June 2023 Special Needs Living Akron/Canton

MISS IZZY SNOW

PHOTO BY MICHELLE HERDLICK

OUR NEW ICF FEATURES:

· All female residents, ages 18 & up

· 6 individual rooms

· Located in a residential neighborhood within walking distance to parks, shopping, and church

· Large ADA bathrooms

· Washer and dryer on main level for independence

· Van on-site for transportation

· 24-hour nursing available, with staff trained in DD-specific, person-centered planning

WHAT IS AN INTERMEDIATE CARE FACILITY (ICF)?

GentleBrook offers seven locations in Hartville and West Lafayette. Adult residents living in our ICFs receive these benefits:

· 24-hour supervision and on-site nursing care

· Active treatment

· Therapeutic services

· Life skills mentoring & support

· Social & recreational activities

· Transportation to & from work and activities

· Respite services

Contact us! We’re committed to being a helpful resource for individuals and families who want more information about the advantages of an Intermediate Care Facility.

JUNE ISSUE PREVIEW

(12) Important Community Connections

(16) Nonprofit Spotlight > Make’m Smile

(18) Meet The Magazine Team

(19) Meet Our Contributors

(20) Just. Saying. Thank You.

(22) >>> Izzy Snow <<<

(26) The Power of One > Andrea Legg

(29) Save The Date > Cosmic Bowling

(33) Autism Perspective > Kristine Turko

(36) >>> Joey Towell & Family <<<

(40) Sponsor Spotlight > Premier Approach

(44) Community Impact > Q&A with Brittney Ecenbarger

(46) >>> Matt Sopher <<<

(50) >>> Bob Hale <<<

(57) Mental Health Perspective >

Lisa Schaefer

(60) Hudson High School’s Sweet Sensations Cafe

(64) Community Event > Resource Fair

(70) Last Look

Advertising Inquiries

Rick Miller

330-283-8462

rick.miller@n2co.com

Scan

Facebook (@snl.cak)

Instagram (special_needs_cak)

www.TheSpecialNeedsLiving.com

This section is here to give our readers easier access when searching for a trusted neighborhood partner to use. Get to know the businesses that make this magazine possible. Please support them in return and thank them if you get the chance!

