Parkinson's UK Impact Report 2011

our t c a p im 2011 1

Contents Foreword

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Why we’re here and what we do

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Our six goals

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Our year in numbers

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Our impact in 2011

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Join us

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Change attitudes

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Find a cure

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How we fund our vital work

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Our plans for 2012

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Thank you

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Foreword distant future. At the time none of this sunk in, but now the hope of progress really matters to me.

Parkinson’s UK is committed to funding research into finding better treatments, and, ultimately, a permanent cure for Parkinson’s. This is crucial to me as a parent with young children.

Hello and welcome to our 2011 impact report.

I was told I had young-onset Parkinson’s two and a half years ago – five days before my 47th birthday. It was a huge shock.

The only relief was that Parkinson’s is a long-term condition, so at least I would be around while my children grew up.

My specialist wrote down the web address of Parkinson’s UK and as soon as I got home I was on the website researching the condition and finding out about local groups for younger people. I badly needed reassurance that I wasn’t alone and through Parkinson’s UK it wasn’t long before I got to meet other people with young-onset Parkinson’s.

My specialist also spoke to me about improvements in drug treatments and the possibility of a cure in the not-too-

A year ago, I volunteered to join the Policy Panel at Parkinson’s UK to help set out the charity’s position on key issues that have an impact on people with Parkinson’s. High on my agenda are prescription charges and changes to Disability Living Allowance, which is a benefit that a lot of people with Parkinson’s rely on. Parkinson’s UK really helps ensure that our voices are heard collectively by UK governments, so we can get the best deal possible.

The charity is also committed to providing training and education to doctors, nurses and their own staff. This is vital, so people with Parkinson’s can get the right care and information in the right way for them.

None of the charity’s work would be possible without the support of thousands of individuals, groups and organisations.

For this, I would like to say a heartfelt thank you.

Jo Collinge

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e r e h e r ’ e w why o d e w t a h w d an What is Parkinson’s?

Imagine what life would be like if your brain wanted to send your body a message, but it couldn’t put the right one together. If you wanted to speak – but you couldn’t get the words out.

If you wanted to walk – but your legs were fixed to the spot.

People get Parkinson’s because some of the nerve cells in their brains that produce a chemical called dopamine have died. Lack of dopamine means that people can have great difficulty controlling movement.

People with Parkinson’s can have a tremor or stiffness that makes it frustrating or impossible to do everyday things, such as smiling, eating, getting dressed, driving, or even picking up and playing with their kids.

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And Parkinson’s doesn’t just affect movement. Things like pain, depression, and memory and continence problems have a huge impact on the day-to-day lives of people with the condition.

To make life even more challenging, everyone’s Parkinson’s is different. And symptoms can change from day to day and even hour to hour.

Approximately one person in every 500 has Parkinson’s, that’s around 127,000 people in the UK. And every hour, someone in the UK is told they have the condition.

Parkinson’s gets worse over time and while treatments and medication are available that can help manage the symptoms, there is currently no cure.

Our vision

To find a cure, and improve life for everyone affected

by Parkinson’s.

Our mission There are five key elements of our work for people affected

by Parkinson’s:

Research

We fund groundbreaking research to advance understanding of Parkinson’s and improve treatments. We’ll overcome the symptoms and find a cure.

Information

We provide information and training on every aspect of Parkinson’s.

Friendship and support

We offer friendship and support to everyone living with Parkinson’s, their families and carers.

Campaigning

We raise awareness, change perceptions and demand better services.

Fundraising

Our work is dependent on voluntary donations. We inspire people to support us.

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s l a o g x i s r ou We have set ourselves an ambitious five-year strategy with six clear goals: Goal 1 No one will have to face Parkinson’s alone.

Goal 2 We will listen and respond to the needs of everyone affected by Parkinson’s.

Goal 3 We will improve life for everyone living with Parkinson’s.

Goal 4 Our leadership in research will have resulted in better treatments and progress towards a cure.

Goal 5 We will raise more than £110million to meet the costs of delivering our ambitious plans.

Goal 6 We will be a united, focused and effective organisation.

2011 was the second year in our fiveyear strategy. In 2011 we focused on increasing the profile of Parkinson’s and the charity.

