SPECIAL ADVERTISING SUPPLEMENT TO THE VIRGINIAN-PILOT
the POWER of
Pink OCTOBER 1, 2017 | VOL. 8 PHOTO BY JESSICA SHEA
From left: Susan G. Komen Tidewater staff members Lisa Chacon, special events/development manager; Clarissa Lewis, volunteer manager; Sharon Laderberg, executive director; and Miki Donovan, mission manager.
The finish line is a world without breast cancer T
he key numbers are 31 and five.
als make this progress possible. Here in this spe-
Every week in greater Hampton Roads, 31
cial section are stories of individuals whose close
women are diagnosed with breast cancer and
encounters with breast cancer have stirred them
five lose their battle with the disease.
to action.
“That shouldn’t happen,” said Sharon Laderberg,
Laderberg said the theme of this year’s fundrais-
executive director of Susan G. Komen Tidewater,
ing thrust is “More than Pink.” The staff of Susan
the local affiliate of the national breast cancer non-
G. Komen Tidewater would love for the public to
profit. “That’s why we do what we do.”
wear pink to raise awareness, but she urges peo-
The worldwide effort to end breast cancer has seen tremendous progress in the past 35 years, according to Laderberg. “If it’s detected early, breast cancer is treatable,” Laderberg said. Scientific breakthroughs in breast cancer research and increased awareness of screening for
ple to move beyond that; get screened, get involved, and raise funds. The Susan G. Komen Tidewater Race for the Cure is way to help fight against breast cancer, and Laderberg says that’s a good start, but it’s important to remember the finish line is: “A world without breast cancer.”
the disease have helped survival rates skyrocket. But it’s important to remember that individu-
— Ben Swenson
PAGE 2 | THE VIRGINIAN-PILOT | 10.01.17 | Sunday
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Special thanks to our Power of Pink Section Sponsors
˜
P L AT I N U M
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GOLD
CONTRIBUTORS Susan G. Komen Tidewater Executive Director Sharon K. Laderberg Special Events/Development Manager Lisa Chacon
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SECTION COORDINATORS Sara Anderson John Donnellan CREATIVE DIRECTOR Wesley Watson
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S I LV E R
PHOTOGRAPHERS Jessica Shea Wesley Watson
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PAGE DESIGN Shea Alvis
PilotOnline.com
S
usan G. Komen – Suzy to her friends and family in her Peoria, Ill., hometown – was an active and healthy 33-year-old when she was diagnosed with breast cancer. A former homecoming queen and model, she was bright and open, and shared the story of her fight willingly. She and her sister, Nancy Goodman Brinker, made a pact that Nancy would do all she could to make it acceptable for people to talk about breast cancer, to assist women who were fighting breast cancer and ultimately find the cure for breast cancer. Susan Komen died at 36, but Brinker kept her promise, launching a foundation named for her sister in 1982. Susan G. Komen for the Cure has become the world’s largest non-profit source of funding for medical research and services ($2.6 billion to date) and a steady support for women and men battling breast cancer.
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| Sunday | 10.01.17 | THE VIRGINIAN-PILOT | PAGE 3
PHOTO BY WES WATSON
Jane Gardner
The fight against breast cancer is constant
J
ane Gardner could have retreated indefinitely. She had every right to hunker down and fight cancer behind the walls of patient and family privilege. For many years, she did. But Gardner, a health reporter and former local news anchor, knew her public image presented an opportunity. There was something people could learn from her cancer story, so she told it. Gardner was first diagnosed with breast cancer in 1999, and over the next 17 years fought, and beat, skin, ovarian, and lung cancer. She shared her path through ovarian cancer with reporters from The Virginian-Pilot in 2015. In September, she hosted a public conversation with a capacity crowd at Chrysler Museum of Art. Gardner’s hard-won lessons from the front lines of cancer offer insight. “When you’re first diagnosed, it takes a while to sink in,” she says. “It’s so huge that it’s kind of hard to grasp.”
