized wristband (a transmitter) on their wrist or ankle, which emits a tracking signal on an individually assigned FM radio frequency, explained Gail Monteleone of the Pilot Club of Lancaster, a community-service club that worked in conjunction with local police departments to bring Project Lifesaver® to the area. When a caregiver calls 911 to report that someone enrolled in Project Lifesaver® has wandered, a search team uses a handheld mobile receiver to locate the tracking signal of the individual. According to its website, Project Lifesaver has more than 1,200 participating agencies throughout 47 states in the U.S. and in Canada and Australia. “The local Pilot Club members realized there was a need to have this emergencyresponse program in the county,” Monteleone said. The Pilot Club manages much of the behind-the-scenes work for Project Lifesaver, such as enrollment, transmitter maintenance, public relations efforts, police training support, and ordering equipment. The club also hosts fundraisers and seeks monetary support for the program through donations and grants. www.BusinessWomanPa.com

In Lancaster County, police departments currently collaborating with the Pilot Club to make Project Lifesaver available include West Hempfield Township, West Lampeter Township, Elizabethtown Borough, Columbia Borough, Manheim Borough, Mount Joy Borough, Northwest Regional, Susquehanna Regional, Millersville Borough, Manor Township, and East Hempfield Township. Monteleone said that, on average, the individual who wandered is usually found within 30 minutes of notifying law enforcement.

“Parents/caregivers of the enrollees feel a sense of relief knowing that this safety net is ‘around’ their family member,” she said. Services such as these have been created with a primary goal of returning people with memory issues who have wandered to their safe spaces and to their caregivers. But also essential in their design is peace of mind for those caregivers, who should not blame themselves if their loved one wanders and can instead count on the support of these programs to help bring the person home. “Wandering can happen, even if you are the most diligent of caregivers,” Jacobs said.

By assessing needs, SCSCPA recommends services to state-funding eligible, physically disabled adults, helping them live safely and independently in their homes. State waiver-eligible participants under Attendant Care, Act 150, Autism, OBRA, Independence, and Commcare will ﬁnd that SCSCPA will help you set up a plan that will maintain your health with agencies who can provide the following:

Basic services include, but are not limited to: • Health maintenance needs, meals (including preparation, cleanup, and feeding) • Bathing/personal hygiene • Transfers in/out of a bed, wheelchair, or motor vehicle • Dressing and grooming

Additional services that may be provided: • Light housekeeping • Laundry assistance • Help with shopping • Help with reading, writing, and opening/processing mail Service Coordination of South Central Pennsylvania, Inc. (SCSCPA) 141 Broadway, Suite 310 • Hanover, PA 17331

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Monitoring Older Pennsylvanians By GINA NAPOLI Whether an elder resides in a nursing home or lives at home with professional caregiver assistance, it’s important to continually monitor the arrangement. All Pennsylvania counties have a federally mandated Long-Term Care Ombudsman Program to monitor eldercare. In Lancaster County alone, eldercare encompasses 196 nursing homes, personal care facilities, adult daycares, and domiciliary care homes for developmentally disabled adults. An ombudsman is a paid or volunteer advocate for consumers’ rights. Sheri Snyder, care management/ombudsman supervisor, Lancaster County Office of Aging, said, “We make unannounced visits annually or quarterly. We talk to residents about their concerns and give them literature about their rights. If they raise an issue, we address it on the spot, if that’s what they want.” Protective Services investigates. Investigations can involve abuse, neglect, or financial exploitation. A national database holds information on facilities and specific cases to help investigators. 14

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Some “watch” items: Caregiver Screening – Nursing homes have different procedures. All in-state

applicants are required to get Act 169 of 1996 criminal background checks from the PA State Police Repository. Out-ofstate applicants require an FBI criminal background check. Kevin Nieli, Protective Services supervisor, Lancaster County Office of Aging, said, “Caregivers are the most important consideration of all. Be sure to interview carefully. It is essential to ask for references, obtain criminal background checks, and listen to your gut feelings.” Caregiver Abuse History – Based on studies, the caregivers most likely to be abusive have a history of abuse themselves.

oman caregiver solutions 2015

This includes substance abuse, domestic abuse, victims of violence, or physically or emotionally exhausted people. Caregivers who feel good about their work and have a history of positive interactions with elders tend to be excellent caregivers. If an elder is combative, there is increased risk of a caregiver losing patience. Skin Condition – Examine the elder’s skin for abnormalities. “Pressure sores, or bedsores, may be an indication that the person is not being repositioned as required, is not being changed when needed, is incontinent, or has inadequate nutrition or treatment to promote skin healing,” Nieli said. Also look for bruises, welts, and cuts. Care Receiver’s Behavior – Look for signs of stress, combativeness, reactions to a certain caregiver or a roommate, or sexual acting out. Nutrition – Look at food quality and availability. Check expiration dates. Also look for loss of appetite or unexplained weight loss. “When an elder is removed from an abusive situation, the first thing we often see is healthy weight gain,” Nieli said. www.BusinessWomanPa.com

Smell – Follow your nose. An occasional smell happens. If the facility has a constant foul odor, this could signal a larger problem. It could mean residents are sitting too long in soiled diapers, improper or infrequent cleaning schedules, or poor ventilation. Home Care Spyware – If you cannot observe the caregiver, the next best thing is electronic monitoring. Nanny-cams and webcams are options. Point a Skype session toward watch areas, such as a wheelchair or a jewelry box. Facility Staffing Standards – Metrics are recorded on how facilities are run. Examples of popular watch items are proper staffing, trained aides, and staff availability. Level of Care – As the elder’s condition progresses, it may be necessary to move to a higher level of care. “Cost is usually a driver for placement, and it can often be incorrectly suited. Some elders need a nursing home when they’re in a personal care home,” Nieli said. “Nursing homes cost $8,000 a month, and personal care homes cost between $1,500 and $3,000 a month.” Questions – As people age, they tend to become more trusting and lose many of the defenses they’ve spent a lifetime building. “You can’t come out and ask, ‘Is someone taking advantage of you?’” Nieli said. “You have to be subtle when you steer the questioning. ‘Has Carrie asked for money?’ ‘Have you given Carrie jewelry?’” Records – “When an elder is being financially exploited, the first place we look is the checkbook,” Nieli said. “Elders have been known to pay for college tuitions if they hear the right hard-luck story. “Under the Older Adults Protective Services Act and a partnership with the district attorney, we can court order or subpoena bank records.” www.BusinessWomanPa.com

Roommates – These can be a blessing or a curse. When a resident can’t speak for himself, a roommate is often the one to alert an ombudsman to an abuse situation. Some facilities encourage their residents to form a Neighborhood Watch. On the flip side, “if a resident becomes agitated when someone specific comes near, that may be a sign of abuse,” Nieli said. “This applies to caregivers, too.” A new component of the Ombudsman Program in PA is Pennsylvania’s Empowered, Educated Residents (PEER). More than 2,100 residents are formally trained for Neighborhood Watch patrol. The five sessions of training teach residents how to advocate. They also help to educate residents, family, and staff about rights.

“We teach everyone to never hesitate to speak up when something isn’t right,” Snyder said. The requirement for ombudsmen to monitor facilities has been increased to quarterly visitations. For the past 18 years, Pennsylvania programs have used trained volunteers to help meet this need. Specially trained volunteers assist with monitoring visits, serve as resident advocates, and investigate complaints. Any cases of abuse or neglect are elevated to Protective Services. Surveys of facilities: http://www.medicare.gov/nursinghomecom pare/search.html For more information, or to volunteer, contact your county’s Area Agency of Aging.

19th Annual

• Exhibitors • • Health Screenings • • Seminars • • Entertainment • • Door Prizes • Limited Sponsorship Opportunities Available

13th Annual

LANCASTER COUNTY

Sept. 23, 2015 9 a.m. – 2 p.m. Spooky Nook Sports FREE PARKING!

2913 Spooky Nook Road Manheim

16th Annual

CUMBERLAND COUNTY

YORK COUNTY

Sept. 30, 2015

Oct. 21, 2015

9 a.m. – 2 p.m. York Expo Center

9 a.m. – 2 p.m. Carlisle Expo Center

Memorial Hall East 334 Carlisle Avenue, York

100 K Street, Carlisle

www.50plusExpoPA.com BusinessW

oman caregiver solutions 2015

Six conveniently located communities with a continuum of care, a spirit of service and a legacy of trust…what more could a daughter or son wish for their parents!

