The State of the Six Core Outcomes in Montanai Families of children and youth with special health care needs partner in decision making at all levels and are satisfied with the services they receive
68.2% of parents feel that their child’s health care professional helps them feel like a partner in their child’s care 65.5% of parents reported that the school facilitated their involvement in OPI surveyii
Children and youth with special health care needs receive coordinated, ongoing comprehensive care within a medical home
13.4% did not have a personal doctor compared to 6.9% nationwide 39.1% in Montana reported having a medical home 57.4% of CSHCN in Montana use a doctor’s office as their usual source of sick care, significantly lower than 74.8% of CSHCN throughout the US. 43.1% of children with special needs did not receive the care coordination they needed. CSHCN only received effective care coordination 56.9% of the time 65% listed the primary caregiver as the care-coordinator
Families of CSHCN have adequate private and/or public insurance to pay for the services they need
16.1 % of CSHCN in Montana have been uninsured at least once in the last year 53.3% of Montana CSHCN had health coverage
Children are screened early and continuously for special health care needs
30.9% did not receive routine health care 19.3% of CSHCN in Montana had no preventive visits, such as a well-child check-up
Community-based services for children and youth with special health care needs are organized so families can use them easily
54.3% of families reported that services were easily organized and accessible compared to 61% nationwide 12.9% of Montana families reported needing respite care, significantly higher than 6.7% of families nationwide CSHCN in Montana were significantly more likely to experience difficulties or delays in accessing services due to eligibility, lack of availability of services, or cost, than CSHCN nationwide.
Youth with special health care needs receive the services necessary to make transitions to all aspects of adult life, including adult health care, work, and independence.
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48.6% reported receiving the adequate transition services Parents and caregivers were concerned about what would happen to their children in adulthood Another concern was the lack of resources and services available to their children after high school and the difficulty in accessing continuous care.
Montana DPHHS (Feb. 2012.) CSHS Needs Assessment Summary retrieved from <http://www.dphhs.mt.gov/publichealth/cshs/documents/CSHCNNeedsinMontanaSummary.pdf> ii Montana Department of Education, Office of Public Instruction. (Feb. 2013.) Montana FFY 2005—2013 State Performance Plan Division of Special Education retrieved from <http://www.opi.mt.gov/pdf/SpecED/13RevPerfPlan.pdf>