ABA SERVICES

Applied Behavioral Connections

Kristen Maple (330) 309-3133

info@appliedbehavioralconnections.com

ACCESSIBILITY & SAFETY MODIFICATIONS

JTEK Solutions Group, LLC

Jared Chevraux (330) 323-0943

www.jtekgroup.com

ACT PREP & TUTORING

Bright Minds Learning Academy

Sheila Lahoti 4900 Frank Rd. NW, North Canton, OH 44720 (330) 966-7226

www.brightmindsla.us

ADULT DAY SUPPORT

Next to Kin Supportive Services , LLC (330) 288-8450

www.nexttokinservices.com

Premier Approach, LLC

Christian Manns (330) 312-6909

www.facebook.com/PremierApproachLLC

ADULT VOCATIONAL SERVICES

CLW (330) 546-0057

www.theclw.com

ALL ABOUT LOCAL BeLOCAL - Stark County (330) 283-8462

bit.ly/3DpSwPd

ANIMAL FENCE/TRAINING

DogWatch of Northeast Ohio

Donnie Myers

(330) 915-6036

www.dogwatchneo.com

ART STUDIO

BZTAT Studios, LLC

(330) 371-3150

www.bztatstudios.com

AUTISM SUPPORT

Autism Society of Greater Akron (330) 940-1441

www.autismakron.org

BOOKKEEPING/ACCOUNTING

Paragon Accounting and Business Services, Inc. (330) 575-2291

www.paragonabs.com

CHURCH

First Christian Church (330) 456-2600

www.firstchristian.com

The Chapel Green

Amy Troyer (330) 315-5501

www.facebook.com/greenspecialneeds

CLEANING

Elbow Grease Cleaning Solutions (234) 999-1412

www.elbowgreaseclean1.com

COFFEE SHOP

Whole Latte Love Cafe (234) 360-2233

www.wholelattelovecafe.org

COMMUNITY CARE SERVICES

Bala Management, LLC (330) 758-8418

www.balamgnt.com

COMMUNITY OUTINGS & VACATIONS

The Wow Crowd (330) 445-4482

www.thewowcrowd.com

COUNTY DISABILITIES BOARD

Stark Board of Developmental Disabilities

Lisa Parramore (330) 479-3934

www.starkdd.org

Summit DD (330) 634-8877

www.summitdd.org

DEVELOPMENTAL DISABILITY CARE

Easterseals Northern Ohio

Conor McGarvey (234) 417-0250

www.easterseals.com/noh

The Workshops, Inc

Rachel Doty (330) 497-3399

www.choosetwi.com

DISABILITY RESOURCES

REM Ohio, Inc

Jo Spargo (330) 644-9730

www.rem-oh.com

EDUCATION SERVICES

Jason’s Place

Melissa Hadnett (234) 714-9815 Facebook

Red Line Advocacy (234) 678-9622

www.redlineadvocacy.com

EMPLOYMENT/STAFFING

Express Employment Professionals (330) 239-8709

www.expresspros.com/cantonoh

ENTERTAINMENT AND FOOD

Stark Flavor (330) 704-1227

www.StarkFlavor.com

EQUESTRIAN CENTER

Pegasus Farm

Shelley Sprang (330) 935-2300

www.pegasusfarm.org

FINANCIAL PLANNING

Skylight Financial Group

Kathryn Bryan (216) 592-7319

www.skylightfinancialgroup.com

Travis DeZordo, Modern Woodmen Of America (330) 704-6211

www.reps.modernwoodmen.org/tdezordo

FRESH MEAT & SEAFOOD

Fat Daddy Meats (330) 904-0288

www.fatdaddymeats.com

FURNITURE - AMISH

Dutch Craft Furniture (330) 893-4041

www.dutchcraftfurniture.com

HARDSCAPES/ LANDSCAPES

Campbell Landscaping (330) 933-9091

www.campbelllandscaping.com

HEALTHY MEAL PLANNING/DELIVERY

Compassion Delivered (330) 575-0996

www.compassiondelivered.org

HOME CARE SERVICES

SafeInHome - Ohio (740) 207-5800

www.safeinhome.com

HOUSE OF WORSHIP

Harvestime Temple (330) 877-6544

www.harvestimeonline.org

HVAC

Henry Heating Cooling & Plumbing (330) 364-5571

www.henryheating.com

INDEPENDENT PRIVATE SCHOOL

Wings of Change Therapy Inc

Michael Asente (234) 334-0044

www.wingsofchangetherapyinc.com

INSURANCE AGENT

American Family - Richard Corns Haley Seifert (234) 714-2300

INTERIOR DESIGN

A & J Arrangements and Design LLC (440) 668-6388

ITALIAN ICE/CATERING

Kona Ice of Central Canton (330) 398-0120

www.kona-ice.com/local-site/ kona-ice-of-central-canton

JOB PLACEMENT SERVICES

Creative Rehab (330) 806-0497

www.creativerehab.info

Independent Employment Services

Malcolm Porter (330) 388-5778

www.independentemploy.com

MENTAL HEALTH SERVICES

Carve Your Own Path, Inc. (330) 426-7885

www.carvemypath.org

NON EMERGENCY TRANSPORTATION

Your Guardian Angels (234) 571-0975

www.ygatransportation.com

NON-PROFIT GentleBrook

Francie Kell (330) 877-7700

www.gentlebrook.org

Teammates Center (234) 571-5876

www.teammatescenter.org

NON-PROFIT ORGANIZATION

GiGi’s Playhouse Canton

Megan Vance (330) 493-9114

www.gigisplayhouse.org/canton

The Down Syndrome Association of Northeast Ohio (216) 447-8763

www.dsaneo.org

PLUMBING

Henry Heating Cooling & Plumbing (330) 364-5571

www.henryheating.com

PODCAST

Special Needs Ohio Podcast

Rob Gorski (234) 817-5851

www.theautismdad.com

PONDS, FOUNTAINS, AND WATER FEATURES

Pond Wiser Inc (330) 833-3764

www.pondwiser.com

POOL WATER DELIVERY

Strouble Water Hauling (330) 877-6795

www.stroubletrucking.com

PRIVATE SCHOOL

The Golden Key Center for Exceptional Children

Gina Bannevich (330) 493-4400

www.goldenkeyschool.com

REALTOR®

eXp Realty : The Amy Wengerd Group

Amy Wengerd (330) 681-6090

www.amysguarantee.com

RESTORATION & CLEANING

Brahlers Cleaning & Restoration

Stacy Ignacio (330) 834-0008

www.brahlerscrr.com

SCHOOLS - PRIVATE SCHOOLS

Julie Billiart Schools (216) 691-8916

www.juliebilliartschools.org

SHARED LIVING

The Wow Crowd (330) 445-4482

www.thewowcrowd.com

SUMMER CAMP

FCA All Abilities Camp (817) 944-0499

www.neohiofca.org

SUPPORT GROUP Sharing Solutions

www.sharingsolutions.info

TRANSPORTATION PROVIDER

Clearview Developmental Services

Dean Miller (330) 224-4403 Facebook

ZOO Akron Zoo (330) 375-2550

www.akronzoo.org

DISCLAIMER: This publication is owned by The N2 Company and is not affiliated with or sponsored by any club, developer, or homeowners association. Articles and advertisements in this publication and opinions expressed therein do not necessarily reflect the views of N2 but remain solely those of the author(s) or advertiser(s). The paid advertisements contained within this magazine are not endorsed or recommended by N2.

Delivering

Neighborhood Connections © 2023 The N2 Company, Inc.

TEAMMATES CENTER LLC

Daily Focus'

Monday- Money & ME (Self advocacy)

Tuesday- Talking & Technology Skills

Wednesday- What's Happening & Workout Skils

Thursday- Cooking (tasty) & Safety Skills

Friday- Funday Activities

Non-Medical-Transport (NMT)

Teammates Center offers Transportation for individuals in many cities who attend Teammates.

Soft Skills

Teammates Center helps individuals focus on job skills by doing mock interviews, practice job applications, community based volunteer sites, to help improve the skills of your teammate to increase their chances of getting a job of their choice.

Adult Day Services (ADS)

Teammates Center Provides Adult Day Services for your Teammate improve their independence.

Funday Friday

Teammates Center offers activities to bowling alleys, putt putt courses, the zoo, pumpkin patches, art museums, swimming pools, and many other activities chose by individuals who attend Teammates Center.

Vocational Habilitation (VOC-HAB)

Teammates Center Provides Vocational Habilitation Services for your Teammate to better their job skills

Volunteer Job Activities

Teammates Center has many non-paid volunteer job opportunities for individuals who attend Teammates. The VOC-HAB program focus' on individuals who are close to getting jobs and helps improve their skill set by volunteering at sites for an extended period of time to help improve their work stamina.

Teammates Center

323 S Main St, Munroe Falls, Suite 1 Ohio 44262 (234) 571-5876 • http://Teammatescenter.org

VOC-HAB Recorded Data

Teammates Center keeps records/data of each individual to track the improvement in areas such as quality of work, stamina, communication. We individualize our support to meet the need of the person served. Our goal is to increase the independence of the people coming to Teammates so they can gain competitive employment.

Volunteer Activities

See Continuing Ed. Activities Section of website for more information.

MUST KNOW

COMMUNITY RESOURCES & CONNECTIONS

Need to know who to connect with to ask a question? This is where you find out who you need to know!

AKRON BLIND CENTER

Phone: 330-253-2555

Website: www.akronblindcenter.org

The Akron Blind Center Inc. is a membership-based nonprofit organization incorporated in 1948 to serve the blind and lowvision communities. They also provide resources, programs, services and classes for Summit and surrounding counties.

AKRON CHILDREN’S HOSPITAL

Phone: 330-543-1000

Website: www.akronchildrens.org

Akron Children’s Hospital has been caring for children since 1890, and its pediatric specialties are ranked among the nation’s best by U.S. News & World Report. With two hospital campuses, four health centers, and 50+ primary and specialty care locations throughout Ohio, they’re making it easier for today’s busy families to find the high-quality care they need.

ARC OF OHIO

Phone: 234-571-5689

Website: www.thearcofohio.org

The Arc promotes and protects the human rights of people with intellectual and developmental disabilities and actively supports their full inclusion and participation in the community throughout their lifetimes.

AUTISM SOCIETY OF GREATER AKRON

Phone: 330-940-1441

Website: www.autismakron.org

The Autism Society is the nation’s oldest and largest grassroots autism organization committed to improving the lives of those affected by autism. The Greater Akron affiliate was founded in 1987 by parent volunteers of children with autism.

BUREAU OF SERVICES FOR THE VISUALLY IMPAIRED (BSVI)

Website: www.ood.ohio.gov/individuals-with-disabilities/ services/services-for-the-visually-impaired

MEDINA, PORTAGE, AND SUMMIT COUNTIES

Phone: 330-643-3080

CARROLL AND STARK COUNTIES

Phone: 330-438-0500

BSVI assists eligible people, beginning at age 14, with low vision and blindness by providing direct, personalized

services to assist them in finding and retaining meaningful work and personal independence. Basic services include personal and work adjustment training, vocational training, mental and physical restoration, and placement assistance.

CALL 211

Phone: 211

Website: www.211.org

Serving four counties and covering 1.5 million people in Ohio, the United Way 2-1-1 Help Center provides free and confidential 24-hour access to a compassionate professional who will review your options for help, develop a plan and act as your advocate if you are faced with barriers to service. Simply dial 2-1-1 or chat with us for assistance. Se habla Espanol.

COMPASSION DELIVERED

Phone: 330-575-0996

Website: www.compassiondelivered.org

Compassion Delivered provides medically tailored nutritional meals to people coping with chronic, lifethreatening illnesses and diseases.

DOWN SYNDROME ASSOCIATION OF NORTHEAST OHIO

Phone: 216-447-8763

Website: www.dsaneo.org

The Down Syndrome Association of Northeast Ohio is a nonprofit that provides support, education, advocacy, and resources for individuals with Down syndrome, their families and the community.

GREENLEAF FAMILY CENTER (DEAF AND HARD OF HEARING SERVICES)

Phone: 330-376-9494

Website: www.greenleafctr.org

Greenleaf is a nonprofit organization that strengthens families in our community through counseling, education and support. By offering a variety of programs and services, we are here to help families with the many challenges of daily living and personal crises.

HELP ME GROW

Phone: 330-492-8136

Website: https://odh.ohio.gov/know-our-programs/ help-me-grow/help-me-grow

Help Me Grow is Ohio’s evidence-based parent support program that encourages early prenatal and well-baby care, as well as parenting education to promote the comprehensive health and development of children. Help Me Grow System includes Central Intake, Help Me Grow Home Visiting, and Help Me Grow Early Intervention.

OHIO’S PARENT MENTOR PROJECT

Phone: 844-382-5452

Website: www.parentmentor.osu.edu

It is the mission of the Ohio Parent Mentors to provide the necessary support and resources to families of children with disabilities and the professionals that serve them by connecting families, schools, and the community to the benefit of students with disabilities.

OHIO COALITION FOR THE EDUCATION OF CHILDREN WITH DISABILITIES

Phone: 844-382-5452

Website: www.ocecd.org

The OCECD is a statewide nonprofit organization that serves families of infants, toddlers, children, and youth with disabilities in Ohio, educators, and agencies who provide services to them.

OHIO DEPARTMENT OF MEDICAID

Phone: 800-324-8680

Website: www.medicaid.ohio.gov

The ODM provides health care coverage to more than three million Ohioans through a network of more than 165,000 providers. Learn more about Ohio’s largest state agency and the ways in which they continue to improve wellness and health outcomes for the individuals and families served at our website.