Especially difficult, she says, is the eventual realization that a bout with cancer is truly a twofront battle. There is the cancer itself, but there are also the effects of the treatment, which are equally burdensome. Overcoming cancer is an endeavor fraught with challenges, but Gardner says there is hope. “I would urge a newly-diagnosed woman to live each day, to hold close to those she loves, and to cherish the good things in her life,” she says, because blessings remain, even in the face of a frightful diagnosis. That optimism comes from all the people who devote time and energy to help cancer sufferers and their families. The heightened awareness of breast and other forms of cancer are encouraging, but knowledge is only the beginning. At her recent Chrysler Museum lecture, Gardner met a couple who started a blog to share information about the wife’s fight against cancer, of-
fering patients solace in the recognition of shared experiences. Numerous charities and advocacy groups, such as Susan G. Komen Tidewater, rely on volunteerism. Gardner says that the nonprofit Lee’s Friends provides a critical, if underappreciated, service cancer patients need – transportation to and from treatment. She was lucky enough to have transportation provided by her devoted husband Gary, but she has seen firsthand that not all women have that luxury. Gardner says the point is to get involved in the fight against cancer, whatever the level of commitment one can offer. October is breast cancer awareness month, but the disease doesn’t take the rest of the year off. “It’s mighty important to support the cause throughout the year,” she says. – Ben Swenson
PAGE 4 | THE VIRGINIAN-PILOT | 10.01.17 | Sunday
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| Sunday | 10.01.17 | THE VIRGINIAN-PILOT | PAGE 5
Cindi Willoughby Nobody walks alone
I
t’s Cindi Willoughby’s job to be with patients from the moment they receive their life-changing diagnosis of breast cancer to the resolution of their treatment. It’s a journey that can be filled with fear and confusion, but also hope. “It’s both humbli ng an d a privilege to help someone through a very stressful time,” she says. Willoughby is a breast cancer nurse navigator at Sentara Virginia Beach Comprehensive Breast Center, a position she has held since 2010. She helps guide patients through the process. This means she has regular conversations with her patients, both on the phone and face-to-face, explaining facts and procedures in a way that is frank and compassionate. Recently Willoughby served as patient navigator for a young mother. Although the woman is a medical professional, breast cancer was not her field of expertise and she knew little of what to expect. Willoughby initially met her to discuss the course of treatment and remained in contact for the duration. Willoughby told her about community resources that could help soften some of the effects of the treatment and connected her with a boutique that provided wigs and scarves, free of charge. She even helped the woman sign up at an image recovery cen-
ter that offered a makeup class to aid in building self-esteem. Today, that patient has returned to her career and uses her experience with breast cancer as a tool to help others tackle their own medical challenges. Part of the reason Willoughby is such a passionate advocate for breast cancer patients is she is a survivor herself. Diagnosed in 2008, Willoughby underwent a year of active treatment. “I’ve lived it, so the fact that I’ve had breast cancer (as well as) a majority of the treatments allows me to talk to patients in a personal way,” she says. That empathy resonates with patients and offers living proof that breast cancer is beatable. One of the most encouraging facts about a breast cancer diagnosis, according to Willoughby, is that the vast majority of those women with the disease now “live to die of something else.” Research and state-of-theart technology have been major drivers in the success rate, but Willoughby said often the best tool in the fight against cancer is simply staying informed. She said there are many people who stand ready to help patients do that. “Our motto is ‘Nobody walks alone if they don’t want to,’” she says. – Ben Swenson PHOTO BY JESSICA SHEA
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PAGE 6 | THE VIRGINIAN-PILOT | 10.01.17 | Sunday
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PHOTO BY JESSICA SHEA
Nancy W. Harvey
Comfort in the strange land of cancer
W