If you worry about your parents maintaining their home as they age, living alone, their safety or even their health, a SpiriTrust LutheranTM senior living community can give you more time to enjoy family time and less time worrying about the “what-ifs” in their future. Our communities offer a continuum of care that includes: • Maintenance-free living in one of our residential communities, • Support with daily activities in one of our personal care or assisted living neighborhoods, • Specialized care in our new Assisted Living Memory Support neighborhood, • Short-term rehabilitation or nursing care in one of our skilled care centers. Our spirit of caring has enhanced the lives of seniors and earned the trust of thousands. Come discover the SpiriTrust Lutheran difference for yourself.

Formerly LUTHERAN SOCIAL SERVICES OF SOUTH CENTRAL PENNSYLVANIA

• The Village at Gettysburg, Gettysburg • The Village at Kelly Drive, York • The Village at Luther Ridge, Chambersburg

• The Village at Shrewsbury, Shrewsbury • The Village at Sprenkle Drive, York • The Village at Utz Terrace, Hanover

Call us to learn more or schedule a personal tour.

888-404-3500 • www.SpiriTrustLutheran.org

Pet Friendly

Opening Fall 2015

New Assisted Living and Memory Support Joins Family of Services at SpiriTrust LutheranTM, The Village at Sprenkle Drive As a leader in senior living offerings, SpiriTrust LutheranTM is pleased to announce the exciting new additions of Assisted Living and Assisted Living Memory Support residences to The Village at Sprenkle Drive.

Assisted Living If you desire apartment living enhanced with a selection of services and some support with daily living from a dedicated team of caregivers, our new assisted living neighborhood is right for you. Studio or one-bedroom apartments are available, complete with a living room, kitchenette, and private bedroom and bathroom featuring a European shower. The neighborhood also includes a great room with a fireplace, dining area, computer lab and hobby center.

Assisted Living Memory Support Our new Oaks Memory Support Program is designed to help diminish anxiety and lessen confusion for individuals with early to midstage Alzheimer’s disease or related dementia. Each household of 12 private rooms is served by dementia trained caregivers and shares living space, a protected courtyard, raised garden areas and a country kitchen. Each day residents can interact in group settings or one-on-one as well as engage in therapeutic programming designed specifically for their unique interests and abilities. To place your name on our interest list or to receive upcoming mailings about our new Memory Support program or Assisted Living apartments, please call 717-764-9994.

LIVING SPACE 9’-8”x15’-7”

BEDROOM 10’-4”x12’-1”

W.I.C. 5’-1”x8’-6”

FOYER 5’-6”x4’-7”

BATHROOM 9’-0”x8’-6”

1802 Folkemer Circle • York, PA 17404 www.SpiriTrustLutheran.org

Resources Addicted to Stress: A Woman’s 7-Step Program to Reclaim Joy and Spontaneity in Life _ó=aÉÄÄáÉ=j~åÇÉä ïïïKïáäÉóKÅçã píêÉëë=ã~å~ÖÉãÉåí=ÉñéÉêí=~åÇ=ê~Çáç éÉêëçå~äáíó=aÉÄÄáÉ=j~åÇÉä=Éñéä~áåë=íÜ~í ïçãÉå=ïÜç=~êÉ=Åçåëí~åíäó=ëíêÉëëÉÇ=çìí=Ü~îÉ ÑçêÖçííÉå=íÜÉ=ÇêÉ~ãë=çÑ=íÜÉ=ÑêÉÉJëéáêáíÉÇ=Öáêä äáîáåÖ=áåëáÇÉ=íÜÉã=ÄÉÑçêÉ=íÜÉó=ÄÉÅ~ãÉ ëçãÉÄçÇóÛë=ïáÑÉI=ãçíÜÉêI=ïçêâéä~ÅÉ=ÅçääÉ~ÖìÉI çê=Å~êÉÖáîÉêK= j~åÇÉä=çÑÑÉêë=ëÉîÉå=éêçîÉå=ëíÉéë=íç=ÜÉäé ïçãÉå=çîÉêÅçãÉ=Ç~áäó=ëíêÉëëçêë=~åÇ=êÉÅä~áã=~ äáÑÉ=çÑ=àçó=~åÇ=ëéçåí~åÉáíóK ^ÇÇáÅíÉÇ=íç píêÉëë ëÜçïë=ÜçïI=~ë=íÜÉ=~ÇÇáÅíáçå=íç=ëíêÉëë=áë ÅìêÉÇI=ïçãÉå=ÑáåÇ=áí=éçëëáÄäÉ=íç=ÄìáäÇ=ìé=~å áããìåáíó=íç=çìíëáÇÉ=éêÉëëìêÉ=~åÇ=ÄÉÅçãÉ=íÜÉáê íêìÉ=ÅçêÉ=ëÉäÑK A Bittersweet Season: Caring for Our Aging Parents—and Ourselves _ó=g~åÉ=dêçëë ïïïKéÉåÖìáåê~åÇçãÜçìëÉKÅçã g~åÉ=dêçëëI=~=äçåÖíáãÉ kÉï=vçêâ qáãÉë ÉñéÉêí=çå=íÜÉ=ëìÄàÉÅí=çÑ=ÉäÇÉêäó=Å~êÉ=~åÇ íÜÉ=ÑçìåÇÉê=çÑ=íÜÉ kÉï=läÇ=^ÖÉ ÄäçÖI=ëÜ~êÉë=ÜÉê Ñêìëíê~íáåÖI=ÜÉ~êíÄêÉ~âáåÖI=ÉåäáÖÜíÉåáåÖI=~åÇ ìäíáã~íÉäó=êÉÇÉãéíáîÉ=àçìêåÉóI=éêçîáÇáåÖ=ìë ~äçåÖ=íÜÉ=ï~ó=ïáíÜ=î~äì~ÄäÉ=áåÑçêã~íáçå=íÜ~í ëÜÉ=ïáëÜÉë=ëÜÉ=Ü~Ç=âåçïå=É~êäáÉêK= tÉ=äÉ~êå=ïÜó=ÑáåÇáåÖ=~=ÖÉåÉê~ä=éê~ÅíáíáçåÉê ïáíÜ=~=ëéÉÅá~äíó=áå=ÖÉêá~íêáÅë=ëÜçìäÇ=ÄÉ=óçìê Ñáêëí=ãçîÉ=ïÜÉå=êÉäçÅ~íáåÖ=~=é~êÉåíX=Üçï=íç=ÇÉ~ä ïáíÜ=jÉÇáÅ~áÇ=~åÇ=jÉÇáÅ~êÉX=Üçï=íç ìåÇÉêëí~åÇ=~åÇ=éêçîáÇÉ=Ñçê=óçìê=çïå=åÉÉÇë=~ë=~ Å~êÉí~âÉêX=~åÇ=ãçêÉK= Coping With Caregiving: A Beginner’s Guide to Becoming a Caregiver for Your Loved Ones Without Suffering from Caregiver Burnout _ó=`~êçäóå=píçåÉ=~åÇ=^åå~ÄÉääÉ=píÉîÉåë ïïïKÉíÉêå~äëéáê~äÄççâëKÅçã qÜáë=ÖìáÇÉ=áë=Ñçê=Å~êÉÖáîÉêëI=~Äçìí=Å~êÉÖáîÉêëI ~åÇ=Äó=Å~êÉÖáîÉêëK=få=íÜáë=ÖìáÇÉI=íÜÉ=~ìíÜçêë çìíäáåÉ=ëçãÉ=çÑ=íÜÉ=ÄÉëí=ëíê~íÉÖáÉë=Ñçê=ÄÉÖáååÉêë ïÜç=ëìÇÇÉåäó=ÑáåÇ=íÜÉãëÉäîÉë=éä~ÅÉÇ=áå=íÜÉ=êçäÉ çÑ=Å~êÉÖáîÉêK=qÜêçìÖÜ=äÉ~êåáåÖ=íÜÉëÉ=ëíê~íÉÖáÉëI Å~êÉÖáîÉê=Äìêåçìí=ã~ó=ÄÉ=~îçáÇÉÇI=ïÜáÅÜ=Å~å çÅÅìê=áÑ=íÜÉ=åÉï=Å~êÉÖáîÉê=ÇçÉë=åçí=íêó=íç ã~áåí~áå=~=ÖççÇ=Å~êáåÖI=ïçêâI=~åÇ=äáÑÉ=Ä~ä~åÅÉK 18