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More people than ever before took up our offer of information and support.

We engaged more health and social care professionals, working with them to improve services. And we provided leadership to the research community, driving forward progress towards a cure.

We also improved the way we work as a charity. We worked hard to ensure that the voices of people affected by Parkinson’s shape everything that we do, actively seeking out feedback to improve all our services.

We were very encouraged to see our progress recognised when we were made the Charity Times’ Charity of the Year in 2011. But there’s so much more to do and we have ambitious plans for the future.

We need to grow our income by more than 10% every year. It was encouraging that in 2011, as in 2010, we exceeded our income targets, but we need your support to continue to grow and make sure no one has to face Parkinson’s alone.

Together we can find a cure and improve life for everyone affected by Parkinson’s.

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our year in numbers £1=£5

For every £1 we invested in research, our researchers gained an extra £4 from other sources.

5,300

We had more than 1.1 million visits to our website in 2011 – the highest number of visits we’ve ever had.

Our expert helpline nurses answered more than 5,300 medical enquiries from people with Parkinson’s, carers and professionals – an 18% increase on 2010.

£96,000

We granted £96,000 to 134 people through our Mali Jenkins Fund to pay for equipment, adaptations and respite breaks to improve quality of life.

£24m

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We have more than 6,000 people following us on Twitter – @parkinsonsuk

1.1 mILLION

twitter

90%

said our information and support worker service made a positive difference to their lives.

We spent almost £24million on all our work – improving life for people affected by Parkinson’s and making progress towards finding a cure.

people affected by Parkinson’s used our online forum in 2011 to share their experiences and support one another.

780

£9m

Our information and support workers helped people claim more than £9million in benefits.

Clinical studies of GP practices we’ve trained said they’d benefitted as a result of our training.

93%

In 2011 we supported 24 clinical studies in the UK that people with Parkinson’s could take part in.

93% of people affected by Parkinson’s rate our information resources as useful or very useful.

Tens of thousands of individuals, groups and organisations across the UK supported us through fundraising events, by making donations and volunteering their time.

96% rated our helpline as good or excellent.

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join us

ve them the were diagnosed nobody ga one has to face ey th en wh at th us l tel le Too many peop change that so no they needed. We have to t or ition, so they pp su d an n tio ma or inf yone affected by the cond er ev to t ou ch rea to ve services.

Parkinson’s alone. We ha r support and information ou ss ce ac n ca d an re he know we’re

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‘‘

My wife and I go to our local group – Merton Branch – in south London. It’s very good and there’s always something to do. At the last meeting we had a pampering evening. It was great to have a treat! We both had a massage and my wife had her nails done.

Every meeting is different and we have a lot of outings. In the autumn we went to Kew Gardens and at Christmas we went for a meal at a local restaurant. It’s good to get out and mix with people.

It’s really useful to meet other people with Parkinson’s. We share ideas and give each other tips. The group are very good at supporting you – whether you’re younger or older.

I also go dancing with some people from the group. I love it as it helps my Parkinson’s a lot. And I think it’s important to enjoy yourself!

I’d encourage everyone with Parkinson’s to join a Parkinson’s UK local group – it makes a big difference to your life. People should just go along and see what their local group does. You’ll always be made to feel right at home.

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Parkinson’s UK also sends us The Parkinson magazine and information leaflets. I find this very helpful. I go through everything and get all the useful contacts. It’s also good to read about other people’s stories – so you know you’re not the only person who has a certain symptom.

Ben

•O n average, it costs a Parkinson’s UK

local group around £8,000 to run their activity calendar, offering friendship and support to local people affected

by Parkinson’s.

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Improving lives locally People with Parkinson’s need locally based support. Our UK-wide team of information and support workers provide information and help people to access local services and benefits they’re entitled to.

In 2011, the team answered more than 42,300 enquiries and provided in-depth support to 8,400 people who were new to the service. 90% of users said our information and support service had made a positive difference to their lives. We also held 480 information events across the UK, signposting more than 26,000 people to relevant local services.

‘‘

Meeting my information and support worker changed my life.

