Chief Executive Officer November 2018
Contents 1 Welcome 2
About
3
Our Values
4
Strategy / Ambition
6
Finances
7
Structure
8
Role Description
14 How to Apply B
Chief Executive Officer | Brain & Spine Foundation | November 2018
Welcome Dear Candidate, It is an incredibly exciting time to be joining The Brain and Spine Foundation. I founded the charity 26 years ago and we are the only specialist charity in the UK whose aim is to improve the quality of life of people affected by neurological problems. During that time, we have grown to become one of the top 5% of all UK charities in terms of fundraising but we are still at a fraction of the level achieved by heart and cancer charities. Whilst neurological conditions are often considered rare, there are, in fact, over 350 different conditions of the brain and spine that together affect more than 12 million people in the UK. In many cases these conditions have long-term impacts without the prospect of a cure. The simple reality is this: In the next 6 years, there is a 1 in 10 chance of turning to The Brain and Spine Foundation for help. Now is the time to chart a new course to take the charity to the next level. This is premised on four strategic imperatives – build the brand, increase our profile, accelerate fundraising and enhance our services.
inspiring CEO that can take a great team and a vitally important purpose, to develop a new strategy and influence change with the urgency and energy that is required. Core to this will be the ability to grow revenues from £1m to £3m across the next three years. An ambitious but realistic target if we are to extend the services that we provide. I am enormously proud of everything that the charity has been able to achieve over the last 26 years but I’m acutely aware that there is so much more we need to achieve. Neurological services in the UK are the scarcest in any OECD nation, with fewer than 20 hospitals in the UK housing specialist units with neurosurgeons such as myself. As a consequence, 95% of patients are cared for by non-specialists, providing the most basic care of only the acute catastrophes these disorders generate, leaving a massive unmet need. Uniquely extreme in our country, this is the environment in which our Foundation attempts to respond. If you are excited by the challenge, think you have what we are looking for and would like to join me and a motivated senior team, led by an imaginative, ambitious, invested and unified Board, I very much welcome your application. Peter J Hamlyn MBBS Bsc MD FRCS FISM
To ensure that this exciting ambition is realized, we are looking for a visionary and
Consultant Neurological and Spinal Surgeon President and Founder
Chief Executive Officer | Brain & Spine Foundation | November 2018
1
About
T
he Brain & Spine Foundation exists to improve quality of life for anyone affected by a neurological problem, whether the patient themselves or anyone in the circle around them – family, friends, carers and health professionals. We are there at every stage from first symptoms, during the wait to see a specialist and in the long term when lack of community care means that there is often nowhere else to turn. We provide vital support and information to enable people to understand their condition, to reduce anxiety and to empower them to manage their condition in the best way they can.
2
We are the only UK-wide charity providing expert support on the full range of neurological conditions. The charity’s objectives are the advancement of support for people affected by neurological problems in the UK for the public benefit and in particular by:
1
Providing information, support and services to people affected by neurological problems, their families and the professionals who work with them;
2
Promoting understanding of neurological problems.
Chief Executive Officer | Brain & Spine Foundation | November 2018
We are: Expert: We work to a high standard and use the expertise of health professionals and our users to produce quality information and support services.
Inclusive: We will support anyone who needs us; we’re caring and respectful towards our users and each other. We listen to the needs of people affected by neurological problems and provide an accessible person-centred service.
Empowering:
Learning & Growing: We’re ambitious about what we can achieve for people affected by neurological problems. We learn from experience and work innovatively to grow and improve what we do.
Collaborative: Working in partnership with others, including patients, health professionals and other charities to get the best results for anyone affected by neurological problems.
Values:
We help people to help themselves; by providing information and support we enable individuals to take control of their own journey. We’re there in the background when they need us. The Brain & Spine Foundation was formed in 1992 by neurology specialists to provide muchneeded information and support for people affected by every one of the 350+ neurological disorders, which we now know affect 12 million people in the UK. Read more about the charity’s history on our website Neurological conditions and associated treatments are often complex and poorly understood by those affected and their families. Many people wait for a long time for diagnosis while living with ongoing symptoms and the anxiety of not knowing what the future holds. A recent survey showed that 42% of neuro patients saw their GP five or more times before seeing a neurological specialist. Following that, 19% of patients waited more than a year to see a neurological specialist after seeing a GP. These delays lead to later diagnosis, so treatments start later which can lead to poorer outcomes and anxiety. The Brain & Spine Foundation exists to provide information, answer questions, reduce anxiety and to inform choices. Our Helpline team provide tailored information and specialist support for anyone affected by a neurological problem. We’re here to help anyone
with questions about a neurological problem or concerns about a family member or a friend. We also support health professionals in their work, answering questions and signposting to patient services. The helpline is free and totally confidential. “I called the Helpline and had an amazing chat with Eva, who gave me so much relevant information and delivered it with great patience and understanding. This is the first time I’ve called the Helpline and I wish I’d done it ages ago.” Janice, Helpline caller In addition, we provide over 25 informative booklets and fact sheets on different conditions, procedures and symptoms. Accredited by the NHS England’s Information Standard, the publications are freely available online, by post and through our partner organisations. “I just wanted to tell you what a huge comfort, encouragement and inspiration the information has provided, it just makes so much difference to appreciate what’s going on, the likely causes and my chances of a full recovery.” Paul, downloaded a booklet 3
Strategy/Ambition We have been working in the last 3 years to extend our support to people affected by neurological problems.
