CHILDREN’S CONNECTION Sleep Lab: Sweet Dreams on the Horizon for Kids in Hospital
Jim Pattison Children’s Hospital Foundation Winter/Spring 2019
Golf for Good
A Touching Tribute Sparked by the Humboldt Broncos Tragedy
Heartbreak and Triumph: Our New Champion Shares His Powerful Story
Giving ay
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Meet Blake
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of the Sweetest Feel-Good Gifts for the Holidays
The New Fun and Games in Pediatrics Sure to Make You Smile
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Presented by
CHILDREN’S CONNECTION
What’s
Volume 3 Issue 1
Inside
A publication of
Our Mission: Jim Pattison Children’s Hospital Foundation is dedicated to raising funds for the enhancement of maternal and children’s healthcare in Saskatchewan and Jim Pattison Children’s Hospital.
Our Address:
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A gift of hope from unimaginable tragedy, how little hearts are winning big in Saskatchewan, plus the campaign to bring Jimmy Kimmel to Saskatchewan to help our kids.
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1 - 345 Third Ave S Saskatoon, SK S7K 1M6 pattisonchildrens.ca
Contact Us:
NEW & NOTEWORTHY
FEATURE STORY Why Toronto Maple Leafs Head Coach Mike Babcock wants you to donate right now.
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306.931.4887 or 1.888.808.KIDS (5437)
GIFTS THAT GIVE BIG Rock your charity gifts this holiday season with our Making Spirits Bright Holiday Giving Guide.
facebook.com/ Pattisonchildrens @Pattisonkids
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ON THE COVER Meet Blake: Twelve years after NICU heartbreak and triumph.
@Pattisonchildrens
Our Charitable Number: #13530 9342 RR0001
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Be Green! Sign up
What you need to know about Canada's largest single room maternal care centre.
for our eNewsletter at pattisonchildrens.ca and please recycle this copy. No part of this publication may be copied or reprinted without written consent. If you wish to be removed from our mailing list, please contact us 306.931.4887 or 1.888.808.5437. Jim Pattison Children’s Hospital Foundation does not sell, trade or lease the personal information of its donors.
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INSIDE THE NEW CHILDREN'S HOSPITAL
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YOUR DONATIONS AT WORK Why a New Pediatric Sleep Lab Is a Dream Come True for Saskatchewan families.
What’s New GOLFER ALENA SHARP HONOURS HUMBOLDT Canadian LPGA player Alena Sharp honoured victims and survivors of the Humboldt Broncos bus tragedy by donating her custom created Humboldt Broncos golf bag to Jim Pattison Children’s Hospital Foundation. The two-time Canadian PGA Women’s Champ and former hockey player donated the bag to help fund a new isolette for the Humboldt District Hospital, which sees approximately 35 babies born every year. Sharp’s bag was auctioned off at a golf tournament in August, where it netted $19,000 to kick off a fundraising partnership between Synergy 8 Community Builders, Jim Pattison Children’s Hospital Foundation and Humboldt District Hospital Foundation. The isolette will replace the hospital’s current incubator which is over 25 years old. Sharp said she was honoured to recognize the 13 survivors and the 16 players who died in the April 6th bus crash. Alena Sharp and her Humboldt Broncos golf bag.
SASKATOON COUPLE HONOURS GRANDCHILDREN WITH $250,000 DONATION Wayne and Debra Grund celebrated the good health of their seven grandchildren with a donation made in the family’s name. The Saskatoon salon owners gifted $250,000 for a Twin Room in the Neonatal Intensive Care Unit (NICU) at the new Jim Pattison Children’s Hospital. After two of their grandchildren, Grace and Abigail, were born six weeks prematurely and spent time in the NICU, Wayne and Debra knew that they wanted to contribute to help give the medical staff in the NICU a leading-edge facility, and give families an uplifting environment. 4 PATTISONCHILDRENS.CA WINTER/SPRING 2019
children.