hen Nancy W. Harvey wondered how she could praise God as she battled breast cancer, Psalm 137 suddenly sprang to her mind. The Bible verses describe how the Jewish people, held captive in the city of Babylon, cried as they yearned for Jerusalem. They asked themselves: “How shall we sing the Lord’s song in a strange land?” Cancer was Harvey’s strange land – one she visited years earlier when her mother died from breast cancer that had made its way to her bones. She was 63 at the time, the same age as Harvey when diagnosed. “I didn’t want to be in that place, of course,” Harvey says. “But I realized I wasn’t ever alone. The Lord is with you in whatever strange or frightening land you may go through in your life. You don’t have to push through on your own.” Now 85, Harvey is a 22-year survivor. She privately shares her story with anyone facing cancer or any other hard time, offering encouragement, comfort, and a message of faith. But sometimes she’s not so private: In August she gave a testimony of her experience in front of her fellow congregants at Tabernacle Church of Norfolk. Afterward, several women told her she had helped them figure out how to manage
Cancer was a dreadful thing, but it also was a useful thing. I had known the Lord as my savior since college, but this added a whole other dimension to the relationship. their fear and pain. “Someone once said to me, ‘Don’t waste your cancer experience,’” Harvey says. “I loved that. Cancer was a dreadful thing, but it also was a useful thing. I had known the Lord as my savior since college, but this added a whole other dimension to the relationship. I trusted in God even more, and since then I have always been hopeful that my experience could be a blessing to somebody else.” Harvey’s doctor discovered a lump in her left breast in 1995, about three years after her older sister, a fellow survivor, had a mastectomy. Har-
vey had surgery to remove the entire breast plus 23 lymph nodes, followed by 12 monthly chemotherapy treatments and radiation. Harvey lost her hair almost immediately. A mother of four who has worked as both a restaurant hostess and a caregiver for the elderly, she had energy for nothing more than a little cooking and shopping. Her husband of now-63 years, George, and her church family pitched in to help. “I did a lot of cross stitch that year,” Harvey notes with a laugh. Now a grandmother of 10, the Norfolk resident has annual physical exams, but otherwise no follow-ups for her cancer. Her only daughter, 48, is well aware of her family history, but so far is cancer-free. George Harvey hopes his wife’s quiet support of other cancer patients will encourage others to do the same. “There are some breast cancer survivors who make a visible impact by organizing fundraisers, promoting greater awareness, etc.,” he says. “But there are likely many more women like Nancy. I am certain that her deep faith has helped others in their own journey.” – By Alison Johnson
| Sunday | 10.01.17 | THE VIRGINIAN-PILOT | PAGE 7
Lori Burwell Get active and be informed
P
PHOTO BY JESSICA SHEA
eople often make plans months ahead of schedule. Lori Burwell doesn’t have that luxury. She is one of more than 150,000 people diagnosed with metastatic breast cancer, an advanced stage of the disease. Physicians define those stages according to the size and location of the tumors. Stages 0 and 1 represent the first, localized occurrences of lesions in the breast. When the cancer spreads to other parts of the body, such as the lungs and bones, it has reached stage 4, or metastasized. Metastatic breast cancer is treatable, but not curable. Burwell hopes that her battle with metastatic breast cancer will not only help illuminate and inspire others engaged in this life-or-death struggle, but also to spur them to help fund research into what triggers cells to mutate in the first place. Although her cancer is a daily struggle, Burwell said that she has no choice but to fight. Her diagnosis came while she was enjoying a full and healthy life. She spent her career as a C.P.A and a high school math teacher. She and her husband raised two kids to adulthood. She exercised and ate well. Even though there was no known history of breast cancer in her family, she nevertheless had mammograms to screen for breast cancer after age 40, as physicians recommend. In fact, a A mammogram in late 2009 gave no indications of anything wrong, but that clean diagnosis proved to be shortlived. A self-exam shortly afterward raised some concerns, and a visit to her doctor confirmed her suspicions. Burwell had stage 2 breast cancer.