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The 36-Hour Day: A Family Guide to Caring for People Who Have Alzheimer’s Disease, Related Dementias, and Memory Loss _ó=k~åÅó=iK=j~ÅÉ=~åÇ=mÉíÉê=sK=o~Äáåë ïïïKÖê~åÇÅÉåíê~ääáÑÉ~åÇëíóäÉKÅçã tÜÉå=ëçãÉçåÉ=áå=óçìê=Ñ~ãáäó=ëìÑÑÉêë=Ñêçã ^äòÜÉáãÉêÛë=ÇáëÉ~ëÉ=çê=çíÜÉê=êÉä~íÉÇ=ãÉãçêóJ äçëë=ÇáëÉ~ëÉëI=ÄçíÜ=óçì=~åÇ=óçìê=äçîÉÇ=çåÉ=Ñ~ÅÉ áããÉåëÉ=ÅÜ~ääÉåÖÉëK=cçê=ãçêÉ=íÜ~å=PM=óÉ~êëI íÜáë=Äççâ=Ü~ë=ÄÉÉå=íÜÉ=íêìëíÉÇ=ÄáÄäÉ=Ñçê=Ñ~ãáäáÉë ~ÑÑÉÅíÉÇ=Äó=ÇÉãÉåíá~=ÇáëçêÇÉêëK= kçï=ÅçãéäÉíÉäó=êÉîáëÉÇ=~åÇ=ìéÇ~íÉÇI=íÜáë ÖìáÇÉ=ÑÉ~íìêÉë=íÜÉ=ä~íÉëí=áåÑçêã~íáçå=çå=íÜÉ Å~ìëÉë=çÑ=ÇÉãÉåíá~I=ã~å~ÖáåÖ=íÜÉ=É~êäó=ëí~ÖÉë çÑ=ÇÉãÉåíá~I=íÜÉ=éêÉîÉåíáçå=çÑ=ÇÉãÉåíá~I=~åÇ ÑáåÇáåÖ=~ééêçéêá~íÉ=äáîáåÖ=~êê~åÖÉãÉåíë=Ñçê=íÜÉ éÉêëçå=ïÜç=Ü~ë=ÇÉãÉåíá~=ïÜÉå=ÜçãÉ=Å~êÉ=áë=åç äçåÖÉê=~å=çéíáçåK Hope for the Caregiver: Encouraging Words to Strengthen Your Spirit _ó=mÉíÉê=oçëÉåÄÉêÖÉê ïïïKïçêíÜóáåëéáêÉÇKÅçã qÜÉêÉ=~êÉ=SRKT=ãáääáçå=Å~êÉÖáîÉêë=áå ^ãÉêáÅ~I=ã~âáåÖ=ìé=OV=éÉêÅÉåí=çÑ=íÜÉ=rKpK=~Çìäí éçéìä~íáçåK=tÜÉêÉ=ÇçÉë=íÜÉ=Å~êÉÖáîÉê=íìêå=ïÜÉå ÇÉ~äáåÖ=ïáíÜ=íÜÉáê=çïå=åÉÉÇ=Ñçê=ÉåÅçìê~ÖÉãÉåí ~åÇ=êÉåÉï~ä\=tÜ~í=ÇçÉë=ÜÉäéÒ=äççâ=äáâÉ=íç=~ Å~êÉÖáîÉê\= eçéÉ=Ñçê=íÜÉ=`~êÉÖáîÉê ~åëïÉêë=íÜ~í èìÉëíáçå=ïáíÜ=íÜÉ=áããÉåëÉ=ÅêÉÇáÄáäáíó=çÑ=íÜÉ ~ìíÜçê=~åÇ=áåëáÖÜíë=ÖäÉ~åÉÇ=Ñêçã=ãçêÉ=íÜ~å=OU óÉ~êë=~ë=~=Å~êÉÖáîáåÖ=ÜìëÄ~åÇK=eçéÉ=Ñçê=íÜÉ `~êÉÖáîÉê ÅçãÄáåÉë=éêçîÉå=éê~ÅíáÅ~ä=ÜÉäé=ïáíÜ _áÄäáÅ~ä=éêáåÅáéäÉë=~åÇ=~=éçïÉêÑìä=ãÉëë~ÖÉ=çÑ ÉåÅçìê~ÖÉãÉåí=Ñêçã=çåÉ=ïÜç=Ü~ë=ÄÉÉå=íÜÉêÉ Á=~åÇ=ïÜç=áë=ëíáää=íÜÉêÉKÒ= The Hardest Peace _ó=h~ê~=qáééÉííë ïïïKÇ~îáÇÅÅççâKÅçã h~ê~=qáééÉííë=âåçïë=íÜÉ çêÇáå~êó=Ç~óë=çÑ=ãçíÜÉêáåÖ=Ñçìê âáÇëI=íÜÉ=àçó=çÑ=ï~íÅÜáåÖ=ÜÉê=ÅÜáäÇêÉå=Öêçï=KKK ~åÇ=íÜÉ=ÇÉî~ëí~íáåÖ=êÉ~äáíó=çÑ=ëí~ÖÉJÑçìê=Å~åÅÉêK= få qÜÉ=e~êÇÉëí=mÉ~ÅÉI=h~ê~=ÇçÉëåÛí=çÑÑÉê ~åëïÉêë=Ñçê=ïÜÉå=äáîáåÖ=áë=Ü~êÇI=Äìí=ëÜÉ=~ëâë=ìë íç=àçáå=ÜÉê=áå=ãçîáåÖ=~ï~ó=Ñêçã=ÑÉ~ê=~åÇ Åçåíêçä=~åÇ=íçï~êÇ=éÉ~ÅÉ=~åÇ=Öê~ÅÉK=jçëí=çÑ=~ääI ëÜÉ=Çê~ïë=ìë=Ä~Åâ=íç=íÜÉ=dçÇ=ïÜç=áë=ïáíÜ=ìëI=áå íÜÉ=ãìåÇ~åÉ=~åÇ=íÜÉ=ëìÑÑÉêáåÖI=~åÇ=ïÜç=ëÜ~éÉë ÉîÉå=çìê=é~áå=áåíç=ÄÉ~ìíóK