OHIO DEPT OF JOB AND FAMILY SERVICES

Phone: 800-720-9616

Website: www.jfs.ohio.gov

The Ohio Department of Job and Family Services (ODJFS) is responsible for managing many vital programs that directly affect the lives of Ohioans.

OHIO DEVELOPMENTAL DISABILITIES

PLANNING COUNCIL

Website: www.ddc.ohio.gov

Phone: 800-766-7426

The Ohio Developmental Disabilities Council is a planning and advocacy body committed to community inclusion for people with developmental disabilities. It is the mission of the ODDC to create change that improves independence, productivity, and inclusion for people with developmental disabilities and their families in community life.

OPPORTUNITIES FOR OHIOANS WITH DISABILITIES

Phone: 800-282-4536

Website: www.ood.ohio.gov

This state agency works to empower Ohioans with disabilities through employment, disability determinations, and independence. Amoung the many services provided, OOD is responsible for establishing and maintaining partnerships with employers.

PEOPLE FIRST OF OHIO

Website: www.peoplefirstohio.org

People First of Ohio is a statewide organization that works with state legislators and builds relationships with other advocacy groups and state agencies. These relationships promote better interaction among people who make decisions in the communities and the state.

PHILOMATHEON SOCIETY

Phone: 330-453-9157

OF THE BLIND

Website: www.philomatheon.com

This organization is a gathering of blind and visually impaired people, along with sighted family and friends, with a mission and goal to help the blind and visually impaired in the community to help themselves to remain or to become able to live independently and an active member of their community.

PORTAGE COUNTY BOARD OF DEVELOPMENTAL DISABILITIES

Phone: (330) 297-6209

Website: www.portagedd.org

The Portage County Board of Developmental Disabilities exists to connect individuals and families with the services they need for health, safety, education and a high quality of life.

RED TREEHOUSE — RONALD MCDONALD FAMILY

Website: www.redtreehouse.org

Supporting the well-being of families and children with challenges, disabilities, and health care needs. Finding tools, organizations, and events in the community to meet the needs of families.

SHARING SOLUTIONS

Phone: 330-546-2001

Website: www.sharingsolutions.info

A community of parents/guardians of individuals from transition to adult age with Intellectual and Developmental Disabilities, professionals who serve the IDD community, caregivers, and policymakers. The focus is to provide information, support, and assistance to all. Everyone is encouraged to play an active role in sharing their resources, knowledge, and experiences.

SOCIAL SECURITY

SOCIAL SECURITY ADMINISTRATION — CANTON

Phone: 877-255-1509

Website: www.secure.ssa.gov

The Social Security Administration assigns Social Security numbers and administers the Social Security retirement, survivors, and disability insurance programs. They also administer the Supplemental Security Income program for the aged, blind and disabled.

STARK COUNTY BOARD OF DD

Phone: 330-477-5200

Website: www.starkdd.org

Stark DD connects individuals and families with the services persons with developmental disabilities need for health, safety, education and quality of life.

SUMMIT COUNTY DEVELOPMENTAL DISABILITIES BOARD

Phone: 330-634-8000

Website: www.summitdd.org

Summit DD offers early intervention programs for infants and toddlers with developmental delays, as well as transition services for students with developmental disabilities to vocational, habilitation and retirement programs for adults.

TRIAD DEAF SERVICES

Phone: 330-768-7272

Website: www.triadds.org

TRIAD Deaf Services Inc is an agency providing services to the deaf community in Stark, Carroll, and Tuscarawas Counties. They provide support services, interpreting, leadership, deaf advocacy and education.

Have a suggestion for an important connection that could be added to this page? Email your suggestion to rick.miller@n2co.com.

Don’t Miss the Nathaniel’s Hope Make’m Smile Event!

Saturday, July 8th at Hartville Memorial Park from 11am to 3pm

WRITTEN BY SARAH SMITH PHOTOS BY MICHELLE HERDLICK

The Make’m Smile Ohio event celebrates people with Value and Incredible Purpose - those with special needs, whether cognitive, physical, or emotional. The VIPs have fun and are able to be themselves in a safe and understanding environment. Parents and caregivers receive information from the many resource vendors who attend. This year’s day of fun and food for the whole family will be Saturday, July 8. Best of all, it’s free!

The fifth annual Nathaniel’s Hope Make’m Smile Ohio party will be held at Hartville Memorial Park from 11am to 3pm. VIPs of all ages and their families are invited to celebrate. Families that attend can expect entertainment all day long. 95.5 The Fish radio station will broadcast live at the park and will have a prize wheel for everyone to spin. Thanks to generous donations, all attendees

and vendors will receive a picnic style lunch and snacks. All vendors will have a free game or giveaway for the VIPs. In addition, there will be a bounce house, dunk tank, yard games, and many other fun activities.

This event was started in Orlando, Florida, by Tim and Marie Kuck. Their son, Nathaniel, relocated to heaven at the age of four. He never walked or ate with his mouth.

Make’m Smile launched in 2002 and has grown exponentially since. This party, celebrating those with special needs, has spread from Florida to Ohio to California.

“My hopes and dreams are that this celebration day will grow and be positively impactful to not only the VIPs, but to any parent or caregiver who is struggling to gather information, who needs a support group, or who needs to express their fears and concerns over raising a special needs child,” said Lena Hartman, Make’m Smile team member. “This is something I wish was available to me when raising my daughter. Tanya was diagnosed with Pervasive Developmental Disorder, specifically Autism. While I loved Tanya very much, I had no idea how to help her. She was seen as different and people didn’t know how to act around her, so they avoided her. We were never invited out with other families for fear Tanya would be disruptive and she didn’t understand she didn’t have friends like her brothers. Now I’m part of a large community of parents and caregivers who I can help and who also help me. This event brings everyone together in a positive, helpful setting.”

Resource vendors include Gigi’s Playhouse, Pegasus Farm, the Shriners, Canine Companions, and others. Lena shared how rewarding feedback from the event has been. “I love the testimonials of thanks and hearing how some of the vendors helped families,” she said. “I’ve heard people say, ‘I didn’t know that was available to me’ and another mom said, ‘My child smiled for the first time today!’”

Make’m Smile Ohio has five core team members and is always looking for more volunteers to serve the more than 200 people who attend the event. Those wishing to participate can be a buddy, a resource exhibitor, a sponsor, or a smile-maker.

Harvestime Apostolic Temple hosts Make’m Smile Ohio. The church has a special needs program where anyone with any disability is loved and included.

“We understand there’s no ‘perfect person’,” Lena explained. “We are all flawed and shine in different ways. If we exclude anyone for any type of disability, whether mental, emotional, or physical, then we are not complete. Just like in a puzzle, each shape is unique; leave one piece out, and the whole is not complete.”

Nathaniel’s Hope

MEET THE MAGAZINE TEAM

SHELLEY HARKNESS Scheduling Assistant

SARAH SMITH Writer

RICK MILLER Owner

REGINA BELL Client Manager

MIKE STURDIVANT Content Director

MICHELLE HERDLICK Photographer

MELISSA KLATT Writer

JULIAN CURET Photographer

DEBORAH RILEY Writer

DAVE KELLER Client Services

CALISTA FOUTS Social media Ambassador

ANDREA HURR Writer

JOE ALBERT

J. Albert Studios

Joe Albert is an expert photographer with a studio located in the heart of Downtown Canton. He has mastered the art of seeing the world through a photographer’s eye, which, as he states, means “to look for the beauty in everything.” Joe has loved getting to know his clients over the years and takes pride in having those same individuals continue to come to him for the most memorable milestones in their lives, their senior portraits, engagement photos, their wedding and ultimately their children and family pictures. Joe loves nothing more than a good whiskey and cigar and never leaves home without his camera!

LISA SCHAEFER

Carve My Path

Lisa R. Schaefer is a licensed clinical social worker. Lisa graduated with her Master of Science in Social Administration as well as holding a Master of Science in Forensic Psychology. Lisa has extensive experience in the treatment of mental health and substance use disorders. Lisa has a passion for teaching clients how to create a healthy alliance between mind and body which enables clients to manage stress, heal trauma, and create a functional lifestyle. Lisa works to provide holistic and trauma informed care utilizing evidence-based practices to promote healing on all levels.

