Director of Development Appointment Brief October 2018
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Director of Development | October 2018
Introduction from the Chief Executive Dear Candidate, Thank you for your interest in Muscular Dystrophy UK and this exciting new opportunity. Have you ever imagined how much your muscles matter? You use them to walk, talk, to read this pack, to drink, speak, eat. They keep your lungs breathing and your heart beating. Imagine if the things you love were slowly taken away from you – that is the reality for the 70,000 children, adults and their families in the UK today who are living with a muscle-wasting condition. Here at Muscular Dystrophy UK, we know every day counts, and by working together we will transform the landscape for people living with muscle-wasting conditions. There are more than 60 rare and very rare musclewasting conditions. We are here for everyone who needs support today and wants to help develop scientific breakthroughs for tomorrow. Every day we are working to find treatments and cures. I was delighted to join the charity two years ago and I am honoured to be leading it into the future as CEO. We have already made great advances that would have been unthinkable just 10 years ago, and we are determined to go even further and faster. If you have the drive and determination to help us do that, we would be delighted to welcome you into our team. We want everyone who is affected by these conditions to have access to the best treatments, care and support, and by removing barriers in society, to enjoy the best quality of life and the greatest possible independence. We know we can beat muscle-wasting conditions more quickly if we work together, and our new strategy created by over 300 individuals is a testament to that. We brought together individuals, families and carers living daily with these conditions,
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scientists, health professionals, supporters, volunteers and everyone who is close to us across England, Scotland, Northern Ireland and Wales. Your experience will help fund theirs, and our, priorities. For many people a diagnosis will often be the first time they have heard of the condition. Parents talk about the time the clock stopped ticking. Their GP knows little about it and they will be told it limits life, there is no cure and limited or no treatment. We understand the physical and emotional challenges that individuals and families face. We aim to influence the NHS to provide better care, and government for better support and services, to enable everyone with a muscle-wasting condition to live a life as independent and as full as possible. We have invested more than £55m into research since we began. We have increased NHS care advisors to over 60 in the UK and we have a membership of over 700 Trailblazers - young people campaigning on issues that are important to them. By bringing families together to campaign we’ve secured over £6m worth of specialist healthcare and statutory services in the UK. Last year we managed over 45,000 requests for support from our free specialist helpline service. We funded research that laid the foundations for the first potential treatment for Duchenne muscular dystrophy and the scientific breakthrough of the IVF technique that has the potential to prevent mitrochondrial myopathy being passed from mother to child. We are proud of our achievements but we know there is so much more to do. If you would like to join us in making truly life-changing impacts, we look forward to hearing from you. Catherine Woodhead Chief Executive
Director of Development | October 2018
About us Muscular Dystrophy UK (previously known as the Muscular Dystrophy Campaign) is the charity bringing individuals, families and professionals together to beat muscle-wasting conditions. Founded in 1959, we have been leading the fight against muscle-wasting conditions since then. We bring together more than 60 rare and very rare progressive muscle-weakening and wasting conditions, affecting around 70,000 children and adults in the UK. We support high quality research to find effective treatments and cures and won’t stop until we have found them for all muscle-wasting conditions. We are leading the drive to get faster access to emerging treatment for families in the UK.
Muscular dystrophy is a term commonly used to describe over 60 rare genetic conditions, which cause progressive weakening and wasting of muscles, leading to increasing disability.
We ensure everyone has the specialist NHS care and support they need – the right help at the right time, wherever they live.
Being diagnosed with a muscle-wasting condition can be utterly devastating. Eventually, even the tiniest movement can be a struggle for many.
We provide a range of services and resources to help people live as independently as possible.
Most muscle-wasting conditions are inherited, but can strike out of the blue, with no previous history in the family. They are caused by a mutation in a gene, resulting in the weakening and wasting of muscles. Symptoms can appear at any time from birth to later in life.
Have you ever thought about how much your muscles matter? We use muscles every day, almost without realising it. Not just to walk to the shops or to lift something heavy. To speak, to kiss, to laugh. In fact, every swallow, every breath and every beat of our heart is powered by our muscles. Just imagine if all the everyday things that you take for granted were slowly being taken away from you. This is what’s happening to the 70,000 children and adults living with muscle-wasting conditions in the UK today.
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What is muscular dystrophy?
Today, there are no effective treatments or cures for muscle-wasting conditions. Children with Duchenne muscular dystrophy, one of the more common muscle-wasting conditions, will be diagnosed before the age of five and usually in a wheelchair by 12. As the muscles in their heart and lungs weaken, many will need a ventilator to breathe by their late teens. In their early 20s most young people living with this severe form of muscular dystrophy will no longer be able to hold their heads up without support, as they lose the last of their muscle strength. Life expectancy is currently around the late 20s or early 30s, often as a result of heart or respiratory failure.