They provided me with a lot of information and helped me get Attendance Allowance. They also arranged a visit from an exceptionally helpful occupational therapist, who organised getting me a bath chair lift and easy chair. All these things make life so much easier.

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Victor, person with Parkinson’s

Friendship and mutual support People with Parkinson’s, their families and carers have a wealth of experience to offer to others affected by the condition.

In 2011, nearly 27,000 people were supported by the Parkinson’s community, through our UK-wide network of volunteer-run local groups.

Our groups offer people the chance to get involved in social and therapeutic activities – everything from dance and art therapy to day trips and evenings out.

We also developed innovative ways for people affected by the condition to support one another, for example through our new telephone peer support service.

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My Parkinson’s nurse put me in touch with my local Parkinson’s UK group. Through them I’ve been able to meet lots of people who’ve been able to help and support me.

I’ve become very involved with Parkinson’s UK and I am the youngonset representative for our group.

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Karen, person with Parkinson’s

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Expert information Our free, confidential helpline service ensures that information and support is only a call or email away. In 2011, our helpline answered questions and provided a listening ear to more than 21,000 people. And 96% rated the service as good or excellent.

People affected by Parkinson’s need good quality, accessible information so they can learn more about their condition and choose the right care. In 2011, our information reached more people than ever – we sent out just under 800,000 information booklets, leaflets and DVDs, an 18% increase on 2010. Our resources were rated as useful or very useful by 93% of users.

People can reach us 24 hours a day through our website and in 2011 we had more than one million visits to the site. We also reached out to new audiences through Facebook and Twitter, more than doubling the number of people joining our pages from 2010.

‘‘

The Parkinson’s UK helpline nurses explain everything simply and logically, and reassure me that my symptoms are ‘normal’ (whatever ‘normal’ is with Parkinson’s!). If you haven’t got access to a Parkinson’s nurse, never feel shy or afraid to contact the helpline. Honestly, they are real, human and ‘as it says on the tin’, a real helpline.

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‘‘

David, person with Parkinson’s

Doing it together We are a movement of people affected

by Parkinson’s. The charity grew by more than 1,600 members in 2011 – so we have 35,500 people working together to find a cure and improve life for everyone living with Parkinson’s.

People with Parkinson’s influence everything we do. From informing our policies to sitting on our recruitment panels, from helping develop our information resources to shaping our research through the Research Support Network – their voice is powerful. And hundreds of people speak out in press and campaigns work. We also have an army of volunteers making a huge difference to people’s lives locally – for example by running local groups or educating health professionals.

In 2011 we recorded 1,600 pieces of feedback that helped shape our work.

We held 15 events across the UK and a weekend for younger people, to enable people affected by Parkinson’s to share ideas and define our priorities.

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Our Northern Ireland ‘Together’ event was really important to us as members of Parkinson’s UK. It gave us the opportunity to share our ideas about working together. Parkinson’s UK is best able to help people affected

by Parkinson’s when we’re involved in planning and decision making, and the charity takes on board the views and voices of the people whose lives it aims to improve.

‘‘

Kathleen, family member of a person with Parkinson’s

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s e d u t i t t a e g n cha

re that meets access health and social ca re everyone to le ab be ld ou sh ’s on ns Everyone affected by Parki use all possible levers to improve care and make su h and We ling decision-makers, healt e tel national quality standards.

– ss ne are aw se rai o s. We als ’s, so everyon benefits from good service lly like to live with Parkinson . rea it’s at wh c bli pu e th d social care providers an attitudes and improve lives ge an ch us lp he n ca d an understands the challenges

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‘‘

When our local health board announced they intended to close our community hospital, our Parkinson’s UK group immediately set out to save it. The hospital is so vital to our care and quality of life. We have a great specialist and Parkinson’s nurse, and fantastic therapy departments. It’s a joy to go to the hospital – you’re treated as a person, not just another patient.

To get our campaign going we got the whole community involved – collecting 14,000 signatures on our petition! And we kept the pressure up by involving politicians. We didn’t have much experience of this, so we worked closely with the Parkinson’s UK Scotland team. It was great to have their support and expertise.