KRISTINE TURKO

Mount Union

Dr. Turko is a professor of psychology and the director/founder of the Spectrum Education Center at the University of Mount Union. Kristine is a Board Certified Behavior Analyst and is licensed to practice in the state of Ohio. She joined the faculty at Mount Union in 2006, after earning MS and PhD degrees in Psychology at Lehigh University, and a BS degree in Psychology at Drexel University. Kristine’s work at the Spectrum Education Center includes autism intervention, undergraduate training in the field of autism, professional development, and supporting area school districts. Her research interests include: best practices for autism intervention in adult populations and effective autism intervention training and education for undergraduate students. Kristine lives in Canton with her husband and daughter. She enjoys being outdoors and cooking.

BRITTNEY ECENBARGER

Starlight School

Brittney Ecenbarger is a classroom assistant at Starlight School. In her position, she assists with classrooms ranging from preschool, kindergarten2nd grade, and 4-6th grades. Brittney is also the Volunteer Representative for ASPIES in Stark and Tuscarawas Counties. In addition to these two roles, Brittney serves on the Family Leadership Committee for Stark County, where this year she recently accepted the role of co-chairperson.

ANDREA LEGG

North Canton Library

Andrea Legg is the Director of the North Canton Public Library in Stark County, OH. She feels honored to have worked in public libraries since 2007 and still feels a rush of excitement when she’s able to connect a reader with the perfect book. She is proud to serve as a board member of the Tuscarawas County Board of Developmental Disabilities, Power of the Pen, and the Northeast Ohio Regional Library System. She also serves as a volunteer parent mentor in the NICU at Akron Children’s Hospital.

MEET OUR CONTRIBUTORS

JUST. SAYING. THANK YOU.

ANDY CAMPBELL

www.campbelllandscaping.com andy@campbelllandscaping.com

(Supports: Carve Your Own Path)

DEAN MILLER

www.facebook.com/ clearviewdsi

clearviewdsi@gmail.com

(Supports: Sharing Solutions)

These local businesses are supporting our community in a big way!

GLENNA WILSON

www.charishomes.com gwilson@charishomes.com

(Supports: Whole Latte Love Cafe)

BRANDI PINE

www.expresspros.com/ cantonoh brandi.pine@expresspros.com

(Supports: First Christian Church)

MIKE STURDIVANT www.StarkFlavor.com info@starkflavor.com

(Supports: Whole Latte Love Cafe)

BETH STROUBLE www.stroubletrucking.com Stroubletrucking@yahoo.com

(Supports: GiGi’s Playhouse)

MONICA RANKIN

www.paragonabs.com monica@paragonabs.com

(Supports: GiGi’s Playhouse)

AKRON & CANTON SPECIAL NEEDS LIVING

The businesses shown on this page are those committing financial support to local community resources that couldn’t afford to advertise in Akron & Canton Special Needs Living magazine on their own.

Feel free to repay the generosity these local business owners are showing by giving them a Like and Follow on Social Media, a Review on Google or Facebook or if you have a need that can be met by one of these businesses, give them a call. I’m sure they will be thrilled to serve you!

Allow us to formally introduce you to

MISS IZZY SNOW

BY MELISSA KLATT PHOTOS BY MICHELLE HERDLICK

If you’ve ever wanted to witness a rare occurrence, you will find that in Miss Izzy Snow, an almost twoyear-old girl from Jackson Township born with a unique disorder. She was born in July 2021 to her parents, Summerly and Sterling, and she’s got quite the story and a loving family to help support her through the winding roads they’ve navigated so far.

SIXTH SENSE KICKS IN AT THE HOSPITAL

After the birth of their daughter, Summerly immediately felt something was off and asked the nurse why Izzy was trembling so much, to which she answered that it was her immature nervous system figuring itself out. That seemed to make sense, so they were discharged and sent home.

In the days following discharge, Summerly and Sterling noticed the trembling was getting worse – to the point where it became full-on seizures. Izzy was immediately admitted to the Akron Children’s Neurology unit for eighteen days where lots of testing was done.

“She was a big question mark for a while,” reflects mom, Summerly. “No one was certain what was going on. It wasn’t just seizures anymore; It was low calcium, low parathyroid hormone, high phosphorus, T-cell deficiency, a cardiac anomaly, feeding intolerance, reflux, and breathing difficulties, ultimately leading to a Code Blue at one point: the scariest moment of our lives.”

Nothing was adding up until they brought in a geneticist…then, it finally clicked after receiving the results of the chromosomal

microarray blood test. Izzy was finally able to leave the hospital with a diagnosis: 22q11.2 deletion syndrome, a rare genetic disorder caused by a tiny missing piece of chromosome 22. This very small defect can affect every system in the human body!

ALMOST TWO YEARS OLD WITH THE ULTIMATE DREAM TEAM

At this point in time, Izzy has a caring team of ten specialists, though the number ebbs and flows. They all adore her and do their best to care for her as she has severe doctor & hospital anxiety, likely from the ongoing blood draws.

“It’s very hard to soothe Izzy at appointments, but thankfully we have a wonderful care team who loves and understands her so they try their best to get her in and out as quick as

possible,” says Summerly

Izzy’s got more than a wonderful medical team: she’s got a family that loves her so much, they started a foundation in her honor! Parents, Summerly and Sterling (with support from older brothers, Kam and Eli), started my22qt to help other parents navigate the waters of their child’s diagnosis so they could be more educated and prepared.

EXCITING NEW CHAPTER

Izzy’s birthday month is being celebrated in a big way – for her and others

“Our mission from the beginning has always been to educate and raise awareness, help families cope and find understanding, and pay it forward to the genetics division of Akron Children’s Hospital because without them, who knows where we’d be today. In that spirit, we will be hosting our first annual 2.2 for 22q Awareness Walk this July! Her Fight is Our Fightwe invite you ALL to join us!” Visit online to sign up here: https://runsignup. com/Race/OH/Massillon/

In September of 2021, Izzy’s dad and I were driving to one of her outpatient appointments and through casual conversation, we just flat out said, “This sucks.” With that, we decided we didn’t want people to have to go through what we did or have to feel the way we do. We know we can’t change anyone’s pain or stop it, but we wanted to help. In that moment, we decided to start a blog. That blog quickly evolved into a website and now it’s our very own foundation - my22qt.”

—SUMMERLY ROWLANDS

THE POWER OF ONE

often is it used?”

BY ANDREA LEGG, DIRECTOR – NORTH CANTON PUBLIC LIBRARY

It’s a question I receive all the time, usually when I’m at a conference or event that gives me the opportunity to talk about the equipment that the North Canton Public Library has added to our facility to make it more accessible to more members of our Stark County community.

At one convention, I was helping other librarians understand the importance of having a universal changing table available in their buildings. At another event, I was talking about our designated wheelchair charging station. And at a Library program, I was explaining the sensory kits we offer as part of our partnership with KultureCity, a nonprofit organization that certifies venues that have sensory-inclusive modifications.

• Time and time again, I heard the same question.

• “How often is it used?”

• “How many people have benefited from this?”

It’s a valid question, of course. Before any business or organization decides to purchase a piece of equipment or dedicate funds to their enrollment in a specialized program, it’s expected for them to measure the success of the product in quantifiable measures. By doing so, it’s easier to justify the purchase later on – because no one wants to spend hundreds or thousands of dollars on something that only gets used once a year, do they?

• Most business owners would say no.

• But maybe they should reconsider.

To be perfectly honest, I’m not sure if our Library’s universal changing table, wheelchair charging station, or sensory kits have been used at all in the past year. They could sit dormant for months at a time, and I would never consider our purchase of these items to be a failure.

WHY?

Because for the one person who used these tools, it made a tremendous difference in their ability to stay and enjoy our building and resources.

Because for the caregiver who didn’t have to struggle to take care of their loved one as they used these tools, it gave them a happy memory inside our building instead of the exhaustion of a stressful outing.