oman caregiver solutions 2015

Aging Parent Problems: Common Bad Behaviors and Effective Ways to Deal with Them _ó=^åíÜçåó=mÜçÉåáñ ïïïK~ã~òçåKÅçã qÜáë=áë=íÜÉ=ÄÉÖáååáåÖ=çÑ=~=êçìÖÜ=êç~Ç=áå ~ÖáåÖ=é~êÉåí=Å~êÉK=^äíÜçìÖÜ=óçì=ã~ó=ÄÉ=äáîáåÖ ïáíÜ=íÜÉ=ìÖäó=ëáÇÉÒ=çÑ=~ÖáåÖI=áí=áë=ëíáää=éçëëáÄäÉ=íç ÅçãÉ=~ï~ó=ïáíÜ=ï~êã=ãÉãçêáÉë=~åÇ=íÜÉ=éêáÇÉ çÑ=âåçïáåÖ=óçì=ïÉêÉ=íÜÉêÉ=Ñçê=íÜÉã=ïÜÉå=íÜÉó åÉÉÇÉÇ=óçì=ãçëíK _~Ç=ÄÉÜ~îáçê=Äó=~å=~ÖáåÖ=é~êÉåí=Å~å=ÄêáåÖ ëáÖåáÑáÅ~åí=Éãçíáçå~ä=é~áå=~åÇ=Ñêìëíê~íáçå=íç Ñ~ãáäó=Å~êÉÖáîÉêëK=vÉíI=íÜêçìÖÜ=é~íáÉåÅÉI éÉêëáëíÉåÅÉI=~åÇ=äçîÉ=ÇìêáåÖ=íÜÉëÉ=íêóáåÖ=íáãÉëI óçì=Å~å=çîÉêÅçãÉ=ÉîÉå=íÜÉ=ãçëí=ÅÜ~ääÉåÖáåÖ áëëìÉëK What to Do about Mama? _ó=_~êÄ~ê~=dK=j~ííÜÉïë=~åÇ _~êÄ~ê~=qê~áåáå=_ä~åâ= ïïïKëìåÄìêóéêÉëëKÅçã qÜáë=áë=~=Äççâ=Ñçê=Å~êÉÖáîÉêë=Äó Å~êÉÖáîÉêëK=qÜÉáê=áåíÉåíáçå=áë=íç=éêçîáÇÉ áåÑçêã~íáçåJÄ~ëÉÇ=Å~êÉÖáîÉê=ÉñéÉêáÉåÅÉëI=ïÜáÅÜ ïáää=~ëëáëí=óçì=áå=ÇÉîÉäçéáåÖ=êÉ~äáëíáÅ=Öç~äë=~åÇ ÉñéÉÅí~íáçåëK=j~ííÜÉïë=~åÇ=_ä~åâ=áÇÉåíáÑó Åçããçå=ÑÉÉäáåÖë=çÑ=äáâÉ=ÉñéÉêáÉåÅÉëI=~åÇI ÅçåîÉêëÉäóI=ÇáÑÑÉêÉåí=éÉêëéÉÅíáîÉë=~Äçìí=äáâÉ ÉñéÉêáÉåÅÉëK= få=~ÇÇáíáçå=íç=íÜÉáê=çïå=äáÑÉ=ÉñéÉêáÉåÅÉëI áåÑçêã~íáçå=ï~ë=~äëç=Ö~íÜÉêÉÇ=Ñêçã=çíÜÉê Å~êÉÖáîÉêë=íÜêçìÖÜ=~=Å~êÉÖáîÉêëÛ=èìÉëíáçåå~áêÉI ïÜáÅÜ=áë=áåÅäìÇÉÇ=áå=íÜÉ=ÄççâK=qÜáë=Äççâ=ïáää ÖÉí=óçì=íÜáåâáåÖ=~Äçìí=íÜÉ=ã~åó=áëëìÉë=íÜ~í=Å~å ~åÇ=Çç=~êáëÉK The Revised Fundamentals of Caregiving: A Novel _ó=gçå~íÜ~å=bîáëçå ïïïKêÉîáëÉÇÑìåÇ~ãÉåí~äëKÅçã qÜáë=áë=~=ëíçêó=íÜ~í=áë=~ë ÖêçìåÇÉÇ=áå=íÜÉ=ëí~êâ=êÉ~äáíó=çÑ=áíë=ÅÜ~ê~ÅíÉêëÛ ëíêìÖÖäÉë=~ë=áí=áë=ÑáääÉÇ=ïáíÜ=íÜÉ=âáåÇ=çÑ=ÜçéÉÑìä àçó=íÜ~í=Éå~ÄäÉë=íÜÉã=íç=ã~âÉ=áí=Ñêçã=çåÉ=Ç~ó=íç íÜÉ=åÉñíK=^=åçîÉä=çÑ=íÜÉ=ÜÉ~êíI=~=åçîÉä=çÑ=ìåäáâÉäó ÜÉêçÉë=áå=~=Öê~åÇ=^ãÉêáÅ~å=ä~åÇëÅ~éÉI=áí=áë ãçëí=çÑ=~ää=~=éêçÑçìåÇ=äççâ=áåíç=ïÜ~í=áí=í~âÉë=íç íêìäó=Å~êÉ=Ñçê=çåÉ=~åçíÜÉêK= _ìêëíáåÖ=ïáíÜ=ÉåÉêÖó=~åÇ=ÑáääÉÇ=ïáíÜ ãçãÉåíë=çÑ=~ÄëçäìíÉ=ÄÉ~ìíóI=íÜáë=ÄáÖÜÉ~êíÉÇ ~åÇ=áåëéáêÉÇ=åçîÉä=éçåÇÉêë=äáÑÉÛë=íÉêêáÄäÉ ëìêéêáëÉë=~ë=ïÉää=~ë=íÜÉ=ÜÉ~êíÛë=ìåÅ~ååó=Å~é~Åáíó íç=ãÉåÇK= www.BusinessWomanPa.com

Probing for a Solution By JEFF HOENSHELL

“Non-traditional procedures” ... “Alternative therapies.” Such words often strike an uneasy chord for those of us who are used to a friendly old family doctor and a pharmacy on nearly every corner. When you’ve grown up with pills, pills, and more pills, it’s unsettling when someone suggests something like brain surgery as an alternative to deal with symptoms you’ve been treating with a familiar assortment of prescribed medicines. However, the risk-taker in me was strangely excited when a surgical procedure to place electrical probes directly into the brain might allow me to reduce—or maybe even eliminate—some of the pills I had been taking to cope with the tremors of Parkinson’s disease. PD, that degenerative disorder caused mainly by the depletion of the “feelgood” chemical dopamine from the brain, and which eventually saps all strength from even the most physically fit, had been taking its toll on me for several years. And the truth is, I was tired of pills. More to the point, I was weary of the on-and-off effect of the pills and of the unpredictable side effects some pills were causing. But most of all, I was tired of trying to remember to take them at exact times throughout the day. Of such things I am convinced: Herding cats would be easier. In my case, at age 49 when first diagnosed, I was told right away that I was evidently a good candidate for deep brain stimulation surgery. Yet to qualify, it had to be shown over time that traditional meds weren’t providing sufficient relief. So, I had several years of trial and error with pills—more “trial” than I cared for, mind you. At first the dopamine agonists I took almost turned me into a shopaholic. Those were replaced by traditional carbidopa/levodopa, which worked, but often between doses I shook too badly to get the pill cap open! Eventually, a patch version was added to my regimen, although I was sure the red splotches were going to be permanent. www.BusinessWomanPa.com

Now, in all fairness, the meds were mostly working, but it wasn’t exactly smooth sailing. And I even think my neurologist was growing weary when he finally admitted, “It’s time for the surgery, wouldn’t you say?” I was never so agreeable in all my life. I had already been imagining that it might buy me at least five years of tremorlessness. And five years, I reasoned, would at least put me closer to retirement. And by then, I begrudged, I probably would be taking pills for umpteen other ailments, anyway.

In preparation for this truly alternative surgery, I had read almost everything possible …

In preparation for this truly alternative surgery, I had read almost everything possible and had watched numerous videos, so I felt quite ready for the unconventional and somewhat gruesome thoughts of what the surgery entailed. To that my daughter encouraged me with, “How many others can check that off their bucket list?” I’m grateful—and amazed—to say it all came and went without a hitch. Of course, I slept through the majority of it. I was even more amazed at how little pain I experienced after. But what topped it all was how almost immediately the electrical current brought the renegade tremors to a halt. One day my limbs shook like crazed cartoon BusinessW

characters; the next day, calm as could be. (Cue the angelic voices.) In all seriousness, at first it was like a dream that I hoped would never end. The tremors were essentially gone. Plus, they had also been causing general muscle fatigue, making the most common activities feel like a herculean effort. And for the first time I awoke without that feeling of being thoroughly drained from the previous day’s labors. Instead I wake every day with two little bumps on my head (hidden by what little hair remains), wires snaking down behind my ear, and a box like a pacemaker tucked into my chest, reminding me that I’m a walking miracle. (Angelic voices, take two.) The inventor of such a device has my deepest admiration. And with the plan to get a new battery pack in another two or three years, I’m good to go for quite some time. While the change was indeed profound, I also knew that in no way did this procedure stop the disease. This was just an alternative treatment, which I’ve had to remind myself often. Plus, my reading strongly indicated that it could take upward of nine months to get the settings on the stimulator regulated to work best for me. So, the other dream crasher has been that this is not a one-size-fits-all device. In fact, at this writing, I’m just past 12 months down the road of regular stimulator adjustments with my neurologist, and let’s just say my newest adventure is more of a hunt to find the best setting. For me. But then, risk takers are also mostly optimists, aren’t they? So I remain hopeful. Consequently, I consider myself a truly fortunate man. It’s a discouraging disease, for sure. But I’ve got a trustworthy doctor, a loving family, caring friends, and a great support team. Blessings of God all around. But I especially kick up my heels and want to strike up the band over the simple fact that I’m now taking ... fewer pills! And if you ask me, I’d just as soon keep it that way.