nd Wayne a
De
grand eir seven bra with th
#KIMMELCARES CAMPAIGN PICKS UP STEAM Wiegers Financial and Benefits is hoping talk show host Jimmy Kimmel will be the highlight of its Care for Kids by Wiegers “Alice in Funderland” fundraiser in Saskatoon on June 1st, 2019. This fall, the group launched a social media campaign using the #KimmelCares hashtag to encourage Kimmel to come to Saskatchewan. Part of the campaign included the creation of a video featuring Saskatoon Mayor Charlie Clark and local radio personalities Shauna Foster and Rob Suski. It has been viewed nearly 125,000 times so far. In the last 10 years, Care for Kids by Wiegers has raised more than $800,000 for Jim Pattison Children’s Hospital. The fundraiser has previously welcomed high profile names such as Rick Mercer and Shaun Majumder. Kimmel is a celebrity Colton Wiegers thinks closely relates to the cause. “Jimmy had a son recently that was born with heart defects and had complications where he barely pulled through. We reached out to him because, as a parent, he understands.” Follow the campaign on Twitter using the hashtag #KimmelCares.
LITTLE HEARTS WIN BIG AT CP WOMEN’S OPEN Brooke Henderson and the CP Women’s Open took Saskatchewan by storm this summer, helping future cardiac patients of Jim Pattison Children’s Hospital in the process. Henderson became just the second Canadian to win the national championship since 1973. Meanwhile, the CP Has Heart program helped raise $2 million for a dedicated pediatric cardiology space and specialized equipment at our new provincial children’s hospital. The total donation was the result of several fundraising initiatives, including CP Birdies for Heart whereby CP contributed $5,000 for each birdie made by a player on the 17th hole during tournament play. A total of 95 birdies generated a $475,000 donation.
donations from February 14 to the end of the tournament. Since becoming the title sponsor, CP has raised $8.5 million for pediatric cardiac care across Canada of the CP Women's Open.
On-site at Wascana Country Club in Regina, fans were invited to the CP Has Heart Activity Zone to donate and take part in fun activities like taking a swing in the golf simulator to attempt a closest to the pin shot and putting on a miniature replica of Wascana Country Club’s 18th hole in the long putt challenge. CP matched all funds raised in the CP Has Heart activity zone as well as all online LPGA players and CP ambassadors Brooke Henderson and Lorie Kane with CP Women's Open child ambassador Ben Fizzard
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Mike Babcock Joinsthe Children's Hospital Team M
ike Babcock is one of the most decorated hockey coaches of all time. He’s returning to bring home the gold in the capital campaign fundraising push for Saskatchewan’s new children’s hospital, ahead of the opening next year.
He says that building the children’s hospital is all about Saskatchewan pulling together as a team. “In Saskatchewan, we do because we can. Whether it be your family team, your business, the hospital – you have everybody doing their part. It’s the idea that by working together, we make each other better.”
It’s only fitting, since the Head Coach of the Toronto Maple Leafs helped launch fundraising Babcock, who still spends time in his home efforts when Saskatchewan first announced a province, says we all have a responsibility to children’s hospital. “The opportunity care for Saskatchewan’s future generations. to build this jewel for the “As a parent, your job is to find the province of Saskatchewan, for best care for your child. Period. the people of Saskatchewan, "When When a child in your family is so very important,” gets sick, the whole family a child i explains Babcock. n gets sick. When we’re talking
your fam “We are proud to have about the children’s hospital ily gets Mike Babcock as our in Saskatchewan, we’re talking sick, the Ambassador in this about something that’s going to whole critical fundraising push give back for years to come. It’s family g ets for our new hospital,” so simple and really important to says Brynn Boback-Lane, get involved.” sick." President and CEO of Jim "Jim Pattison Children’s Hospital is Pattison Children’s Hospital an important and exciting project for Foundation. “Mike represents values the future of our province, and I am thrilled that run deep in Saskatchewan; integrity, that Mike Babcock has joined the team as strength, determination, and of course, he ambassador for the “We Are Saskatchewan” is most comfortable working with a team. campaign,” says Premier Scott Moe. “Coach His hope is to bring added awareness and Babcock truly represents the power of the support to encourage everyone to get involved people of our province. His support will surely in fundraising. Mike inspired this nation and inspire others to become part of the inspiring now he’s coming home to inspire his home team that is making Jim Pattison Children’s province. We are honored to have him as our Hospital a reality for kids and families across coach!” Saskatchewan." Babcock, who grew up in Saskatoon, steered the Canadian Olympic Men’s Hockey Team to gold in Vancouver in 2010 and in Sochi in 2014.
Learn more at wearesaskatchewan.ca
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Our Ultimat Give Where Needed Most...