And because of all the typical individuals who don’t need a wheelchair to move, who don’t need access to a universal changing table to use the restroom, who don’t feel the crushing weight of sensory overload in a public space… they see these pieces of equipment each time they use our building. And by seeing these items on a regular basis, they are reminded of the fact that they are privileged enough to share this world with a unique and valued group of human beings who navigate their lives differently than they do – and that’s a beautiful thing.

If you own a business or lead an organization, I urge you to consider the different ways that you can make your building more inviting and accessible for people of all abilities, because even if those changes help one person, one family, one caregiver – one is enough.

“How

Join us for Cosmic Bowling and Out-of-thisWorld Fun for Everyone!

Bowl strikes? Gutter balls? No worries! Everyone is welcome!

You are invited to the UDS All-Stars at the Alley Event Light up the night with us enjoy bowling, friends, food, and fun!

WHEN: Saturday, July 29, 2023, from 6–9 p.m. Bowling begins at 6:30 p.m.

WHERE: Spins Bowl Akron 2911 E. Waterloo Rd., Akron

REGISTRATION: 4 or 5 bowlers per team/ $65 per bowler

Includes 2 hours of bowling * shoe rental * appetizers/pizza/soft drinks

Register by Friday, July 21, 2023

REGISTRATION DEADLINE: Friday, July 21, 2023

CONTACT: For more information call 330-762-9755, ext. 243 or by email at info@udsakron.org

To register go to www.UDSAllStars.org

All proceeds benefit All-Star Training Club ( a program of UDS)

PRESENTED BY: Huntington Bank

MEDIA SPONSOR: Special Needs Living Magazine

SCHOOL’S OUT FOR SUMMER!

Strategies to avoid challenging behaviors by maintaining routine

BY DR. KRISTINE TURKO, BCBA, COBA

Now that the school year has ended and summer break is here, parents of children with disabilities may feel a sense of unease about the change in routine. Children with disabilities often thrive on structure and predictability, and the lack of a familiar routine can be unsettling. However, with a little planning and preparation, the summer months can be a time of relaxation and fun for the whole family. By establishing routines that provide a sense of stability and predictability, parents can help their children feel more secure and confident, while also preventing challenging behaviors that can arise when routines are disrupted.

Research has shown that routines play a vital role in the mental and emotional well-being of children with disabilities. According to Psychology Today, structured routines lead to healthier sleep cycles, which lead to better mental and emotional well-being. The Journal of Abnormal Child Psychology reports that family routines help moderate impulsiveness and oppositional symptoms and traits in children. This research is especially relevant to autistic individuals who find safety and security in the predictability of routines. People with autism thrive on repetition, making routines a successful part of their daily lives.

Without stability and feelings of well-being, challenging behaviors can emerge. Challenging behavior is anything that interferes with a person’s learning, engagement, and social interactions. It is important to remember that challenging behavior is often a child’s way of communicating that something is wrong. Common functions or reasons for challenging behavior include getting access to adult attention, getting access to an item or activity, and escaping a non-preferred activity. Establishing routines can help prevent challenging behavior and provide a sense of security and predictability for children with disabilities.

As we prepare for the summer months, establishing routines can help prevent challenging behavior and set the stage for a more relaxed and

enjoyable summer for you and your child. Here are some tips to get started:

• Create a predictable environment: Make sure your child knows what to expect by establishing a consistent routine for meals, sleep, and other activities.

• Use visual supports: Use visual aids such as picture schedules or social stories to help your child understand and follow the routine.

• Prepare for transitions: Give your child ample notice before transitioning from one activity to another and provide a visual cue or countdown to help them prepare.

• Manage anxiety: Teach your child breathing exercises or other coping mechanisms to help manage anxiety and intervene early if you notice signs of distress.

• Set boundaries: Establish clear and consistent limits to help your child understand what is expected of them and provide alternatives when necessary.

• Remember, routines should be tailored to your child’s unique needs and preferences. Additionally, it is crucial to make time for selfcare and relaxation. Taking time for yourself can help you recharge and better support your child’s needs. Scheduling time for relaxation activities such as reading, listening to music, or taking a walk can also help reduce stress and promote overall well-being.

• Be patient, keep track of what works and what doesn’t work, and adjust as needed. By establishing routines, you can help your child feel more secure, confident, and ready to take on the challenges of each day.

https://www.psychologytoday.com/us/blog/ the-gen-y-psy/201810/the-power-routines-in-yourmental-health

https://link.springer.com/article/ 10.1007/s10802-010-9447-5

It’s a Bird… It’s a Plane… No, It’s Super Joe!

Joseph David Towell

BY MELISSA KLATT

CURET

You’d never guess that lively, twelveyear-old Bath resident, Joseph David Towell (aka Joey or Super Joe), had a rough go of things, especially in his early years. Through an incredible amount of support from mom and dad (Jennifer and Thomas), caring specialists, and lots of hard work put in via various therapies, you’ll find Joey is one of the most active kids you’ll ever meet!

JOEY’S DIFFICULT START: THE EARLY YEARS

Joey’s first few years were extremely difficult. He was born with a large atrial septal defect in his heart and underwent open heart surgery at the University of Michigan Heart Center while a mere nine months old. He also had three eye surgeries, tubes put in his ears, his tonsils and adenoids removed, and wore a helmet as an infant.

“He now follows up with Akron Children’s Heart Center every year and will have to have another surgery to fix his mitral valve at some point,” says mom, Jennifer.

With his parent’s love, some aid from leg braces and Kinesio tape, and lots of therapy, Joey was able to learn how to walk around age four. Today, you’ll catch Joey running!

SUCCESSES TODAY CAME FROM OVERCOMING HIS STRUGGLES YESTERDAY

Though Joey went through major trials and tribulations in his earlier years, the love from his parents, wonderful medical teams, and therapy (physical, music, occupational, and speech) have paid off today. Joey can enjoy playing all of his favorite sports:

• Tennis

• Football

• Basketball

• Horseback Riding

“I started the Akron Buddy Up Tennis chapter in 2014. It is an adaptive tennis program for individuals with Down syndrome of all ages,” says Jennifer. “Joey participates in Buddy Up Tennis, rides horses at Victory Gallop (since he was two years old), and plays CYO basketball and football.

He also participates in Empower Sports program including basketball and flag football.”

Joey has come a long way but faces a challenge every day when navigating social relationships, accepting himself as a student with worth and value, and not allowing others to put limitations on what he can or cannot do. His current elementary school is inclusive and supportive of him as a student; however, Jennifer and Thomas’ next challenge will be finding a high school that can match those same expectations!

PHOTO BY JULIAN

INSPIRATION COMES FROM UNIQUE PLACES!

Mom, Jennifer, shares her inspiration for being such a pillar in Joey’s life: “You are your child’s number one advocate. You know your child better than anyone else and make sure to always trust your instinct. If something feels off, it probably is. We always create a resume to give all of Joey’s new teachers each year to highlight his strengths and also provide some options for challenges. Be willing to talk with coaches, teachers, and administrators and help support them to include your child. Your child has a right to be on any team, join any class, and participate in any school that they want to be in. Just because Joey may learn differently does not mean he is any less of a student or a person. Your child has a right to education, employment, and most importantly, happiness!

Another source of inspiration comes from the P.J. O’Neil family and the Todd Eisinger family. They have all been supportive and always encouraged us to push Joey to be his best. They are both older than Joey but also have Down syndrome. Their families paved the way for Joey and other kids to be included. We hope that we can do the same for future families who have a family member with a disability.”

Joey’s long-term dreams include going to college, getting married, and moving away to Utah. Though mom and dad hope he stays closer to home, they’re so excited to help support all of Joey’s dreams!

STUDIO + SHOP

IMPACTING PEOPLE EACH & EVERY DAY! PREMIER APPROACH

Premier Approach opened in April 2019 and has grown to six employees. Josh has more than 19 years of experience in this field and Christian has over 10 years of experience.