We protested outside parliament, got a debate in parliament and met with the Cabinet Secretary for Health, Nicola Sturgeon. The politicians really listened to us explain why the hospital was so crucial to the local community, so I was always optimistic we’d save it. 16 months after we started, in December 2011, Nicola Sturgeon sided with us and reversed the decision to close the hospital. I went down to the hospital and everyone applauded as I walked in – that was really touching!

As well as fighting the campaign for the hospital, we’ve also helped bring Parkinson’s to the forefront. I think the health board were shocked we led such a strong campaign. Campaigning does work – you can change the world. This group of people – with Parkinson’s, from the east end of Glasgow – overturned the decision of the biggest NHS organisation in Scotland.

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Gerry

• I t costs up to £60,000 for

Parkinson’s UK to fund a nurse for a year, providing expert care for around 300 people with Parkinson’s.

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Being heard Getting the voices of people with Parkinson’s heard in the media is crucial.

It’s an essential way to raise awareness of what life with Parkinson’s is like and improve public understanding of the condition. In 2011, we achieved more than 5,400 stories in the media reaching a wide audience of just under 270 million people. If we’d paid for this coverage it would have cost more than £12million.

Charity of the Year 2011 In 2011 we were named Charity Times’ Charity of the Year.

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With a new brand and a new strategy, many of the ambitious goals set, especially in fundraising and raising awareness, have already been achieved or surpassed, transforming the charity with outstanding results.

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Charity Times judges

Campaigning for change In 2011 we enabled people with Parkinson’s to have a much stronger voice with decision-makers, to bring about the changes they want and need.

Our Campaigns Network grew by 33% and its members acted more than 2,700 times to voice their opinions on issues they felt strongly about.

During the year, Parkinson’s UK was represented at rallies in cities across the UK to protest against cuts to disability benefits. In response, the government made concessions to help protect carers and people in residential care.

With other organisations we campaigned with some success for government action to speed up the development of new drugs and give patients early access to emerging treatments.

We also supported a National Audit Office Inquiry into neurological services that gave us powerful evidence to lobby for change.

‘‘

I was involved in the National Audit Office’s assessment of neurological services. The audit team’s final report showed that they had really listened to our views. My own particular hobby-horse is the value of Parkinson’s nurses and the report contained evidence of the real impact Parkinson’s nurses make.

‘‘

Derek, person with Parkinson’s, member of our Campaigns Network

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Getting better access to Parkinson’s nurses People with Parkinson’s say that Parkinson’s nurses are crucial to help them manage their condition and make life easier. In 2011, we continued campaigning to make sure everyone in the UK has access to a Parkinson’s nurse. And the situation is improving.

There are now 316 Parkinson’s nurse posts. This means 18,000 more people affected by Parkinson’s can rely on vital nursing support than in 2010.

‘‘

My nurse understands me and gives me the tools to live an active life.

I told her about my lack of sleep and how I wake with stiff muscles in the night. She suggested a change to my medication and, hey presto, I can now sleep for six to seven hours at night!

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‘‘

Pamela, person with Parkinson’s

Improving services Our annual Parkinson’s audit helps healthcare organisations measure their services for people with Parkinson’s against national guidelines. 2011 was our biggest audit yet, with more than 300 healthcare providers taking part and getting guidance to improve their services.

It’s crucial that health and social care professionals understand more about Parkinson’s so they can offer the best possible care. Our Professional’s Network brings professionals together to share best practice and grew by 72% in 2011. And we distributed more than 4,500 information packs to healthcare professionals, giving them up-to-date information about Parkinson’s and the charity. We also educated more than 19,000 health and social care professionals about all aspects of the condition.

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This is my first Parkinson’s UK seminar and I really enjoyed it.

It has made me very aware of what someone with Parkinson’s and their family go through. It brought to my attention how important medication is and why it is important to ensure people get their medication on time.

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Senior Care Worker attending our Birmingham Open Access Seminar

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find a cure

want to vision – to find a cure. We r ou g vin hie ac to tal en am stop or Innovative research is fund day-to-day life easier and ultimately find a cure to ke

by Parkinson’s. improve treatments to ma priority for people affected p to e th is is th ow kn e W reverse the condition.

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‘‘

I think it’s very important for Parkinson’s UK to involve people affected by Parkinson’s in deciding how research money is spent.