Director of Development | October 2018
About us Here for more than 50 years
Supporting families
Founded in 1959, our charity has worked hard for the significant improvements we’ve seen in care over the years. We also give families real hope for the future through funding pioneering research.
We are the first port of call for 4,000 people newly diagnosed each year.
Thanks to donations from individual supporters, branch and family fundraising, we’ve been able to invest over £55m in high quality research.
Investing in world-class research Our scientific research has laid the foundations for the first potential treatments for a range of muscle-wasting conditions. There are promising treatments now in clinical trial. This gives very real hope to families, but we need to accelerate progress in research to find effective treatments and cures as quickly as possible.
Getting the right healthcare With our expertise in campaigning and the voices of the individuals and families who support us, we have persuaded the NHS to invest in more than 60 additional specialist healthcare roles to date. These include consultants, care advisors and nurses, physiotherapists and occupational therapists.
Every six minutes we get a call from a family in need and in 2017 we managed over 45,000 requests for help through our care and information service every year.
Promoting independent living We help people living with a muscle-wasting condition to be as independent as possible and provide opportunities for them to meet others in their local area for mutual support. Through our advocacy service, we help hundreds of families to overturn unfair decisions so they can get the benefits, care or equipment they are entitled to.
Trailblazers Our network of more than 700 young disabled campaigners, Trailblazers, fight social injustices that affect their everyday lives. They lead the way to make essential services such as public transport, higher education and leisure activities accessible to all.
Over 30 years we’ve awarded close to 7,000 grants towards the costs of essential equipment such as hoists, powered wheelchairs and adapted computers.
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Director of Development | October 2018
Strategy and ambition
Combining skills, knowledge and resources from across the UK, and working with others around the world, we can improve the quality of life for individuals and families, bringing treatments and cures closer to reality. Our recently developed strategy for 20192022 demonstrates our commitment to transform lives through research, drive change through campaigning and supporting people to live well with their condition remaining at the heart of our work.
These are: Getting effective treatments to people faster. Getting mental health needs associated with muscle wasting conditions better recognised and ensuring people are supported from the point of diagnosis and at every stage thereafter. Pressing for new technology to be affordable and accessible so that people with even the most complex disabilities can benefit from the opportunities they afford. Removing the barriers that prevent people from taking part in sport, leisure and exercise.
In addition to these core areas we will also press for change on the issues that people with muscle-wasting conditions and their families have told us are particularly important to them.
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Director of Development | October 2018
Our financial year in review
We had a successful financial year and ended the year with a planned net deficit of £1,199,000. This year saw our legacy income returning to £1.6 million after several years of exceptional generosity, and the value of our investments fell with the market, but despite this we still increased our level of charitable activity. The planned net deficit for the year is the start of several years’ planned deficits to drive research and fund our significant new projects over the next five years: the MDUK Oxford University Neuromuscular Centre, development of the NorthStar programme and database and a gene therapy clinical trial. This will bring our unrestricted reserves back to the £1.5 million target to maintain the development of our charitable activity in the forthcoming years.
How we raised our money
Where we spent our money
The total income for 2017/18 was £7,159,000. Donations, gifts, grants and fundraising activities totalled £5,127,000, and in addition, we received £1,564,000 from legacies. Investment and other income amounted to £468,000, of which £75,000 was from the Duchenne Forum, £33,000 from the Scottish Office and £50,000 from Action Duchenne. All of these are partnerships to fund research.
The total expenditure for 2017/18 was £6,065,000. Expenditure on charitable activities was £3,775,000 in respect of medical research, £1,184,000 on access to specialist NHS care and support, and £1,106,000 on provision of information, support and opportunities to enable independent living.