4
Chief Executive Officer | Brain & Spine Foundation | November 2018
We have: • Expanded our resources to cover a greater range of neurological conditions. • Introduced digital resources including video and animation on our website. • Launched a conference programme for patients and carers to hear from experts and to meet others affected by similar issues. • Extended our helpline opening hours to reach more people in need of our support. • Piloted an outreach programme to reach health professionals working with neurological patients and to raise awareness of our services and support. • Launched online support groups to provide space for mutual support and sharing ideas. • Contributed to NICE Guidelines including Suspected Neurological Conditions, the much anticipated guideline aiming to improve identification and referral from primary care. • Run our first conference for Health Professionals, in partnership with Royal Society of Medicine, focusing on neurovascular disorders such as subarachnoid haemorrhage.
condition than cancer and that over 50% of people with a neurological condition will have associated mental health problems. We are responding to these evolving needs and building plans for the ambitious next stage of the charity’s development. In the next phase of our strategy we will: • Expand our Outreach work nationally to reach more people across the UK. By increasing our contact with health professionals we will ensure more patients and families can access our support and information services when they need them most. • Introduce Peer support networks to enable face-to-face support around the UK, using expert patients and their experience to help others. • Develop a raft of resources related to Well-Being of those living with the longterm effects of a neurological problem, to empower individuals with information and to support self-care. • Run a Well-Being event incorporating workshops on a range of topics related to long-term symptoms and management tools, such as emotional well-being, neurological pain and managing relationships. • Continue to expand our information resources, including digital, to reach people with a range of different conditions.
• Launched a new website. • Diversified our income streams with increased funds from trusts, special events and corporates. Our understanding of our service users’ needs has improved during this time, alongside our capabilities and offer on a number of fronts. Now more than ever users are involved in developing services with us to ensure the best outcomes for this neglected community. We know that more people are afraid of getting a neurological
• Maintain the excellent quality of service provided by the helpline, raising funds to increase the size of the team and reaching more people. • Refresh our fundraising approach to increase funds to invest into our work and to keep pace with the changing environment. For more information about the Brain and Spine Foundation please see our website www.brainandspine.org.uk/about-us
Chief Executive Officer | Brain & Spine Foundation | November 2018
5
Finances
T
he 2017-18 financial year saw total income of £700,272. This includes a strong base of income from grant-making trusts, events, legacy and individual giving. Over the last two years we’ve been successful in growing trusts (400% increase from 2015-16) and individual giving (increased by 41% since 2015-16) in particular. Legacies and event fundraising have remained reliable income streams, raising £132,000
6
and £135,000 respectively. Total income in this year was lower than the previous year, primarily due to lower level of legacy income, which was exceptionally high in 2016-17. Total expenditure in the year was £836,950 which is broadly consistent with the previous year. Designated funds which were allocated in previous years were used in 2017-18 to invest in the charity’s growth, including a new website, expanding the fundraising team with an additional post and for our office space. We ended the year with £423,992 in reserve which equates to around 6 months operating costs.
Chief Executive Officer | Brain & Spine Foundation | November 2018
Chief Executive Officer | Brain & Spine Foundation | November 2018
7
Publications Officer
Senior Helpline & Info Officer
Head of Services
Vacant
Helpline & Info Officer
Events & Community (FR)
Team Administrator
0.4 FTE
Job share
(Trusts & Corporates
Senior FR
Finance Manager
Head of Fundraising (FR)
CEO
Organisational Structure
Digital Communications Officer
Role Description Role Purpose: Job Title: Chief Executive Officer Responsible to: Chairman and Board of Trustees Responsible for: Team of 5 direct reports including a Head of Services and a Head of Fundraising
In partnership with the staff and with guidance from the Trustee Board, you will set the strategy, enable the Foundation to realize its development plans and enhance its reputation and influence, in service of realising our stretching ambitions for the charity.
Tenure: Full time Salary: circa ÂŁ70,000 plus contributory pension. Other benefits: Interest free season ticket loan, 25 days annual leave plus additional days for long service.