There’s only limited resources for research, so it’s crucial we have a say in what‘s important to us.

I’m involved in research in quite a few ways. I’m a lay grant reviewer, so I help review requests from researchers for Parkinson’s UK funding. I’m also on the peer review group of the Parkinson’s UK Brain Bank, where I review requests for tissue to be used in research. I’m on the steering group for an assistive technology research project at King’s College, London, as well.

This research is looking at what aids and adaptations people with Parkinson’s use to make everyday life a bit easier.

My husband was diagnosed with Parkinson’s 10 years ago.

Research to find a cure is our hope for the future. I also think it’s vital, until we find a cure, to look for ways to improve everyday life for the person with Parkinson’s and their family.

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Parkinson’s UK is an important part of my life. As well as research, I also really value the support and friendship my husband and I get from our local young-onset support group.

Pam

•W e gave a grant of just under

£164,000 to fund the assistive technology research project at King’s College, London, to improve life for people living with Parkinson’s.

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Making progress 2011 was an inspiring year. Research we funded played a major part in genetics and stem cell research breakthroughs that will significantly speed up our search for a cure. And our research paved the way for drug trials into exciting new treatments.

‘‘

This is the most exciting time to be involved in Parkinson’s research that there’s ever been.

My research is finding out how the genes involved in Parkinson’s work and how we can change their activity. This will help develop drugs to tackle the root cause of nerve cell death and hopefully one day make Parkinson’s a thing of the past.

‘‘

Without Parkinson’s UK’s funding, my work would not be possible.

Dr Patrick Lewis, University College London

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Our projects In 2011 we invested £4.3million on new research and supported 90 research projects worth more than £15million. More than £325,000 was invested through innovation grants in radical new ideas that have huge potential to change the lives of people with Parkinson’s.

One key project updated two crucial facts core to our work: exactly how many people in the UK have Parkinson’s, and how many people are likely to have it in the future?

Our results revealed there are currently around 127,000 people with the condition. This is predicted to rise to 162,000 by 2020. This adds powerful evidence to our campaign about the urgency of improving services for everyone with Parkinson’s.

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Seven years ago I tried to swim in a pool and wasn’t able to co-ordinate my arms and legs.

I’m currently on holiday and decided to go into the sea. I entered the water and with little thought started swimming – I was amazed!

I want to express my gratitude to all at Parkinson’s UK, because it is thanks to their dedication and commitment that research to improve drugs was funded.

I have gained great benefit from the work done.

‘‘

Ray, person with Parkinson’s

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Involving people with Parkinson’s in our research People affected by Parkinson’s have been involved throughout the year with research – raising funds and steering decisions about how to spend our money.

Local groups gave more than £1million towards research and more than 100 people affected by the condition helped us judge the best quality and most relevant research to fund. To keep everyone up to date on our progress, we sent research information to more than 31,000 people.

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We are delighted to receive optimistic progress reports on two projects we helped to fund.

There was great interest in our meeting in what the researchers are doing and the possibility of useful progress in research in the not-toodistant future.

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‘‘

Local Parkinson’s UK group that is funding research

Investing to find a cure In 2011 we demonstrated that in just one year, our research investment helped pave the way for £22million of extra funding for vital research projects. This means that for every £1 invested by us, our researchers gained an extra £4 from other sources.

‘‘

What would a cure mean to me?

I could get up and go in the morning without Mr Parkinson’s permission.

I could stop sharing my meals with people nearby when the tremor is bad, and walk into a room without waiting for my feet to move again.

Gloria, person with Parkinson’s

‘‘

Finally, I could hold a fantastic farewell party for Mr Parkinson!

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how we fundrk our vital wo

lly counts. so every penny raised rea affected , ns tio na do ry ta lun vo for everyone We are entirely funded by find a cure and improve life to – ion vis s iou bit am r To achieve ou d beyond. more support in 2012 an

by Parkinson’s – we need

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‘‘

At my first Parkinson’s UK local group meeting I found out that only some people in our area had access to a Parkinson’s nurse.

I was seeing the nurse in Cardiff, but it was very unjust that not everyone could get this support. It was the first time I came across the ‘postcode lottery’ for people with Parkinson’s.