Put your gift to the best use possible by supporting the most critical maternal and pediatric needs facing our province’s children, moms, and families. Make your gift monthly for even greater impact and receive a cumulative tax receipt issued annually.
$20+/share
Bring joy to kids in hospital...
W
ith the holidays right around the corner, there’s never been an easier way to find a meaningful gift for everyone on your list.
The 5th annual Making Spirits Bright Holiday Giving catalogue is back to help you give a gift that transforms little lives right here at home. Last year, hundreds of donors like you across the province raised over $64,000 for urgent maternal and pediatric needs, including a Transcranial Doppler Transducer to monitor blood flow to the brain and provide treatment options never before available in Canada. You also helped support a handheld, wireless iSTAT monitor to provide real-time blood work and evaluation en route with Saskatchewan’s busy Pediatric Transport Team. “The people of Saskatchewan help make the season bright through their gifts to our children and families,” says Brynn Boback-Lane, President and CEO of Jim Pattison Children’s Hospital Foundation. “When shopping this year, please consider directing a part of your gift budget to our holiday giving program as the need for immediate maternal and pediatric equipment never ends. This is a time when every child and mom-to-be could use a gift of hope!”
Kids in Acute Care Pediatrics count the number of sleeps until the next Family Bingo Night. Your gift will support this special game night, which is the highlight of the week for many, giving kids a chance to forget about their health challenges.
$25/share
Protect the lungs of newborn babies...
When Saskatchewan’s tiniest Neonatal Intensive Care Unit patients need resuscitation, traditional techniques risk damaging their delicate respiratory systems. A new infant resuscitator, sized perfectly for premature babies, will protect vulnerable lungs from further injury or damage.
$30/share
Solve pediatric sleep disorders...
Two new portable respiratory sleep monitors for the only sleep study program in central and northern Saskatchewan will help treat children with sleep apnea. Untreated sleep apnea can affect brain development, daytime behaviour, attention span, and in serious cases lead to heart failure.
$50/share Order your gift now at pattisonchildrens.ca
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*Gifts made through Making Spirits Bright are directed towards the services, equipment and programs described here. Should a gift category be completely funded through this campaign, your gift will be directed to the area of greatest need.
mate Gift Giving Guide Keep new babies warm...
Newborn babies need help keeping warm. An infant warmer is a therapeutic device that provides warmth and comfort to premature and full-term babies, ensuring they have the best start possible, allowing them to return home more quickly.
$75/share
Help kids cope with hearing loss...
You can provide a critically needed audiometer for the new Multidisciplinary Viewing Room and SPARC Therapy Room at Saskatchewan’s Jim Pattison Children’s Hospital. This important space will provide auditory-verbal therapy and rehab services for children as young as newborns all the way up to teenagers.
$100/share
S
itting around a Christmas tree and opening presents might seem like a standard way of celebrating the holiday season for many but for Payton Sernick, it has a very special meaning. After nearly a year of aggressive treatment for a relapse from Lymphoma, the determined 10 year old is coming home for the holidays.
Give the gift of speech...
Your gift will give tablets, eye gaze, and head-mouse technology to supplement or replace speech and writing for Saskatchewan children with brain injury, cerebral palsy or degenerative disorders.
$150/share
Give the gift of vision...
A surgical microscope for Jim Pattison Children’s Hospital will allow surgeons to see the smallest anatomical details to provide world-class microsurgery to children with eye disorders, cataracts, and eye trauma.
$10,000/share • major gift opportunity
Payton Meet
Age: 10 Hometown: Estevan Condition: Beating cancer ...for the second time.