You will develop and engage in the growth of our existing services plus the outreach program, develop our conference program and the role the Foundation plays with Health Professionals. Engaging and securing support from strategic partners, donors, other stakeholders, carers, professionals and ambassadors is also a core activity. You will take ownership for leading, developing and enabling market facing activities including defining the brand, vision and values, and building a programme to increase brand awareness and recognition.
You will lead the development and implementation of the new strategy with measurable outcomes, and growing the role of the Foundation to become the leading Neuro-sector charity, enabling improvement in the quality of life of people affected by neurological problems.You will ensure long term sustainability, through effective governance, effective fundraising and income generation, sound finance and delivery of services. You will drive the growth and development of the Team, making The Brain & Spine Foundation a leading charity in which to work. 8
Chief Executive Officer | Brain & Spine Foundation | November 2018
Key Result Areas Deliver the agreed vision, strategy, values and specific objectives of The Brain & Spine Foundation by fulfilling the core mission. • Develop and agree the strategic plan, the business plan and fundraising strategy, with the objective of increasing annual revenues from £1m to £3m. • Determine the role of B&SF within the Neuro sector and recommend the appropriate strategic positioning and brand architecture for the charity going forward. This may well entail alliances and/ or mergers. • Develop existing relationships; identify, target and develop new relationships with relevant charities and health professionals to partner with and/or provide services to.
• Create a pipeline of talent to work with the Foundation. • Identify, develop and convert new sources of income and opportunities that are in line with the charitable aims of The Brain & Spine Foundation. • Develop the core services and activities including but not limited to the helpline, information resources, website, online support and events. • Ensure key performance indicators, feedback and advisory guidance from our beneficiaries, supporters and professionals influences strategy, activities and operations. • Develop sustainable funding programs to maintain and develop the charity’s work supporting people affected by neurological problems.
• Build and maintain a high performing staff team who are motivated and inspired.
Chief Executive Officer | Brain & Spine Foundation | November 2018
9
Key Responsibilities Governance and relationship with the Board of Trustees
• To further the charitable mission of the organisation, focused on enhancing the provision of services to our beneficiaries.
• Work with the Chair and other members of the Board, to oversee good governance of the charity, develop strategy and assess the organisation’s ongoing priorities and challenges.
• To represent the charity at external events and opportunities.
• In consultation with the Chair; prepare meeting agendas; make recommendations on projects and proposals requiring consultation and decision making and draw the Board’s attention to matters that are relevant and critical to fulfilling the mission of the Foundation. • Ensure proper constitution of the Board with the support of the Chairman to provide good governance. • Support Trustees to monitor and manage the mix of skills and diversity at Board level while also managing the rotation of members according to policy. • Inform and engage Trustees as appropriate in the day to day work of the organisation to enable them to contribute their skills and experience to the best of their ability.
Strategic Leadership • To lead the Charity on a significant growth and development program that improves support for people affected by neurological problems, and increases recognition for the charity. • To promote the image and values of The Brain & Spine Foundation increasing brand recognition, working in partnership with others in the sector. 10
Fundraising • Work with the Head of Fundraising to develop the fundraising strategy incorporating a varied mix of income streams to provide for the growth of The Brain & Spine Foundation and ensure sustainable, unrestricted reserves. • Undertake research and initiate fundraising opportunities, working with the fundraising team and engaging Trustees. • Make proposals to the Board on the goals, aims and objectives of the charity and implement these, measure and deliver the results. • Assess proposal risks and advise the Board on how best to use the charity’s resources. • Build and maintain relationships with supporters of the charity, including the President, Ambassadors and Expert Advisers.
Leadership and co-ordination of Staff • Manage office resources and staff to meet the agreed plan and strategies of the charity. • Provide leadership, supervision and direction to staff within the framework of Employment Law, internal policies and best practice.
Chief Executive Officer | Brain & Spine Foundation | November 2018
• Oversee HR policies and processes, reviewing and updating as necessary in line with changes to Employment Law.
• Quarterly risk assessment for the organisation, working with senior staff and trustees
• Facilitate training, coaching and development at all levels for the staff team.
• Work with the Finance and Governance (F&G) committee to maintain and develop plans within the Governance Checklist.
• To ensure that at all times The Brain & Spine Foundation staff, supporters and volunteers comply with all laws related to its activities and operations. • Promote diversity and equality of opportunity in all The Brain & Spine Foundation’s work and practices. • Build a staff culture where everyone is valued, has the required resources to perform their job. • Make The Brain & Spine Foundation one of the top 5 charities to work for.