Aggressive treatment regimens occupied the next yeara n d - a - h a l f. Bu r w e l l we nt through three different types of chemotherapy and had a mastectomy. The cancer went into remission for a few years, so she resumed a normal lifestyle – to the extent that her body would allowed. But in 2015, she got the news that cancer had appeared in both lungs. Now Burwell receives regular treatments and plans her life in three-month intervals, the amount of time between each CT scan that will show whether the cancer has spread. Part of her strategy for coping with the constant cloud of cancer is staying active with the pastimes she enjoys – : tennis, Pilates, and math tutoring. What she avoids at all costs is hopelessness that sometimes bogs down cancer patients. “With the initial cancer diagnosis comes a gamut of emotions, from frustration to anger,” she says. “At this point in my life, spending time being frustrated and unhappy is wasted time.” Burwell connects with online communities of metastatic breast cancer patients to interact with other people who appreciate her situation. These forums often discuss treatment options, offer ideas about combatting side effects, and examine new breakthroughs in cancer research. These sorts of discussions are examples of the proactive education that breast cancer patients should seek on behalf of themselves, according to Burwell. “You are your best advocate,” she says. “Get active, get involved, be informed.” – Ben Swenson
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PAGE 8 | THE VIRGINIAN-PILOT | 10.01.17 | Sunday
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| Sunday | 10.01.17 | THE VIRGINIAN-PILOT | PAGE 9
PHOTO BY JESSICA SHEA
From left: Wahine Surf Club members Blair Daniels, Joyce Knudson, Cindy Stokes and Carrie Copenhaver.
Cindy Stokes Surf for the Cure
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s an intensive care nurse for 26 years, Cindy Stokes has seen too many women’s lives cut heartbreakingly short by breast cancer. As founder of a local surf club that aims to draw more women into water sports, Stokes is determined to fight back. On Oct. 14, the Wahine Surf Club will host its fourth annual Coastal Edge Surf for the Cure, a competition in Virginia Beach that doubles as a breast cancer fundraiser and awareness event. The event features a stand-up paddleboard race, free surfing lessons for breast cancer survivors, educational pamphlets, and a mobile mammography unit to screen uninsured women who meet certain age and health criteria. “I’ve watched women still in their 30s getting final hugs from their kids,” Stokes says. “When you have my job, you know breast cancer isn’t selective. It doesn’t care about your age or your family. So I want women to do all they can to take care of themselves and have an active lifestyle.” Studies have shown that physically active women have, on average, a 12 percent lower risk of breast cancer, according to the National Cancer Institute. Unhealthy weight gain after menopause also is associated with an increased risk of cancer. Over the past three years, Surf for the Cure has raised more than $12,000 for Susan G. Komen Tidewater, a nonprofit dedicated to ending breast cancer. This year’s entry fee for both the surfing competition and the paddleboard race is $25. For cancer survivors in the surfing clinic, Wahine will provide all equipment and wetsuits; beginners welcome. Surf for the Cure will also honor women who have lost their lives to breast cancer with a “paddle-out” ceremony, a Hawaiian tradition in which loved ones form a prayer circle in the ocean and toss memorial flowers into the water. Wahine Surf Club – “wahine” is a Polynesian word used to mean “woman” in Hawaii – aims to introduce more women to surfing, a full-body workout traditionally dominated by males, although the club also welcomes men and children. The club has about 75 members, one of whom lost her mother to breast cancer and has a sister with the disease. “She’s terrified she might be next,” Stokes says. “It’s just another reminder for me of why we need to do everything we can to get rid of this disease.” – Alison Johnson
want to go? The Coastal Edge Surf for the Cure will run from 8 a.m. to 5 p.m. Oct. 14 at the 1st Street Jetty at the Virginia Beach Oceanfront, with a rain date of Oct. 15. An Oct. 7 pre-event offers a 5K run/walk and paddleboard clinic at First Landing State Park in Virginia Beach. For more information, including registration links, visit surfforthecure.org. Day-of registration also will be available.