WRITTEN BY SARAH SMITH

Premier Approach provides adult day support, vocational habilitation, homemaker/ personal care services, and nonmedical transportation to adults with intellectual disabilities and developmental disabilities. In addition to meeting each month with all the clients and creating a calendar of events, Premier Approach offers many impromptu activities on a daily basis that the clients enjoy.

“Most of the individuals that we serve come to our day program because of the experiences that we offer on a daily basis,” said Christian Manns, Premier Approach vice president. “We have learned how important it is for the individuals that you serve to have a say on how they spend their days. We pride ourselves on encouraging our individuals to select activities that not only include them in their community but also

bring a sense of joy and purpose to each of them. We do this by offering self-advocacy training to assist the expression of personal preferences, asserting rights, and making increasingly responsible choices.”

Premier Approach provides adult day support which involves discovering and developing skills, interests, and talents and finding ways to connect to the community based on discoveries. The organization also offers vocational habilitation. This includes learning and work experiences, including volunteer work, that helps to develop general skills. Those skills then lead to integrated community employment in a job that matches the person’s interests, strengths, priorities, and abilities. Premier Approach gives non-medical transportation to and from a place of employment, adult

day support/vocational habilitation locations, and volunteer activities. The company also provides HPC services to individuals, allowing for more independence to explore community services and activities so the individual is integrated in and has more access to the community.

Co-owners, Christian Manns and Josh Croston worked together for an agency provider in Stark County for several years. They respected each other’s work ethic and the approach each took in providing support to the individuals they served. They discussed what they loved most about the field and that was engaging with individuals and getting them out to explore their communities.

Christian and Josh took that passion and started Premier Approach as a way to continue to beneficially impact individuals.

While at the previous agency, Christian and Josh became very close to a number of individuals and many of those relationships remain intact today. Neither of them planned on making a career for themselves in this field. However, each of them grew to love this field and can’t imagine doing anything else.

Premier Approach is located at 2056 Wales Road NE in Massillon. More information can be found at https://www.facebook.com/ PremierAppoachLLC or by calling 330-546-4400.

DEVELOPMENTAL SERVICES

COMMUNITY IMPACT Q&A

Question and Answer session with Brittney Ecenbarger

QUESTION: Where do you work currently?

ANSWER: Starlight School. This school works under a specialized service program to serve children K-12th grade who qualify for services through Tusc BDD and who are demonstrating intense behavioral needs. Their classes provide a multidisciplinary treatment that addresses sensory, speech, social, behavioral, and academic needs. Placement offers educational opportunities, physical therapy, occupational therapy, speech therapy, self-management technique training, and sensory diets for students facing multiple challenges. It is a much-needed program, and truly heartwarming to see staff that genuinely care about the students who attend.

QUESTION: What is your job title here?

ANSWER: Classroom Assistant. I assist in most of the classroom groupings- Preschool, K-2 room, and the 4-6 classroom. One of the teachers lovingly calls me a ‘ping pong ball,’ as I’m always bouncing around to where I’m needed.

QUESTION: How long have you been employed with your current job?

ANSWER: I began working with the school the end of February, 2023.

QUESTION: QUESTION: What other professional associations are you a member of?

ANSWER: I am the Volunteer Representative for the Stark and Tuscarawas County Branch of ASPIES. I have held this position since October of 2021. Originally, I was set to Kickoff the Branch in April of 2020, but Covid had other plans. I host monthly informational and support meetings for parents of those on the Autism Spectrum, and I host events for those kiddos and their families. While our mission is to serve kids and

families affected by Autism, the group is always open to anyone wanting to learn more and support these families. Every couple of months I also open the family-friendly events to all ages and all abilities. I believe it is so important for neurotypical children AND their parents to see that children with Autism are kids too, who enjoy many of the same things that they do, in a space that is more sensory inclusive towards their needs. It is a great learning experience for everyone involved.

I have also served on the Family Leadership Committee (FLC) for Stark County for the past year. Our mission is to increase access to and improve the quality of services and supports available to Stark County families with mental health and other complex needs; and increase family engagement and support within partner agencies that promote and sustains family voice. Beginning my second year of serving on the FLC, I have also accepted a Co-Chairperson position. In this role, I help to plan the agenda, facilitate meetings, and represent the Stark County Family Council at community meetings and funders’ visits.

QUESTION: What is the inspiration behind why you work in this field?

ANSWER: Between my work at Starlight School, running the Stark &Tuscarawas County Branch of ASPIES, and serving on the Stark County Family Leadership Committee, my inspiration continues to be one and the same. As I share in my short Bio to all families with ASPIES, I am a mom who has struggled with isolation and depression due to the intensity of needs that my child has. There is such a lack of support and understanding for parents of those with intense needs. I believe that parents of kids with extra needs deserve to feel seen, heard AND supported in the struggles that we face for their betterment. I am simply a mom who has continuously wanted to

build something we can all invest in and from which we can gather strength.

QUESTION: What part of your job are your most passionate about?

ANSWER: In being a classroom assistant, I’m passionate about meeting the kids where they are and caring for them as the individuals that they are. I’m also very passionate about helping educators understand the parent side of raising those with high levels of behavioral and medical needs. In my other roles, I am most passionate about helping to build and give voice to struggles that have previously been kept quiet, which further leads to the feeling of isolation.

QUESTION: What advice would you give to someone who is new to your field?

ANSWER: In being a classroom assistant, holding meetings for parents, hosting events for kids with Autism, and speaking with professionals about what services are needed- My advice would be to listen without judgment. Every story is different, and these kids/families want to be accepted at the place they are currently at in their journey. People do the best with the information they have, and when they know better, they can do better. You don’t know what you don’t know.

QUESTION: What is your favorite success story you have seen?

ANSWER: I truly couldn’t choose just one. It has been such a blessing and humbling experience to see kids grow socially, to be accepted within

a group, and to show such pride towards crafts and creations they have made at my events. (ASPIES) One of my favorite stories of largescale acceptance was when one of my ASPIES kiddos was concerned that no one would show up for his birthday party for a second year in a row. He enjoyed motorcycles, and through community outreach we had over 60 motorcyclists drive in for his birthday party and bring him gifts, some from the other side of the state. These motorcyclists took the kids in attendance on short rides around the parking lot on their motorcycles. That story continues to make my heart swell, with the compassion and acceptance that was shown that day.

QUESTION: Do you feel like you’re making a difference in your job and why?

ANSWER: I believe that I am. I also believe I am getting just as much out of the roles I hold, if not more. I am constantly being reminded of the joy that comes from working with those whose brains work differently. I am shown a love for others and taught compassion without limits on a daily basis through everything that I do.

I love to learn, and with the roles I hold, I am truly learning every day.

QUESTION: What is something you would change in your field for the better if you could?

ANSWER: When it comes to working with individuals with Autism and behavioral needs, I would grow the amount of safe, reliable, and compassionate respite care within our local communities. It is much needed for the parents to get a chance to breathe and regroup.

QUESTION: Where do you see your industry going moving forward?

ANSWER: There will always be a need for assistants and educators who are willing and able to work with those who have different abilities. My hope is that those looking into furthering their education would see the lifechanging possibilities of working with this population and continue to build and staff programs that enable these individuals to succeed.

QUESTION: What is your favorite non-profit organization or volunteer opportunity?

ANSWER: ASPIES holds a huge space in my heart. ASPIES of Greater Akron was the first time that I found a local source to offer support for our family’s needs. Joy (founder of ASPIES) works tirelessly to offer the support that families need and connect them to resources. I was very excited to expand the services into my local counties, as we didn’t have much available to fit our needs. Both the Akron-based group AND my Branch are fully run by volunteers who always accept help for our events. We can do a LOT but could do so much more if we had more volunteer support and funding. Find out more about our mission and upcoming events at ASPIES.org.

I also love Challenger Baseball. My family has personally been involved with Tuscarawas County Challenger Baseball for 6 years. Challenger Baseball offers a wonderful opportunity for those with a disability to learn a sport at their own pace and comfort level. I LOVE hearing every parent rooting for everyone’s kids at the games. There is no judgement, only LOVE!