I joined the existing Parkinson’s UK campaign to help with the final push to get a nurse service, and began speaking to the media and writing numerous letters to help change things.

I also started raising money. Parkinson’s UK pays for new nurses for the first two years and I realised they’d need considerable funds to do this in our area and others. My wife and I hold concerts regularly – we once raised £2,000 from a particularly successful one! We also organise a cream tea in our garden every year. The event is really popular – this year will be our fourth one!

Everyone we know gets involved – our neighbour gets up at 7am to make scones for us and our friends are very supportive.

Two years after my wife and I joined the campaign and started raising money, our local health board agreed to pilot a post and a local nurse was appointed! It was great to see what everyone’s efforts could achieve.

My wife and I have carried on organising regular fundraising events and collections for Parkinson’s UK. We have a very strong wish to see more research being done and this will need funding. We also get a lot of support and friendship from the people we’ve met through Parkinson’s UK, so we want to give something back to the charity.

‘‘

Ray

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In 2011, more individuals, groups and organisations supported us with donations of money or time than ever before.

Individual supporters Our fantastic supporters did us proud in 2011. Our London Marathon team raised more than £350,000 – the highest ever amount raised for the charity from this event. And more than 8,000 people donated nearly £245,000 to support research into Parkinson’s-related dementia and the search for key genes that could lead to a cure for Parkinson’s.

Legacy gifts People continued to support the charity by leaving us a gift in their Will. This is a vital source of income, which funds nearly half of our work.

In 2011 we were left nearly £9.2million.

Corporate fundraising Support from corporate organisations is crucial. For example, we received £70,000 from a coalition of pharmaceutical companies to create resources to educate and raise awareness of Parkinson’s among healthcare professionals. One group in particular that we targeted was pharmacists – to really improve medicine management for people with Parkinson’s.

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Grants from trusts and major donors Trusts and major donors have also been keen to fund our work – in 2011 our local group network was granted £250,000 from The Freemasons’ Grand Charity. Groups in each area planned how to spend the funding on what is most needed for local people affected by Parkinson’s.

This included everything from Pilates, dance and exercise classes to improve movement, to funding research to speed up progress towards finding a cure.

Thank you Without the help and generosity of all our supporters, our work to improve the lives of people with Parkinson’s would simply not be possible.

‘‘

I took part in Pedal for Parkinson’s with a group of family and friends supporting me. I have Parkinson’s and this was a fantastic opportunity to meet other people affected by it.

It was a brilliantly organised day and although we found it challenging, it was great fun and we can’t wait for the 2012 event!

‘‘

Lorraine, person with Parkinson’s

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2 1 0 2 r o f s n a l our p We will: Goal 1: No one will have to face Parkinson’s alone.

• Make our website more personalised and interactive, and build our online community.

• Roll out self-care programmes to

help people affected by Parkinson’s to manage their condition.

• Strengthen the way we promote

the charity to priority groups – for example healthcare professionals and under-served communities.

Goal 2: We will listen and respond to the needs of everyone affected

by Parkinson’s.

• Work closely with diverse communities to develop resources that meet their needs.

• Develop the Research Support

Network so that people affected

by Parkinson’s are up to date with research news and are involved in our research decisions.

• Achieve Customer Service Excellence accreditation.

Goal 3: We will improve life for everyone affected by Parkinson’s.

• Develop our range of resources and education programmes for professionals to increase our impact on quality of care.

• Campaign even more vigorously

– for example to limit the impact of impulsive and compulsive

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behaviours on the lives of people with Parkinson’s.

• Secure at least five more Parkinson's nurses across the UK.

Goal 4: Our research will have resulted in better treatments and progress towards a cure.

• Continue to invest in cutting-edge research projects, focused on finding a cure.

• Identify areas of research that

should be prioritised for funding and find potential partners.

Goal 5: We will raise more than £110million to meet the costs of delivering our ambitious plans.

• Increase income from key supporter groups and through regular giving.

• Focus on increasing commercial and trading opportunities.

• Encourage increased research fundraising at a local level.

Goal 6: We will be a united, focused and effective organisation.