PAGE 10 | THE VIRGINIAN-PILOT | 10.01.17 | Sunday
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Lillie Lindsay
There’s no good excuse for not getting checked
L
illie Lindsay is happy to share her story about cancer. She hopes it will help shed the stigma associated with having one’s breasts removed. “You don’t have to be ashamed anymore,” Lindsay says. “They built me back better than I had been before.” African American women die of breast cancer in Virginia at a rate 39 percent higher than their white neighbors. Lindsay knows these figures all too well, because the disease has touched so many people in her life. Her mother, who was a nurse and health educator, died from breast cancer. Both of her sisters survived bouts with the disease. And a host of once- or twice-removed relatives also developed it. That family history forced Lindsay to be diligent about her health. In 2011 she received some news from her doctors that suggested cancer was highly probable. Even though no tumors showed up on mammograms and CT scans, Lindsay made the difficult decision to have a bilateral prophylactic mastectomy, a sort of preemptive surgery to rob breast cancer of the tissue where it is likely to appear. Surgeons used belly fat to reconstruct her breasts in a process known as autologous reconstruction. Lindsay says that fear of such an invasive procedure – considered by many women as a near-worst-case scenario – clouds judgment and often keeps otherwise intelligent women from seeking the care they need. Working professional women often use their busy lives as a reason to avoid the diagnostic procedures that can catch cancer in its earliest, treatable stages. Lindsay’s message is straightforward: No excuse is a good excuse for not seeking the preventative care that could save your life. She and her family now make it a point to raise the issue of breast cancer awareness at their annual Lindsay family gatherings and other social occasions. These conversations don’t need to be long or difficult. She often brings up something as simple as a free app that offers reminders for women to conduct the regular breast self-exam. “There are many people who love you,” says Lindsay. “The world is never the same when you’re not here. You owe it to your loved ones to look after your health.” – Ben Swenson
PHOTO BY JESSICA SHEA
Jana Allen-Bishop
Overcoming “speed bumps” with humor
B
efore each of her chemotherapy sessions, Jana Allen-Bishop got all dolled up: Tall boots, bright pink tops, fuzzy vests, jewelry, a sassy red wig, and makeup – minus mascara, since she’d lost her eyelashes. Then she’d sit in a chair for eight hours, smiling as much as she could. Why? Two bouts with breast cancer had convinced AllenBishop the only way to live was to embrace every moment of the journey, from the smooth roads to the speed bumps. “I learned to go one day at a time, because the future is never certain,” she says. “Like if your hair starts to fall out, you don’t know if it will be in little wisps or huge clumps. So I just chose to take things as they came and be happy I was alive. I was tired and scared, but determined to stay as positive as possible.” Allen-Bishop, now 61, discovered she had cancer for the first time on her 44 th birthday. Her maternal grandmother had died of the disease at age 40, so the Williamsburg resident scheduled annual October mammograms and was lunching with her mother when she got a call that the images showed an abnormality. Diagnosed with early-stage cancer, she chose to have a mastectomy, fol lowed by reconstructive surgery. “I couldn’t believe all the sizes of implants,” she says. “I finally said to my plastic surgeon, ‘Look, I don’t want to work at Hooters, and I am not interested in being the warmup act for Dolly Parton. Just put me back together the way I am now.’ I found humor was good medicine.” Allen-Bishop noticed a little knot seven years later at the
base of her mastectomy scar, which irritated her when she wore a sports bra for running. Assuming it was scar tissue, she consulted with a plastic surgeon, who prescribed a mammogram as a precaution. And just like that, at age 51, she was traveling with cancer again. “I just thought, ‘This can’t be real,’” she says. When Allen-Bishop told her then-teenage children, Jennifer and Samuel, that she faced eight rounds of chemotherapy plus radiation, 18-year-old Samuel told her it was “just eight speed bumps, Mom.” The day she shaved her head, at Christmas time, the curlyhaired high school senior disappeared to take a shower and emerged bald. Then the two put on Santa hats and went to the mall. She’s now two up on cancer, but Allen-Bishop admits she still thinks of a possible recurrence almost daily. Her embrace-the-journey attitude hasn’t wavered, however. When her now-engaged daughter worried about cancer skipping a generation and affecting her children, AllenBishop – who has tested negative for genetic mutations – encouraged her daughter not to let an uncertain future be a barrier. Long active with Susan G. Komen, Allen-Bishop, who works in recruiting for the College of William & Mary’s graduate business program, frequently shares her story in speeches and has run in about 120 Race for the Cure events. “Cancer is ugly, unpredictable, and sometimes lonely, and it will slow you down, but you’ll get through it,” she says. “You can live without breasts and hair. You have so much else left.” – Alison Johnson
PHOTO BY JESSICA SHEA
| Sunday | 10.01.17 | THE VIRGINIAN-PILOT | PAGE 11
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