Our income
Our expenditure
7%
18%
22% 46%
62%
20% 10% 6%
10%
Other income
Information and support
Legacies
Access to specialist NHS care and support
Trusts
Research
Corporate giving and sponsorship Regular giving and appeals Events and volunteer fundraising
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Director of Development | October 2018
Organisation Structure 2018
Chief Executive
Executive Assistant PT
Director of Finance & Resources PT
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Director of Campaigns, Care & Information
Director of Research & Innovation
Director of Development
Director of Marketing & Comms
Director of Development | October 2018
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Director of Development | October 2018
Database & Direct Marketing Manager PT
Direct Marketing Executive
RDM (Yorkshire & East Midlands)
RDM (Northern Ireland)
RDM (Scotland)
RDM (North East & Yorkshire)
Regional Development Manager (RDM) (North West, North Wales & Isle of Man)
Trust Fundraising Officer
Trusts & Foundations Manager
Head of Trusts
Senior Manager - Regional Development (North)
Database Manager
Individual Giving Manager
Head of Individual Giving & Donor Engagement
Development Team Structure 2018
RDM (Midlands & Anglia)
RDM (South East)
RDM (South West & South Wales)
Senior Events Officer
Special Events Manager
Supporter Services Assistant
Regional Development Executive
Regional Development Executive
Supporter Services Executive
Senior Manager Supporter Care
Corporate Development Executive
Corporate Fundraising Manager
Head of Corporate Development PT
Regional Development Manager (RDM) (London)
Senior Manager - Regional Development (South)
Head of Regional Development
Director of Development
Event Project Manager
Senior Events Officer
Challenge Events Manager
Head of Events & Donor Relations
Donor Relations Manager PT
Job Description JOB TITLE: LOCATION: REPORTING TO: OVERALL BUDGET: DIRECT REPORTS: SALARY:
Director of Development Head Office, London, SE1 Chief Executive Annual active fundraising income of c.£5.3 million plus an additional c.£1.2 million per annum from legacies Key fundraising managers (5) Up to £75,000 per annum
Main purpose of the role To lead and continue to develop and implement Muscular Dystrophy UK’s voluntary income strategy. To direct and co-ordinate voluntary fundraising activity from all sources, including regional, corporate, trusts, individual giving and legacies, building supporter engagement and lifetime value. To lead and manage the charity’s Fundraising team, ensuring collaborative working across the organisation and an integrated approach in the delivery of annual plans and budgets. To contribute as a member of the Directors’ group to strategic development, planning, policy and decision-making for Muscular Dystrophy UK.
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Director of Development | October 2018
Strategic leadership • Play a key role in delivering the charity’s strategic objectives with a focus on reach and engagement with people directly affected by muscle-wasting conditions and with the general public to raise awareness and generate support.
• Lead and ensure team implementation of agreed tactical plans and monitor effectiveness of activities to inform future plans.
• Provide effective leadership and build strong working relationships across the charity to ensure integrated fundraising plans are developed and implemented to achieve maximum impact and return and support both existing and new services.
• Lead and guide the work of Events and Donor Relations Regional Development team (community fundraising UK wide), Individual Giving, Trusts, Corporate and Supporter Services, in delivery of agreed activities to time and to budget.
• Ensure that metrics to evaluate the impact of services and initiatives is understood, valued and adopted across the charity.
• Identify new opportunities to grow both restricted and unrestricted income and to reduce costs and maximise results.
• Play an active role internally and work with senior colleagues to ensure the charity meets the compliance requirements of the regulatory bodies and provide advice as necessary to the Board of Trustees to enable them to fulfil their responsibilities.
• Lead external relations with key supporters and manage the charity’s Appeals Board in their major gift fundraising work, supported by the Donor Relations Manager.
Departmental leadership • Provide effective leadership for all members of the Development Directorate team and to cross-charity project teams, at all times acting as an inspiring role model. • Lead and inspire members of the Development Directorate to perform consistently at a high level. • Provide direct line management, coaching and support to key staff; setting and monitoring individual performance objectives. • Ensure all fundraising staff receive consistent and motivating direction and feedback to enable them to work to their full productivity and potential.
• Analyse fundraising trends within the sector and results/ ROI within the charity. • Take prompt remedial action where necessary to address a shortfall in income or an overspend relating to fundraising and marketing activities.
Cross-department responsibilities • Work closely with the Director of Marketing and Communications to ensure an integrated approach across fundraising and marketing and high quality donor care. • Work with the Director of Marketing and Communications to ensure the implementation of key charity messages and brand consistency across all fundraising communications.
• Prioritise and plan teams’ workloads to meet objectives.
• Work with the Director of Finance to devise integrated budgets, presentations and financial reporting to Directors and Trustees (and Committees).
• Develop and lead all aspects of the work of the Development Directorate including budgetary and HR management.
• Work with the Director of Research, and Director of Care, Campaigns and Support to empower staff to deliver impactful fundraising proposals and reports.
• Provide strategic input and momentum on behalf of the Development Directorate to cross-charity projects.
• Provide effective leadership on all fundraising matters in the Directors’ group, with Trustees and their Committees, and across the charity.
Income Generation • Set long term voluntary income generation strategy and manage fundraising annual objectives. • Develop integrated fundraising plans and budgets across a range of income streams, setting targets and objectives to ensure net income growth and engagement with key supporters. • Work to maximise opportunities for donor development and increase current and longer-term income.
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• Deploy and allocate resources across the Development Directorate to ensure the best return on investment possible.
• Play an active part in the Directors’ group and in the development of the charity as a whole. • Work with Directors and Trustees (and Board Committees) to drive voluntary income generation. • Represent the charity in external meetings, events or conferences. • Deputise for the Chief Executive externally as and when agreed.