Payton, the 2018 Saskatchewan ambassador for the Champions Program, faced a devastating relapse of her stage 4 childhood cancer last fall just one month after being declared cancer free after her initial diagnosis at age six. Payton’s family temporarily moved to Alberta for surgery and a bone marrow transplant at children's hospitals in Edmonton and Calgary. This brave girl fought for her life – all while 600 miles away from home. Payton was recently declared cancer free once again, but while she is grateful to be coming home, hundreds of Saskatchewan children like her remain in hospital. You can help make their spirits bright, by giving generously this holiday season. WINTER/SPRING 2019 PATTISONCHILDRENS.CA 9
Blake Meet
How Our New Champion is Honouring His Late Twin Brother
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ou would never know that Blake Wheeler started life off on the wrong foot. Blake and his fraternal twin brother, Noah, were expected to be born a few weeks early but nobody could have prepared for their severely premature arrival 14 weeks early. “Doctors tried to stop my labour, but it didn’t work,” says Blake’s mom Alicia. “The delivery room became very chaotic when they discovered an emergency c-section was the only option.” Moments after their birth, the fragile babies were rushed to the Neonatal Intensive Care Unit (NICU) and parents Alicia and Wade were quickly signing paperwork for blood transfusions. The boys were
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unstable and heart murmurs were detected in both babies, meaning surgery was needed immediately. Blake and Noah were only together for two weeks before the surgery proved to be too much for Noah, who tragically passed away. “At first we didn’t understand the severity of them being born that early,” says Alicia. “We knew we had a long journey ahead of us in the NICU, but we didn’t expect to lose one of the boys. We met with many doctors and nurses and it was sometimes difficult to grasp what they were saying. It was a language we have since come to understand.”
the title of a true champion. This year, Blake will be taking on the important role of 2019 Saskatchewan ambassador for the Champions Program, which honours remarkable children who have triumphed despite severe medical challenges. “I love telling my story because I can be a voice for kids who don’t always have a voice,” says Blake. “There are kids in our province who need a children’s hospital and it’s important to support them.”
We kne we had w a journey long ahead.. . w
e didn't expect to lose on e of the boys.
Meanwhile, little Blake was in for the fight of his life. After 46 days, his parents were finally able to hold him for the first time. Blake spent the next four months on ventilators, feeding tubes and IV lines, and also underwent hernia repair and laser eye surgeries. Blake was finally healthy enough to go home after 110 days in the NICU but specialists expected issues to surface as he grew.
Because of their past adversities, the Wheeler family understands the importance of a children’s hospital. Blake’s dad, Wade, survived a bone marrow transplant at age 15 after being diagnosed with Non-Hodgkin’s Lymphoma. As a family, they recognize that Noah is half of Blake’s story. Blake is proud and honoured to serve as Champion to be a voice for other kids in hospital, and to honour Noah in a special way.
Though the odds were stacked against him and doctors were worried about developmental delays, this sports-loving, energetic boy has grown into a thriving 12-year-old. His courage to push through life’s difficulties has earned him
Blake holding a photo of himself at 11 days old.
Blake and mom Alicia. WINTER/SPRING 2019 PATTISONCHILDRENS.CA 11
21st Century Care Coming for Moms-To-Be Innovative New Delivery Method Coming to Children's Hospital
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oms across the province are in for a treat. When Saskatchewan’s new provincial maternal and children’s hospital opens next year, most pregnant women will labour, deliver and recover all in the same private patient room. While the concept is not new in Canada, Jim Pattison Children’s Hospital is set to become the largest Single Room Maternal Care facility in the country. Designed to handle even the highestrisk pregnancies, the transformative birth experience will embrace family-centred care. Before, during and after the birth of their baby, women will receive care that integrates family support, education, participation and choice. With maternal care taking place all in one room, the experience will be based on her individual needs and birth plan. “We have had glowing patient feedback and staff feedback with this new concept,” says Jade Odermatt RN, Planning Lead of Maternal Services. “The processes and supplies needed to ensure exceptional care have been revised and it will be very different from what our families experience today.”
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Maternal Services at the new Jim Pattison Children’s Hospital will be located on the third floor, which is approximately the size of two football fields. It will feature 49 maternal inpatient beds, eight labour assessment beds, eight prenatal beds, three maternal operating rooms, a maternal outpatients department with five exam rooms, and a Maternal Fetal Unit. Maternal Services will also have an anesthesiologist, obstetricians, and family medicine physicians available 24 hours a day. The cross-training of registered nurses is already taking place with current postpartum nurses expanding their skillsets to also provide care during labour and birth. Labour and delivery nurses are also training for postpartum care. It’s a key part in the adoption of Single Room Maternal Care.
In preparation for the hospital’s opening next year, Maternal Services has adopted Single Room Maternal Care with quarterly trials spanning two days. When babies need extraspecial care, parents are kept close by and included in every step. The test-runs will help ensure a smooth transition into the new facility while keeping up to speed with the 5,600 babies born in Saskatoon each year.