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Across the Miles Cut your stress in long-distance care for an older relative

By LISA M. PETSCHE Even at the best of times, caregiving involves a certain amount of stress, but often the anxiety is compounded when there are many miles between the caregiver and care receiver. Worries about a faraway relative’s physical, mental, and emotional health and safety can be overwhelming at times. You may wonder if plans you’ve set up are being implemented properly, or if you’ll get a call that there’s a crisis. You may also feel guilty that you can’t be there on a daily basis to see how your relative is doing and provide assistance. You might wonder if you should be making more sacrifices — such as moving closer or inviting the person to live with you.

Then there are the financial costs: the many long-distance telephone calls, travel expenses and wear and tear on your car, and perhaps the cost of hiring a companion or personal support worker because you can’t be there yourself. If employed, you may have to take time off from work to deal with crises. Despite these challenges, there are many ways to maintain peace of mind while providing long-distance care: • Make it easy for people to get in touch with you. Get a cell phone or answering machine. • Set up a regular time to call your relative. • Find someone local who can check in daily with your relative. This could be a reliable neighbor or relative or even a volunteer from a telephone reassurance service. • Keep important phone numbers handy, including those of your relative’s neighbors, close friends, family physician, local pharmacy, and any home healthcare providers. Make sure all of these people also have your name and contact information, and encourage them to call you with any concerns. • Shop around for a good long-distance savings plan for landlines. Cell phone providers offer unlimited calling plans, which may put your mind at ease knowing that you can call anytime and talk as long as either of you wish. • Maintain a file of key information, such as your relative’s medical conditions and surgical history, an up-to-date medications list, a list of physicians and medical specialists, banking institutions and other financial contacts, and contact info for a lawyer and clergy.

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Also include your relative’s daily or weekly schedule and upcoming appointments. • Investigate all available resources in your relative’s community, which might include: personal emergency response systems; letter carrier or utility company alert services; accessible transportation; home health services; and alternative housing options. Sources for that information include Caregiver Solutions; Resource Directory for the Caregivers, Aging, and Disabled; and 50plus Living—all can be viewed online at www.onlinepub.com— or contact your area agency of aging (see pg. 29).

• Perform a home safety assessment and do what you can to remove hazards. Visit a medical supply store and check out the many products that might make daily activities easier and safer for your loved one. • If you have other family members in the area, arrange a meeting to discuss your relative’s needs and determine who can provide help. • Plan to stay with your relative long enough that you’re not rushed. That way you’ll have ample time not only to attend meetings, investigate local resources, and run errands, but also to enjoy your relative’s company.

When you visit: • Pay close attention to your relative’s physical condition, mental functioning, and mood. Contact his or her primary physician if you have concerns.

Cleaners Companions Nurses Respite Care

Lisa M. Petsche is a social worker and a freelance writer specializing in boomer and senior concerns. She has personal and professional experience with eldercare.

Home Care

610-647-9840 t SurreyServices.org A non profit organization serving the community for 34 years. www.BusinessWomanPa.com

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Understanding

e n c l Ba a

to Help Prevent Falls

By LYNN LUEDERS All too often we think aging and falling go hand in hand. The days of carefree play are behind, and aging bodies may not be able to do what once was accomplished with ease. However, aging alone does not equal falling. The predictable changes that occur at certain ages create balance challenges, but falling should not be considered part of typical aging or an inevitable event. Balance is the ability to have equal distribution of weight over a base of support to maintain upright posture. Having good or poor balance is the result of a large combination of behavioral, environmental, and physical factors. Each person has a unique set of circumstances and conditions that creates his or her unique ability to balance. Behavioral factors involve the hundreds of choices made daily. Using a cane or walker as prescribed by a physician is a tough pill to swallow for many. Doing activities that once were easily accomplished 40 years ago may not be suitable today. Wearing inappropriate footwear or carrying too many groceries are all choices that could negatively affect balance and increase the risk of falling. Our living spaces can greatly impact our fall risk. Living in a three-floor home is different from living in a one-floor apartment. Having handrails and grab bars where needed will greatly assist your loved one in maintaining balance. Little or no clutter and eliminating areas rugs can reduce their risk of falls as well. Moving through our world successfully requires constant observation, allowing quick decisionmaking and appropriate action. Physical balance involves the sensory system, cognitive system, and motor system.

Sensory System Vision: Sensory input from eyes is critical in assessing the world around and making reasonable decisions about how to move. Inner ear (vestibular system): Fluid in the semicircular canals of the inner ear help the body detect motion and determine if it is moving or if the world around is moving (equilibrium). 22

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Touch (proprioception): Information from sensory receptors in skin, muscles, and joints is constantly sent to the brain to determine where our body is in space (spatial orientation).

Cognitive System Memory storage: remembering what to do in a given situation Attention: focusing and taking in surroundings Intelligence: forming an appropriate response Information gathered by the sensory system and passed to the cognitive system then travels to our muscles (motor system) for an appropriate response. If all other systems are working well but there is lack of muscular strength to perform an activity (such as getting up out of a chair or walking to the car), then balance will be impacted and increase the risk of falling. Understanding all that goes into good or poor balance will help you understand your care receiver’s balance ability. Examining each balance concern or fall provides clues to the underlying cause. If the cause can be determined, appropriate interventions can be put in place and future falls can ideally be prevented. In searching for the cause, examine the what, where, when, and how of each balance concern or fall: What – Ask your loved one what happened just before she became wobbly or experienced a fall. Was she dizzy? Did her legs become weak? Was she seeing clearly? Where – Is she wobbly or does she fall in the same area often? What is in that area— bad lighting, area rugs, change in elevation, clutter? Is your loved one off balance at home or away from home more often? When – Is there a time that she is off balance or falls more often? Does she experience trouble at night or first thing www.BusinessWomanPa.com

when getting out of bed? Does she feel wobbly after taking medications? Is the end of the day a more difficult time for her to move around? How – Examine the actual fall. Did she fall forward, backward, or to the side? Did she bump into anything? Did someone bump into her? Was she moving, turning, or standing still? Sharing the information, once it is gathered, is the tough part for many. Speaking with a care receiver’s healthcare provider, physical therapist, or pharmacist

about balance issues or a fall can be the first step to developing a plan to improve balance and reduce her risk of falling. There are many possible interventions or solutions to balance concerns, such as reviewing medications, increasing physical activity, having a vision examination, and completing a home safety check. Help your loved one remain as active and independent as long as possible and reduce their risk for falls.

Lynn Lueders is the program director of Lancaster Moravian Church Adult Day Services Center. She is a former wellness director specializing in education and training for balance and fall prevention of older adults. www.LancasterMoravian.org

when it is no longer possible or practical to live at home w e w e l c o m e p e o p l e o f a l l fa i t h s

the jewish home

skilled nursing and rehabilitation 717.657.0700

the residence

a senior living community 717.441.8880

w w w. j e w i s h h o m e h a r r i s b u r g . o r g BusinessW

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Frequently Asked Questions What services are available from Pennsylvania Area Agencies on Aging? Area Agencies on Aging, county- or multi-county-based agencies that partner with the Department of Aging, provide a wide range of services, such as assessment of need, care management, in-home services, transportation, protective services, adult daycare, legal services, healthcare counseling, and senior centers. Services may vary from county to county, so it is wise to call your local Office of Aging for particular services or programs. What is the Pennsylvania Caregiver Support Program? Previously called The Family Caregiver Support Program, the Pennsylvania Caregiver Support Program’s major focus is to reinforce the care being given to people over the age of 60 or adults with chronic dementia. The package of benefits begins with an assessment to determine what benefits best meet your needs and the needs of the person receiving care. Then you will choose an option from available supportive services. Other benefits could also include counseling, education, and financial information. Is there someplace I can get help with drug bills for someone in my care? Many senior citizens with low incomes are eligible for assistance with payment for their prescribed medications through PACE/PACENET programs. Who is eligible for PACE? To be eligible for PACE, you must be 65 years of age or older and a Pennsylvania resident for at least 90 consecutive days prior to the date of application, and you cannot be enrolled in the Department of Public Welfare’s Medicaid prescription benefit. Social Security Medicare Part B premiums are now excluded from income. 24