Operational Framework and Governance
• Oversee the full HR process, health and safety, appraisal systems and training programmes. • As Data Protection Officer, to lead on the charity’s approach to data protection incorporating our agreed approach to GDPR. • Take responsibility for standard functions in the organisation for which no member of staff is directly responsible and ensure that important obligations are fulfilled and opportunities taken. • Company Secretary, producing relevant reports and updates for the Charity Commission and Companies House. • Oversee and produce organisational policies and processes, updating regularly as needed.
• Monitor quality of services, fundraising practice and other areas of the organisation, under the auspices of Charity Law, funders and regulatory bodies, including the Fundraising Regulator. • Review and report on the overall performance of the Charity to the Board and a range of other stakeholders. • Supply all reports required by the Board in the exercise of its legal, financial, governance and other responsibilities, in accordance with Charity Commission regulations and current legislation.
Finance • Working with the Finance Manager to report to the Board and liaise with the F&G committee to report to the Board (actual vs. budget, cash flow, and fundraising results) and generate an Annual Budget. • Manage the overall budgets and resources of the charity. • Ensure the timely preparation of the annual audited accounts and Annual Report, with closely with the F&G committee.
Chief Executive Officer | Brain & Spine Foundation | November 2018
11
Person Specification Experience
Qualities and Attributes
• Significant senior management experience in a senior leadership role in the notfor-profit sector and/or relevant peoplecentred commercial businesses and within organisations of similar size or larger.
• Passion, ambition and conviction to deliver the mission, develop and drive the organisation, increase its impact and reach for people with neurological problems.
• A strong track record of successfully developing and delivering growth through strategic business plans, budgeting, financial management and marketing & awareness programs to achieve the vision and purpose of an organisation. • Working with a Board of Trustees; understanding ways of working across governance and operations. • Proven fundraising or income generation experience, ideally in the areas of corporate giving, trusts and foundations, individual giving and special event management. • Previous experience leading and managing people and demonstrating personal commitment to organisational and staff development, including recruiting and coaching.
• Restless energy and strong integrity. • Willingness to operate strategically and “hands-on” as a leader and contributor. • Leads by example, with the hunger and drive to further develop our vision, purpose and values. • Desire to work in an entrepreneurial and self-sufficient environment. • Confident in ability to identify new opportunities to achieve the objectives and develops these with the Team and Trustees • Pursues all opportunities possible to communicate the mission and success of the Foundation through their own network and extending this network
• A network of relationships coming from previous experience in the private and beyond profit sectors.
12
Chief Executive Officer | Brain & Spine Foundation | November 2018
Skills & Abilities • Entrepreneurial/developmental mind-set. Persuasive and inspiring. • A smart thinker. The ability to see the big picture but deliver at strategic and grass root levels. • Inspirational presentation and communication skills. • The ability to convey complex information cogently to a wide range of audiences. • Excellent interpersonal skills with a powerful and inspiring personal presence and strong influencing skills. Resilient and able to handle uncertainty • Ability to form creative solutions; and to encourage a team to be innovative and dynamic in their approach to their work.
• The ability to be a convincing spokesperson and ambassador for the charity and present the public face of the charity at the highest levels, to a diverse set of stakeholders. • Strong financial acumen and attention to detail. • The ability to develop the charity’s goals with the Team and inspire them to achieve them together. • Ability to generate engagement across the Trustee Group, involve them, instill confidence and develop their contacts to achieve the Foundation’s objectives. • Confidence to engage with corporate leaders, entrepreneurs, public figures and others who can be instrumental in the development of The Brain & Spine Foundation, execution of plans and delivery of results.
Chief Executive Officer | Brain & Spine Foundation | November 2018
13
How To Apply To apply, please forward your CV together with a supporting statement (the statement should be no more than 2 sides of A4). In your statement please provide evidence of your suitability against the criteria in the Person Specification and explain why you want to be The Brain & Spine Foundation’s new CEO. Applications must be made via the Prospectus website: http://prospect-us.co.uk/jobs/details/hq00173836
Recruitment Timetable Deadline for applications: 11 December
Apply Here
Interviews with Prospectus: 03 - 10 January Interviews with B&SF: 24 January Final Interviews with B&SF: 28 January Please let us know if you will require any special provision as a result of any disability should you be called for interview.
14
Chief Executive Officer | Brain & Spine Foundation | November 2018
Should you wish to have an informal discussion about the opportunity, have any queries on any aspect of the appointment process, or need additional information please contact our retained advisors Sara Livesey and James Wilkinson on 0207 691 1920 or email: sara.livesey@prospect-us.co.uk james.wilkinson@prospect-us.co.uk
Chief Executive Officer | Brain & Spine Foundation | November 2018
15
Created by the Prospectus Talent Attraction team. Prospectus Ltd 20-22 Stukeley Street London, WC2B 5LR