Hospital Foundation. “Our moms and families will have the opportunity to celebrate the birth experience and growth of their family in a way that Saskatchewan families have never previously experienced. We are honoured to have this family-focused maternal care coming to our new children’s hospital.”
“This new model of care will completely change the way babies are born in Saskatchewan,” says Lynn Redl-Huntington, Vice-President of Communications at Jim Pattison Children’s
This wil l comple tely change the way babies are bor n in Saskatc hewan.
To support maternal care at Jim Pattison Children’s Hospital, please donate to the We Are Saskatchewan campaign at wearesaskatchewan.ca. Photo courtesy: Jesslaine Elise Photography
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Your Donations at Work Saskatchewan's First Pediatric Sleep Lab A Dream Come True
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n overnight hospital stay for children requiring sleep studies is about to get a whole lot cozier. A unique space designed to mimic the atmosphere of a child’s bedroom is coming to the new Jim Pattison Children’s Hospital as Saskatchewan’s first dedicated Pediatric Sleep Lab. “Sleep disordered breathing is a huge problem. It affects growth, development, school performance, behaviour, and can cause heart failure,” explains Dr. Darryl Adamko, Head of Pediatric Respirology, who is developing the Pediatric Sleep program. “Many kids are misdiagnosed with attention or mood disorders because of poor sleep.” Located on the second floor of the new children’s hospital, the Pediatric Sleep Lab will include two separate rooms fitted within Acute Care Pediatrics. It will serve children
Dr. Darryl Adamko 14 PATTISONCHILDRENS.CA SUMMER/FALL 2018
who struggle with underlying complications that prevent a good night’s sleep – from lung problems to snoring and obstruction to mental health and brain disorders. If doctors notice symptoms that require further testing, the child will be only steps away from the proper care they need.
s one i e c spa This ning fi e d t im mos e h t ew J n of e in th s e r u ren’s d l i feat h son C Patti ital. Hosp
“Currently, we are able to measure everything except the quality of sleep,” says Adamko. “This needs measurement of electrical activity in the brain using EEG measurements. The new sleep test is called a polysomnogram. A dedicated sleep
technician will be in place all night for this test. This process helps determine sleep quality, which is essential for the more difficult cases.” Children with sleep-affected medical conditions will barely notice they are in a hospital. The setting will have an ‘at-home’ feel rather than a clinical one. With sound-protecting walls, the child’s sleep pattern will have closer resemblance to their regular night time routine, allowing doctors to record a more accurate sleep study. An ultramodern part of the lab will include the control room where specialized technicians will visually monitor and oversee the testing. “The lab will also have the necessary technical requirements to start noninvasive ventilation (CPAP or BiPap). Non-invasive ventilation devices provide the child with a mask instead of an endotracheal tube to relieve obstruction. Previously we have been sending kids to Alberta or Manitoba for full sleep study tests or adjustment of CPAP,” says Adamko. “With the new lab, we will have dedicated technology to run these studies. Most
of the sleep equipment we have now has been funded generously by Jim Pattison Children’s Hospital Foundation donors, which have been fundamental in building our sleep lab.”” To coordinate with a child’s optimal night-time sleep pattern, the lab will be used primarily at night. Dr. Adamko and Pediatric Neurologist Dr. Salah Almubarak have come up with a novel daytime use of the lab. It will accommodate an Epilepsy Monitoring Unit for the Pediatric Epilepsy Program of Saskatchewan. This is the first of its kind in Canada. “This space is one of the most defining features in the new Jim Pattison Children’s Hospital,” says Kristina Konchak, Director, Major Gifts at Jim Pattison Children’s Hospital Foundation. “It’s going to bring a level of innovation that Saskatchewan has yet to see in pediatric health care.”
WINTER/SPRING 2019 PATTISONCHILDRENS.CA 15
Fun and Games Bring Smiles to Little Patients New Fundraising Campaign Will Keep Bedside Bingo a Reality
I
t’s not your average Thursday night in hospital. A popular new game night in Saskatoon’s Acute Care Pediatrics ward has kids counting the number of sleeps until Family Bingo Night. “It’s a way to create excitement and something for kids to look forward to when they are feeling down about being in hospital,” says Kelsey Luedtke, Recreation Therapist in Acute Care Pediatrics. “It’s great because it’s a game that all ages love to play; we’ve had patients as young as two play along with their parents as well as teens, siblings and grandparents.”