Overcoming the Unknowns of an Autism Diagnosis

Meet Matt Sopher

BY ANDREA HURR

PHOTO BY JULIAN CURET

Receiving a diagnosis of Autism for your child can be very scary, and for a single parent, it is quite overwhelming. Nick Sopher trusted his gut instincts with his son Matt and found some great local resources over the years to help them both navigate through the diagnosis and help Matt to thrive.

When Matt was younger, he wasn’t reaching milestones and Nick knew something was just a little off. Once diagnosed Nick didn’t know anything about Autism and went to the internet for answers, which we know can sometimes be worse for parents. He eventually found resources to help him and some amazing organizations in his community to connect with and they have since made lifelong friends. One organization, in particular, was the Challengers Baseball team from Green, Oh. Nick was a little league umpire and heard about the Challengers through a friendship that formed while umpiring. What started with 5 special needs players has grown into over 20 kids who get to be included, learn the game at their speed, and have the opportunity for them to have fun while families can connect with other families in similar situations.

Matt’s father Nick has learned over the years that it takes an army! He stated that his parents, brother, and family which also includes his wife Amanda (Matt’s stepmom) have all been instrumental in helping with Matt’s care over the years and have helped Nick become the person that he is today. Nick also wants to thank their hometown of North Canton for all they have done for Matt. Nick states that when they moved to North Canton it was as if a door in Matt’s mind opened and he became very interested in wanting to be involved in school. Now Matt is a 17-year-old junior at Hoover High School, who will be going into his senior year as a 2-year academic letterman and a varsity letterman in golf and choir! “I can’t thank North Canton enough, to the coaches,

teachers, administrators…the difference you’ve made in Matt is life-changing,” says proud Dad Nick.

Besides the Challengers, Matt participates in UDS (United Disability Services) All-Star Training Club which has sports programs year-round for kids of all abilities. Matt has participated in this club for 10 years. He is also

a proud member of the School Men’s Chorus at Hoover High School and attends Greensburg United Methodist Church.

Matt says that his hero is his Dad who has inspired him by showing him hard work and wanting Matt to be the best person he can be. Nick wants parents/families of special needs children to know that you are not alone. There are plenty of resources and organizations to help your child. “Become involved, ask questions, there are so many opinions and different places to go for help for your child.” Just by having a conversation while umpiring, Nick discovered that his son and another player were in the same class at school, and from that a friendship formed which led them to the Challengers. There are opportunities all around you just have to be open to finding them.

The WOW

Wide Open World

Creating Real Opportunities for Individuals With Disabilities

What's Included?

Individuals have access to fun and interactive daily and weekly trips!

Local: Bowling, Breakfast out and about, Pumpkin Patch, Vineyards, Zoo, Plays, Fairs, Etc.

In State: Cleveland Rock and Roll Hall of Fame, Mentor on the Lake, Geneva on the Lake, Columbus- Zoo, German Town, Eaton, Sandusky - Cedar Point, Kalahari, CincinnatiKings Island, Zoo, Etc.

Out of State: Pa- Hershey PA, Buffalo NY, Orlando Fl- Disney, Etc.

Out of Country: Cruise Time - Mexico, Eastern Caribbean, Western Caribbean, Disney Cruise And Much, Much More!

THERE IS ALWAYS A WAY MEET THE LEGENDARY BOB HALE

Writing this article about Bob is very exciting for me. Usually, I get the privilege of writing about young kids and teenagers, but Bob is neither of those, Bob is an energetic 50-year-old man who happens to have Down Syndrome. Bob’s family has led the way in the Stark County area for special needs families. by seeing the needs for their son and creating ways for his needs to be met. The Hales are visionaries and an inspirational family all around!

BY ANDREA HURR

CURET

PHOTO BY JULIAN

At 8 years old, Bob was in one of the first inclusion program classes in all of Stark County. This program was located in Louisville, but Phyllis and Tom Hale wanted their son to be closer to their home in Uniontown for school so they convinced Lake Local to start an inclusive elementary class. Bob joined Special Olympics when he was 8 years old and at the age of 10 he could no longer participate in the Special Olympics through Stark County DD since he was at a local school program. Not wanting Bob to have to stop what he loved, the Hales once again decided to take action into their own hands and they started The Hale Foundation so children in public school could still participate in the Special Olympics.

They said it was a great experience for them and after a few years, The Hale Foundation merged with Stark Public Special Olympics. Phyllis says “it has been a wonderful experience that started when Bob was a child and has translated into a passion for him as an adult.” In Special Olympics, Bob participated in powerlifting which is his favorite, swimming, bowling, tennis, and track & field. He is very active in the community enjoying concerts and trips with Clearview Developmental Services.

The Hales say they have been so lucky to have great support in Stark County which has helped Bob to grow over the years. Some of the resources they have and currently use are GentleBrook, Clearview Developmental Services as previously mentioned, Stark Public Special Olympics-also previously mentioned, GiGi’s Playhouse in Canton, Kingdom Builders Class at FCC Canton, and Stark DD. The support of these organizations has allowed Bob to learn and keep his independence and he is a very handyman. He likes to keep busy and is always on

FUN FACT ABOUT BOB!

In 2003 he received the Amateur Athletic Union’s Powerlifting Championship in Richmond Virginia. Bob set three American and World Records in the deadlift, bench press, and squad lift in the Special Open for individuals with disabilities. He competed against 400 athletes representing 12 countries. Bob lifted 187.5 pounds in his squat, 187.5 pounds on the bench, and ended with a deadlift of 286.6 pounds!

the go and Phyllis says that he is always thoughtful and loves to help people (he loves mission trips with Kingdom Builders too).

Bob was set up for success with such great support from his parents and family. Besides their ability to see a need and create a solution for Bob when he was younger, the Hales always treated him like his sister Susan. They never thought Bob couldn’t do something; it just took him a little longer. Phyllis says that a lot of people think a person with special needs can’t learn to do some things, but if you take the time (and patience) they might surprise you!” Bob currently works at GentleBrook Greenhouse & Farm in Hartville where he loves working with flowers and planting vegetables. On your next stop there see if the country music-loving Bob is working and say hello to him. I bet he will just make your day!

YGA Transportation

YGA Transportation is the leading medical transportation throughout Summit, Stark, Medina, Mahoning, Portage, Cuyahoga County. YGA Transportation services include:

• Wheelchair • Recreational • Dialysis Transport

• Psychiatric Transport • Long-distance Transport

• Grocery Shopping • Doctor's Appointments and so much MORE!

Community Integration Day Program

The Community Integration Day Program offers a variety of activities designed to promote socialization and integration among individuals of all ages and abilities. The program provides structured activities, educational classes, socialization events, and recreational outings that are designed to facilitate the development of relationships, communication, and understanding. Participants are encouraged to explore their interests, express themselves, and learn new skills while engaging in meaningful activities with peers and staff. There is an emphasis on individualized and group learning experiences, building self-esteem, and developing meaningful relationships. The program is designed to help individuals become more independent, self-sufficient, and integrated into their community. It offers a safe and supportive environment where everyone can be successful.

We offer HomeCare/HPC and MANY other services. Call Us Today for More Information!

NEXT TO KIN SUPPORTIVE SERVICES

ADULT DAY SUPPORT

Next to Kin offers hands-on employ-ability skills training that addresses personal care, self-determination, job readiness, recreation & leisure activities.

HOME CARE AND PERSONAL CARE

Next to Kin will assist individuals with their daily living activities in the individual's home. Duties performed at a place or residence may include housekeeping (laundry, dishes, meal prep, etc.). We can also assist with appointment making, nutrition, and personal care.

RESPITE

Respite is for individuals who are unable to care for themselves for a short-term basis, because of the absence or need for relief of those persons who normally provide care.

FOSTER CARE

Next to Kin offers Adult Foster to individuals who are not capable of living alone. We provide a quality and private home setting.