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For a single person, your total income must be $14,500 or less. For a married couple, your combined total income must be $17,700 or less. Prescriptions: co-pay for generic, $6; co-pay for single-source brand, $9. Who is eligible for PACENET? To be eligible for PACENET, the qualifications are the same as PACE. However, the total income for a single person can be between $14,500 and $23,500. A couple’s combined total income can be between $17,700 and $31,500. Prescriptions: co-pay for generic, $8; co-pay for single-source brand, $15. Monthly $40 deductible. Call your local Area on Aging office for forms or more information. What is PACE Plus Medicare? Under PACE Plus Medicare, PACE/PACENET coverage is supplemented by federal Medicare Part D prescription coverage—offering older Pennsylvanians the best benefits of both programs. Older adults continue to receive the same prescription benefits while, in many cases, saving more money. Is there other assistance for prescription drugs if the person in your care doesn’t qualify for the above programs? If you are uninsured or underinsured, over age 18, and do not currently have Medicaid or PACE coverage, PA PAP will help you to apply for prescription assistance through various programs. For more information, call 800.955.0989. Is there a way to comparison shop for prescription drugs? On the Pennsylvania Prescription Price Finder website (www.parxpricefinder.com), a consumer can comparison shop for the best medication prices for commonly used medications. The website includes prices, pharmacy location and store hours, where

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to find low-cost generics, and drug education materials. What are some of the most important documents a caregiver should have in place? The most common legal documents that every caregiver should have are: A will – It should say what your loved one wants to do with his or her property, including how and when the assets will be distributed. Advanced healthcare directive – This offers the assurance that your loved one’s decisions regarding his or her future medical care will reflect their values and wishes. Durable power of attorney for healthcare – This gives you, the caregiver, the right to make healthcare decisions. It takes effect when a loved one becomes mentally incapacitated and is unable to make his/her own healthcare decisions. Your agent must act consistently with your desires as stated in the document. Durable power of attorney for finances – This allows a caregiver to manage their loved one’s finances and takes effect when a loved one becomes incapacitated and no longer able to pay the bills, file tax returns, manage investments, and make other important financial decisions. HIPAA authorization – The Health Information Portability and Accountability Act (HIPAA) keeps health information and records private. Your loved one must authorize in writing that you may receive their health information. Otherwise, their doctors aren’t obligated to share any details about their health with you, the caregiver. You will need to have a copy from each doctor’s office. Sign it at the office and then keep a copy for yourself and the person you’re caring for. Of course, the doctor’s office will also have a copy. www.BusinessWomanPa.com

What is the APPRISE Program and where can I get more information? The APPRISE Program is a free program operated by the Area Agencies on Aging to provide health-insurance counseling and assistance to Pennsylvanians age 60 and over. They can help you understand Medicare benefits by explaining Medicare, Medicare Supplemental Insurance, Medicaid, and long-term care insurance. They can explain the Medicare appeals process, help you select a Medigap insurance policy, explain the Medicare prescription Part D benefit, and explain financial assistance programs. Call 800.783.7067 or your local Area Agency on Aging for more information. The services are free of charge. I heard that communities must now be licensed as a personal care home or an assisted living residence. Is that true? Yes, that is correct. At the beginning of 2011, personal care and assisted living can no longer be interchangeable terms. Specific requirements must be met, and communities (including retirement communities and CCRCs that offer those services) must be licensed as one or the other, although they can meet requirements and be licensed for both. Do home care agencies need licenses too? Yes, home care agencies (HCAs) and home care registries (HCRs) must now be licensed by the Department of Health to provide home care services, medical and nonmedical. What is respite care? Respite care provides relief from your caregiving responsibilities on a short-term basis, which could be for a day or two or even up to a month. Care may range from personal to nursing care.

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Are there services offered on a daily basis that will provide social interaction and possibly medical oversight for my loved one? Adult day services centers operate for part of a 24-hour day and offer an interactive, safe, supervised environment for older adults and adults with a dementia-related disease, Parkinson’s disease, or other organic brain syndrome. Adult day services centers offer a community-based alternative to institutionalization and provide a reliable source of support and respite for caregivers. Are there caregiving tax breaks I can take advantage of? You may be able to claim your loved one as a dependent on your tax return. With changes occurring in the healthcare laws, it is advisable to check with your tax preparer to find out what you qualify for, such as medical deductions and a dependent-care credit.

See page 26 to see an overview of waivers and programs offered.

What is the waiver program offered through the Pennsylvania Department of Aging? There are several waivers available through the Pennsylvania Departments of Aging for people aged 60 and older who meet the eligibility requirements and income limits. Under the program, home- and community-based long-term care services can be provided as alternatives to nursing care. Services are funded through a special waiver of certain Medicaid restrictions, allowing payments typically used for nursing-home care to be used for homecare services. The consumer is able to choose which local organization or company/agency will provide the services. All service providers are certified by the Pennsylvania Department of Public Welfare to ensure that they meet Medicaid standards. Some services/benefits that individuals BusinessW

can be approved for are: • Adult daily living services (adult daycare) • Attendant care (personal care) • Community transition services (moving assistance) • Companion services (escort) • Counseling • Environmental accessibility modifications (home and/or vehicle) • Financial management services • Home health services • Home medical equipment and supplies • Meal delivery (hot or prepared) • Non-medical transportation • Personal emergency response (PER) system • Respite care services (temporary caregiver relief)

What are my obligations as a caregiver? As the caregiver, you should make sure your loved one is in a safe and healthy environment, whether that is their home, your home, or a nursing home. He or she should be protected from any type of abuse—physical, mental, or financial. Some documents that you should have in place are listed on the facing page. Respite care may be offered through a local retirement community, through home care services, and through a statefunded program, such as adult daycare programs. Respite care offers you the ability to rest, relax, and regroup, confident that your loved one is in the hands of trained and qualified professionals. Are there any other online sources for additional information? Yes. Visit www.heretohelp.pa.gov. There is an abundance of information to be found at Here to Help on the PA Government Portal.

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Caregiver Support Programs There are approximately 52 million Americans serving as caregivers of older adults. Adult family caregivers caring for someone 50+ years of age number 43.5 million, and 14.9 million care for someone who has Alzheimer’s disease or other dementia. Americans are living longer, and as the population ages, the number of caregivers will also continue to rise in the coming years. Caregivers are an essential element in our healthcare system, accounting for about $450 billion worth of unpaid labor in the U.S. in 2009. Undoubtedly, that amount is even greater today. Caregiving already has become the new norm for many, as we find ourselves helping loved ones who are disabled, frail, or suffering from Alzheimer’s disease, Parkinson’s disease, and kidney and liver diseases,

Benefits & Services for Caregivers • Assessment of caregiver and care recipient needs • Counseling on coping skills • Respite care

which have been on the rise. Daughters are more likely to provide basic care (i.e., help with dressing, feeding, and bathing), while sons are more likely to provide financial assistance. A number of studies have shown that women caregivers are more likely than men to suffer from high stress due to caregiving. The major focus of Caregiver Support Programs is to reinforce the care being given to people over the age of 60 or adults with chronic dementia. To determine what your particular needs are, both the caregiver and receiver, the package of benefits begins with an assessment. You could also take advantage of other benefits available such as counseling, education, and financial information.

Assessment Criteria (Federal and State) State No**

Federal No

Caregiver must be related to the care receiver.

Household income of care receiver is used to determine eligibility.

Yes

Care receiver must require assistance with two or more ADLs.

No (1)

Yes (2)

Maximum amount of monthly reimbursement for caregiver expenses (depending on reimbursement rate chart) is:

$200

$300

Maximum amount of reimbursement for home modification/assistive devices (depending on reimbursement rate/cost-sharing chart and availability of funding) is:

$2,000

Information to caregivers includes advice on how to access: individual counseling, locations of local support groups, and caregiver training to assist caregivers in making decisions to solve problems related to their caregiving role.

Yes

Caregiver must provide daily hands-on caregiving to care receiver.

Yes

Caregiver must reside in the same household as care receiver.