Director of Development | October 2018
Person specification E = Essential D = Desirable Education
Knowledge & Skills
• A-levels or equivalent - E
• Proficiency with strategy, budgeting and planning - E
• Degree or equivalent - D
• Excellent written and verbal communication skills - E
• Member of the Institute of Fundraising - D
Experience
• Ability to express fundraising ideas clearly and persuasively both in writing and in person - E
• Significant experience in a senior fundraising management position - E
• In-depth understanding of charity fundraising environment - E
• Demonstrable track record of net income growth and strong budget management - E
• Understanding of corporate, trusts, events and major gift fundraising - E
• Experience of a broad range of fundraising - E
• Ability to evaluate and manage output from external agencies - E
• Experience of growing income from community/ regional sources - E • Significant experience of working within a charity or not for profit organisation - E
• Experience of working with and managing a donor/ supporter database (Raiser’s Edge) - D
• Experience of successful management, development and motivation of effective teams - E • Direct line management experience (including those who manage others) - E
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Director of Development | October 2018
Person specification E = Essential D = Desirable Personal qualities • Takes a longer-term, strategic perspective (yet clearly focused on agreed annual plans); a lateral thinker, solution orientated - E • Decisive and a self starter dedicated to results - E • Entrepreneurial attitude to business growth, persuasive in negotiation- E • Realistic in setting planning and budgeting targets - E • Exemplary relationship-management skills; diplomatic and sensitive to supporters - E • Creative in developing new initiatives and problem solving - E • Positive attitude to work; personable and inspiring - E • An effective leader; able to remain calm under pressure and prioritise a busy workload - E • Strong commitment to staff development and involvement - E • Understanding of the impact of disability on individuals and families or a willingness to develop this understanding - E
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Director of Development | October 2018
Benefits Many of our staff say one of the biggest benefits of working for Muscular Dystrophy UK is knowing that the hours you spend at work make a real difference to people’s lives. We are committed to ensuring a positive working culture for all our staff team, as well as helping them to have a good worklife balance. Here are some of the other benefits of working for Muscular Dystrophy UK:
Annual Leave We offer 25 days per annum annual leave for full time staff plus recognised bank and public holidays. This increases by a day each year after 5 years’ service up to a maximum of 30 days. For some identified roles we operate a time off in lieu (TOIL) arrangement whereby staff who have worked additional hours for an agreed reason have an opportunity to take compensatory time off in the interests of their health and well-being.
Pension We contribute up to 5% of basic salary into a group personal pension plan. Contributions are matched on a 2 to 1 basis. For example, if you pay 2% of your salary, we will pay 4%.
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Life Assurance All employees aged between 16 and 70 are entitled to death in service benefit, from the first day of employment.
Interest Free Season Ticket Loan We offer an interest free loan for annual season tickets for travel to work within London.
The Cycle Scheme The Cycle Scheme takes advantage of the Government’s Green Transport Plan. It promotes cycling as a more attractive way of commuting to work by enabling employees to benefit from tax incentives.
Childcare Vouchers We offer Childcare Vouchers currently provided by Edenred. By taking part of your salary in Childcare Vouchers to pay for childcare you can save in tax and NI.
HSF Assist Access to join an individual health cash plan.
Employee Assistance Programme
British School of Osteopathy
We offer a free, 24 hour confidential counselling and information service available to all staff. This is provided by HSF Assist.
We have a community partnership with the BSO offering reduced prices for local osteopath appointments.
Director of Development | October 2018
How to apply To apply for this position, please upload a comprehensive CV and a supporting statement of no more than two pages of A4 on our website. Please ensure that your application fully addresses the appointment criteria in the person specification.
Timetable
We ask that you complete the equal opportunities information online when you submit your application via our website. The information collected will be treated as confidential, used for statistical purposes only, and will not be treated as part of your application.
Site visits to Muscular Dystrophy UK’s offices: 11th December
We would also be grateful if you could let us know if you will require any special provision as a result of any disability should you be called for interview.
These dates may be subject to change and applicants will be advised in advance should this happen.
Finally, please ensure that you have included mobile, work and home telephone numbers, as well as any dates when you will not be available or might have difficulty with the indicative timetable.
Should you decide to make a formal application, you will receive feedback within seven working days of the closing date. Shortlisted candidates may be required to undertake an additional assessment prior to the final interview. The successful appointment is subject to a satisfactory criminal records disclosure and written references.
Applications should be made via the Prospectus website at: http://www.prospect-us.co.uk/executive/job/HQ00163777
Closing date: Monday 12th November
Initial interviews with Prospectus: 19th-23rd November
Panel interviews at Muscular Dystrophy UK’s offices: 13th or 14th December
Recruitment Process
Queries If you have any queries on any aspect of the appointment process, need additional information or would like to have an informal discussion, please contact Anna Gardet or Eva Farina on 020 7691 1920 or via email at: anna.gardet@prospect-us.co.uk eva.farina@prospect-us.co.uk
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Director of Development | October 2018
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