COMMUNITY INCLUSION

Next to Kin provides support that promotes getting out and being involved in his/her community

YOGA AND THE MIND-BODY CONNECTION

BY LISA R. SCHAEFER, MSSA, LSW, LICDC-CS RTY 200, REIKI MASTER

Many people know that yoga is a great way to exercise, but yoga is so much more. Yoga can play an essential role in developing emotional balance. Unfortunately, we live in a society that prioritizes multitasking, the pressure to have it all, and valuing productivity over self-care, all of which contributes to chronic stress and emotional imbalance.

Emotional imbalance can show up in many ways, such as low self-esteem, constant worrying, and sleep disturbances, it contributes to chronic pain, depression, and anxiety. Our fast-paced lifestyles can leave little room to address family issues, financial issues, social strains, and even spiritual alienation. It may not always feel like it but everything that causes stress and difficulty in our lives is on a continuum. Where on this continuum does your mind lie? Where is your body? Perhaps you are unaware of the incongruence that occurs between the mind and body.

Yoga and breathwork give us tools to return to our emotional center. Yoga is a practice that offers space to be calm, relaxed, and even rejuvenated. The principles and practices of yoga are supported by psychosocial and neuroscience research. Evidence-based theories show positive outcomes when we incorporate meditation, visualization, breathing exercises, and relaxation techniques in our daily routine.

There is no expectation to live only happy days but we can learn how to feel the feelings and let them go. How can you reduce feeling angry? What do you do when you feel hurt or brokenhearted? As humans, it is natural to feel feelings like anger, sadness, fear or guilt. The practice of yoga can teach you to refrain from drowning in intense emotions or allowing our emotions to limit our potential.

The more you become familiar with your mind-body connection the better you will navigate the many, especially unexpected, experiences of life without becoming stuck in emotional turmoil. When we are empowered the connection of mind-body opens us for new opportunities of emotional growth.

If you have never practiced yoga before, I assure you yoga is for you. You do not need to be in shape, bendy or anything really to practice yoga. While a physical practice of yoga can develop strength and flexibility, the emotional practice of yoga gives us the ability to tolerate the full range of emotions and then return to a state of calm.

Restorative yoga is an internal practice that combines meditation and supported yoga poses that create feelings of relaxation. During Restorative yoga, a person learns how to quiet their mind and become more reflective. Restorative yoga can be a powerful and even a challenging internal practice. When we can bring the body to be still we can then face the feelings and thoughts that we may be avoiding. Yet, with practice we learn to create space for calm and emotional centeredness.

When we are present, we can practice letting go. We do this by using regulated breathing and relaxing the body. We learn how emotions show up mentally and physically. We come to understand emotions ebb and flow and mostly can be short-lived. A consistent yoga practice can replace irregular emotional experiences with healthier ones. When you discover this connection to yourself you increase the healing of the mind, body, and spirit.

Fun, Snacks, Inclusion and Coffee - All In One Place

Hudson High School’s Sweet Sensations Cafe

BY BY DEBORAH RILEY

Within the halls of Hudson High School is the Sweet Sensations Cafe. On Tuesday and Wednesday mornings the cafe is open for students and staff to stop in and enjoy an array of hot or cold beverages and delicious fresh made baked goods. For those who are unable to make it to the cafe, they can catch the Sweet Sensations Coffee Cart outside the Media Center, which has the same hot and cold beverage choices and the same fresh baked goods sold in the cafe. Orders can also be placed in advance and delivered to meetings. Students gather in the cafe to enjoy their drinks and food while socializing, reading, and playing games.

Sweet Sensations Cafe is run by students in the Special Education program at Hudson High School. The cafe was

created by Intervention Specialists Ginger Belnap, Naomi Ersoff, and Erin Quinn in 2007 and was funded through a grant from the Margaret Clark Morgan Foundation. Currently, students from the classes of Corey Barnes, Cindy Crooks, and Kristen Stonestreet assist with the cafe as well.

The purpose of Sweet Sensations Cafe is to expose students to basic job skills while also working on functional life skills. With the assistance of the Intervention Specialists and Paraprofessionals, students operate every aspect of the cafe. Students inventory items, make supply lists, shop for needed items, prepare and package baked goods for sale, operate the cash registers, make the hot drinks, and balance the registers at the end of the day. Students are scheduled for

be in “uniform” wearing Sweet Sensations shirts, aprons, or chef coats while working in the cafe or running the cart.

Some of the behindthe-scenes operations of the coffee shop, such as inventory, baking, and shopping, are incorporated into lessons during academic and Work Study classes. Students take their supply lists and shop for items weekly, making purchases for the cafe with the assistance of school staff. Fresh baked goods are prepared in the Living Lab at the high school by students who learn about following recipes, food preparation, and kitchen safety. Speech and Occupational therapies are often incorporated into working at the cafe as well. Uniforms were made available through a grant from the PTO, and the Sweet Sensations logo was placed on the uniforms by students who participate in the Hudson High School Maker Space, which is run by Andrew Robitaille.

Through their participation in the cafe, students are learning skills surrounding money, budgeting, purchasing, planning, cooking, kitchen safety, following a work schedule, dressing appropriately, and communication that will follow them throughout their life. Working in the cafe builds their confidence, allows them to feel a sense of ownership and responsibility, and also helps build a connection to their typical peers in the school.

TESTIMONIALS FOR SWEET SENSATIONS CAFE

“We are so grateful to have the Sweet Sensations Coffee Shop at Hudson High School and the opportunities it has provided for our students to engage in authentic vocational and social experiences. Sweet Sensations was originally made possible due to a generous grant from Peg’s Foundation (formerly known as the Margaret Clark Morgan Foundation). We were able to create an incredible space for our students to practice functional living and vocational skills. This inclusive environment has become a place to gather, connect, build friendships and practice valuable skills.”

–Kelly Kempf, Director of Pupil Services for Hudson City Schools

“The Sweet Sensations coffee shop provides not only a great service to our building as a whole, but the real-world experience of the students who produce and manage the shop is invaluable. We are so proud of our students and the staff that makes Sweet Sensations a success!” –Mike

Miller, Hudson High School Principal

“Our daughter, Raina (10th grade), first and foremost enjoys working in the Sweet Sensations Cafe. Being a very social person, it gives her the opportunity to interact weekly with staff and students she may not otherwise see regularly. Raina has gained excellent vocational skills and experiences that will translate into the ‘real word’ as she seeks employment after graduation. She is learning how to

use functional math in everyday life, and learning customer service. The cafe offers her different opportunities to learn a variety of job skills, as she has worked as a barista and a cashier. Raina also participates in preparation and planning for the menu as her group shops each week for ingredients at the local Acme or Giant Eagle. These trips encourage her to use her adaptive aids to comparison shop, and learn the layout of a grocery store. It also teaches her how to budget money. Raina has gained so many wonderful skills over the past two years. The Sweet Sensations Cafe is an excellent program, with so many benefits to all students involved.” –

Jennifer Kubinski

“Maddie (12th grade) enjoys working at the Sweet Sensations Cafe and tells us at home who came in and what they bought. She loves seeing a variety of people from her school and the chance to interact with them. Through the years, Maddie has done different tasks, from shopping for ingredients, making the cookies, and then working at the cafe to greet customers and make orders for them. We’ve noticed that Maddie’s customer service skills really shine now. She understands the importance of being friendly and welcoming. The cafe is a highlight of her school time.” –Sean

McGurr

If

you are interested in touring this program or starting a similar program of your own, please contact Ginger Belnap at: belnapg@hudson.k12.oh.us

Sharing Solutions and Special Needs Living magazine partnered together to host the Special Needs Community Resource Fair on Saturday, April 29th. It turned into an incredible day for all who were in attendance and it was made possible by the support of Stark Board of Developmental Disabilities, The Arc of Ohio and First Christian Church - Canton.

So many families and individuals joined us for a day of introductions to resources, reconnections with friends and fun all around. There were snacks, there were free giveaways, and above all else, there was tons of laughter and smiles throughout the building.

If you were able to make it, allow us to extend a huge Thank You. If you missed it for one reason or another, allow us to formally invite you to the next one. Be on the lookout for information in Special Needs Living magazine as we’ll surely be doing this again.

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