• Training in caregiving skills • Home chore caregiving skills • Financial assistance to purchase supplies or services • One-time grant for home adaptations • Benefits counseling on services available through local, state, and federal programs • Referrals to family support or disease-specific organizations such as Children of Aging Parents or the Alzheimer’s Disease & Related Disorders Association • Assistance in completing benefits and insurance forms

Eligibility If you are age 18 or older and the primary caregiver* of a functionally dependent person who is age 60 or older, you may be eligible for assistance. If you are age 18 or older and the primary caregiver* of a relative who is age 18 to 59 with dementia, you may be eligible for assistance. If you are age 55 or older and the primary caregiver* of a relative who is age 18 or younger and lives with you, you may be eligible for assistance. *A primary caregiver is the “one identified adult family member or other individual who has assumed the primary responsibility for the provision of care needed to maintain the physical or mental health of a care receiver and who does not receive financial compensation for the care provided.” For specific program information, please contact your local Area Agency on Aging.

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**Unless care receiver is 19-59 years of age with dementia or other disability. www.BusinessWomanPa.com

Directory oF Housing & care ProviDers Albright LIFE Serving Lebanon, Lancaster, and Coatesville, Chester County

717.381.4320 www.albrightlife.org

Home Care Assistance 717.540.4663 2304 Linglestown Road www.homecareassistanceharrisburgpa.com Harrisburg, PA 17110

All Hands Home Care 1300 Market Street, Suite 5 Lemoyne, PA 17043

717.737.7905 info@allhandshomecare.com www.allhandshomecare.com

Alzheimer and dementia specialists; experts in live-in care; high-caliber, experienced, and certified caregivers providing compassionate and balanced care. See ad page 11

Bethany Village 325 Wesley Drive Mechanicsburg, PA 17055

717.766.0279 bvmarketingdept@asbury.org www.bethanyvillage.org

Homeland Center 1901 North Fifth Street Harrisburg, PA 17102

Bethany Village is a not-for-profit retirement community. Numerous residential options are available as well as assisted living, memory support, and skilled nursing services. See ad page 11 Bethany Village at Home 5225 Wilson Lane Mechanicsburg, PA 17055

717.591.8332 kbruner@asbury.org www.bethanyvillageathome.org

We offer customized personal care, companionship, and transportation services to fit your needs. Care is given with the respect and dignity seniors deserve while maximizing their independence. Calvary Fellowship Homes 502 Elizabeth Drive Lancaster, PA 17601

717.393.0711 mmorris@calvaryhomes.org www.calvaryhomes.org

Calvary Fellowship Homes is a highly-rated Christian nonprofit continuing care retirement community featuring residential living, personal care, memory care, skilled nursing, and therapy services. Medicaid approved.

Griswold Home Care Cumberland County 717.839.5727 6 West Main Street david.rosen@griswoldhomecare.com Shiremanstown, PA 17011 www.griswoldhomecare.com Dauphin County 717.234.4009 4815 Jonestown Road, Suite 201 stephanie.carl@griswoldhomecare.com Harrisburg, PA 17109 www.griswoldhomecare.com Lebanon County 717.279.0702 200 Schneider Drive, Suite 3 angela.kritzer@griswoldhomecare.com Lebanon, PA 17046 www.griswoldhomecare.com See ad page 2

color Key For Directory oF caregiving ProviDers independent residences personal care Home assisted living residence dementia units nursing care community

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reHabilitation Facility respite adult day center Home care services Hospice care

717.221.7902 homeland1@pa.net www.homelandcenter.org

Homeland Center, a continuing care retirement community, offers beautiful personal care suites, skilled nursing, hospice, rehabilitation, and dementia care, all delivered by highly competent and compassionate staff. See ad on the back page Homeland Hospice 2300 Vartan Way, Suite 115 Harrisburg, PA 17110

717.221.7890 homeland1@pa.net www.homelandhospice.org

Homeland Hospice, a community outreach of Homeland Center, provides the highest level of care and support at the end stages of life while serving as a compassionate resource for families. See ad on the back page The Campus of the Jewish Home 717.657.0700 of Greater Harrisburg kharvey@jhgh.org 4000 Linglestown Road www.jewishhomeharrisburg.org Harrisburg, PA 17112 See ad page 23 Messiah Lifeways 100 Mount Allen Drive Mechanicsburg, PA 17055

717.591.7225 life@messiahlifeways.org www.messiahlifeways.org

Messiah Lifeways offers more options for caregivers and the ones they love, including: support groups, workshops, free coaching, adult day, at-home services, and respite. See ad page 7

Pleasant Acres Nursing & Rehab Center 717.840.7100 Elm Spring Residence mjhunt@yorkcountypa.gov 118 Pleasant Acres Road www.yorkcountypa.gov York, PA 17402 Skilled nursing and rehab services for short-term rehab and long-term skilled care. Also offering hospice services, independent living units, a ventilator care unit, as well as a specialized dementia unit. (Continued next page)

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Directory oF Housing & care ProviDers Riddle Village 1048 West Baltimore Pike Media, PA 19063

610.891.3700 www.riddlevillage.org

Comprehensive Lifecare program with ideal Main Line location adjacent to Riddle Hospital. Multiple dining venues, expansive fitness area with indoor pool, and underground parking garage.

Specialty Home Care 1251 East Chocolate Avenue Hershey, PA 17033

717.533.4400 info@specialtyhomecare.com www.specialtyhomecare.com

Up to 24/7 personal care, homemaker, and transportation services provided at home. Experienced, compassionate caregivers are why we are known as Hershey’s premier homecare company! SpiriTrust Lutheran 717.854.3971 1050 Pennsylvania Avenue mwilliams@spiritrustlutheran.org York, PA 17404 www.spiritrustlutheran.org For 60 years, SpiriTrust Lutheran has been providing seniors throughout York, Adams, and Franklin counties with homes and services designed to meet their needs. See our ad and listings for locations and contact information. See ads pages 16–17

SpiriTrust Lutheran, The Village at Gettysburg 1075 Old Harrisburg Road Gettysburg, PA 17325 See ads pages 16–17

717.334.6204 jkeefer@spiritrustlutheran.org www.spiritrustlutheran.org

SpiriTrust Lutheran, The Village at Kelly Drive 750 Kelly Drive York, PA 17404 See ads pages 16–17

717.854.5010 jgochoco@spiritrustlutheran.org www.spiritrustlutheran.org

SpiriTrust Lutheran, The Village at Luther Ridge 2736 Luther Drive Chambersburg, PA 17202 See ads pages 16–17

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SpiriTrust Lutheran, The Village at Utz Terrace 2100 Utz Terrace Hanover, PA 17331 See ads pages 16–17

Surrey Services for Seniors 60 Surrey Way Devon, PA 19333

oman caregiver solutions 2015

717.764.9994 hbair@spiritrustlutheran.org www.spiritrustlutheran.org

717.637.0633 lsterner@spiritrustlutheran.org www.spiritrustlutheran.org

610.647.6404 info@surreyservices.org www.surreyservices.org

Surrey is a non-profit organization serving the community for 34 years. Surrey’s services include transportation, in-home services, home health care, personal assistance, house cleaning, companionship, geriatric care management, and downsizing. See ad page 21

Visiting Angels Living Assistance Services Hanover 104 Carlisle Street, Suite 1 Hanover, PA 17331

717.630.0067 hanoveroffice@visitingangelsyork.com www.visitingangels.com

Lancaster 2141 Oregon Pike, 2nd Floor Lancaster, PA 17601

717.393.3450 lancasteroffice@visitingangelsyork.com www.visitingangels.com

York 1840 East Market Street York, PA 17402

717.751.2488 yorkoffice@visitingangelsyork.com www.visitingangels.com

See ad page 5

Visiting Angels 4607 Locust Lane Harrisburg, PA 17109

717.264.5700 edoub@spiritrustlutheran.org www.spiritrustlutheran.org

SpiriTrust Lutheran, 717.235.5737 The Village at Shrewsbury pmitchell@spiritrustlutheran.org 800 Bollinger Drive www.spiritrustlutheran.org Shrewsbury, PA 17361 See ads pages 16–17 28

SpiriTrust Lutheran, The Village at Sprenkle Drive 1802 Folkemer Circle York, PA 17404 See ads pages 16–17

717.652.8899 717.737.8899 visitingangelshbg@comcast.net www.visitingangels.com

color Key For Directory oF caregiving ProviDers

independent residences personal care Home assisted living residence dementia units nursing care community

reHabilitation Facility respite adult day center Home care services Hospice care

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Directory oF ancillary services area agencies on aging Chester County Area Agency on Aging Cumberland County Aging and Community Services Dauphin County Area Agency on Aging Lancaster County Office of Aging Lebanon County Area Agency on Aging York County Area Agency on Aging

Home moDiFications

610.344.6350 717.240.6110 717.780.6130 717.299.7979 717.273.9262 717.771.9610 www.p4a.org

Your local offices of aging act as advocates for Pennsylvania’s seniors—promoting their continued physical, social, and economic self-sufficiency.