A donation for the program came to Jim Pattison Children’s Hospital Foundation thanks to a community event based in Kamsack, SK. A family who spent time at Alberta Children’s Hospital and took part in bingo night once a week there initially proposed the idea. A typical Thursday bingo night sees around 25-30 children and their families playing along, with multiple winners throughout the night. With the seed funding winding down, Jim Pattison Children's Hospital Foundation is raising funds through the Making Spirits Bright holiday giving campaign to continue the treasured y to program. a wa
It's ent m e t i c te ex g for crea n i h t e o som d ard t n w a r o f look o t eling e s f d i e k ar in they n e eing b wh t u o n ab w o d ital. hosp
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"We chose to include this item in our Making Spirits Bright holiday giving program because it's such a simple, low-cost way to support sick children in hospital," says Brynn Boback-Lane, President and CEO of Jim Pattison Children's Hospital Foundation. "It's the kind of gift that allows kids to forget about their troubles and just be kids for a while." “Children who are on isolation precautions and unable to leave their rooms can join in on the fun via walkie-talkies. They can hear other kids playing bingo and use the walkie-talkies to call in their ‘bingos’ and also respond to our knock-knock jokes or conversations going on in the playroom,” explains Luedtke. The walkie-talkies are key to ensuring kids experience the healing power of play regardless of the severity of their medical challenge. Five-year-old Jaleel, who has been receiving treatment for leukemia over the last several months, has participated in over 10 bingo nights and is quickly racking up his winnings. “Every time he gets admitted to hospital, he almost immediately asks when bingo night is,” says Jaleel’s mom Melissa. “He likes it when he can play with other kids in the playroom, but when he can’t go in the playroom he’s happy he isn’t left out.”
Family Bingo Night will be a part of the Child Life Zone in Saskatchewan’s new Jim Pattison Children’s Hospital, set to open next year. The 2,800 square foot space will be a place where young patients and their families can play, learn, laugh and relax. It was created in partnership with country music legend Garth Brooks and his Teammates for Kids Foundation, the Mosaic Company and Jim Pattison Children’s Hospital Foundation.
You can support this program through the Making Spirits Bright holiday giving program at pattisonchildrens.ca.
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What’s Happening Starts Jan
30
JIM PATTISON CHILDREN’S HOSPITAL RADIOTHON
The 16th annual Children’s Hospital Radiothon returns for three days to 600 CJWW, 92.9 The Bull and 98COOL to support maternal and pediatric equipment for the children's hospital. Start your Personal Fundraising Page at pattisonchildrens.ca to help Saskatchewan families right now!
Starts Feb
22
ROUND UP AT SAVE-ONFOODS
Save-On-Foods stores across Saskatchewan are rounding up for kids! Round up your bill to the nearest dollar to help moms, babies and kids in hospital. Runs until March 7.
April
5
JEANS & JEWELS GALA
Get your hard hat ready for our ͞construction themed Jeans & Jewels Gala at Prairieland Park, presented by Mosaic! Join us for an incredible auction, delectable food and great entertainment as we celebrate the 2019 opening of Saskatchewan’s Jim Pattison Children’s Hospital! Order your tickets online now at pattisonchildrens.ca.
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BE A HERO!
On
Now
Have your class or entire school join our Young Heroes League͟ as you have some fun AND raise funds through theme days, pj days, bake sales or whatever your imagination dreams up! Register now at pattisonchildrens.ca to be a hero for kids who need your help.
GIANT TIGER ICONS
March
1-31
Jump into spring by visiting any of Saskatchewan’s 14 Giant Tiger stores to purchase an icon in support of Jim Pattison Children’s Hospital Foundation and children in hospital. Small gifts make a big impact!
THE BRICK
On
Now
Get the new ͞Soccer Brickley Bear͟ at The Brick stores across Saskatchewan for just $20! Or make your donation right at the till in support of Saskatchewan’s only dedicated children’s hospital and the children and families it will serve.
CH I L D R E N ’S H OS P I TA L
Tune in to 600 CJWW, 98COOL FM, and 92.9 The Bull January 30 - February 1, 2019. Get involved. Fundraise. Donate. pattisonchildrens.ca
Donate Now