• Improve our human resources, internal communications, IT and finance systems to further strengthen the way we work with our staff, volunteers and members.

• Strengthen the way we safeguard our volunteers and people with Parkinson’s.

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U O Y K N A TH

ributed to the ks to everyone who cont an th lt tfe ar he a e giv to We would like in 2011. success of Parkinson’s UK

We can only go on making a difference to people’s lives because of the generosity of the thousands of people and organisations who give their money, time and support to our work. Although it is not possible to mention every single person or organisation that has supported our work over the course of 2011, we would like to give particular thanks to: Our Patron HRH The Duchess of Gloucester Our President Jane Asher Our members The size of our membership gives us a strong position to influence decision-makers. Thank you to everyone who joined Parkinson’s UK or renewed their membership in 2011.

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Our volunteers and local groups Our volunteers bring skills, experience, energy, enthusiasm and commitment to Parkinson’s UK. Our trustees, 360 local groups, fundraisers and volunteers are integral to our work. Thank you for everything that you do.

Our staff Our staff are highly skilled people who are passionate about their work.

Their tremendous effort across the year means that Parkinson’s UK has shown huge progress on all fronts.

Charitable trusts and foundations We continue to value the generosity of all charitable trusts and foundations that support Parkinson’s UK. Our special thanks however go to the following for making a special contribution to our work in 2011.

The Harry Bacon Foundation The BIG Lottery Fund Frank Brake Charitable Trust William A Cadbury Charitable Trust The Childwick Trust The Freemasons’ Grand Charity Doughty Hanson Charitable Foundation

Alan Edward Higgs Charity Kinsurdy Charitable Trust George John and Sheilah Livanos Charitable Trust J Macdonald Menzies Charitable Trust The Monument Trust The Medlock Charitable Trust The Edith Murphy Foundation Province of Yorkshire, West Riding Santander Foundation The Thompson Family Charitable Trust The Anne & John Walters Charitable Trust Allan Willett Foundation The Wixamtree Trust The Zochonis Charitable Trust

Lundbeck Ltd Orion Pharma UK Ltd The Medtronic Foundation Redeem UCB Pharma Ltd Working at Height

Companies and other organisations The support of our partners remains crucial to our success as a charity. We would like to thank all of our corporate partners for their important contributions.

Mr and Mrs Blunt Mark and Liza Loveday Mr and Mrs Salway Mrs Fiona Wilson MBE

Aberdeen Asset Management Abbott APSE Boehringer Ingelheim Limited Deutsche Bank AG London Genus Pharmaceuticals Ltd GlaxoSmithKline UK Pharma

Those who remembered Parkinson’s UK in their Will Without the generosity of these people, our work wouldn’t be possible. Legacies are vital to our work – enabling us to carry out our support and research.

Our thanks also go to these individuals who have made a special contribution to our work in 2011.

For further information about our achievements in 2011 and plans for 2012, email hello@parkinsons.org.uk You can find out more about the stories of the people featured in this report by visiting our website parkinsons.org.uk/impact

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We’re the Parkinson’s support and research charity. Help us find a cure and improve life for everyone affected by Parkinson’s.

We bring people with Parkinson’s, their carers and families together via our network of local groups, our website and free confidential helpline. Specialist nurses, our supporters and staff provide information and training on every aspect of Parkinson’s.

As the UK’s Parkinson’s support and research charity we’re leading the work to find a cure, and we’re closer than ever. We also campaign to change attitudes and demand better services.

Our work is totally dependent on donations. Help us to find a cure and improve life for everyone affected by Parkinson’s.

Parkinson’s UK 215 Vauxhall Bridge Road London SW1V 1EJ Free* confidential helpline 0808 800 0303 (Monday to Friday 9am–8pm, Saturday 10am–2pm). Interpreting available.

Text Relay 18001 0808 800 0303 (for textphone users only) *calls are free from UK landlines and most mobile networks.

hello@parkinsons.org.uk parkinsons.org.uk B008 © Parkinson’s UK, March 2012. Parkinson’s UK is the operating name of the Parkinson’s Disease Society of the United Kingdom. A charity registered in England and Wales (258197) and in Scotland (SC037554).