Accessibility Solutions 360 Serving Eastern & Central PA

Since 2003, specializing in all aspects of home safety — bathrooms, small space design, wet rooms, lifts, ramps, and more! Licensed and insured. PA Medicaid provider. PA LIC 3672 Amramp Serving all of Central PA See ad page 9

717.745.7267 rodney.hulsey@amramp.com www.amramp.com

legal

comPlementary assistance Service Coordination of South Central PA 800.223.0467 141 Broadway, Suite 310 spanekbaker@scscpa.org Hanover, PA 17331 www.scscpa.org By assessing needs, SCSCPA recommends services to statefunding eligible, physically disabled adults, helping them live safely and independently in their homes. See ad page 13

Nikolaus & Hohenadel, LLP Barbara Reist Dillon, Wanda S. Whare 212 North Queen Street Lancaster, PA 17603

717.235.8068 info@penn-mar.org www.penn-mar.org

Providing advanced training and education for its direct-care staff who deliver exceptional support and care for individuals with intellectual disabilities.

geriatric care services Surrey Services for Seniors 60 Surrey Way Devon, PA 19333

610.647.6404 info@surreyservices.org www.surreyservices.org

717.299.3726 bdillon@n-hlaw.com wwhare@n-hlaw.com www.n-hlaw.com

Areas of expertise include: elder law; wills, powers of attorney, living wills, and medical powers of attorney; estate settlement. Offices in Lancaster, Columbia, and Quarryville.

DeveloPmental Disabilities Penn-Mar Human Services 10709 Susquehanna Trail Glen Rock, PA 17327

888.837.6818 info@4myaccess.com www.4myaccess.com

meDical equiPment Ablemart.com Solutions for Independent Living

844.346.2253 customerservice@ablemart.com www.ablemart.com

Offering unique ADL products with a purpose, as well as accessible bathing solutions. View our ever-expanding line of DME products. If we don’t have what you need, let us know! Caregiver promo code: CARE2015 Amramp Serving all of Central PA See ad page 9

717.745.7267 rodney.hulsey@amramp.com www.amramp.com

Care Options Home Health Care may be provided in a residential setting or as ancillary services wherever you call home. May be medical home health or non-medical services such as light housekeeping, transportation to doctor visits, shopping, respite, and more. Hospice Care is for families living and coping with a life-limiting illness. Hospice provides professional treatment of pain and symptom management with support and counseling. Respite Care provides normal care-giving opportunities on a short-term basis. May range from personal to nursing care, at home or in a care community.

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Adult Day Centers offer programs in facilities or independent organizations for hourly or daily adult supervision. Nursing/Rehab Facilities offer skilled or intermediate levels of care. Intermediate Care Facilities are for individuals who can move around the facility on their own initiative, even in a wheelchair, and are not bed bound. Skilled Nursing Facilities are for patients who require 24-hour nursing supervision, many of whom are confined to bed for some portion of the day. Assisted Living Residences (ALR) are designed to provide housing and supportive services to allow residents to “age in place.” As of January 2011, licensure requirements for ALRs became effective.

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Personal Care Homes offer food, shelter, and personal assistance or supervision. They are ideal for people who do not require the services of a long-term care facility but need help with transferring in and out of a bed, toileting, personal hygiene, and other activities of daily living. CCRCs are communities offering a variety of living options in addition to comprehensive medical and nursing services. Retirement Communities and 55+ Adult Communities are planned for active individuals who are able to care for their own basic needs but want to live with other 50+ mature adults.

oman caregiver solutions 2015

Support and Information All About Vision www.allaboutvision.org

Eldercare Locator 800.677.1116 www.eldercare.gov

Alzheimerâ&#x20AC;&#x2122;s Disease Education and Referral Center 800.438.4380 www.alzheimers.org

Epilepsy Foundation of America 800.332.1000 www.epilepsy.com

American Cancer Society Response Line 800.227.2345 www.cancer.org

EyeCare America 877.887.6327 www.eyecareamerica.org

American Diabetes Association 800.254.9255 www.diabetes.org

Family Caregiver Alliance 800.445.8106 www.caregiver.org

American Speech Language-Hearing Association 800.638.8255 www.asha.org

Guide Dog Foundation for the Blind 800.548.4337 www.guidedog.org

American Urological Association 410.689.3700 or 866.746.4282 www.auanet.org Arthritis Foundation Information 800.283.7800 www.arthritis.org BenefitsCheckUp 571.527.3900 www.benefitscheckup.org CareCentral www.carecentral.com Caregiver Action Network 202.454.3970 www.caregiveraction.org Caregiver Media Group 800.829.2734 www.caregiver.com Children of Aging Parents 239.594.3222 www.agingcare.com Christopher & Dana Reeve Paralysis Foundation 800.225.0292 www.christopherreeve.org Crohnâ&#x20AC;&#x2122;s and Colitis Foundation of America, Inc. 800.932.2423 www.ccfa.org

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Medicare & Centers for Medicaid Services 800.633.4227 www.cms.gov Medicare Rights 800.333.4114 www.medicarerights.org Medicare Telephone Hotline 800.633.4227 www.medicare.gov National Alliance for Caregiving 301.718.8444 www.caregiving.org National Council on Alcoholism & Drug Dependence, Inc. 212.269.7797 www.ncadd.org

National Library Service for the Blind & Physically Handicapped 202.707.5100 www.loc.gov/nls National Parkinson Foundation, Inc. 800.473.4636 www.parkinson.org Needy Meds 800.503.6897 www.needymeds.org Office of Minority Health Resource Center 800.444.6472 www.minorityhealth.hhs.gov PACE/PACENET 800.225.7223 www.aging.state.pa.us/aging Pennsylvania Department of Public Welfare 800.692.7462 www.dpw.state.pa.us Rural Information Center Health Service 800.633.7701 www.nal.usda.gov/ric RxAssist 401.729.3284 www.rxassist.org Shriners Hospital for Children Referral Line 800.237.5055 www.shrinershospitalsforchildren.org Simon Foundation for Continence 800.237.4666 www.simonfoundation.org

National Health Information Center 240.453.8282 www.health.gov/nhic National Institute on Aging Information Center 800.222.2225 www.nia.nih.gov National Institute of Mental Health Information Line 866.615.6464 www.nimh.nih.gov National Insurance Institute 212.346.5500 www.cancerandcareers.org/resources

oman caregiver solutions 2015

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Your guide to choosing the right living and care options for you or a loved one. Call today for your free copy!

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Active adult and residential living Independent and retirement living communities Assisted living residences and personal care homes Nursing and healthcare services Home care, companions, and hospice care providers Supplemental services 19 Edition th

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(See page 29.)

oman caregiver solutions 2015

n Provider and leader of quality healthcare in Central PA for more than 147 years. n 50 renovated Personal Care Suites.

717-221-7902 1901 North Fifth Street Harrisburg, PA 17102

www.homelandcenter.org

n Applications being accepted for a limited number. n Skilled Nursing Care Unit accommodates 95, including a 24-bed Alzheimerâ&#x20AC;&#x2122;s Unit.

n Exemplary personalized care that enables patients and families to live each day as fully as possible.

717-221-7890 2300 Vartan Way, Suite 115 Harrisburg, PA 17110

www.homelandhospice.org

n Focused on pain relief, comfort, and support for patients and families. n Providing hospice care in Adams, Cumberland, Dauphin, Franklin, Juniata, Lancaster, Lebanon, Perry, Schuylkill, and York counties. n Call us for details on our full array of services.